Question

[Guest guest]

Is the child on Ritalin? Tics can be a side effect.

Question

> Just thought I'd post a note on this group to see if anyone knew the

> answer. A friend of mine's son suffers from ADHD and now they say he

> may have asbergers. He had strep last week and developed a tic

> afterwards. He was on amoxicillin and the doctors and pharmacists

> say that there was nothing dangerous about mixing his anibiotic and

> other medicine's. So why did he develop this tic (he's been bending

> his head forward and humming)? Will this go away? Could the strep

> have caused this?

>

> If anyone has any answers, maybe I could be of some help to a

> friend. Thank you so much.

>

>

>

>

>

>

>

>

> Responsibility for the content of this message lies strictly with

> the original author, and is not necessarily endorsed by or the

> opinion of the Research Institute.

>

>

>

[Guest guest]

His Mom said he's on Wellbutrin. She says that he has a sensory intergration

problem. Some doctors think it's asbergers and others say it's not. Poor

woman. I guess they aren't really even sure if it's ADHD. Sorry, she

doesn't have access to the internet so I'm trying to find answers for her.

Thanks for your responses.

Is the child on Ritalin? Tics can be a side effect.

Question

> Just thought I'd post a note on this group to see if anyone knew the

> answer. A friend of mine's son suffers from ADHD and now they say he

> may have asbergers. He had strep last week and developed a tic

> afterwards. He was on amoxicillin and the doctors and pharmacists

> say that there was nothing dangerous about mixing his anibiotic and

> other medicine's. So why did he develop this tic (he's been bending

> his head forward and humming)? Will this go away? Could the strep

> have caused this?

>

> If anyone has any answers, maybe I could be of some help to a

> friend. Thank you so much.

>

>

>

>

>

>

>

>

> Responsibility for the content of this message lies strictly with

> the original author, and is not necessarily endorsed by or the

> opinion of the Research Institute.

>

>

>

[Guest guest]

Hi there...

Just posted this last week... thought you might be interested...

This is from the NIH website...

PANDAS, is an abbreviation for Pediatric Autoimmune Neuropsychiatric

Disorders Associated with Streptococcal Infections. The term is used to

describe a subset of children who have Obsessive Compulsive Disorder(OCD)

and/or tic disorders such as Tourette's Syndrome, and in whom symptoms

worsen following strep. infections such as " Strep throat " and Scarlet

Fever...

Here is the link to the NIH web page on PANDAS.

http://intramural.nimh.nih.gov/research/pdn/web.htm

By the way, our child has tested positive for strep for months... it kept

coming back after rounds of antibiotics... (finally, the last check we did

he was at 200, which was the highest his ASO could be and still be in the

normal range), so it looks like we may be dealing with chronic strep. Dr.

Goldberg is considering putting our son on erythromycin for a while to see

if it helps him. I mentioned this because I seem to MAYBE remember him

saying that the med the NIH recommends is not to his liking.

Caroline

> On 10/7/02 6:23 PM, " shouttothenorth2 " <Gardendaisy@...> wrote:

> Just thought I'd post a note on this group to see if anyone knew the

> answer. A friend of mine's son suffers from ADHD and now they say he

> may have asbergers. He had strep last week and developed a tic

> afterwards. He was on amoxicillin and the doctors and pharmacists

> say that there was nothing dangerous about mixing his anibiotic and

> other medicine's. So why did he develop this tic (he's been bending

> his head forward and humming)? Will this go away? Could the strep

> have caused this?

>

> If anyone has any answers, maybe I could be of some help to a

> friend. Thank you so much.

[Guest guest]

Thanks for all the responses on the Pandas. I wonder if a child has sensory

integregation and develops a tic after having strep, would that mean they

could have the Pandas disorder? I'm not sure if this child has ocd or not.

Or even the tic, could that be the start of a tic disorder? I thought

probably not since it started right after the strep. Well, another strep

test result should be ready tomorrow, so I'll see what she says then.

