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,

What do you mean you were harassed last night? Then about your TV--

not sure what you are asking...could you clarify please and we will

try to get to the bottom of things!

Vicki

>

> This may sound silly but I wonder if it's happening to anyone else.

As you know, I was harassed last night. From this morning when I

watched my Sunday morning prograam then turned tv back on for my

nighttime shows, all of the commercials have been the same playing

over and over and over and none of my favorites )there are a few) and

it's starting to feel like a police state around here. I'm really not

nuts but this is not normal in all of my years of watching television.

>

> L

>

>

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Okay, that cracked me up. I am not

sure it was related to nausea or to

blood pressure, although mine is

usually perfect. It may have just

been a one time occurrence, and

no, I am not pregnant. Or at least

I think not.

I will let you know if it happens

again. And if my specialist

has any ideas why it happened.

With the warmest regards,

Matt

CML of Florida

Dx January of 2005

Gleevec March of 2005

Tasigna November of 2007

Number 1078 in the Esteemed Zavie Zero Club

In a message dated 9/16/2008 8:09:27 A.M. Eastern Daylight Time,

traceyincanada@... writes:

Hi Matt,

What a scary thing to have happen. I've never blacked out while I've

had CML but when I get nauseous, I can't hold back even if I try.

One time I tried to hold back because it was in the middle of supper

and my family had just started eating (we bought KFC that night). I

really didn't want to make them all lose their appetite so I tried to

hold back. Well, in no time I had sweat pouring off of me to the

point where you could literally see water running down the sides of

my face and I thought my head was going to explode. I didn't even

have time to make it to the bathroom, instead I grabbed the first

thing I saw and " let it go " . Much to the chagrin of my family, the

item I let go in was the bucket of KFC. Needless to say, supper was

ruined that night.

Hope you get some answers from you doc but the first thing I would

wonder about when it comes to blacking out is your blood pressure. I

passed out a couple of times when I was pregnant due to low blood

pressure.

Take care,

Tracey

--- In _@..._ (mailto: ) , mtmaynor@...

wrote:

>

> I have a sort of strange question. I was driving to

> church this morning and began to feel very nauseous

> but since I was driving, I struggled to hold it back. To

> make a long story short, I sort of lost myself for a

> second and when I became aware again, I was

> kind of panicked and was having trouble getting a

> hold of myself. After a few seconds I was fine and

> was able to pull off, get my wits and continue on

> to church. However, this has never happened to

> me before.

>

> One explanation is that fighting back the nausea

> somehow restricted my air flow and the lack

> of oxygen caused the subsequent reaction. I was

> just wondering if anyone else dealt with this before.

>

>

>

>

>

>

> ************ **** ************<WBR>**Psssst.<WBR>..Have yo

fashion blog,

> plus the latest fall trends and hair styles at StyleList.com.

> (_http://www.stylelishttp://www.sthttp://www.stylehttp://ww_

(http://www.stylelist.com/trends?ncid=aolsty00050000000014) )

>

>

> [Non-text portions of this message have been removed]

>

**************Psssst...Have you heard the news? There's a new fashion blog,

plus the latest fall trends and hair styles at StyleList.com.

(http://www.stylelist.com/trends?ncid=aolsty00050000000014)

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Hi Matt,

What a scary thing to have happen. I've never blacked out while I've

had CML but when I get nauseous, I can't hold back even if I try.

One time I tried to hold back because it was in the middle of supper

and my family had just started eating (we bought KFC that night). I

really didn't want to make them all lose their appetite so I tried to

hold back. Well, in no time I had sweat pouring off of me to the

point where you could literally see water running down the sides of

my face and I thought my head was going to explode. I didn't even

have time to make it to the bathroom, instead I grabbed the first

thing I saw and " let it go " . Much to the chagrin of my family, the

item I let go in was the bucket of KFC. Needless to say, supper was

ruined that night.

Hope you get some answers from you doc but the first thing I would

wonder about when it comes to blacking out is your blood pressure. I

passed out a couple of times when I was pregnant due to low blood

pressure.

Take care,

Tracey

>

> I have a sort of strange question. I was driving to

> church this morning and began to feel very nauseous

> but since I was driving, I struggled to hold it back. To

> make a long story short, I sort of lost myself for a

> second and when I became aware again, I was

> kind of panicked and was having trouble getting a

> hold of myself. After a few seconds I was fine and

> was able to pull off, get my wits and continue on

> to church. However, this has never happened to

> me before.

