Question

[Guest guest]

Janet - 4 ibuprofin is well within what people with arthritis take. They make

800 mg ibuprofin pills available by prescription and this is roughly the

dosage my folks take during their inflammations. I take that much myself if

it's a really bad. That much is very hard on your stomach though, so I would

strongly suggest she take it not only with food, but probably with a stomach

protectant as well. Unfortunately the only name that comes to mind is

Tagamet, and I'm not positive that's its roll in life.

What I fail to see is how this will eliminate the infection. I guess being

viral they're assuming her body will win the battle without one of the

high-falutin anti-viral drugs.

Best - Jan K

Bhrent Waddell wrote:

> From: " Bhrent Waddell " <bwaddell@...>

>

> Our 21 yr. old daughter has a viral infection in the muscles of her chest

> (yes, it hurts!). She has been X-rayed and they even did an EKG before

> coming up with the diagnosis. They have told her to take 4 Ibuprophen

> (sp???) three times per day for two weeks....I have never taken anything

> but NSAIDS, so I don't know if this is a bit much....they did tell her to

> take it with food. Comments?

> Thanks,

> janet in tulsa

>

> ------------------------------------------------------------------------

> We have a new web site!

>

> Onelist: The leading provider of free email community services

[Guest guest]

Hi Sharon,

have the link here....before you go....would like to

invite you to join our list....(very new!!!!)...(enjoy your posts!)...hope to

see you again

<A HREF= " www.education.ucsb.edu/~doniel/autism.html " >koegels</A> and

'Autinform' is at

www.cix.co.uk/~eggjones/ or the hyperlinks

<A HREF= " http://www.cix.co.uk/~eggjones/ " >Autistic Information Matters</A>

(links page) or

<A

HREF= " autinform/info.html " >autinformegroups

</A> new list....see you...go well....Liz Lucy.

[Guest guest]

Web site for the Koegel's is www.education.ucsb.edu/~doniel/autism.html.

question

<< File: ATT00002.html >> Anyone out there have a we b page address for the

Koegel institute in santa Barbara ?

I tried searching for it on the internet but couldn't find anything.

Thanks

Sharon

[Guest guest]

The web site for the Koegel's is " www.education.ucsb.edu/~doniel/autism.html "

[Guest guest]

Well if it does, it ain't working for me.

However, I suspect it does, once it kills off the critters and puts you in

remission. Until that day, however, depending on the individual, you can

have erosions develop. I suspect that many of us with RA on AP, if we had

extensive x-rays done every 6 months or so, would see a continuing pattern

of developing erosions. The hope is to head that progression off at the

pass before it's too late. That's one reason I decided to try metho - to

slow up the progression to give the AP a chance to work. Not exactly a

risk-free proposition of course.

Mark

> From: glenda j Stangel <glendas41@...>

>

> Does AP halt joint destruction?

[Guest guest]

Mark and others, please be sure to monitor your proress on methotrexate. My

fingers visibly shortened about a year or two after I went on metho and

withinin 4 years I needed a hip and knee replacements. Perhaps there were

other factors involved in my case or perhaps I'm just different. I don't

want to frighten anyone, I just want to caution you not to rely blindly on

methotrexate (r any drugs for that matter) to prevent or slow damage, but to

be vigilant in monitoring your progress.

Re: rheumatic Question

>From: MHOLMES@... (HOLMES, MARK T.)

>

>Well if it does, it ain't working for me.

>

>However, I suspect it does, once it kills off the critters and puts you in

>remission. Until that day, however, depending on the individual, you can

>have erosions develop. I suspect that many of us with RA on AP, if we had

>extensive x-rays done every 6 months or so, would see a continuing pattern

>of developing erosions. The hope is to head that progression off at the

>pass before it's too late. That's one reason I decided to try metho - to

>slow up the progression to give the AP a chance to work. Not exactly a

>risk-free proposition of course.

[Guest guest]

Agreed. I think some have a disease that progresses rapidly, no matter what

they do. Not sure what anyone does about that.

Mark

Re: rheumatic Question

>

>

> >From: MHOLMES@... (HOLMES, MARK T.)

> >

> >Well if it does, it ain't working for me.

