Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 , I wil post my message just sent to you and the others, soon on your site. I had planned on doing so, but wanted to clear it first with this small and important group of people. Thanks, Kurt Activity Hi Folks -I admit I'm a little frustrated about owning this group. The idea was to try to follow in the footsteps of 's CLL Topics discussion group, and talk about issues of general interest to CLLers. This is not to say that discussion of individual cases would not be welcome; it is hardly possible to discuss general topics without making reference to individual cases.However, I find a depressing lack of activity. Please take a moment to tell me how you think this group might find its place in the fight against CLL/SLL, and what we could do to raise the level of activity and interest. I can post things from time to time, but the full benefit will only be realized if we get some exciting discussions going.There is, of course, the very excellent ACOR group, where individual discussions are proceeding a mile a minute. I had hoped to create something slightly different, perhaps more technical, perhaps more all-inclusive, perhaps more "hey, what's happening out there".Your inputs would be more than welcome.Good health! Balan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2004 Report Share Posted January 9, 2004 Meryl - kindly acquaint me with 's group. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2004 Report Share Posted January 9, 2004 , I wonder if 's group and yours might be too similar. Meryl Activity > Hi Folks - > > I admit I'm a little frustrated about owning this group. The idea was to try > to follow in the footsteps of 's CLL Topics discussion group, and talk > about issues of general interest to CLLers. This is not to say that discussion > of individual cases would not be welcome; it is hardly possible to discuss > general topics without making reference to individual cases. > > However, I find a depressing lack of activity. Please take a moment to tell > me how you think this group might find its place in the fight against CLL/SLL, > and what we could do to raise the level of activity and interest. I can post > things from time to time, but the full benefit will only be realized if we get > some exciting discussions going. > > There is, of course, the very excellent ACOR group, where individual > discussions are proceeding a mile a minute. I had hoped to create something slightly > different, perhaps more technical, perhaps more all-inclusive, perhaps more > " hey, what's happening out there " . > > Your inputs would be more than welcome. > > Good health! > > Balan > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2004 Report Share Posted October 11, 2004 , How long has the group be in existence? Is it developing in a new light? Madeline ===== Enjoy This Journey That We Call Life __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2004 Report Share Posted October 12, 2004 Madeline - can't remember exactly - I started it over a year ago - close to two - but since we try to focus on general educational stuff, a lot of people who want to talk about uncle Fred's constipation have not joined us - I was growing frustrated with the lack of activity, that is why I am so pleased to see it pick up recently - Best, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2007 Report Share Posted October 24, 2007 As a woman, I can tell you that I only run if someone I strongly dislike is chasing me!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2008 Report Share Posted May 6, 2008 Reading t hese posts, I t hink the most active people must have joint replacement: perhaps the couch potatoes are the ones who buy scooters instead. You guys seem to ve into so many physical activities! Lynn Quote Link to comment Share on other sites More sharing options...
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