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Hi Peggy Sue, Yeah, dry eyes is one of the symptoms of this

autoimmune disease, AND a side effect of some of the meds we take. I

figure it's the least of our problems LOL. BUT, among us, no problem

is too small to mention, we is all we got and all we got is we!

(gentle) hugggggs

Alice in Alaska

http://maryals.blogspot.com/

On Jan 18, 2006, at 12:36 PM, peggy sue wrote:

> Hi to all,

> Just wanted to give a quick thanks shout to all of you who have

> listened. I am new to the group (Jan. 2006), and joined because I

> was in denial for so long. It was great to know that I was not

> alone in my feelings. I take 10mg of methotrexate a week, and

> Daypro (NSAIDS) for imflammation. The daypro has started really

> messing up my stomach. The last few times I have taken it, I spend

> the next day in the bathroom. I am trying different ways to take

> it. The dr suggested I take it with pepto or prilosec or something

> like that. It helps but still upsetting. A new side affect is my

> eyes. I can't seem to be able to wear my contacts any more. Anyone

> else have that problem? I have been wearing contacts for 30 years

> with no problems. Now it seeems like my eyes can't breathe with the

> contacts in. Guess I am stuck with glasses for now.

> Thanks again for being my support, I hope in the future I too can

> be some support.

> Peg

>

>

> ---------------------------------

> Photos

> Ring in the New Year with Photo Calendars. Add photos, events,

> holidays, whatever.

>

>

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Hi,

I don't think I've seen you post here before and I just wanted to say

welcome. This is a wonderful group with lots of support!!!

I hope you find what yous eek here. If you ever need to talk, feel free to

contact me.

Yanosz Descouedresz

Email:

yanosz@...

On :

yanoszd

The Road goes ever on and on

Down from the door where it began.

Now far ahead the Road has gone,

And I must follow, if I can,

Pursuing it with eager feet,

Until it joins some larger way

Where many paths and errands meet.

And whither then? I cannot say.

[ ] Thanks

> Hi to all,

> Just wanted to give a quick thanks shout to all of you who have

listened. I am new to the group (Jan. 2006), and joined because I was in

denial for so long. It was great to know that I was not alone in my

feelings. I take 10mg of methotrexate a week, and Daypro (NSAIDS) for

imflammation. The daypro has started really messing up my stomach. The last

few times I have taken it, I spend the next day in the bathroom. I am trying

different ways to take it. The dr suggested I take it with pepto or prilosec

or something like that. It helps but still upsetting. A new side affect is

my eyes. I can't seem to be able to wear my contacts any more. Anyone else

have that problem? I have been wearing contacts for 30 years with no

problems. Now it seeems like my eyes can't breathe with the contacts in.

Guess I am stuck with glasses for now.

> Thanks again for being my support, I hope in the future I too can be

some support.

> Peg

>

>

> ---------------------------------

> Photos

> Ring in the New Year with Photo Calendars. Add photos, events, holidays,

whatever.

>

>

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  • 1 month later...
Guest guest

Carolyn, I have been reading all of your posts and I only want to tell you that personally I think your PT needs to be more open minded. It is not HER child! And if, in your heart of hearts, you think banding is best then go for it. We are also at CT in Paramus. My husband and I were also turned off by our consult but decided to go with it. Our therapist there, , has been super wonderful. We graduate a week from tomorrow and I can say it is without one single regret! Good luck! Meagancarolyn fox <cdfox@...> wrote: I was skeptical when our PT showed me how to apply pressure on Malcolm’s skull with my fingertips. Ok, now I know that it’s not me. My husband and I had already agreed before we met Wanda at cranial technologies about getting the band for Malcolm. If cranial technologies thought a band was warranted, we agreed that we would proceed on getting him the band asap. We were impressed with the results other parents have had and didn’t think there was much of a choice in eventually getting our son a helmet. When I told our PT about seeing cranial technologies and getting a helmet, she was upset. She doesn’t believe in helmet therapy and thinks they’re only for severe cases. She

