New to group

[Guest guest]

Hi Laurie,

I am relatively new to the group (dx june 06) and my biggest fears

came from the unknown. It was awful the first couple of weeks when I

didn't have much info, but after I learned more, especially from the

group, a lot of my fears were calmed. Things have been difficult at

times for me and especially for my family--I have a wife and three

young children--but I have learned you can get through anything with

the help and support of family and good friends. I feel so fortunate

to have found this group as I have learned more from it than from my

doctor. Reading through the posts will answer most of your questions

I'm sure. If not, you can always post and someone is there to help.

Good luck as you navigate these first weeks.

Cam

On Jan 10, 2007, at 12:42 PM, law.williams717 wrote:

> Hello, I am new to this group and had a couple of questions. My

> husband was just diagnosed with CML 2 weeks ago. I have been reading

> so much information, I can't keep it all straight. He is currectly

> taking Hydrea (sp?) to lower his white blood count to a somewhat

> normal

> level so that he is able to start Gleevac. My question is what can we

> expect as far as side effects from this medication? His oncologist

> makes it seem like no big deal and that life will be normal. After

> reading some posts, I am not so sure. I just want to be prepared for

> whatever the future holds for us. Right now he works full time in a

> pretty demanding insurance sales job, while I stay home and take care

> of the family. I am wondering if he might not be able to maintain that

> and I may need to go back to work. Which I will do in a heartbeat if

> that would help. I just don't want him to worry about us on top of his

> new health issues.

>

> If anyone can give me some advice, I sure would appreciate it. Thank

> you all so much for just listening.

>

> Laurie

> Wife of Robb, dx 12/14/06

>

>

>

This email has been scanned by Barracuda Network's Anti-Virus and Spam Firewall.

[Guest guest]

Dear Laurie

My son was dx'd with cml in March last year when he was 22 years

old. He immediately started out on 400mg gleevec and allopurinol and

has had no side effects apart from his hair thickening and a slight

problem with short term memory. After his diagnosis he signed on to

start night school at college and is also holding a full time,

stressful sales job in the printing industry. He is tired many times,

but says that its no longer a worrying tiredness but pretty normal

for his schedule. We are very fortunate that he is responding so

well - he reached CCR a good few months ago and his PCR from October

came back negative which is simply great - we are waiting for the

results of another one done just last week.

I found that the more I understood about cml and interacted with

these support boards, the calmer I became and the better 'vibe' I

passed on to . He is dealing with this cancer in an incredibly

positive way. Many times, those around us, closest to us, just do

not and in all realism, cannot understand the stresses related to

dealing with this all. You, Laurie, will ride the roller coaster of

cml in your own way too, just make sure you take care of yourself as

well.

leaves it up to me to sort out the 'cml stuff' - as he puts

it. He has started showing an interest now in understanding the test

results, but mostly he just gets on with the job of living his life,

working, studying and playing. His girlfriend told me the other day

that at times he forgets that he even has cml - but does not forget

his pill! She is on some or other adhd medications and 'threatened'

to forget hers if he forgets his! They struck a really good deal on

that one. :-) He has promised me that he will let me know if he

feels any changes or anything - but so far, so good.

From reading and learning and living with cml in for almost a

year now, the only thing I really expect from Gleevec is that it

keeps on working! We are truely fortunate about the lack of side

effects and its taken me some time to realise that to worry about

something or some side effect that MIGHT happen, is using up too much

of my energy. Now I put that energy into being thankful, watchful

and keeping up to date with news regarding cml - and living with

the 'new normal', or at least trying to find it :-)

The support boards have been my lifesaver - the people here are

wonderful and really understand and care. Here are the links to two

other boards that will also help you and Robb get to learn more about

life with cml. Just never forget that there is so much hope today

with cml. And that you have an incredible number of people out here

that will help you through this all. With people from all over the

world - its almost a 24 hour support system - wonderful!

http://asia./group/AsianCMLSupportGroup/

http://www.newcmldrug.com/

Know that it does get easier...... When New Year rolled up this year,

I had to admit that we had all done so much learning, had all grown

so much, met simply wonderful people and our lives had improved in a

way that we could not imagine due to suddenly finding out what really

was and is important. And this because of cancer? Yup.

