Guest guest Posted August 2, 2003 Report Share Posted August 2, 2003 Rog and I are parents to (12 1/2, autistic), Colleen (9, adhd), and , (17 months, typical, but we just decided to have him evaluated by our MRDD to make sure he is talking enough). I have been working full time (9-5, so really only 35 hours a week!) for 3 weeks now after being either work at home, stay at home, or work part time (anywhere from 20 hours to 32 hours) in various combinations over the past 13 years. Life is very interesting, rewarding, and challenging as you might imagine. This is a group that looks perfect for me -- I have not had a good history of staying on groups but I would like to give this one a shot. I am just so busy it's hard to stay focused on staying connected with the support I need! We are on the waiting list for a waiver that we need badly for our son! We do have an aide via the Medicaid Home Care Core service, but as soon as they get a copy of our income that will be denied, I'm sure. We have already lost food stamps, regular medicaid, and WIC, and will lose SSI as well as soon as I send in my pay stubs. And we are on transitional medicaid (for a few months now) and that will be lost too, I believe, as soon as they get our income. I decided to go to work because without my working we STILL had lost our medicaid (but were on transitional) and our food stamps, and our aid also was to be discontinued. We didn't have enough income to pay for our insurance or food with just Rog's income. So after much soul searching and praying we decided to become for the first time a two-parent full-time working family (Rog is like an independent contractor, VERY hard working, his own accounts and also working for others, doing traffic survey counts and cleaning jobs, and works about 55 hours a week). He would like to buy his own truck once both of our incomes are high enough to pay for the payments, and start being a truck driver of some sort (he has a Class A & B CDL). So those are our goals for family stability, and meanwhile we desire to care for our children best we can! We love them all so much. is tall, handsome, and so like a teenager! We need a lot more help for him. The Medicaid Waiver we're waiting on would give him 40 hours a week with an aid. Our aid is wonderful! She takes him on walks, does school-like work with him, helps supervise while I clean or run errands, and even cleans here a lot herself when he's occupied with something. I need her more than 14 hours a week (what I have now) and probably more than 40 as well We live in a teeny tiny house in Lake County and want to move very badly. We have 3 bedrooms, 1 bathroom, living room, kitchen, and laundry room. We can't all eat at the table. So that's some of my story - please check out our web sites too! dori * & ^* & ^* & ^* & ^* & ^* & ^* & ^* & ^* & ^* & ^* & ^* & ^* & ^* & ^* & ^* & ^* & ^* & ^* & ^* & ^ dori = dori_h@... http://www.criscollrj.com http://www.geocities.com/dorifam " He who began a good work in you will be faithful to complete it " * & ^* & ^* & ^* & ^* & ^* & ^* & ^* & ^* & ^* & ^* & ^* & ^* & ^* & ^* & ^* & ^* & ^* & ^* & ^* & ^ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2003 Report Share Posted August 2, 2003 Hi Dori, Welcome to our group and very nice to meet you. Thanks for sharing your story with us. Wow, you and your family are busy ones! I really don't know a whole lot about Waivers. I am in the process of learning more about them and I don't know if you would lose a waiver based on income (hopefully not), but being that special needs children have many threrapuetic needs such as speech, occupation therapies and such I would hope you wouldn't loose it. Are you on the AutismOhio list also? They discussed Waivers for a few weeks. I'm sure you could dig up some info in the archives at the site if you need more info. groups/AutismOhio You can also ask specfic questions too. You mentioned that you wish to move? Are you planning or wishing at this time? If you are planning on moving where would you wish to re-locate to? Well, I will close for now and hope to hear from you again soon. Best wishes, n ~~~~~~~~~ ccrmom@... writes: Rog and I are parents to (12 1/2, autistic), Colleen (9, adhd), and , (17 months, typical, but we just decided to have him evaluated by our MRDD to make sure he is talking enough). I have been working full time (9-5, so really only 35 hours a week!) for 3 weeks now after being either work at home, stay at home, or work part time (anywhere from 20 hours to 32 hours) in various combinations over the past 13 years. Life is very interesting, rewarding, and challenging as you might imagine. This is a group that looks perfect for me -- I have not had a good history of staying on groups but I would like to give this one a shot. I am just so busy it's hard to stay focused on staying connected with the support I need! We are on the waiting list for a waiver that we need badly for our son! We do have an aide via the Medicaid Home Care Core service, but as soon as they get a copy of our income that will be denied, I'm sure. We have already lost food stamps, regular medicaid, and WIC, and will lose SSI as well as soon as I send in my pay stubs. And we are on transitional medicaid (for a few months now) and that will be lost too, I believe, as soon as they get our income. I decided to go to work because without my working we STILL had lost our medicaid (but were on transitional) and our food stamps, and our aid also was to be discontinued. We didn't have enough income to pay for our insurance or food with just Rog's income. So after much soul searching and praying we decided to become for the first time a two-parent full-time working family (Rog is like an independent contractor, VERY hard working, his own accounts and also working for others, doing traffic survey counts and cleaning jobs, and works about 55 hours a week). He would like to buy his own truck once both of our incomes are high enough to pay for the payments, and start being a truck driver of some sort (he has a Class A & B CDL). So those are our goals for family stability, and meanwhile we desire to care for our children best we can! We love them all so much. is tall, handsome, and so like a teenager! We need a lot more help for him. The Medicaid Waiver we're waiting on would give him 40 hours a week with an aid. Our aid is wonderful! She takes him on walks, does school-like work with him, helps supervise while I clean or run errands, and even cleans here a lot herself when he's occupied with something. I need her more than 14 hours a week (what I have now) and probably more than 40 as well We live in a teeny tiny house in Lake County and want to move very badly. We have 3 bedrooms, 1 bathroom, living room, kitchen, and laundry room. We can't all eat at the table. So that's some of my story - please check out our web sites too! dori ~~~~~~~ Quote Link to comment Share on other sites More sharing options...
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