Guest guest Posted May 8, 2004 Report Share Posted May 8, 2004 Hello everyone, my name is and I am a new member. My husband and I live in Shaker Heights with our two sons, Sam and . Sam will be 4 next Saturday; he was diagnosed with mild to moderate ASD in April 2003. is 16 months old and so far seems to be developing typically. To tell you a little about Sam ... he is verbal but can't really have much of a back and forth conversation or talk about things that happened in the past or will be happening in the future. His biggest problems are an inability to attend and his lack of socialization skills. As I mentioned, his language skills are also delayed. We have been working a lot on self-help skills but that too is not age appropriate. He has been in ABA therapy at home since last July. It has helped a lot! He can now follow directions, and his eye contact and joint attention are much better. He is developing more language too. We started the GFCF diet in February and everyone who knows Sam agrees that this has made a HUGE difference in him. He is so much more alert and engaged. We are also supplementing with Super Nu- Thera, probiotics, DMG, zinc, and essential fatty acids. We just started methylcobalamin injections last night. (I am hopeful that this will make a big difference!) Are any of you working with local doctors who follow the DAN! protocol? Do you have any suggestions about how to get all these supplements in your kids? Also, I think we may have to do the yeast-free diet on a trial basis and I am freaking out at the prospect of having to eliminate the fruit juices and applesauce that I use to get him to take his supplements. Thanks for " listening " and I look forward to getting to know you all. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2004 Report Share Posted May 8, 2004 Hi ! and welcome to the list. I'm Marotta and my son Bobby has ASD with hyperlexia. He is 5 years old and will be attending Kindergarten in the fall. It sounds like you are doing so much for your little one now! When Bobby was 3, we started ABA and a GF-CF diet. I have to tell you I am/was a bit skeptical when it came to therapies that did not have multiple double blind studies to prove their effectiveness, but when our neurologist suggested the GF-CF diet based on what we had observed in our son, we decided to give it a try. After all, it wasn't dangerous and was only inconvenient. I am very glad that Dr. Margaret McBride did suggest it to us because we saw significant improvement in our son within 2 weeks. Last summer, when Bobby was 4, we did an elimination diet with our son to see if he reacted to any other foods, and were surprised to find that corn, carrageenan (found in some soy milks, rice milks, nut milks) and sodium methyl cellulose affected him. Dr. Waickman in the Akron area helped us with that diet. We are currently trying Super Nu Thera for Bobby. The jury is still out its effectiveness. What benefits did you see in your son? I understand the talking about things that happened in the past. This past year, that has been an IEP goal for Bobby. And we have been working on it at home. He has gotten much better on that issue. Marotta. ----- Original Message ----- From: laurabphillips Sent: Saturday, May 08, 2004 12:44 PM Subject: [ ] Hello from a new member Hello everyone, my name is and I am a new member. My husband and I live in Shaker Heights with our two sons, Sam and . Sam will be 4 next Saturday; he was diagnosed with mild to moderate ASD in April 2003. is 16 months old and so far seems to be developing typically.To tell you a little about Sam .. he is verbal but can't really have much of a back and forth conversation or talk about things that happened in the past or will be happening in the future. His biggest problems are an inability to attend and his lack of socialization skills. As I mentioned, his language skills are also delayed. We have been working a lot on self-help skills but that too is not age appropriate. He has been in ABA therapy at home since last July. It has helped a lot! He can now follow directions, and his eye contact and joint attention are much better. He is developing more language too. We started the GFCF diet in February and everyone who knows Sam agrees that this has made a HUGE difference in him. He is so much more alert and engaged. We are also supplementing with Super Nu-Thera, probiotics, DMG, zinc, and essential fatty acids. We just started methylcobalamin injections last night. (I am hopeful that this will make a big difference!)Are any of you working with local doctors who follow the DAN! protocol? Do you have any suggestions about how to get all these supplements in your kids? Also, I think we may have to do the yeast-free diet on a trial basis and I am freaking out at the prospect of having to eliminate the fruit juices and applesauce that I use to get him to take his supplements.Thanks for "listening" and I look forward to getting to know you all. