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Sutifed will clear your eustation tubes good for a about 3-4 hours. We used it

sometimes when diving. Another possibility probably better for you is to rinse

out the nasial passages. Try this get about a cup to a cup and a half of warm

water add about a 1/2 teaspoon of table salt stir. Then take some of the mix

cuped in your hand and inhale (snort) it through your nose do this repeatly it

does not irritate the nasael passages and all sorts of old mucus comes out both

from the nose and mouth. Since this is a rather messy operation I would do it

in the shower. This should help clear the tubes More than once may be required.

Re: Lyme Disease

Hi Rapid Recovery Hyperbarics,

I tried HBOT once and they had to stop because my ears couldn't handle the

pressure. Took a decongestant and tried again later. Still couldn't handle it.

Plus the decongestant kept me awake and super-wired all night. How do you deal

with this problem? Thanks.

Peggy

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Thanks Dwight,

Here is what doesn't make sense to me: HBOT for Lyme is done at 2.4

ATM for 1 hour sessions The treatment consists of breathing pure

oxygen at approximately the same pressure as air breathed by scuba

divers 45 feet under water yet no one seems to go into convulsions

during therapy. Something just doesn't jive here. Do you know what it

is?

Best Wishes!

Pete

> So based on the above use the O2 in a pool most have only a depth

of 10 to 12 feet. There are problems: fittings, getting medical

grade O2 etc. You can use industrial grade O2 but that is guarenteed

to only have a minium of 70% O2, still you have a valid point. So

from an old commercial diver, and chamber operators point of view.

In a pool with a bottle(limited time here) it is safe go for it.

Get SCUBA Qualified first. YMCA is the cheapest.

>

> Dwight Munson

>

> Re: Lyme Disease

> >

> >

> > Hi Rapid Recovery Hyperbarics,

> >

> > I tried HBOT once and they had to stop because my ears

couldn't

> handle the pressure. Took a decongestant and tried again later.

> Still couldn't handle it. Plus the decongestant kept me awake

and

> super-wired all night. How do you deal with this problem?

Thanks.

> >

> > Peggy

> >

> >

> >

> >

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Yes you could U.S. Navy studies show (chamber runs) that pure O2 causes

convulsions below 30 or 40 feet of sea water. IE more than 1 atmosphere of

pressure. Military Divers have also used O2 historically.

So based on the above use the O2 in a pool most have only a depth of 10 to 12

feet. There are problems: fittings, getting medical grade O2 etc. You can use

industrial grade O2 but that is guarenteed to only have a minium of 70% O2,

still you have a valid point. So from an old commercial diver, and chamber

operators point of view. In a pool with a bottle(limited time here) it is safe

go for it. Get SCUBA Qualified first. YMCA is the cheapest.

Dwight Munson

Re: Lyme Disease

>

>

> Hi Rapid Recovery Hyperbarics,

>

> I tried HBOT once and they had to stop because my ears couldn't

handle the pressure. Took a decongestant and tried again later.

Still couldn't handle it. Plus the decongestant kept me awake and

super-wired all night. How do you deal with this problem? Thanks.

>

> Peggy

>

>

>

>

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LYME DISEASE AND HBOT.

By: Dr. A. Neubauer, MD

" Lyme disease is from a tick-borne illness with a wide array of

symptoms. It is named for the town of Old lyme, Connecticut, where it

was first described in 1975. While cases have been reported throughout

the country, the disease is most prevalent in the Northeast and upper

Midwest (USA). It is similar to other tick-borne diseases that have been

recognized in Europe for more than 100 years.

Lyme disease is caused by a corkscrew-shaped bacterium called a

spirochete, usually Borrelia burgdorferi. The spirochete is carried by

the deer tick, a tiny creature that in adult stage is about the size of

a sesame seed. These ticks pick up the disease from various animal

hosts, especially mice, before passing it on to human beings. Because

the tick is so small, bites often go unnoticed.

The first sign of Lyme disease is a usually painless skin rash called

Erythema Migrans at or near the site of the bite. This rash, which

generally has a bull's-eye appearance, develops within a week after the

bite occurs and usually lasts a few days, although in rare cases it may

last a month or more. The rash is a positive sign of Lyme disease, even

when blood tests are negative. Unfortunately, 25 percent or more of the

people who develop Lyme disease do not develop the rash. Others may not

notice the rash before it disappears.

