Guest guest Posted February 6, 2011 Report Share Posted February 6, 2011 I had a lot of pain in my upper to mid-back when I first started Xolair. The nurse gave me the injections in my arms. I switched to having them in my stomach - no more pain! suzanne In a message dated 2/6/2011 7:04:11 P.M. Central Standard Time, parkg86@... writes: Just had my 2nd treatment of Xolair. Despite the painful injections, the only side effects I'm having is severe neck/upper back pain for 2-3 days after the injections. Also some lung pain and headaches. The stiff neck pain is the worst so far. Anyone else with similar side effects? I'm guessing this is the 'joint pain' they list in their side effects, but I don't have pain anywhere else. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2011 Report Share Posted February 7, 2011 Just had my 2nd treatment of Xolair. Despite the painful injections, the only side effects I'm having is severe neck/upper back pain for 2-3 days after the injections. Also some lung pain and headaches. The stiff neck pain is the worst so far. Anyone else with similar side effects? I'm guessing this is the 'joint pain' they list in their side effects, but I don't have pain anywhere else. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2011 Report Share Posted February 7, 2011 > > Just had my 2nd treatment of Xolair. Despite the painful injections, the only side effects I'm having is severe neck/upper back pain for 2-3 days after the injections. Also some lung pain and headaches. The stiff neck pain is the worst so far. Anyone else with similar side effects? I'm guessing this is the 'joint pain' they list in their side effects, but I don't have pain anywhere else. > Xolair shots have never been painful for me but REGULAR sllergy shots burn like fire. Xolair injections are given slowly because the medicine is so think. Hopefully, the person who gave you your shots had training in how to give them. As for side effects.... I have never had any at all and I have been on xolair since Septmber 2003. Ask your doctor why you are having these kinds of problems and let us know what you find out. Thanks for posting Doug Group founder Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2011 Report Share Posted February 7, 2011 H Parkg86!!!! I'm getting ready to have my first shots... so your post has me a little scared! Are you on any other medications? You could be reacting to a combination of different meds? I'm on a ton of different meds and adding Xolair is scaring me.. but I'm SO ready to be healthy again... Have you told your Doctor about your side effects? Have they checked you for a Pulmonary Embolism or any heart problems? Please keep us informed. I plan to write the group on a daily basis as well as keep a personal log of how things are working for me. I've been a big advocate in my own health for 2 years by keeping daily logs of medications, the scale of the hives/angioedema on a daily basis along with any other symptoms. I will keep everyone informed on my progress so they will know how Xolair is working for me.... hopefully what I'm going through will help another person out there one day and knowledge is power over our disease. Please keep us updated. I wish you the very best of luck!!! Best Wishes, In a message dated 2/7/2011 8:04:55 A.M. Eastern Standard Time, uca79iii@... writes: > > Just had my 2nd treatment of Xolair. Despite the painful injections, the only side effects I'm having is severe neck/upper back pain for 2-3 days after the injections. Also some lung pain and headaches. The stiff neck pain is the worst so far. Anyone else with similar side effects? I'm guessing this is the 'joint pain' they list in their side effects, but I don't have pain anywhere else. > Xolair shots have never been painful for me but REGULAR sllergy shots burn like fire. Xolair injections are given slowly because the medicine is so think. Hopefully, the person who gave you your shots had training in how to give them. As for side effects.... I have never had any at all and I have been on xolair since Septmber 2003. Ask your doctor why you are having these kinds of problems and let us know what you find out. Thanks for posting Doug Group founder Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2011 Report Share Posted February 7, 2011 Thanks so VERY much, Doug! I know the side effects are a rarity. However, it seems if it's out there, I'll get it. Well, that's the way my life has been! What has me most worried is the FDA investigation/study going on that will end in 2012 in regards to the Cardiovascular and Pulmonary Embolism factors. I