believes that Malcolm’s plagio and tort are correctable through PT. While I’m not a PT, it doesn’t make sense to me that you can correct plagio and tort solely through PT in Malcolm’s case, especially since he was breech and born with plagio and tort. Malcolm’s head was pressed against my right rib case almost throughout the pregnancy. He only occasionally veered left of my belly button before week 20. After week 20 of my pregnancy, I don’t recall him ever on the left side of my abdomen. I started to

self-doubt myself and get more frustrated and confused today when our PT implied that there was a choice in treating Malcolm’s plagio and tort. I really don’t see a choice. Either we band him asap and achieve some level of symmetry and roundness to his head or we don’t and pray that his head will improve in time, which it hasn’t done for 4 months despite aggressive repositioning and pt. Thanks for restoring my confidence and making me think I’m not nuts. I really wish we didn’t have to make these decisions and go through this ordeal. This is a nightmare to me. I know there are plenty of life-threatening circumstances for infants that are more

pressing and deserving of attention for doctors, but there must be easier ways dealing with this. Why do doctors, pts, insurance companies, etc. make it so difficult when it doesn’t have to be? They make you feel incompetent, a complete failure for not doing more and leading you to believe that you have the power to correct this when you may not. Thanks again Carolyn in NYC Mum to Malcolm – 4 months old – born breech with plagio and tort

Relax. virus scanning helps detect nasty viruses!

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Guest guest

Carolyn, I have been reading all of your posts and I only want to tell you that personally I think your PT needs to be more open minded. It is not HER child! And if, in your heart of hearts, you think banding is best then go for it. We are also at CT in Paramus. My husband and I were also turned off by our consult but decided to go with it. Our therapist there, , has been super wonderful. We graduate a week from tomorrow and I can say it is without one single regret! Good luck! Meagancarolyn fox <cdfox@...> wrote: I was skeptical when our PT showed me how to apply pressure on Malcolm’s skull with my fingertips. Ok, now I know that it’s not me. My husband and I had already agreed before we met Wanda at cranial technologies about getting the band for Malcolm. If cranial technologies thought a band was warranted, we agreed that we would proceed on getting him the band asap. We were impressed with the results other parents have had and didn’t think there was much of a choice in eventually getting our son a helmet. When I told our PT about seeing cranial technologies and getting a helmet, she was upset. She doesn’t believe in helmet therapy and thinks they’re only for severe cases. She

believes that Malcolm’s plagio and tort are correctable through PT. While I’m not a PT, it doesn’t make sense to me that you can correct plagio and tort solely through PT in Malcolm’s case, especially since he was breech and born with plagio and tort. Malcolm’s head was pressed against my right rib case almost throughout the pregnancy. He only occasionally veered left of my belly button before week 20. After week 20 of my pregnancy, I don’t recall him ever on the left side of my abdomen. I started to

self-doubt myself and get more frustrated and confused today when our PT implied that there was a choice in treating Malcolm’s plagio and tort. I really don’t see a choice. Either we band him asap and achieve some level of symmetry and roundness to his head or we don’t and pray that his head will improve in time, which it hasn’t done for 4 months despite aggressive repositioning and pt. Thanks for restoring my confidence and making me think I’m not nuts. I really wish we didn’t have to make these decisions and go through this ordeal. This is a nightmare to me. I know there are plenty of life-threatening circumstances for infants that are more

pressing and deserving of attention for doctors, but there must be easier ways dealing with this. Why do doctors, pts, insurance companies, etc. make it so difficult when it doesn’t have to be? They make you feel incompetent, a complete failure for not doing more and leading you to believe that you have the power to correct this when you may not. Thanks again Carolyn in NYC Mum to Malcolm – 4 months old – born breech with plagio and tort

Relax. virus scanning helps detect nasty viruses!

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Guest guest

Carolyn,

I have been really busy, but have been reading your posts. So my

question is........Are you getting a new PT?

CAROLG

>

> I was skeptical when our PT showed me how to apply pressure on

Malcolm's

> skull with my fingertips. Ok, now I know that it's not me.

