Guest guest Posted January 16, 1999 Report Share Posted January 16, 1999 Dear Vilik, The actual protocol that was used by Mr. Bedel went like this, as related to me by Dan Hailey, his assitant: A farmer contacted Mr. Bedel and said he knew a procedure that would cure Lyme disease. He stated that he was willing to perform this procedure for Mr. Bedel, if his name was never mentioned so that there could be action taken against him. Bedel agreed. He visited the farmer, who took a syringe and drew some of Bedel's blood and injected it into a pregnant cow's udder. When the cow calved and freshened (began to lactate) the farmer saved the first milk (colostrum) and injected it into Mr. Bedel. It cured his Lyme disease within a few weeks. This is a little bit different than drinking some whey, don't you think? Best of Health! Saul Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 1999 Report Share Posted March 21, 1999 Hello a..... I was tested for lyme etc etc for 10 yrs and always negayive a cfs/me/postlyme and now gwi researcher said i had lyme ..found the antobody to it But I personally am suffering from CFS FMS...since then I called that reserchers office and told them of my myco positive test and they refered me to a ID Dr. but i chose to go back to my aller/immnuno Dr . There is so much controversy with lyme,babeosis,Erli?? and many other tick borne diseases, as far as i know to this date it is still mostly a clinical dx...it is up to the lyme specialist to know... There are so many studies now on chronic lyme verses chronic fatigue and Lyme = Fibro... gets real confusing.... I know of lyme patients now that are dxd with CFS ...... Keep the Faith..... Susycloudy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 1999 Report Share Posted March 21, 1999 Hi a..... Also that letter mentions Dr B Fallon..well maybe that Dr can say he is a pychatrist but when Fallon started noticing his patients did not fit in pych help...he knew something else was going on...He and His wife have done tremendous work with other New York Drs in Tick illnesses...also there is a April conference at Columbia Prsy Hosp...with the Drs i have mentioned in these e-mails... including Dr Krupp.... : ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 1999 Report Share Posted March 21, 1999 Susy cloudy, I love your names. Yes, I know the Lyme issue is a mess. I hear that a new test will be out in April which is supposed to be much more reliable. Maybe a lot of us will get answers. I have never tested positive for Lyme but I did have a bulls eye rash once. Weird. Anyway, Zithromax is keeping my head above water for now. a SUSYDOG@... wrote: > > From: SUSYDOG@... > > Hello a..... > I was tested for lyme etc etc for 10 yrs and always negayive a > cfs/me/postlyme and now gwi researcher said i had lyme ..found the antobody to > it But I personally am suffering from CFS FMS...since then I called that > reserchers office and told them of my myco positive test and they refered me > to a ID Dr. but i chose to go back to my aller/immnuno Dr . > There is so much controversy with lyme,babeosis,Erli?? and many > other tick borne diseases, as far as i know to this date it is still mostly a > clinical dx...it is up to the lyme specialist to know... > There are so many studies now on chronic lyme verses chronic > fatigue and Lyme = Fibro... gets real confusing.... I know of lyme patients > now that are dxd with CFS ...... > Keep the Faith..... > Susycloudy > > ------------------------------------------------------------------------ > Is ONElist important to you? Has it changed your life? > > Come visit our new web site and share with us your stories > ------------------------------------------------------------------------ > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 1999 Report Share Posted March 21, 1999 It is certainly possible, but it would be more likely if you were camping in the northeast 23 yrs ago. That was close to the time when they began diagnosing this new disease in Lyme, CT. Seems like cases of it are showing up all over the US now. You might want to hold off on testing until the newer test comes on the market in a couple of months. I have a friend or two with Lyme who keep me posted on all the developments. I will certainly post here when the test comes out. a Lindie4@... wrote: > > From: Lindie4@... > > I am wondering if it would do any good for me to be tested for lyme disease. > I have had dx of FMS for 23 years and CFS