>

> One explanation is that fighting back the nausea

> somehow restricted my air flow and the lack

> of oxygen caused the subsequent reaction. I was

> just wondering if anyone else dealt with this before.

>

>

> With the warmest regards,

>

> Matt

> CML of Florida

> Dx January of 2005

> Gleevec March of 2005

> Tasigna November of 2007

> Number 1078 in the Esteemed Zavie Zero Club

>

>

>

>

> **************Psssst...Have you heard the news? There's a new

fashion blog,

> plus the latest fall trends and hair styles at StyleList.com.

> (http://www.stylelist.com/trends?ncid=aolsty00050000000014)

>

>

>

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  • 1 month later...

You can apply anytime you wish, even before quitting or otherwise losing

your job. The official date of disability starts when you're no longer able

to make a living at work, not the day you applied.

Dennis in eastexas

On Mon, Oct 20, 2008 at 11:57 PM, Overstreet <benga19@...>wrote:

> How long does one have to be off from work before they can apply for

> disability a friend of mine was telling me she thought I had to off from

> work for a year before I could apply please help

>

>

>

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Brad and group;

Ok One more question.. How the heck you get all that post under your

last post.. wow... haaaaaaaaaaaa.. I want to know so I don't do it.

Clora

****************************************************************

>

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Me too! I thought something happened to our group posts and

e-mails!!!!

Hugs,

Barbara

>

> Brad and group;

>

> Ok One more question.. How the heck you get all that post under your

> last post.. wow... haaaaaaaaaaaa.. I want to know so I don't do it.

>

> Clora

>

> ****************************************************************

> >

>

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,

I think just as long as you have enough " credits " , you can apply. I

think you need a 6 month grace peroid before you can apply for SSDI. I

applied 6 months since I last worked and I didn't have any problems. I

got approved on the 1st try. I would highly recommend that you obtain

a lawyer from the beginning, I did and I think it helped w/ me getting

approved on the 1st try.

I had a friend of mine, who is far worse then I am and we applied at

the same time. (She has lupus and MS) I got approved and she got denied

and then got a lawyer. The wait for a hearing if you get denied is

around a year. When you don't have any income, it's hard to make ends

meet. If you have any more questions, feel free to ask; I have heard

that it's harder to get approved depending on which state you live in.

BEst of luck to you.

--- In , " Overstreet " <benga19@...>

wrote:

>

> How long does one have to be off from work before they can apply for

> disability a friend of mine was telling me she thought I had to off

from

> work for a year before I could apply please help

>

>

>

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Dennis,

Thanks I think that I will be losing my job soon because of

Being out so much got my fmla paperwork in order,

But they have been doing a lot of picking lately, they

Put me on performance probation, that is there way of

Getting rid of someone. So I have a feeling that I won't

Be there much longer

Thanks

-- Re: [ ] Question

You can apply anytime you wish, even before quitting or otherwise losing

your job. The official date of disability starts when you're no longer able

to make a living at work, not the day you applied.

Dennis in eastexas

On Mon, Oct 20, 2008 at 11:57 PM, Overstreet <benga19@wildblue

net>wrote:

> How long does one have to be off from work before they can apply for

> disability a friend of mine was telling me she thought I had to off from

> work for a year before I could apply please help

>

>

>

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,

Good luck with everything. I know the uncertainty of all of this is

scary.

Shirley

--- In , " Overstreet " <benga19@...>

wrote:

>

> Dennis,

> Thanks I think that I will be losing my job soon because of

> Being out so much got my fmla paperwork in order,

> But they have been doing a lot of picking lately, they

> Put me on performance probation, that is there way of

> Getting rid of someone. So I have a feeling that I won't

> Be there much longer

> Thanks

>

>

> -- Re: [ ] Question

>

> You can apply anytime you wish, even before quitting or otherwise

losing

> your job. The official date of disability starts when you're no

longer able

> to make a living at work, not the day you applied.

