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Oh Diane, what a wonderful thing for to do and say! A no-hitter! How

proud you must be! I hope soon that my almost 5 yr old will be talking so

well!

> I know it has been a while since I last posted....Spring time is very busy

> for my group of boys...Anyone who is new since I have been busy. I am

Diane

> I live in Northern NJ with my hubby and 5 boys. My 10 year old was

> found to have apraxia... is a lovely little guy small for his age,

but

> easy to please, especially since we put him on Pro EFA, We are still

seeing

> alot of progress. Things have been busy here. The boys are active baseball

> players....Since Pro EFA has been able to stay with something he

> joined...Usually he gives up mid way. He is bowling every thursday and

> baseball 3 times a week, Just last week he pitched a no hitter game...He

ran

> to us and said " Mama I did it I itched....I cried cause this was a

dream...

>

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  • 6 months later...

glad to hear someone with some good news, then there's me!!! i have been

fighting a flare for a week now. dizzy, neck and back pains, chest pains and

tightness, fever, left elbow and (New) right knee!! then my son wakes with a

wisdom tooth gone wrong. i take a shower and look above (why me syndrome!!)

and noticed my roof is leaking!!! in my bedroom too. was i just having

pre-panic attacks??? just wanted to say hi before my crazyness starts. have

to drive my son almost an hour to hope the surgeon will take a short lunch

and look at my son's tooth. $500 a week before x-mas, plus the roof?!?! i

wish everyone a better week. kathy in il

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Hi Heidi. Sorry you're flaring too. I hope you feel better soon. Here's some

information regarding endometriosis, pregnancy and celebrex. There are not a

lot of studies regarding celebrex and pregnancy, but there is a warning for

taking it later in the pregnancy.

Other autoimmune diseases

that are seen somewhat more frequently in women with Endometriosis and in their

immediate families include Rheumatoid Arthritis, Lupus, Multiple Sclerosis, and

Meniere's disease.

http://www.infertilityphysician.com/endometriosis/heredity.html

http://www.endometriosis.org/html/press_release.html

http://www.fwhc.org/endo-nwhn.htm

Also here is some prescribing information about celebrex and pregnancy:

In late pregnancy Celebrex should be avoided because it may cause

premature closure of the ductus arteriosus.

http://www.nursing.uiowa.edu/sites/PedsPain/NSAIDS/Celebrnt.htm

There are a lot of articles about pregnancy and arthritis:

http://arthritis.about.com/cs/preg/

I hope this helps.

a

On Mon, 17 December 2001, " Heidi Steppe-Hoareau " wrote:

>

> Hi there everyone!

> I have been keeping up on the posts, just not finding the time to write

> anything of substance!

> I'm still on my baby mission - went to see a new gynaecologist since my old

> one has been telling me just to " make love not babies " for over 18 months

> now and doesn’t seem to be in the least bit interested in my various

> plumbing problems. The new guy is great - he is on as much a mission as me

> and we are going to start a treatment plan in January - so hold thumbs! As

> the Endometriosis is under control now he says I should try and fall

> pregnant before it comes back. He said something very interesting about the

> latest research in Endometriosis suggesting that it might be an auto-immune

> disease, has anyone heard this? - if true it would be a weird coincidence

> with the RA and I have seen that a few members in the group have

> Endometriosis as well?? So that's my major news - having a flare again so

> have upped the Prednisone and am taking Celebrex which I have to have

> imported since we don't get it here. I am a bit worried about taking

> Celebrex and trying to fall pregnant but the Gynae and my Reumy seem to

> think its OK so I am popping away.

> I hope that you are all feeling well and getting ready for Christmas.

> Big (gentle) hugs

> Heidi

> Please check below for a few personal messages!

>

> a - I am sorry to hear that you had to give up your job and hope that

> you will feel better soon.

> - Hi there - I loved your message on Hope - it is a very powerful

> weapon!

> Debs - It is so great that Ron got a new job - you must be so happy and

> relieved.

