HIP PAIN

[Guest guest]

hi Ron -

> I had the same problem, hip pain so bad, could not sleep.

> Tried one of those well known names and had the same problem.

> Then saw an ad in the back of a Mag. This was some years ago.

> It was an air bed, you know the one, no numbers then. I thought,who

> needs a air mattress, but I was desperate and there was the 30 day

> trial. It worked and has for at least five years [(?)BF] as long as I

> keep the pressure low. No outgasing, no smell. Use a thin cotton pad.

> Not cheep, same price as that well known name.

> I have absolutely no connection with this product, except for sleep.

do you still know the name of this bed, by chance? I googled for " air

mattress hypoallergenic " and got a gazillion hits.

Thanks for any info you can share,

Judith

[Guest guest]

Hi! Judith,

Google, Select Comfort or the number bed.

Advertised (to death) by the bionic woman, of TV fame.

Good company, from what I have heard.

--Ron

>

> hi Ron -

>

> > I had the same problem, hip pain so bad, could not sleep.

> > Tried one of those well known names and had the same problem.

> > Then saw an ad in the back of a Mag. This was some years ago.

> > It was an air bed, you know the one, no numbers then. I thought,who

> > needs a air mattress, but I was desperate and there was the 30 day

> > trial. It worked and has for at least five years [(?)BF] as long as I

> > keep the pressure low. No outgasing, no smell. Use a thin cotton pad.

> > Not cheep, same price as that well known name.

> > I have absolutely no connection with this product, except for sleep.

>

> do you still know the name of this bed, by chance? I googled for " air

> mattress hypoallergenic " and got a gazillion hits.

>

> Thanks for any info you can share,

>

> Judith

>

[Guest guest]

Hi, welcome, happy new year, and thanks for your post.

As you undoubtedly know, your symptoms do not really suggest an

etiology of flatback syndrome. I am sorry you have had such a bad

time with hip pain and radiation. I would think you could get some

substantive help with this, perhaps from a hip specialist or

rheumatologist (assuming your problems do have an arthritic

component, as you suggest they may).

I am wondering what led you to consider a revision-surgery consult.

Do you have a history of Harrington rod surgery for correcting

scoliosis? If so, does your pain seem to relate in some way to that

previous spinal fusion, or to your spinal configuration and

mechanics? I don't think you need to regret missing that Miami

appointment (especially in view of the hurricanes and the effects on

your finances). I am not a medical professsional but have been

hearing people's flatback-histories for a long time now. Granted, I

know relatively few details of your own medical situation, but at

least on the basis of the information provided here, I do not see

you as fitting " the flatback profile. "

Supposing, however, that you did have very early, asymptomatic

flatback syndrome . . . . In this instance, I would have to agree

that the diagnosis per se might not necessarily be too useful to

you. It is usually when we are worsening fairly rapidly and

descending into marked disability -- with inability to lie flat or

stand erect, excruciating back pain, etc. -- that it may help to

have an accurate and specific medical " name " for our troubles. At

this point, usually, there is no doubt whatsoever regarding the

diagnosis, assuming a diagnostician with appropriate expertise; and

there is also no doubt that the one course of action available is

flatback revision surgery. Disturbing as that prospect may be, it

kind of beats all those months or years of helpless pain,

bewilderment, and befuddlement as we sensed that our bodies were

betraying us and filling our lives with pain, yet we had no clue

what was happening to us or what could be done about it, if anything.

In short, along with the dreaded flatback diagnosis comes the first

real hope we have known. I would venture to say that most of us have

experienced--in addition to the normal fear, doubt, ambivalence, and

trauma that may accompany the diagnosis--some relief at learning

what was actually wrong with us and what options we might have for

fixing it. Finally, we have a clear and meaningful explanation for

our months or years of escalating distress and suffering; and along

with this, we have the first real prospect of definitive treatment.

My hope for you is that, similarly, you will find that doctor who

can tell you specifically and knowledgeably why you are experiencing

this unilateral hip pain with its pattern of radiation into your

right leg -- and better yet, what might be done to amelioriate the

problem and relieve your suffering.

Please do keep us posted on your progress.

Be well . . . feel better.

Best,

-- In , " Jill " <jill@r...>

wrote:

>

> Hello,

> I don't know if I'm experiencing Flat Back Syndrome or not. I

have been having pain in my

> right hip and it seems to radiate partly down my thigh and a

little on the inside thigh. It

> hurts when I'm sitting and is very aggravated when I overuse it.