> >

> >However, I suspect it does, once it kills off the critters and puts you

in

> >remission. Until that day, however, depending on the individual, you can

> >have erosions develop. I suspect that many of us with RA on AP, if we

had

> >extensive x-rays done every 6 months or so, would see a continuing

pattern

> >of developing erosions. The hope is to head that progression off at the

> >pass before it's too late. That's one reason I decided to try metho - to

> >slow up the progression to give the AP a chance to work. Not exactly a

> >risk-free proposition of course.

>

>

[Guest guest]

Mark, when I went on methotrexate, I had been diagnosed for 13 years

(diagnosis 1977, but for years no one knew I had RA) and had probably had

signs for another ten years. The progression of my disease was not rapid up

to that point 9 years ago. Some changes were visible and a lot of damage

had probably been started, but I was still working and managing quite well.

Then, in 1990, I started metho. It seemed that the joint deterioration

speeded up: notceable shortening of my fingers sometime in 1991-2; unable

to return to work because of my knee in Setember 1992; the first symptom (I

had always been told, " At least your hip joints are good! " ) of a potential

problem in my hip, clicking in the joint in January 1993 which progressed in

8 months to being told I needed a new hip!!!!

The point is, my RA was not always aggressive, although looking back, my

rheumatologist says it always seemed to be " simmering " . I am not saying

metho does not work for some people--I don't know. I am not saying metho

speeded up the deterioration of my joints--I don't know. (But the timing of

metho and my rapid joint deterioration is interesting. Although, who knows,

perhaps my dose was not high enough when I began in 1990). I am not saying

not to try methotrexate. Believe me, I understand what it is like to stand

by and watch changes from RA and feel helpless. All I am saying is to

monitor your progress; be watchful for any changes and then act with your

doctor at the start of those changes. Don't blindly continue taking it,

assuming it might work someday or that you are protected from damage because

you're taking it. I took it for 7 years because that is what I was

prescribed and because in those days I was not proactive; I assumed the drug

would do what it was supposed to do. You can't assume anything wth

rheumatic diseases. Just be careful and watchful.

Whatever each of us decides to take, my only hope is that we will improve.

I am well aware that each of us is different, and what works for one may not

work for another. I am not against methotrexate, because as I said above, I

just don't know. But I feel it is important to be informed--even if that

information is anecdotal and personal as it is in my case-- and to be

vigilant.

Re: rheumatic Question

>From: MHOLMES@... (HOLMES, MARK T.)

>

>Agreed. I think some have a disease that progresses rapidly, no matter

what

>they do. Not sure what anyone does about that.

>

>Mark

[Guest guest]

Hi Mark and .

I am personally against Methotrexate. I have had RA for over 10 years and that

was the last class of drugs I tried that got me well enough to seek other

treatments for my RA. Even at low doses, I would never go back on metho and I

had a friend who lost a lung on metho. Most rhuemys recommend metho even with

other treatments, but the side effects are never really explained to most

patients, suppressing your immune system, so that you can get other

opportunistic diseases is the worst. Then there is folic acid deficiency and

liver and lung damage etc. You can always read the inserts that come with metho

with a magnifying glass. If the pharmacy does not give you the insert with the

drug ask for it and then you can decide for yourself. My vote for me is never.

Theresa B.

Alaska

RA for 10 years and AP for 13 months and definitely feel better than when I was

on metho.

Ken and wrote:

> From: " Ken and " <kglg@...>

>

> Mark, when I went on methotrexate, I had been diagnosed for 13 years

> (diagnosis 1977, but for years no one knew I had RA) and had probably had

> signs for another ten years. The progression of my disease was not rapid up

> to that point 9 years ago. Some changes were visible and a lot of damage

> had probably been started, but I was still working and managing quite well.

> Then, in 1990, I started metho. It seemed that the joint deterioration

> speeded up: notceable shortening of my fingers sometime in 1991-2; unable

> to return to work because of my knee in Setember 1992; the first symptom (I

> had always been told, " At least your hip joints are good! " ) of a potential

> problem in my hip, clicking in the joint in January 1993 which progressed in

> 8 months to being told I needed a new hip!!!!

