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You are doing the right thing. I would definitely find another doctor.

----- Original Message -----

From: grneyyedlady <grneyyedlady@...>

xolair users < >

Sent: Mon, 28 Feb 2011 22:31:43 -0000 (UTC)

Subject: [ ] having a rant

I need some feedback here...especially from any nurses or RT's out there.

I was at my doc's office and to be honest with you I really feel as if I was

treated like a total moron by his " administrative assistant " . (This is not the

first, nor the last doctor's office who has treated me for Asthma & Allergies.)

I have had asthma for almost 35 years now. I've used a rescue inhaler ever

since. Started taking Xolair in 2005 and I've been a Xolair Patient Speaker

since 2007. Lately I've had a hell of a time trying to get my shots, because th

doc only has limited hours, only open two days per week, and his office has been

closed A LOT due to the crazy weather we've had here in the North East. I am

literally a month behind in my doses!

Since going on Xolair I have been lucky enough to get off the oral evil candy,

as well as everything else used to control my Asthma. Well except for the Advair

150/50,which I'm still on, too. I do have Xoponex and Albuterol solutions for

my nebulizer, but I use that as a last resort. I use Pro Air HFA as a rescue

inhaler, as the Proventil HFA has something in the propellant that I am

" hypersensitive " towards. I got a lecture from the " admin. assistant " when I

asked her if she could send in a refil request to my mail order pharmacy for the

Pro Air. She told me that she would have to do a " daw " script. I was like

" uh..NO!,because I CAN NOT use the Provenil.. " Well needless to say she didn't

let me finish and proceeded to give me a 10 minute lecture on how she'd have to

spend more time trying to get the name brand, because I didn't want the " daw "

script. I was like really! So I then said to her that she needed to make sure

that she put in a request for the correct number of inhalers as 1 inhaler IS

NOT a full months supply for me, as it comes up at least 46 inhalations short!

My script is written 2 inhalations every 4 to 6 hours as needed and as per

" Athletic Induced Asthma " recommendations ( 2 puffs done in 10 min intervals 30

min before exercising) from the 200 meter dose inhaler. ( which is the standard

and FDA approved dosage for all Albuterol based HFA inhalers.)

I have also been using a spacer for the last 25 odd years. I thought I knew

the right way to use my meds, but I was pretty much told, in front of that same

waiting room full of other patients that I don't. Guess I've been doing it all

wrong the last 34 years.

Yep...totally unprofessional, to say the least. AND I'm shopping around for a

new AAI Doc as we speak!!!!

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@ our office we have 3 Xolair days. We offer every Wed from 9:30 -6:30pm every

Sat from 8:00-11:30am and every other Thursday from 10:00-4:30pm. We also had

every other Monday. We did have to stop our Xolair Monday clinics due to the

lack of patients. Keep in mind we are in Texas, and do not have the crazy temp

that will interfere with our Xolair clinics. At our office we treat everyone

like family. and I work really hard making every patient feel at ease. We

are very close to our patients we have a special bond. I wish you the best of

luck in finding a new doctor or infusion center. If you ever move to San

Texas look us up, ill be more than happy to have you as one of our Xolair

patients

Sent via BlackBerry from T-Mobile

-----Original Message-----

From: Gwendolyn Rafter <gwen5052@...>

Sender:

Date: Mon, 28 Feb 2011 23:21:01

xolair users< >

Reply-

Subject: Re: [ ] having a rant

You are doing the right thing. I would definitely find another doctor.

----- Original Message -----

From: grneyyedlady <grneyyedlady@...>

xolair users < >

Sent: Mon, 28 Feb 2011 22:31:43 -0000 (UTC)

Subject: [ ] having a rant

I need some feedback here...especially from any nurses or RT's out there.

I was at my doc's office and to be honest with you I really feel as if I was

treated like a total moron by his " administrative assistant " . (This is not the

first, nor the last doctor's office who has treated me for Asthma & Allergies.)

