Guest guest Posted March 18, 2008 Report Share Posted March 18, 2008 I just wonder if the remicade stopped working for him & maybe he needs something else - Orencia or something??? --- In , " Shihtzumom " <shihtzumom1@...> wrote: > > My husband has very severe psoriatic arthritis. He is on methotrexate and IV > Infusions of Remecade. A couple of years ago, when he started the MTX and > Remecade, they worked well. The psoriasis was nearly gone. Then he changed > to Enbrel, which didn't work well at all. So he went back to the Remecade > (he was always on the Methotrexate). This time that he has been getting the > Remecade infusions, they aren't doing very well at all. He just had his > methotrexate upped. Hopefully they will get the balance of meds right so his > psoriasis gets better again. From what I have read, the methotrexate and > Remecade often works very well for Psoriatic Arthritis. > > > > [ ] question > > Does anyone that takes methatrexate also have psoriasis? And did it clear > it up or make it worse. > > > Jolene > > > > **************It's Tax Time! Get tips, forms, and advice on AOL Money & > Finance. (http://money.aol.com/tax?NCID=aolprf00030000000001) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2008 Report Share Posted April 4, 2008 steriods sometimes makes me feel that way. do you have high blood pressure? it could also be panic attacks, i have had to be put on something for depression which controls the same problems that you are having. love rita [ ] question HI guys I was wondering if anyone might be able to help me. For the last 3 1/2 weeks I have been having severe headaches and very fast heartbeats with pain every so often. I have seen my family doctor she was leaning towards high blood pressure added a medicine plus had me get an echocardiogram says the echo looks okay can't find any reasons for my blood pressure and very fast pulse resting I am at 115. Is there a possiblability that it can be RA related I forgot to ask the rhuemy yesterday when I saw him. All I know is I don't feel right and wish they would tell me something instead of try this for a month and see what happens. Thanks for any help Angie ________________________________________________________________________________\ ____ You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost. http://tc.deals./tc/blockbuster/text5.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2008 Report Share Posted April 4, 2008 yes i have had high blood pressure for quite some time been controlled well by meds till I started with these headaches and everything, she did think it was the steriods because I just take 5 mgs a day and have for a long time, would panic attacks get worse if you are walking around or carrying something a liitle heavy. Thanks for the info she added a beta blocker today because I am still having so much problems with it but I don't know figure I would give it a few days and if I don't feel any better call her back Rita Wages <rita.wages@...> wrote: steriods sometimes makes me feel that way. do you have high blood pressure? it could also be panic attacks, i have had to be put on something for depression which controls the same problems that you are having. love rita [ ] question HI guys I was wondering if anyone might be able to help me. For the last 3 1/2 weeks I have been having severe headaches and very fast heartbeats with pain every so often. I have seen my family doctor she was leaning towards high blood pressure added a medicine plus had me get an echocardiogram says the echo looks okay can't find any reasons for my blood pressure and very fast pulse resting I am at 115. Is there a possiblability that it can be RA related I forgot to ask the rhuemy yesterday when I saw him. All I know is I don't feel right and wish they would tell me something instead of try this for a month and see what happens. Thanks for any help Angie __________________________________________________________ You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost. http://tc.deals./tc/blockbuster/text5.