dx'd for about 6 years. Could it be > possible that I could have had lyme disease all this time? I've never had a > doctor suggest testing but I did do some camping about the time I got sick. > Thanks. Lindie > > ------------------------------------------------------------------------ > Is ONElist important to you? Has it changed your life? > > Come visit our new web site and share with us your stories > ------------------------------------------------------------------------ > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 1999 Report Share Posted March 22, 1999 Hello ...... With your past experience with Ticks..maybe read up and get all tests for tick borne illnesses. There is already major controversy on this new lyme test that can be performed in an office, but again what about all the other infctions you can get from ticks... Pish Posh on that Dr. bet he is sorry now with all this info out..at least I hope he has learned something since your conversation with him... Susysunshine... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 1999 Report Share Posted March 22, 1999 Keep me posted on the lymes test. too. After getting violently ill with too many symptoms to list in 94 (I was already ill even as a child, but worsened in 94)....I tested " reactive " several times for Lymes and went through tests of all kinds.I got worse after 2 months of tx with antibiotics,so I was referred to a psychiatrist...I had these strange seizure like episodes,photophobia,night sweats, couldn't even remember my name,the list was endless...My vision kept changing,sometimes my side of my body would be numb and I couldn't walk or turn myself in bed etc.....etc.The psychiatrist was weird..He would fall asleep during our sessions and snore..I would have to wake him up..He did tell me I was not primarily depressed,but may be depressed because of my disability from an infectious illness and need to see an infectious disease specialist..The specialist dr eventually dx me with CFS.I even had a spinal tap. I was planning to go to a Lyme specialist soon ,but will wait till the new test comes out. I have been ill for as long as I can remember.I am 35. My mother and her father too,so I assumed it was genetic..I want to be sure though. I am originally from Hampton VA..But grew up on farms,had ticks all the time....I remember being in school as a child and finding a tick in my head. The area festered for years and I even had a small bald spot for years..The creature was so ugly and hideous,I still remember what it looked like.It was spotted and black,hideous..I read it is not just the small " deer ticks " that can pass it..When I mentioned this,the dr called me hysterical in front of his student doctors.. he said I was a good example of burecelli hysteria or psychosomatic illness....It was aweful.I didn't bring it up again,needless to say.. Now it is almost 5 years later,I am still disabled..I was a nurse. I seem to be having a few good days lately, though....I take alot of supplements that help alot.It took years to find the right ones in the right doses for me.And I take Immunocal.. Re: Lyme disease >From: PJ <aJeanne@...> > >It is certainly possible, but it would be more likely if you were >camping in the northeast 23 yrs ago. That was close to the time when >they began diagnosing this new disease in Lyme, CT. Seems like cases of >it are showing up all over the US now. You might want to hold off on >testing until the newer test comes on the market in a couple of months. >I have a friend or two with Lyme who keep me posted on all the >developments. I will certainly post here when the test comes out. >a > >Lindie4@... wrote: >> >> From: Lindie4@... >> >> I am wondering if it would do any good for me to be tested for lyme disease. >> I have had dx of FMS for 23 years and CFS dx'd for about 6 years. Could it be >> possible that I could have had lyme disease all this time? I've never had a >> doctor suggest testing but I did do some camping about the time I got sick. >> Thanks. Lindie >> >> ------------------------------------------------------------------------ >> Is ONElist important to you? Has it changed your life? >> >> Come visit our new web site and share with us your stories >> ------------------------------------------------------------------------ >> This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > >------------------------------------------------------------------------ >We have a new web site! > >Onelist: The