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2004 Report Share Posted May 10, 2004 Hi , Welcome to our group! It's very nice to meet you. I read your letter and thought I'd write you back about the DAN doctor, I'm going to take my son Davey to a Doctor that we recently found that supports the DAN protocol. He also is a pediatric doctor who specializes in autism. I'm yet to know more about him and hoping he is everything we need for our son as far as a DAN doctor. My son is also gfcf over 2 years and we also follow the regimine of supplements that have been very helpful. Have you heard about the AutismOne conference? It will be a great conference covering everything we as parents need to know to get our child through everything covering all biomedical treatments, schooling and every issue imaginable. I'll be attending and I hope to meet other parents in our area there. Well, I have to be brief for now due to time. I'll let you know more about the doctor tomarrow or the next day, I'll send info on the AutismOne conference to the group as a reminder that way you can see the info. Take Care, n laurabphillips@... writes: Are any of you working with local doctors who follow the DAN! protocol? Do you have any suggestions about how to get all these supplements in your kids? Also, I think we may have to do the yeast-free diet on a trial basis and I am freaking out at the prospect of having to eliminate the fruit Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2006 Report Share Posted November 1, 2006 I also live in Maine and have the samwe problem with the smell of the water. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2006 Report Share Posted November 1, 2006 -Hi, yes your water can be contaminated with molds and mycotoxins. do a search with 'tap water,mold,mycotoxins' I think you well find some info. there. -- In , " oobeachchick " <oobeachchick@...> wrote: > > Hi everyone, > > I have questions that I hope someone can answer or be able to point > me in the right direction. > > My husband & I bought a mobile home in 5/2005 on a private mobile > home park lot, it is a 1994 model and was bought new and owned by > the same couple. They reported no water damages in the 10 yrs they > owned it and there are no visable signs to make us think otherwise. > We noticed when we bought the place that the water had a funny smell > to it (like an aquarium) and so we purchased a water cooler and buy > spring water to drink & cook with. But since then we have noticed > that the water in the shower and bathroom sink (and occasionally the > kitchen sink) has a very strong odor like moss or algae and > sometimes it smells moldy when you walk by the bathroom. My husband > checked the ceiling vent to make sure it goes to the outside and not > into the insulation, he opened the crawl space that goes under the > tub/shower and checked for mold growth and found none. Even the > water going into the washing machine has that algae smell sometimes. > > My question is what could cause the odors and would it be from our > pipes or possibly from the water that the park supplies? > > If it were a mold problem can it cause health problems like an > autoimmune disease (chronic hives & angioedema) especially in > someone who has asthma & allergies to molds to begin with? > > My husband and son don't have allergies but for the past few months > I have noticed they both sneeze alot and get congested easily. Could > this be caused by a mold problem or bad quality of water? > > We live in Maine so that gives you an idea of the type of weather & > humidity we have. I hope someone has some ideas as to what we should > do next. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2006 Report Share Posted November 1, 2006 -also search 'tap water toxins,mold' -- In , " oobeachchick " <oobeachchick@...> wrote: > > Hi everyone, > > I have questions that I hope someone can answer or be able to point > me in the right direction. > > My husband & I bought a mobile home in 5/2005 on a private mobile > home park lot, it is a 1994 model and was bought new and owned by > the same couple. They reported no water damages in the 10 yrs they > owned it and there are no visable signs to make us think otherwise. > We noticed when we bought the place that the water had a funny smell > to it (like an aquarium) and so we purchased a water cooler and buy > spring water to drink & cook with. But since then we have noticed > that the water in the shower and bathroom sink (and occasionally the > kitchen sink) has a very strong odor like moss or algae and > sometimes it smells moldy when you walk by the bathroom. My husband > checked the ceiling vent to make sure it goes to the outside and not > into the insulation, he opened the crawl space that goes under the > tub/shower and checked for mold growth and found none. Even the > water going into the washing machine has that algae smell sometimes. > > My question is what could cause the odors and would it be from our > pipes or possibly from the water that the park supplies? > > If it were a mold problem can it cause health problems like an > autoimmune disease (chronic hives & angioedema) especially in > someone who has asthma & allergies to molds to begin with? > > My husband and son don't have allergies but for the past few months > I have noticed they both sneeze alot and get congested easily. Could > this be caused by a mold problem or bad quality of water? > > We live in Maine so that gives you an idea of the type of weather & > humidity we have. I hope someone has some ideas as to what we should > do next. > Quote Link to comment Share on other sites More sharing options...
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