already had the PE's in September so I'm very high risk for those as well. Any kind of chest/lung pain sends me straight to the ER for fear that I've developed another one even though I'm on Coumadin. The scariness of it all makes me very anxious. You're a blessing... and thank you for always keeping me informed and in good spirits. Come Friday I hope to be hive free!!!! The last 2 weeks have been pure hell trying to keep the hives/swellings at bay! Thanks again xo, In a message dated 2/7/2011 1:39:33 P.M. Eastern Standard Time, uca79iii@... writes: , There is no reason to be scared. After 7.5 years, xolair is just a regular part of my life every other Friday. No big deal at all. Not many people have side effects. Just look at all the positive responses in this group. There are very few negative ones. It's gonna be ok. Really! Come on folks, let's let know it's gonna be ok Doug Group founder Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2011 Report Share Posted February 7, 2011 No side effects, Sheila? Are you on any other medications? I'm afraid the others I'm on might react with Xolair. I'm just trying to be informed as much as I can before friday. Thanks so very much for your help!!! In a message dated 2/7/2011 1:59:00 P.M. Eastern Standard Time, sheilabiss@... writes: Its gonna be ok. I am in love with Xolair because it has changed me life. Sent from my BlackBerry® smartphone -----Original Message----- From: " Db " <uca79iii@...> Sender: Date: Mon, 07 Feb 2011 18:49:06 < > Reply- Subject: [ ] Re: New Xolair Patient > > Thanks so VERY much, Doug! > > I know the side effects are a rarity. However, it seems if it's out > there, I'll get it. Well, that's the way my life has been! What has me most > worried is the FDA investigation/study going on that will end in 2012 in > regards to the Cardiovascular and Pulmonary Embolism factors. I already had > the PE's in September so I'm very high risk for those as well. Any kind of > chest/lung pain sends me straight to the ER for fear that I've developed > another one even though I'm on Coumadin. The scariness of it all makes me > very anxious. > > You're a blessing... and thank you for always keeping me informed and in > good spirits. Come Friday I hope to be hive free!!!! The last 2 weeks have > been pure hell trying to keep the hives/swellings at bay! > > Thanks again > > xo, > > > > > In a message dated 2/7/2011 1:39:33 P.M. Eastern Standard Time, > uca79iii@... writes: > > , > > There is no reason to be scared. After 7.5 years, xolair is just a regular > part of my life every other Friday. No big deal at all. Not many people > have side effects. > > Just look at all the positive responses in this group. There are very few > negative ones. > > It's gonna be ok. Really! > > Come on folks, let's let know it's gonna be ok > > Doug > Group founder > > > > [Non-text portions of this message have been removed] > You are most welcome When I got my first shots in September of 2003 there was NO place on the internet to turn to get advice so I created this group. I was the first patient in my state to get xolair and yes, I was a little apprehensive but I knew I had no other choice. 40 mg a day of prednisone for years had wrecked my body and I needed to get off of it badly. Xolair was finally my chance. Now, 7.5 years later I am no longer on any steroids and use a rescue inhaler once or twice a day. Xolair has been a miracle drug for me and many in this group. Keep us informed Doug [Non-text portions of this message have been removed] ------------------------------------ Groups Links Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2011 Report Share Posted February 7, 2011 thanks so very much, Sheila!!! I'm beyond the point of NOT trying xolair out of fear. Almost 3 years of steroids, multiple antihistamines and still hives and angioedema 24/7 of each day, I'm more than ready than something to stop all of this. The steroids have caused so much damage and even it isn't keep the hives/swellings away anymore. I'm just scared....scared to try anything new and scared to go on like I am. Thank you for everything... and thank you for the prayers. I always need them! xo, In a message dated 2/7/2011 2:11:13 P.M. Eastern Standard Time, sheilabiss@... writes: Advair. Ventolin. Singular. Reactine. But much less of all that now. Trust your instincts. It was right for me. I will send you a prayer for peace with your decision. You can always wait on Xolair till you are sure. When I started I was scared as well, but I couldn't carry on how I was. Best. Sheila Sent from my BlackBerry® smartphone -----Original Message----- From: heartabrasions@... Sender: Date: Mon, 7 Feb 2011 14:00:07 < > Reply- Subject: Re: [ ] Re: New Xolair Patient No side effects, Sheila? Are you on any other medications? I'm afraid the others I'm on might react with Xolair. I'm just trying to be informed as much as I can before friday. Thanks so very much for your help!!! In a message dated 2/7/2011 1:59:00 P.M. Eastern Standard Time, sheilabiss@... writes: Its gonna be ok. I am in love with Xolair because it has changed me life. Sent from my BlackBerry® smartphone -----Original Message----- From: " Db " <uca79iii@...