Question

[Guest guest]

I posted some pictures of in a folder I called....KYLE! Creative

huh?? 2 are ones we took of the top of his head. One is just a

grinning that was really cute!

You know, and too all that responded to me before, I don't know if

this doctor would be manipulating the plates in 's head but I

can't see where spinal manipulation would do anything and that's the

kind of thing he does.

But I still don't like him and will stand my ground!!

V

5/25/2004

--- In Plagiocephaly , " stripes6060 " <taime@o...>

wrote:

> ,

> I agree with everyone else, go with your gut! Can you post pics of

> your baby?

>

[Guest guest]

I took my son to a chiropractor when we noticed him always turning his head to one side. He had 2 adjustments and it did help a bit but that did not help the flat spot--seemed to just loosen his neck up a bit.

Lori <hvitas@...> wrote:

I posted some pictures of in a folder I called....KYLE! Creative huh?? 2 are ones we took of the top of his head. One is just a grinning that was really cute! You know, and too all that responded to me before, I don't know if this doctor would be manipulating the plates in 's head but I can't see where spinal manipulation would do anything and that's the kind of thing he does.But I still don't like him and will stand my ground!! V 5/25/2004> ,> I agree with everyone else, go with your gut! Can you post pics of > your baby? > For more plagio info

[Guest guest]

I have to ask, what the heck does having seen worse have to do with

anything? That's a pretty offensive thing to say, in my opinion. Your

PD is dealing with YOUR child, not the child she saw last week or

last month. She needs to deal with HIS issue and not compare him to

others just to get you out of her hair.

I'm a little sensitive on this because I was told the same thing

about my son. I'm sure they had seen worse. So what? Turns out they

just didn't want the HMO to pay for a helmet. Stick to yer guns, and

go with yer gut. Dr. X sounds freaky. There may be other doctors who

can do manipulation (it's called craniosacral therapy and some plagio

moms swear by it). Helmets have been scientifically proven, though--

probably your best bet if repo doesn't work. Good luck.

, 21 mos, DOC Band 5/7

>

> > My son, who is 3 months old, still has a flat spot on the left

side

> > of his head. We have asked the PD about it and she says not to

> worry,

> > it won't hinder brain development and she has seen A LOT worse.

She

> > also gave us an excercise to do with and told us to try to

> make

> > him sleep on the right side of his head, which is easier said

then

> > done.

> >

> > Well my husband's mom works for a doctor who does joint

> > manipulations. Personally I think he's just a glorified

> chiropractor

> > but.....

> > So yesterday I had some friends over to do some scrapbooking and

my

> > husband took over to his mother's. He comes home and

> says " What

> > would you think about taking to Dr. X " (I can't spell his

> name).

> > I'm a little apprehensive about some doctor manipulating the

skull

> > plates in my son's head. I mean I don't want him to have the flat

> > spot either but I don't want more damage caused. Not to mention

> this

> > doctor MAY be out of business soon because the medical board is

> > trying to close him down. I went to him once and I won't go

again.

> I

> > didn't get a good vibe from him. I was VERY uncomfortable. SO I'm

> not

> > too keen on taking my son to him.

> >

> > I'm not sure if has Plagiocephaly. None of his facial

features

> > are distorted and his forhead is fine. It's just one spot on the

> back

> > of his head.

> >

> > Thanks for listening and any advice will be appreciated.

> >

> > V

> > 5/25/2004

[Guest guest]

None of my son's facial features are distorted either. It is just the

back of his head that is flat. He is getting his band tomorrow!

Marcy

New Jersey

Mom to -getting Doc Band tomorrow

> I'm not sure if has Plagiocephaly. None of his facial features

> are distorted and his forhead is fine. It's just one spot on the

back

> of his head.

>

> Thanks for listening and any advice will be appreciated.

