I am new here

[Guest guest]

HI ,

Welcome to the list. This list is so informative and helpful. I visited

na's page last week. Again, I am so sorry for your loss.

It's nice to have you on the list.

Kerin

[Guest guest]

,

Welcome to the list. I am sorry for the loss of your daughter na. I

visited your page and she is beautiful. I understand your frustration

at being lied to, as we were with the Hepatitis B vaccine and reaction

that our daughter experienced at 16 hours old. Thank for continuing to

tell people about the risks associated with vaccines. You are making a

difference and I for one greatly appreciate it.

I attended all 3 congressional hearings last year. At the August 3,

1999 congressional hearing on the safety of vaccines Dr. Katz, of

the AAP, explained how the DPT vaccine is NO LONGER given in the US. He

was caught lying, as a perceptive staffer pointed the error out to

Congressman Burton. I know congress will be having more hearings. You

may want to write to Florida Congressman Mica and Illinois (it

might be Indiana) Congressman Dan Burton. Mica has a couple

children within his family (I think it is extended family) who have been

vaccine damaged. Congressman Burton has a grandson who is autistic due

to MMR (it was officially diagnosed as due to that) and a granddaughter

that almost died to Hep b. I think it is worth sharing na's story,

including the pain, anger and hurt. Who knows maybe you will be asked

to testify. Often at these hearings some (not all) congresspeople have

an underlying attitude that occassionally it happens where a child dies

but that it doesn't happen often. It is important they know your

story. It's just a thought.

Again..welcome. This list is a phenominal resource.

in CT

H823@... wrote:

>

> From: H823@...

>

> Hi, I am and this is my first time writing here. I lost my daughter

na on November 2, 1998 to a DPaT VACCINE!! na was 4 months and

5 days old and my only child. She was the light of my life, the reason I got up

every morning and will always remain that way in my heart. When na was

born we were bombarded with possible health problems, all which turned out to be

nothing. We were then told we could start to vaccinate. BIG MISTAKE! na

had a reaction to the DPaT shot which we were told was nothing, we were also

told it would only last a few days then it will go away. Well, a few days later

it did go away when she died at the babysitters house. Our lives are not and

will never be the same. We found out at her wake that she could have had a

reaction to the shots and we persued it till we found some answers. We now

believe that our daughter died from a reaction brought on by the DPaT shot. I

spend my time now informing others about the dangers

> and doing more and more reading everyday. Vaccines have become my life and I

will continue to fight for na, I want her life to make a difference. If

you would like to visit her I have built a web site in her memory. I have met

many people there who have had the same or similar thing happen to them. I will

be adding links shortly to the NVIC so all that visit can also find out more

about vaccines at the touch of a button. You can visit na at

www.geocities.com/Heartland/Ranch/8537

> Thank you for allowing me to be a part of this.

> Sincerely,

> Hroncich

> na's Mommy Forever

>

> ---------------------------

[Guest guest]

Hi, , I m Marsha, I live in South Central Texas. My two girls have asthma, allergies and the youngest also has reflux. Welcome, I look foward to getting to know you. Marsha

[Guest guest]

, Amber is 16 yr and April is 9 yr or at least they will be in Oct, so I am making them a few days older.LOL.

We do not have any pets as of yet, but in about six weeks we will be getting a kitten, neither girls have allergies to cats or dog so we are save there. April is only allergic to horses and roaches and we have neither.LOL. How old are your doggies?? Are you a Senior in High School?? If so how is school going for you?? talk to you soon, Marsha

[Guest guest]

hi marsha i am jessica. how are you? i am good. what is your kids names? i have two dogs princess and baby pooh. they are a snoozer poodle mix and a shih tzu. do you have any pets?

jessica

[Guest guest]

Hi. I'm Denisa, age 36. I, too have mild CP that effects my right side. I also have a 5cm cyst inside my skull that causes extreme headaches. Welcome to the list

Denisa

i am new here

hi i am jessica i am 19 and will be 20 on october 8. i have mild cerebral palsy, add, and perceptionally impaired. i live in nevada.i would like to talk to people on the computer. jessica ~~~~ *** ~~~ *** ~~~ *** ~~~~ The Being Sick CommunityMemorial Pagehttp://www.dreamwater.net/lovingmemory/Message Archives and Digest Attachment Pictures:-/messagesChat:- Scheduled Daily Chats at # on IRC DALnet./files/chat.htmBookmarks:-Add a website URL you have found useful./linksPersonal Complaints or problems:-Please contact a moderator email: -owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email.To modify your subscription settings please visit:- /joinTo subscribe or unsubscribe please email:--subscribe -unsubscribe ~~~~ *** ~~~ *** ~~~ *** ~~~~“Hold on to what is good, even if it's a handful of earth. Hold on to what you believe, even if it's a tree that stands by itself. Hold on to what you must do even, if it's a long way from here. Hold on to your life, even if it's easier to let go." - Pueblo Prayer~~~~ *** ~~~ *** ~~~ *** ~~~~