In a message dated 10/9/2002 6:19:34 PM Eastern Daylight Time,

sfglover@... writes:

> http://intramural.nimh.nih.gov/research/pdn/web.htm

>

[Guest guest]

<PRE>i think it's melasma. i've seen some tv ads about it. i sent away for info

on

it and it seemed to be bleaching the skin. so i didn't look at it anymore. i

am hoping being off prednisone i will settle my skin. kathy in il

[Guest guest]

Hey, Tess,

On this website: http://www.dermnetnz.org/index.html

they have Melasma listed ..... might that be it?!?!???

Lynne

> Hi...Does anyone have information on a skin condition called

something

> like 'misasma'?

>

> Love...

>

> Tess

[Guest guest]

>The Lakeview School in Edison .. I believe that is a special education school

>mainly dealing with cerebral palsy am i correct or has that changed?

>

> Thanks Group!! Kerry

Yes, that is correct. They are actually the EI program that is giving my

son his 2Xweek home therapy.

-Lis, Brittany and (31 mos, verbal apraxia)

[Guest guest]

Hello, Jane!

I enjoyed the card, thank you. With the help of my sons, we got all ten.

They were yelling at me to go faster though.

SLE = systemic lupus erythematosus (a rheumatic disease often referred

to simply as " lupus " )

[ ] question

>

> Hi! everybody,

>

> What is sle?Did you like my greeting card? how many did you

get?

>

>

>

>

Jane

[Guest guest]

In a message dated 11/14/2002 12:29:42 AM Eastern Standard Time,

katkan2001@... writes:

> SWOLLEN ALL THE WAY UP TO MY KNEES . HAS THIS EVER HAPPENED TO ANYONE ELSE?

> I NO LONGER AM ON PREDISONE BUT I TAKE BEXTRA

Sounds like edema...not just 'simple' swelling from RA. Generally, our

joints swell, as well as a small surrounding area. But, swelling from your

ankles to your knees is not 'normal.' Bextra, as well as Celebrex and Vioxx,

are well-known for having edema as a side-effect. I'm surprised your RD

doesn't know this. How is your blood pressure? If it were me, I'd stop the

Bextra for a couple of weeks and see if the swelling resides. Of course, run

it by your RD first. But, edema is not a good side-effect and can get worse.

Good luck!

Patty/NJ

[Guest guest]

<PRE>my feet swell, but not my legs that i have noticed. my dr's told me all i

can

do is keep my feet above my heart. i hope the lasix works. kathy in il

[Guest guest]

Nice to hear from you, Kathy! I'm happy to hear you finally got off the

prednisone. I know how much you wanted to.

Any of the three meds you listed can cause peripheral edema. Some

antidepressants can cause edema, too. It could also be an unfortunate

combination. I hope you and your rheumatologist can figure it out. We've

had a lot of similar reports lately.

Have you asked your pharmacist about it? Were any of your meds added

recently?

[ ] QUESTION

>

> HI I HAVEN'T WRITTEN IN ALONG TIME . SO I THOUGHT IS WAS ABOUT TIME I

DID, WHAT A TIME TO DECIDE THAT AS I JUST HAD SURGERY ON MY RIGHT HAND,

SO HERE I AM PECKING AWAY . I JUST WANT TO KNOW IF THE RA CAUSES US TO

SWELL? I USAULLY HAVE BAD SWELLING OF MY FEET BUT THIS TIME I WAS

SWOLLEN ALL THE WAY UP TO MY KNEES . HAS THIS EVER HAPPENED TO ANYONE

ELSE? I NO LONGER AM ON PREDISONE BUT I TAKE BEXTRA, ARAVA AND I HAVE

THE REMICADE INFUSIONS. IF ANYONE HAS EVER EXPERIENCED THIS PLEASE LET

ME KNOW. I CALLED MY DR. AND SHE CALLED IN LASIX(NOT SURE OF THE

SPELLIN) FOR ME. ANOTHER PILL UGH I HATE THAT. ALSO HOW DO WE GET OVER

BEING SO DARNED DEPRESSED OVER GAINING ALL THIS WEIGHT? I HAVE GAINED

45LB. WHILE ON THE PREDISONE. I TAKE AN ANTIDEPRESSENT BUT I LOOK AT

MYSELF AND JUST HATE THE WAY I LOOK. WELL DIDNT MEAN TO WRITE A LETTER.

