Doctor Visit

[Guest guest]

Dana, in NC,

Your experience is so familiar it's a sad commentary on what life has

become. EVERY time we brought tom into the hospital they insisted we have

family therapy! gee, I thought we were past blaming the parents!

As far as inexperienced students, you are lucky that the doctor was

watching through the glass. Can you imagine the outcome of the assessment

without the added professional opinion? I am also very tired of teachers who

just dont get it. If I was you, I would return the form and ask them to

correct THEIR mistakes! If you cant do that, ask them for an apology for

their inacuricies!

For family therapy, we would arrange to go 3-5 times and then be told: You

guys dont need family therapy - but your son needs treatment! Trying to get

tom into the adult hospital that treats teens gave us the same criteria - we

agreed - and then they said " even so, he has a good p-doc, so you dont need

to access services in the our hosptial " (which, btw, is the only one that

privides a limited amount of E & RP under the gov't health plan and is the

reason we wanted to move over there).

My advice is to start the family therapy, which is really necessary for

Ava's father, and after 3-5 times, start calling and pushing for Ava to get

into a program. Obviously family therapy is the new catch phrase for

difficult to treat situations.

I am truly sorry for you that Ava is prevented from recieving treatment now

rather than later. It is very upsetting.

take care, eh? wendy, in canada

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[Guest guest]

In a message dated 8/29/00 11:11:00 PM Eastern Daylight Time,

cfsw@... writes:

<< This isn't in PA by any chance >>

I'm in PA. In what part of PA are you looking for a Dr?

[Guest guest]

My family and I lived in Lancaster County when I was in high school and we

went to a homeopath that obviously did not give shots. He was really great.

His name has Dr. Reese. My mother knows how to find him if you are in

that area.

>

>This is a bit late but I was wondering where this Dr. is located as we are

>trying to find a new ped. This isn't in PA by any chance?

>

> Mommy to Gryphon Sage born 10-2-99

>

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[Guest guest]

This is a bit late but I was wondering where this Dr. is located as we are

trying to find a new ped. This isn't in PA by any chance?

Mommy to Gryphon Sage born 10-2-99

At 06:53 PM 8/23/00, you wrote:

>I thought it went really well

> > in that regard. We do happen to live in a very conservative, highly

> > Amish/Amish-type religious area so I think he would have to be a bit

> > understanding of non-vaxers.

> >

> > There are a few good docs out there willing to let parents make decisions

> > for themselves. We need to get their names out so maybe their habits will

> > spread. (His name is Dr. Baxter Drew Wellmon III--quite a name, huh?!)

> >

> >

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[Guest guest]

I've known lots of people that have and have had hangnails, and they are still

alive! I would guess if you looked at kids' fingers, the majority would have

hangnails, and there they are, playing in the dirt, sand, whatever. Still alive

(vaxed or not). And I had the measles twice. Everyone I knew had them when I was

young. (I can hear fine). Kind of makes you wonder--was that doctor repeating

what he had been told or read? That would be understandable.

Doctor Visit

Well, I took baby for a weigh check and talked to our dr. about not vaxing.

Actually, I told him we would be delaying vaccinations thinking it'd be

easier to talk to him than if I said we were not vaxing at all. He said by

age 2 the risk of autism is not great. He said in our area there is not a

big threat of the diseases, but he'd keep his ear to the ground and let me

know if he heard of some outbreaks. I told him our 2 yo hasn't been vaxed

and he said 2 was the right time to start because I can't watch her every

second. We talked about the tetanus. He said it's in the dirt and you can

get exposed from just having a hangnail and playing in the dirt. He also

said measles was the most deadly and permanent hearing loss was a big

problem. I told him I was religiously opposed to MMR and chickenpox

vaccines because of their use of fetal cells.

So what's the deal about measles being so deadly and destructive. I did

tell him that in my mom's day everyone had it (I remembered what Sherri said

last year about everyone she knew having it with no problems.) He didn't

have much to say about it after my comment.

And the autism comment--is that true?