[Guest guest]

hi marsha. i am out of hs. i graduated in 2000. i will be going to community college in january. i love kittens. please tell me when you get the kitten and tell me what it looks like and everything. i will be 20 in october 8!

jessica

[Guest guest]

hi denisa it is jessica. how are you? i am ok. i get headaches alot also. but i do not have a cyst. i do not know why i get mine.

jessica

[Guest guest]

, April turns 9 on Oct 7, quite close. But, like I said, I stretched their age by a month.LOL. I will let you know when we get the kitty. The girls cannot wait. I am so glad they are not allergic to them. What will you major in?? Marsha

[Guest guest]

Welcome to our group . Sorry you are ill. How old are you??? Talk as nuch as you like. We are here for all.

{{{ Welcoming Hugs }}}

Helen

hi i am jessica i am 19 and will be 20 on october 8. i have mild cerebral palsy, add, and perceptionally impaired. i live in nevada.i would like to talk to people on the computer. jessica

Please Remember Our Country

And All the Families in

Your Thoughts and or Your Prayers !!!

Thank-You

         

[Guest guest]

thank you for welcoming me to the group ling!

jessica

[Guest guest]

Jessi you have cows where you live? That is so cool! I like cows.

jessica

[Guest guest]

i will be majoring in elementry special education. what klind of kitten are you getting?

jessica

[Guest guest]

i am not very ill. i was just born different. thank you for welcoming me to the group. i hope you have a nice night and day tomorrow.

jessica

[Guest guest]

Welcome to the group ! PLease feel free to talk

whenever you want to!

Ling, Singapore

--- jessiinnv@... wrote: >

> hi i am jessica i am 19 and will be 20 on october 8.

> i have mild cerebral

> palsy, add, and perceptionally impaired. i live in

> nevada.i would like to

> talk to people on the computer.

____________________________________________________________

[Guest guest]

Hello ,

Welcome to the group ) everyone is really wonderful

here ) My Name is Jessi and i'm 17 y/o I live in North Carolina with

Nana (my grandma/legal parent ) ) and Flint (dog), Benny (bunny)

and (cat). There are also a ton of cows all around us lol we kinda

live out in the middle of no where LOL ) Hope you are doing well tonight,

take care, and i'll talk to you all later.

Jessi () 17 y/o

jessiinnv@... wrote:

hi

denisa it is jessica. how are you? i am ok. i get headaches alot also.

but

i

do not have a cyst. i do not know why i get mine.

jessica

~~~~ *** ~~~ *** ~~~ *** ~~~~

The Being Sick Community

Memorial Page

http://www.dreamwater.net/lovingmemory/

Message Archives and Digest Attachment

Pictures:-

/messages

Chat:-

Scheduled Daily Chats at #

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/files/chat.htm

Bookmarks:-

Add a website URL you have found useful.

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email: -owner

Subscription Details:-

1) Individual email - means that every

email sent to the list you receive.

2) Daily Digest - sends you 25 messages

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3) Web only/No mail - means that you

can pop into eGroups at your convenience and receive no email.

To modify your subscription settings

please visit:-

/join

To subscribe or unsubscribe please

email:-

-subscribe

-unsubscribe

