Re: Re: Angioedema, Urticaria, Delayed Pressure Angioedema/Xolair

[Guest guest]

Hi Diane and Addy,

I have Urticaria, Angioedema, Delayed Pressure Angioedema and mild Asthma.

My IgE levels are through the roof but I don't have severe asthma. I was

approved for Xolair and I start my injections on friday.

If it weren't for this group, I would have spent many nights alone fighting

this disease. I also would not have found out about Xolair had it not

been for you guys! I'm praying it works for me because so many of you have

had good results.

My promise to you all is this: I will keep you informed weekly on my

progress, what medications I'm taking, what I will be able to wean off of and

any side effects that may occur.

I hope that my experience will prove to help anyone out there suffering

from this disease. Many times we all have felt alone in this disease....

there isn't much help out there and family and friends sometimes (although they

probably won't tell us) get discouraged and disheartened by our diseases.

I always feel guilty for even complaining anymore. You have all been my

rock. I hope that I can return some of the help you have all given to me.

Thanks to Doug, Addy, Jeanne and to all the others out there who

continually send good thoughts, send us links, fill us with knowledge and for

creating this group. Finally, I'm not alone anymore

For Diane.... My angioedema lasts quite significantly longer than 45

minutes. Usually 24 hours. It's quite scary when it's in my mouth or throat.

The ONLY thing to help me at that point is high IV doses of steroids and/or

an EPI pen. Your son has an EPI pen, doesn't he? I'm praying the Xolair

takes away the Urticaria AND the angioedema as well for me. Both are very

debilitating. He is not alone in his suffering! I hope that the Xolair

soon kicks in and gives him the cure he needs! Some people have gotten

results immediately and some have seen remission results after 3 or 4 months of

injections. I'm guessing each of us are so different, the results have to

be different as well. Think positive thoughts... and never, ever give up!

My best to each of you!!

In a message dated 2/8/2011 10:37:07 A.M. Eastern Standard Time,

anagnos19@... writes:

Thank you. Please keep me informed if you hear of anyone having Angioedema

and asthma and their results while taking the Xolair.Much appreciated!

Diane

> >

> > My son is 16 years old , has allergic asthma, multiple food,and

environmental allergies and suffers from Ideopathic facial angioedema(lips and

mouth). He has been suffering with these symptoms for the past3 to 4 years.He

has 2-3 episodes of the angioedema a day along with asthma symptoms daily.

He has been on multiple antihistamines and inhalers without relief. When

an Angioedema episode happens he must take 25- 50mg of benedryland apply ice

to his lips. Each episode lasts 45 minutes to an hour.Sometimes the

swelling goes into his airway and he then has asthma symptoms. He has been

unable

to attend school due to the frequecncy of his symptoms. He has received

his first injection of Xolair this past January. I was wondering if there are

any others that have been suffering with angioedema with asthma and have

taken Xolair. Does the Xolair help decrease the Angioedema symptoms as well

as the Asthma symptoms? How many treatments of Xolair are needed to see

improvem ent with the symptoms?? Any information would be greatful! I would

like to see my son back in school with friends!!

> > Thank you!

> >

>

[Guest guest]

All the best. I am very excited for you.

Sent from my BlackBerry® smartphone

-----Original Message-----

From: heartabrasions@...

Sender:

Date: Tue, 8 Feb 2011 12:18:01

< >

Reply-

Subject: Re: [ ] Re: Angioedema, Urticaria, Delayed Pressure

Angioedema/Xolair

Hi Diane and Addy,

I have Urticaria, Angioedema, Delayed Pressure Angioedema and mild Asthma.

My IgE levels are through the roof but I don't have severe asthma. I was

approved for Xolair and I start my injections on friday.

If it weren't for this group, I would have spent many nights alone fighting

this disease. I also would not have found out about Xolair had it not

been for you guys! I'm praying it works for me because so many of you have

had good results.