>

>

>

> My husband and I had already agreed before we met Wanda at cranial

> technologies about getting the band for Malcolm. If cranial

technologies

> thought a band was warranted, we agreed that we would proceed on

getting him

> the band asap. We were impressed with the results other parents

have had

> and didn't think there was much of a choice in eventually getting

our son a

> helmet.

>

>

>

> When I told our PT about seeing cranial technologies and getting a

helmet,

> she was upset. She doesn't believe in helmet therapy and thinks

they're

> only for severe cases. She believes that Malcolm's plagio and tort

are

> correctable through PT.

>

>

> While I'm not a PT, it doesn't make sense to me that you can

correct plagio

> and tort solely through PT in Malcolm's case, especially since he

was breech

> and born with plagio and tort. Malcolm's head was pressed against

my right

> rib case almost throughout the pregnancy. He only occasionally

veered left

> of my belly button before week 20. After week 20 of my pregnancy,

I don't

> recall him ever on the left side of my abdomen.

>

>

>

> I started to self-doubt myself and get more frustrated and confused

today

> when our PT implied that there was a choice in treating Malcolm's

plagio and

> tort. I really don't see a choice. Either we band him asap and

achieve

> some level of symmetry and roundness to his head or we don't and

pray that

> his head will improve in time, which it hasn't done for 4 months

despite

> aggressive repositioning and pt.

>

>

>

> Thanks for restoring my confidence and making me think I'm not

nuts. I

> really wish we didn't have to make these decisions and go through

this

> ordeal. This is a nightmare to me. I know there are plenty of

> life-threatening circumstances for infants that are more pressing

and

> deserving of attention for doctors, but there must be easier ways

dealing

> with this. Why do doctors, pts, insurance companies, etc. make it

so

> difficult when it doesn't have to be? They make you feel

incompetent, a

> complete failure for not doing more and leading you to believe that

you have

> the power to correct this when you may not.

>

>

>

> Thanks again

>

>

>

> Carolyn in NYC

>

> Mum to Malcolm - 4 months old - born breech with plagio and tort

>

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Guest guest

Carolyn,

I have been really busy, but have been reading your posts. So my

question is........Are you getting a new PT?

CAROLG

>

> I was skeptical when our PT showed me how to apply pressure on

Malcolm's

> skull with my fingertips. Ok, now I know that it's not me.

>

>

>

> My husband and I had already agreed before we met Wanda at cranial

> technologies about getting the band for Malcolm. If cranial

technologies

> thought a band was warranted, we agreed that we would proceed on

getting him

> the band asap. We were impressed with the results other parents

have had

> and didn't think there was much of a choice in eventually getting

our son a

> helmet.

>

>

>

> When I told our PT about seeing cranial technologies and getting a

helmet,

> she was upset. She doesn't believe in helmet therapy and thinks

they're

> only for severe cases. She believes that Malcolm's plagio and tort

are

> correctable through PT.

>

>

> While I'm not a PT, it doesn't make sense to me that you can

correct plagio

> and tort solely through PT in Malcolm's case, especially since he

was breech

> and born with plagio and tort. Malcolm's head was pressed against

my right

> rib case almost throughout the pregnancy. He only occasionally

veered left

> of my belly button before week 20. After week 20 of my pregnancy,

I don't

> recall him ever on the left side of my abdomen.

>

>

>

> I started to self-doubt myself and get more frustrated and confused

today

> when our PT implied that there was a choice in treating Malcolm's

plagio and

> tort. I really don't see a choice. Either we band him asap and

achieve

> some level of symmetry and roundness to his head or we don't and

pray that

> his head will improve in time, which it hasn't done for 4 months

despite

> aggressive repositioning and pt.

>

>

>

> Thanks for restoring my confidence and making me think I'm not

nuts. I

> really wish we didn't have to make these decisions and go through

this

> ordeal. This is a nightmare to me. I know there are plenty of

> life-threatening circumstances for infants that are more pressing

and

> deserving of attention for doctors, but there must be easier ways

dealing

> with this. Why do doctors, pts, insurance companies, etc. make it

so

> difficult when it doesn't have to be? They make you feel

incompetent, a

> complete failure for not doing more and leading you to believe that

you have

> the power to correct this when you may not.