PLEASE EMAIL ME IF YOU KNOW ABOUT ANY OF THIS, I HAD TO SIT FOR TWO DAYS

WITH MY LEGS PROPPED UP FOR THE SWELLING TO GO AWAY.

>

> KAT IN FLA.

[Guest guest]

>

> Medical science seems to feel that RA is autoimmune and OA is wear

> and tear. Are there any documented cases of people who have

*both*?

Oh, surely. Lots of us ol' fogies get the privilige of having

both. OA isn't uncommon as one gets older. I haven't read of

antibiotics doing much for it, as the mycoplasma theory wouldn't

enter into the OA equation, or not in any way that I would know of.

Mark

[Guest guest]

Hi Deb,

>In all my searching on the internet and reading of your informative

>posts, I've seen nothing that indicates any benefit for

>osteoarthritis from antibiotic treatment

Dr. Brown said that a significant percentage of osteoarthritis cases have a

rheumatoid component - in those cases the antibiotic approach would have

benefit.

Dr. Gabe Mirkin treated his wife successfully for osteoarthritis with

doxycycline.

Here is one of his articles on the subject:

DOXYCYCLINE FOR ARTHRITIS

The antibiotic, doxycycline, is used to treat only some types of arthritis.

Several recent papers show that it should be included in the treatment of most

cases of arthritis.

Arthritis means pain in the joints. Pain can be caused by trauma such as an

accident, crystals in the joint fluid as in gout, and the two most common types

called reactive arthritis and degenerative arthritis. The conventional treatment

for arthritis is highly unsatisfactory. Doctors prescribe nonsteroidals such

as ibuprofin which block pain, but also help to increase the rate that cartilage

is destroyed. When a patient has severe joint damage, the doctor prescribes

immunosuppressants, such as methotrexate, which inhibit immunity and shorten

life.

The current theory is that the body's own immunity destroys the joints. Why

should the immunity be so stupid that it destroys joints instead of attacking

germs? All tests for arthritis are measures of an immunity that is too active.

Rheumatoid factor is an antibody against your own antibodies. ASO and CRP and

Lyme tests are antibodies against bacteria. There are more than 25 different

germs that are known to cause arthritis. The most common cause of arthritis

in people under 40 is chlamydia or mycoplasma, often a venereal disease. Several

recent papers, including one from the current Journal of Rheumatology, show

parts of chlamydia in the joint fluids of people with this type of arthritis

(1).

People with arthritis and who have negative blood tests for arthritis ar often

told that they have degenerative arthritis. Several recent papers show that

the antibiotic doxycycline, helps to prevent joint breakdown in osteoarthritis

(2)

So, it is reasonable to treat people with reactive or osteoarthritis with 100

mg of doxycycline per day. It usually takes more than 2 months for the joint

pain to subside and the pain often returns when they stop taking the antibiotic.

Doxycycline is safer than the other drugs used to treat arthritis.

1) JSH Gaston, KHO Deane, RM Jecock, JH Pearce. Identification of 2 Chlamydia

trachomatis antigens recognized by synovial fluid T cells from patients with

Chlamydia induced reactive arthritis. Journal of Rheumatology 23: 1 (JAN

1996):130-136.

These are the first 2 chlamydial antigens to be identified as targets of the

synovial T cell response in chlamydia induced ReA. Both have properties that

are shared with target antigens identified in ReA induced by enteric infection

and relevant to the pathogenesis of joint inflammation.

2) LP Yu, DB Burr, KD Brandt, BL Oconnor, A Rubinow, M Albrecht. Effects of

oral doxycycline administration on histomorphometry and dynamics of subchondral

bone in a canine model of osteoarthritis. Journal of Rheumatology 23: 1 (JAN

1996):137-142. Doxycycline protects against joint breakdown in this OA model

via inhibition of matrix metalloproteinases in articular cartilage, rather than

through an effect on subchondral bone.