We flew out to Oregon to meet with Dr Druker in September, and

while we were there we took them to the beach - I watched my 'child'

run on the beach like a young teenager, I listened to him sing to his

girlfriend (I have never heard him sing before this!), I watched his

eyes tear up during a stunning sunset and I listened to his free and

easy laughter. For the first time, I saw this young man really

living - living with and despite, cancer - and he has not stopped

since.

So - things really are good and I sincerely wish that in less than a

year, you and Robb will both be doing wonderfully and be able to

relegate cml to lower case lettering in your lives too.

With love

Annie

's mom

www.livingwithcml.blogspot.com

>

> Hello, I am new to this group and had a couple of questions. My

> husband was just diagnosed with CML 2 weeks ago. I have been

reading

> so much information, I can't keep it all straight. He is currectly

> taking Hydrea (sp?) to lower his white blood count to a somewhat

normal

> level so that he is able to start Gleevac. My question is what can

we

> expect as far as side effects from this medication? His oncologist

> makes it seem like no big deal and that life will be normal. After

> reading some posts, I am not so sure. I just want to be prepared

for

> whatever the future holds for us. Right now he works full time in

a

> pretty demanding insurance sales job, while I stay home and take

care

> of the family. I am wondering if he might not be able to maintain

that

> and I may need to go back to work. Which I will do in a heartbeat

if

> that would help. I just don't want him to worry about us on top of

his

> new health issues.

>

> If anyone can give me some advice, I sure would appreciate it.

Thank

> you all so much for just listening.

>

> Laurie

> Wife of Robb, dx 12/14/06

>

[Guest guest]

Dear Laurie,

I can't possibly improve upon or add to what the others have told

you. Reading their responses, however, I can't help but think that

CML disproportionately hits the kind, the intelligent, the

articulate and, although I can't dispositively prove it in this

forum, the good-looking. Or maybe it's just that that people who

frequent support boards are more often than not lovely people. So

your very presence here tells me your husband is lucky to have you

by his side. Welcome to both of you and feel free to ask specific

questions as they arise. No matter how odd they may seem to you,

someone here will likely know what you're talking about and be able

to help.

Warm regards.

>

> Hello, I am new to this group and had a couple of questions. My

> husband was just diagnosed with CML 2 weeks ago. I have been

reading

> so much information, I can't keep it all straight. He is

currectly

> taking Hydrea (sp?) to lower his white blood count to a somewhat

normal

> level so that he is able to start Gleevac. My question is what

can we

> expect as far as side effects from this medication? His

oncologist

> makes it seem like no big deal and that life will be normal.

After

> reading some posts, I am not so sure. I just want to be prepared

for

> whatever the future holds for us. Right now he works full time in

a

> pretty demanding insurance sales job, while I stay home and take

care

> of the family. I am wondering if he might not be able to maintain

that

> and I may need to go back to work. Which I will do in a heartbeat

if

> that would help. I just don't want him to worry about us on top

of his

> new health issues.

>

> If anyone can give me some advice, I sure would appreciate it.

Thank

> you all so much for just listening.

>

> Laurie

> Wife of Robb, dx 12/14/06

>

[Guest guest]

Dear Laurie and Robb,

Welcome to the club that nobody really wants to belong to.

Your oncologist has it right. CML is no longer a big deal for the majority

of patients. You end up taking one pill in the morning and visiting your

doctor every 3 months to check your counts.

Side effects are usually minimal and subside after a month or two.

I realize that this is a very anxious and stressful time. Please pose any

questions that you have to this list. There are many patients who can easily

answer them, including one patient who is a medical doctor.

Good luck and I'm hoping to enroll you into the Zero Club real soon.

Zavie

Zavie (age 68)

67 Shoreham Avenue

Ottawa, Canada, dxd AUG/99

INF OCT/99 to FEB/00, CHF

No meds FEB/00 to JAN/01

Gleevec since MAR/27/01 (400 mg)

CCR SEP/01. #102 in Zero Club

PCRU 5/02 at RVH

2.8 log reduction Sep/05

3.0 log reduction Jan/06

e-mail: zmiller@...

