Re: Long term on Xolair

[Guest guest]

Soooo great.  Thanks for sharing your story! 

From: mister_manganese <barryb@...>

Subject: [ ] Long term on Xolair

Date: Sunday, November 21, 2010, 5:09 AM

 

It's been four or five years since I started on Xolair, max dose both arms

because my IGE was well over 300.

So I just thought it would be good to report my experience.

I usually get the shots every two weeks, but sometimes I skip a week due to

vacations, etc.

Gone are the frequent sicknesses that I used to have. My Autumn " colds " are

gone. My Spring " colds " are gone. My in-between " colds " are gone. And most

importantly, I can breath well enough to do some mild mountain climbing when

before Xolair I was stressed to walk up the grade in my back yard.

I've been sick twice during those years on Xolair. The first time was early on

during a heavy pollen season. The second time was when I caught the H1N1 flu

(the Swine flu) about a year ago. I recovered from both in a day.

I'm not 100% out of the woods. I still react to strong odors like perfume but

not like I used to. I still hit the abuterol inhaler once or twice a week during

the winter (and especially holidays) season when I'm cooped up inside and

bombarded with irritants at parties and the super dry winter air. But in

general, I have a life that is of much higher quality than before Xolair.

My experience was almost an instant improvement with my first Xolair shots. But

as the years progressed the improvement has been gradually so markedly better.

So now I'm planning a winter ascent on Mt. Washington, the most difficult ascent

in NE US, in February or early March. Why? Just because I think I can. Outdoors,

where the air is fresh .... and now I have the gear ... crampons ... ice ax ...

layered polyester ... ultraviolet eye protection for the alpine sun ... I'm

preparing myself physically. It's beyond my wildest dreams five years ago.

Is essense, Xolair has given me life that I lost sooo many, many years ago, and

I really hadn't realized it had been lost.

[Guest guest]

My experience has been the same.  It seems the longer I stay on Xolair

(6-years) the better it works.  I still have to control my environment but the

improvement has been profound.  I used to get winded walking up a flight of

stairs.  Today I could probably climb 10 flights without as much as a deep

breathe.  Glad to hear you are doing so well.

From: mister_manganese <barryb@...>

Subject: [ ] Long term on Xolair

Date: Sunday, November 21, 2010, 5:09 AM

 

It's been four or five years since I started on Xolair, max dose both arms

because my IGE was well over 300.

So I just thought it would be good to report my experience.

I usually get the shots every two weeks, but sometimes I skip a week due to

vacations, etc.

Gone are the frequent sicknesses that I used to have. My Autumn " colds " are

gone. My Spring " colds " are gone. My in-between " colds " are gone. And most

importantly, I can breath well enough to do some mild mountain climbing when

before Xolair I was stressed to walk up the grade in my back yard.

I've been sick twice during those years on Xolair. The first time was early on

during a heavy pollen season. The second time was when I caught the H1N1 flu

(the Swine flu) about a year ago. I recovered from both in a day.

I'm not 100% out of the woods. I still react to strong odors like perfume but

not like I used to. I still hit the abuterol inhaler once or twice a week during

the winter (and especially holidays) season when I'm cooped up inside and

bombarded with irritants at parties and the super dry winter air. But in

general, I have a life that is of much higher quality than before Xolair.

My experience was almost an instant improvement with my first Xolair shots. But

as the years progressed the improvement has been gradually so markedly better.

So now I'm planning a winter ascent on Mt. Washington, the most difficult ascent

in NE US, in February or early March. Why? Just because I think I can. Outdoors,

where the air is fresh .... and now I have the gear ... crampons ... ice ax ...

layered polyester ... ultraviolet eye protection for the alpine sun ... I'm

preparing myself physically. It's beyond my wildest dreams five years ago.

Is essense, Xolair has given me life that I lost sooo many, many years ago, and

I really hadn't realized it had been lost.

[Guest guest]

....thank you so much for your story and the affect Xolair has had and

continues to have on your life.  I am coming up on my one year anniversary and I

couldnt have asked for a better outcome.  It is a little scary in the beginning

as you wonder how you will react to it and most importantly... " will it work " .  I

too, have been able to avoid the twice a year hospitalizations and the never

ending dosages of prednisone.  My breathing has been much better and the use of

emergency meds are almost non-existant.  Like you, I have taken advantage of the

situation and began exercising about 5 months ago.  It has done wonders for me.

I am 54, 6'3 " and currently 230.  I have lost 30 pounds and have a goal of

losing another 20 pounds.  I work out, play tennis, take walks, ski and really

enjoy life now.  I love hearing the success stories like 's and the

incredible change that Xolair has made in his life.  I only wish all of us could

have the same outcomes. 

Happy Thanksgiving to all......breath well.

Mark

________________________________

From: McLaughlin <gmclaughlin1000@...>

Sent: Tue, November 23, 2010 9:03:20 PM

Subject: Re: [ ] Long term on Xolair

My experience has been the same.  It seems the longer I stay on Xolair (6-years)

the better it works.  I still have to control my environment but the improvement

has been profound.  I used to get winded walking up a flight of stairs.  Today I

could probably climb 10 flights without as much as a deep breathe.  Glad to hear

you are doing so well.

From: mister_manganese <barryb@...>

Subject: [ ] Long term on Xolair

Date: Sunday, November 21, 2010, 5:09 AM

 

It's been four or five years since I started on Xolair, max dose both arms

because my IGE was well over 300.

So I just thought it would be good to report my experience.

I usually get the shots every two weeks, but sometimes I skip a week due to

vacations, etc.

Gone are the frequent sicknesses that I used to have. My Autumn " colds " are

gone. My Spring " colds " are gone. My in-between " colds " are gone. And most

importantly, I can breath well enough to do some mild mountain climbing when

before Xolair I was stressed to walk up the grade in my back yard.

I've been sick twice during those years on Xolair. The first time was early on

during a heavy pollen season. The second time was when I caught the H1N1 flu

(the Swine flu) about a year ago. I recovered from both in a day.

I'm not 100% out of the woods. I still react to strong odors like perfume but

not like I used to. I still hit the abuterol inhaler once or twice a week during

the winter (and especially holidays) season when I'm cooped up inside and

bombarded with irritants at parties and the super dry winter air. But in

general, I have a life that is of much higher quality than before Xolair.

My experience was almost an instant improvement with my first Xolair shots. But

as the years progressed the improvement has been gradually so markedly better.

So now I'm planning a winter ascent on Mt. Washington, the most difficult ascent

in NE US, in February or early March. Why? Just because I think I can. Outdoors,

where the air is fresh .... and now I have the gear ... crampons ... ice ax ...

layered polyester ... ultraviolet eye protection for the alpine sun ... I'm

preparing myself physically. It's beyond my wildest dreams five years ago.

Is essense, Xolair has given me life that I lost sooo many, many years ago, and

I really hadn't realized it had been lost.