Chris.

[Guest guest]

Dear ,

My daughter, who has multiple sclerosis along with systemic scleroderma, has,

for nearly two years now, taken the immune suppressant drug Avonex right along

with the minocycline. Her AP doctor approved this because (in his words) " It

doesn't suppress the system enough to keep the antibiotics from working. "

(Whatever that means, or if it makes any sense.) However, for the last couple

of months, without telling her doctor, she has stopped the Avonex. Don't know

yet how this will affect her.

Ellen McCool

rheumatic question

hi everyone...i just posted a couple days ago about getting

minocyclone prescription from my doc. he is not willing to help me

and does not believe it works. but at least i got him to give me

the prescription. i am not having any luck in finding any info. on

usng AP with IV immunoglobulin or cell cept (immunosuppressive). no

one had answered my post...maybe because these are questions i need

to ask an AP doc..but any clues or input would be great. i was

wondering if anyone had any ideas of where i could look for more

info. on using AP with immunosuppression until am able to get off

of them. also...i think i remember someone mentioning that there

was a doc that does phone consultation? i live in rochester, ny in

the US and will continue to look for a doc here that will at least

work with me. but until then i'm on my own i guess : \. please if

anyone has any idea of where to look for more info. i would

appreciate it. thank u!!

thoughts of healing to everyone

rachael

To unsubscribe, email: rheumatic-unsubscribeegroups

[Guest guest]

Hi ,

Here are the NY docs we have listed:

Stuart L. Weg, M.D. - Anesthesiologist

above Grand Central Station in NYC

845-357-3554 (not sure phone number is correct)

Ralph J. Argen, M.D. (RHU – 1957)

2427 Sheridan Drive AMA list shows 3140 Sheridan Dr.

Tonawanda, NY 14150 Buffalo, NY 14226

P: 716-832-2920

Adriene F. Buffaloe, M.D. - Emergency Med. - 1983

New York, NY

P: 212-355-2315 cannot verify address or phone number

L. Hoffman, M.D., Nutrition 1983

40 East 30th St.,

New York, NY 10016.

P: 212-779-1744.

Bruce D. Oran, DO – Emergency Med - 1980

Two Executive Blvd, Suite 202,

Suffern, NY 10901.

P: 914-368-4700.

E. , M.D. (RHU – 1977)

Hospital for Joint Diseases,

Scarsdale, New York 10583

C. Van de Wall (RHU - 1989)

Olean Medical Group,

535 Main St.,

Olean NY 14760.

P: 716-372-0141

Max I. Hamburger, M.D. – Rheumatologist

1895 Walt Whitman RD

Melville, Long Island, NY 11747

P: 631-249-9525

G. Mazlen, MD – IM 1963

148 Tulip Ave.

Floral Park, NY 11001

P: 631-352-9483

R. Cellino, M.D.

6195 W. Quaker St.

Orchard Park, NY 14127-2640

P: 716-662-6863

Cima, M.D. – (Rheumatologist)

877 Avenue

Garden City NY 11530

P: 516-222-1000

Meed, M.D. (Rheumatologist)

Integrative Arthritis & Healthcare Associates

270 West End Ave.

New York, NY

P: 212-496-5508

F: 212-760-1912

Cutler, MD (GP) - oral, IV or IM

652 Elmwood Ave.

Niagara Falls, NY 14302

P: 716-284-5140

Carsons, M.D.

800 Church Rd.

Saugerties, NY 12477

P: 914-679-8532

F: 914-247-8117

Chris.