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2008 Report Share Posted April 5, 2008 Hi Angie, Did you ever get your thyroid tested? My daughter had those symptoms but she also lost 70 pounds (without dieting)... I insisted she have her thyroid tested because I had the same symptoms.. It was an over- active thyroid in both cases! An over-active thyroid has all those symptoms. I also have RA but the thyroid problem developed before the RA. My daughter is close to 50 years of age and without medical insurance so she has not been tested for RA yet. The thyroid is being treated with medication at this time and she is feeling much better! > > HI guys > > I was wondering if anyone might be able to help me. For the last 3 > 1/2 weeks I have been having severe headaches and very fast heartbeats > with pain every so often. I have seen my family doctor she was > leaning towards high blood pressure added a medicine plus had me get > an echocardiogram says the echo looks okay can't find any reasons for > my blood pressure and very fast pulse resting I am at 115. Is there a > possiblability that it can be RA related I forgot to ask the rhuemy > yesterday when I saw him. All I know is I don't feel right and wish > they would tell me something instead of try this for a month and see > what happens. > > Thanks for any help > Angie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2008 Report Share Posted April 20, 2008 Hi Carey,I had my implants for 20 years before being explanted last year. My symptoms had no rhyme or reason. Some were constant, some came and went. The only thing I know for sure is I've never felt as good as when I finally got them out.Hugs,TraciStottlemyer71@... wrote: before any of you were explanted, were your symptoms constant or intermittent. i have weeks without any swelling or pain and it seems like every 3-4 weeks my symptoms get worse for a week or so. let me know. thanks!CareyNeed a new ride? Check out the largest site for U.S. used car listings at AOL Autos. "Feeling down? Saddle up." ~Author Unknown Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2008 Report Share Posted April 20, 2008 Carey . . . For most women things change . .. but usually on a downslope. A lot depends on diet, sleep, stress, fatigue, activity, mood, etc . .. Keeping a daily journal can help you understand some of the fluctuation, but not all.Hugs,Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2008 Report Share Posted April 26, 2008 Sandy, It might be better to go ahead and do the coffee enemas on a regular basis (can you do them once a week?) It will help hydrate the body with fluids (you will go to the bathroom more right after the coffee enema, which should help your kidneys), and get rid of the toxic bowel. Drink lots of water. Flushing the kidneys will help. If you definitely have a kidney infection that needs antibiotics, the doctors should give that to you. Otherwise, can you eat raw garlic? That will kill things. If the coffee enemas helped, then why stop them? Patty > > When I did the coffee enema the very first time > > There was a overly a lot in me thats for sure > OMG... Took my breath away > Seriously I almost keeled over > > My belly went down pretty much after my first coffee enema > I am not doing enems until I get this kidney infection is gone.. > > I am wondering if having bowel syndrome poisoned me in some way > because I moved my bowels maybe twice a week and it was very little. > > Because of brain fog and being deathly ill I never realized the problem > Until you ladies brought this to my attention. > > Sandy~ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2008 Report Share Posted April 26, 2008 Sandy,I agree with Patty,Keep that stuff moving out of you . . . Those organisms that get killed off must be eliminated.And eat those probiotics during, and after Levaquin . . . Very important! It's a very high potency antibiotic. It will knock down fungal organisms now . . . but it kills off the good ones too. You'll need to really work at getting some good organisms back in your body when you're through.Hugs,Rogene Re: QUESTION Sandy, It might be better to go ahead and do the coffee enemas on a regular basis (can you do them once a week?) It will help hydrate the body with fluids (you will go to the bathroom more right after the coffee enema, which should help your kidneys), and get rid of the toxic bowel. Drink lots of water. Flushing the kidneys will help. If you definitely have a kidney infection that needs antibiotics, the doctors should give that to you. Otherwise, can you eat raw garlic? That will kill things. If the coffee enemas helped, then why stop them? Patty > > When I did the coffee enema the very first time > > There was a overly a lot in me thats for sure > OMG... Took my breath away > Seriously I almost keeled over > > My belly went down pretty much after my first coffee enema > I am not doing enems until I get this kidney infection is gone.. > > I am wondering if having bowel syndrome poisoned me in some way > because I moved my bowels maybe twice a week and it was very little. > > Because of brain fog and being deathly ill I never realized the problem > Until you ladies brought this to my attention. > > Sandy~ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2008 Report Share Posted April 26, 2008 Sandy ~ I agree with Patty and Rogene, and it is so important to keep the crap moving out of you ! literally ! ! when you have that in you, it will grow a whole new group or nasties........ so, it is so important to keep it moving on out ! Love DedeNeed a new ride? Check out the largest site for U.S. used car listings at AOL Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2008 Report Share Posted April 26, 2008 Sandy, My holistic chiro has me taking Bulk-K to move my bowels. It is a powder natural fiber and it doesn't taste bad at all. It works. I finally have a regular BM. Hugs, Lynn > > When I did the coffee enema the very first time > > There was a overly a lot in me thats for sure > OMG... Took my breath away > Seriously I almost keeled over > > My belly went down pretty much after my first coffee enema > I am not doing enems until I get this kidney infection is gone.. > > I am wondering if having bowel syndrome poisoned me in some way > because I moved my bowels maybe twice a week and it was very little. > > Because of brain fog and being deathly ill I never realized the problem > Until you ladies brought this to my attention. > > Sandy~ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2008 Report Share Posted May 20, 2008 hi jolene,yes this is so normal when your trying to wean off pred. i also take mtx(7pills) every friday, however when im sick with a cold or somthing my drs. get me off the mtx until i get better because it can counteract with the other pills you might take.. i know the feeling of cutting down on pred & it sux cuz im in sooooo much pain because my body has been on this med for so long & the drs. listen when i tell them about the excruciating pain that im in & say it will get better. i get frustrated & ask when because when im in pain i cant function & that does not help me or my family!!!! i HOPE you start to feel BETTER SOON,keep me posted o.k. i would love to hear what your rheummy tells you. god bless,melyndagamez 5/21/0812:55a.m. central [ ] question Hi all. I was feeling pretty good, and i was only on four pills a week of the methotrexate. When i saw the rhuemy he told me to go off the prednisone in a week i was already down to 2.5. They raised me one mtx pill. I am aching again, how long for the added pill to take effect.. And is this normal when coming off prednisone. Jolene **************Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food.   (http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2008 Report Share Posted May 21, 2008 Thank you for answering.. I dont see the rheumy again till august. I know they usally raise two pills at a time usually he only raised me one. He wants to go slow as i had a lot of weight loss before all this. I was on prednisone about six months. I figured i would hurt and be achey. If i still feel like this in two weeks im going to call him as see what he says. Kids are off for the summer soon, so im hoping the added piull kicks in soon. Thanks Jolene In a message dated 5/21/2008 6:34:21 A.M. Eastern Daylight Time, melyndagamez@... writes: hi jolene,yes this is so normal when your trying to wean off pred. i also take mtx(7pills) every friday, however when im sick with a cold or somthing my drs. get me off the mtx until i get better because it can counteract with the other pills you might take.. i know the feeling of cutting down on pred & it sux cuz im in sooooo much pain because my body has been on this med for so long & the drs. listen when i tell them about the excruciating pain that im in & say it will get better. i get frustrated & ask when because when im in pain i cant function & that does not help me or my family!!!! i HOPE you start to feel BETTER SOON,keep me posted o.k. i would love to hear what your rheummy tells you. god bless,melyndagamez 5/21/0812:55a. that does not [ ] question Hi all. I was feeling pretty good, and i was only on four pills a week of the methotrexate. 