Tel: 613-726-1117

Fax: 309-296-0807

Cell: 613-202-0204

ID: zaviem

[ ] New to Group

Hello, I am new to this group and had a couple of questions. My husband was

just diagnosed with CML 2 weeks ago. I have been reading so much

information, I can't keep it all straight. He is currectly taking Hydrea

(sp?) to lower his white blood count to a somewhat normal level so that he

is able to start Gleevac. My question is what can we expect as far as side

effects from this medication? His oncologist makes it seem like no big deal

and that life will be normal. After reading some posts, I am not so sure.

I just want to be prepared for whatever the future holds for us. Right now

he works full time in a pretty demanding insurance sales job, while I stay

home and take care of the family. I am wondering if he might not be able to

maintain that and I may need to go back to work. Which I will do in a

heartbeat if that would help. I just don't want him to worry about us on

top of his new health issues.

If anyone can give me some advice, I sure would appreciate it. Thank you

all so much for just listening.

Laurie

Wife of Robb, dx 12/14/06

[Guest guest]

Chromium

A friend is one who walks in when the rest of the world and all others walk outBLESSINGS

[Guest guest]

Welcome Kim,

As we say - sorry you have CML, but we are happy to

have you on the team. Lots of good people, advice

and vibrations here. There are a lot of other sites

too!

One I like is:

http://www.newcmldrug.com/diary_interface/Results/Diary.asp

All the best,

Chris

--- Kim Young <kdyoung3@...> wrote:

> I am new to this group. I was diagnosed with CML in

> June 01 - on INF from Aug 01 to May 06 - then on to

> 400mg Gleevec in July 06 and still on it. I am 47

> years old - have 2 18 year olds and a 21 year old -

> 3 dogs - a husband - a full time job. I see Dr.

> Lipton at PMH in Toronto although I live in

> Brampton. Gleevec has a few side effects for me -

> water retention is a big one. Does anyone belong to

> a CML support group of any kind? What kind of side

> effects do people have on Gleevec? My husband found

> this group for me so I am relatively new to his type

> of thing. I would be happy to hear from anyone.

>

> /Kim

>

>

> ---------------------------------

> All new -

> ---------------------------------

> Get a sneak peak at messages with a handy reading

> pane.

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Hi Kim,

Welcome to the group. It sounds like you must have done quite well

on Interferon seeing as you stayed on it for so long.

We have a few members who see Dr. Lipton at PMH, hopefully some will

write in, but we can all sympathize with the side effects you have.

I think Lynn is the Edema Queen around here so she will certainly

understand your issues with water retention. Others experience a

wide gamut of side effects but the majority of us are able to

function in spite of them. Some of the members are even lucky enough

to not have any side effects at all, so I guess it's a bit of a crap

shoot which one's you'll get, if any.

Don't hesitate to ask questions. We're all in this together.

Take care,

Tracey

dx Jan 2002

>

> I am new to this group. I was diagnosed with CML in June 01 - on

INF from Aug 01 to May 06 - then on to 400mg Gleevec in July 06 and

still on it. I am 47 years old - have 2 18 year olds and a 21 year

old - 3 dogs - a husband - a full time job. I see Dr. Lipton at PMH

in Toronto although I live in Brampton. Gleevec has a few side

effects for me - water retention is a big one. Does anyone belong to

a CML support group of any kind? What kind of side effects do people

have on Gleevec? My husband found this group for me so I am

relatively new to his type of thing. I would be happy to hear from

anyone.

>

> /Kim

>

>

> ---------------------------------

> All new -

> ---------------------------------

> Get a sneak peak at messages with a handy reading pane.

>

>

[Guest guest]

Hi Kim,

That is funny that Tracey is calling me the " Edema Queen! " .. lol

Although my labs and PCR's are always great, my one big side effect

is edema and fatigue... but it's weird. I don't get it in my hands

or feet. I only get it on my legs, arms, torso and face. My wedding

ring is never tight. I cannot explain it.

Let's hope somebody can de-throne me soon, although I wouldn't wish

this on anyone! I just saw my HEM/ONC and he's increasing my dose

of Lasix to 80 mg. Taking potassium too. So far, it's working and

I'm getting some relief. Even though my labs are good, and kidneys

are functioning well, (on paper),, he's going to send me to a Kidney

specialist if I can't get this under control. Always something!

Glad you joined!