If not promptly and properly treated, Lyme disease can produce the

following conditions:

* Nervous-system problems, including inflammation either of the

membranes covering the brain and spinal cord (meningitis) or of the

brain itself (encephalitis). Some patients may develop confusion, memory

loss, and emotional difficulties.

* Heart problems, including inflammation of the heart (myocarditis) and

heart block, an abnormal slowing of the heartbeat.

* Joint problems, usually arthritis of the larger joints such as the

knee.

* Various other problems, including fever, fatigue, headache, and

muscle pain.

Lyme disease can be very difficult to identify, especially if the

patient does not develop or notice the characteristic rash. One problem

is that the symptoms of Lyme disease mimic those of various other

diseases, which means it can easily be misdiagnosed and mistreated.

Another problem is that the various blood tests used to detect Lyme

disease are not always reliable. Two out of three patients do not test

positive when they are first diagnosed. Conversely, many patients may

test positive for several years after the symptoms disappear.

Lyme disease has been difficult to treat. If caught early, oral

antibiotics can usually cure the patient. However, if the disease is not

detected early, the body's own cells tend to protect the Lyme spirochete

against antibiotics. Thus, even when very strong drugs are used, the

spirochete may not be completely destroyed. At this stage, antibiotics

are given intravenously. Some patients are cured with intravenous

antibiotics, but many patients have received this treatment for years

without relief.

Studies suggest that HBOT works against Lyme disease by attacking the

spirochete itself. Pure oxygen inhaled at ground-level pressures does

not appear to affect the spirochete because not enough oxygen can

penetrate the body's cells under these conditions. However, HBOT can

force oxygen into the body's cells, where it can act against the Lyme

spirochete.

Primary evidence of HBOT's effectiveness against Lyme disease in humans

was provided by a pilot study conducted by Dr. Fife and Dr.

Freeman at Texas A & M University. In this study, 40 patients were

treated with HBOT at a pressure of 2.36 atmospheres absolute once or

twice a day, five days a week, for from one to four weeks. Some patients

continued antibiotic therapy while taking HBOT. Others did not.

In response to treatment, all of the patients developed a sudden,

passing fever called a Jarisch-Herxheimer reaction, a reaction that also

appears during aggressive antibiotic therapy for Lyme disease. This

reaction tended to diminish over two or three weeks. Some patients felt

relief of symptoms during the course of treatment. Others did not, but

showed improvement a few weeks after the treatment ended. In all but 2

cases, any improvements that were reported continued after the patients

left the study, even if they did not resume antibiotic treatment.

Improvements included elimination of mental confusion and depression,

relief of pain, and increased energy. In a number of cases, the patients

still suffered minor Lyme symptoms after taking HBOT, but usually with

nothing near the same severity. "

Re: Lyme Disease

> > >

> > >

> > > Hi Rapid Recovery Hyperbarics,

> > >

> > > I tried HBOT once and they had to stop because my ears

> couldn't

> > handle the pressure. Took a decongestant and tried again later.

> > Still couldn't handle it. Plus the decongestant kept me awake

> and

> > super-wired all night. How do you deal with this problem?

> Thanks.

> > >

> > > Peggy

> > >

> > >

> > >

> > >

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I am in Southern CA. however there are treatment centers in Northern Ca.

Where do you live Pete?

lyme disease

Pete

If you can't get to ' HBOT center (Northern Ca), then

talk to her about centers that may be closer to you. She will, no doubt,

be reading this and can help you.

Corny

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I am in Southern CA. however there are treatment centers in Northern Ca.

Where do you live Pete?

lyme disease

Pete

If you can't get to ' HBOT center (Northern Ca), then

talk to her about centers that may be closer to you. She will, no doubt,

be reading this and can help you.

Corny

________________________________________________________________

GET INTERNET ACCESS FROM JUNO!

Juno offers FREE or PREMIUM Internet access for less!

Join Juno today! For your FREE software, visit:

http://dl.www.juno.com/get/tagj.

OxyPLUS is an unmoderated e-ring dealing with oxidative therapies, and other

alternative self-help subjects.

THERE IS NO MEDICAL ADVICE HERE!