>

> Dennis in eastexas

>

> On Mon, Oct 20, 2008 at 11:57 PM, Overstreet <benga19@wildblue

> net>wrote:

>

> > How long does one have to be off from work before they can apply

for

> > disability a friend of mine was telling me she thought I had to

off from

> > work for a year before I could apply please help

> >

> >

> >

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,

I lost my job because of my illness as well, because of my absences, and how

it affected the team and my performance. They didn't even have FMLA. They

also ignored a request from my Rheumy to allow me to park close to the

building until I could get my handicapped placard. Best of luck to you.

Document

everything.

Heidi in Mass.

In a message dated 10/22/2008 3:51:34 P.M. Eastern Daylight Time,

betnden@... writes:

Lias, you're lucky that the Americans With Disabilities Act is stronger now.

I fell out of grace with my employer since " everybody has arthritis " , and

laid me off although I didn't miss a day of work. The only problem I had was

my GP didn't want me to travel out of the country until we got a hold on the

RA. That's when I was 'asked' to go to Norway, even after a ticket had been

purchased for one of my men to go. I couldn't use the ramp to get into the

building, and had to park way in back of the parking lot. At least you have

something to work with. Good luck,

Dennis in eastexas

On Wed, Oct 22, 2008 at 1:25 AM, Overstreet <_benga19@..._

(mailto:benga19@...) >wrote:

> Dennis,

> Thanks I think that I will be losing my job soon because of

> Being out so much got my fmla paperwork in order,

> But they have been doing a lot of picking lately, they

> Put me on performance probation, that is there way of

> Getting rid of someone. So I have a feeling that I won't

> Be there much longer

> Thanks

>

>

> -------Original Message----- -

>

> From: Dennis W

> Date: 10/21/2008 11:33:12 AM

> _ @groRA-SUPP_ (mailto: )

< % %<WBRA->

> Subject: Re: [ ] Question

>

> You can apply anytime you wish, even before quitting or otherwise losing

> your job. The official date of disability starts when you're no longer able

>

> to make a living at work, not the day you applied.

>

> Dennis in eastexas

>

> On Mon, Oct 20, 2008 at 11:57 PM, Overstreet <benga19@wildblue

> net>wrote:

>

> > How long does one have to be off from work before they can apply for

> > disability a friend of mine was telling me she thought I had to off from

> > work for a year before I could apply please help

> >

> >

> > [Non-text portions of this message have been removed]

> >

> > _

> > .

> >

> >

> >

>

> [Non-text portions of this message have been removed]

>

>

>

>

>

> [Non-text portions of this message have been removed]

>

>

>

[Non-text portions of this message have been removed]

**************Play online games for FREE at Games.com! All of your favorites,

no registration required and great graphics – check it out!

(http://pr.atwola.com/promoclk/100000075x1211202682x1200689022/aol?redir=

http://www.games.com?ncid=emlcntusgame00000001)

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Lias, you're lucky that the Americans With Disabilities Act is stronger now.

I fell out of grace with my employer since " everybody has arthritis " , and

laid me off although I didn't miss a day of work. The only problem I had was

my GP didn't want me to travel out of the country until we got a hold on the

RA. That's when I was 'asked' to go to Norway, even after a ticket had been

purchased for one of my men to go. I couldn't use the ramp to get into the

building, and had to park way in back of the parking lot. At least you have

something to work with. Good luck,

Dennis in eastexas

On Wed, Oct 22, 2008 at 1:25 AM, Overstreet <benga19@...>wrote:

> Dennis,

> Thanks I think that I will be losing my job soon because of

> Being out so much got my fmla paperwork in order,

> But they have been doing a lot of picking lately, they

> Put me on performance probation, that is there way of

> Getting rid of someone. So I have a feeling that I won't

> Be there much longer

> Thanks

>

>

> -- Re: [ ] Question

>

> You can apply anytime you wish, even before quitting or otherwise losing

> your job. The official date of disability starts when you're no longer able

>

> to make a living at work, not the day you applied.

>

> Dennis in eastexas

>

> On Mon, Oct 20, 2008 at 11:57 PM, Overstreet <benga19@wildblue

> net>wrote:

>

> > How long does one have to be off from work before they can apply for

> > disability a friend of mine was telling me she thought I had to off from

> > work for a year before I could apply please help

> >

> >

> >

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HI ,

I've been looking for that myself. Be very careful. Watch out for the ones

that ask for money!