Lynn (Snickersunny)

400 mg Gleevec

> >

> > I am new to this group. I was diagnosed with CML in June 01 -

on

> INF from Aug 01 to May 06 - then on to 400mg Gleevec in July 06

and

> still on it. I am 47 years old - have 2 18 year olds and a 21

year

> old - 3 dogs - a husband - a full time job. I see Dr. Lipton at

PMH

> in Toronto although I live in Brampton. Gleevec has a few side

> effects for me - water retention is a big one. Does anyone belong

to

> a CML support group of any kind? What kind of side effects do

people

> have on Gleevec? My husband found this group for me so I am

> relatively new to his type of thing. I would be happy to hear

from

> anyone.

> >

> > /Kim

> >

> >

> > ---------------------------------

> > All new -

> > ---------------------------------

> > Get a sneak peak at messages with a handy reading pane.

> >

> >

[Guest guest]

Lynn, I hope you get de-throned from your title as soon as possible.

If I could, I'd knock the crown off of you and throw it away to never

be had again

Tracey

> > >

> > > I am new to this group. I was diagnosed with CML in June 01 -

> on

> > INF from Aug 01 to May 06 - then on to 400mg Gleevec in July 06

> and

> > still on it. I am 47 years old - have 2 18 year olds and a 21

> year

> > old - 3 dogs - a husband - a full time job. I see Dr. Lipton at

> PMH

> > in Toronto although I live in Brampton. Gleevec has a few side

> > effects for me - water retention is a big one. Does anyone

belong

> to

> > a CML support group of any kind? What kind of side effects do

> people

> > have on Gleevec? My husband found this group for me so I am

> > relatively new to his type of thing. I would be happy to hear

> from

> > anyone.

> > >

> > > /Kim

> > >

> > >

> > > ---------------------------------

> > > All new -

> > > ---------------------------------

> > > Get a sneak peak at messages with a handy reading pane.

> > >

> > >

[Guest guest]

Hi Kim,

Welcome to the group. I also see Dr. Lipton at PMH. I was dx in early

2002 so I missed the IFN. Actually I was on it for 18 days before I

asked to be sent down to PMH. If I had stayed with my local

oncologist I would have been dead by now. I started on 400 mg of

gleevec in June 02 and am presently on 600 mg which is about all I

feel I can tolerate. Everyone has different side effects. Mine is

mainly digestive problems and occasional fatigue. I don't get edema

and eat as much as I can to keep my weight stable.

The Toronto area group has occasional get togethers. I live in

Markham myself. If you ever want to chat or get more info on any of

the groups meetings you can email me offline.

Take Care,

Wayne

>

> I am new to this group. I was diagnosed with CML in June 01 - on

INF from Aug 01 to May 06 - then on to 400mg Gleevec in July 06 and

still on it. I am 47 years old - have 2 18 year olds and a 21 year

old - 3 dogs - a husband - a full time job. I see Dr. Lipton at PMH

in Toronto although I live in Brampton. Gleevec has a few side

effects for me - water retention is a big one. Does anyone belong to

a CML support group of any kind? What kind of side effects do people

have on Gleevec? My husband found this group for me so I am

relatively new to his type of thing. I would be happy to hear from

anyone.

>

> /Kim

>

>

> ---------------------------------

> All new -

> ---------------------------------

> Get a sneak peak at messages with a handy reading pane.

>

>

[Guest guest]

Good that surgery is not an option (unless ABSOLUTELY necessary). Isn't Alli

that diet pill that gives a warning to carry an extra change of clothing because

it makes you sh-- you pants? I personally am against any form of diet

pills/drugs, etc. Portion control and exercise are a much healthier option.

You need good fats (olive oil, coconut oil, avocadoes, nuts) in your diet. Meat

and eggs can pose problems for some people with gallbladder problems, me

included.

Amber

Just returned from ER where ultra sound confirmed gall stones.

I have no health insurance, so surgery is not an option.

I have been eating low fat diets and taking Alli OTC pills and it

seems to have helped.

This has been going on for about 3 years now.

ALSO, has anyone had experience with the ALLI ( orlistadt) pills

helping or hurting?

Lysa

.

[Guest guest]

Alli prevents your body from absorbing half the fat you eat.

You eat too much fat and you get the sh & *$ts.

They recommend no more than 16grams per meal, which seems good.

The last 2 gall stone attacks I had were following meals that I

forgot to

take my pill with, so Now I am afraid to go off of them. ( ALso I lost

15 lbs so , I kind of like that!)

