Re: Must stop Xolair due to cost

[Guest guest]

Carol, I have tried to wean off of Xolair but the itching all over that I

experience is so terrible until I have to go back on it. Fortunately, I tried

to wean off while I still had some left and it was horrible. If you have

allergies they are sure to surface once you stop. I have 6 more boxes and I am

tempted to use 2 instead of 3 to stretch out the shots.

----- Original Message -----

From: Carol <floridabouvs@...>

xolair users < >

Sent: Tue, 15 Mar 2011 18:34:25 -0000 (UTC)

Subject: [ ] Must stop Xolair due to cost

I have tried everything that has been suggested to me, but I can't afford more

than $1,000 every 3 months, and I don't qualify for assistance. Not wealthy

enough, and not poor enough. The Middle Class anthem.

Does anyone know how I could find out about weaning off Xolair and what to

expect? Genentech is very unhelpful. They say I have to get that through my

doctor. He has no information to offer.

Thanks.

Carol

[Guest guest]

Im curious, what is the " itching " that you say you had while weaning off of

Xolair.  Was this a " withdrawal " type of reaction you had or was this something

that you had that necessitated the Xolair shots in the first place.  Also, how

long have you been off of Xolair?  I brought this up to my infusion nurse in the

past and she said that there is no weaning, but there is a return to prior Ige

levels and thus the prior problems.

________________________________

From: Gwendolyn Rafter <gwen5052@...>

xolair users < >

Sent: Tue, March 15, 2011 3:53:25 PM

Subject: Re: [ ] Must stop Xolair due to cost

Carol, I have tried to wean off of Xolair but the itching all over that I

experience is so terrible until I have to go back on it.  Fortunately, I tried

to wean off while I still had some left and it was horrible.  If you have

allergies they are sure to surface once you stop.  I have 6 more boxes and I am

tempted to use 2 instead of 3 to stretch out the shots.

----- Original Message -----

From: Carol <floridabouvs@...>

xolair users < >

Sent: Tue, 15 Mar 2011 18:34:25 -0000 (UTC)

Subject: [ ] Must stop Xolair due to cost

I have tried everything that has been suggested to me, but I can't afford more

than $1,000 every 3 months, and I don't qualify for assistance. Not wealthy

enough, and not poor enough. The Middle Class anthem.

Does anyone know how I could find out about weaning off Xolair and what to

expect? Genentech is very unhelpful. They say I have to get that through my

doctor. He has no information to offer.

Thanks.

Carol

[Guest guest]

Mark, I have ways had problems with itching.  Until I started taking Xolair I

use to take I was taking hydroxizine for itching.  The Xolair took away most of

my allergies.  When I tried to wean off, they all came back.  I still have 6

boxes from my last shipment. I am goingt to try taking 2 and see if I can

stretch them until I can afford a new shipment.

Gwendolyn Rafter

From: mark flash <flash_m@...>

Subject: Re: [ ] Must stop Xolair due to cost

Date: Tuesday, March 15, 2011, 4:03 PM

 

Im curious, what is the " itching " that you say you had while weaning off of

Xolair.  Was this a " withdrawal " type of reaction you had or was this something

that you had that necessitated the Xolair shots in the first place.  Also, how

long have you been off of Xolair?  I brought this up to my infusion nurse in

the

past and she said that there is no weaning, but there is a return to prior Ige

levels and thus the prior problems.

________________________________

From: Gwendolyn Rafter <gwen5052@...>

xolair users < >

Sent: Tue, March 15, 2011 3:53:25 PM

Subject: Re: [ ] Must stop Xolair due to cost

Carol, I have tried to wean off of Xolair but the itching all over that I

experience is so terrible until I have to go back on it.  Fortunately, I tried

to wean off while I still had some left and it was horrible.  If you have

allergies they are sure to surface once you stop.  I have 6 more boxes and I am

tempted to use 2 instead of 3 to stretch out the shots.

----- Original Message -----

From: Carol <floridabouvs@...>

xolair users < >

Sent: Tue, 15 Mar 2011 18:34:25 -0000 (UTC)

Subject: [ ] Must stop Xolair due to cost

I have tried everything that has been suggested to me, but I can't afford more

than $1,000 every 3 months, and I don't qualify for assistance. Not wealthy

enough, and not poor enough. The Middle Class anthem.

