Guest guest Posted August 1, 2006 Report Share Posted August 1, 2006 http://www.ener-chi.com/num_one.htm Hanna is the person to ask This too. Listen to the audios -- http://www.ener-chi.com/num_one.htm Plus you can buy his book and get telephone consultations. http://www.ener-chi.com/tele.htm Short term you need zero fat vegetarian diet to allieve your pain. Raw vegs (salads) and fresh juices in the short term Cheers! hanyax ----- Original Message ----- From: M gallstones Sent: Monday, July 31, 2006 4:09 PM Subject: New to Group Hi, I'm new to the group and am looking for some advice. Last month, I had a ultra sound, upper GI endoscopy and a hyda-scan (sp?) done. All that was found was gastritis, and the biopsies came back normal. My question is, I have so much pain, I was on protonix, stopped because it is not working. I go next monday for my follow up with the GI doctor. I need some non-pharmaceutical advice here. I can barely eat, sleep, function. I'm 41, don't smoke, not over weight, I changed my diet to alleviate the discomfort. I'm looking for rememdies that will make this more tolerable or get rid of it!!! Please, any advice is greatly appreciated. Thank you, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2006 Report Share Posted August 2, 2006 Thanks for responding. I did some reading on gall bladder/liver flush and it sounds rather uncomfortable/painful. The thought of drinking oil is enough to make me gag. Is there any other remedies out there? I have always ate very low fat diet and lately have cut out just about all meat. This is just so frustrating. Any other suggestions from the group? Thank you. >From: " hanyax " <hanyax@...> >Reply-gallstones ><gallstones > >Subject: Re: New to Group >Date: Mon, 31 Jul 2006 21:42:57 -0400 > >http://www.ener-chi.com/num_one.htm Hanna is the person to ask > >This too. Listen to the audios -- http://www.ener-chi.com/num_one.htm > >Plus you can buy his book and get telephone consultations. >http://www.ener-chi.com/tele.htm > >Short term you need zero fat vegetarian diet to allieve your pain. Raw vegs >(salads) and fresh juices in the short term > > > > >Cheers! >hanyax > > > > > > > > > > ----- Original Message ----- > From: M > gallstones > Sent: Monday, July 31, 2006 4:09 PM > Subject: New to Group > > > Hi, I'm new to the group and am looking for some advice. Last month, > I had a ultra sound, upper GI endoscopy and a hyda-scan (sp?) done. > All that was found was gastritis, and the biopsies came back normal. > My question is, I have so much pain, I was on protonix, stopped > because it is not working. I go next monday for my follow up with the > GI doctor. I need some non-pharmaceutical advice here. I can barely > eat, sleep, function. > > I'm 41, don't smoke, not over weight, I changed my diet to alleviate > the discomfort. I'm looking for rememdies that will make this more > tolerable or get rid of it!!! > > Please, any advice is greatly appreciated. > > Thank you, > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2006 Report Share Posted August 2, 2006 > Is there any other remedies > out there? I have just taken garlic every day for a week and then some gallstones came out. It didn't happen last time, but there was no other reason I could think of as to why the gallstones came out now. I too can't take the olive oil, I take Stone Free daily and it seems to help. There's also a lot of foods I avoid, like ice cream. Tina __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2006 Report Share Posted August 2, 2006 Tina, forgive me but I am new...Can you tell me, do the gallstones come out of your digestive system? If so, how clearly can you identify that they are indeed gallstones? Is it obvious? I have looked around curezone but really couldnt find an answer. Can people just get rid of a gallstone without doing anything? Not know it and not see it? Sorry, I know Im a dork, LOL > > > Is there any other remedies > > out there? > > I have just taken garlic every day for a week and then > some gallstones came out. It didn't happen last time, > but there was no other reason I could think of as to > why the gallstones came out now. > > I too can't take the olive oil, I take Stone Free > daily and it seems to help. There's also a lot of > foods I avoid, like ice cream. > > Tina > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2006 Report Share Posted August 3, 2006 Hi Tina, Did you eat anything with fat in it right before your gall stones came out? I ate a roast beef meal (heavily seasoned with garlic) after an unplanned day of going without eating. I passed several gall stones the next day. I attributed the spontaneous flush to the fat triggering the gallbladder to contract and squeeze the stones out with the bile. Best Regards, Vince > > > Is there any other remedies > > out there? > > I have just taken garlic every day for a week and then > some gallstones came out. It didn't happen last time, > but there was no other reason I could think of as to > why the gallstones came out now. > > I too can't take the olive oil, I take Stone Free > daily and it seems to help. There's also a lot of > foods I avoid, like ice cream. > > Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2006 Report Share Posted August 3, 2006 This time I wasn't certain if they were gallstones or not. But gallstones always float, they are small and roundish. Sometimes they come out embedded and don't float, so you could pass them an not know, but if you pass a lot you know. Previously I've done something on purpose to get them out. I was in the middle of a garlic cleanse, but there was nothing else I can remember that I did differently. Oh, I ate avacado on my salad, but nothing else with fat in it. Tina --- rescombroker <rescombroker@...