Heidi

In a message dated 10/23/2008 10:11:40 A.M. Eastern Daylight Time,

benga19@... writes:

Heidi,

Ya I see now that a lot of companies

Don't care about what you have going on

In your life. I would really like to find a job that I

Can do from home with my computer that would

Really work out better for me, but those are hard to find

Thanks

-- Re: [ ] Question

>

> You can apply anytime you wish, even before quitting or otherwise losing

> your job. The official date of disability starts when you're no longer

able

>

> to make a living at work, not the day you applied.

>

> Dennis in eastexas

>

> On Mon, Oct 20, 2008 at 11:57 PM, Overstreet <benga19@wildblue

> net>wrote:

>

> > How long does one have to be off from work before they can apply for

> > disability a friend of mine was telling me she thought I had to off from

> > work for a year before I could apply please help

> >

> >

> > [Non-text portions of this message have been removed]

> >

> > _

> > .

> >

> >

> >

>

> [Non-text portions of this message have been removed]

>

>

>

>

>

> [Non-text portions of this message have been removed]

>

>

>

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Hi Doreen,

This happened in May. My company at the time had just under 50 employees and

did not have to adopt FMLA. They've since been acquired by a larger

company. I have been thinking of heading into Boston to file a complaint

against

them for not honoring the Drs. note, but sometimes you have to pick and choose

your battles. But they clearly did not want to deal with me while I was

getting acquainted to my final MTX dose and enbrel, etc. Sadly, I worked with

nurses and lawyers. Not always a good combo. A few nurses knew a lot about RA

and would come and see me daily and check my hands, etc...a bit over the top,

but welcome. They understood, but had no luck sticking up for me.

Heidi

In a message dated 10/23/2008 12:41:12 P.M. Eastern Daylight Time,

mimi212@... writes:

Wow, Heidi - how long ago did you lose your job? It was my

understanding that the FMLA law has been around for a long time and

that it is a Federal law - not a state law. And how about the

Americans With Disabilities Act? Another law that I thought had been

around for a very long time......Doreen :)

>

> ,

>

> I lost my job because of my illness as well, because of my

> absences, and how it affected the team and my performance. They

> didn't even have FMLA. They also ignored a request from my Rheumy

> to allow me to park close to the building until I could get my

> handicapped placard. Best of luck to you. Document everything.

>

> Heidi in Mass.

>

**************Play online games for FREE at Games.com! All of your favorites,

no registration required and great graphics – check it out!

(http://pr.atwola.com/promoclk/100000075x1211202682x1200689022/aol?redir=

http://www.games.com?ncid=emlcntusgame00000001)

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Heidi,

Ya I see now that a lot of companies

Don't care about what you have going on

In your life. I would really like to find a job that I

Can do from home with my computer that would

Really work out better for me, but those are hard to find

Thanks

-- Re: [ ] Question

>

> You can apply anytime you wish, even before quitting or otherwise losing

> your job. The official date of disability starts when you're no longer

able

>

> to make a living at work, not the day you applied.

>

> Dennis in eastexas

>

> On Mon, Oct 20, 2008 at 11:57 PM, Overstreet <benga19@wildblue

> net>wrote:

>

> > How long does one have to be off from work before they can apply for

> > disability a friend of mine was telling me she thought I had to off from

> > work for a year before I could apply please help

> >

> >

> >

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Hi Heidi

Ya I definelty don't have any extra money to give

Them lol

-- Re: [ ] Question

>

> You can apply anytime you wish, even before quitting or otherwise losing

> your job. The official date of disability starts when you're no longer

able

>

> to make a living at work, not the day you applied.

>

> Dennis in eastexas

>

> On Mon, Oct 20, 2008 at 11:57 PM, Overstreet <benga19@wildblue

> net>wrote:

>

> > How long does one have to be off from work before they can apply for

> > disability a friend of mine was telling me she thought I had to off from

> > work for a year before I could apply please help

> >

> >

> >

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Wow, Heidi - how long ago did you lose your job? It was my

understanding that the FMLA law has been around for a long time and

that it is a Federal law - not a state law. And how about the

Americans With Disabilities Act? Another law that I thought had been

around for a very long time......Doreen :)

>

> ,

>

> I lost my job because of my illness as well, because of my

> absences, and how it affected the team and my performance. They

> didn't even have FMLA. They also ignored a request from my Rheumy

> to allow me to park close to the building until I could get my

> handicapped placard. Best of luck to you. Document everything.