leading provider of free email community services >------------------------------------------------------------------------ >This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 1999 Report Share Posted March 22, 1999 In a message dated 3/22/99 2:40:57 PM Central Standard Time, oobadooba@... writes: << I was planning to go to a Lyme specialist soon ,but will wait till the new test comes out. I have been ill for as long as I can remember.I >> I know from your prior posts that you have already tested positive at least twice on two different Lyme Disease tests. I am not sure what another test will be able to tell you. I follow several Lyme Disease newsgroups and lists and am not familiar with anything new on the horizon. All your posts list information that point to a long-term infection that will take a long time to clear up. I feel strongly that you should not wait to see a Lyme Disease specialist. It was so long before I was diagnosed and treated by antibiotics that I had severe cognitive problems and the long wait for diagnosis made me worse. The problem with Lyme Disease diagnosis is too many doctors make the call based on the several tests available, none of which are completely reliable. Usually, a good doctor will use several of the tests to confirm the diagnosis and increase the likelihood the diagnosis is correct. Even then, the tests should only support the diagnosis. History of tick bites, evidence of rash, joint pain, living in a geographical area endemic to ticks, tendency to spend a lot of time outdoors, around pets constantly, cognitive difficulties, etc. should be used as primary points to diagnose. I hate to hammer on this but the only way I pursued my Lyme Diagnosis was because someone on another CFS list noticed my posts on symptoms and wrote me privately to suggest several Lyme websites. I could never thank her enough for her help. I still consider myself to have CFIDS, as my immune system dysfunction is probably a result of the long-term infection and it is not evident in all Lyme patients. I just know that if I don't treat the Lyme my immune system will never have a chance to recover. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 1999 Report Share Posted March 22, 1999 Golfdawg@... wrote: I still consider myself to have CFIDS, as my immune system dysfunction is probably a result of the long-term infection and it is not evident in all Lyme patients. I just know that if I don't treat the Lyme my immune system will never have a chance to recover. ======== is the lyme bacteria one that lives INSIDE CELLS, like the mycoplasma and the chlamydia pneumoniae? if so, you might have to do what i am trying to do, golfdawg, and work on getting your cytokines to tilt more towards the th1 than the th2. both nicholson of mycoplasma fame and stratton of chlamydia fame are confounded as to why some of us DO NOT BEAT THESE INTRACELLULAR BACTERIA. the reason I believe we don't, at least in my case, has everything to do with the th1/th2 imbalance that i mentioned a few days ago. so in addition to the antibiotics, we have to work to get our immune systems to start fighting intracellular organisms, and the keep hope report #18, tells us how. to be honest, the aids research will help those of us with this specific subset of cfids, i believe. wishing everyone better health. and what is good about keep hope #18, is there are things we can do for ourselves that are " safe " and don't need a doctor's blessing to do. nancy mcfadden nashville Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 1999 Report Share Posted March 23, 1999 In a message dated 3/22/99 9:40:31 PM Central Standard Time, nmcfadden@... writes: << is the lyme bacteria one that lives INSIDE CELLS, like the mycoplasma and the chlamydia pneumoniae? if so, you might have to do what i am trying to do, golfdawg, and work on getting your cytokines to tilt more towards the th1 than the th2. >> That can be a problem, as many of the antibiotics used for Lyme Disease will not treat an infection that has gone intracellular. But, there are some that will, but I could n't name them at the moment. By the way, I have to drop off the list for awhile. My wife and I have to move by the end of the month and I simply can't keep up with e-mail and sleeping, eating, and moving. But I will be back after we get settled. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 1999 Report Share Posted November 13, 1999 Hyperbaric Oxygen Therapy Has shown postive results in Published studies for Lyme disease. Rapid Recovery Hyperbarics www.hbot4u.