> Sender: Date: Mon, 07 Feb 2011 18:49:06 < > Reply- Subject: [ ] Re: New Xolair Patient > > Thanks so VERY much, Doug! > > I know the side effects are a rarity. However, it seems if it's out > there, I'll get it. Well, that's the way my life has been! What has me most > worried is the FDA investigation/study going on that will end in 2012 in > regards to the Cardiovascular and Pulmonary Embolism factors. I already had > the PE's in September so I'm very high risk for those as well. Any kind of > chest/lung pain sends me straight to the ER for fear that I've developed > another one even though I'm on Coumadin. The scariness of it all makes me > very anxious. > > You're a blessing... and thank you for always keeping me informed and in > good spirits. Come Friday I hope to be hive free!!!! The last 2 weeks have > been pure hell trying to keep the hives/swellings at bay! > > Thanks again > > xo, > > > > > In a message dated 2/7/2011 1:39:33 P.M. Eastern Standard Time, > uca79iii@... writes: > > , > > There is no reason to be scared. After 7.5 years, xolair is just a regular > part of my life every other Friday. No big deal at all. Not many people > have side effects. > > Just look at all the positive responses in this group. There are very few > negative ones. > > It's gonna be ok. Really! > > Come on folks, let's let know it's gonna be ok > > Doug > Group founder > > > > [Non-text portions of this message have been removed] > You are most welcome When I got my first shots in September of 2003 there was NO place on the internet to turn to get advice so I created this group. I was the first patient in my state to get xolair and yes, I was a little apprehensive but I knew I had no other choice. 40 mg a day of prednisone for years had wrecked my body and I needed to get off of it badly. Xolair was finally my chance. Now, 7.5 years later I am no longer on any steroids and use a rescue inhaler once or twice a day. Xolair has been a miracle drug for me and many in this group. Keep us informed Doug [Non-text portions of this message have been removed] ------------------------------------ Groups Links [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] ------------------------------------ Groups Links Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2011 Report Share Posted February 7, 2011 > > H Parkg86!!!! > > I'm getting ready to have my first shots... so your post has me a little > scared! Are you on any other medications? You could be reacting to a > combination of different meds? I'm on a ton of different meds and adding Xolair > is scaring me.. but I'm SO ready to be healthy again... > > Have you told your Doctor about your side effects? Have they checked you > for a Pulmonary Embolism or any heart problems? > > Please keep us informed. I plan to write the group on a daily basis as > well as keep a personal log of how things are working for me. I've been a > big advocate in my own health for 2 years by keeping daily logs of > medications, the scale of the hives/angioedema on a daily basis along with any other > symptoms. I will keep everyone informed on my progress so they will know > how Xolair is working for me.... hopefully what I'm going through will help > another person out there one day and knowledge is power over our disease. > > Please keep us updated. I wish you the very best of luck!!! > > Best Wishes, > > > > , There is no reason to be scared. After 7.5 years, xolair is just a regular part of my life every other Friday. No big deal at all. Not many people have side effects. Just look at all the positive responses in this group. There are very few negative ones. It's gonna be ok. Really! Come on folks, let's let know it's gonna be ok Doug Group founder Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2011 Report Share Posted February 7, 2011 > > Thanks so VERY much, Doug! > > I know the side effects are a rarity. However, it seems if it's out > there, I'll get it. Well, that's the way my life has been! What has me most > worried is the FDA