>

> Heidi in Mass.

>

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, I know someone who works for a cell phone company in Customer

Service. She works entirely from home. It might be worth investigating.

Sue

On Thursday, October 23, 2008, at 10:10 AM, wrote:

>

> Ya I see now that a lot of companies

> Don't care about what you have going on

> In your life. I would really like to find a job that I

> Can do from home with my computer that would

> Really work out better for me, but those are hard to find

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Sue,

Thanks I will have to check into that

-- Re: [ ] Question

, I know someone who works for a cell phone company in Customer

Service. She works entirely from home. It might be worth investigating.

Sue

On Thursday, October 23, 2008, at 10:10 AM, wrote:

>

> Ya I see now that a lot of companies

> Don't care about what you have going on

> In your life. I would really like to find a job that I

> Can do from home with my computer that would

> Really work out better for me, but those are hard to find

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Share on other sites

,

Thanks I live in Virginia. What do you mean by credits?

I am going to check into all this the first of the week and

Hopefully I won't have too much trouble, where do you live?

-- [ ] Re: Question

,

I think just as long as you have enough " credits " , you can apply. I

think you need a 6 month grace peroid before you can apply for SSDI. I

applied 6 months since I last worked and I didn't have any problems. I

got approved on the 1st try. I would highly recommend that you obtain

a lawyer from the beginning, I did and I think it helped w/ me getting

approved on the 1st try.

I had a friend of mine, who is far worse then I am and we applied at

the same time. (She has lupus and MS) I got approved and she got denied

and then got a lawyer. The wait for a hearing if you get denied is

around a year. When you don't have any income, it's hard to make ends

meet. If you have any more questions, feel free to ask; I have heard

that it's harder to get approved depending on which state you live in.

BEst of luck to you.

--- In , " Overstreet " <benga19@...>

wrote:

>

> How long does one have to be off from work before they can apply for

> disability a friend of mine was telling me she thought I had to off

from

> work for a year before I could apply please help

>

>

>

Link to comment
Share on other sites

Shirley

Yes it is very scary for me since this is all new I was diagnosed with

Ra back in Nov of last year and been on so many different meds

My husband SD that he is married to a walking drugstore and that is

How I feel, some days I get so depressed because I can't do the

Things that I used to do and it makes me so mad, I feel like at my

Age I shouldn't have this problem,but I do and am going to have to

Learn to live with it and so is everyone in my household. And now

Filing for disability something I had never ever though that I would

Be doing in my lifetime so yes it is something that has really got me

Scared, but with all my online friends and other friends, and loving

Husband and son I will make it thru this

Thanks for all the help

-- Re: [ ] Question

>

> You can apply anytime you wish, even before quitting or otherwise

losing

> your job. The official date of disability starts when you're no

longer able

> to make a living at work, not the day you applied.

>

> Dennis in eastexas

>

> On Mon, Oct 20, 2008 at 11:57 PM, Overstreet <benga19@wildblue

> net>wrote:

>

> > How long does one have to be off from work before they can apply

for

> > disability a friend of mine was telling me she thought I had to

off from

> > work for a year before I could apply please help

> >

> >

> >

Link to comment
Share on other sites

Hi - your post is so sad. I know how you feel though. It is all

overwhelming at first - especially knowing that our lives are forever

changed from what we had grown accustomed to. Take heart, dear one,

there IS HOPE!! We have to be creative. We can continue on with our

lives in a very constructive manner - we just have to do things

differently than we are used to. I try to think of this all as a

challenge. RA/FMS WILL NOT GET ME DOWN!! Have you read " The Spoon

Theory " ? It also helps to put things in to perspective for you and

your loved ones. Check it out at:

http://butyoudontlooksick.com/navigation/BYDLS-TheSpoonTheory.pdf

Hang in there, honey. You life is NOT over. You will get through this

someway, somehow. Keep us posted. It sounds like you have a wonderful

support system. You are in my prayers.....Doreen :)