I have had asthma for almost 35 years now. I've used a rescue inhaler ever

since. Started taking Xolair in 2005 and I've been a Xolair Patient Speaker

since 2007. Lately I've had a hell of a time trying to get my shots, because th

doc only has limited hours, only open two days per week, and his office has been

closed A LOT due to the crazy weather we've had here in the North East. I am

literally a month behind in my doses!

Since going on Xolair I have been lucky enough to get off the oral evil candy,

as well as everything else used to control my Asthma. Well except for the Advair

150/50,which I'm still on, too. I do have Xoponex and Albuterol solutions for

my nebulizer, but I use that as a last resort. I use Pro Air HFA as a rescue

inhaler, as the Proventil HFA has something in the propellant that I am

" hypersensitive " towards. I got a lecture from the " admin. assistant " when I

asked her if she could send in a refil request to my mail order pharmacy for the

Pro Air. She told me that she would have to do a " daw " script. I was like

" uh..NO!,because I CAN NOT use the Provenil.. " Well needless to say she didn't

let me finish and proceeded to give me a 10 minute lecture on how she'd have to

spend more time trying to get the name brand, because I didn't want the " daw "

script. I was like really! So I then said to her that she needed to make sure

that she put in a request for the correct number of inhalers as 1 inhaler IS

NOT a full months supply for me, as it comes up at least 46 inhalations short!

My script is written 2 inhalations every 4 to 6 hours as needed and as per

" Athletic Induced Asthma " recommendations ( 2 puffs done in 10 min intervals 30

min before exercising) from the 200 meter dose inhaler. ( which is the standard

and FDA approved dosage for all Albuterol based HFA inhalers.)

I have also been using a spacer for the last 25 odd years. I thought I knew

the right way to use my meds, but I was pretty much told, in front of that same

waiting room full of other patients that I don't. Guess I've been doing it all

wrong the last 34 years.

Yep...totally unprofessional, to say the least. AND I'm shopping around for a

new AAI Doc as we speak!!!!

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And I can vouch for Joanna and for .  I never mind going in for my shot

and I am always treated with great respect from all of the people in that

clinic.  When I have my yearly xolair checkup with the Doctor, he treats me

with respect as well.  They are very sensitive to what my particular needs are

and listen to what I say about how I feel and the meds I am taking...I have

other issues for which I take meds so it is very important that they know about

those meds as well.  And I would add to Joanna's invitation...if you should

ever move to SA be sure to look up their clinic. 

 

Love you Joanna and .......

From: joannnana@... <joannnana@...>

Subject: Re: [ ] having a rant

Date: Monday, February 28, 2011, 7:26 PM

 

@ our office we have 3 Xolair days. We offer every Wed from 9:30 -6:30pm every

Sat from 8:00-11:30am and every other Thursday from 10:00-4:30pm. We also had

every other Monday. We did have to stop our Xolair Monday clinics due to the

lack of patients. Keep in mind we are in Texas, and do not have the crazy temp

that will interfere with our Xolair clinics. At our office we treat everyone

like family. and I work really hard making every patient feel at ease. We

are very close to our patients we have a special bond. I wish you the best of

luck in finding a new doctor or infusion center. If you ever move to San

Texas look us up, ill be more than happy to have you as one of our Xolair

patients

Sent via BlackBerry from T-Mobile

-----Original Message-----

From: Gwendolyn Rafter <gwen5052@...>

Sender:

Date: Mon, 28 Feb 2011 23:21:01

xolair users< >

Reply-

Subject: Re: [ ] having a rant

You are doing the right thing. I would definitely find another doctor.

----- Original Message -----

From: grneyyedlady <grneyyedlady@...>

xolair users < >

Sent: Mon, 28 Feb 2011 22:31:43 -0000 (UTC)

Subject: [ ] having a rant

I need some feedback here...especially from any nurses or RT's out there.