>

> The point is, my RA was not always aggressive, although looking back, my

> rheumatologist says it always seemed to be " simmering " . I am not saying

> metho does not work for some people--I don't know. I am not saying metho

> speeded up the deterioration of my joints--I don't know. (But the timing of

> metho and my rapid joint deterioration is interesting. Although, who knows,

> perhaps my dose was not high enough when I began in 1990). I am not saying

> not to try methotrexate. Believe me, I understand what it is like to stand

> by and watch changes from RA and feel helpless. All I am saying is to

> monitor your progress; be watchful for any changes and then act with your

> doctor at the start of those changes. Don't blindly continue taking it,

> assuming it might work someday or that you are protected from damage because

> you're taking it. I took it for 7 years because that is what I was

> prescribed and because in those days I was not proactive; I assumed the drug

> would do what it was supposed to do. You can't assume anything wth

> rheumatic diseases. Just be careful and watchful.

>

> Whatever each of us decides to take, my only hope is that we will improve.

> I am well aware that each of us is different, and what works for one may not

> work for another. I am not against methotrexate, because as I said above, I

> just don't know. But I feel it is important to be informed--even if that

> information is anecdotal and personal as it is in my case-- and to be

> vigilant.

>

>

> Re: rheumatic Question

>

> >From: MHOLMES@... (HOLMES, MARK T.)

> >

> >Agreed. I think some have a disease that progresses rapidly, no matter

> what

> >they do. Not sure what anyone does about that.

> >

> >Mark

>

>

[Guest guest]

Gwen go to the group site below, type in the name and it should take you

to a page on it taken out of a medical book.

--

Signs:

http://members.xoom.com/sclark/

AP Support Group:

http://www.geocities.com/SoHo/Gallery/6412/

[Guest guest]

, I was prescribed it once, but never took it....on arriving at the

pharmacy, it dawned on me I had not double-checked with the doctor about

taking while breastfeeding... talked it over with the pharmacist, and

pack-rat that I am, I still have the package insert he gave me and the

printout of patient information. If you have questions that might be

answered from there, let me know what they are and I'll be glad to give you

the info. It says (summed up in my words) that Buspar mechanism of action

is not known, but it has a high affinity for serotonin receptors and

moderate affinity for dopamine receptors.

Sounds to me like a variation on an anti-depressant med. Liz G

[Guest guest]

EDTA has never been effective at removing mercury, but it does well for lead

& some other metals. Remember, there is not a one product does it all in

chelation. Some people have chelated IN ADDITION with EDTA, but the DSMA is

effective for lead and ALA for mercury & other metals.

Janice

> why is it that now it seems or on this list it seems that DMPS and the

other chelation products are now used instead of EDTA? Why does this form of

Chelation seem to work better than the older type.

>

[Guest guest]

A very smart answer to a question I had about magnesium deficiency in

autism.

Kathy

Re: question

>What clicks in my mind is the metabolic changes causing the tetany (or

>similar symptoms). Since it is a general feature of angleman syndrome, I

>suspect it's cause has been researched and perhaps is known to those who

>deal with it. The changes\metabolic dysfunctions that alter calcium level

>could then produce the typical symptoms of hypo- or hypercalcemia.

>confusion, spasms, being among them. Low magnesium levels is one known

cause

>of hypocalcemia. I get so angry at times looking into this stuff, as much

>of the literature still describes the difficulties of people with autism as

>be " social " and being connected to the outside world. If the child were

seen

>as having symptoms related to metabolism, for example, then a different

>picture emerges, and I think the word " retarded " would have to be thrown

>out.

>Zoe

>

[Guest guest]

My SED rate

> is 5 within the normal range. Which means I have no

> inflamation. However my fingers are swollen, they

> increase/decrease in the morning and evening. The dr.

> thinks it is water retention due to the damage from the

> raynauds.

Of course *your* doctor has seen *your* hands, knows what the swelling looks

like so this is most likely what it is in your case, but I do not think one

can, in general, assume that they have no inflammation just because sed rate

is normal. Mine is also in normal range now, and I still have definite

joint capsule inflammation in some joints which is not water retention.