> wrote: > Tina, forgive me but I am new...Can you tell me, do > the gallstones > come out of your digestive system? If so, how > clearly can you > identify that they are indeed gallstones? Is it > obvious? I have > looked around curezone but really couldnt find an > answer. Can people > just get rid of a gallstone without doing anything? > Not know it and > not see it? > > Sorry, I know Im a dork, LOL > > > > > > > > > Is there any other remedies > > > out there? > > > > I have just taken garlic every day for a week and > then > > some gallstones came out. It didn't happen last > time, > > but there was no other reason I could think of as > to > > why the gallstones came out now. > > > > I too can't take the olive oil, I take Stone Free > > daily and it seems to help. There's also a lot of > > foods I avoid, like ice cream. > > > > Tina > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2006 Report Share Posted August 3, 2006 Maybe it was due to the garlic like mine. Tina --- Vince Richter <new_man85@...> wrote: > Hi Tina, > Did you eat anything with fat in it right before > your gall stones came > out? I ate a roast beef meal (heavily seasoned with > garlic) after an > unplanned day of going without eating. I passed > several gall stones > the next day. I attributed the spontaneous flush to > the fat > triggering the gallbladder to contract and squeeze > the stones out with > the bile. > > Best Regards, > > Vince > > > > > > > > Is there any other remedies > > > out there? > > > > I have just taken garlic every day for a week and > then > > some gallstones came out. It didn't happen last > time, > > but there was no other reason I could think of as > to > > why the gallstones came out now. > > > > I too can't take the olive oil, I take Stone Free > > daily and it seems to help. There's also a lot of > > foods I avoid, like ice cream. > > > > Tina > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2006 Report Share Posted October 24, 2006 Welcome! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2006 Report Share Posted November 4, 2006 Hello everyone. I joined this group because my mother was just diagnosed with CML and I know very little about the disease and the Gleevec she's taking. Any info would be greatly appreciated thank you and God Bless You all Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2006 Report Share Posted November 4, 2006 , This is a good place to start. I was diagnosed 3 weeks and am just learning myself...you'll see a lot of useful information here with links to other more medical information. Best wishes to you and your mother, Margaret Stacey Thacker <Stacey1599@...> wrote: Hello everyone. I joined this group because my mother was just diagnosed with CML and I know very little about the disease and the Gleevec she's taking. Any info would be greatly appreciated thank you and God Bless You all Margaret , mpraymond@... margaret-raymond@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2006 Report Share Posted November 4, 2006 Welcom Stacey. Your Mom will need some support and you can make sure she gets it. I will include a few websites you can view at the end of this post. I have found that if you ask specific questions to this site, you will get good answers from people who are more knowledgeable than me. Just ask away. As far as help to your Mom, it will be harder for her at first getting on Gleevec or whatever medications she will be on. However, just let her know it will get better after her body adjusts. Here are some sites with information that might help. _Click here: CML Support: Most Comprehensive Chronic Myelogenous Leukemia Information_ (http://www.cmlsupport.com/) _Click here: Chronic Myeloid Leukemia Symptoms, Diagnosis, Phases Info_ (http://www.us.novartisoncology.com/info/disease_information/cml.jsp?usertrack.f\ ilt er_applied=true & NovaId=1178761707192321188) _Click here: The Leukemia & Lymphoma Society - CML - Home_ (http://cml.lls.org/CMLApp/Controller) Also the Leukemia Society was very instrumental with helping me to get on track in my earlsy days. Please get you Mom on their mailing lists, so they can mail her information that might be helpful. With warm regards, Matt Florida DX January 2005 Gleevec since March 2005 In a message dated 11/4/2006 1:13:10 P.M. Eastern Standard Time, Stacey1599@... writes: Hello everyone. I joined this group because my mother was just diagnosed with CML and I know very little about the disease and the Gleevec she's taking. Any info would be greatly appreciated thank you and God Bless You all Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2006 Report Share Posted November 6, 2006 Hi, Stacey. Welcome to the group. How's your mother feeling? I agree with Matt -- your best strategy is to browse through the posts on this board and just ask any questions that you may have. You'll learn a lot just reading other