I was at my doc's office and to be honest with you I really feel as if I was

treated like a total moron by his " administrative assistant " . (This is not the

first, nor the last doctor's office who has treated me for Asthma & Allergies.)

I have had asthma for almost 35 years now. I've used a rescue inhaler ever

since. Started taking Xolair in 2005 and I've been a Xolair Patient Speaker

since 2007. Lately I've had a hell of a time trying to get my shots, because th

doc only has limited hours, only open two days per week, and his office has been

closed A LOT due to the crazy weather we've had here in the North East. I am

literally a month behind in my doses!

Since going on Xolair I have been lucky enough to get off the oral evil candy,

as well as everything else used to control my Asthma. Well except for the Advair

150/50,which I'm still on, too. I do have Xoponex and Albuterol solutions for my

nebulizer, but I use that as a last resort. I use Pro Air HFA as a rescue

inhaler, as the Proventil HFA has something in the propellant that I am

" hypersensitive " towards. I got a lecture from the " admin. assistant " when I

asked her if she could send in a refil request to my mail order pharmacy for the

Pro Air. She told me that she would have to do a " daw " script. I was like

" uh..NO!,because I CAN NOT use the Provenil.. " Well needless to say she didn't

let me finish and proceeded to give me a 10 minute lecture on how she'd have to

spend more time trying to get the name brand, because I didn't want the " daw "

script. I was like really! So I then said to her that she needed to make sure

that she put in a request for the

correct number of inhalers as 1 inhaler IS NOT a full months supply for me, as

it comes up at least 46 inhalations short!

My script is written 2 inhalations every 4 to 6 hours as needed and as per

" Athletic Induced Asthma " recommendations ( 2 puffs done in 10 min intervals 30

min before exercising) from the 200 meter dose inhaler. ( which is the standard

and FDA approved dosage for all Albuterol based HFA inhalers.)

I have also been using a spacer for the last 25 odd years. I thought I knew the

right way to use my meds, but I was pretty much told, in front of that same

waiting room full of other patients that I don't. Guess I've been doing it all

wrong the last 34 years.

Yep...totally unprofessional, to say the least. AND I'm shopping around for a

new AAI Doc as we speak!!!!

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I do my shots at home but when I first started I got them at Southeastern Lung

and Sleep center. The staff was very professional and they worked dilligently to

meek the needs of every patient. I am so sorry that you had such a terrible

expeience at you specialst office. You should realy complain and not allow her

to continue to do that to patients. My doctos take you behind the door for any

type of discussion. I agree you should shop around for a new doctor but I would

tell your current doctor why you are doing it. She did not start this ugly

behavor with you and she will not stop with you.

----- Original Message -----

From: Adah Voigt <asthmatic50@...>

xolair users < >

Sent: Tue, 01 Mar 2011 03:39:22 -0000 (UTC)

Subject: Re: [ ] having a rant

And I can vouch for Joanna and for . I never mind going in for my shot

and I am always treated with great respect from all of the people in that

clinic. When I have my yearly xolair checkup with the Doctor, he treats me with

respect as well. They are very sensitive to what my particular needs are and

listen to what I say about how I feel and the meds I am taking...I have other

issues for which I take meds so it is very important that they know about those

meds as well. And I would add to Joanna's invitation...if you should ever move

to SA be sure to look up their clinic.

Love you Joanna and .......