Sed rate is not that specific and sensitive a test, from what I've read, and

the test can be affected by meds. I just point this out to suggest that you

not drop whatever therapies you are using for inflammation too quickly.

For the water retention, have you considered using some natural, gentle

diuretics, like foods that have diuretic properties in your diet? I don't

have time to look them up right now, but know I have posted some before if

you search the archives at rheumatic. Some from off the top of my head were

vegetables like asparagus, and fruits like grapes. Also try to avoid the

salt, of course, though it is hard to pass up those tasty things like

popcorn all the time. {{{{{{{{{{[Roni}}}}}}}} Liz G.

[Guest guest]

I also have swelling in my hands and my lower back and sometimes my stomach and even though the doctors themselves can see it mine always comes back that I do not have any inflammation. I do drink a lot of water since I went on AP I seldom ever drink anything else, but I had mine before all the water. I don't know what is causing it. One day I can easily slip my rings off and on and on other days there is no way they are coming off!! I normally keep my engagement and wedding ring on all of the time and I am very thankful that when they do x-rays now I can leave them on since most of the time it would be impossible to get them off. Sorry I could not be of more help but my doctor can't figure me out!!! At least he sees what is going on is very compassionate, I have been grateful for the doctors that I have gone too. I am going to change my internal med. doctor he was kinda umm.. rude when he found out that we did not have insurance so my husband and I both were very disappointed and he ran a costly test that did not need to be done again and did not explain to us what he was doing... I thought he was looking for something new.... but he was not and did not even request my medical records which would have told him that I had what he was looking for even if my telling him that I had it and by showing him my medication for it was not good enough... I have an appointment with "the nice" doctor on the third so I will ask him to recommend a doctor for me. He also wants me back on the antibiotics which surprised me a bit most doctors are not that egar but I think because they can not find anything that really helps me with the pain that since it did help until my stomach went wacko and I could not keep anything down and had to go off of it that he is wanting to get my stomach to where it can tolerate the Doxy again. The relief I got was not dramatic but is was relief and I will take what I can get!!!! I wonder if when I go back on it if I will get as sick this next time as I did the first time going on it.. I hope not but somehow hoping just doesn't make it so!! I have to say that it was worth it!!

Peace,

Sherry

Hello everyone:I just returned from the first rheumatologist visit since I started AP. Here is my question: My SED rate is 5 within the normal range. Which means I have no inflamation. However my fingers are swollen, they increase/decrease in the morning and evening. The dr. thinks it is water retention due to the damage from the raynauds. It makes sense, before I started the AP and knew something about the diet changes I had some popcorn and my hands doubled in size.Does anyone else have this problem with their hands? If you did/do have you been able to solve this problem? Thanks a bunch! This group has been so supportive and answers all of my questions.RoniTo unsubscribe, email: rheumatic-unsubscribeegroups

[Guest guest]

I appreciate your thoughts but I have kept the yeast problems at bay since

starting with the AP. I also take grape seed extract and eat yogurt which

works great.I can not have anything acidic because well it wont stay down, I

really miss eating oranges and drinking orange juice. I tried the grapefruit

seed but my stomach could not handle that either.My husband however uses it

whenever he has an infection and it clears it up for him in a couple of

days!! I have a stomach that does not work properly and there is nothing

that the doctors can find that caused this to happen nor do they know what

to do to fix the problem. I also have reflux which I have been told that if

I was to have sugery on it could shut everything down thus my stomach would

freeze and not work at all. I would then have to have a feeding tube this is

another reason I was not happy with the doctor when he ran the test he knew

at that time that I would not have the surgery anyway. This could happen in

the future anyway but then I still wont need the other surgery . The doctors

gave me a list of food when I got sick of what I could not eat and they too

thought that dairy products would cause problems for me but they are actally

very helpful though I do not have a large quantity of them. Ice cream can

calm my stomach at times when nothing else will work so yea I eat it when I

need too. My body kinda does things a little weird, I do have to stay away

from something's that I use to really like to eat but I am doing okay with

that. I also try to eat natural foods to help my stomach to work better I

use to take a medication but it made it a lot worse so I stopped taking that

too and have found that some simple foods are better for me and when I do

need some help I use an all natural supplement that takes care of the

problem. However recently things have gotten much worse and so I am having

these test run. I did refuse to have any more run for awhile but then things

got really bad and so I changed my mind. I did keep a food diary when I

started the AP and nothing seemed to triggar flare ups for me. The foods

that I avoid are because of my stomach. I do eat a lot of vegtables and some

night shades but they do not affect me.