people's questions and answers and it may lead to your own questions. We're all happy to help whenever we can. Warmest regards. (Dov) > > Hello everyone. I joined this group because my mother was just > diagnosed with CML and I know very little about the disease and the > Gleevec she's taking. Any info would be greatly appreciated thank you > and God Bless You all > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2006 Report Share Posted December 26, 2006 I would like to know if anyone can suggest something that can either controll my diebities or to get my pancreas back in a working mode. I have a friend who has Type II diabetes. He also has cancer. He went on Johanna Budwig's cottage cheese and flax oil diet...mainly for the cancer. He just wrote me and said that after only 2 weeks of being on the diet, he was able to cut his diabetes meds in half. He eats the cottage cheese and flax oil 2-3 times a day and the rest of his diet is grains and veggies. Needless to say he's thrilled to see these fast results and expects it to get even better. Budwig was quite a genius. You can do a check for her on the web. Gloria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2006 Report Share Posted December 26, 2006 Hello Phil, First welcome to our family. Please browse the files as there is a log of info in them. and the message archives.. What is your diet like? we need a bit more info on your health. Going to a raw diet will improve your health like you won't believe. Tell us what you eat drink etc... SuziPhilip Holbrook <phil_4656@...> wrote: Hello, I'm both new to this group and to natrual healing, so please bear with me as I will probable have a ton of guestions. My first guestion is. My Dr. just told me last month that I'm Type II diabetic. He wants me to talk some type of pill(which I don't want to). I have personally seen what these pill can and can't do. I would like to know if anyone can suggest something that can either controll my diebities or to get my pancreas back in a working mode. Thanks for any help you can offer. Phil __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2006 Report Share Posted December 26, 2006 Diabetics have great success with a raw food diet, if you are interested. There are a great many testimonies at www.hacres.com On the left side scroll down to "Testimonies" and click. Then you will see "diabetes" is the very first testimony group. Type II is very treatable (can't say cured) with a raw food diet. Shari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2006 Report Share Posted December 26, 2006 Phil, I forgot to add some things you can start doing... exercise for one.. and food... Here are a few tips on making healthful food choices for you Eat lots of vegetables and fruits. Try picking from the rainbow of colors available to maximize variety. Eat non-starchy vegetables such as spinach, carrots, broccoli or green beans . Choose whole grain foods over processed grain products. Try brown rice with your stir fry or whole wheat spaghetti with your favorite pasta sauce. But using zucchini or squash as spaghetti instead of pasta is even better. Include dried beans (like kidney or pinto beans) and lentils into your meals. Fresh fruits.Philip Holbrook <phil_4656@...> wrote: Hello, I'm both new to this group and to natrual healing, so please bear with me as I will probable have a ton of guestions. My first guestion is. My Dr. just told me last month that I'm Type II diabetic. He wants me to talk some type of pill(which I don't want to). I have personally seen what these pill can and can't do. I would like to know if anyone can suggest something that can either controll my diebities or to get my pancreas back in a working mode. Thanks for any help you can offer. PhilPHIL Suzi What is a weed? A plant whose virtues have not yet been discovered. health/ http://suziesgoats.wholefoodfarmacy.com/ http://360./suziesgoats __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2006 Report Share Posted December 26, 2006 I eat alot of fresh fruit, at 3 servings of fish each week, a serving of beef, pork or turkey each week. At least 2 servings of raw veggies a day. The only thing that I drink is about 1 gallon of water a day. On the fruit it's about 3 servings a day and high in fiber, prunes, aprocots, figs ect. no white potatoes or white bread. I eat sweet pot. wheat bread. I use extra virgin olive oil to cook with. Also I eat brown rice. I walk about 4 miles a day. If you need more info I'll get back with you next week, when I get back home from vacation. PhilSuzanne <suziesgoats@...