And about the tetanus comment--a hangnail?? Does anyone know if animals

(horses, cats, dogs) are vaxed for tetanus? I can't remember, but don't

seem to think that was one we got for our cat. If they're not, why aren't

animals dropping dead from tetanus--don't they get scrapes, etc??

Anyway, he didn't give me a hard time about it. I told him we researched

the risks both ways. He said everyone had to make a choice about it. I am

thankful he wasn't hateful because he's a really great person and doctor.

Cyndy

NC

Eternity's a long time to be wrong....

www.raptureready.com

[Guest guest]

take a good look at statistics. you'll find that

approx. 10 tetanus cases per year occur in the US,

allegedly half of them are vaxxed (sorry, no source).

then look at the VAERS database and see how many

claims have been filed as an adverse reaction to the

tetanus vaccine. then do your maths. then learn the

very basics of homoeopathy, you don't have to believe

in homoeopathy for it to work. just learn that any

wound you cleanse with calendula mt and water, mixed

1:4, then if the wound is 'nail like' (nails, needles,

long thorns etc, ie anything that might lead to

tetanus) give one dose of ledum 30. we lived in the az

desert, and none of us are vaccinated against tetanus.

during our just under 3 years of living on 2.5 acres

we 'unearthed' more than 200 nails left behind by

previous owners and quite a few of them ended up in

our soles since we have a habit of running around

barefoot. we also had 2 horses, totally unvaccinated

and several other critters, also unvaccinated. none of

us ever caught tetanus.

hth,

:-)

claudia

--- DOLLY FANSLER <dfansler@...> wrote:

> I've known lots of people that have and have had

> hangnails, and they are still alive! I would guess

> if you looked at kids' fingers, the majority would

> have hangnails, and there they are, playing in the

> dirt, sand, whatever. Still alive (vaxed or not).

> And I had the measles twice. Everyone I knew had

> them when I was young. (I can hear fine). Kind of

> makes you wonder--was that doctor repeating what he

> had been told or read? That would be understandable.

>

> Doctor Visit

>

> Well, I took baby for a weigh check and talked to

> our dr. about not vaxing.

> Actually, I told him we would be delaying

> vaccinations thinking it'd be

> easier to talk to him than if I said we were not

> vaxing at all. He said by

> age 2 the risk of autism is not great. He said in

> our area there is not a

> big threat of the diseases, but he'd keep his ear to

> the ground and let me

> know if he heard of some outbreaks. I told him our

> 2 yo hasn't been vaxed

> and he said 2 was the right time to start because I

> can't watch her every

> second. We talked about the tetanus. He said it's

> in the dirt and you can

> get exposed from just having a hangnail and playing

> in the dirt. He also

> said measles was the most deadly and permanent

> hearing loss was a big

> problem. I told him I was religiously opposed to

> MMR and chickenpox

> vaccines because of their use of fetal cells.

>

> So what's the deal about measles being so deadly and

> destructive. I did

> tell him that in my mom's day everyone had it (I

> remembered what Sherri said

> last year about everyone she knew having it with no

> problems.) He didn't

> have much to say about it after my comment.

>

> And the autism comment--is that true?

>

> And about the tetanus comment--a hangnail?? Does

> anyone know if animals

> (horses, cats, dogs) are vaxed for tetanus? I can't

> remember, but don't

> seem to think that was one we got for our cat. If

> they're not, why aren't

> animals dropping dead from tetanus--don't they get

> scrapes, etc??

>

> Anyway, he didn't give me a hard time about it. I

> told him we researched

> the risks both ways. He said everyone had to make a

> choice about it. I am

> thankful he wasn't hateful because he's a really

> great person and doctor.

>

> Cyndy

> NC

>

> Eternity's a long time to be wrong....

> www.raptureready.com

>

>

>

>

[Guest guest]

Thanks, . Your comments are very encouraging!

Cyndy

NC

Doctor Visit

> >

> > Well, I took baby for a weigh check and talked to

> > our dr. about not vaxing.