~~~~ *** ~~~ *** ~~~ *** ~~~~

“Hold on to what is good, even if it's

a handful of earth. Hold on to what you believe, even if it's a tree that

stands by itself. Hold on to what you must do even, if it's a long way

from here. Hold on to your life, even if it's easier to let go." - Pueblo

Prayer

~~~~ *** ~~~ *** ~~~ *** ~~~~

[Guest guest]

, either black on white, what ever the boy kitty is.LOL. Marsha

[Guest guest]

Hi Dorothy!

Shaw L.

Goal for now is to get to where the scale can read my weight!

Nevada

JLambsr@...

[Guest guest]

Welcome Dorothy --

We are all in this together so don't despair. I am amazed at how finding others spread all over the world in the same boat as me has made a difference in my progress....

Take Care,

311/245/170

[Guest guest]

Ok, here's what you do:

First, the ARD Facilitator at the school your son

attends. Tell her that you want the district Autism

Specialist(don't worry if the don't have one on staff,

they have access to one from the Region 13

Administration) to observe and evaluate your son .

Since he is already eligible for special services, the

district is should do a full evaluation with no

problem. Be prepared to be patient as the process can

take a couple of months to complete. Remember, YOU are

a member of the ARD committee and as such you can call

an ARD meeting if you feel it's is needed.

Hope this helps, let me know if I be of further help.

Monte

--- dinkybopmomma <dinkybopmomma@...> wrote:

>

>

> Well, we are close. We are in the Hays ISD. Are

> there more of us

> out there within our -on-Hays

> counties?

>

__________________________________________________

[Guest guest]

I did ask for an ARD but the Special Ed person questioned why I

wanted to have one. I told her that because M was having melt down

after meltdown from the time he got off the bus until bedtime. It

was clear he was having difficulty dealing with school. Last year

he was in PPCD (do you have PPCD in your school dist?) and it was

great. He was also in a class of 7 with a teacher and an aid. It

was an extremely structured class and boy the teacher was good for

him. But then the end of year ARD they said that they really never

saw him exhibit any of the things I mentioned like tantrums that

lasted for hours, obsession with broken things, screaming if it

broke and really coming unglued if it could not be fixed, repetitive

speaking etc. I felt like they were thinking I was trying to " make "

something wrong with him!! Yes, they noted he had some difficulty

expressing himself and there were some areas that he needed to work

on in speech. Then they gave me the glorious news that he would

still qualify for Special Ed because of those two things. M could

go to pre-K IF we were within the financial range of qualifying for

it. Thank goodness, because I am an at home mom, we do.

But now with school started he is in a class of 22 four year olds!

I would go bonkers if I were in there. Can you say little white men

in coats? But with M the noise, movements, less structure, and ONLY

ONE ADULT!!! he is losing it. The Special Ed lady told me that she

reviewed his ARD from the end of last year and said that the only

problem noted was his speech and his need for a little OT.

That " nothing that you mentioned was in the minutes from ARD. " Then

she said, " Oh, yes, I do see that you expressed concern that he was

having difficulties at home and that what you stated had really

never been exhibited here at school. " I told her last year was a

far cry from this year with the total number of students in his

class and only one adult. Last year he was only there 3 hours a

day. Part of that time was spent eating and playing outside. He had

routine and structure. Now he goes from art to music to P.E. to

computer lab with just a moment's notice. They think I am nuts!

Even though he had been to the principal's office twice during the

first 3 weeks of school and had daily sad face notes sent home

describing his defiance and uncontrollable behavior. I have left a

message a week for her to call me back. No return call. I have

shown up unannounced and she it not there.

What else can I do? What sort of traing does the Autism Specialist

have? I asked and she said, " they have been to training " . I

expressed that AS is not a one size fits all. How will I know that

he is getting the right diagnosis?

Thanks!

>

> >

> >

> > Well, we are close. We are in the Hays ISD. Are

> > there more of us

> > out there within our -on-Hays

> > counties?

> >

>

>

> __________________________________________________

>

[Guest guest]

Hello ,

I'm Anne and I'm also in Texas. My son Cameron had an evaluation done through the school. He was already in speech therapy through the special ed. co-op and the school district, so I told the principal I wanted an Autism evaluation. She scheduled an ARD meeting and I told them what I wanted. We had that meeting in November and the evaluation wasn't done until the end of January. You're the parent and you have the right to ask for these things and the school really can't say no. If you have problems, tell them you want to reschedule the ARD and find a Advocate place in your area and take an Advocate with you. They know all the laws and they do it voluntarily, and based on what I've seen, school districts give in on just about anything when an Advocate is present.

I understand exactly what you are saying about your husband. My husband says things like "I know Cameron has this problem, but he's so mild that he's like any other kid." I'm like "Huh? If he was like any other kid, he wouldn't have Aspergers." And then I also hear about how I'm looking too much into this and making too much out of it. It's so irritating! I can't stand it because hubby gets upset with Cameron for doing a particular thing, and then I get upset with hubby's reaction and he just doesn't get Cameron like I do. It's frustrating! I'm so glad I have people online to talk to who know what I am going through! Aren't you?

Anne

-- I am new here