This list is the 1st Amendment in action. The things you will find here are

for information and research purposes only. We are people sharing

information we believe in. If you act on ideas found here, you do so at your

own risk. Self-help requires intelligence, common sense, and the ability to

take responsibility for your own actions. By joining the list you agree to

hold yourself FULLY responsible FOR yourself. Do not use any ideas found

here without consulting a medical professional, unless you are a researcher

or health care provider.

You can unsubscribe via e-mail by sending A NEW e-mail to the following

address - NOT TO THE OXYPLUS LIST! -

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I am not the hbot expert here. But I do know that hyperbaric oxygen therapy is

not just about the oxygen that is breathed. It is also about the oxygen that is

forced into the tissues. The whole chamber is oxygenated, in my understanding.

so it just doesn't translate to breathing oxygen under the pressure of water.

Yes? or No?

Donna

-----Original Message-----

Thanks Dwight,

Here is what doesn't make sense to me: HBOT for Lyme is done at 2.4

ATM for 1 hour sessions The treatment consists of breathing pure

oxygen at approximately the same pressure as air breathed by scuba

divers 45 feet under water yet no one seems to go into convulsions

during therapy. Something just doesn't jive here. Do you know what it

is?

Best Wishes!

Pete

> So based on the above use the O2 in a pool most have only a depth

of 10 to 12 feet. There are problems: fittings, getting medical

grade O2 etc. You can use industrial grade O2 but that is guarenteed

to only have a minium of 70% O2, still you have a valid point. So

from an old commercial diver, and chamber operators point of view.

In a pool with a bottle(limited time here) it is safe go for it.

Get SCUBA Qualified first. YMCA is the cheapest.

>

> Dwight Munson

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Guest guest

I am not the hbot expert here. But I do know that hyperbaric oxygen therapy is

not just about the oxygen that is breathed. It is also about the oxygen that is

forced into the tissues. The whole chamber is oxygenated, in my understanding.

so it just doesn't translate to breathing oxygen under the pressure of water.

Yes? or No?

Donna

-----Original Message-----

Thanks Dwight,

Here is what doesn't make sense to me: HBOT for Lyme is done at 2.4

ATM for 1 hour sessions The treatment consists of breathing pure

oxygen at approximately the same pressure as air breathed by scuba

divers 45 feet under water yet no one seems to go into convulsions

during therapy. Something just doesn't jive here. Do you know what it

is?

Best Wishes!

Pete

> So based on the above use the O2 in a pool most have only a depth

of 10 to 12 feet. There are problems: fittings, getting medical

grade O2 etc. You can use industrial grade O2 but that is guarenteed

to only have a minium of 70% O2, still you have a valid point. So

from an old commercial diver, and chamber operators point of view.

In a pool with a bottle(limited time here) it is safe go for it.

Get SCUBA Qualified first. YMCA is the cheapest.

>

> Dwight Munson

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Guest guest

Hi ,

I live in Ocala Florida, but am willing to travel if I can find

affordable treatments. I have a truck with a camper top to sleep in.

Best Wishes!

Pete

> I am in Southern CA. however there are treatment centers in

Northern Ca.

> Where do you live Pete?

>

>

> lyme disease

>

>

> Pete

> If you can't get to ' HBOT center (Northern Ca),

then

> talk to her about centers that may be closer to you. She will, no

doubt,

> be reading this and can help you.

>

> Corny

> ________________________________________________________________

> GET INTERNET ACCESS FROM JUNO!

> Juno offers FREE or PREMIUM Internet access for less!

> Join Juno today! For your FREE software, visit:

> http://dl.www.juno.com/get/tagj.

>

> OxyPLUS is an unmoderated e-ring dealing with oxidative therapies,

and other

> alternative self-help subjects.

>

> THERE IS NO MEDICAL ADVICE HERE!

>

> This list is the 1st Amendment in action. The things you will find

here are

> for information and research purposes only. We are people sharing

> information we believe in. If you act on ideas found here, you do

so at your

> own risk. Self-help requires intelligence, common sense, and the

ability to

> take responsibility for your own actions. By joining the list you

agree to

> hold yourself FULLY responsible FOR yourself. Do not use any ideas

found

> here without consulting a medical professional, unless you are a

researcher

> or health care provider.