> > Actually, I told him we would be delaying

> > vaccinations thinking it'd be

> > easier to talk to him than if I said we were not

> > vaxing at all. He said by

> > age 2 the risk of autism is not great. He said in

> > our area there is not a

> > big threat of the diseases, but he'd keep his ear to

> > the ground and let me

> > know if he heard of some outbreaks. I told him our

> > 2 yo hasn't been vaxed

> > and he said 2 was the right time to start because I

> > can't watch her every

> > second. We talked about the tetanus. He said it's

> > in the dirt and you can

> > get exposed from just having a hangnail and playing

> > in the dirt. He also

> > said measles was the most deadly and permanent

> > hearing loss was a big

> > problem. I told him I was religiously opposed to

> > MMR and chickenpox

> > vaccines because of their use of fetal cells.

> >

> > So what's the deal about measles being so deadly and

> > destructive. I did

> > tell him that in my mom's day everyone had it (I

> > remembered what Sherri said

> > last year about everyone she knew having it with no

> > problems.) He didn't

> > have much to say about it after my comment.

> >

> > And the autism comment--is that true?

> >

> > And about the tetanus comment--a hangnail?? Does

> > anyone know if animals

> > (horses, cats, dogs) are vaxed for tetanus? I can't

> > remember, but don't

> > seem to think that was one we got for our cat. If

> > they're not, why aren't

> > animals dropping dead from tetanus--don't they get

> > scrapes, etc??

> >

> > Anyway, he didn't give me a hard time about it. I

> > told him we researched

> > the risks both ways. He said everyone had to make a

> > choice about it. I am

> > thankful he wasn't hateful because he's a really

> > great person and doctor.

> >

> > Cyndy

> > NC

> >

> > Eternity's a long time to be wrong....

> > www.raptureready.com

> >

> >

> >

> >

[Guest guest]

I was told I couldn't have Epidurals when I was pregnant and fused, too.

I have heard about these Spinal Epidurals on the Scolisis list.

But my doctors never mentioned it.

in Oakland

(Tired of the gloomy weather in CA, too!)

[Guest guest]

I can't tell you anything useful about it except that it's on the

cards for me. I'm having an MRI first though, as I'd be just as happy

not to be needled until we have the results, which may show what's

wrong and whether further surgery is likely. That said, if my

remaining disks show up as good on the MRI, I'll look forward to

trying it. As far as I can gather, it doesn't really matter if it's

not able to spread, because they're mostly targetting the area around

the unfused portions, so it seems to me it has to be worth a try.

It's been interesting to read about the parking permits. I'm fighting

to get my docs to support me to get one, not because I can't walk from

the car to the store, but because I physically cannot get in and out

of the car in the narrow spaces there are in most car parks. It's not

a problem at the moment, as I don't drive, but I want to learn.

However, that will be a pointless waste of money if I'm then still

unable to go anywhere alone. The usual drill is that the other half

lets me out of the car before manoeuvring into the space, and pulls

out before I climb in. I know I wouldn't be able to cope alone unless

I could use the wider spaces.

titch

--

Something unknown is doing we don't know what

[Guest guest]

titch,

This is what irks me about some medical professionals. Why should

you have to fight to get something like this that you need? Even if

your doctor doesn't want to trust your word that you need it, I would

demand that he walk out to the parking lot with you and watch you

struggle. I have no patience with the lack of compassion that you

are dealing with. Can your " other half " advocate for you in this

matter? Sometime doctors will back down if two people tell them the

same thing. Good luck with this issue and with the MRI. If all else

fails, can you park in a less busy spot in the lot and park your car

so crooked in the space that no one would park next to you?

Sometimes I see people with really expensive cars doing this so that

no one will park next to them and bang their car opening their door.

loriann

> I can't tell you anything useful about it except that it's on the

> cards for me. I'm having an MRI first though, as I'd be just as

happy

> not to be needled until we have the results, which may show what's

> wrong and whether further surgery is likely. That said, if my

> remaining disks show up as good on the MRI, I'll look forward to

> trying it. As far as I can gather, it doesn't really matter if it's

> not able to spread, because they're mostly targetting the area

around

> the unfused portions, so it seems to me it has to be worth a try.