> Sher - Hi there, nice to meet you - I am also relatively new and don't post

> enough as have just started a new very demanding job that is eating all my

> energy! I look forward to getting to know you and hope you feel better.

> - I will keep you and your husband in my prayers and hope that

> everything works out for the best.

> and - Hi there - I hope that is doing better - he seems

> like a brave little boy and is very lucky to have such a loving family to

> support him.

>

>

> _________________________________________________________________

> Send and receive Hotmail on your mobile device: http://mobile.msn.com

>

>

>

>

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Kathy,

This is not a good start of the new week. I sure hope the rest of your week

goes better. Wisdom teeth aren't fun.

a

On Mon, 17 December 2001, kringlemom@... wrote:

>

> <html><body>

>

>

> <tt>

> glad to hear someone with some good news, then there's me!!! i have been <BR>

> fighting a flare for a week now. dizzy, neck and back pains, chest pains and

<BR>

> tightness, fever, left elbow and (New) right knee!! then my son wakes with a

<BR>

> wisdom tooth gone wrong. i take a shower and look above (why me syndrome!!)

<BR>

> and noticed my roof is leaking!!! in my bedroom too. was i just having <BR>

> pre-panic attacks??? just wanted to say hi before my crazyness starts. have

<BR>

> to drive my son almost an hour to hope the surgeon will take a short lunch

<BR>

> and look at my son's tooth. $500 a week before x-mas, plus the roof?!?! i <BR>

> wish everyone a better week. kathy in il<BR>

> </tt>

>

>

> <br>

> <tt>

>

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Kathy:

Sounds like you are having a rough time. Relax and try to get things to

normal. I will be thinking about you!

Colleen

>From: kringlemom@...

>Reply-

>

>Subject: Re: [ ] Hi everyone!

>Date: Mon, 17 Dec 2001 10:15:32 EST

>

>glad to hear someone with some good news, then there's me!!! i have been

>fighting a flare for a week now. dizzy, neck and back pains, chest pains

>and

>tightness, fever, left elbow and (New) right knee!! then my son wakes with

>a

>wisdom tooth gone wrong. i take a shower and look above (why me syndrome!!)

>and noticed my roof is leaking!!! in my bedroom too. was i just having

>pre-panic attacks??? just wanted to say hi before my crazyness starts. have

>to drive my son almost an hour to hope the surgeon will take a short lunch

>and look at my son's tooth. $500 a week before x-mas, plus the roof?!?! i

>wish everyone a better week. kathy in il

Check out my website at: http://www.geocities.com/callyanne21/

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp.

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well they will do the extraction on thursday, he ate and they couldn't put

him out. plus it'll let him do his finals and give antibiotics a couple days

head start. $750!!! still no word from the roofer yet. i am back on

prednisone now so hopefully by x-mas i'll feel good. good thing my parents

drove today. i went to the store and withing a couple minutes i knew i should

not be behind the wheel. kathy in il

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  • 2 years later...
Guest guest

-

Colleen

It sounds like you have alot of things going on right now. Please

try to not get too stressed out. I know that the divorce cannot be

an easy thing to go through. Or selling your house. Or getting

ready for your mtv episode. I will be praying that God will see you

through all of this! Don't worry about being more on the website

until you have time! You don't need any more stress. Take care and

may God's peace surround you!

Hugs, kathy

-- In , " colleenfortner "

<cfortner@e...> wrote:

> Hi! I hope you all are doing well. I haven't posted in a

while...in

> the process of divorcing my husband and selling our house. Had my

> internet access turned off...I've missed you all! I'm at my mom's

> house, so I thought I'd post real quick to let you know what's

going

> on.

>

> Mtv will be here July 20-24 to film me for the next season of " I

want

> a famous face. " I'm assuming it will run this fall, but when I

find

> out for sure, I'll let you know. We've been going back and forth

the

> past couple of weeks trying to figure out the best time for them

to

> come and things that would be good to film. It's been hectic, but

> they've been really cool. I am excited about it.