I have a very positive out look on things so I am not stressed out about the

problems I figure why worry about something that you have no control over if

it happens it happens and I will deal with it then. The problems I am having

now are not related in any way to the arthritis problems that I have. Except

for having the Lupus rash which started a few months back and the GP that I

see is keeping an eye on things for me. He is a really good doctor and I

trust him.

peace,

Sherry

> Dearest Sherry,

> If you are not on the diet and a good probiotic you

> will build a lot of yeast in your body and it will become systemic, This

> makes everything reek havoc and fluid retention and, etc., and a lot of

joint

> and muscle pain. No wheat products, no milk products, no sugar, and stay

> away from night shade veggies. keep your body alkaline and not acidic

> also. Take a yeast cleanser from the health food store. Solaray has a

good

> one that is not real pricey. I suspect this is your problem. It will

shock

> you if you follow this. You will feel like your old self once you get the

> yeast under control. I wish you blessings and peace. Fondly,

Judy/Florida

> Systemic scleroderma, systemic lupus, RA, polymyositis, raynards.

> AP since Feb. 1999. Doing great!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

[Guest guest]

Thank you for the info, I found that I did also have to take doxy on a full stomach or at least had to have something on it before I took it. The problem is not the doxy it is my stomach and I have tried other antibiotics and have the same problems. I have only been able to keep a couple of the meds down if I take anything ontop of that I can not keep it down. Last night and the night before were really tough nights for me and I didn't take anything extra!!! I go to the doctor again on Tuesday, though no one really knows what to do about this. I talk to my husband last night about t going back on the doxy and seeing what happens but then like I said last night was a bad night. I just seem to be in another flare up with the new problems so I guess I will have to wait a bit because I do not want to start it and then have to quit right away.

Also I have a question about Predizone (sp?) my mother is on it and my sister who is a nurse says that even though my mother is dying that the medications and the amounts that she is on will most likely be the cause of her death. However she has to take them now in order to have any kind of a productive life. I don't know much about this drug and would appreciate any information anyone has on it.

Thanks you all and May you all have a wonderful New Year!!

Sherry

Unlike a post from someone a while ago, you really need to take doxy on a full stomach. You could also try tetraycline which is in the same family. I can tolerate tetra and not doxy. cooky Sherry wrote:

I also have swelling in my hands and my lower back and sometimes my stomach and even though the doctors themselves can see it mine always comes back that I do not have any inflammation. I do drink a lot of water since I went on AP I seldom ever drink anything else, but I had mine before all the water. I don't know what is causing it. One day I can easily slip my rings off and on and on other days there is no way they are coming off!! I normally keep my engagement and wedding ring on all of the time and I am very thankful that when they do x-rays now I can leave them on since most of the time it would be impossible to get them off. Sorry I could not be of more help but my doctor can't figure me out!!! At least he sees what is going on is very compassionate, I have been grateful for the doctors that I have gone too. I am going to change my internal med. doctor he was kinda umm.. rude when he found out that we did not have insurance so my husband and I both were very disappointed and he ran a costly test that did not need to be done again and did not explain to us what he was doing... I thought he was looking for something new.... but he was not and did not even request my medical records which would have told him that I had what he was looking for even if my telling him that I had it and by showing him my medication for it was not good enough... I have an appointment with "the nice" doctor on the third so I will ask him to recommend a doctor for me. He also wants me back on the antibiotics which surprised me a bit most doctors are not that egar but I think because they can not find anything that really helps me with the pain that since it did help until my stomach went wacko and I could not keep anything down and had to go off of it that he is wanting to get my stomach to where it can tolerate the Doxy again. The relief I got was not dramatic but is was relief and I will take what I can get!!!! I wonder if when I go back on it if I will get as sick this next time as I did the first time going on it.. I hope not but somehow hoping just doesn't make it so!! I have to say that it was worth it!!Peace,Sherry