>

> V

> 5/25/2004

[Guest guest]

Hi ,

I moved 's photos into a folder titled V and it's in the Our

plagio kids folder. He is a cutie, what a little doll, thanks for

sharing his pic with us. From the looks of his head, I'd say he does

have plagio.

> > ,

> > I agree with everyone else, go with your gut! Can you post pics

of

> > your baby?

> >

[Guest guest]

Hello ,

Welcome to the group.

I looked at 's pics, and he is adorable. I also do think that he

has plagio. At his age you can try agressive repo, and see if you

have sucess with that. Meanwhile you can see if you can grab an

appointment with a specialist to see about the severety of his

plagio. Take wkly pictures so you have something to compare to.

Oh, and if you do not like Dr. X, than I would certainly not take him

thre.

Sandy Willow's Mom

> My son, who is 3 months old, still has a flat spot on the left side

> of his head. We have asked the PD about it and she says not to

worry,

> it won't hinder brain development and she has seen A LOT worse. She

> also gave us an excercise to do with and told us to try to

make

> him sleep on the right side of his head, which is easier said then

> done.

>

> Well my husband's mom works for a doctor who does joint

> manipulations. Personally I think he's just a glorified

chiropractor

> but.....

> So yesterday I had some friends over to do some scrapbooking and my

> husband took over to his mother's. He comes home and

says " What

> would you think about taking to Dr. X " (I can't spell his

name).

> I'm a little apprehensive about some doctor manipulating the skull

> plates in my son's head. I mean I don't want him to have the flat

> spot either but I don't want more damage caused. Not to mention

this

> doctor MAY be out of business soon because the medical board is

> trying to close him down. I went to him once and I won't go again.

I

> didn't get a good vibe from him. I was VERY uncomfortable. SO I'm

not

> too keen on taking my son to him.

>

> I'm not sure if has Plagiocephaly. None of his facial features

> are distorted and his forhead is fine. It's just one spot on the

back

> of his head.

>

> Thanks for listening and any advice will be appreciated.

>

> V

> 5/25/2004

[Guest guest]

heather,

is very cute! Thanks for sharing.

mom to na <hvitas@...> wrote:

I posted some pictures of in a folder I called....KYLE! Creative huh?? 2 are ones we took of the top of his head. One is just a grinning that was really cute! You know, and too all that responded to me before, I don't know if this doctor would be manipulating the plates in 's head but I can't see where spinal manipulation would do anything and that's the kind of thing he does.But I still don't like him and will stand my ground!! V 5/25/2004> ,> I agree with everyone else, go with your gut! Can you post pics of > your baby? > For more plagio info

[Guest guest]

Hi ,

My daughter Mia had surgery in July aged 4 and we explained to her that she was going in for an operation to make her eyes bigger and she was fine about this. We had no problem taking her and settling her in to hospital as she knew she was going and that mummy was staying with her. Also the fact that lots of friends and family came to visit her was a great help. Occassionally she would have a question about the operation but we would try and answer as simply and truthfully as possible in order for her to understand and not be frightened. She was absolutely fine and loves her new eyes.

In addition I also had my first operation at 3 and all I remember was receiving lots of presents and kind nurses.

Thanks

e.

blepharophimosis Question

Hi All,I have a question for anyone who has had experience with a preschool aged child who was going to have surgery. My daughter just turned three and is scheduled to have surgery in about three weeks. What I was wondering was, did you tell your young children what was going to happen or just go (to surgery)and let them be none the wiser? is pretty smart but it still might be hard for her to comprehend what was really going to happen. Any advice?God BlessThanks,

[Guest guest]

In a message dated 10/14/2004 2:53:28 PM Central Daylight Time, JDGLIBRA@... writes:

I have been on 3mgs of LDN for a couple of weeks and am considering

taking the higher dose of 4.5mgs. The other day I took 3.5 just on a

whim. The tightness in my legs was amazing! Very uncomfortable

feeling, almost like when one gets a bad sunburn and tries to move

and your skin hurts with that tight feeling. Anyone know what I

mean? In any event, it wasn't a good feeling. So the next day I

made sure to take only 3mgs. Now I am afraid to take 4.5. I

realize everyone here is different with different outcomes, but

should I try the 4.5 or stick with 3mgs? And, does that feeling go

away after taking the higher dose for a few days? Any suggestions?

