Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 > : "Hi, Rainbow, welcome back!"Thank you !There's no place like home, especially for one with Asperger Personality Traits (APTs)!Welcome back to you, , as well. I've missed your shinning presence.> "Sorry about your (tick bite) experience."It's the only tic that I, with APTs, have experienced. Rainbow Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 >> It's the only tic that I, with APTs, have experienced. > Good! May you remain tic and tick free. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2007 Report Share Posted May 6, 2007 I can give you a simple answer for testing. The doctor question involves a bit more. You can go to an ILADS doctor who will tend to you longterm multiple antibiotics. This may work for you. Then there are more alternative approaches and doctors who are open to that. If you want to get tested this is what I recommend based on reading and my family's experience - we all have Lyme: Use IgeneX in Palo Alto, CA (They accept Medicare and insurance -they file medicare but you must file insurance if that is all you have) Get IgG and IgM western blots done on blood. Get the urine antigen test which involves the following: 5 days of antibiotic - I would recommend Zithromax at 500 or 600 mg a day. On the morning of days 4, 5 and 6 collect a urine sample. (They send you the kit.) When your doctor orders this urine test BE SURE TO CHECK THE BOX FOR A REVERSE WESTERN BLOT ON ALL POSITIVE URINE SAMPLES. IgeneX will not charge for this unless you have a positive sample. If you get a positive on this you can bet the farm, ticks included, that you are infected with borrelia, because what you are getting in your urine is pieces of dead borrelia cells - antigen. As to interpreting the western blots on blood - once you get results you need to post them. I can send you a nice overview of how to interpret these IF you get this test done. Hope this helps. I can also perhaps find a good Lyme doctor for you, depending on where you live and what treatment approach you want. a Carnes Las Vegas, NV > > What about lyme? What kind of Dr. would I go to? What are the tests? > Are there any conclusive tests, ie one I should specifically ask for > vs. one my Dr. might just throw at me to shut me up? > > Thanks. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2007 Report Share Posted May 6, 2007 Thanks, I live in Fayetteville, AR, but could possibly travel to Little Rock if needed. I would just need to research what any alternative therapy was to see if I would be interested. Thanks again. > > I can give you a simple answer for testing. The doctor question > involves a bit more. You can go to an ILADS doctor who will tend to > you longterm multiple antibiotics. This may work for you. Then there > are more alternative approaches and doctors who are open to that. > > If you want to get tested this is what I recommend based on reading > and my family's experience - we all have Lyme: > > Use IgeneX in Palo Alto, CA (They accept Medicare and insurance - they > file medicare but you must file insurance if that is all you have) > > Get > IgG and IgM western blots done on blood. > > Get the urine antigen test which involves the following: > 5 days of antibiotic - I would recommend Zithromax at 500 or 600 mg a > day. > > On the morning of days 4, 5 and 6 collect a urine sample. (They send > you the kit.) > > When your doctor orders this urine test BE SURE TO CHECK THE BOX FOR A > REVERSE WESTERN BLOT ON ALL POSITIVE URINE SAMPLES. IgeneX will not > charge for this unless you have a positive sample. > > If you get a positive on this you can bet the farm, ticks included, > that you are infected with borrelia, because what you are getting in > your urine is pieces of dead borrelia cells - antigen. > > As to interpreting the western blots on blood - once you get results > you need to post them. I can send you a nice overview of how to > interpret these IF you get this test done. > > Hope this helps. I can also perhaps find a good Lyme doctor for you, > depending on where you live and what treatment approach you want. > > a Carnes > Las Vegas, NV > > > > What about lyme? What kind of Dr. would I go to? What are the tests? > > Are there any conclusive tests, ie one I should specifically ask for > > vs. one my Dr. might just throw at me to shut me up? > > > > Thanks. