Guest guest Posted September 18, 2008 Report Share Posted September 18, 2008 > You asked: Also, someone posted about keeping a daily journal. What do you note, as I think that would be a great thing to have with me. I have been running a low grade fever and feeling generally crummy for several months now and it is starting to get very frustrating. My suggestion: I use a 5x7 calendar/planner that I bought at Walmart. I keep all family appts on the calendar but on the daily entries I record the following things on a daily basis: Temperature. I have been running a low grade fever for over 3 months now, Drs aren't concerned, but I take my temp daily when I am comfortable and nonactive. Pain level rating at days end. A scale of 1-10 with 10 as the worst I record my pain for the day. Doing this has allowed me to see that level slowly going down with my new meds. Symptoms that were present that day. I have been ill with other entertaining viruses lately so I am keeping track of normal vs diarhhea days, good eating days vs zero appetite days, achy knees, knots under the skin on my hands, this type of thing. So far keeping a journal of these things has helped me see that I am gaining on my symptoms and that I am improving. This has also helped both my GP and RA Drs so see what is happening and when. And when I have a great or happy event I like to jot that down too. Sometimes seeing all the pain entries gets a little overwhelming so adding in the good things helps to neutralize things. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2008 Report Share Posted October 29, 2008 It's great that you are feeling better today, Chris. Glad you are enjoying the articles. Not an MD On Wed, Oct 29, 2008 at 4:03 PM, Hamilton <hammy412000@...> wrote: > Thank you for the nice words and prayers. I am feeling better today. I go in > for an MRI on my entire back tomorrow. To find out what is causing my severe > back pains.I'll let everyone know how it turns out. Thanks for the great > articles . God Bless!! H. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2009 Report Share Posted January 15, 2009 Diane, You're welcome. Although my explanation was detailed and complex, that doesn't mean we must comprehend our experience at that level before we act to protect ourselves. As Doug more eloquently said (paraphrasing) Go into any midwestern basement and smell the mycotoxins (or whatever it all is). But don't do that! We must act without knowing, but that is exactly what gets us into trouble. So we must do what you are doing and ask questions. We still don't know - absolutely - but we know more than we did and hopefully we will make better choices with less harm. Carl Grimes Healthy Habitats LLC ----- > Thank you Doug and Carl for your help and information about mycotoxins. > I find all of this confusing at best, but am really trying hard to > understand it all and learn as much as I can about it. Thanks to both > of you for your knowledge and help. Sincerely Diane Bolton > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2009 Report Share Posted September 20, 2009 seems like it should be a no brainer, check this out. http://www.allaboutvision.com/conditions/optic-neuritis.htm > > for the email and for thanking about me. > such a interesting article. my emailer isn't wanting to send so I just posted here. optic neuritis from mycotoxins, who ever would have thought? tc. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2009 Report Share Posted September 20, 2009 This is why the VCS test is a first screening for toxic exposure. I remember when I first began getting sick I was teaching and couldn't read my teacher's manual and had just purchased new glasses about 3 months before. I was using my glasses on but had to use a magnifier to see the print! Very scary. seems like it should be a no brainer, check this out. _http://www.allabouthttp://www.http://www.http://www.allahtt_ (http://www.allaboutvision.com/conditions/optic-neuritis.htm) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2010 Report Share Posted May 27, 2010 You are so welcome. I used to live near Present Moment, I miss being able to go there whenever the urge hit. Not many places you can go and find everybody is headed in the same direction, positive personal growth in every aspect of ones being. -- No sig line is too small. Facebook is evil. Rent this space. [ ]<--write your complaint in the complaint box.