They are USDA approved and I do not experience the side effects

anymore anyway.

I raise chickens so not eating eggs and meat is not an option. I do

not fry and

poach or scramble the eggs in Pam spray and limit eggs to not more

than 2 a day.

I have stayed away from good fats as I am counting grams and hard to

fit peanuts into a

healthy low fat snack without calling it a meal, but I will try and see.

Thank you and please continue to recommend foods and especially

strategies to reduce

pain during an attack!

Lysa

On Mar 7, 2008, at 9:45 AM, Amber wrote:

> Good that surgery is not an option (unless ABSOLUTELY necessary).

> Isn't Alli that diet pill that gives a warning to carry an extra

> change of clothing because it makes you sh-- you pants? I personally

> am against any form of diet pills/drugs, etc. Portion control and

> exercise are a much healthier option. You need good fats (olive oil,

> coconut oil, avocadoes, nuts) in your diet. Meat and eggs can pose

> problems for some people with gallbladder problems, me included.

>

> Amber

>

> Just returned from ER where ultra sound confirmed gall stones.

> I have no health insurance, so surgery is not an option.

>

> I have been eating low fat diets and taking Alli OTC pills and it

> seems to have helped.

> This has been going on for about 3 years now.

>

> ALSO, has anyone had experience with the ALLI ( orlistadt) pills

> helping or hurting?

>

> Lysa

>

> .

>

>

>

[Guest guest]

have you done a cleanse? If not, I would.

----- Original Message ----

From: Lysa Grant <lysa@...>

gallstones

Sent: Friday, March 7, 2008 7:37:23 AM

Subject: Re: Re: new to group

Alli prevents your body from absorbing half the fat you eat.

You eat too much fat and you get the sh & *$ts.

They recommend no more than 16grams per meal, which seems good.

The last 2 gall stone attacks I had were following meals that I

forgot to

take my pill with, so Now I am afraid to go off of them. ( ALso I lost

15 lbs so , I kind of like that!)

They are USDA approved and I do not experience the side effects

anymore anyway.

I raise chickens so not eating eggs and meat is not an option. I do

not fry and

poach or scramble the eggs in Pam spray and limit eggs to not more

than 2 a day.

I have stayed away from good fats as I am counting grams and hard to

fit peanuts into a

healthy low fat snack without calling it a meal, but I will try and see.

Thank you and please continue to recommend foods and especially

strategies to reduce

pain during an attack!

Lysa

On Mar 7, 2008, at 9:45 AM, Amber wrote:

> Good that surgery is not an option (unless ABSOLUTELY necessary).

> Isn't Alli that diet pill that gives a warning to carry an extra

> change of clothing because it makes you sh-- you pants? I personally

> am against any form of diet pills/drugs, etc. Portion control and

> exercise are a much healthier option. You need good fats (olive oil,

> coconut oil, avocadoes, nuts) in your diet. Meat and eggs can pose

> problems for some people with gallbladder problems, me included.

>

> Amber

>

> Just returned from ER where ultra sound confirmed gall stones.

> I have no health insurance, so surgery is not an option.

>

> I have been eating low fat diets and taking Alli OTC pills and it

> seems to have helped.

> This has been going on for about 3 years now.

>

> ALSO, has anyone had experience with the ALLI ( orlistadt) pills

> helping or hurting?

>

> Lysa

>

> .

>

>

>

[Guest guest]

Peanuts are not nuts. They are a legume. Good nuts are walnuts, almonds,

pecans, etc. Chicken is not red meat, so it's okay to eat chicken. Eggs -

depends on whether they bother you or not. I can't tolerate hardboiled eggs any

more, however, they never bother me in baked custard. Yum.

Amber

I have stayed away from good fats as I am counting grams and hard to

fit peanuts into a

healthy low fat snack without calling it a meal, but I will try and see.

Lysa

.

[Guest guest]

You have a LOT of reading to do, but the good thing is that you found

this group, so you are already ahead of the game! Also check out

www.gallbladderattack.com . I found a wealth of info there. Problems

with the liver don't necessarily show up on blood tests. I don't know

what to tell you about the Alli, but it would probably do you well to

wean from it and do cleanses, eat well, and eat healthy liver/gall

bladder foods exclusively and then add foods back.