>

> You can unsubscribe via e-mail by sending A NEW e-mail to the

following

> address - NOT TO THE OXYPLUS LIST! -

> DO NOT USE REPLY BUTTON & DO NOT PUT THIS IN THE SUBJECT LINE or

BODY of the

> message! :

>

> oxyplus-unsubscribeegroups

>

> oxyplus-normalonelist - switch your subscription to

normal mode.

>

>

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Guest guest

Actually there are three types of chambers, the Oxygen is NOT forced into the

tissue, Hyperbaric Oxygen increases the oxygen with in the system, therefore by

the pressure in the chamber you are able to live with out blood, In other words

the oxygen is allowed into all fluids, spinal, lymph, all parts of the blood,

and not just carried via the red blood cells.

there are different ata's for different disorders. brain, infections etc.

.. Please read,

" What is HBOT? "

EMT, DMT, CHT

Rapid Recovery Hyperbarics

www.hbot4u.com

Rapid Recovery Hyperbarics

1455 N Waterman Ave., #124 and 125

San Bernardino, CA 92404

Tel: (909) 889-7626 Fax: (909) 889-0517

hyperbaric1@...

www.hbot4u.com

What is Hyperbaric Oxygen (HBOT)?

Hyperbaric Oxygen Therapy is a medical treatment in which the patient, seated or

lying comfortably in a one person chamber, breathes pure oxygen while the

atmospheric pressure is gradually increased and controlled. Breathing 100%

oxygen under pressure enhances a body's ability to heal itself naturally.

HOW DOES HYPERBARIC OXYGEN WORK?

Oxygen is what keeps us alive. Yet, the air we breathe is composed of only 21%

oxygen, which is carried through the body by the hemoglobin in the blood stream.

Hemoglobin composes less than half of the blood volume and normally supplies

virtually all of the life-giving oxygen to every part of the body. Another major

component of the blood volume is plasma, which normally carries only a minute

fraction of oxygen. In the chamber the patient receives pure oxygen under the

same pressure as being 16 to 66 feet under water. Through this compression, the

patient's bloodstream receives as much as six times the amount of oxygen than

would normally be received. Pure oxygen under pressure not only increases oxygen

in the hemoglobin, but also dissolves so much oxygen in the plasma that the

plasma could actually sustain life without any hemoglobin. Thus the plasma, as

well as other body fluids, can efficiently carry oxygen to areas of the body

where circulation is poor or otherwise compromised.

Hyperbaric oxygen enhances many enzymes and causes changes in the body's

tissues. It is bacteriostatic and bacteriocidal for some anaerobic organisms. It

causes rapid dissolution of carbon monoxide from hemoglobin. It decreases the

diameter of intravascular and tissue gas bubbles which trigger the complex

mechanisms of decompression sickness, permitting these gas emboli to move

distally where they place a smaller amount of tissue at risk.

There are millions of cells in the brain. Some die in the natural aging process.

The remainder, if oxygen levels are reduced, as in a stroke for example, become

more and more dormant. Oxygen, forced into the blood stream under increased

pressure, crosses the blood-brain barrier and revives those cells, permitting

the brain to function more efficiently.

DOSE: Dose is the depth (atmospheres absolute ATA), the length of exposure, the

frequency and the number of treatments.

Immediate Effects of HBOT

Under pressure, oxygen adheres to all the gas laws of physics:

l Displaces all other gases in the body:

Nitrogen in decompression illness

Carbon Monoxide

Cyanide

l Follows the law of mass action

l Completely saturates hemoglobin

l Increases plasma oxygen by 2000%

l Dissolves in cerebrospinal fluid, lymph, bone and urine

l Perfuses all tissue spaces, where all life takes place

l Delivers metabolically available oxygen without chemical energy transfer,

enough to sustain life without blood

l Some life sustaining oxygen is made available as retrograde perfusion even

with the absence of a trickle phenomena

l Reduces CNS lactate peak in hypoxia

Effects of Continued HBOT

l Bacteriostatic effects: HBOT synergizes with certain antibiotics, for example:

Streptomycin INH, PAS, Sulfonamides and to some extent TMP

l Neutralizes certain toxins, i.e., Clostridium (gas gangrene) and inhibits

anaerobes

l Stimulates the adaptive immune system, especially in elderly (mice)

l Scavenges free radicals

l Degrades platelets (clotting)

l Reduces cerebral edema (brain swelling)

l Increases the Phagocytic activity of PMN cells (white blood cells); promotes

internal debridement

l Stimulates fibroblasts; collagen production-healing

l Promotes neovascularization (new blood vessels)

l Promotes Epithelization (skin repair for wounds)

l Allows the body to heal itself by improving cell respiration and reducing cell

by-products called cytokines

Blood is primarily transport and stabilization. All life takes place at the

cellular tissue level.