I'm hoping it's arthritis! I do

> plan to ask my primary if he can rule out a few things and then

maybe I'll go to a specialist. I

> had an appointment with a guy in Miami that does revision surgery,

but I chickened out. The

> hurricanes have messed us up financially and honestly, what good

will it do me to know that I

> have it? I'm not slouching, I can walk and lie flat, so what's he

going to tell me? I'm not in

> the market for a new surgery--only if I'm really suffering, which

I'm not. I plan to lose 20

> pounds and continue excercising. What else can I do? Anyway, if

hip pain is a symptom,

> then I can bring this info to my primary.

> I hope the new year brings you all happiness and less pain! Thank

you for having this

> resource.

> Jill

>

[Guest guest]

What a nice response. I'm glad to have read this. . . I've been feeling very worried lately and appreciate your words. Good luck Jill. My pain started in my hip and it wasn't my hip at all. My hips are perfect. Rasche <feistyfounder@...> wrote: Hi, welcome, happy new year, and thanks for your post.As you undoubtedly know, your symptoms do not really suggest an etiology of flatback syndrome. I am sorry you have had such a bad time with hip pain and radiation. I would think you could get some substantive help with this, perhaps from a hip specialist or rheumatologist (assuming your problems do have an arthritic component, as you suggest they may).I am wondering what led you to consider a revision-surgery consult. Do you have a history of Harrington rod surgery for

correcting scoliosis? If so, does your pain seem to relate in some way to that previous spinal fusion, or to your spinal configuration and mechanics? I don't think you need to regret missing that Miami appointment (especially in view of the hurricanes and the effects on your finances). I am not a medical professsional but have been hearing people's flatback-histories for a long time now. Granted, I know relatively few details of your own medical situation, but at least on the basis of the information provided here, I do not see you as fitting "the flatback profile."Supposing, however, that you did have very early, asymptomatic flatback syndrome . . . . In this instance, I would have to agree that the diagnosis per se might not necessarily be too useful to you. It is usually when we are worsening fairly rapidly and descending into marked disability -- with inability to lie flat or stand erect, excruciating back pain,

etc. -- that it may help to have an accurate and specific medical "name" for our troubles. At this point, usually, there is no doubt whatsoever regarding the diagnosis, assuming a diagnostician with appropriate expertise; and there is also no doubt that the one course of action available is flatback revision surgery. Disturbing as that prospect may be, it kind of beats all those months or years of helpless pain, bewilderment, and befuddlement as we sensed that our bodies were betraying us and filling our lives with pain, yet we had no clue what was happening to us or what could be done about it, if anything.In short, along with the dreaded flatback diagnosis comes the first real hope we have known. I would venture to say that most of us have experienced--in addition to the normal fear, doubt, ambivalence, and trauma that may accompany the diagnosis--some relief at learning what was actually wrong with us and what options we

might have for fixing it. Finally, we have a clear and meaningful explanation for our months or years of escalating distress and suffering; and along with this, we have the first real prospect of definitive treatment.My hope for you is that, similarly, you will find that doctor who can tell you specifically and knowledgeably why you are experiencing this unilateral hip pain with its pattern of radiation into your right leg -- and better yet, what might be done to amelioriate the problem and relieve your suffering.Please do keep us posted on your progress. Be well . . . feel better.Best, -- In , "Jill" <jill@r...> wrote:>> Hello,> I don't know if I'm experiencing Flat Back Syndrome or not. I have been having pain in my > right hip and it seems to radiate partly down my thigh and a little on the inside thigh.

It > hurts when I'm sitting and is very aggravated when I overuse it. I'm hoping it's arthritis! I do > plan to ask my primary if he can rule out a few things and then maybe I'll go to a specialist. I > had an appointment with a guy in Miami that does revision surgery, but I chickened out. The > hurricanes have messed us up financially and honestly, what good will it do me to know that I > have it? I'm not slouching, I can walk and lie flat, so what's he going to tell me? I'm not in > the market for a new surgery--only if I'm really suffering, which I'm not. I plan to lose 20 > pounds and continue excercising. What else can I do? Anyway, if hip pain is a symptom, > then I can bring this info to my primary. > I hope the new year brings you all happiness and less pain! Thank you for having this > resource.>

Jill>

Find Great Deals on Holiday Gifts at

[Guest guest]

,

Thanks for the great response. I have had two Harrington Rod surgeries. I

still have a couple

on my lower spine, couldn't tell you offhand which vertabrae they are attached

to, but they're

there!