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Guest guest Posted June 3, 2008 Report Share Posted June 3, 2008 why would it not be? question Is grapefruit juice good to drink during a gallbladder attack? A. Posey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2008 Report Share Posted June 3, 2008 Don't know...just trying anything that I think might be useful. Suggestions are much appreciated! So far I've taken 2 stone free tablets and drank about 4 oz of grapefruit juice. question Is grapefruit juice good to drink during a gallbladder attack? A. Posey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2008 Report Share Posted July 28, 2008 Hi Barbara! A goodfriend of mine lives in Mansield! Have a great trip! Hope the weather is good for you, we've been having one thunderstorm after another lately. i hope thisall just goes away whatever that nastiness was but it totally scared me. i felt....hidieous! Heidi In a message dated 7/28/2008 7:46:11 P.M. Pacific Daylight Time, bcreedon@... writes: Hi Heidi: I had this happen to me once, when my RA reared its ugly head. My Rheumy gave me 2 Cortisone shots, and then started me on 60mg. of Prednisone. It took 2 weeks for my fingers and hands to return to normal. It scared the h--- out of me too!! I am glad you are seeing your PCP this week, and your Rheumy in 2 weeks. Between both drs. I am sure they will be able to help you, and also diagnose what is going on with your hands and fingers. I swear, if it's not one thing, then it is another. I am still doing good, and will be off the Pred. by Aug. 9th. My RA is still very quiet, which is just amazing to me. This is the first time in almost 6 years that I have ever gone this long without pain, etc. I am down to taking 2.5mgs. of Pred. every 3rd day. I am very grateful for all of this, however long it lasts. I leave Fri. for my trip home to the Cape. I am spending the first week with my best friend, who has the week off!!! !!!!! My other weeks I will be spending with my daughter, my 2 new granddaughters ages 2 and 1, and my son-in-law in Mansfield. I will still take it one day at a time, and rest as much as I can. As you know, the tiredness does me in, still. Wishing you and everyone pain free days. Just such wonderful, caring people here....... I am glad I found you all. Hugs and Prayers, Barbara > > Hi Everyone, > > I had something happen to me today that scared the daylights out of me! I > got home for a short shopping trip, nothing exciting. I was in the kitchen, > getting ready to check on dinner,when my left hand got numb. My fingers have > been getting numb the last few weeks now. But today, 2 fingers on my left hand > deformed for a few minutes and I could not control this spasm! It was numb, > I couldn't feel a thing, so no pain. I actually flattened it out against the > refrigerator so I wouldn't look so awful and scary, but it wouldn't stop! I > called my new rheumy but he's off on Mondays. I'm seeing him on August 14th > so I guess I'll have to wait. I also have an appointment on Thursday with my > primary care physician so I will have someone to see this week. Just curious > to hear your stories regarding these " episodes " . Didn't like it one bit! > Thanks in advance, > > Heidi in Mass. > > > > ************ ************<WBR>**Get fantasy football with free live sc > FanHouse Fantasy Football today. > (_http://www.fanhousehttp://www.fanhohttp://www.fanhohttp://www.f_ (http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020) ) > > > [Non-text portions of this message have been removed] > **************Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. (http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2008 Report Share Posted July 28, 2008 Hi Heidi, I have had this happen with my feet, my toes specifically, and once with my hand. I did the same thing as you, flattened the digits out so the sight of it wasn't so freaky. Oddly enough, I never bothered to ask my dr about it. Since it disappeared and occurs so rarely I guess I didn't think about it. Let us know what your doctor says! Kim > > Hi Everyone, > > I had something happen to me today that scared the daylights out of me! I > got home for a short shopping trip, nothing exciting. I was in the kitchen, > getting ready to check on dinner,when my left hand got numb. My fingers have > been getting numb the last few weeks now. But today, 2 fingers on my left hand > deformed for a few minutes and I could not control this spasm! It was numb, > I couldn't feel a thing, so no pain. I actually flattened it out against the > refrigerator so I wouldn't look so awful and scary, but it wouldn't stop! I > called my new rheumy but he's off on Mondays. I'm seeing him on August 14th > so I guess I'll have to wait. I also have an appointment on Thursday with my > primary care physician so I will have someone to see this week. Just curious > to hear your stories regarding these " episodes " . Didn't like it one bit! > Thanks