Hello everyone: I just returned from the first rheumatologist visit since I started AP. Here is my question: My SED rate is 5 within the normal range. Which means I have no inflamation. However my fingers are swollen, they increase/decrease in the morning and evening. The dr. thinks it is water retention due to the damage from the raynauds. It makes sense, before I started the AP and knew something about the diet changes I had some popcorn and my hands doubled in size. Does anyone else have this problem with their hands? If you did/do have you been able to solve this problem? Thanks a bunch! This group has been so supportive and answers all of my questions. Roni To unsubscribe, email: rheumatic-unsubscribeegroups

To unsubscribe, email: rheumatic-unsubscribeegroups

[Guest guest]

Janene had bad stomach problems on doxy (and most antibiotics for that

matter) but she takes minocycline with no problems.

Sherry - what dose of prednisone is your mum taking?

Chris.

On Sun, 31 Dec 2000, Sherry wrote:

>

> Thank you for the info, I found that I did also have to take doxy on a full

stomach or at least had to have something on it before I took it. The problem is

not the doxy it is my stomach and I have tried other antibiotics and have the

same problems. I have only been able to keep a couple of the meds down if I take

anything ontop of that I can not keep it down. Last night and the night before

were really tough nights for me and I didn't take anything extra!!! I go to the

doctor again on Tuesday, though no one really knows what to do about this. I

talk to my husband last night about t going back on the doxy and seeing what

happens but then like I said last night was a bad night. I just seem to be in

another flare up with the new problems so I guess I will have to wait a bit

because I do not want to start it and then have to quit right away.

> Also I have a question about Predizone (sp?) my mother is on it and my

sister who is a nurse says that even though my mother is dying that the

medications and the amounts that she is on will most likely be the cause of her

death. However she has to take them now in order to have any kind of a

productive life. I don't know much about this drug and would appreciate any

information anyone has on it.

> Thanks you all and May you all have a wonderful New Year!!

> Sherry

>

[Guest guest]

Hi,

My son is not a patient of DR Amys, I believe though that she does

recommend it. My son was unble to take it. He is sensitive to beta-

carotene and to vitamin E, I tryed it once, his heart raced and he

had a terrible few days. We will not be using it. Leah

> Hi all,

>

> My son's doctor recommended coenzyme Q-10 100mg as part of

> the chelation supplements. It contains:

>

> Vitamin A 2334 IU 46%

> Vitamin E 100 IU 333%

> Coenzyme Q-10 100mg

> Beta-Carotene 1.4 mg

>

> We started it yesterday and since then he has been very irritable

> and extra hyper. Is this supplement part of Dr. Amy's protocol?

> We would like to stop it if it is not essential for chelation.

>

> Thanks,

> Raamsaai

[Guest guest]

Coenzyme Q-10 is not essential for chelation.

Andy

> Hi all,

>

> My son's doctor recommended coenzyme Q-10 100mg as part of

> the chelation supplements. It contains:

>

> Vitamin A 2334 IU 46%

> Vitamin E 100 IU 333%

> Coenzyme Q-10 100mg

> Beta-Carotene 1.4 mg

>

> We started it yesterday and since then he has been very irritable

> and extra hyper. Is this supplement part of Dr. Amy's protocol?

> We would like to stop it if it is not essential for chelation.

>

> Thanks,

> Raamsaai

[Guest guest]

Carolyn:

I think it is worth pursuing, if only for the peace of mind it would bring.

I suggest you speak with an ENT about the snoring and intermittent breathing

she is having. Tape the sound of her sleeping for about 30-60 minutes on a

cassette, and bring it to the appointment.

If the ENT is supportive, you may wish to schedule a sleep study. I like

the sleep lab at Newark Beth Israel - Dr. Nahmias is the pediatric sleep

specialist there, and he is very conscientious and reliable. He has offices

at NBI and in Millburn.

Any questions, don't hesitate to email.

Larry Laveman, MD

Consultant, CHERAB Fdn.