My promise to you all is this: I will keep you informed weekly on my

progress, what medications I'm taking, what I will be able to wean off of and

any side effects that may occur.

I hope that my experience will prove to help anyone out there suffering

from this disease. Many times we all have felt alone in this disease....

there isn't much help out there and family and friends sometimes (although they

probably won't tell us) get discouraged and disheartened by our diseases.

I always feel guilty for even complaining anymore. You have all been my

rock. I hope that I can return some of the help you have all given to me.

Thanks to Doug, Addy, Jeanne and to all the others out there who

continually send good thoughts, send us links, fill us with knowledge and for

creating this group. Finally, I'm not alone anymore

For Diane.... My angioedema lasts quite significantly longer than 45

minutes. Usually 24 hours. It's quite scary when it's in my mouth or throat.

The ONLY thing to help me at that point is high IV doses of steroids and/or

an EPI pen. Your son has an EPI pen, doesn't he? I'm praying the Xolair

takes away the Urticaria AND the angioedema as well for me. Both are very

debilitating. He is not alone in his suffering! I hope that the Xolair

soon kicks in and gives him the cure he needs! Some people have gotten

results immediately and some have seen remission results after 3 or 4 months of

injections. I'm guessing each of us are so different, the results have to

be different as well. Think positive thoughts... and never, ever give up!

My best to each of you!!

In a message dated 2/8/2011 10:37:07 A.M. Eastern Standard Time,

anagnos19@... writes:

Thank you. Please keep me informed if you hear of anyone having Angioedema

and asthma and their results while taking the Xolair.Much appreciated!

Diane

--- In_ _ (mailto: )

, " pyle456 " <jamcculloch2@...> wrote:

>

> We've had some group members with allergic skin conditions report

substantial improvement in those symptoms with Xolair, but I don't know if any

of

them have angioedema specifically. I hope that Xolair will help your son!

>

> Addy

> Group Co-owner

>

> --- In_ _

(mailto: ) , " anagnos19 " <anagnos19@> wrote:

> >

> > My son is 16 years old , has allergic asthma, multiple food,and

environmental allergies and suffers from Ideopathic facial angioedema(lips and

mouth). He has been suffering with these symptoms for the past3 to 4 years.He

has 2-3 episodes of the angioedema a day along with asthma symptoms daily.

He has been on multiple antihistamines and inhalers without relief. When

an Angioedema episode happens he must take 25- 50mg of benedryland apply ice

to his lips. Each episode lasts 45 minutes to an hour.Sometimes the

swelling goes into his airway and he then has asthma symptoms. He has been

unable

to attend school due to the frequecncy of his symptoms. He has received

his first injection of Xolair this past January. I was wondering if there are

any others that have been suffering with angioedema with asthma and have

taken Xolair. Does the Xolair help decrease the Angioedema symptoms as well

as the Asthma symptoms? How many treatments of Xolair are needed to see

improvem ent with the symptoms?? Any information would be greatful! I would

like to see my son back in school with friends!!

> > Thank you!

> >

>

[Guest guest]

Go team xolair!! Keep us posted!

C

________________________________

From: " sheilabiss@... " <sheilabiss@...>

Sent: Tue, February 8, 2011 3:00:24 PM

Subject: Re: [ ] Re: Angioedema, Urticaria, Delayed Pressure

Angioedema/Xolair

 

All the best. I am very excited for you.

Sent from my BlackBerry® smartphone

-----Original Message-----

From: heartabrasions@...

Sender:

Date: Tue, 8 Feb 2011 12:18:01

< >

Reply-

Subject: Re: [ ] Re: Angioedema, Urticaria, Delayed Pressure

Angioedema/Xolair

Hi Diane and Addy,

I have Urticaria, Angioedema, Delayed Pressure Angioedema and mild Asthma.

My IgE levels are through the roof but I don't have severe asthma. I was

approved for Xolair and I start my injections on friday.