>hi everyone...i just posted a couple days ago about getting

>minocyclone prescription from my doc. he is not willing to help me

>and does not believe it works. but at least i got him to give me

>the prescription. i am not having any luck in finding any info. on

>usng AP with IV immunoglobulin or cell cept (immunosuppressive). no

>one had answered my post...maybe because these are questions i need

>to ask an AP doc..but any clues or input would be great. i was

>wondering if anyone had any ideas of where i could look for more

>info. on using AP with immunosuppression until am able to get off

>of them. also...i think i remember someone mentioning that there

>was a doc that does phone consultation? i live in rochester, ny in

>the US and will continue to look for a doc here that will at least

>work with me. but until then i'm on my own i guess : \. please if

>anyone has any idea of where to look for more info. i would

>appreciate it. thank u!!

>

>thoughts of healing to everyone

>

>rachael

>

>

>

>To unsubscribe, email: rheumatic-unsubscribeegroups

>

>

>

[Guest guest]

LOL Debbie!! Thanks!

In a message dated 11/21/2002 10:20:59 AM Eastern Standard Time, dj2kirby@... writes:

Oh :

You need to relax hun!!!!!!!!!!! To answer your question, the skull

will be somewhat malleable until the soft spots close, as you said.

Really though, 's head does look great and I really doubt you

have anything to worry about at age 10 mos with regression

Debbie Abby's mom DOCGrad

MI

hang in there! Oh the worrying never stops does it?

[Guest guest]

Oh :

You need to relax hun!!!!!!!!!!! To answer your question, the skull

will be somewhat malleable until the soft spots close, as you said.

Really though, 's head does look great and I really doubt you

have anything to worry about at age 10 mos with regression

Debbie Abby's mom DOCGrad

MI

hang in there! Oh the worrying never stops does it?

> How long do you have to keep watching to make sure regression

doesn't happen?

> Is it until the soft spots close? Till they are about 2?

>

> Thanks

>

[Guest guest]

Yes, probably somewhere between age 2 and 3 depending

upon the development of the individual child.

Marci

> How long do you have to keep watching to make sure

regression doesn't happen?

> Is it until the soft spots close? Till they are about 2?

>

> Thanks

>

[Guest guest]

In a message dated 11/21/2002 9:23:00 PM Eastern Standard Time, caseydriscoll@... writes:

Our CO told us that regression happens in only 1 out of 300 children

after the band/helmet is removed. Hopefully, those odds will put your

mind at rest. Keep an eye out, but don't worry too much. -Michele

Thanks Michele!! That does make me feel a lot better...

[Guest guest]

Our CO told us that regression happens in only 1 out of 300 children

after the band/helmet is removed. Hopefully, those odds will put your

mind at rest. Keep an eye out, but don't worry too much. -Michele

> How long do you have to keep watching to make sure regression

doesn't happen?

> Is it until the soft spots close? Till they are about 2?

>

> Thanks

>

[Guest guest]

I also asked as my son is very young to be in a STARband (not quite 4 months) and was worried about regression since he'll only be 5 or 6 months old when he gets it off, and our orthotist said that it virtually never happens and not to worry even though he is so young. At his age, I wouldn't worry too much about .

Jodi (Collin, 17 weeks (today!), STARband since 11/5 in CA)

-----Original Message-----From: caseydriscol [mailto:caseydriscoll@...]Sent: Thursday, November 21, 2002 6:22 PMPlagiocephaly Subject: Re: QuestionOur CO told us that regression happens in only 1 out of 300 children after the band/helmet is removed. Hopefully, those odds will put your mind at rest. Keep an eye out, but don't worry too much. -Michele> How long do you have to keep watching to make sure regression doesn't happen? > Is it until the soft spots close? Till they are about 2? > > Thanks> For more plagio info

[Guest guest]

Hi Genine,

Welcome to the group. I've never heard of Anasocoria being associated

with plagio before. Is your consult appt, also your casting

appointment? Have you seen a specialist yet to have craniosynostosis

(premature fusion of the surtures)ruled out?

You may want to call your CT office and ask to be put on a

cancellation list. I think I remember reading that the main office at

CT, the one in AZ, takes some time off in December. You might want to

look into that too. It takes 10-14 days after casting to actually

receive the band. I'm not sure when in December that happens though.

Once again welcome to the group!!