Also look into proper food combining. I have discovered that my

attacks, and now any indigestion I get, come from eating the wrong

foods together. In particular, I cannot eat meat or eggs with any kind

of bread or grain. I eat eggs all the time with no problem, but if I

add in bread, I'm " toast. " LOL

You will get lots of good advice from this group, so I'll stop here.

Oh- if you follow the diet you need for your liver/gall bladder, you

will lose weight. I lost 15 lbs and I did not have it to lose. I was

eating a LOT of food, too, just not the junk.

Evie

> MY question is Why the liver diet? I do not have a problem with my

> liver except for low levels of Choline in blood tests and other

things

> like that? Do all gall stone patients need a special liver diet?

[Guest guest]

Hi ,

Nice to meet you! Sorry to hear of the bullying of your son. in regards to bullying, there was a guest speaker last month who spoke at our local ASGC meeting. The guest speaker (I can't remember his name or name of his organization, but he runs a good program on bullying, I'll try to get contact info tonight at the meeting if you'd like. (The ASGC has a meeting the first Tuesday of each month at 6:30pm-9pm.)

Glad you're daughter is doing well in school.

Well, I hope all is well for now.

take care,

n

In a message dated 9/2/08 5:14:36 PM Eastern Daylight Time, catlavern@... writes:

Hi to everyone.

my name is cathy we live in lorain county (wellington). I have two kids my son is 16 dx are

AS, ocd , anxiety,washes hands ,and he rarely leaves the house all friends are online.

My daughter is 10 dx AS/ADHD she also has some anxiety issues.She goes to public school,so far so good.

but we are haveing alot of bulling probelms after school. My son does ecot e-school its been great.

Thanks

[Guest guest]

Welcome to the group I hope you find what you are looking for I am sorry about the problems you are having everyone here is very supportive even if you just want to vent. Hope You Are having a good weekJo Anne

From: Cat Lavern <catlavern@...>Subject: [ ] new to group Date: Monday, September 1, 2008, 8:02 AM

Hi to everyone.

my name is cathy we live in lorain county (wellington) . I have two kids my son is 16 dx are

AS, ocd , anxiety,washes hands ,and he rarely leaves the house all friends are online.

My daughter is 10 dx AS/ADHD she also has some anxiety issues.She goes to public school,so far so good.

but we are haveing alot of bulling probelms after school. My son does ecot e-school its been great.

Thanks

[Guest guest]

Hi, --

To add to what n has said, have you spoken to the school

principal about the bullying problems? If not, I would. You could

just call the principal's office and make an appointment to come in

and talk about it. Ohio is one of the states that has an anti-

bullying LAW. If the school is aware of a problem (which it would be

after meeting with the principal about it), then they are obligated

by law to intervene. I wouldn't tell the principal they are

obligated by law -- that usually freaks them out. However, there is

a great website out there at which you can get some information about

bullying, and I think they have a link to the text of Ohio's law. I

believe the website is www.bullypolice.org . It is run by a very

nice lady whose son had been bullied. There is some great info on

that site that might help you.

Bullying is a very serious problem. I'm sorry your daughter has to

go through this, and I hope some relief comes for her soon.

I understand about the anxiety issues...those are tough. It comes

part and parcel with Asperger's. Are they seeing counselors? There

are some great programs at KidsLink in Twinsburg (I know that's a

ways away for you, but this place might be worth it, and many

activities are on the weekend) for AS kids and teens. Their site is:

http://www.kidslinkohio.com/index.shtml.

Best of luck to you.

--Suzanne

[Guest guest]

A lot of the early stuff subsides in time. The rest you learn to live with --

happily, believe it or not, especially with the knowledge and support of this

wonderful group. They've sure helped me with the occasional blues over the past

few weird years.

in S.F.

From: jclmal1998@...

Date: Tue, 7 Oct 2008 01:25:50 +0000

Subject: [ ] new to group

I was dx with cml on 3/13/08 I am 37 and have been on gleevec

400

mg since. It is nice to share thoughts with others who are in same

boat. I work o/s all day and the tired feeling is driving me nuts.

Recently started having stomach concerns. Any advice , encouragement

be great.