investigation/study going on that will end in 2012 in > regards to the Cardiovascular and Pulmonary Embolism factors. I already had > the PE's in September so I'm very high risk for those as well. Any kind of > chest/lung pain sends me straight to the ER for fear that I've developed > another one even though I'm on Coumadin. The scariness of it all makes me > very anxious. > > You're a blessing... and thank you for always keeping me informed and in > good spirits. Come Friday I hope to be hive free!!!! The last 2 weeks have > been pure hell trying to keep the hives/swellings at bay! > > Thanks again > > xo, > > > > > In a message dated 2/7/2011 1:39:33 P.M. Eastern Standard Time, > uca79iii@... writes: > > , > > There is no reason to be scared. After 7.5 years, xolair is just a regular > part of my life every other Friday. No big deal at all. Not many people > have side effects. > > Just look at all the positive responses in this group. There are very few > negative ones. > > It's gonna be ok. Really! > > Come on folks, let's let know it's gonna be ok > > Doug > Group founder > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2011 Report Share Posted February 7, 2011 Its gonna be ok. I am in love with Xolair because it has changed me life. Sent from my BlackBerry® smartphone -----Original Message----- From: " Db " <uca79iii@...> Sender: Date: Mon, 07 Feb 2011 18:49:06 < > Reply- Subject: [ ] Re: New Xolair Patient > > Thanks so VERY much, Doug! > > I know the side effects are a rarity. However, it seems if it's out > there, I'll get it. Well, that's the way my life has been! What has me most > worried is the FDA investigation/study going on that will end in 2012 in > regards to the Cardiovascular and Pulmonary Embolism factors. I already had > the PE's in September so I'm very high risk for those as well. Any kind of > chest/lung pain sends me straight to the ER for fear that I've developed > another one even though I'm on Coumadin. The scariness of it all makes me > very anxious. > > You're a blessing... and thank you for always keeping me informed and in > good spirits. Come Friday I hope to be hive free!!!! The last 2 weeks have > been pure hell trying to keep the hives/swellings at bay! > > Thanks again > > xo, > > > > > In a message dated 2/7/2011 1:39:33 P.M. Eastern Standard Time, > uca79iii@... writes: > > , > > There is no reason to be scared. After 7.5 years, xolair is just a regular > part of my life every other Friday. No big deal at all. Not many people > have side effects. > > Just look at all the positive responses in this group. There are very few > negative ones. > > It's gonna be ok. Really! > > Come on folks, let's let know it's gonna be ok > > Doug > Group founder > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2011 Report Share Posted February 7, 2011 > > No side effects, Sheila? Are you on any other medications? I'm afraid > the others I'm on might react with Xolair. I'm just trying to be informed as > much as I can before friday. > > Thanks so very much for your help!!! > > > > I am on a whole " pharmacy " of medications for other chronic illnesses besides asthma and every doctor who prescribes for me says that NOTHING I am taking will cause any interactions with xolair. Praise GOD! Steroids are no longer on my long list of meds thanks to xolair Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2011 Report Share Posted February 7, 2011 Advair. Ventolin. Singular. Reactine. But much less of all that now. Trust your instincts. It was right for me. I will send you a prayer for peace with your decision. You can always wait on Xolair till you are sure. When I started I was scared as well, but I couldn't carry on how I was. Best. Sheila Sent from my BlackBerry® smartphone -----Original Message----- From: heartabrasions@... Sender: Date: Mon, 7 Feb 2011 14:00:07 < > Reply- Subject: Re: [ ] Re: New Xolair Patient No side effects, Sheila? Are you on any other medications? I'm afraid the others I'm on might react with Xolair. I'm just trying to be informed as much as I can before friday. Thanks so very much for your help!!! In a message dated 2/7/2011 1:59:00 P.M. Eastern Standard Time, sheilabiss@... writes: Its gonna be ok. I am in love with Xolair because it has changed me life. Sent from my BlackBerry® smartphone -----Original Message----- From: " Db " <uca79iii@...