Jill

>

[Guest guest]

Thanks so much for your kind note, . It sounds as if several of us are grappling with new hip pain. I get the sense that this is often a real challenge to investigate or explain, , I take it you did find out what was going on with respect to your own pain originating in the hip? If you don't mind sharing (or maybe you have already done so -- in which case I regret the duplicative question), was this referred pain from some other specific organ or site in your body? Most important, have you (I hope) received some trustworthy medical guidance re what to do next? I am sorry to hear that you are facing such a worrisome situation. I can only assure you, for what it's worth, that you are

in good company here when it comes to those oppressive worries and anxieties. Please remember, here at the Feisty Forum, you can feel free to vent or unload at any time. That's a big part of what we're here for. At this group, you are definitely among friends, and you will almost always find a receptive audience no matter what is going on in your life. Best, . &nbs

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ounding to e be other . . . Wallace-Cook <abbyandcodysmom@...> wrote: What a nice response. I'm glad to have read this. . . I've been feeling very worried lately and appreciate your words. Good luck Jill. My pain started in my hip and it wasn't my hip at all. My hips are perfect. Rasche <feistyfounder@...> wrote: Hi, welcome, happy new year, and thanks for your post.As you undoubtedly

know, your symptoms do not really suggest an etiology of flatback syndrome. I am sorry you have had such a bad time with hip pain and radiation . . .

[Guest guest]

They have not determined where the pain is generated from. Plain x-ray film shows my hip is perfect. When I had a steroid injection the pain in my facet joint L4-L5 was excrucitating. They question flat back, stenosis and pinched nerves. I'm scheduled to have a CT Myelogram this month. However, I have a bleeding disorder which is holding this up. They want to be sure DDAVP will help prevent me from hemoraging. I'm going to the hospital tomorrow to have a challenge test to be sure the meds work. I've had an unsuccessful MRI and a CT scan that doesn't tell enough. I've rapidly gone down hill. I'm not the same person I was 6 months ago even. I have constant pain in my hip, lower back, upper rib hump (left side), pain in my thigh and feel like I'm falling over when I walk. I can't stand in line without having to lean on something. Christmas shopping was a nightmare this year. Will a myelogram confirm flat back. The doctor said my "plumb line" (is

that the right word) is good. Any feedback would be great. Rasche <feistyfounder@...> wrote: Thanks so much for your kind note, . It sounds as if several of us are grappling with new hip pain. I get the sense that this is often a real challenge to investigate or explain, , I take it you did find out what was going on with respect to your own pain originating in the hip? If you don't mind sharing (or maybe you have already done so -- in which case I regret the duplicative question), was this referred pain from some other specific organ or site in your body? Most important, have

you (I hope) received some trustworthy medical guidance re what to do next? I am sorry to hear that you are facing such a worrisome situation. I can only assure you, for what it's worth, that you are in good company here when it comes to those oppressive worries and anxieties. Please remember, here at the Feisty Forum, you can feel free to vent or unload at any time. That's a big part of what we're here for. At this group, you are definitely among friends, and you will almost always find a receptive audience no matter what is going on in your life. Best, . &amp

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; ounding to e be other . . . Wallace-Cook <abbyandcodysmom@...> wrote: What a nice response. I'm glad to have read this. . . I've been feeling very worried lately and appreciate your words. Good luck Jill. My pain started in my hip and it wasn't my hip at all. My hips are perfect. Rasche <feistyfounder@...> wrote: Hi, welcome, happy new year, and thanks for your post.As you undoubtedly

know, your symptoms do not really suggest an etiology of flatback syndrome. I am sorry you have had such a bad time with hip pain and radiation . . .

Photos Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever.

[Guest guest]

I have some of the same issues with my hip too. I thought I was just

going crazy. It seems to come from the sacroiliac area, but I get the

thigh pain too. I keep going back and forth as to whether the pains are

related, but hearing this makes me think they are. I get the pain at the

top of my thigh, but it does radiate down to the top of my knee also. My

last visit to a pain clinic is leading my to physical therapy. I have

tried it before and all I ended up with was more pain. I'm reluctant to

try it again, but I've gotten no relief from anything. All of my x rays,

bone scans, MRIs show nothing.