Joan

Dear Joan,

There is always a stiffness if the dosage is to strong. I would wait a while longer and try it again. If it happens again maybe your right dosage would be the 3.0. I took a little bit stonger the other night and my stiffness was just a little bit so I still stayed at that dosage and the next day I was fine. Just remember that we are all different so your dosage may always be at the 3.0. Dr. B says that some people have enough at the 3.0. Maybe in a month or so you can try it again.

Good luck Sweetie and hang in there. As long as the 3.0 is working that is good.

Love you and hugs

CJ

MS is like a rollercoaster-

It has its ups and downs.

I have been on 3mgs of LDN for a couple of weeks and am considering

taking the higher dose of 4.5mgs. The other day I took 3.5 just on a

whim. The tightness in my legs was amazing! Very uncomfortable

feeling, almost like when one gets a bad sunburn and tries to move

and your skin hurts with that tight feeling. Anyone know what I

mean? In any event, it wasn't a good feeling. So the next day I

made sure to take only 3mgs. Now I am afraid to take 4.5. I

realize everyone here is different with different outcomes, but

should I try the 4.5 or stick with 3mgs? And, does that feeling go

away after taking the higher dose for a few days? Any suggestions?

Joan

[Guest guest]

>

> I have been on 3mgs of LDN for a couple of weeks and am considering

> taking the higher dose of 4.5mgs. The other day I took 3.5 just on a

> whim. The tightness in my legs was amazing! Very uncomfortable

> feeling, almost like when one gets a bad sunburn and tries to move

> and your skin hurts with that tight feeling. Anyone know what I

> mean? In any event, it wasn't a good feeling. So the next day I

> made sure to take only 3mgs. Now I am afraid to take 4.5. I

> realize everyone here is different with different outcomes, but

> should I try the 4.5 or stick with 3mgs? And, does that feeling go

> away after taking the higher dose for a few days? Any suggestions?

>

> Joan

===============

For some people that tight feeling does eventually go away. For some it does

not. I stretched my calf muscles daily in the pool and in about 7 days that

tight drawn up calf feeling left me for good but I still stretch those muscles

every day.

Bren

[Guest guest]

Hi Joan, Your results after taking 3.5 leads me to believe you should stick with 3mg for a longer period before attempting 4.5. I was at 3mg for 8 months before my body told me it was time to move up to 4.5. Are you getting results from taking 3.0? It's amazing what our bodies can tell us, don't rush into the next dose. You'll know when you're ready! Good luck

From: OldMSProCJ1@... [mailto:OldMSProCJ1@...] Sent: Thursday, October 14, 2004 5:19 PMlow dose naltrexone Subject: Fwd: [low dose naltrexone] Question

In a message dated 10/14/2004 2:53:28 PM Central Daylight Time, JDGLIBRA@... writes:

I have been on 3mgs of LDN for a couple of weeks and am considering taking the higher dose of 4.5mgs. The other day I took 3.5 just on a whim. The tightness in my legs was amazing! Very uncomfortable feeling, almost like when one gets a bad sunburn and tries to move and your skin hurts with that tight feeling. Anyone know what I mean? In any event, it wasn't a good feeling. So the next day I made sure to take only 3mgs. Now I am afraid to take 4.5. I realize everyone here is different with different outcomes, but should I try the 4.5 or stick with 3mgs? And, does that feeling go away after taking the higher dose for a few days? Any suggestions?JoanDear Joan,There is always a stiffness if the dosage is to strong. I would wait a while longer and try it again. If it happens again maybe your right dosage would be the 3.0. I took a little bit stonger the other night and my stiffness was just a little bit so I still stayed at that dosage and the next day I was fine. Just remember that we are all different so your dosage may always be at the 3.0. Dr. B says that some people have enough at the 3.0. Maybe in a month or so you can try it again.Good luck Sweetie and hang in there. As long as the 3.0 is working that is good.Love you and hugs CJMS is like a rollercoaster-It has its ups and downs.