>

> Also, I was interviewed by a writer for a local paper here in

> Memphis. The story will run soon. You should be able to access the

> story on their website, so I'll be sure to give you the link when

it

> runs.

>

> I'm going to try to be more active in the group again soon. My

sister

> and I are looking for a house to rent, so hopefully soon I'll have

> internet access again!

>

> Take care!!!

>

> Obviously, my email address is no longer active, so if you need to

> reach me, you can send me an email at my mom's

> address...pmckenz1@m...

>

> Love, Colleen

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  • 3 weeks later...
Guest guest

Hello,

My name is Therese and my son is Xander and we live in the western suburbs of Cleveland. My son is 3 yrs. old and we're just starting down the road of diagnosis. The Neurologist is suspecting mild autism, ADHD, or mild MR. He also has a speech delay and pronunciation problems. We started Speech Therapy in January and he is improving at remarkable speed, but I still can't understand him about 25% of the time so you can imagine what it's like for others. He was kicked out of 2 daycares in 7 months, due to tantrums, inability to follow directions, and aggressive behavior towards teachers and children. The second daycare led me to looking at mild autism, the director had a son with the same problem and recognized certian behaviors. Before that noone wanted to listen to the concerns I had, stating he was too young and these could still be normal, age appropriate issues. I've been raising my son alone for the last 2 years and until May

2004 had worked full time and gone to school full time. I'm home with him for the summer and struggling to find some help for both of us. I am engaged again, and believe it or not, pregnant. My fiance just moved in with us and it's so nice to have an adult to talk to and help when he can. Right now I'm looking for a new Psychologist, ours is resigning. and I'd love any input or advice. I also would love to hear about any Neurologists people would recommend.

Thank you,

Therese__________________________________________________

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Guest guest

Hi Therese,

Welcome to a great group and congratulations on your

pregnancy,

My name is Andi and I have 2 boys, Corey 12 (nt) and

Ben 6 (asd).

Ben was dx'd about three years ago and I remember how

frightening and confusing the whole procedure can be.

Just remember to take deep breaths and take one day at

a time - lol.

We live in Akron, and have a spectacular neurologist,

Nevada who works out of children's hospital. I

would (and do) recommend her to everyone.

As far as help now, I would suggest you contact your

local county MRDD, and ask for the intake office. I

don't think they can start your services until you

have a medical dx, but they will be a good source of

information. Also, contact your local school district

and see if they do EI. It may be that they do it

through MRDD, I don't know your county rules. If your

child is on the spectrum, then you are entitled to

Early Intervention as well as any therapies (speach,

occupational, etc) through the school district.

The school district may tell you there is nothing they

can do until school starts back, but they are usually

back in their offices the first week in August, so you

can certainly start the ball rolling.

I think MRDD would be the place to start though and I

hear that Cleve Clinic also has an autism clinic that

can do an MFE and give a medical dx, but I'm afraid I

don't know what their waiting lists are like.

If you do end up on a waiting list, it is worth

calling them at the begining of every week to see if

there have been any cancellations also, this is what

I did and was seen within 2 weeks instead of 7 months.

(Ben got his dx in Oregon)

Hope this gives you a good start. If you want to ask

any questions, don't hesitate.

Let us know how things go.

andi

--- therese taylor <firedjinnx@...> wrote:

> Hello,

>

> My name is Therese and my son is Xander and we

> live in the western suburbs of Cleveland. My son is

> 3 yrs. old and we're just starting down the road of

> diagnosis. The Neurologist is suspecting mild

> autism, ADHD, or mild MR. He also has a speech delay

> and pronunciation problems. We started Speech

> Therapy in January and he is improving at remarkable

> speed, but I still can't understand him about 25% of

> the time so you can imagine what it's like for

> others. He was kicked out of 2 daycares in 7 months,

> due to tantrums, inability to follow directions, and

> aggressive behavior towards teachers and children.