Ref:

Text Book Of Hyperbaric Medicine

and , EMT,DMT, CHT

Dr Underwood, MD,DO, JD

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listen please no one is just taken down to 45 feet with out several factors,

one being a phys exam with a Dr, the other being several air breaks, and I

always work someone down, meaning I do it in steps of 3-5 feet daily

increasing.

Again that is with air breaks, the reason is to allow for the less risk,

I follow the protocol for lyme, and also the many other published studies,

there are people who respond very well at 33 fsw. However there are strict

protocols safety measures and always the patients are seen by the MD. We

also use IV vitamins and antibiotics if the situation needs this

intervention.

PS, swimming pool Hyperbarics is called " Wet Hyperbarics "

CHT, DMT, EMT

Re: Lyme Disease

> > >

> > >

> > > Hi Rapid Recovery Hyperbarics,

> > >

> > > I tried HBOT once and they had to stop because my ears

> couldn't

> > handle the pressure. Took a decongestant and tried again later.

> > Still couldn't handle it. Plus the decongestant kept me awake

> and

> > super-wired all night. How do you deal with this problem?

> Thanks.

> > >

> > > Peggy

> > >

> > >

> > >

> > >

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Guest guest

Dear Pete:

I believe you are confusing atmospheric pressure(14.7PSI) with absolute

pressure, usually at the beginning of the article or instructions there will be

a note indicating which settings are being used. For instance when you look at

the dial on a recompression chamber it will be at zero when the chamber is open

to the outside, the actual pressure is 14.7 PSI but the gage is set at zero. So

at 45 feet down (seawater) you are at approximately 1.36 atmospheres of pressure

(the term is gage) or 2.36 atmospheres absolute. Personally I would worry about

you or most people breathing O2 at 45 feet down. There are many many factors

which increase the risks. Would I do it my self Yes - I would use surface

supply O2. The reasons; I had 9 years experience as a commercial diver using

surface supply equipment and I was and am extremely comfortable in the water.

That is why I recommend a pool you get some of the benefits of HBOT

inexpensively and at small risk.

Dwight Munson

Re: Lyme Disease

> >

> >

> > Hi Rapid Recovery Hyperbarics,

> >

> > I tried HBOT once and they had to stop because my ears

couldn't

> handle the pressure. Took a decongestant and tried again later.

> Still couldn't handle it. Plus the decongestant kept me awake

and

> super-wired all night. How do you deal with this problem?

Thanks.

> >

> > Peggy

> >

> >

> >

> >

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Guest guest

Divers are NOT breathing pure O2

Dr. Eliezer Ben-ph

Personal and Financial Freedom

www.herbs4health.com (home page)

www.successlinks.com/global-3 (financial freedom)

www.16thamendment.com/global-3 (IRS income tax fraud)

www.taxstatement.com/global-3 (IRS income tax fraud)

Watch your thoughts; they become your words.

Watch your words; they become your actions.

Watch your actions; they become your habits.

Watch your habits; they become your character.

Watch your character, it becomes your destiny.

Re: Lyme Disease

> > > >

> > > >

> > > > Hi Rapid Recovery Hyperbarics,

> > > >

> > > > I tried HBOT once and they had to stop because my ears

> > couldn't

> > > handle the pressure. Took a decongestant and tried again later.

> > > Still couldn't handle it. Plus the decongestant kept me awake

> > and

> > > super-wired all night. How do you deal with this problem?

> > Thanks.

> > > >

> > > > Peggy

> > > >

> > > >

> > > >

> > > >

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Guest guest

This is true, No one said they were.