> wrote: Hello Phil, First welcome to our family. Please browse the files as there is a log of info in them. and the message archives.. What is your diet like? we need a bit more info on your health. Going to a raw diet will improve your health like you won't believe. Tell us what you eat drink etc... SuziPhilip Holbrook <phil_4656 > wrote: Hello, I'm both new to this group and to natrual healing, so please bear with me as I will probable have a ton of guestions. My first guestion is. My Dr. just told me last month that I'm Type II diabetic. He wants me to talk some type of pill(which I don't want to). I have personally seen what these pill can and can't do. I would like to know if anyone can suggest something that can either controll my diebities or to get my pancreas back in a working mode. Thanks for any help you can offer. Phil __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2006 Report Share Posted December 26, 2006 Hello Phil and welcome to HAWK. The first thing you need to do is change your diet. Any white processed grains are poison to you now, just throw them out. You can replace them with whole grains. Diabetics do best with meals that are smaller and spaced out during the day. Try doing 3 smaller meals a day with snacks in between. Try not to overdo anything that is mostly carbs, but don’t cut them out of your diet completely as some fad diets will tell you. Insoluble fiber is your friend. Oats, peas, lentils, and beans have lots of IF in them. If you are not already, start exercising every day. Aim for 30 minutes a day of some kind of aerobic exercise. Type II diabetes can be corrected without drugs if it is caught early enough. Good for you for taking charge of your own health. Janet From: health [mailto:health ] On Behalf Of Philip Holbrook Sent: Tuesday, December 26, 2006 6:31 AM health Subject: New to Group Hello, I'm both new to this group and to natrual healing, so please bear with me as I will probable have a ton of guestions. My first guestion is. My Dr. just told me last month that I'm Type II diabetic. He wants me to talk some type of pill(which I don't want to). I have personally seen what these pill can and can't do. I would like to know if anyone can suggest something that can either controll my diebities or to get my pancreas back in a working mode. Thanks for any help you can offer. Phil PHIL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2006 Report Share Posted December 26, 2006 Looks pretty good.. however, cut out the beef and pork...possibly the turkey and fish too... see how it goes.. if you can cut out all you're better off... but that is your choice.. Also cut back the fruit a tad and add alot of green and green leafy veggies. If you cook your veggies, try lightly steaming them instead. Do you eat garlic, cayenne? SuziPhilip Holbrook <phil_4656@...> wrote: I eat alot of fresh fruit, at 3 servings of fish each week, a serving of beef, pork or turkey each week. At least 2 servings of raw veggies a day. The only thing that I drink is about 1 gallon of water a day. On the fruit it's about 3 servings a day and high in fiber, prunes, aprocots, figs ect. no white potatoes or white bread. I eat sweet pot. wheat bread. I use extra virgin olive oil to cook with. Also I eat brown rice. I walk about 4 miles a day. If you need more info I'll get back with you next week, when I get back home from vacation. Phil __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 thank you for the welcome, Janet. As I stated in an earler e-mail I have eliminated all white grains. I also walk about 4 miles a day. I also eat 5 small meals already. and am only taking in about 1500 cal a day. I will be studying more to find out what else I can be doing. PhilJanet Hamilton <dragonhealing@...> wrote: Hello Phil and welcome to HAWK. The first thing you need to do is change your diet. Any white processed grains are poison to you now, just throw them out. You can replace them with whole grains. Diabetics do best with meals that are smaller and spaced out during the day. Try doing 3 smaller meals a day with snacks in between. Try not to overdo anything that is mostly carbs, but don’t cut them out of your diet completely as some fad diets will tell you. Insoluble fiber is your friend. Oats, peas, lentils, and beans have lots of IF in them. If you are not already, start exercising every day. Aim for 30 minutes a day of some kind of aerobic exercise. Type II diabetes can be corrected without drugs if it is caught early enough. Good for you for taking charge of your own health. Janet From: health [mailto:health ] On Behalf Of Philip HolbrookSent: Tuesday, December 26, 2006 6:31 AMhealth Subject: New to Group Hello, I'm both new to this group and to natrual healing, so please bear with me as I will probable have a ton of guestions. My first guestion is. My Dr. just told me last month that I'm Type II diabetic. He wants me to talk some type of pill(which I don't want to). I have personally seen what these pill can and can't do. I would like to know if anyone can suggest something that can either controll my diebities or to get my pancreas back in a working mode. Thanks for any help you can offer. Phil PHIL PHIL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 thank you for the welcome gloria. and for the info. I was already taking flax seed oil for the omega-3 now even more reason. PhilMorningGlory113@... wrote: I would like to know if anyone can suggest something that can either controll my diebities or to get my pancreas back in a working mode.I have a friend who has Type II diabetes. He also has cancer. He went on Johanna Budwig's cottage cheese and flax oil diet...mainly for the cancer. He just wrote me and said that after only 2 weeks of being on the diet, he was able to cut his diabetes meds in half. He eats the cottage cheese and flax oil 2-3 times a day and the rest of his diet is grains and veggies. Needless to say he's thrilled to see these fast results and expects it to get even better.Budwig was quite a genius. You can do a check for her on the