From: joannnana@... <joannnana@...>

Subject: Re: [ ] having a rant

Date: Monday, February 28, 2011, 7:26 PM

@ our office we have 3 Xolair days. We offer every Wed from 9:30 -6:30pm every

Sat from 8:00-11:30am and every other Thursday from 10:00-4:30pm. We also had

every other Monday. We did have to stop our Xolair Monday clinics due to the

lack of patients. Keep in mind we are in Texas, and do not have the crazy temp

that will interfere with our Xolair clinics. At our office we treat everyone

like family. and I work really hard making every patient feel at ease. We

are very close to our patients we have a special bond. I wish you the best of

luck in finding a new doctor or infusion center. If you ever move to San

Texas look us up, ill be more than happy to have you as one of our Xolair

patients

Sent via BlackBerry from T-Mobile

-----Original Message-----

From: Gwendolyn Rafter <gwen5052@...>

Sender:

Date: Mon, 28 Feb 2011 23:21:01

xolair users< >

Reply-

Subject: Re: [ ] having a rant

You are doing the right thing. I would definitely find another doctor.

----- Original Message -----

From: grneyyedlady <grneyyedlady@...>

xolair users < >

Sent: Mon, 28 Feb 2011 22:31:43 -0000 (UTC)

Subject: [ ] having a rant

I need some feedback here...especially from any nurses or RT's out there.

I was at my doc's office and to be honest with you I really feel as if I was

treated like a total moron by his " administrative assistant " . (This is not the

first, nor the last doctor's office who has treated me for Asthma & Allergies.)

I have had asthma for almost 35 years now. I've used a rescue inhaler ever

since. Started taking Xolair in 2005 and I've been a Xolair Patient Speaker

since 2007. Lately I've had a hell of a time trying to get my shots, because th

doc only has limited hours, only open two days per week, and his office has been

closed A LOT due to the crazy weather we've had here in the North East. I am

literally a month behind in my doses!

Since going on Xolair I have been lucky enough to get off the oral evil candy,

as well as everything else used to control my Asthma. Well except for the Advair

150/50,which I'm still on, too. I do have Xoponex and Albuterol solutions for my

nebulizer, but I use that as a last resort. I use Pro Air HFA as a rescue

inhaler, as the Proventil HFA has something in the propellant that I am

" hypersensitive " towards. I got a lecture from the " admin. assistant " when I

asked her if she could send in a refil request to my mail order pharmacy for the

Pro Air. She told me that she would have to do a " daw " script. I was like

" uh..NO!,because I CAN NOT use the Provenil.. " Well needless to say she didn't

let me finish and proceeded to give me a 10 minute lecture on how she'd have to

spend more time trying to get the name brand, because I didn't want the " daw "

script. I was like really! So I then said to her that she needed to make sure

that she put in a request for the

correct number of inhalers as 1 inhaler IS NOT a full months supply for me, as

it comes up at least 46 inhalations short!

My script is written 2 inhalations every 4 to 6 hours as needed and as per

" Athletic Induced Asthma " recommendations ( 2 puffs done in 10 min intervals 30

min before exercising) from the 200 meter dose inhaler. ( which is the standard

and FDA approved dosage for all Albuterol based HFA inhalers.)

I have also been using a spacer for the last 25 odd years. I thought I knew the

right way to use my meds, but I was pretty much told, in front of that same

waiting room full of other patients that I don't. Guess I've been doing it all

wrong the last 34 years.

Yep...totally unprofessional, to say the least. AND I'm shopping around for a

new AAI Doc as we speak!!!!

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I once changed specialists based on bad experiences with front office staff. At

the practice I go to now, administrative personnel are not allowed to do

anything close to that.

I agree with posters here; you should let the doctor or the office manager know

about your experience and why you are shopping.

Addy

>

> I need some feedback here...especially from any nurses or RT's out there.

>

>

> I was at my doc's office and to be honest with you I really feel as if I was

treated like a total moron by his " administrative assistant " . (This is not the

first, nor the last doctor's office who has treated me for Asthma & Allergies.)

I have had asthma for almost 35 years now. I've used a rescue inhaler ever

since. Started taking Xolair in 2005 and I've been a Xolair Patient Speaker

since 2007. Lately I've had a hell of a time trying to get my shots, because th

doc only has limited hours, only open two days per week, and his office has been

closed A LOT due to the crazy weather we've had here in the North East. I am

literally a month behind in my doses!