My son (M for short)is a little over 4 years old. He is in pre-K here in Texas. While we do not have a "positive" diagnosis of AS whith the pedi, we know he has it. There is no question in our minds. The school has his IEP listed as OT and Speech therapy only. No cause or reason listed. Talking to the school, they are just has happy as clams to keep it that way. How do we force the issue and get him tested? Our insurance is not of much help either. Our deductable is too high and we cannot even begin to make payments to anyone else right now. So what does one do? Looking through the list of messages makes me cross eyed! I have to laugh. It will take me months to read all the stuff I need to. Where do I begin? There are soooo many things I have never heard of before and I know I need to read. When I go to other sites how do I know what is hog wash and what is real? Brushing therapy and touch therapy? What is it? Should I learn? Meltdowns that last for hours because of a tear in a tortilla or a leaf that came off the tree and I cant "fix it!!!" Heaven help me its Autumn! :-) Slapping himself on the head in frustration during meltdowns. Licking me in not so wonderful places in PUBLIC!! Not allowing me to touch him (unless he is ready and wants me to) Standing on his head or sitting on his head rather than being up right? Swimming for hours at a time and doing nothing but flips underwater? Three brothers and a sister that just can't get that just because he looks normal and is very intelligent would have problems on the inside. We are spoiling him in their minds. We just need to me more firm and punish him. My husband does not get it either. He knows what is wrong but can't deal with it. He does not know what to do with M either. HELP!!! Where do I begin? I am totally exhausted and would like to run away! I love M but sometimes...Thanks,

[Guest guest]

My speech therapist suggested setting up the video camera and just letting it run so they can see how he acts at home. Try it and bring it and an Advocate with you to the ARD.

Anne

-- Re: I am new here

I did ask for an ARD but the Special Ed person questioned why I wanted to have one. I told her that because M was having melt down after meltdown from the time he got off the bus until bedtime. It was clear he was having difficulty dealing with school. Last year he was in PPCD (do you have PPCD in your school dist?) and it was great. He was also in a class of 7 with a teacher and an aid. It was an extremely structured class and boy the teacher was good for him. But then the end of year ARD they said that they really never saw him exhibit any of the things I mentioned like tantrums that lasted for hours, obsession with broken things, screaming if it broke and really coming unglued if it could not be fixed, repetitive speaking etc. I felt like they were thinking I was trying to "make" something wrong with him!! Yes, they noted he had some difficulty expressing himself and there were some areas that he needed to work on in speech. Then they gave me the glorious news that he would still qualify for Special Ed because of those two things. M could go to pre-K IF we were within the financial range of qualifying for it. Thank goodness, because I am an at home mom, we do. But now with school started he is in a class of 22 four year olds! I would go bonkers if I were in there. Can you say little white men in coats? But with M the noise, movements, less structure, and ONLY ONE ADULT!!! he is losing it. The Special Ed lady told me that she reviewed his ARD from the end of last year and said that the only problem noted was his speech and his need for a little OT. That "nothing that you mentioned was in the minutes from ARD." Then she said, "Oh, yes, I do see that you expressed concern that he was having difficulties at home and that what you stated had really never been exhibited here at school." I told her last year was a far cry from this year with the total number of students in his class and only one adult. Last year he was only there 3 hours a day. Part of that time was spent eating and playing outside. He had routine and structure. Now he goes from art to music to P.E. to computer lab with just a moment's notice. They think I am nuts! Even though he had been to the principal's office twice during the first 3 weeks of school and had daily sad face notes sent home describing his defiance and uncontrollable behavior. I have left a message a week for her to call me back. No return call. I have shown up unannounced and she it not there. What else can I do? What sort of traing does the Autism Specialist have? I asked and she said, "they have been to training". I expressed that AS is not a one size fits all. How will I know that he is getting the right diagnosis? Thanks! > > > > > > > Well, we are close. We are in the Hays ISD. Are> > there more of us > > out there within our -on-Hays> > counties? > > > > > __________________________________________________>

[Guest guest]

I think I will do just that!!! Thanks for the idea. Will they

watch it? I am sure I can also send it to America's Funniest Videos

too! Some of the things he does are just hysterical!

> >

> > >

> > >

> > > Well, we are close. We are in the Hays ISD. Are

> > > there more of us

> > > out there within our -on-Hays

> > > counties?

> > >

> >

> >

> > __________________________________________________

> >

[Guest guest]

I agree!!! Our little angels that do

cute and funny things are so adorable!!! Everyday I have like 10 stories to

tell people about Caleb. LOL> I think they get tired of hearing about his

every waking moment~!!!

Spainhower

Independant Consultant for

Big Yellow Box by Crayola ®

(425)761-5238

I LOVE being a work at home

mom!!!

From: dinkybopmomma

[mailto:dinkybopmomma@...]

Sent: Friday, October 08, 2004

1:16 PM

To:

Autism and Aspergers Treatment

Subject: Re: I

am new here

I think I will do just that!!! Thanks for

the idea. Will they

watch it? I am sure I can also send it to America's Funniest Videos

too! Some of the things he does are just

hysterical!

> >

> > >

> > >

> > > Well, we are close. We are in

the Hays ISD. Are

> > > there more of us

> > > out there within our

-on-Hays

> > > counties?

> > >

> >

> >

> >

__________________________________________________

> >