web. Gloria PHIL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2006 Report Share Posted December 30, 2006 Phil, you should probably lower the amount of fresh fruit and whole grains and replace them with more veggies and lean proteins. Don’t totally cut them out, but do change the amount a bit. Diabetics need more protein and soluble fiber than other people. It keeps your blood sugar levels on a more even path. I’d even choose to stay away from sweet potatoes, carrots, beets, and corn as a general rule. They all have more starch and sugar than other vegetables. Leafy greens, avocados, tomatoes, onions, garlic, and sea vegetables would all be excellent choices. Fish, legumes, and lean cuts of meat are all OK for protein sources. My brother has a very similar case of Type II and had to cut out bread, rice, and pasta (even whole grain) all together. He was very active, but had to up his exercise routine. I believe he added strength training circuits to his aerobic routine. It is an extremely hard thing to do, but he has no BS problems currently. Our dad died of complications from diabetes, so that is his motivation. Keep your spirits up, keep talking and asking questions and if you feel down please let us know – it is what we are here for. Janet From: health [mailto:health ] On Behalf Of Philip Holbrook Sent: Tuesday, December 26, 2006 9:28 AM health Subject: Re: New to Group I eat alot of fresh fruit, at 3 servings of fish each week, a serving of beef, pork or turkey each week. At least 2 servings of raw veggies a day. The only thing that I drink is about 1 gallon of water a day. On the fruit it's about 3 servings a day and high in fiber, prunes, aprocots, figs ect. no white potatoes or white bread. I eat sweet pot. wheat bread. I use extra virgin olive oil to cook with. Also I eat brown rice. I walk about 4 miles a day. If you need more info I'll get back with you next week, when I get back home from vacation. Phil Suzanne <suziesgoats > wrote: Hello Phil, First welcome to our family. Please browse the files as there is a log of info in them. and the message archives.. What is your diet like? we need a bit more info on your health. & bsp; Going to a raw diet will improve your health like you won't believe. Tell us what you eat drink etc... Suzi Philip Holbrook <phil_4656 > wrote: Hello, I'm both new to this group and to natrual healing, so please bear with me as I will probable have a ton of guestions. My first guestion is. My Dr. just told me last month that I'm Type II diabetic. He wants me to talk some type of pill(which I don't want to). I have personally seen what these pill can and can't do. I would like to know if anyone can suggest something that can either controll my diebities or to get my pancreas back in a working mode. Thanks for any help you can offer. Phil __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2007 Report Share Posted January 10, 2007 Laurie: You bring up a question that we all have when we are first diagnosed. What does the future hold? We have all thought of it at one time or another and most of us even revisit it from time to time. However, please know that there is true hope out there for everyone with CML and more coming down the road. If Robb is prescribed with Gleevec, he will most likely be given a dose between 400 mg to 800 mg. It varies by Doctor. How is body will handle Gleevec is unclear. After a period of adjustment (usually just the first few months), most people do very well and adjust to the side effects with minimal problems. I myself have worked 70 hour weeks on dosages beginning at 800 mg for the first year and only 400 mg the second. He will find things that help him based on the list of items that others have posted to the site, however I will tell you some that work for me: Nausea I usually take Compazine or Phenergen if it is in the evening. Diarrhea Immodium Muscle Cramps Heating Pad Bone Pain Hot bath with Epsom salts Flu like feeling Alieve Fatigue Rest and relaxation I have also tried massage therapy and acupuncture. In the early months as your body gets used to Gleevec, other people recommended that you do some visualization. For me, when I was in extreme pain, I would crank up my iPod and turn something mindless on TV so that I was basically focusing on anything other than the pain. There are certainly other things to try and other " tricks of the trade " that you will find as you do your research. However, these things seem to work for me. If he does get side effects, they will get easier on his body after the initial adjustment. Hope this is helpful. With warm regards, Matt ville, FL DX January of 2005 Gleevec Since May 2005 Father of 3 _mtmaynor@..._ (mailto:mtmaynor@...) In a message dated 1/10/2007 2:50:42 P.M. Eastern Standard Time, rwilli72@... writes: Hello, I am new to this group and had a couple of questions. My husband was just diagnosed with CML 2 weeks ago. I have been reading so much information, I can't keep it all straight. He is currectly taking Hydrea (sp?) to lower his white blood count to a somewhat normal level so that he is able to start Gleevac. My question is what can we expect as far as side effects from this medication? His oncologist makes it seem like no big deal and that life will be normal. After reading some posts, I am not so sure. I just want