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2007 Report Share Posted May 7, 2007 Drop me a note off list and I will give you the names of the docs I have in your area - none are particularly close, but hopefully not so far you can't get there. a Carnes > > Thanks, I live in Fayetteville, AR, but could possibly travel to > Little Rock if needed. I would just need to research what any > alternative therapy was to see if I would be interested. > > Thanks again. > > > > > > > I can give you a simple answer for testing. The doctor question > > involves a bit more. You can go to an ILADS doctor who will tend to > > you longterm multiple antibiotics. This may work for you. Then > there > > are more alternative approaches and doctors who are open to that. > > > > If you want to get tested this is what I recommend based on reading > > and my family's experience - we all have Lyme: > > > > Use IgeneX in Palo Alto, CA (They accept Medicare and insurance - > they > > file medicare but you must file insurance if that is all you have) > > > > Get > > IgG and IgM western blots done on blood. > > > > Get the urine antigen test which involves the following: > > 5 days of antibiotic - I would recommend Zithromax at 500 or 600 mg > a > > day. > > > > On the morning of days 4, 5 and 6 collect a urine sample. (They > send > > you the kit.) > > > > When your doctor orders this urine test BE SURE TO CHECK THE BOX > FOR A > > REVERSE WESTERN BLOT ON ALL POSITIVE URINE SAMPLES. IgeneX will not > > charge for this unless you have a positive sample. > > > > If you get a positive on this you can bet the farm, ticks included, > > that you are infected with borrelia, because what you are getting > in > > your urine is pieces of dead borrelia cells - antigen. > > > > As to interpreting the western blots on blood - once you get > results > > you need to post them. I can send you a nice overview of how to > > interpret these IF you get this test done. > > > > Hope this helps. I can also perhaps find a good Lyme doctor for > you, > > depending on where you live and what treatment approach you want. > > > > a Carnes > > Las Vegas, NV > > > > > > What about lyme? What kind of Dr. would I go to? What are the > tests? > > > Are there any conclusive tests, ie one I should specifically ask > for > > > vs. one my Dr. might just throw at me to shut me up? > > > > > > Thanks. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2007 Report Share Posted May 7, 2007 Lyme Disease & Magnesium Deficiency Many Lyme disease patients experience symptoms that mimic magnesium deficiency.To further complicate matters, the antibiotics used to treat Lyme disease can deplete magnesium and other important nutrients. Vitamin B6 increases the intracellular magnesium levels. Magnesium protocol and more. http://www.lymeinfo.net/magnesium.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2007 Report Share Posted September 2, 2007 Hi Josie, I have lupus with low white blood cell count (my count is usually from 2-3 and 3.5 is considered the low end of normal) I've had this for many years (at least about the last 9 years). In the beginning, I went through 3 bone marrow biopsies and then I just canceled all future appointments with the hematologist/cancer Dr....... Those biopsies got more painful each time and I'm not a guinea pig. I just figure that I'll find out when I get serious symptoms, and because of my depression, I will refuse all treatments. I don't intend to hang onto life feeling ill forever. Now, I have to be here to care for my mom, So Lyme Disease is something I never thought of before. I just think that everything is the lupus - I take plaquenil for that and REALLY stay out of the sun. Since I'm from California (since I was 3-1/2 years old) I was quite a sun bather until my latter thirties (I'm 51 yrs old now). Now I feel like a vampire who doesn't go out until after dark - and wear big hats!!!!. I welcome the winter with the shorter days. I always had friends who could handle the sun = but with my total whiteness.... I just laid in the sun everyday and built up a tan....then sometimes I wear the fake tan stuff but now my skin is so dry on my legs that it usually comes out streaky. So is life "streaky"!!! Connie PickPinkFlowers <haggisisscotsfood@...> wrote: In addition to all the other medical problems I have, I learned this week that I may have Lyme Disease too. The doc/microbiologist told me that he believes most docs do patients a disservice when they tell them you have to be bitten by a tick to get Lyme. He said there is more than one type, and you can get it from your dogs and cats, from being licked. I haven't done research on that yet, but I am going to have to go in for additional testing. Because I have MCS and CFS and EI and a host of other medical problems, I will not be able to take antibiotics. I have became a Universal Reactor, and I am allergic to all of them. So this was not good news. Like I don't have enough problems already. I guess once the immune system is shot......... Josie oneSearch: Finally, mobile search that gives answers, not web links. Choose the right car based on your needs. Check out Autos new Car Finder tool. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2007 Report Share Posted September 4, 2007 There are some holistic things you can take for lymes disease. I am not sure what they all are. You would need to consult a holistic doctor or naturalopath (think that is what they are called). I did do some research and the herb cats claw is suppose to help, but takes about a yr for a cure. B -----Original Message-----From: haggisisscotsfood@...Sent: Sat, 1 Sep 2007 10:09:51 -0700 (PDT) Subject: Lyme Disease In addition to all the other medical problems I have, I learned this week that I may have Lyme Disease too. The doc/microbiologist told me that he believes most docs do patients a disservice when they tell them you have to be bitten by a tick to get Lyme. He said there is more than one type, and you can get it from your dogs and cats, from being licked. I haven't done research on that yet, but I am going to have to go in for additional testing. Because I have MCS and CFS and EI and a host of other medical problems, I will not be able to take antibiotics. I have became a Universal Reactor, and I am allergic to all of them. So this was not good news. Like I don't have enough problems already. I guess once the immune system is shot......... Josie oneSearch: Finally, mobile search that gives answers, not web links. Messages in this topic (0) Reply (via web post) | Start a new topic Recent Activity 8 New Members Visit Your Group Cancer Resources on Find answers, help and support. Healthy Eating Find that are focused on healthy eating. Yoga Resources on Take the stress out of your life. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2007 Report Share Posted September 24, 2007 AWW IM SORRY ;; I HOPE YOU DONT HAVE LYME DISEASE ((HEALING HUGS)) DORTPickPinkFlowers <haggisisscotsfood@...> wrote: In addition to all the other medical problems I have, I learned this week that I may have Lyme Disease too. The doc/microbiologist told me that he believes most docs do patients a disservice when they tell them you have to be bitten by a tick to get Lyme. He said there is more than one type, and you can get it from your dogs and cats, from being licked. I haven't done research on that yet, but I am going to have to go in for additional testing. Because I have MCS and CFS and EI and a host of other medical problems, I will not be able to take antibiotics. I have became a Universal Reactor, and I am allergic to all of them. So this was not good news. Like I don't have enough problems already. I guess once the immune system is shot......... Josie oneSearch: Finally, mobile search that gives answers, not web links. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2008 Report Share Posted January 28, 2008 Just wanted to mention that I had third stage Lyme Disease from l990 thur l994..it was a tough battle...many courses of IV antibiotics over the time..finally went into remission..it was not long after that I was diagnosed with FMS and Myofacial Pain Syndrome...it has left me also with terrible arthritis in my large joints.. Patti in NJ In a message dated 1/28/2008 5:24:51 P.M. Eastern Standard Time, rose2617@... writes: Interesting article just emailed to me from a friend. Many symptoms are the same as fibro symptoms. http://www.lymepa.org/Basics2004v4_3.pdf Start the year off right. Easy ways to stay in shape in the new year. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2008 Report Share Posted October 4, 2008 Hi Melthanks for this link!!Can u tell me if you know what is the date of this debat, what day it was?It's a good thing for the Canadian lyme disease foundation to look at. Thanks,Fannou Lyme Disease Lyme Disease :> > > > > > > > http://www.lymerigh ts.org/Pallone_ v3.wmv> > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2008 Report Share Posted October 4, 2008 i think it took place in late September, Fannou. I was thinking alot about you. I was hopiong you saw it. it was a bit lengthy. i got it from finding1cure. are you a member of that group? finding1cure. you should sign up and read their posts. it may help you. mel From: Fannou n <fannouj@...>Subject: Re: Lyme Diseasebird mites Date: Saturday, October 4, 2008, 9:52 PM Hi Melthanks for this link!!Can u tell me if you know what is the date of this debat, what day it was?It's a good thing for the Canadian lyme disease foundation to look at. Thanks,Fannou Lyme Disease Lyme Disease :> > > > > > > > http://www.lymerigh ts.org/Pallone_ v3.wmv> > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2008 Report Share Posted October 5, 2008 Fanny - It was supposed to take place 9/25, but I think it was actually 9/27 (just a week ago). The word " cover-up " was used twice, which really excited me, because there are a number of emerging health issues (including this mite problem) that are being handled in a suspiciously casual attitude. If Sybile (Avianweb webmaster)is viewing these posts, she can address the lack of concern shown by the