in advance, > > Heidi in Mass. > > > > **************Get fantasy football with free live scoring. Sign up for > FanHouse Fantasy Football today. > (http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2008 Report Share Posted July 28, 2008 Let me add... I have assumed (I know, I know - one should never assume! <g>) that it had something to do with inflammation of the tendons (often caused by RA). > > > > Hi Everyone, > > > > I had something happen to me today that scared the daylights out of > me! I > > got home for a short shopping trip, nothing exciting. I was in the > kitchen, > > getting ready to check on dinner,when my left hand got numb. My > fingers have > > been getting numb the last few weeks now. But today, 2 fingers on > my left hand > > deformed for a few minutes and I could not control this spasm! It > was numb, > > I couldn't feel a thing, so no pain. I actually flattened it out > against the > > refrigerator so I wouldn't look so awful and scary, but it wouldn't > stop! I > > called my new rheumy but he's off on Mondays. I'm seeing him on > August 14th > > so I guess I'll have to wait. I also have an appointment on > Thursday with my > > primary care physician so I will have someone to see this week. > Just curious > > to hear your stories regarding these " episodes " . Didn't like it > one bit! > > Thanks in advance, > > > > Heidi in Mass. > > > > > > > > **************Get fantasy football with free live scoring. Sign up for > > FanHouse Fantasy Football today. > > (http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2008 Report Share Posted July 28, 2008 Hi Heidi: I had this happen to me once, when my RA reared its ugly head. My Rheumy gave me 2 Cortisone shots, and then started me on 60mg. of Prednisone. It took 2 weeks for my fingers and hands to return to normal. It scared the h--- out of me too!! I am glad you are seeing your PCP this week, and your Rheumy in 2 weeks. Between both drs. I am sure they will be able to help you, and also diagnose what is going on with your hands and fingers. I swear, if it's not one thing, then it is another. I am still doing good, and will be off the Pred. by Aug. 9th. My RA is still very quiet, which is just amazing to me. This is the first time in almost 6 years that I have ever gone this long without pain, etc. I am down to taking 2.5mgs. of Pred. every 3rd day. I am very grateful for all of this, however long it lasts. I leave Fri. for my trip home to the Cape. I am spending the first week with my best friend, who has the week off!!! !!!!! My other weeks I will be spending with my daughter, my 2 new granddaughters ages 2 and 1, and my son-in-law in Mansfield. I will still take it one day at a time, and rest as much as I can. As you know, the tiredness does me in, still. Wishing you and everyone pain free days. Just such wonderful, caring people here....... I am glad I found you all. Hugs and Prayers, Barbara > > Hi Everyone, > > I had something happen to me today that scared the daylights out of me! I > got home for a short shopping trip, nothing exciting. I was in the kitchen, > getting ready to check on dinner,when my left hand got numb. My fingers have > been getting numb the last few weeks now. But today, 2 fingers on my left hand > deformed for a few minutes and I could not control this spasm! It was numb, > I couldn't feel a thing, so no pain. I actually flattened it out against the > refrigerator so I wouldn't look so awful and scary, but it wouldn't stop! I > called my new rheumy but he's off on Mondays. I'm seeing him on August 14th > so I guess I'll have to wait. I also have an appointment on Thursday with my > primary care physician so I will have someone to see this week. Just curious > to hear your stories regarding these " episodes " . Didn't like it one bit! > Thanks in advance, > > Heidi in Mass. > > > > **************Get fantasy football with free live scoring. Sign up for > FanHouse Fantasy Football today. > (http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2008 Report Share Posted July 28, 2008 When I was on just mtx, my little finger on my right hand became crooked. The top part curves in toward the left. My rheumy at the time said that the tendon on one side of the finger was damaged by the RA and caused the tendon on the other side to pull it crooked. Or something like that, anyway. Sue On Monday, July 28, 2008, at 08:40 PM, just call me Sheba wrote: > Let me add... I have assumed (I know, I know - one should never > assume! <g>) that it had something to do with inflammation of the > tendons (often caused by RA). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2008 Report Share Posted July 28, 2008 Congratulations, Barbara! I would say that you have it made by now. I was told by a doctor (not a rheumy) that our bodies make something similar, cortisol, but I forgot how much he said was equivalent to how many mgs. of prednisone. We have to wean ourselves off prednisone, and then the body I believe is supposed to resume its production of cortisol. Sue On Monday, July 28, 2008, at 10:45 PM, Barbara wrote: > I am still doing good, and will be off the Pred. by Aug. 9th. My RA is > still very quiet, which is just amazing to me. This is the first time > in almost 6 years that I have ever gone this long without pain, etc. > I > am down to taking 2.5mgs. of Pred. every 3rd day. I am very grateful > for all of this, however long it lasts. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2008 Report Share Posted July 28, 2008 Thanks Sue!! I have heard that too. Time will tell, and I am praying that I will continue to feel good. My feet and ankles were the worst, and it is just so wonderful to stand on my feet, and not feel any pain at all. My Rheumy said this is due to all the RA meds. finally doing their job. My last blood work showed I was in a bad flare, but I have no visual or physical signs of it. I thank God, and for all the prayers my family, friends, and everyone here, have said for me. Praying and wishing everyone here will have pain free days. Hugs, Barbara > > > I am still doing good, and will be off the Pred. by Aug. 9th. My RA is > > still very quiet, which is just amazing to me. This is the first time > > in almost 6 years that I have ever gone this long without pain, etc. > > I > > am down to taking 2.5mgs. of Pred. every 3rd day. I am very grateful > > for all of this, however long it lasts. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2008 Report Share Posted July 28, 2008 Hi Heidi:  Nice to hear from you. I know how strange things can scare us. After all, these diseases are very scarey!! I hope it was just a one time thing that happened. I pray it all goes better for you, and you have pain free days ahead. I will keep you in my prayers Heidi.  I love Mansfield as it's a cute and great town. Send the rain here to S.W. Florida.... we need it so badly. Plenty of thunder and lightening, but very little rain in several months.  Hugs, Barbara From: sposy@... <sposy@...> Subject: Re: [ ] Re: Question Date: Monday, July 28, 2008, 8:35 PM Hi Barbara! A goodfriend of mine lives in Mansield! Have a great trip! Hope the weather is good for you, we've been having one thunderstorm after another lately. i hope thisall just goes away whatever that nastiness was but it totally scared me. i felt....hidieous! Heidi In a message dated 7/28/2008 7:46:11 P.M. Pacific Daylight Time, bcreedon (DOT) com writes: Hi Heidi: I had this happen to me once, when my RA reared its ugly head. My Rheumy gave me 2 Cortisone shots, and then started me on 60mg. of Prednisone. It took 2 weeks for my fingers and hands to return to normal. It scared the h--- out of me too!! I am glad you are seeing your PCP this week, and your Rheumy in 2 weeks. Between both drs. I am sure they will be able to help you, and also diagnose what is going on with your hands and fingers. I swear, if it's not one thing, then it is another. I am still doing good, and will be off the Pred. by Aug. 9th. My RA is still very quiet, which is just amazing to me. This is the first time in almost 6 years that I have ever gone this long without pain, etc. I am down to taking 2.5mgs. of Pred. every 3rd day. I am very grateful for all of this, however long it lasts. I leave Fri. for my trip home to the Cape. I am spending the first week with my best friend, who has the week off!!! !!!!! My other weeks I will be spending with my daughter, my 2 new granddaughters ages 2 and 1, and my son-in-law in Mansfield. I will still take it one day at a time, and rest as much as I can. As you know, the tiredness does me in, still. Wishing you and everyone pain free days. Just such wonderful, caring people here....... I am glad I found you all. Hugs and Prayers, Barbara > > Hi Everyone, > > I had something happen to me today that scared the daylights out of me! I > got home for a short shopping trip, nothing exciting. I was in the kitchen, > getting ready to check on dinner,when my left hand got numb. My fingers have > been getting numb the last few weeks now. But today, 2 fingers on my left hand > deformed for a few minutes and I could not control this