[Guest guest]

--- In low dose naltrexone , " Baden " <lbaden@t...>

wrote:

Your results after taking 3.5 leads me to believe you should stick

with 3mg for a longer period before attempting 4.5. I was at 3mg for

8 months before my body told me it was time to move up to 4.5.

Thanks and anyone else who replied. I think I WILL hold off

on increasing my dosage for a while. I guess I was just anxious!

And yes, , I am getting some results, like extra energy. And

that is a big plus in my book. Thanks again!

Joan

[Guest guest]

Patti, you have to deal with that infection first before your body can

benefit from the AP for your arthritis. I believe Dr. Brown says you can

safely stop the Minocin without losing any ground for up to a month.

Hope you're feeling better soon,

rheumatic Question

>

> I began to get a throat infection on Saturday which started as an annoying

tickle. By Sunday evening, I couldn't speak. My throat felt like someone

had taken a razor blade to it. Reluctantly, I went to my GP on Monday

morning. I tested negative for strep, but she said she was going to treat

it like strep because it looked so bad. She put me on thirty days of

amoxycillin, and she told me to discontinue my mino while on the month-long

treatment. Should I go ahead and continue the AP treatment anyway? (I don't

want to lose any ground.)

> Any feedback would be appreciated.

> Patti

>

>

[Guest guest]

Guyz,

I regularly go off AP to give my digestive tract a break and I am slowly

getting better. My flares have been less and less problematic over the last

year. I have explained my probably flawed theory here before but logically

it makes more sense than a continual assult on your entire being.

If you think that taking acidopholis pills while taking mino is gonna make

things right you are only fooling yourselves. Every dose that you take

requires quite a bit of time to leave your body. In fact when you are doing

the MWF thing it is very likely that the only time your body is getting any

kind of break is sometime late sunday and even then there is probably a

small amount of it actively doing it's job.

I have been off it for weeks before just to get what I call lava (insert

your favorite name for excrement) to go away. If I stay on mino for months

without a break, which I have before, I can't eat without feeling just plain

horrible and getting a very itchy, raw and painful butt crack. There are

other symptoms that arrise while on it long term that go away when I take a

break such as numb feet, constant indigestion, painful muscle groups that

have done no recent heavy lifting, popping and clicking jaw joints.

The list of things is too long to bother with here at the moment but rest

assured that living constantly on mino without giving your body a break is

definately not good JMHO.

Jeff

[Guest guest]

Jeff,

You wrote:

" I regularly go off AP... [snip] If you think that taking acidopholis pills

while taking mino is gonna make things right you are only fooling

yourselves. Every dose that you take requires quite a bit of time to leave

your body. In fact when you are doing the MWF thing it is very likely that

the only time your body is getting any kind of break is sometime late sunday

and even then there is probably a small amount of it actively doing it's

job. [snip] There are other symptoms that arrise while on it long term that

go away when I take a break such as numb feet, constant indigestion, painful

muscle groups that have done no recent heavy lifting, popping and clicking

jaw joints. "

This last description sounds like it could be herxing. If so, you may want

to reconsider your therapeutic gut breaks, and what looks like it may be a

very limited approach to replenishing beneficial ggut bacterium.

The published pharmacology for minocin reveals the circulatory life of the

drug. For example, within minutes after injection of 200 mg IV, the serum

level of the drug averaged 4.10 mg/mL, but 12 hours later it had dropped to

1.8 mg/mL and at 24 hours it had dropped to 1 mg/mL. Averages don't tell

the whole story, of course, as the test levels ranged from 0.82 to 2.64

mg/mL at the 12-hour point; there are huge individual differences.