>

>

> Since going on Xolair I have been lucky enough to get off the oral evil

candy, as well as everything else used to control my Asthma. Well except for the

Advair 150/50,which I'm still on, too. I do have Xoponex and Albuterol

solutions for my nebulizer, but I use that as a last resort. I use Pro Air HFA

as a rescue inhaler, as the Proventil HFA has something in the propellant that I

am " hypersensitive " towards. I got a lecture from the " admin. assistant " when I

asked her if she could send in a refil request to my mail order pharmacy for the

Pro Air. She told me that she would have to do a " daw " script. I was like

" uh..NO!,because I CAN NOT use the Provenil.. " Well needless to say she didn't

let me finish and proceeded to give me a 10 minute lecture on how she'd have to

spend more time trying to get the name brand, because I didn't want the " daw "

script. I was like really! So I then said to her that she needed to make sure

that she put in a request for the correct number of inhalers as 1 inhaler IS

NOT a full months supply for me, as it comes up at least 46 inhalations short!

>

> My script is written 2 inhalations every 4 to 6 hours as needed and as per

" Athletic Induced Asthma " recommendations ( 2 puffs done in 10 min intervals 30

min before exercising) from the 200 meter dose inhaler. ( which is the standard

and FDA approved dosage for all Albuterol based HFA inhalers.)

>

> I have also been using a spacer for the last 25 odd years. I thought I knew

the right way to use my meds, but I was pretty much told, in front of that same

waiting room full of other patients that I don't. Guess I've been doing it all

wrong the last 34 years.

>

> Yep...totally unprofessional, to say the least. AND I'm shopping around for

a new AAI Doc as we speak!!!!

>

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I am so blessed to have a wonderful allergist and staff. I have tons of other

health problems and see a lot of specialists and I can honestly say that this dr

and his office are the BEST!

He is the ONLY allergist in the area but they always know my name and make me

feel like one of their family.

I wrote a nice note to their home office (they are owned by a local medical

group) and told them how wonderful they are.

Doug

Group founder

-

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Our insurance company has told us to send a written complaint to them when there

are significant problems with a clinic. I've only done it once when I was

denied access to a specialist. I agree with other posters - perhaps the doc

him/herself doesn't know what's happening and needs informed. The first person

you have to look out for though is yourself.

>

> I need some feedback here...especially from any nurses or RT's out there.

>

>

> I was at my doc's office and to be honest with you I really feel as if I was

treated like a total moron by his " administrative assistant " . (This is not the

first, nor the last doctor's office who has treated me for Asthma & Allergies.)

I have had asthma for almost 35 years now. I've used a rescue inhaler ever

since. Started taking Xolair in 2005 and I've been a Xolair Patient Speaker

since 2007. Lately I've had a hell of a time trying to get my shots, because th

doc only has limited hours, only open two days per week, and his office has been

closed A LOT due to the crazy weather we've had here in the North East. I am

literally a month behind in my doses!

>

>

> Since going on Xolair I have been lucky enough to get off the oral evil

candy, as well as everything else used to control my Asthma. Well except for the

Advair 150/50,which I'm still on, too. I do have Xoponex and Albuterol

solutions for my nebulizer, but I use that as a last resort. I use Pro Air HFA

as a rescue inhaler, as the Proventil HFA has something in the propellant that I

am " hypersensitive " towards. I got a lecture from the " admin. assistant " when I

asked her if she could send in a refil request to my mail order pharmacy for the

Pro Air. She told me that she would have to do a " daw " script. I was like

" uh..NO!,because I CAN NOT use the Provenil.. " Well needless to say she didn't

let me finish and proceeded to give me a 10 minute lecture on how she'd have to

spend more time trying to get the name brand, because I didn't want the " daw "

script. I was like really! So I then said to her that she needed to make sure

that she put in a request for the correct number of inhalers as 1 inhaler IS

NOT a full months supply for me, as it comes up at least 46 inhalations short!