If it weren't for this group, I would have spent many nights alone fighting

this disease. I also would not have found out about Xolair had it not

been for you guys! I'm praying it works for me because so many of you have

had good results.

My promise to you all is this: I will keep you informed weekly on my

progress, what medications I'm taking, what I will be able to wean off of and

any side effects that may occur.

I hope that my experience will prove to help anyone out there suffering

from this disease. Many times we all have felt alone in this disease....

there isn't much help out there and family and friends sometimes (although they

probably won't tell us) get discouraged and disheartened by our diseases.

I always feel guilty for even complaining anymore. You have all been my

rock. I hope that I can return some of the help you have all given to me.

Thanks to Doug, Addy, Jeanne and to all the others out there who

continually send good thoughts, send us links, fill us with knowledge and for

creating this group. Finally, I'm not alone anymore

For Diane.... My angioedema lasts quite significantly longer than 45

minutes. Usually 24 hours. It's quite scary when it's in my mouth or throat.

The ONLY thing to help me at that point is high IV doses of steroids and/or

an EPI pen. Your son has an EPI pen, doesn't he? I'm praying the Xolair

takes away the Urticaria AND the angioedema as well for me. Both are very

debilitating. He is not alone in his suffering! I hope that the Xolair

soon kicks in and gives him the cure he needs! Some people have gotten

results immediately and some have seen remission results after 3 or 4 months of

injections. I'm guessing each of us are so different, the results have to

be different as well. Think positive thoughts... and never, ever give up!

My best to each of you!!

In a message dated 2/8/2011 10:37:07 A.M. Eastern Standard Time,

anagnos19@... writes:

Thank you. Please keep me informed if you hear of anyone having Angioedema

and asthma and their results while taking the Xolair.Much appreciated!

Diane

--- In_ _ (mailto: )

, " pyle456 " <jamcculloch2@...> wrote:

>

> We've had some group members with allergic skin conditions report

substantial improvement in those symptoms with Xolair, but I don't know if any

of

them have angioedema specifically. I hope that Xolair will help your son!

>

> Addy

> Group Co-owner

>

> --- In_ _

(mailto: ) , " anagnos19 " <anagnos19@> wrote:

> >

> > My son is 16 years old , has allergic asthma, multiple food,and

environmental allergies and suffers from Ideopathic facial angioedema(lips and

mouth). He has been suffering with these symptoms for the past3 to 4 years.He

has 2-3 episodes of the angioedema a day along with asthma symptoms daily.

He has been on multiple antihistamines and inhalers without relief. When

an Angioedema episode happens he must take 25- 50mg of benedryland apply ice

to his lips. Each episode lasts 45 minutes to an hour.Sometimes the

swelling goes into his airway and he then has asthma symptoms. He has been

unable

to attend school due to the frequecncy of his symptoms. He has received

his first injection of Xolair this past January. I was wondering if there are

any others that have been suffering with angioedema with asthma and have

taken Xolair. Does the Xolair help decrease the Angioedema symptoms as well

as the Asthma symptoms? How many treatments of Xolair are needed to see

improvem ent with the symptoms?? Any information would be greatful! I would

like to see my son back in school with friends!!

> > Thank you!

> >

>

[Guest guest]

OOOH I call head cheerleader! :-)

On Tue, Feb 8, 2011 at 3:47 PM, <carrie72583@...> wrote:

>

>

> Go team xolair!! Keep us posted!

> C

>

> ________________________________

> From: " sheilabiss@... " <sheilabiss@...>

>

>

> Sent: Tue, February 8, 2011 3:00:24 PM

>

> Subject: Re: [ ] Re: Angioedema, Urticaria, Delayed Pressure

> Angioedema/Xolair

>

>

> All the best. I am very excited for you.

> Sent from my BlackBerry® smartphone

>

> -----Original Message-----

> From: heartabrasions@...