However Imust point out that Most of the lyme patients that we have treated

do very well at 33 fsw, which I think is safer

Re: Lyme Disease

> > > > >

> > > > >

> > > > > Hi Rapid Recovery Hyperbarics,

> > > > >

> > > > > I tried HBOT once and they had to stop because my ears

> > > couldn't

> > > > handle the pressure. Took a decongestant and tried again later.

> > > > Still couldn't handle it. Plus the decongestant kept me awake

> > > and

> > > > super-wired all night. How do you deal with this problem?

> > > Thanks.

> > > > >

> > > > > Peggy

> > > > >

> > > > >

> > > > >

> > > > >

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Guest guest

As a former professional hard hat diver for the oil companies in the Gulf,

60 feet was the depth that pure O2 was excluded (at 192 ft pure O2 is deadly

due to the increased partial pressure). When we had time off and tied one

on the night before and woke up with a severe hangover all we did was go in

the chamber breathe pure O2 at 50 feet for ten minutes and we were CLEAR and

ready to continue work. At no time did anyone ever even have the hint of

convulsions. (we were all crazy anyway, divers are a crazy lot)

Dr. Eliezer Ben-ph

Personal and Financial Freedom

www.herbs4health.com (home page)

www.successlinks.com/global-3 (financial freedom)

www.16thamendment.com/global-3 (IRS income tax fraud)

www.taxstatement.com/global-3 (IRS income tax fraud)

Watch your thoughts; they become your words.

Watch your words; they become your actions.

Watch your actions; they become your habits.

Watch your habits; they become your character.

Watch your character, it becomes your destiny.

Re: Lyme Disease

>

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Guest guest

This is true, the normal protocol in a hospital for most infected wounds

etc.. is 2.4 with breaks. however in freestanding center, the levels are

much more shallow. in Lyme I find it responds to many levels, from 1.75 to

2.0 and even 2.4 depending again on the blood test and response to the

IV.Once a fever is there, then time off, then go with it again. Here again

Lyme is also repair the damage to the brain, which would be 1.5- 2.0

Hyperbarics is both a immune enhancement and suppression, which ever the

situation calls for, In the case of an auto immune disorder, you would want

it to be a suppression tool, Meaning that auto immune with positive ANA's

blood test means anti self antibodies, the other would be like aids with no

immune system. All sides of the illness need to be looked at by the MD in

charge of the case.

With aids, Iv antibiotics, and or oral, plus HBOT seems to help some people.

Re: Re: Lyme Disease

As a former professional hard hat diver for the oil companies in the Gulf,

60 feet was the depth that pure O2 was excluded (at 192 ft pure O2 is deadly

due to the increased partial pressure). When we had time off and tied one

on the night before and woke up with a severe hangover all we did was go in

the chamber breathe pure O2 at 50 feet for ten minutes and we were CLEAR and

ready to continue work. At no time did anyone ever even have the hint of

convulsions. (we were all crazy anyway, divers are a crazy lot)

Dr. Eliezer Ben-ph

Personal and Financial Freedom

www.herbs4health.com (home page)

www.successlinks.com/global-3 (financial freedom)

www.16thamendment.com/global-3 (IRS income tax fraud)

www.taxstatement.com/global-3 (IRS income tax fraud)

Watch your thoughts; they become your words.

Watch your words; they become your actions.

Watch your actions; they become your habits.

Watch your habits; they become your character.

Watch your character, it becomes your destiny.

Re: Lyme Disease

>

OxyPLUS is an unmoderated e-ring dealing with oxidative therapies, and other

alternative self-help subjects.

THERE IS NO MEDICAL ADVICE HERE!

This list is the 1st Amendment in action. The things you will find here are

for information and research purposes only. We are people sharing

information we believe in. If you act on ideas found here, you do so at your

own risk. Self-help requires intelligence, common sense, and the ability to

take responsibility for your own actions. By joining the list you agree to

hold yourself FULLY responsible FOR yourself. Do not use any ideas found

here without consulting a medical professional, unless you are a researcher

or health care provider.

You can unsubscribe via e-mail by sending A NEW e-mail to the following

address - NOT TO THE OXYPLUS LIST! -

DO NOT USE REPLY BUTTON & DO NOT PUT THIS IN THE SUBJECT LINE or BODY of the

message! :

oxyplus-unsubscribeegroups

oxyplus-normalonelist - switch your subscription to normal mode.

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  • 4 months later...