Does anyone know how I could find out about weaning off Xolair and what to

expect? Genentech is very unhelpful. They say I have to get that through my

doctor. He has no information to offer.

Thanks.

Carol

[Guest guest]

my dr had me stop xolair for 9 months while pregnant (8 months while preg and 1

month after hunter was born to allow my hormones to level out). there was no

weaning. i just didn't get my next set of shots. no isses (slowly my

allergies/asthma flared up, but i don't think that's a side effect of stopping

xolair any more than better breathing is a side effect from taking xolair - does

that make sense?). its not like prednisone that you need to wean off of....at

least, as far as i know.

it is unfortunate that you need to stop due to cost. the xolair people can't

help you?

heather

>

> Im curious, what is the " itching " that you say you had while weaning off of

> Xolair.  Was this a " withdrawal " type of reaction you had or was this

something

> that you had that necessitated the Xolair shots in the first place.  Also, how

> long have you been off of Xolair?  I brought this up to my infusion nurse in

the

> past and she said that there is no weaning, but there is a return to prior Ige

> levels and thus the prior problems.

>

>

>

>

> ________________________________

> From: Gwendolyn Rafter <gwen5052@...>

> xolair users < >

> Sent: Tue, March 15, 2011 3:53:25 PM

> Subject: Re: [ ] Must stop Xolair due to cost

>

> Carol, I have tried to wean off of Xolair but the itching all over that I

> experience is so terrible until I have to go back on it.  Fortunately, I tried

> to wean off while I still had some left and it was horrible.  If you have

> allergies they are sure to surface once you stop.  I have 6 more boxes and I

am

> tempted to use 2 instead of 3 to stretch out the shots.

>

> ----- Original Message -----

> From: Carol <floridabouvs@...>

> xolair users < >

> Sent: Tue, 15 Mar 2011 18:34:25 -0000 (UTC)

> Subject: [ ] Must stop Xolair due to cost

>

>

>

>

>

> I have tried everything that has been suggested to me, but I can't afford more

> than $1,000 every 3 months, and I don't qualify for assistance. Not wealthy

> enough, and not poor enough. The Middle Class anthem.

>

> Does anyone know how I could find out about weaning off Xolair and what to

> expect? Genentech is very unhelpful. They say I have to get that through my

> doctor. He has no information to offer.

>

> Thanks.

>

> Carol

>

>

>

>

>

[Guest guest]

Exactly Mark, that is what I have read and been told. The itching must have

been a symptom that they had previously or the body's reaction to elevated IgE

levels. Carol have you tried the Xolair credit card?? They will pay up to 80%

of your deductible. Also was about medical assistance due needing to be on this

medication to sustain life. If your Dr. writes up it correctly it may

work......just a thought!

Good luck and God Bless

________________________________

From: mark flash <flash_m@...>

Sent: Tue, March 15, 2011 4:03:49 PM

Subject: Re: [ ] Must stop Xolair due to cost

Im curious, what is the " itching " that you say you had while weaning off of

Xolair. Was this a " withdrawal " type of reaction you had or was this something

that you had that necessitated the Xolair shots in the first place. Also, how

long have you been off of Xolair? I brought this up to my infusion nurse in the

past and she said that there is no weaning, but there is a return to prior Ige

levels and thus the prior problems.

________________________________

From: Gwendolyn Rafter <gwen5052@...>

xolair users < >

Sent: Tue, March 15, 2011 3:53:25 PM

Subject: Re: [ ] Must stop Xolair due to cost

Carol, I have tried to wean off of Xolair but the itching all over that I

experience is so terrible until I have to go back on it. Fortunately, I tried

to wean off while I still had some left and it was horrible. If you have

allergies they are sure to surface once you stop. I have 6 more boxes and I am

tempted to use 2 instead of 3 to stretch out the shots.

----- Original Message -----

From: Carol <floridabouvs@...>

xolair users < >

Sent: Tue, 15 Mar 2011 18:34:25 -0000 (UTC)

Subject: [ ] Must stop Xolair due to cost

I have tried everything that has been suggested to me, but I can't afford more

than $1,000 every 3 months, and I don't qualify for assistance. Not wealthy

enough, and not poor enough. The Middle Class anthem.

Does anyone know how I could find out about weaning off Xolair and what to

expect? Genentech is very unhelpful. They say I have to get that through my

doctor. He has no information to offer.

Thanks.

Carol