>

> It's been interesting to read about the parking permits. I'm

fighting

> to get my docs to support me to get one, not because I can't walk

from

> the car to the store, but because I physically cannot get in and out

> of the car in the narrow spaces there are in most car parks. It's

not

> a problem at the moment, as I don't drive, but I want to learn.

> However, that will be a pointless waste of money if I'm then still

> unable to go anywhere alone. The usual drill is that the other half

> lets me out of the car before manoeuvring into the space, and pulls

> out before I climb in. I know I wouldn't be able to cope alone

unless

> I could use the wider spaces.

>

> titch

[Guest guest]

Titch,

You do not need to drive to get a placard.

C.

[Guest guest]

Here's the reason for the difficulties:

http://www.direct.gov.uk/Audiences/DisabledPeople/Motoring/Parking/ParkingArticl\

e/fs/en?CONTENT_ID=4001061 & chk=mLwh/N

If you look at the " Do you qualify? " , you'll see that in fact I

probably don't, because although I still have days where I can barely

make it from the car to the store, they're rare and intermittent.

It's made even more problematic by the fact that they're handed out by

local councils, and while they have room for discretion in their

decisions, they tend to use that discretion against you. My uncle,

who is not a candidate for bypass because his health is too poor and

the blockage is on the back of his heart, out of reach, was turned

down when he could barely shuffle 50 yards before his angina nearly

floored him - because it *might* not be permanent. Had he lived 10

miles down the road, he'd have been able to get it if able to walk 1/4

mile. A friend in another area had a massive fight, despite the

severe joint deformities and pain from his arthritis, because he

wasn't on the higher rate of DLA and was under 30.

At the rate it's going, I'm going to have to fight to get the

disability benefits, which I can live without and hence have not

applied for (I know most of my friends and family keep pressing me to,

but I'd feel a fraud because the problems are intermittent - I *know*

how different it is for them to be constant), just so I can get the

parking permit more easily! It's a daft system.

titch

--

Something unknown is doing we don't know what

[Guest guest]

Carol,

I'm having very similar symptoms, the numbness/pain in legs & hips ,etc after walking short distances. It is also my left leg that is the worse. I had a caudal epidural which didn't help any of that. Also had a couple of other things in the lower lumbar/sacrum area. None of it helped and a couple of things actually made the pain worse for a couple of days.

I recently saw a scoliosis specialist at Emory Spinal Center here in Atlanta. I had a CT and the results were similar to yours. The nerves coming from the sacral area are being affected thus causing the leg & hip symptoms.

I've lost 1 1/2 inches in height since my original surgery in 69. Now at age 50 I'm looking at another fusion. This time the rest of the lumbar & sacrum. He said I can probably go 6 months to 1 year before I have no other choice then to have the surgery.

Best of luck.

Joyce, RN Atlanta

[Guest guest]

Linn <linnmiller@...> wrote:

>

> We had our first visit with the new doctor (endo) that is

> taking over

> my daughter's care (her old doc retired). Let's just say that it

> didn't go too well.

A classic no-fit situation.

I'm surprised either of you kept on as long as you did

before calling it a no-fit and ending off.

Carol

[Guest guest]

Carol,The whole visit with him only lasted about 15 minutes.  I don't think either one of us could have stood much longer!!LinnOn Oct 19, 2006, at 11:31 PM, cbwillis9 wrote:Linn <linnmiller@...> wrote:>> We had our first visit with the new doctor (endo) that is> taking over > my daughter's care (her old doc retired). Let's just say that it > didn't go too well. A classic no-fit situation.I'm surprised either of you kept on as long as you didbefore calling it a no-fit and ending off.Carol_. 

[Guest guest]

Elaine,

I haven't had this type of surgery, but wanted to with you luck with

your difficult decision. I woke up and was awake for 2 hours before

they removed my breathing tube and it was NOT a pleasant experience,

so I understand your fear of this - though my experience was on a

much smaller scale.

You said that you are fused to L4? Is Dr Ondra going to fuse you to

the sacrum during the surgery too? You mentioned that he is going to

fuse you midway up your neck - wow, that will be a lot of fusion. I

didn't know that you were having problems up there as well.