> Sender:

> Date: Tue, 8 Feb 2011 12:18:01

> < >

> Reply-

> Subject: Re: [ ] Re: Angioedema, Urticaria, Delayed Pressure

> Angioedema/Xolair

>

> Hi Diane and Addy,

>

> I have Urticaria, Angioedema, Delayed Pressure Angioedema and mild Asthma.

> My IgE levels are through the roof but I don't have severe asthma. I was

> approved for Xolair and I start my injections on friday.

>

> If it weren't for this group, I would have spent many nights alone fighting

>

> this disease. I also would not have found out about Xolair had it not

> been for you guys! I'm praying it works for me because so many of you have

> had good results.

>

> My promise to you all is this: I will keep you informed weekly on my

> progress, what medications I'm taking, what I will be able to wean off of

> and

> any side effects that may occur.

>

> I hope that my experience will prove to help anyone out there suffering

> from this disease. Many times we all have felt alone in this disease....

> there isn't much help out there and family and friends sometimes (although

> they

> probably won't tell us) get discouraged and disheartened by our diseases.

> I always feel guilty for even complaining anymore. You have all been my

> rock. I hope that I can return some of the help you have all given to me.

>

> Thanks to Doug, Addy, Jeanne and to all the others out there who

> continually send good thoughts, send us links, fill us with knowledge and

> for

> creating this group. Finally, I'm not alone anymore

>

> For Diane.... My angioedema lasts quite significantly longer than 45

> minutes. Usually 24 hours. It's quite scary when it's in my mouth or

> throat.

> The ONLY thing to help me at that point is high IV doses of steroids and/or

>

> an EPI pen. Your son has an EPI pen, doesn't he? I'm praying the Xolair

> takes away the Urticaria AND the angioedema as well for me. Both are very

> debilitating. He is not alone in his suffering! I hope that the Xolair

> soon kicks in and gives him the cure he needs! Some people have gotten

> results immediately and some have seen remission results after 3 or 4

> months of

> injections. I'm guessing each of us are so different, the results have to

> be different as well. Think positive thoughts... and never, ever give up!

>

>

> My best to each of you!!

>

>

>

> In a message dated 2/8/2011 10:37:07 A.M. Eastern Standard Time,

> anagnos19@... writes:

>

> Thank you. Please keep me informed if you hear of anyone having Angioedema

> and asthma and their results while taking the Xolair.Much appreciated!

> Diane

>

> --- In_ _ (mailto: )

>

> , " pyle456 " <jamcculloch2@...> wrote:

> >

> > We've had some group members with allergic skin conditions report

> substantial improvement in those symptoms with Xolair, but I don't know if

> any

> of

>

> them have angioedema specifically. I hope that Xolair will help your son!

> >

> > Addy

> > Group Co-owner

> >

> > --- In_ _

> (mailto: ) , " anagnos19 " <anagnos19@> wrote:

> > >

> > > My son is 16 years old , has allergic asthma, multiple food,and

> environmental allergies and suffers from Ideopathic facial angioedema(lips

> and

> mouth). He has been suffering with these symptoms for the past3 to 4

> years.He

> has 2-3 episodes of the angioedema a day along with asthma symptoms daily.

> He has been on multiple antihistamines and inhalers without relief. When

> an Angioedema episode happens he must take 25- 50mg of benedryland apply

> ice

> to his lips. Each episode lasts 45 minutes to an hour.Sometimes the

> swelling goes into his airway and he then has asthma symptoms. He has been

> unable

>

> to attend school due to the frequecncy of his symptoms. He has received

> his first injection of Xolair this past January. I was wondering if there

> are

> any others that have been suffering with angioedema with asthma and have

> taken Xolair. Does the Xolair help decrease the Angioedema symptoms as well

>

> as the Asthma symptoms? How many treatments of Xolair are needed to see

> improvem ent with the symptoms?? Any information would be greatful! I would

>

> like to see my son back in school with friends!!

> > > Thank you!

> > >

> >

>

>