Guest guest Posted July 11, 2010 Report Share Posted July 11, 2010 > > Do you have any reports of asthma patients having itch inside the upper > chest that persists for months and cannot be cured by predisone (40 mg > for 2 days, 30 for 2 days, 20 for 2 days and 10 for 2 days)? I have > been having this itch since March of 10 and still having the same > problem. Some days is worse than others. When it is really bad it is > unbearable. In 2008, I had the same problem and I reported that to the > Xolair user group in 2008 but do not recall if there were any feedbacks. > In 2008 it lasted from July of 08 until Jan. of 09 then it just > gradually disappeared. This time it came back with a fury and it is > still there. I am sure it is due to allergy but none of the > antihistamines worked. I had a broncoscopy in 2008 and it showed > inflammation (redness of the lungs) but nothing else. I have been on > Xolair 75 mg every 4 weeks for the past 4 years. > -- > > sundevil1234@... > > -- > http://www.fastmail.fm - Accessible with your email software > or over the web > Thanks for posting What does your doctor say about it? Doug Group founder Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2010 Report Share Posted July 11, 2010 > > Correction: 150 mg Xolair every 4 weeks. My pulmo and allergist do not > know and I consulted many doctors and they are all mystified. > This group is just about 7 years old now and we have never had a post with this problem. If your doctors are mystified then our members probably are too. Sorry, we couldn't be much help. Hope you find it somewhere. Doug Group founder Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2010 Report Share Posted July 11, 2010 Hi, This is probably an idea you're well past, but just in case no one has mentioned it, here goes; try Zantac. The body makes multiple kinds of histamine in response to an allergen and regular antihistamines only cover histamine 1. My pulmo/allergist has me take zantac (150mg/dose) every 4 hours when I start having an allergic reaction and need hydroxyzine too. Just an idea, I hope it helps! Meagan > > > > Correction: 150 mg Xolair every 4 weeks. My pulmo and allergist do not > > know and I consulted many doctors and they are all mystified. > > > > > > This group is just about 7 years old now and we have never had a post with this problem. If your doctors are mystified then our members probably are too. > > Sorry, we couldn't be much help. Hope you find it somewhere. > > > Doug > Group founder > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2010 Report Share Posted July 11, 2010 Have you considered that it might not be a lung issue, but rather an issue that's manifesting in your lungs, if you get my meaning. I have bad chest pain sometimes that make it very hard to breathe and feels for all the world like my lungs aren't working at all - Turns out it's a different health condition affecting the muscles in my chest and has nothing to do with my lungs. I've also experienced itchy lungs, but not to the degree you mention. My body over-reacts to random stimuli and makes parts of me itch, ache, burn, feel like I'm being bitten or zapped, or any combination of the above. All thanks to fibromyalgia. (I hope you don't have that.) I would recommend three things; 1. Discuss alternate causes with a doctor who doesn't specialize in lungs. 2. Look into to supplements that calm the system. and 3. Consider increasing your Xolair. Which is, of course, something else to discuss with your doctor. Good luck and let us know if you find out anything. > > Do you have any reports of asthma patients having itch inside the upper > chest that persists for months and cannot be cured by predisone (40 mg > for 2 days, 30 for 2 days, 20 for 2 days and 10 for 2 days)? I have > been having this itch since March of 10 and still having the same > problem. Some days is worse than others. When it is really bad it is > unbearable. In 2008, I had the same problem and I reported that to the > Xolair user group in 2008 but do not recall if there were any feedbacks. > In 2008 it lasted from July of 08 until Jan. of 09 then it just > gradually disappeared. This time it came back with a fury and it is > still there. I am sure it is due to allergy but none of the > antihistamines worked. I had a broncoscopy in 2008 and it showed > inflammation (redness of the lungs) but nothing else. I have been on > Xolair 75 mg every 4 weeks for the past 4 years. > -- > > sundevil1234@... > > -- > http://www.fastmail.fm - Accessible with your email software > or over the web > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2010 Report Share Posted