> My dd Mackenzie has Plag. and Tort. In addition to that, one of

her

> pupils is always larger than the other. Her Pediatrician said that

> it has nothing to do with anything and it doesn't affect her vision

> at all. It is called Anesocoria. She said it is just like some

> people have one blue eye and one brown eye. I trust her, but I

just

> wanted to throw it out there, to see if anyone else has this going

> on. I guess I am just a worrier.

>

> We don't get to go to Cranial Tech, for our first consultation,

until

> Dec. 13th and it is driving me nuts! I just want to get this

started

> already!!!!!!

>

> Genine & Mackenzie

> (4 months)

> Atlanta

[Guest guest]

Thanks, ! I have not seen anyone about anything yet! The

Cranial Tech Appointment is just an initial meeting in a group

setting. I just got hooked up with this " Babies Can't Wait " program,

in Georgia. The help to coordinate and sometimes assist

financially. So, I am hoping to get a starting point from one of

these two places. Since our Ped. didn't give me any info at all on

the Plagio or the Torticollis, I am kind of on my own to figure it

all out. That is why I am so glad this group is here!

I do know that her fontanel is really big and definately not fused,

but our Ped never mentioned any concern with the sutures closing

prematurely. You know, as I learn more about this, I am getting mad

that our Ped is taking such a relaxed stance on this issue!!!!!

> Hi Genine,

> Welcome to the group. I've never heard of Anasocoria being

associated

> with plagio before. Is your consult appt, also your casting

> appointment? Have you seen a specialist yet to have

craniosynostosis

> (premature fusion of the surtures)ruled out?

> You may want to call your CT office and ask to be put on a

> cancellation list. I think I remember reading that the main office

at

> CT, the one in AZ, takes some time off in December. You might want

to

> look into that too. It takes 10-14 days after casting to actually

> receive the band. I'm not sure when in December that happens though.

> Once again welcome to the group!!

>

>

[Guest guest]

Genine,

Most of us have or had a pediatrician just like yours! Cranio is

serious. That is why is is ALWAYS good to get it ruled out. There are

a few more sutures in the head other than the " soft spot " on the top

of the baby's head. If your baby has tort, than that is probably what

caused her head to flatten. That is how my baby got plagio. You have

the right to call your ped and ask to be referred to a specialist,

I'd do that soon, b/c it takes a while to get in to see them. If your

baby does have tort, you really should join the tort group too:

Torticolliskids/

Your baby is young enough that you do have some time before she gets

banded. If you can you should really get on your ped and get the ball

rolling!!! The younger a baby is banded, usually the shorter the

treatment time and the better the correction.

> > Hi Genine,

> > Welcome to the group. I've never heard of Anasocoria being

> associated

> > with plagio before. Is your consult appt, also your casting

> > appointment? Have you seen a specialist yet to have

> craniosynostosis

> > (premature fusion of the surtures)ruled out?

> > You may want to call your CT office and ask to be put on a

> > cancellation list. I think I remember reading that the main

office

> at

> > CT, the one in AZ, takes some time off in December. You might

want

> to

> > look into that too. It takes 10-14 days after casting to actually

> > receive the band. I'm not sure when in December that happens

though.

> > Once again welcome to the group!!

> >

> >

[Guest guest]

Thanks Jodi!

I guess i just worry b/c when we were at the craniofacial dr..he told us to just make sure to still keep him off the back of his head...especially the right side...and even when he's sleeping on his stomach to alternate the side his head is turned (which he always sleeps on his stomach..and he does alternate it)...b/c if we don't alternate it...then that could go flat too....

I just worry so much..LOL

In a message dated 11/21/2002 10:57:22 PM Eastern Standard Time, jodi_marfia@... writes:

I also asked as my son is very young to be in a STARband (not quite 4 months) and was worried about regression since he'll only be 5 or 6 months old when he gets it off, and our orthotist said that it virtually never happens and not to worry even though he is so young. At his age, I wouldn't worry too much about .

Jodi (Collin, 17 weeks (today!), STARband since 11/5 in CA)

-----Original Message-----