> Sender: Date: Mon, 07 Feb 2011 18:49:06 < > Reply- Subject: [ ] Re: New Xolair Patient > > Thanks so VERY much, Doug! > > I know the side effects are a rarity. However, it seems if it's out > there, I'll get it. Well, that's the way my life has been! What has me most > worried is the FDA investigation/study going on that will end in 2012 in > regards to the Cardiovascular and Pulmonary Embolism factors. I already had > the PE's in September so I'm very high risk for those as well. Any kind of > chest/lung pain sends me straight to the ER for fear that I've developed > another one even though I'm on Coumadin. The scariness of it all makes me > very anxious. > > You're a blessing... and thank you for always keeping me informed and in > good spirits. Come Friday I hope to be hive free!!!! The last 2 weeks have > been pure hell trying to keep the hives/swellings at bay! > > Thanks again > > xo, > > > > > In a message dated 2/7/2011 1:39:33 P.M. Eastern Standard Time, > uca79iii@... writes: > > , > > There is no reason to be scared. After 7.5 years, xolair is just a regular > part of my life every other Friday. No big deal at all. Not many people > have side effects. > > Just look at all the positive responses in this group. There are very few > negative ones. > > It's gonna be ok. Really! > > Come on folks, let's let know it's gonna be ok > > Doug > Group founder > > > > [Non-text portions of this message have been removed] > You are most welcome When I got my first shots in September of 2003 there was NO place on the internet to turn to get advice so I created this group. I was the first patient in my state to get xolair and yes, I was a little apprehensive but I knew I had no other choice. 40 mg a day of prednisone for years had wrecked my body and I needed to get off of it badly. Xolair was finally my chance. Now, 7.5 years later I am no longer on any steroids and use a rescue inhaler once or twice a day. Xolair has been a miracle drug for me and many in this group. Keep us informed Doug [Non-text portions of this message have been removed] ------------------------------------ Groups Links Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2011 Report Share Posted February 7, 2011 There's probably not a drug out there that hasn't been used by at least one member of this group. Those for asthma and any other condition, including cardiac drugs. If you read through some old posts, you'll see that. You'll also see that no one has reported any bad side effects (that I recall) and that the most common side effect mentioned, was feeling tired after the shots, the first few times. I had that one and, frankly, it was probably due more to excitement than the shot. One thing you need to realize, is that with new drugs they have to report everything that happens during the trials. If one of the test subjects falls out of a tree and breaks their leg, broken bones will be listed as a possible side effect until they do more tests to rule it out. Silly, I know, but that's how it is. Struggling to breathe is incredibly hard on your heart. Something that makes it easier to breathe should help your heart as well. > > > > > > Thanks so VERY much, Doug! > > > > > > I know the side effects are a rarity. However, it seems if it's out > > > there, I'll get it. Well, that's the way my life has been! What has > me most > > > worried is the FDA investigation/study going on that will end in 2012 in > > > > regards to the Cardiovascular and Pulmonary Embolism factors. I already > had > > > the PE's in September so I'm very high risk for those as well. Any > kind of > > > chest/lung pain sends me straight to the ER for fear that I've developed > > > > another one even though I'm on Coumadin. The scariness of it all makes > me > > > very anxious. > > > > > > You're a blessing... and thank you for always keeping me informed and in > > > > good spirits. Come Friday I hope to be hive free!!!! The last 2 weeks > have > > > been pure hell trying to keep the hives/swellings at bay! > > > > > > Thanks again > > > > > > xo, > > > > > > > > > > > > > > > In a message dated 2/7/2011 1:39:33 P.M. Eastern Standard Time, > > > uca79iii@ writes: > > > > > > , > > > > > > There is no reason to be scared. After 7.5 years, xolair is just a > regular > > > part of my life every other Friday. No big deal at all. Not many people > > > have side effects. > > > > > > Just look at all the positive responses in this group. There are very > few > > > negative ones. > > > > > > It's gonna be ok. Really! > > > > > > Come on folks, let's let know it's gonna be ok > > > > > > Doug > > > Group founder > > > > > > > > > > > > [Non-text portions of this message have been removed] > > > > > > > > > > > You are most welcome When I got my first shots in September of 2003 > there was NO place on the internet to turn to get advice so I created this > group. > > > > I was the first patient in my state to get xolair and yes, I was a little > apprehensive but I knew I had no other choice. > > > > 40 mg a day of prednisone for years had wrecked my body and I needed to > get off of it badly. Xolair was finally my chance. > > > > Now, 7.5 years later I am no longer on any steroids and use a rescue > inhaler once or twice a day. > > > > Xolair has been a miracle drug for me and many in this group. > > > > Keep us informed > > > > Doug > > > > > > > > > > [Non-text portions of this message have been removed] > > > > ------------------------------------ > > Groups Links > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2011 Report Share Posted February 7, 2011 You will be alright. I just know it. Sent from my BlackBerry® smartphone -----Original Message----- From: heartabrasions@... Sender: Date: Mon, 7 Feb 2011 14:17:02 < > Reply- Subject: Re: [ ] Re: New Xolair Patient thanks so very much, Sheila!!! I'm beyond the point of NOT trying xolair out of fear. Almost 3 years of steroids, multiple antihistamines and still hives and angioedema 24/7 of each day, I'm more than ready than something to stop all of this. The steroids have caused so much damage and even it isn't keep the hives/swellings away anymore. I'm just scared....scared to try anything new and scared to go on like I am. Thank you for everything... and thank you for the prayers. I always need them! xo, In a message dated 2/7/2011 2:11:13 P.M. Eastern Standard Time, sheilabiss@... writes: Advair. Ventolin. Singular. Reactine. But much less of all that now. Trust your instincts. It was right for me. I will send you a prayer for peace with your decision. You can always wait on Xolair till you are sure. When I started I was scared as well, but I couldn't carry on how I was. Best. Sheila Sent from my BlackBerry® smartphone -----Original Message----- From: heartabrasions@... Sender: Date: Mon, 7 Feb 2011 14:00:07 < > Reply- Subject: Re: [ ] Re: New Xolair Patient No side effects, Sheila? Are you on any other medications? I'm afraid the others I'm on might react with Xolair. I'm just trying to be informed as much as I can before friday. Thanks so very much for your help!!! In a message dated 2/7/2011 1:59:00 P.M. Eastern Standard Time, sheilabiss@... writes: Its gonna be ok. I am in love with Xolair because it has changed me life. Sent from my BlackBerry® smartphone -----Original Message----- From: " Db " <uca79iii@...> Sender: Date: Mon, 07 Feb 2011 18:49:06 < > Reply- Subject: [ ] Re: New Xolair Patient > > Thanks so VERY much, Doug! > > I know the side effects are a rarity. However, it seems if it's out > there, I'll get it. Well, that's the way my life has been! What has me most > worried is the FDA investigation/study going on that will end in 2012 in > regards to the Cardiovascular and Pulmonary Embolism factors. I already had > the PE's in September so I'm very high risk for those as well. Any kind of > chest/lung pain sends me straight to the ER for fear that I've developed > another one even though I'm on Coumadin. The scariness of it all makes me > very anxious. > > You're a blessing... and thank you for always keeping me informed and in > good spirits. Come Friday I hope to be hive free!!!! The last 2 weeks have > been pure hell trying to keep the hives/swellings at bay! > > Thanks again > > xo, > > > > > In a message dated 2/7/2011 1:39:33 P.M. Eastern Standard Time, > uca79iii@... writes: > > , > > There is no reason to be scared. After 7.5 years, xolair is just a regular > part of my life every other Friday. No big deal at all. Not many people > have side effects. > > Just look at all the positive responses in this group. There are very few > negative ones. > > It's gonna be ok. Really! > > Come on folks, let's let know it's gonna be ok > > Doug > Group founder > > > > [Non-text portions of this message have been removed] > You are most welcome When I got my first shots in September of 2003 there was NO place on the internet to turn to get advice so I created this group. I was the first patient in my state to get xolair and yes, I was a little apprehensive but I knew I had no other choice. 40 mg a day of prednisone for years had wrecked my body and I needed to get off of it badly. Xolair was finally my chance. Now, 7.5 years later I am no longer on any steroids and use a rescue inhaler once or twice a day. Xolair has been a miracle drug for me and many in this group. Keep us informed Doug [Non-text portions of this message have been removed] ------------------------------------ Groups Links [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] ------------------------------------ Groups Links Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2011 Report Share Posted February 7, 2011 Ha ha. I agree with the tree thing. Someone reported alopecia as a side effect. Funny. Sent from my BlackBerry® smartphone -----Original Message----- From: " Cleptisvirgo " <cleptisvirgo@...