Read the monograph here for more details:

http://www.rxlist.com/cgi/generic2/minocyclineinj_cp.htm

You will note from reading the group posts and FAQ that acidopholis pills

are not recommended for repopulating beneficial gut bacterium. The human

gut hosts well over 50 distinct beneficial bacterium, of which L.acidopholis

is but one. Included in the list of beneficial bacterium are those passed

exclusively through being nursed at birth, and others which enter the gut

via raw vegetables such as salads. Additionally, although minocin will have

a negative impact on gut bacteria while " in contact " in the digestive tract,

the minocin leaves the digestive tract and enters circulation leaving a

remnant of live bacterium in the gut. Also, there are issues as to where

the bacterium live and the amount of minocin in-contact due to its passage

into the circulatory system. Intermittent dosing with minocin and constant

replensihment of the RANGE of bacterium through proper supplementation

should tend to build up and keep preferred bacterium at beneficial levels.

Geoff

soli Deo gloria

www.HealingYou.org - Your nonprofit source for remedies and aids in fighting

these diseases, information on weaning from drugs, and nutritional kits for

repairing adrenal damage; 100% volunteer staffed.

(Courtesy: Captain Cook's www.800-800-cruise.com)

[Guest guest]

Jeff,

I forgot to mention, if you check the side effects (tab) of minocin on site

I posted, you may well find that you need to be using a different drug than

minocin, such as doxycycline. The side effects sound like a laundry list of

what you described.

Remember, the therapy has to be tailored to every individual.

Geoff

soli Deo gloria

www.HealingYou.org - Your nonprofit source for remedies and aids in fighting

these diseases, information on weaning from drugs, and nutritional kits for

repairing adrenal damage; 100% volunteer staffed.

(Courtesy: Captain Cook's www.800-800-cruise.com)

[Guest guest]

The pharmacist told me there was a problem in taking amox and mino

together - he said one reduced the efficacy of the other.

On Tuesday, October 26, 2004, at 07:59 AM, Patti McCool wrote:

> I began to get a throat infection on Saturday which started as an

> annoying tickle.  By Sunday evening, I couldn't speak.  My throat felt

> like someone had taken a razor blade to it.  Reluctantly, I went to my

> GP on Monday morning.  I tested negative for strep, but she said she

> was going to treat it like strep because it looked so bad.  She put me

> on thirty days of amoxycillin, and she told me to discontinue my mino

> while on the month-long treatment.  Should I go ahead and continue the

> AP treatment anyway? (I don't want to lose any ground.)

> Any feedback would be appreciated.

> Patti 

>

>

[Guest guest]

Hi, Patty1

Sally here!

I would definitely get off the other AP while on Amoxycillin OR cut down

drastically-Man, I was one sick woman when my rheumie tried to make me stay

on daily AP (doxycycline and erithromycin) AND take other antibiotics-it was

NOT worth it and I would just discontinue my reg AP and take the big guns as

prescribed and start back on my daily AP AFTER I finished my amoxycillin or

Tequin, etc.

Just my opinion & good luck to you!

Sally in Little Rock

rheumatic Question

>

> I began to get a throat infection on Saturday which started as an annoying

> tickle. By Sunday evening, I couldn't speak. My throat felt like someone

> had taken a razor blade to it. Reluctantly, I went to my GP on Monday

> morning. I tested negative for strep, but she said she was going to treat

> it like strep because it looked so bad. She put me on thirty days of

> amoxycillin, and she told me to discontinue my mino while on the

> month-long treatment. Should I go ahead and continue the AP treatment

> anyway? (I don't want to lose any ground.)

> Any feedback would be appreciated.

> Patti

>

>

[Guest guest]

It is Revia and is available from Medsmex without a prescription.