spasm! It was numb, > I couldn't feel a thing, so no pain. I actually flattened it out against the > refrigerator so I wouldn't look so awful and scary, but it wouldn't stop! I > called my new rheumy but he's off on Mondays. I'm seeing him on August 14th > so I guess I'll have to wait. I also have an appointment on Thursday with my > primary care physician so I will have someone to see this week. Just curious > to hear your stories regarding these " episodes " . Didn't like it one bit! > Thanks in advance, > > Heidi in Mass. > > > > ************ ************ <WBR>**Get fantasy football with free live sc > FanHouse Fantasy Football today. > (_http://www.fanhouse http://www. fanhohttp: //www.fanhohttp: //www.f_ (http://www.fanhouse .com/fantasyaffa ir?ncid=aolspr00 050000000020) ) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2008 Report Share Posted July 29, 2008 Heidi, I have had that happen to me in my hands, feet and jaw. Also your my hand and fingers would lock up and i would have to get up and run them under warm water and rub as i did that. Sometimes it would take a bit. Good Luck and hopefully it will not happen much.. Also Barbara, I seen you are down to a small amount of prednisone. What kind of other meds are you taking ? I have been on a min of 5 mg and max of 15mg a day for the last 24 years.. Pamela > > > Thanks Sue!! I have heard that too. Time will tell, and I am praying > that I will continue to feel good. My feet and ankles were the worst, > and it is just so wonderful to stand on my feet, and not feel any pain > at all. > > My Rheumy said this is due to all the RA meds. finally doing their job. > My last blood work showed I was in a bad flare, but I have no visual or > physical signs of it. I thank God, and for all the prayers my family, > friends, and everyone here, have said for me. > > Praying and wishing everyone here will have pain free days. > > Hugs, Barbara > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2008 Report Share Posted July 29, 2008 Hi Pamela: Here are the RA meds I take: MTX .8 inject. 1x week, Placquinil 400 mg a day, Sulfasalazine 3000 mg. a day, Pred. 2.5mg every 3rd. day, and Leucovorin 10 mg 12 hours after my MTX shot. I also take Actonal cal. 1x a week, and 2 Cal/vit. D everyday. I have been on Pred. since the day I got diagnosed with RA. At times, I took as much as 60 mg. a day. I tried many times to get off Pred., but was never able to do so until now. I was on 10 mg for a very long time, so I have done the decreasing from 10 mg to 2.5 a day over a 2 month period. Pamela, Have you ever been of the Pred? I hope this info. helps. Wishing you pain free days. Hugs, Barbara > Heidi, > I have had that happen to me in my hands, feet and jaw. Also your my > hand and fingers would lock up and i would have to get up and run > them under warm water and rub as i did that. Sometimes it would take > a bit. Good Luck and hopefully it will not happen much.. > > Also Barbara, > I seen you are down to a small amount of prednisone. What kind of > other meds are you taking ? I have been on a min of 5 mg and max of > 15mg a day for the last 24 years.. > Pamela > > > > > > > > Thanks Sue!! I have heard that too. Time will tell, and I am > praying > > that I will continue to feel good. My feet and ankles were the > worst, > > and it is just so wonderful to stand on my feet, and not feel any > pain > > at all. > > > > My Rheumy said this is due to all the RA meds. finally doing their > job. > > My last blood work showed I was in a bad flare, but I have no > visual or > > physical signs of it. I thank God, and for all the prayers my > family, > > friends, and everyone here, have said for me. > > > > Praying and wishing everyone here will have pain free days. > > > > Hugs, Barbara > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2008 Report Share Posted July 29, 2008 Angie, are you on prednisone? mary in pa [ ] question Hi guys, I have a question for you all. My RA and fibro has been under control since my doctor switched me to arava and added nuerontin. My question is does anyone have problems with uncontrolled blood pressure, heart racing and severe headaches. I am currently seeing a new primary care doctor and he got the blood pressure down some but it is still high. Can all this be related to the ra and everything or what. Please let me know what you guys think as I am sick of feeling like this. Thanks alot for everything Thanks Angie Quote Link to comment Share on other sites More sharing options...
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