July 12, 2010 I have an deep tissue itch in my upper back such as you describe, this started years ago and once it starts itching I have to find a wall or corner to scratch, like an old bear ha!, it is an annoying itch and there is no outward signs of rash or lesions. Once the itch starts then almost immmediately my asthma and allergy symptoms start, therefore I have just attributed it to my allergies. I have not found anything to relieve it. I have found throughout the years that allergy symptoms can manifest themselves in many ways. I do not believe there is any superficial cream which will help only antihistamines, one suggestion as mentioned earlier by adding and H2 blocker such as Zantac may help, also you may consider a leukotriene inhibitor such as Zyflow or singulair in addition to your other allergy meds. If you do find the answer let us know!Good luck > > Do you have any reports of asthma patients having itch inside the upper > chest that persists for months and cannot be cured by predisone (40 mg > for 2 days, 30 for 2 days, 20 for 2 days and 10 for 2 days)? I have > been having this itch since March of 10 and still having the same > problem. Some days is worse than others. When it is really bad it is > unbearable. In 2008, I had the same problem and I reported that to the > Xolair user group in 2008 but do not recall if there were any feedbacks. > In 2008 it lasted from July of 08 until Jan. of 09 then it just > gradually disappeared. This time it came back with a fury and it is > still there. I am sure it is due to allergy but none of the > antihistamines worked. I had a broncoscopy in 2008 and it showed > inflammation (redness of the lungs) but nothing else. I have been on > Xolair 75 mg every 4 weeks for the past 4 years. > -- > > sundevil1234@... > > -- > http://www.fastmail.fm - Accessible with your email software > or over the web > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2010 Report Share Posted July 15, 2010 As a matter of fact, I DO have something that sounds very much like this and have had it since childhood. Thankfully it usually only lasts for a matter of hours or can come and go over a period of days. It's the " itching on the inside " that brings me the weird looks from doctors and I haven't mentioned it for years. There's nothing at all that shows externally except for the scratch marks and bleeding from scratching myself. I also have had it on (in) my stomach although it feels like it's just under the skin. I too associate it with allergy although it's not from contact - it's presumably something I'm breathing or have somehow gotten inside my body. Doctors have been no help at all except to vaguely write it off as allergy or laugh or allude to the " crazy " diagnosis. (probably because they dont' know what they're doing.) As for treatment - probably it either went away by its self or from antihistamines or steroids. Showering helped some too although steamy showers can actually trigger asthma in me. In my opinion it's an acute form of allergy. It's been some time since I remember having it but it's very real in my experience. Something else I've had - sort've a variation on the theme - has been intense itching under the skin on my arm(s) - predominantely on the left. Again, it's been a few years since it was really bad. Your dose of Xolair seems rather low especially in view of all the misery you're experiencing. When I was on Xolair it was 375 mgs every 2 weeks. It did tame the skin allergy and sinus and asthma while I was on it. > > Do you have any reports of asthma patients having itch inside the upper > chest that persists for months and cannot be cured by predisone (40 mg > for 2 days, 30 for 2 days, 20 for 2 days and 10 for 2 days)? I have > been having this itch since March of 10 and still having the same > problem. Some days is worse than others. When it is really bad it is > unbearable. In 2008, I had the same problem and I reported that to the > Xolair user group in 2008 but do not recall if there were any feedbacks. > In 2008 it lasted from July of 08 until Jan. of 09 then it just > gradually disappeared. This time it came back with a fury and it is > still there. I am sure it is due to allergy but none of the > antihistamines worked. I had a broncoscopy in 2008 and it showed > inflammation (redness of the lungs) but nothing else. I have been on > Xolair 75 mg every 4 weeks for the past 4 years. > -- > > sundevil1234@... > > -- > http://www.fastmail.fm - Accessible with your email software > or over the web > Quote Link to comment Share on other sites More sharing options...
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