----- Original Message -----

From: Rhonda

low dose naltrexone

Sent: Monday, November 22, 2004 11:33 AM

Subject: [low dose naltrexone] question

I read a post earlier today saying 50mg of Naltrexone was on medsmex.com but I didn't see it when I looked. Is it called something else? Can you get this without a prescription? ThanksRhonda

[Guest guest]

it is available.....its called..... REVIA.......dave UKI read a post earlier today saying 50mg of Naltrexone was on medsmex.com but I didn't see it when I looked. Is it called something else? Can you get this without a prescription? ThanksRhonda

[Guest guest]

I have attached the sample.

[Guest guest]

Dear Kooky,

At Google, type in: dry eyes evening primrose oil, you will see

97,600 references...

Also type in: arthritis evening primrose oil, and find 137,00

references.

Take your pick }:0)

Regards,

> I have been on Ap (minocin and IV's) for 7 years. I have had dry

eyes since

> then. I have been tested for Sogrins (sp) and it was negative. Had

plugs put

> in the tear ducts and have used every OTC and some prescription

eye meds.

>

> Since December my eyes have gotten much worse. By 6PM I can

hardly watch

> TV. Reading is out of the question and doing puter work is

horrible. My

> insurance now wants a copay of $50 to see a specialist and the GP

will not

> treat me. I saw an ENT(specialist) in March..he gave me drops and

said if

> they don't work ask at the desk for another kind till I find one

that works

> (samples). When I went back to try another sample he said I needed

to be

> tested for Sogrins again since he did not do the original and then

maybe he

> will try me on Restasis. No more samples for me

>

> I cannot keep paying the creep $5o a month!

>

> Sooo do any of you have a good treatment...eye drop that works or

help of

> any kind??

>

> Thank for listening.

>

> cooky

[Guest guest]

:

I can't speak for others, but I have had nothing but throat/tonsil problems

for a while now. Earlier this year, my tonsils had swollen up so badly that

they were touching at the back of my throat. I had them removed 4 weeks

ago because swallowing was becoming difficult. Another problem with my

throat is that I have developed a nodule or node on my voice box and my

voice is very raspy and cuts in and out when I talk. The more I flare, the

worse it becomes.

Hope this helps...

-- In , " kelly donovan " <jamymad@c...>

wrote:

>

> When you all go into a flare up does anyones throat swell up and close?

> Thanks for any info

>

> ---NJ

>

>

>

[Guest guest]

Really late on response here. Sorry. My throat does swell when my neck

goes into a flare. It doesn't completely close up but enough for me to

notice, plus I need to take a muscle relaxer during these times or the

neck pain with make my shoulder and head really bad. . I have found

that I must be careful when chewing and not be in a rush which I do

sometimes when I have other things on my mind. I choked once, that was

enough for me to learn my lesson. If your throat is closing up, you may

want to check with your dr about it.

in Ct.

kelly donovan wrote:

>

> When you all go into a flare up does anyones throat swell up and close?

> Thanks for any info

>

> ---NJ

>

[Guest guest]

Nope, not from the manufacturers, but possibly some are affiliated with the

shady side of that. We just don't know. We do know that some are breast

implant women who want more power than they could legitimately have doing

the kind of work we have been doing.

Lynda

At 08:47 PM 6/19/2005, you wrote:

>Question for management: I remember when there were fakes invading

>Ilena's mail years ago when she used to send a lot of mail for support,

>going way back. Are those same fakes from the manufacturers coming in

>here a lot to make trouble for us? Have you had many of this happening?

>

> " Dogs are not our whole life, but they make our lives whole. " - Caras

>

>

>

>

>

>Opinions expressed are NOT meant to take the place of advice given by

>licensed health care professionals. Consult your physician or licensed

>health care professional before commencing any medical treatment.

>

> " Do not let either the medical authorities or the politicians mislead you.

>Find out what the facts are, and make your own decisions about how to live

>a happy life and how to work for a better world. " - Linus ing,

>two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)

>

>