>

>

> Shirley

> Yes it is very scary for me since this is all new I was diagnosed

> with Ra back in Nov of last year and been on so many different meds

> My husband SD that he is married to a walking drugstore and that is

> How I feel, some days I get so depressed because I can't do the

> Things that I used to do and it makes me so mad, I feel like at my

> Age I shouldn't have this problem,but I do and am going to have to

> Learn to live with it and so is everyone in my household. And now

> Filing for disability something I had never ever though that I would

> Be doing in my lifetime so yes it is something that has really got

> me Scared, but with all my online friends and other friends, and

> loving Husband and son I will make it thru this

> Thanks for all the help

>

>

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Hi Cheryl - It certainly sounds like it could be some deformity going

on there - especially since this is the finger that is most affected

during a flare. Have you talked to your Rheumy about it yet? I had a

bump come up on one of my fingers and for the most part it doesn't

hurt unless I bump it or something - then its OUCH!! My Rheumy wants

me to have it checked out by my Orthopaedic, but unfortunately, until

SSD gets approved, I can't afford the tests that I know they will want

to run. Let us know what you find out. We care.....Doreen :)

--- In , " cheryl.dines " <cheryl.dines@...>

wrote:

>

> Hi everyone

>

> I have noticed that the knuckle on my right index finger is larger

> than the other hand. It is not swollen, rather it looks like the

> bone is starting to stick out ever so slightly toward the thumb

> side. Could this be the first sign of deformity? This is usually

> the finger that is affected worse when I flare up.

>

> Thanks

> Cheryl

>

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Thanks Doreen

I will get the rheumy to have a look at it when I go and see him next

(December). Is that soon enough or should I get there quicker? I am

a bit unsure (as usual. lol). This morning I also experienced

something unusual with this same finger. My hands were warm, but

this finger was freezing cold. What could this be? I do hope it

isn't going to drop off....hehehe

> >

> > Hi everyone

> >

> > I have noticed that the knuckle on my right index finger is

larger

> > than the other hand. It is not swollen, rather it looks like the

> > bone is starting to stick out ever so slightly toward the thumb

> > side. Could this be the first sign of deformity? This is

usually

> > the finger that is affected worse when I flare up.

> >

> > Thanks

> > Cheryl

> >

>

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Thanks Doreen

That's what a I like about this group

That everyone supports each other and

Tries to help each other, when they are down

I read " The Spoon Theory " it does put a lot into

Prospective. Thanks

-- [ ] Re: Question

Hi - your post is so sad. I know how you feel though. It is all

overwhelming at first - especially knowing that our lives are forever

changed from what we had grown accustomed to. Take heart, dear one,

there IS HOPE!! We have to be creative. We can continue on with our

lives in a very constructive manner - we just have to do things

differently than we are used to. I try to think of this all as a

challenge. RA/FMS WILL NOT GET ME DOWN!! Have you read " The Spoon

Theory " ? It also helps to put things in to perspective for you and

your loved ones. Check it out at:

http://butyoudontlooksick.com/navigation/BYDLS-TheSpoonTheory.pdf

Hang in there, honey. You life is NOT over. You will get through this

someway, somehow. Keep us posted. It sounds like you have a wonderful

support system. You are in my prayers.....Doreen :)

>

>

> Shirley

> Yes it is very scary for me since this is all new I was diagnosed

> with Ra back in Nov of last year and been on so many different meds

> My husband SD that he is married to a walking drugstore and that is

> How I feel, some days I get so depressed because I can't do the

> Things that I used to do and it makes me so mad, I feel like at my

> Age I shouldn't have this problem,but I do and am going to have to

> Learn to live with it and so is everyone in my household. And now

> Filing for disability something I had never ever though that I would

> Be doing in my lifetime so yes it is something that has really got

> me Scared, but with all my online friends and other friends, and

> loving Husband and son I will make it thru this

> Thanks for all the help

>

>

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You're welcome, Cheryl. I can't advise whether you should see your

Rheumy sooner than December or not. I can tell you that if you are

concerned, you should at least give them a call. It never hurts to

call........Doreen :)

--- In , " cheryl.dines " <cheryl.dines@...>

wrote:

>

> Thanks Doreen

>

> I will get the rheumy to have a look at it when I go and see him

> next (December). Is that soon enough or should I get there

> quicker? I am a bit unsure (as usual. lol). This morning I also

> experienced something unusual with this same finger. My hands were

> warm, but this finger was freezing cold. What could this be? I do

> hope it isn't going to drop off....hehehe

>

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