to be prepared for whatever the future holds for us. Right now he works full time in a pretty demanding insurance sales job, while I stay home and take care of the family. I am wondering if he might not be able to maintain that and I may need to go back to work. Which I will do in a heartbeat if that would help. I just don't want him to worry about us on top of his new health issues. If anyone can give me some advice, I sure would appreciate it. Thank you all so much for just listening. Laurie Wife of Robb, dx 12/14/06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2007 Report Share Posted January 10, 2007 Hi Laurie, You have found the right group! Everyone here is so helpful and there is so much good advice and info. My husband was diagnosed in Sept '06 and we tried to scramble for information and such. He has been on Gleevec for 2 1/2 months and things are getting better. He also works a very demanding job as a lead animator in a huge studio. He also has side things as an independant animator. I am currently a stay at home mom with 3 kids...so no income from me right now! My husband Tim took 10 days off when he got the diagnosis - no physical reason - just trying to digest the information. After that period- he was working his fulltime job though the first 6 weeks on gleevec - all he could do was work then come home and sleep. We hoped this was short-lived and it was. Now he has lots more energy - working, plus snowboarding with our kids every 2nd day...it was super hard - the first 7 weeks because as I mentioned on the posts - his hemoglobin and neutrophils were in the gutter which left him sick and super tired ALL the time..... Every case varies...I have spoken with a woman who could not get out of bed AT ALL for the first 8 weeks on gleevec- now 9 months later she is working fulltime and feeling great. There are side effects - no doubt - but this is a great list to ask questions - most have been through it all..my husband experienced bad swelling, naseau, and wicked bone pains. He took pain meds when needed, anti-naseau when needed and we tried to have his feet up after work and a low salt diet to combat the edema (I tried to get him to wear the stockings for edema- like when I was pregnant and he said " Yeah Right! " ) He was told by his dr to stop playing hockey and slow down on snowboarding as his spleen was enlarged - now though it is back to normal size but he wears more protective gear...Life is not back to normal ....nor would we want it like that...sounds crazy I know...but having CML has really made us realize the importance of life, family and friends...we call it our cancer filter - Things which really don't matter get filtered out.. How old are your children? Have you told them? When we told out children about the CML , my son (12 years old) said " I can deal with CML but not cancer..so I am only going to call it CML " The other 2 see their Dad tired and not feeling well and they are good - they just snuggle where they can and life seems good for them. I hope this finds you well- I know its all a lot to digest...hope this helps somehow Shalyn " Catch on fire with enthusiasm and people will come for miles to watch you burn. " - Wesley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2007 Report Share Posted January 10, 2007 Hi Laurie, Welcome to the group. We all know how overwhelming it is during those first weeks after diagnosis but it really does get better with time. It's impossible to say what kind of side effects your husband will have from the Gleevec. Some people have absolutely no side effects at all and are able to continue living life just as they always did but others do have some side effects. For the majority of people, I would say that there will be side effects but they'll be more of a nuisance than a life altering hindrance. Only a small percentage of people will have severe side effects that prevent them from working or carrying on as they always did. Only time will tell what kind of side effects your husband will get. Don't hesitate to ask any questions, that's what we're here for. Tracey Dx Jan 2002 > > Hello, I am new to this group and had a couple of questions. My > husband was just diagnosed with CML 2 weeks ago. I have been reading > so much information, I can't keep it all straight. He is currectly > taking Hydrea (sp?) to lower his white blood count to a somewhat normal > level so that he is able to start Gleevac. My question is what can we > expect as far as side effects from this medication? His oncologist > makes it seem like no big deal and that life will be normal. After > reading some posts, I am not so sure. I just want to be prepared for > whatever the future holds for us. Right now he works full time in a > pretty demanding insurance sales job, while I stay home and take care > of the family. I am wondering if he might not be able to maintain that > and I may need to go back to work. Which I will do in a heartbeat if > that would help. I just don't want him to worry about us on top of his > new health issues. > > If anyone can give me some advice, I sure would appreciate it. Thank > you all so much for just listening. > > Laurie > Wife of Robb, dx 12/14/06 > Quote Link to comment Share on other sites More sharing options...
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