Hi :

Well just when I thought I had somewhat of a handle on CFIDS and FM

information, I now find myself sitting here with positive Lymes

Disease Tests.

After 6 years of many dead ends, I thought GREAT ... I finally have

found cause. Needless to say, within hours ... my bubble was bursted

by my PPO who believes that the Elise (negative) Test is valid and

the IgM Western Blot (positive) is invalid.

I talked directly to Dr. at the IGeneX Lab where the IgG and

IgM Tests were done ... and he confirmed that " yes " I am Positive for

Lymes.

Now I have to do another whole study on Lyme's ... and Lyme's

Literate Doctors. This is just driving me crazy!

It sounds like you have already been down this road ... so I would

appreaciate it if you could share your knowledge with me.

Also ... VERY IMPORTANT ... Any leads on LLMD's in the Seattle

Area? Support Groups??? or List of Doctors????

I am so sick of this stupid political run-around, while my body and

health diminsh.

You can back door me if you want to (playpup@...)

Thanks,

is

>

> I went to my second lyme support group meeting recently. I am

still

> officially with a fibromyalgia dx and havent been to an LLMD. The

people

> there believe that lyme is greatly underdiagnosed and that a subset

of

> CFS/FMS people would get better with antibiotics. Apparently some

people who

> were originally diagnosed with fibromyalgia end up with a lyme

diagnoses.

> Its all controversial now; from its prevelence to the tests for it

to the

> treatment protocol, lots of antibiotics for long periods of time;

which can

> be harmful to the gut and the immune system; (although every person

and their

> grandma has a conflicting opinion about this.)

> I've read about a few people who really screwed up their bodies

with the

> antibiotics; but much more often I've learned about people who have

> dramatically recovered once they dealt with the lyme with abx. All

of the

> lyme people I know say I need to get myself to an LLMD (lyme

literate doctor)

> to find out if I have it or not. Some down right tell me that I

have it for

> sure and am wasting my time with other therapies. Many of the

symptoms

> overlap between lyme and non lyme FMS/CFS; but from the research

I've done

> lyme tends to carry with it harsher symptoms and may be more

progressive. At

> this point I would really be interested in what other people's

thoughts are

> about this. (backchannels welcome if you dont want to post); about

how

> prevelent lyme is; about the consequences of long courses of

antibiotics;

> about the reliability of LLMD's. The medical licensing boards are

really

> going after the LLMD's who treat lyme with long term antibiotics.

Is this

> because of money issues with insurance, and because there havent

been any

> definitive tests involving long term abx; or are the LLMD's really

making

> some people a lot sicker with the long term abx? When I read the

posts on

> lyme-aid, or go to lyme support group meetings I see mostly success

stories;

> such a contrast to the FMS and CFS support group meeting where

things like

> acupuncture and nutrition and diet are discussed and people talk of

slight

> improvement; but rarely do you hear about dramatic progress. and

I have to

> ask myself why are more people not taking the lyme issue seriously

and

> following up on it? Or could it be that for every success I see at

the

> meeting there are 3 others who were falsely diagnosed.

>

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  • 9 months later...

Kell,

I was diagnosed as having had Lymes by the Luau (sp?) urine tests. I

have always tested negative by the blood test. This doc. put me on a rotation

of Biaxin 2 wks then Flagyl 1 wk for 6 months. I never had any improvement in

symptoms. The Flagyl made severely nauseated, but no Herxheimer or anything

to show that the antibiotics were doing anything. Now that I have stopped

treatment the doc. is thinking that I never really had Lymes in the first

place. He said the studies show now that the urine tests aren't that

accurate. Go Figure! Sara

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Hi, Kell,

Dr. Shoemaker in land does extensive work with Lyme's disease. He

uses cholestyramine (an early cholesterol medicine) to treat his patient. Dr.

Cheney has also begun to use this as part of his protocol (but, I think at lower

doses and on an individualized basis). you can get a lot of info from Dr.

Shoemaker's site: chronicneurotoxins.com

You can also take an ocular test on this site which is the marker for

neurotoxins in the brain. It's cheap and gives an indication of problems.

I tested positive but because I have other infections right now I'm treating

those first.

You can also reach Dr. Shoemaker at: 410-957-1550 And can order his book:

Desperation Medicine " which is very interesting and easy to read.