>

>

>

> Thanks again

>

>

>

> Carolyn in NYC

>

> Mum to Malcolm - 4 months old - born breech with plagio and tort

>

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  • 5 months later...

Meredith, where are you in Canada? I am in Ontario and covered under Section 8

for Enbrel. I think but can find out for sure if any provinces are not covered.

Hugs

June

[ ] thanks

Thanks Rhonda, , and Janet for responding to my questions. I have been

doing pretty good during the summer. Last winter was definitely not fun and I am

worried now the fall is just around the corner. I get pain in my shoulders and

back but the pain in my chest really bothers me. It will just be achy, but can

escalate to sharp stabbing pain. My Rheumy decided to do heart tests on me back

in February because he said that chest pain is not usual in RA patients. But of

course the tests came back fine and the month of worrying I would die of a heart

attack was wasted. I am only on Methatrexate and Hydroxcloroquine right now as I

am not on any health benefits. I have heard wonderful things about Enbrel but I

would not be able to go on that because it is too costly and have no coverage. I

see my Rheumy again the beginning of September. My hands and elbows only hurt

once in awhile. I have many nodules on them.

Meredith from Canada

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Meredith,

Have you tried the drug companies? I get my meds free all of them for only

twenty one dollars every three months, and that is for them filling out all

the paperwork, so I don't have to worry with it. ( I take Plaquenil, Zoloft,

Prevacide, Metformin, Potassium, Doxycycline, Lorazepam). I have a place

here called spring creek health cooperative,that is the ones who helped me.

Check with your Human Resources Dept., or Health Dept. to found out if they

offer these type of services, if not you can go tthrought the internet and

get all the infor. Oh yeah ask your doctor about this too, he should be able

to help. If you will let me know if this was any help.

Rhonda

P.S. you can send personal email to bigsis135@...--- maybe this

could help others too.

[ ] thanks

> Thanks Rhonda, , and Janet for responding to my questions. I have

> been doing pretty good during the summer. Last winter was definitely not

> fun and I am worried now the fall is just around the corner. I get pain

> in my shoulders and back but the pain in my chest really bothers me. It

> will just be achy, but can escalate to sharp stabbing pain. My Rheumy

> decided to do heart tests on me back in February because he said that

> chest pain is not usual in RA patients. But of course the tests came back

> fine and the month of worrying I would die of a heart attack was wasted.

> I am only on Methatrexate and Hydroxcloroquine right now as I am not on

> any health benefits. I have heard wonderful things about Enbrel but I

> would not be able to go on that because it is too costly and have no

> coverage. I see my Rheumy again the beginning of September. My hands and

> elbows only hurt once in awhile. I have many nodules on them.

>

> Meredith from Canada

>

>

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June,

I am also in Ontario. I will look in this Section 8.

Meredith in Canada.

Meredith, where are you in Canada? I am in Ontario and covered under Section 8

for Enbrel. I think but can find out for sure if any provinces are not covered.

Hugs

June

[ ] thanks

Thanks Rhonda, , and Janet for responding to my questions. I have been

doing pretty good during the summer. Last winter was definitely not fun and I am

worried now the fall is just around the corner. I get pain in my shoulders and

back but the pain in my chest really bothers me. It will just be achy, but can

escalate to sharp stabbing pain. My Rheumy decided to do heart tests on me back

in February because he said that chest pain is not usual in RA patients. But of

course the tests came back fine and the month of worrying I would die of a heart

attack was wasted. I am only on Methatrexate and Hydroxcloroquine right now as I

am not on any health benefits. I have heard wonderful things about Enbrel but I

would not be able to go on that because it is too costly and have no coverage. I

see my Rheumy again the beginning of September. My hands and elbows only hurt

once in awhile. I have many nodules on them.

Meredith from Canada

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  • 2 weeks later...