cdc. She had received over 1,000 letters from people who were experiencing this problem and had contacted the cdc herself. There are a number of inter-related health issues concerning mites, lice, scabies, Lyme Disease (and several other illnesses implicated in the Borrelia bacteria and its variants). This link provides much background and insight into which illnesses this bacteria has been found. http://www.emergingdisease.org/phpbb/viewtopic.php?t=13891 Although I have not tested positive for Lyme, I was only tested once using one of the less reliable tests. I DID, however, get diagnosed with both Morphea (aka localized scleroderma) contracted in 1992, and MS, diagnosed in 1982. Sorry if I am leading this forum a bit off-topic, but I am convinced that all of this is inter-related and deserves the national and global stage. Unfortunately, this awareness is probably going to emerge very slowly - and probably too late for me to benefit. I will add, however, that watching this inch along brings me some small measure of comfort. I'll take that. Bessie > > From: Fannou n <fannouj@...> > Subject: Re: Lyme Disease > bird mites > Date: Saturday, October 4, 2008, 9:52 PM > > > > > > > > > Hi Mel > > thanks for this link!! > Can u tell me if you know what is the date of this debat, what day it was? > It's a good thing for the Canadian lyme disease foundation to look at. > Thanks, > > Fannou > > > > Lyme Disease > > > > > > > > > Lyme Disease > > : > > > > > > > > > > http://www.lymerigh ts.org/Pallone_ v3.wmv > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2009 Report Share Posted December 31, 2009 Hi Rita,Welcome to the group!Here is a site you may find of interest:http://tinyurl.com/lyme-alternativesWith best wishes,Dudley Delany dudley_delanyFrom: Rita A Sent: Thursday, December 31, 2009 12:13 PM Subject: Lyme disease Hello, I am a newcomer. Thank you for creating this informative group! I am wondering if there is any information regarding healing Lyme disease. It would be greatly appreciated! Best regards, Rita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2009 Report Share Posted December 31, 2009 Thank you Mr Delany, for sending me the link. It was helpful. I have a great respect for Edgar Cayce as he was a big favorite of my father's and I read his books in my father's collection since I was quite young. I am wondering how to take this bottle of iodine which I recently bought. It tastes so awful. It is Lugol's 3% Iodine. It is mentioned as a treatment for syphillis. I am willing to try it as a supplement. How would you ingest it or get it into your body? Could a rub of it under my feet daily do the trick? Your advice would be greatly appreciated! Kind regards, Rita > > Hi Rita, > > Welcome to the group! > > Here is a site you may find of interest: > > http://tinyurl.com/lyme-alternatives > > With best wishes, > > Dudley Delany > > dudley_delany > > > Lyme disease > > Hello, > > I am a newcomer. Thank you for creating this informative group! > > I am wondering if there is any information regarding healing Lyme disease. It would be greatly appreciated! > > Best regards, > Rita > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2009 Report Share Posted December 31, 2009 Hi Rita,I suggest you forget about the Lugol's solution and go with the treatments suggested here:http://tinyurl.com/lyme-alternativesBest regards,Dudley Delanydudley_delany Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2010 Report Share Posted April 28, 2010 i have a book on the beck protocol which includes some successful testimonials on it and lyme. i bought the book on the sharing health website. monique Does anybody have direct experience with Beck blood micropulser and colloidal silver treatment? Would appreciate any input, positive or negative, before investing in the device. Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2010 Report Share Posted April 28, 2010 I can't promise what your experience will be, however I can tell you that there have been many positive reports of people using the Beck protocol for Lymes. I would suggest before you buy the equipment to do more research for yourself and follow your inner sense of what is comfortable for you. The site is about to be re-vamped, but currently you can still find some good information regarding the protocol on www.sharinghealth.com and in the next few weeks www.bobbeck.com will be fully developed and have more information. Cheers, Vicki > > Does anybody have direct experience with Beck blood micropulser and colloidal silver treatment? Would appreciate any input, positive or negative, before investing in the device. Thanks. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2010 Report Share Posted May 28, 2010 You know, I still can't believe that anti-virals get your count to zero. I think your immune system mops them up, and you'd never get 100% kill rate with repeated applications of an exogenous toxin and you have to rely on an immune response as well. That's probably why the oxygen therapies are popular; the " other end " of the oxygen therapy approach is the huge antioxidant increase, barring inadequate precursors, that strengthens cells including immune cells so they can go about their business unimpaired. all good, Duncan > > : > > I wonder if these are LASTING cures or just make one feel better for a time. > My son had Lyme Disease for 4 years before it was diagnosed and he was so > sick. He had every ITIS there was, even Conjunctivitis in his eyes. His > doctor got him diagnosed here in Canada (not easy) by using a US Lab for > some test. > > The doctor found that there was only 2 or 3 doctors in the world that had > Protocols that were EFFECTIVE. He was sent to one in New York State, where > he had to fly there, rent a car, then rent a Bed & Breakfast before he even > got to this doctor's office. > > For a couple of years he carried around IV bottles, IV lines and someone to > hook him up. He even went to Mexico where these drugs are very cheap and got > on a plane with a suitcase FULL of drugs. I don't know how he did that. > He's very pro-active and wouldn't sit back and wait for things to happen. > > It was a nightmare for him but BECAUSE they identified the Lyme Disease > first of all and THEN the 2 viruses that the Tick already had when he bit > him (Babesia and Bartonella), he was cured. So I think they went after the 3 > viruses with 3 different drugs and over time each Viral Load was > individually monitored, till they were all zero. > > Thank Goodness, > Bonnie > > _____ > > From: Coconut Oil > [mailto:Coconut Oil ] On Behalf Of k8teeth > Sent: May 25, 2010 1:48 AM > Coconut Oil > Subject: Re: OT...the best digestive enzymes you > know of. > > > > > Bonnie. > This protocol has helped many who have tried it: > > http://www.rain-tree.com/reports/HSI_MembersAlert_SEPT081.pdf > page 4 > > http://www.rain-tree.com/brochures/Spiro-extract.pdf > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2010 Report Share Posted June 6, 2010 Has anybody had direct experience of Beck silver pulser and colloidal silver maker for LYME disease? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2010 Report Share Posted June 7, 2010 the book i bought on the beck protocol has healing stories from lyme. http://www.sharinghealth.com/products/books.html monique Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2010 Report Share Posted June 8, 2010 Yes, I have personally taken testimonials regarding Lyme disease and the Beck protocol. On another note, in the coming weeks there will be a testimonial database (already built!) added to the www.bobbeck.com site. The final design of that website is being approved shortly and the writing for it has begun. It will contain several years worth of testimonals that will be searchable by condition. I will keep you all posted. Warm regards, Vicki > > Has anybody had direct experience of Beck silver pulser and colloidal silver maker for LYME disease? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2010 Report Share Posted June 9, 2010 oh excited to see this! thanks monique Yes, I have personally taken testimonials regarding Lyme disease and the Beck protocol. On another note, in the coming weeks there will be a testimonial database (already built!) added to the www.bobbeck. com site. The final design of that website is being approved shortly and the writing for it has begun. It will contain several years worth of testimonals that will be searchable by condition. I will keep you all posted. Warm regards, Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2010 Report Share Posted June 9, 2010 Hello, Please look at lymephotos.com and research the salt/c protocol - so far, it is the easiest and cheapest solution with real results. Fighting protozoa is hard with a zapper since the bugs are just too big. Best of luck,Bradwww.zapper-tech.comOn Wed, Jun 9, 2010 at 2:12 PM, Sauve <moniquesauve@...> wrote:  oh excited to see this! thanks monique Yes, I have personally taken testimonials regarding Lyme disease and the Beck protocol. On another note, in the coming weeks there will be a testimonial database (already built!) added to the www.bobbeck. com site. The final design of that website is being approved shortly and the writing for it has begun. It will contain several years worth of testimonals that will be searchable by condition. I will keep you all posted. Warm regards, Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2011 Report Share Posted March 17, 2011 Does coconut oil help lyme patients? any research about that? Quote Link to comment Share on other sites More sharing options...
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