How long would you be expected to be in the hospital? And would

there be rehab afterwards? I wish you the best with all of this! I

go back to Northwestern in April for my 9mo post-op visit.

>

> Hi:

> I went for a visit with Dr. Ondra this last week. When Dr. Ondra

did

> my revision surgery in November of 06 the plan was for me to go

back

> and have another surgery in 6 months. I had several complications

and

> could not face another big surgery so soon so put it off. I have

been

> trying to make up my mind to have the second surgery but have not

> been able to come to a definite decision. I went to see Dr. Ondra

to

> discuss it with him and maybe make some decision. The first surgery

> all of my old hardware was removed and 2 new rods and 4 screws were

> put in. This was to stablize my spine and helped my lower curve. I

> have a significant curve in my upper back. What took me to Dr.

Ondra

> in the first place was that I am bending forward and can not walk

> with my head up without a lot of pain. I am lucky in that I am

still

> walking around. But I am limited in much that I do. I ask Dr. Ondra

> if he thought that the next surgety would make it a little easier

for

> me to be able to walk and do normal things. He said he thought it

> would make me a lot better. So why am I hesitating. He explained

the

> surgery to me. He would open up my back and lossen thing up. Then I

> would be in traction on a ventilator for two days and then he would

> take me back to surgery and extend the rod that is already there,

> take out a vertabra and put in a cage, and fuse me all the way to

mid

> way of my neck. I'm a bit of a chicken and the thought of being on

a

> ventilator for two days scares me to death. He said I would be

> sedated and not to worry about that. But I still remember waking up

> in ICU on a vetilator after the first surgery and it was very

> frightening. He said it was the safest way to get my spine back

where

> it needs to be. Has anyone else had this type of surgery?

> Elaine

>

[Guest guest]

:

This may sound silly but I don't know about being fused to the sacrum. I couldn't think of what I wanted to ask after he said I would be in traction for two day on a ventilator. I remember he said he had fused me up to the L-4, and I had 2 rods in and 4 screws in at this time. He said he had left the rod a little long because he was planning to go back and extend the rod up into my neck. He also said he would take out a vertabra and put in a cage. I was just shocked that he was planning to have me in traction on a ventilator for two days and I am not sure I can do that. He said we could wait until it is necessary to do. I am going to email Kathy some questions when I get it straight in my mind what I want to ask. He said for me to email him when I had decided what I wanted to do. He said I should give myself a date to make up my mind and then live with the decision when I made it. If I decide to have the surgery he will make it happen. He said I

would most likely be in the hospital for 3 weeks and 1 week of rehab.

Re: Doctor visit

Elaine,I haven't had this type of surgery, but wanted to with you luck with your difficult decision. I woke up and was awake for 2 hours before they removed my breathing tube and it was NOT a pleasant experience, so I understand your fear of this - though my experience was on a much smaller scale. You said that you are fused to L4? Is Dr Ondra going to fuse you to the sacrum during the surgery too? You mentioned that he is going to fuse you midway up your neck - wow, that will be a lot of fusion. I didn't know that you were having problems up there as well.How long would you be expected to be in the hospital? And would there be rehab afterwards? I wish you the best with all of this! I go back to Northwestern in April for my 9mo post-op visit.>> Hi:> I went for a visit with Dr. Ondra this last week. When Dr. Ondra did > my revision surgery in November of 06 the plan was for me to go back > and have another surgery in 6 months. I had several complications and > could not face another big surgery so soon so put it off. I have been > trying to make up my mind to have the second surgery but have not > been able to come to a definite decision. I went to see Dr. Ondra to > discuss it with him and maybe make some decision. The first surgery > all of my old hardware was removed and 2 new rods and 4 screws were > put in. This was to stablize my spine and helped my lower curve. I > have a significant curve in my upper back. What took me to Dr. Ondra