It just occurred to me that if you are under 65 you would apply to Trillium

which is another arm of the government. Your pharmacy or your rheumy should

have the forms available. Everyone in Ontario is eligible for coverage for drugs

not covered on the ODB plan. Let me know how you make out. You could also get

in touch with Enliven Services who will help you with paperwork. Their phone #

is 1-877-936-2735 or look up the web site www.enbrelca and enter DIN #02242905.

Hugs

June

[ ] thanks

Thanks Rhonda, , and Janet for responding to my questions. I have been

doing pretty good during the summer. Last winter was definitely not fun and I am

worried now the fall is just around the corner. I get pain in my shoulders and

back but the pain in my chest really bothers me. It will just be achy, but can

escalate to sharp stabbing pain. My Rheumy decided to do heart tests on me back

in February because he said that chest pain is not usual in RA patients. But of

course the tests came back fine and the month of worrying I would die of a heart

attack was wasted. I am only on Methatrexate and Hydroxcloroquine right now as I

am not on any health benefits. I have heard wonderful things about Enbrel but I

would not be able to go on that because it is too costly and have no coverage. I

see my Rheumy again the beginning of September. My hands and elbows only hurt

once in awhile. I have many nodules on them.

Meredith from Canada

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  • 4 weeks later...

Michele,

I'm glad it was helpful. Hang in there!

Caroline

> From: <isoaa@...>

> Reply-< >

> Date: Sun, 01 Oct 2006 11:03:26 -0400 (EDT)

> < >

> Subject: Thanks

>

> Caroline and Everyone here :

>

> Thanks for the great article. It was extremely helpful.

> And thanks to all of you for support that could not

> have come at a better time.

>

> God Bless Everyone!

>

> Michele Cerruto

> Greenville, SC.

>

> " Ms. Michele "

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  • 2 weeks later...

Eileen,

Since we go to California I'm not sure about the Neurospect situation in New

York.

Maybe someone will can jump in here and fill you in.

Best of luck...

Caroline

> From: tebog2 <tebog2@...>

> Reply-< >

> Date: Mon, 16 Oct 2006 01:22:01 +0000

> < >

> Subject: Thanks

>

> Thank you Caroline & for your quick responses. I am going to

> call the New York office first thing in the a.m. Do they do the

> Neurospect testing there too? I am really anxious to start this

> process, although I am cautiously hopeful.

>

> I look forward to communicating with you all and really appreciate

> your help!!

>

> Eileen

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Hi Eileen:

I am Eileen too and we just had our first appt with Dr. R in NY on Friday..He

told me they are not doing NeuroSpects on the east coast but hopefully in DC

soon....I dont know much more than that as my son was totally out of control and

it was a difficult appt for him....Eileen B.

---------------------------------

Get your own web address for just $1.99/1st yr. We'll help. Small

Business.

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  • 5 weeks later...
  • 3 weeks later...

My state has started getting better about mold and landlords. I

believe that they now or soon will have to sign a form saying there

is no mold, roaches, in the apartment or home for rent. I am not sure

on details but they will condemn a place but then where do you go

when they condemn the home. That happened to me in one place we were

getting out cuz they were about to condemn the place cuz of a roof

leak and a moldy roof. So they made the landlord put on a new roof

but I moved out before that all started.

>

> > When will the government step in and start setting air quality

> guidelines?

> > The only department that is suppose to do something, looks the

other

> way. (The

> > Department of business and professional regulations) There would

be

> less

> > lawsuits if this department would investigate uninhabitable

housing

> (TEST) and

> > make these apartment owners clean up their mold or demolish and

> start over. I

> > wonder how these people can sleep at night and I can only hope

they

> will one

> > day have to answer to god. To all the victims, I pray for your

> recovery and

> > hope that we will all make a difference from our journeys in some

> way or

> > another.

> >

> > GOD BLESS

>

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, may I ask what state you are in that has these laws? Is is CA?