> The second daycare led me to looking at mild autism,

> the director had a son with the same problem and

> recognized certian behaviors. Before that noone

> wanted to listen to the concerns I had, stating he

> was too young and these could still be normal, age

> appropriate issues. I've been raising my son alone

> for the last 2 years and until May 2004 had worked

> full time and gone to school

> full time. I'm home with him for the summer and

> struggling to find some help for both of us. I am

> engaged again, and believe it or not, pregnant. My

> fiance just moved in with us and it's so nice to

> have an adult to talk to and help when he can. Right

> now I'm looking for a new Psychologist, ours is

> resigning. and I'd love any input or advice. I also

> would love to hear about any Neurologists people

> would recommend.

>

> Thank you,

> Therese

>

> __________________________________________________

>

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Guest guest

Hi Therese! Wow, you have a lot on your plate! Congratulations on your soon-to-arrive bundle of joy! I have 3 preschoolers (at least 'til the fall) and while 3 definitely are a handful, each one has been a blessing to me. I'm sure your new arrival will be a blessing as well.

I'm afraid I have no leads on psychologists, but I loved the neurologist who dx Bobby - Dr. Margaret McBride @ Akron Children's Hospital. I hear that Akron Children's has other pediatric neurologists who are excellent. One is part of the Akron Chapter of the ASA.

Please let us know how things go.

mom to Bobby (5, ASD), Ian & Yoli (3 & 1, NT)

----- Original Message -----

From: therese taylor

Sent: Friday, July 23, 2004 3:13 PM

Subject: [ ] hi everyone!

Hello,

My name is Therese and my son is Xander and we live in the western suburbs of Cleveland. My son is 3 yrs. old and we're just starting down the road of diagnosis. The Neurologist is suspecting mild autism, ADHD, or mild MR. He also has a speech delay and pronunciation problems. We started Speech Therapy in January and he is improving at remarkable speed, but I still can't understand him about 25% of the time so you can imagine what it's like for others. He was kicked out of 2 daycares in 7 months, due to tantrums, inability to follow directions, and aggressive behavior towards teachers and children. The second daycare led me to looking at mild autism, the director had a son with the same problem and recognized certian behaviors. Before that noone wanted to listen to the concerns I had, stating he was too young and these could still be normal, age appropriate issues. I've been raising my son alone for the last 2 years and until May 2004 had worked full time and gone to school full time. I'm home with him for the summer and struggling to find some help for both of us. I am engaged again, and believe it or not, pregnant. My fiance just moved in with us and it's so nice to have an adult to talk to and help when he can. Right now I'm looking for a new Psychologist, ours is resigning. and I'd love any input or advice. I also would love to hear about any Neurologists people would recommend.

Thank you,

Therese

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Guest guest

Hi Therese,

I'm in the process of putting together a list of Doctor's and services. I wouldn't recommend the Neurologist I had my son diagnosed with because he was in old frame of mind with autism.

I hope to find a good neurologist with specialty to the new autism to add to our list. I'll be seeking one. Did you get the file from our site for Doctors and services when you first joinned? I'll send you a copy if you need it, it has a pediatric dentist and a DAN doctor listed. So far the list is very small and over time I hope to make it a long one.

~ n

firedjinnx@... writes:

I also would love to hear about any Neurologists people would recommend. Thank you,

Therese

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Guest guest

Theresa wrote:

Before that noone wanted to listen to the concerns I had, stating he was too young and these could still be normal, age appropriate issues.

~~~ ~~~ ~~~ ~~~

These are things I heard from everyone also. My son is much more calm and cooperative with the interventions we've used to help our son.

Have you read the book "Treating Autism" parent stories of hope and success? that book will be so much help to you as there is 31 parent stories with how they helped their children with interventions. There are also recommendations from doctors who specialize in autism in that book. You can order the book through amazon.com and I've also submitted a copy to our CCPL library system but it isn't cataloged yet.

Our storie is published in that book and i have it on our website too if you'd like to read it.

Here is the link: "Becoming Aware of Our Son's Autism"

God bless you and your family. Congradulations on your pregnancy.

~ n

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