> in the first place was that I am bending forward and can not walk > with my head up without a lot of pain. I am lucky in that I am still > walking around. But I am limited in much that I do. I ask Dr. Ondra > if he thought that the next surgety would make it a little easier for > me to be able to walk and do normal things. He said he thought it > would make me a lot better. So why am I hesitating. He explained the > surgery to me. He would open up my back and lossen thing up. Then I > would be in traction on a ventilator for two days and then he would > take me back to surgery and extend the rod that is already there, > take out a vertabra and put in a cage, and fuse me all the way to mid > way of my neck. I'm a bit of a chicken and the thought of being on a > ventilator for two days scares me to death. He said I would be > sedated and not to

worry about that. But I still remember waking up > in ICU on a vetilator after the first surgery and it was very > frightening. He said it was the safest way to get my spine back where > it needs to be. Has anyone else had this type of surgery? > Elaine>

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

Saw the PA at my doc's office yesterday.  She's concerned about the level of

pain I have, the swelling and poor flexion.  So, more PT to include water

therapy, more Percoset, encouragement to work at the exercising but not to

overdo it (ok, that's great!!!)  When I told her I walk for 20 minutes, the knee

starts to hurt and I break out in a massive sweat, she said if I had no

improvement or backslid, then I would have to have a manipulation in the

hospital!  Oh boy...

 

Lynn

LTHR Oct 09

RTKR Mar 11

 Life itself is the proper binge. - Child

 

Visit my art blog:  http://adreamseyeview.blogspot.com/

[Guest guest]

Hi Lynn,

I am so sorry you are having so much trouble with the knee. I think the PA is

right, you must use it as much as you can. A lot of people here swear by water

therapy, and maybe that will do it for you. You may have a lot of scar tissue

that is causing the problem. Have you tried the bicycle? That tends to break

up the adhesions, although swelling might happen and it can be painful at

first. I know that when I neglect the bike for a week, my knee tells me to get

back on!

All the best, Joan

________________________________

From: Lynn <lynnf_99@...>

Joint Replacement

Sent: Fri, June 3, 2011 10:04:29 PM

Subject: Doctor Visit

Saw the PA at my doc's office yesterday. She's concerned about the level of

pain I have, the swelling and poor flexion. So, more PT to include water

therapy, more Percoset, encouragement to work at the exercising but not to

overdo it (ok, that's great!!!) When I told her I walk for 20 minutes, the knee

starts to hurt and I break out in a massive sweat, she said if I had no

improvement or backslid, then I would have to have a manipulation in the

hospital! Oh boy...

Lynn

LTHR Oct 09

RTKR Mar 11

Life itself is the proper binge. - Child

Visit my art blog: http://adreamseyeview.blogspot.com/

[Guest guest]

More curiousity here: I think it as on ti slist where someoen once said

" Bad knees hurt less before, and more after surgery, than bad hips. " Was

wondering if those of you h who have been through both surgeries agree?

judith

In a message dated 6/4/2011 7:23:57 A.M. Eastern Daylight Time,

kell_joan@... writes:

Hi Lynn,

I am so sorry you are having so much trouble with the knee. I think the

PA is

right, you must use it as much as you can. A lot of people here swear by

water

therapy, and maybe that will do it for you. You may have a lot of scar

tissue

that is causing the problem. Have you tried the bicycle? That tends to

break

up the adhesions, although swelling might happen and it can be painful at

first. I know that when I neglect the bike for a week, my knee tells me

to get

back on!

All the best, Joan

________________________________

From: Lynn <lynnf_99@...>

Joint Replacement

Sent: Fri, June 3, 2011 10:04:29 PM

Subject: Doctor Visit

Saw the PA at my doc's office yesterday. She's concerned about the level

of

pain I have, the swelling and poor flexion. So, more PT to include water

therapy, more Percoset, encouragement to work at the exercising but not to

overdo it (ok, that's great!!!) When I told her I walk for 20 minutes,

the knee

starts to hurt and I break out in a massive sweat, she said if I had no

improvement or backslid, then I would have to have a manipulation in the

hospital! Oh boy...

Lynn

LTHR Oct 09

RTKR Mar 11

Life itself is the proper binge. - Child

Visit my art blog: http://adreamseyeview.blogspot.com/

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

------------------------------------

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