>

> My script is written 2 inhalations every 4 to 6 hours as needed and as per

" Athletic Induced Asthma " recommendations ( 2 puffs done in 10 min intervals 30

min before exercising) from the 200 meter dose inhaler. ( which is the standard

and FDA approved dosage for all Albuterol based HFA inhalers.)

>

> I have also been using a spacer for the last 25 odd years. I thought I knew

the right way to use my meds, but I was pretty much told, in front of that same

waiting room full of other patients that I don't. Guess I've been doing it all

wrong the last 34 years.

>

> Yep...totally unprofessional, to say the least. AND I'm shopping around for

a new AAI Doc as we speak!!!!

>

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Guest guest

Have you considered speaking with your doctor about the experiences you have

had? I ask because I very nearly ditched an allergist over similar issues

with his staff and a mistake that he or his transcriptionist made with a

letter that was sent to my son's pediatrician. (One word was incorrect,

changing the entire slant of that paragraph. It's a he said she said on the

assignment of fault.) It took some time to work through the issues, but I

now trust him to care for my entire family. In fact, the relationship that

I was able to build with him after that issue has made it difficult to find

a new allergist now that we have moved out of state. No one can meet the

standard he set! Perhaps a complaint from you would lead to real changes so

that you would not have to forge an entirely new relationship with a new

allergist?

On Mon, Feb 28, 2011 at 4:31 PM, grneyyedlady <grneyyedlady@...>wrote:

> I need some feedback here...especially from any nurses or RT's out there.

>

>

> I was at my doc's office and to be honest with you I really feel as if I

> was treated like a total moron by his " administrative assistant " . (This is

> not the first, nor the last doctor's office who has treated me for Asthma

> & Allergies.) I have had asthma for almost 35 years now. I've used a rescue

> inhaler ever since. Started taking Xolair in 2005 and I've been a Xolair

> Patient Speaker since 2007. Lately I've had a hell of a time trying to get

> my shots, because th doc only has limited hours, only open two days per

> week, and his office has been closed A LOT due to the crazy weather we've

> had here in the North East. I am literally a month behind in my doses!

>

>

> Since going on Xolair I have been lucky enough to get off the oral evil

> candy, as well as everything else used to control my Asthma. Well except for

> the Advair 150/50,which I'm still on, too. I do have Xoponex and Albuterol

> solutions for my nebulizer, but I use that as a last resort. I use Pro Air

> HFA as a rescue inhaler, as the Proventil HFA has something in the

> propellant that I am " hypersensitive " towards. I got a lecture from the

> " admin. assistant " when I asked her if she could send in a refil request to

> my mail order pharmacy for the Pro Air. She told me that she would have to

> do a " daw " script. I was like " uh..NO!,because I CAN NOT use the Provenil.. "

> Well needless to say she didn't let me finish and proceeded to give me a 10

> minute lecture on how she'd have to spend more time trying to get the name

> brand, because I didn't want the " daw " script. I was like really! So I

> then said to her that she needed to make sure that she put in a request for

> the correct number of inhalers as 1 inhaler IS NOT a full months supply

> for me, as it comes up at least 46 inhalations short!

>

> My script is written 2 inhalations every 4 to 6 hours as needed and as per

> " Athletic Induced Asthma " recommendations ( 2 puffs done in 10 min intervals

> 30 min before exercising) from the 200 meter dose inhaler. ( which is the

> standard and FDA approved dosage for all Albuterol based HFA inhalers.)

>

> I have also been using a spacer for the last 25 odd years. I thought I

> knew the right way to use my meds, but I was pretty much told, in front of

> that same waiting room full of other patients that I don't. Guess I've

> been doing it all wrong the last 34 years.

>

> Yep...totally unprofessional, to say the least. AND I'm shopping around

> for a new AAI Doc as we speak!!!!

>

>

>

> ------------------------------------

>

>

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