I hope this info helps.

---------------------------------

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Kell

I got tested for lyme from the IgeneX lab,

California(PCR was negative, In the western blot IgG-

had 4 out of 5 bands, western blot IgM- 1 out of 2

bands).

My doctor thinks I have chronic lyme disease. This is

a clinical diagnosis- and the tests can give false

positives and false negatives. It is pretty

controversial.

I am not so convinced whether I have lyme or not. But

I thought I will give abx a try. I am on doxycycline -

started with 50 mg for a month, then upped to 100 mg

for another month, now for the past 2 days I am on 200

mg. My fatigue and weakness is bad on abx. But I dont

think I had a herx reaction till now. I am just hoping

I dont do my body any harm with this treatment.

I am looking into natural abx treatments. Hyperbaric

seems very expensive. So, haven't looked into that.

I have ordered a Colloidal Silver generator since I

heard C/S had abx properties.

Lets see how that goes.

So far, I have not seen any improvement with abx.

take care and good luck.

Gayathri

--- pine108kell <P402wilson@...> wrote:

> Hello

>

> Anyone test positive for lyme disease and/or been

> diagnosed with lyme

> disease. I would really like to hear about your

> test results and

> what treatments (if any) specifically targeted to

> lyme have been a

> success and which have been failures (primarily abx

> treatments, but

> anything else too). Thank you.

>

> Kell

>

>

__________________________________________________

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,

I'm curious why you decided to treat the infections before doing the

neurotoxin protocol, as I made the opposite decision. I've spent years

trying to get rid of (or control) various infections, c. pneumonia,

parasites, candida, myco, HHV-6, EBV, etc, and am now thinking that until I

remove the neurotoxins, my immune system will never be strong enough to get

rid of the infections. I probably had a childhood exposure to neurotoxins,

though--through freshwater algae treated w/ copper sulfate--I don't think

mine came from Lyme spirochetes--I think the neurotoxins weakened me enough

to allow me to become sick in the first place. The neurotoxin protocol has

been tough, but I think I'm getting results (slowly). I'd love to hear your

thinking on this matter.

Re: lyme disease

I tested positive but because I have other infections right now I'm

treating those first.

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hi

the only combo that gave me any relief so far was:

biaxin 500mg 2x a day

hydroxychloroquine 200mg 2x a day

i can't say for sure that i have lyme either (now looking into other

causes), but this combo has helped me feel better for sure.

some have said it is due to these Rx's ability to surpress cytokine

production......

hope this helps

bill

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  • 4 months later...

It is treated similar to chronic fatigue and fibromyalgia. The symptoms are

almost the same, and when you do your brain assessment, I think you will

find the same areas of need. There will be a lot of delta and theta with

very little beta almost everywhere. I'd start with the greatest area of

need, but I usually find starting with a central placement works well.

Re: Lyme disease

> Has NF ever been used for alleviating symptoms of Lyme disease? My

brother

> has advanced Lyme and recently had a spect scan, as some areas of his

brain

> have been affected. I will be seeing him over the holidays and would love

to

> know if NF would offer relief. Some of his symptoms include: insomnia,

> chronic fatigue, brain fog and mental confusion at times, joint pain,

muscle

> stiffness.

> Thanks,

> D

>

>

>

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Has NF ever been used for alleviating symptoms of Lyme disease? My brother

has advanced Lyme and recently had a spect scan, as some areas of his brain

have been affected. I will be seeing him over the holidays and would love to

know if NF would offer relief. Some of his symptoms include: insomnia,

chronic fatigue, brain fog and mental confusion at times, joint pain, muscle

stiffness.

Thanks,

D

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,

If you do a search on Google for Lyme disease and neurofeedback or

biofeedback, you should find at least one article which I have seen several

times in which NF was used successfully. Can't recall if it was a group or

case study, and I don't have the link.

Pete

Re: Lyme disease

Has NF ever been used for alleviating symptoms of Lyme disease? My

brother

has advanced Lyme and recently had a spect scan, as some areas of his

brain

have been affected. I will be seeing him over the holidays and would love

to

know if NF would offer relief. Some of his symptoms include: insomnia,

chronic fatigue, brain fog and mental confusion at times, joint pain,

muscle

stiffness.

Thanks,

D

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