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 1999 Report Share Posted November 16, 1999 Just a word to respond to Oyagama's post, please, because of the indication that 75 drops per day is sufficient. I was reading Dr. Donsbach in the early days and specifcally recall his statement on repeated occasions that cancer needed up to 150 drops; hence the need for an IV drip. Later, my own sister saved her money over time and flew to Mexico to be treated by Donsbach's Hospital only to tell me when she returned that they gave her a max per drip of only up to 75 drops per day and told her she would need to buy the Oxy-something for the next couple years of her life. I remarked back then that perhaps he had changed his protocol to promote the public's purchase of his oxy products. Just a thought. Hickman On Sat, 13 Nov 1999 09:38:55 EST OYAGAMA@... writes: >From: OYAGAMA@... > >RESPONDING TO THE REQUEST FOR INFORMATION ON TREATING LYME DISEASE AND >THE >USE OF BLOOD-ELECTRIFICATION: >I HAVE HAD EXPERIENCE WITH 2 VERY SPECIFIC (ALTERNATIVE THERAPIES) >1) H202 IV DRIPS (A LIST OF DOCTORS ARE LISTED IN THE HOME PAGE > OF OXYTHERAPY.COM. IF YOU CANNOT AFFORD THE DRIPS, ONE > MAY USE " SELF-INGEST " PROTOCOL OF 35% FOOD GRADE H2O2: > FOR 30 DAYS: > COMMENCE WITH 3 DROPS WITH 2 OZ. ALOE VERA GEL IN 8OZ > WATER X 3 TIMES DAILY. > EACH DAY, INCREASE THE NUMBER OF DROPS (PER APPLICATION). > MAY SKIP TO 5DROPS ON 2ND DAY, THEN 7DROPS 3RD DAY, AND > CONTINUE TO INCREASE UNTIL REACHING 25, YES 25 DROPS PER > APPLICATION X 3 TIMES DAILY. HOLD AT 25DROPS FOR 3 DAYS, > THEN PROCEED TO DIMINISH THE > NUMBER OF DROPS TO 20, 15, 10 AND 5 (PER APPLICATION). > ** POSSIBLY WANT TO INCREASE AMOUNT OF ALOE VERA GEL > (NOT JUICE, BUT GEL) TO BUFFER THE PROBABLE NAUSEA. > ENSURE TO TAKE 1 TABLET DAILY OF " S.O.D. " --- TO SCAVENGE > RESIDUAL FREE-RADICALS PRODUCED BY H2O2. >-- >2) SIMPLE BLOOD PURIFICATION APPARATUS (APPROX $300.00)-- > PORTABLE (HAND SIZE), MONO-CHROMATIC/RED WAVE LIGHT > ENERGY. WHEN PLACED ON THE NAVEL, ALL THE BLOOD IS > EXPOSED TO THE LIGHT WITHIN 22 MINS., REGENERATING > HEALTHY BLOOD CELLS. WE HAVE SHARED THIS WITH MANY > LUKEMIA, CANCER, HIV PATIENTS AND GENERALLY ANYONE WHO > WANTS TO CLEANSE/REGENERATE HEALTHY IMMUNE SYSTEM. > CHECK THESE WEBSITES FOR DETAILS: > > <A HREF= " http://members.aol.com/oyagama/advice " >O Y A G A M A L >I F ES >O U R C E</A> (http://members.aol.com/oyagama) > > <A >HREF= " http://www.lightenergycompany.com/lightenergy/default.cfm " >Li >ght Energy Home Page</A> (www.lightenergycompany.com ) > >IT IS TRULY A JOY TO HAVE THIS FORUM FOR COMMUNICATING SAFE, >SOUND AND FREE INFORMATION TO HELP EACH OTHER. > " LOVE, LIGHT AND ENERGY FOR EACH ONE'S PURPOSE, " >OYAGAMA@... > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 1999 Report Share Posted December 28, 1999 C.Tab wrote that he/she has been diagnosed with Lupus and CFS. I was wondering C.Tab if you are on any special treatment for Lupus. Have you tried Plaquinil? My doc is considering trying it on me for Lyme, she said it was also used for Lupus and in my reading I see it is used for malaria too. Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 1999 Report Share Posted December 28, 1999 Hi Barb, I'm also on lyme-aid, but hang out here a lot, Yes, I have taken placqunil for lupus as well as prednisone and NAIDS. However, nothing really has helped and RHEUM thought CFS might be more of a problem. I consulted a CFIDS doc here in Mid MI, but can no longer pay the high fees. Then I started own research - and quickly became overwhelmed by all the info - some of which I have even presented! However, it was here - and on lupus list, that I saw rickettsea research and people being dx'ed with tick diseases. As I had been treated in the past, I got retested and had positive LUAT. So, guess I could have lupus, lyme, post-lyme (STEERE!) or back to CFS - or I'm sick and don't know why! Placqunil is used for joint pain and perhaps would help. It is best not to take it on an empty stomach especially since we take ABX that are hard on gut. I know of what I speak - I had bleeding ulcers and never had a symtom! ALways nice to meet a fellow lymie! Christie > C.Tab wrote that he/she has been diagnosed with Lupus and CFS. I was >wondering C.Tab if you are on any special treatment for Lupus. Have you >tried Plaquinil? My doc is considering trying it on me for Lyme, she said it >was also used for Lupus and in my reading I see it is used for malaria too. > >Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2000 Report Share Posted March 8, 2000 Thanks for your reply -- I hope that you were not thinking that I was advocating the articles referred to I just found them doing a search and thought folks might find them interesting. Is the Bowen test accepted in the medical community? Does it cost very much? Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2000 Report Share Posted September 9, 2000 Here is a site to go to that just might give you the answers you are looking for Krissy. Hope this helps. It has symptoms there for you to look at. Hope you are feeling better. Hugs-Helen http://about.onhealth.com/conditions/resource/conditions/item,401.asp Hi All, > > I was wondering if anyone here has or knows anything about Lyme Disease. I > was diagnosed June 9th with it. I started with major joint pain and > swelling. I was put on doxycycline (spelling?) for 28 days which helped a > little. Being back in school I noticed that if I sit for a long period of > time, my legs fall asleep, and if I write a lot my arms and fingers fall > asleep. This is a typical symptom of Lymes. Uncomfortable and painful > symptoms of Lymes. Today, I have had pain in my muscles and am not sure > whether or not this is the Lymes. I was wondering if someone could send me > some information they know on this. I went to a few search engines (Ask.com > and Altavista.com along w/ a few others) and found nothing that I didn't > already know. Thanks in advance. > > Love, > > Krissy* > > _________________________________________________________________________ > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. > > Share information about yourself, create your own public profile at > http://profiles.msn.com. > > > The Being Sick Community > > Sharing our resources:- > Add a website URL you think may help another, or even add a link to your own webpage. > > > Chat:- > Scheduled Daily Chats at # on IRC DALnet. > http://www.elderwyn.com/members/chat.html > > Egroups JAVA based chatroom for your use anytime:- > chat/ > (Anyone on web-tv will not be able to access java and it is very slow compared to IRC.) > > Memorial Page:- > http://www.elderwyn.com/members/inlovingmemory.html > > Members Lounge:- > Medical resources, counselling via email, information on the daily chat times, free psychic readings and the cartoon of the day. http://www.elderwyn.com/members > > Members Profiles, pictures, and birthdays:- > > > Message Archives and Digest Attachment Pictures:- > messages/ > > Promoting This Community:- > Would you like people to be able to join from your webpage? > promote/ > > Subscription Details:- > 1) Individual email - means that every email sent to the list you receive. > 2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email. > 3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email. > > To modify your subscription settings please visit mygroups > > To subscribe or unsubscribe > subscribe/ > > ~~~~~~~~~~~~~~~ > > “Hold on to what is good, even if it's a handful of earth. Hold on to what you believe, even if it's a tree that stands by itself. Hold on to what you must do even, if it's a long way from here. Hold on to your life, even if it's easier to let go. " - Pueblo Prayer > angelbear1129@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2000 Report Share Posted September 10, 2000 Hi Helen, Thanks for the site. It did help. This is what I was looking for: <<May be accompanied by flu-like symptoms such as headache, fatigue, fever, chills, sore throat, and aching muscles and joints. >> Yesterday, I woke up with my left arm and my ribs hurting. I could feel it in the muscle, but wasn't sure what it was from. I guess I know now it's definitely from the Lyme Disease. It did mention on the page something about tingling feelings and I've had that too. It's such a pain in the ass being sick... I woke up today feeling worse then I did yesterday. Hope it's better by tomorrow for school. Thanks again! Krissy > Here is a site to go to that just might give you the answers you are >looking for Krissy. Hope this helps. It has symptoms there for you to >look at. Hope you are feeling better. > Hugs-Helen > >http://about.onhealth.com/conditions/resource/conditions/item,401.asp > > _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2000 Report Share Posted September 10, 2000 "I was wondering if anyone here has or knows anything about Lyme Disease. I was diagnosed June 9th with it. I started with major joint pain and swelling." Here is a tonne of information for you, with everything from clinical trials, message boards, personal stories and medical info. http://search.aol.com/cat.adp?id=7229 Hope that helps! *hugs*Stay safe. Love Aisha. *=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*Believe that there's a light at the end of the tunnel.Believe that you may be that light for someone else.