>Subject: swollen tonsils, difficulty breathing and speech

>

>

>If any of the doctors or therapists have information on this would

>appreciate

>it. My 3 year old, speech delayed daughter who also has low muscle tone,

>was

>gagging 2 days ago and intermittedly gasping for breath through her mouth

>as

>if something was stuck in her throat. I put my finger in her mouth to check

>things out and was shocked that her right side tonsil was huge and the

>opening for the throat was very small.

>

>The pediatrician didn't think anything of it and said not to do anything.

>He

>said that it could have been like this on and off all along.

>

>I reminded that since birth, her breathing at night is rough-she breathes

>often through her mouth and sometimes seems to stop for a second or 2 and

>then gasps in a big breath.

>

>Nightime is often also difficult because she wakes up with what to me seems

>like reflux but the doctor thought again nothing of it. She will often moan

>and then burp a smelly burp (smells like throw ups or something like that)

>and/or gas. She will feel better after that.

>

>If anyone can give me any feedback, I would so grateful.

>

>Thanks, Carolyn from Montville, NJ

>

[Guest guest]

> If you are taking 200mg minocin daily and you get put on an antibiotic for

an

> upper respiratory infection or something like Keflex, should you

discontinue

> the minocin while taking the Keflex and stay on both. Diane

Hi Diane, Some antibiotics like penicillin and it's derivatives do not work

as well if you are on tetracyclines. I checked on this combo with the drug

checker at www.drkoop.com and found no interactions listed. but ***you

should ask your doctor or pharmacist to be sure as I'm just a patient like

yourself and not a medical professional***. I've taken regular tetracycline

and keflex together and had no problem and the keflex worked well against a

stubborn sinus infection.

I find that drug checker very useful to check for potential interactions,

and also the drug database at www.medscape.com. But it is always a good

idea to ask your doc as well, as there are sometimes health factors that

would make them not want you on too much medication at once.

I found that when I was going through a series of recurring sinus infections

and flu last year, I had to sometimes stop the tetracycline for awhile when

on other antibiotics, as it was just too much medicine at once and made me

nauseated. But I would caution you against doing it too often or for too

long, as it set me back a lot...especially with the beating my immune system

was taking from the repeated flu and infections. I hope your problem is

over soon! Take care, Liz G.

[Guest guest]

Trish,

Are you saying you took 5year old Minocycline?

Tetracycline does deteriorate and becomes toxic. Some drugs last well

beyond the " use by " date, Tetracycline DOES NOT !!!

At 11:36 AM 4/11/01 , you wrote:

although he couldn't explain why I had taken it five years ago with no

reaction. Anyway, last Wednesday instead of taking my second dynacin, I

took 100 mg minocycline (lederle, which I hadn't taken before).

[Guest guest]

hi Everyone,

I just wanted to let everyone know that I am seeing

Dr. FURST in Seattle tomorrow afternoon! They called

me today, and had a cancellation. I am VERY excited..

As weird as it sounds, I am anxious to get started on

treatment for my Scleroderma. I just don't like the

" Let's wait and see what progresses " game.. so, wish

me luck!

Take care all,

Nette

--- Ute Reeves <nowyoga@...> wrote:

> Trish,

> Are you saying you took 5year old Minocycline?

> Tetracycline does deteriorate and becomes toxic.

> Some drugs last well

> beyond the " use by " date, Tetracycline DOES NOT !!!

>

>

> At 11:36 AM 4/11/01 , you wrote:

> although he couldn't explain why I had taken it five

> years ago with no

> reaction. Anyway, last Wednesday instead of taking

> my second dynacin, I

> took 100 mg minocycline (lederle, which I hadn't

> taken before).

>

__________________________________________________

[Guest guest]

Hi Nette,

> I just wanted to let everyone know that I am seeing

> Dr. FURST in Seattle tomorrow afternoon! They called

> me today, and had a cancellation. I am VERY excited..

> As weird as it sounds, I am anxious to get started on

> treatment for my Scleroderma. I just don't like the

> " Let's wait and see what progresses " game.. so, wish

> me luck!

I don't want to be depressing, but last time we heard, Dr. Furst doesn't

support antibiotic therapy, which is what you need. We maintain a list of

doctors offering antibiotic therapy which I can email to you privately if

you would like it.

Chris.