-<< On Wed, 2010-05-26 at 15:04 -0400, webriter wrote: > > > Kudos and a big thank you to whoever, [i think my brain leaks stuff] > sent the information On the > Present Moment site, I bought a cloth tea bag, some essential oils and > High Blood Pressure tea from there and just got my package, I made > myself some tea and added the cinnamon/raw honey I drink every day now > [Thanks for that info too, probably not the same person, sigh] I just > wanted y'all to know I really appreciate your emails, I get so much > good info from them. > > ~Katy > Sheep to the right; His Lamb > Zeal for your house consumes me-Ps 69:9 > http://orchardhouseheirlooms.com/product_info.php/cPath/157_163/products_id/199 survival seeds > Christian-homesteaders/?yguid=227010598 biblical survival > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2010 Report Share Posted May 27, 2010 Ah, , I shouldda known, except for my Senior moments. Thanks again, I got my stuff, really fast and UI'm very pleased with th quality and prices. ~Katy Sheep to the right; His Lamb Zeal for your house consumes me-Ps 69:9 http://orchardhouseheirlooms.com/product_info.php/cPath/157_163/products_id/199 survival seeds Christian-homesteaders/?yguid=227010598 biblical survival -- Re: thanks You are so welcome. I used to live near Present Moment, I miss beingable to go there whenever the urge hit. Not many places you can go andfind everybody is headed in the same direction, positive personal growthin every aspect of ones being.-- No sig line is too small.Facebook is evil.Rent this space.[ ]<--write your complaint in the complaint box.-<<On Wed, 2010-05-26 at 15:04 -0400, webriter wrote:> > > Kudos and a big thank you to whoever, [i think my brain leaks stuff]> sent the information On the > Present Moment site, I bought a cloth tea bag, some essential oils and> High Blood Pressure tea from there and just got my package, I made> myself some tea and added the cinnamon/raw honey I drink every day now> [Thanks for that info too, probably not the same person, sigh] I just> wanted y'all to know I really appreciate your emails, I get so much> good info from them.> > ~Katy > Sheep to the right; His Lamb> Zeal for your house consumes me-Ps 69:9> http://orchardhouseheirlooms.com/product_info.php/cPath/157_163/products_id/199 survival seeds> Christian-homesteaders/?yguid=227010598 biblical survival> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2010 Report Share Posted September 30, 2010 > > My blood counts were good today - WBC (3.9) not escalating and I did check with my Consultant today about being off Glivec. He said until we have the results I should stay off the med. > Silly question from a beginner!... can you explain what is tested for in a) blood (which i know) b)bone marrow and c) cytogenic pcr? I am confused! __________________________________ Hi Beth, First thing....to say that your white count has not increased is not really saying much, here's why. It will be about the last thing to increase. Let's say you have a bmb.....and the results is 10% ph+ or 2 leuk cells in 20 analyzed. You want to know if this 10% is increasing....it could easily go back up to 100% (what you probably were at dx) before your white count would necessarily increase. This would be an example of a relapse and it would not show in your white count. The same thing with your pcr......if that is re-tested and it goes up significantly, then that could signal a relapse, but the white count may be unaffected. --------------------- what is tested from blood: From peripheral blood, you can do the pcr test and this is the most sensitive test for residual cml cells but it is more accurate when the % of cml cells is low. When you have a bone marrow biopsy....this is the cytogentic test. They actually try to get 20 (usually) dividing cells and look at the chromosomes and see in what % of these 20 cells do they see the Philadelphia chromosome (the translocation that causes cml). The pcr, usually done with peripheral blood but could be done with bone marrow aspirate (but should be done with the same material each time for comparison)....this is a molecular test. It is a hard test to explain (which I can't) and even understand, but it is determining the % of the bcr-abl that is found. The result can be in log reductions or %.....or now a international standardization no. So, if you doctor is just doing a cbc blood test and looking at the white count, that does not tell you if things are changing while you are off drug............or maybe he has done other tests also? By the time the white count changes above normal, you probably have close to 100% ph+ in the bone marrow. If the white counts if just varying within the normal range, that does not tell you much because other things can cause that change. I suppose if it consistently went up week by week, that could be an indicator....but again not the first one. I hope this makes sense. I kind of cringe when people say 'my white count has not gone up' because that is not proof that a relapse is not occurring. Eventually, the white count will go up (just like at dx). My best to you. I know you will get good care and advice from HH. Oregon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 25, 2010 Report Share Posted December 25, 2010 Hope everyone is healthy and having a wonderful Christmas day. Thanks to all of you who have answered my questions these past weeks and to those who have posted their wonderful stories of encouragement. This is a great site for both information and inspiration. Marilyn Quote Link to comment Share on other sites More sharing options...
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