_________________________________________________________________

Get more out of the Web. Learn 10 hidden secrets of Windows Live.

http://windowslive.com/connect/post/jamiethomson.spaces.live.com-Blog-cns!550F68\

1DAD532637!5295.entry?ocid=TXT_TAGLM_WL_domore_092008

[Guest guest]

Hi!

I have tummy concerns as well--as you so nicely put it! I use Imodium

tto help with diarrhea and Gas-X for cramping and gas--and Prevacid (a

pprescription)to help with heartburn type feeling I get right after

taking Gleevec. It seems like all we do some days is take medications

for our symptoms :-} I have diabetes as well, so there are meds for

that, and hypertension, and hypertriglyceridemia, hypercholesterolemia,

and on and on and on...I feel I singlehandedly support most of the drug

companies!

Best wishes, hope this helps.

Vicki

>

> I was dx with cml on 3/13/08 I am 37 and have been on gleevec 400

> mg since. It is nice to share thoughts with others who are in same

> boat. I work o/s all day and the tired feeling is driving me nuts.

> Recently started having stomach concerns. Any advice , encouragement

> be great.

>

[Guest guest]

Hi Kathy,

Welcome to the group! I'm hoping you'll find the support and resources you need and let me know if there's anything specific I can help you with.

btw: Would you like to bring your family to our Holiday Party? Did you get the invitation?

Yours, n

In a message dated 12/8/08 9:31:29 AM Eastern Standard Time, kathy@... writes:

HI, thanks for the approval. Looking forward to communicating with other autism parents in the area.

[Guest guest]

Thanks for the welcome; we can't make it to the holiday party, I have to work....

but look forward to participating in the group.

25kids.comMike and Kathy Wood, owners160 North Main St.West Salem, OH 44287419-853-7002www.25kids.com

[Guest guest]

google Hulda for GB & Liver flush- what are your symptoms?

On Feb 6, 2009, at 3:31 PM, savvysavvy22 wrote:

> I am new to this group. Reading lots of messages with little

> information.

> Is there some message which gives the protocol for a liver flush? Also

> some message which describes the dissolution of the stones? Who is the

> moderator for this group? Could you post this information somewhere

> where new members could go directly to it?

> Thanks very much. Savvy

>

>

>

[Guest guest]

Looking for treatment for Primary Sclerosing Cholangitis. Medical field doesn't

offer anything much, maybe stage II. 32 yr old male. The Dr can't tell us what

damage has been done, unless they do a liver biospy, which they say is too

dangerous, so it like ok, how do we know what to pursue if it is only stage II,

or stageI, or what, very limited info from them on treatment.

Thanks

Tom

> I am new to this group. Reading lots of messages with little

> information.

> Is there some message which gives the protocol for a liver flush? Also

> some message which describes the dissolution of the stones? Who is the

> moderator for this group? Could you post this information somewhere

> where new members could go directly to it?

> Thanks very much. Savvy

>

>

>

[Guest guest]

--- In gallstones , " savvysavvy22 " <savvysavvy22@...>

wrote:

>

> I am new to this group. Reading lots of messages with little

> information.

> Is there some message which gives the protocol for a liver flush? Also

> some message which describes the dissolution of the stones? Who is the

> moderator for this group? Could you post this information somewhere

> where new members could go directly to it?

> Thanks very much. Savvy

>

Hi Savvy,

Welcome to the group.

Besides reading the archived messages, it's also a really good idea to

look through the group's files and links sections. There you'll find

a lot of good information and loads of resources where you can learn more.

In order to do that, go to the list homepage here:

gallstones/

Then click on the word " Files " near the upper left hand corner:

gallstones/files/

Then click on " Links " :

gallstones/links

If you go to the Links section and click the first link, " cleanses " ,

you'll find information on a number of different cleanses and liver

flushing protocols, including Hulda 's liver flush, which is one

of the most commonly recommended protocols, and one many people on

this list have used successfully:

http://www.curezone.com/cleanse/liver/

There's also a really helpful search function provided by groups

that you can use to type in key words to search the archived messages

for whatever particular subjects and/or threads may interest you.

To do this, click on " Messages " (near Files and Links on the homepage)

and then click " Advanced " at the top middle of the page to open the

message search feature. Then type your chosen key words into either

the subject or message body areas, and the program will display all

archived messages containing those key words.

Hope this helps.

elan