Thanks,

Jocelyn

>

> My state has started getting better about mold and landlords. I

> believe that they now or soon will have to sign a form saying there

> is no mold, roaches, in the apartment or home for rent. I am not sure

> on details but they will condemn a place but then where do you go

> when they condemn the home. That happened to me in one place we were

> getting out cuz they were about to condemn the place cuz of a roof

> leak and a moldy roof. So they made the landlord put on a new roof

> but I moved out before that all started.

>

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My state is Delaware. I guess it is a start that they are doing

something.

--- In , " Jocelyn Brown " <brownje@...>

wrote:

>

> , may I ask what state you are in that has these laws? Is is

CA?

> Thanks,

> Jocelyn

>

> --- In , " ldelp84227 " <ldelp84227@>

wrote:

> >

> > My state has started getting better about mold and landlords. I

> > believe that they now or soon will have to sign a form saying

there

> > is no mold, roaches, in the apartment or home for rent. I am not

sure

> > on details but they will condemn a place but then where do you go

> > when they condemn the home. That happened to me in one place we

were

> > getting out cuz they were about to condemn the place cuz of a

roof

> > leak and a moldy roof. So they made the landlord put on a new

roof

> > but I moved out before that all started.

> >

>

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In many places in CA now tenants have to sign a waiver of all rights before

they are even considered for an apartment.

Basically, they have to agree in advance that nomatter what the situation

really is, its 'not the landlord's fault'..

This doesn't mean that landlords will repair issues, it just means that they

don't have the option of suing.

On 12/3/06, Jocelyn Brown <brownje@...> wrote:

>

> , may I ask what state you are in that has these laws? Is is CA?

> Thanks,

> Jocelyn

>

>

> >

> > My state has started getting better about mold and landlords. I

> > believe that they now or soon will have to sign a form saying there

> > is no mold, roaches, in the apartment or home for rent. I am not sure

> > on details but they will condemn a place but then where do you go

> > when they condemn the home. That happened to me in one place we were

> > getting out cuz they were about to condemn the place cuz of a roof

> > leak and a moldy roof. So they made the landlord put on a new roof

> > but I moved out before that all started.

> >

>

>

>

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Thanks for the update on CA. Guess we better consider buying instead

of renting when we relocate back there in a couple of months.

Jocelyn

> > >

> > > My state has started getting better about mold and landlords. I

> > > believe that they now or soon will have to sign a form saying there

> > > is no mold, roaches, in the apartment or home for rent. I am not

sure

> > > on details but they will condemn a place but then where do you go

> > > when they condemn the home. That happened to me in one place we were

> > > getting out cuz they were about to condemn the place cuz of a roof

> > > leak and a moldy roof. So they made the landlord put on a new roof

> > > but I moved out before that all started.

> > >

> >

> >

> >

>

>

>

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  • 2 months later...

Gretchen,

My daughter was so excited after we recived your email that she went to see her

teachers this morning before school. Everyone was so wonderful when she showed

them your email and were very open to anything she thought would help. I had

already given her a laptop because home work has been so difficult for her and

they have agreed to allow her to use it in class. Thank you for the web site, we

will love it!

I am sure we are going to enjoy very much, already we feel far

less lost then yesterday.

Lissa

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  • 1 month later...
Guest guest

Hi , I take the cleanse and flush am, 30 min. (at least) before I eat.

Flush 30 min before 2nd meal, and cleanse and flush 30 min before last meal. If

you burp, you will taste product, but not unpleasant to me. On 3rd week of gall

cleanse. I also take raw. unfiltered, organic, apple cider vinegar 3 times per

day ( 1oz. x 3 ). Also eating and blending organic apples/juice daily. Will give

report on site after next ultrasound

<eaquita@...> wrote: Hi there,

Thanks for checking in . I went ahead and ordered the GallCleanse, but

haven't started taking it yet.

It says to take on an empty stomach. Do you take it in the a.m. when you get up?

and before you go to bed?

When would my tomach be empty besides when I first wake up? I guess I wonder how

empty is empty.

I'm looking forward to your next ultrasound. Thanks again for your info.

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