- Kobi Yamada*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=* Aisha ElderwynICQ: #55461955 MSN: Aisha <---- most reliable emergency contact.AIM: aishaelderwynIRC: DALnet # (angel`isha)email: aisha@... website: http://www.elderwyn.com/aishaBeing Sick: Mailing List: aishaelderwyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2001 Report Share Posted March 7, 2001 " ...a few supplements or herbs or skincare products that have some avoids in them are generally going to have such minute amounts relative to actual foods, it just isn't enough to be concerned about. " What a relief to hear you say that, ! I have an awesome skin care line that has some aloe in some of the products and it concerned me because I read somewhere that the avoids shouldn't be used internally or externally. I'll quit nitpicking everything, since we are quite healthy. I am finding that the avoids are becoming less appealing as time goes on. My " A " husband and I aren't going at this very strictly, just coasting into it. When we use up something in the pantry or freezer that are avoids for both of us, we don't buy them any more. Now I get the biggest piece of meat! <=0)> And he eats the most bread and nuts and fruit. And we go shopping for fish and vegetables together. We are thankful for the good health to be able to coast into it. Plus...with all the tangents I've gotten into and enforced them upon my sweet husband, this one I decided to take it easy. Blessings and thanks again for the freedom! Kathleen jacobson@... " When it comes to self-discipline, people choose one of two things: the pain of discipline which comes from sacrifice and growth or the pain of regret which comes from the easy road and missed opportunities. " Maxwell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2001 Report Share Posted March 7, 2001 http://health./health/diseases_and_conditions/disease_feed_data/lyme_disease A starting point if nothing else :-) LnL Steve - Cheltenham, UK -----Original Message-----From: Lilla Luoma [mailto:lillabell@...]Sent: Wednesday, March 07, 2001 12:00 AM Subject: Lyme Disease I have recently been diagnosed with Lyme Disease (I've probably had it for about 10 years) and am considering treatment. The common treatment that I am aware of is massive doses of penicillin-type antibiotics, which as we know are not recommended for type O's. My understanding is that its because of immune system problems? I don't know what the alternatives would be as this is a pretty nasty bug that apparently crosses all tissue boundaries and requires antibiotics that also can cross these same tissue boundaries. If anyone knows about this disease and/or treatment, I would appreciate any info shared. Or can anyone suggest a web site or group dealing with this? Thanks. --- Lilla Luoma --- lillabell@... "I saw the wheel, I saw the web, I saw the weaver's hands. I heard the drum, I joined in the dance and I was born again." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2001 Report Share Posted March 7, 2001 http://www.lymenet.org/ http://www.acponline.org/lyme/patient/diagnosis.htm http://www.lymealliance.org/SiteMap/sitemap.html are some sites that might provide some info. I found these by doing a search at www. and there were many more. Hope they help. LnL, Steve - Cheltenham, UK -----Original Message-----From: Lilla Luoma [mailto:lillabell@...]Sent: Wednesday, March 07, 2001 12:00 AM Subject: Lyme Disease I have recently been diagnosed with Lyme Disease (I've probably had it for about 10 years) and am considering treatment. The common treatment that I am aware of is massive doses of penicillin-type antibiotics, which as we know are not recommended for type O's. My understanding is that its because of immune system problems? I don't know what the alternatives would be as this is a pretty nasty bug that apparently crosses all tissue boundaries and requires antibiotics that also can cross these same tissue boundaries. If anyone knows about this disease and/or treatment, I would appreciate any info shared. Or can anyone suggest a web site or group dealing with this? Thanks. --- Lilla Luoma --- lillabell@... "I saw the wheel, I saw the web, I saw the weaver's hands. I heard the drum, I joined in the dance and I was born again." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2001 Report Share Posted March 13, 2001 I too have lyme. I am treating it through a new method.(NO ANTIBIOTICS!) It is similar to homeopathy. A machine tested me(it is amazing technolegy..it combines, hompeopathy, chiropractic, chinese medicine..amoung many others(, and I already knew I had lyme, but I found out which bacteria I have. (ehricleosis and rickettsia). It also tests for chemicals, parasites, and virus' just to name a FEW things. I got treated in New hampshire, but I live in California. You can even send your urine and they can test that and give you the remedy. I know of 4 people who got cured of lyme this way...I am sure I will be number 5. ;0) I have had lyme for about 5 years. I could tell you more, but I am pressed for time. If you want more info e- mail me ;0) I posted about my experiences in Dr. D's message board. I also have hashimoto's and have the mono virus (which began my illness) after 4 years. ) xoxo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2001 Report Share Posted June 8, 2001 Hi Rapid Recovery Hyperbarics, I tried HBOT once and they had to stop because my ears couldn't handle the pressure. Took a decongestant and tried again later. Still couldn't handle it. Plus the decongestant kept me awake and super-wired all night. How do you deal with this problem? Thanks. Peggy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2001 Report Share Posted June 8, 2001 We use nose sprays and ear drops, we take you " down " with Oxygen and take our time, going down a few feet, breathing o2 for five minutes, then going further, Sometimes it will take me 30 minutes to get someone down to the RX ata, but it does work, I also go in with people the first couple of times to show them how to " clear the ears " I treat little babies with no problem, we have the patients sit up, We have treated well over 1000 people with no problems what so ever, sometimes I put ozone in the ears for a few seconds, then try the chamber. one way or another we make it down with out pain.. I am sorry you had pain, I wish I could have " ran " the chamber, It is a gift I guess I have, I am not boosting at all, please understand, I am happy I can do this for people. feel free to call me anytime, lets talk about it if you are ever in CA, Call me, We will try again, Off the list, where did you go?? 909-889-0517 Re: Lyme Disease Hi Rapid Recovery Hyperbarics, I tried HBOT once and they had to stop because my ears couldn't handle the pressure. Took a decongestant and tried again later. Still couldn't handle it. Plus the decongestant kept me awake and super-wired all night. How do you deal with this problem? Thanks. Peggy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2001 Report Share Posted June 9, 2001 Hi Dwight, I have Lyme disease and was wondering if I could just go diving while breathing pure oxygen as a substitute for HBOT since I cannot afford it? Someone told me that I could get o2 poisoning, but that does not happen with HBOT. I was wondering if you know if there is a difference? Best Wishes! Pete > Sutifed will clear your eustation tubes good for a about 3-4 hours. We used it sometimes when diving. Another possibility probably better for you is to rinse out the nasial passages. Try this get about a cup to a cup and a half of warm water add about a 1/2 teaspoon of table salt stir. Then take some of the mix cuped in your hand and inhale (snort) it through your nose do this repeatly it does not irritate the nasael passages and all sorts of old mucus comes out both from the nose and mouth. Since this is a rather messy operation I would do it in the shower. This should help clear the tubes More than once may be required. > Re: Lyme Disease > > > Hi Rapid Recovery Hyperbarics, > > I tried HBOT once and they had to stop because my ears couldn't handle the pressure. Took a decongestant and tried again later. Still couldn't handle it. Plus the decongestant kept me awake and super-wired all night. How do you deal with this problem? Thanks. > > Peggy > > > > Quote Link to comment Share on other sites More sharing options...
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