> Sender: Date: Mon, 07 Feb 2011 19:34:52 < > Reply- Subject: [ ] Re: New Xolair Patient There's probably not a drug out there that hasn't been used by at least one member of this group. Those for asthma and any other condition, including cardiac drugs. If you read through some old posts, you'll see that. You'll also see that no one has reported any bad side effects (that I recall) and that the most common side effect mentioned, was feeling tired after the shots, the first few times. I had that one and, frankly, it was probably due more to excitement than the shot. One thing you need to realize, is that with new drugs they have to report everything that happens during the trials. If one of the test subjects falls out of a tree and breaks their leg, broken bones will be listed as a possible side effect until they do more tests to rule it out. Silly, I know, but that's how it is. Struggling to breathe is incredibly hard on your heart. Something that makes it easier to breathe should help your heart as well. > > > > > > Thanks so VERY much, Doug! > > > > > > I know the side effects are a rarity. However, it seems if it's out > > > there, I'll get it. Well, that's the way my life has been! What has > me most > > > worried is the FDA investigation/study going on that will end in 2012 in > > > > regards to the Cardiovascular and Pulmonary Embolism factors. I already > had > > > the PE's in September so I'm very high risk for those as well. Any > kind of > > > chest/lung pain sends me straight to the ER for fear that I've developed > > > > another one even though I'm on Coumadin. The scariness of it all makes > me > > > very anxious. > > > > > > You're a blessing... and thank you for always keeping me informed and in > > > > good spirits. Come Friday I hope to be hive free!!!! The last 2 weeks > have > > > been pure hell trying to keep the hives/swellings at bay! > > > > > > Thanks again > > > > > > xo, > > > > > > > > > > > > > > > In a message dated 2/7/2011 1:39:33 P.M. Eastern Standard Time, > > > uca79iii@ writes: > > > > > > , > > > > > > There is no reason to be scared. After 7.5 years, xolair is just a > regular > > > part of my life every other Friday. No big deal at all. Not many people > > > have side effects. > > > > > > Just look at all the positive responses in this group. There are very > few > > > negative ones. > > > > > > It's gonna be ok. Really! > > > > > > Come on folks, let's let know it's gonna be ok > > > > > > Doug > > > Group founder > > > > > > > > > > > > [Non-text portions of this message have been removed] > > > > > > > > > > > You are most welcome When I got my first shots in September of 2003 > there was NO place on the internet to turn to get advice so I created this > group. > > > > I was the first patient in my state to get xolair and yes, I was a little > apprehensive but I knew I had no other choice. > > > > 40 mg a day of prednisone for years had wrecked my body and I needed to > get off of it badly. Xolair was finally my chance. > > > > Now, 7.5 years later I am no longer on any steroids and use a rescue > inhaler once or twice a day. > > > > Xolair has been a miracle drug for me and many in this group. > > > > Keep us informed > > > > Doug > > > > > > > > > > [Non-text portions of this message have been removed] > > > > ------------------------------------ > > Groups Links > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2011 Report Share Posted February 8, 2011 Please report these to your doctor to help you determine if they are related to Xolair. The injections shouldn't be painful. Occasionally I experience a prick, but normally there's no pain, so it's strange to me that you're reporting the injections are painful.... Addy Group Co-owner > > Just had my 2nd treatment of Xolair. Despite the painful injections, the only side effects I'm having is severe neck/upper back pain for 2-3 days after the injections. Also some lung pain and headaches. The stiff neck pain is the worst so far. Anyone else with similar side effects? I'm guessing this is the 'joint pain' they list in their side effects, but I don't have pain anywhere else. > Quote Link to comment Share on other sites More sharing options...
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