Jody, Janesville WI

[Guest guest]

Hi Jody

For years scans and MRI's showed nothing that helped my docs could

give me a diagnosis. I would have flares of muscle and tendon pain,

sometimes it mimicked lumbar disc problems, and frozen shoulders on

both sides with tennis elbow. The front of my thigh would sometimes

get so achey I could feel it weaken when I stepped up on a stair.

Don't give up on PT, if you find a good one they can show you

stretches and mild exercises that will help a lot. Or at least that

was my experience. Currently I spend 10-15 minutes in the shower 3-4

days a week doing stretches for my shoulders and back - I've been

doing this for some years now and it helps a lot - and for me at least

the average improvement continues to increase over the years - my

shoulders are now 75% back to normal where a few years ago I could

barely touch my hand to the base of my back... The doctors now call

this enthesitis - or inflammation at the muscle and tendon insertions

into the bone. It's very common in many autoimmune arthritis conditions.

Anyway, sorry for the long winded story - in a nutshell finding the

right stretches for the muscles that bother you IMO is one of the best

long term things a person can do for their comfort with these disorders...

Best of luck, keeping my fingers crossed for you -

>

> bone scans, MRIs show nothing.

>

> Jody, Janesville WI

>

[Guest guest]

Thanks ! It's taking me some time to get into the physical therapy

schedule, but I'm definitely going to try it. The hip and thigh pain are

my worst sites by far. I'm hoping PT will do the trick! I've heard that

water therapy would be good, but I'm one of those weird people who

doesn't like to get wet. I really should try the hot tub. Thanks again.

Jody

in a nutshell finding the

right stretches for the muscles that bother you IMO is one of the best

long term things a person can do for their comfort with these

disorders...

Best of luck, keeping my fingers crossed for you -

[Guest guest]

Steve, I haven't had a fusion but my back pain does cause me hip pain. I have a

torn disc at L-5 S-1. I don't know if it has to do with the area that causes the

hip pain or not.

Limitations with the stimulator are based on how long u have it in. The first 2

months or so u will be very limited, but over time and with healing u will begin

to be able to do things again. However I still don't lift really heavy stuff.

But I am capable of bending n stretching again...u just have to wait till the

leads are scarred into place and then take ur time building up ur abilities. I

can walk much further than I used too...I can squat n twist, reach over my head,

all the things that I previously took for granted....

Deanna

Sent from my iPhone

On Aug 26, 2009, at 2:41 PM, " stephenkweisberg " <stephenkweisberg@...>

wrote:

Hi all,

I am sort of new to the group and have had two failed back surgeries with the

last being a fusion at the L5-S1. I am now waiting for insurance approval on a

neurostimulator and can't wait to see if this will work for me. I just wanted to

check with others on any limitations these may cause as far as daily activities

and so on. I would also like to hear from others who are having severe pain in

the hip now due to the fusion. I have heard that the fusion puts a lot of stress

on the joints in the hip. It has only been year and a half since the fusion and

now found out I have need disc replacement in my cervical neck area like the

C5-6. How long after surgery has others experienced this pain in the hip area?

Steve from Seattle.

[Guest guest]

Hi Steve,

It wasn't until my 3rd fusion that I started to have hip pain. Ive had S1/L5,

L5/L4 and L4/L3 done. The biggest thing you have to remember is that every time

you have surgery, you have muscles that are cut and these take along time to

repair. Plus your discs in that area don't move anymore as well. You probably

haven't noticed it yourself, but you may also be walking differently now since

the last surgery. This will automatically put strain onto the hips, because they

are moving in a different way to what they used to do. Believe it or not. A trip

to the podiatrist might help with your hip pain. They can build things to wear

into your shoes to get your normal gait back into alignment.

I hope this helps. Also make sure that when you go walking for any distance,

make sure you have a really good pair of sandshoes, or walkers, or joggers.

Hydrotherapy also helps. This lets you excercise your hips whilst taking the

pressure of them as well.

Warm Cheers

[Guest guest]

Steve...maria is right and kind of water therapy is gonna be great for ur hips

and back.

I never thought of seeing someone to help with my gait. I most definitely walk

differently than I did before. Of course being 9 months preggo, I really walk

different now...LOL

Anyways it never occurred to me to see a podiatrist or some sort of

specialist...thanks for the tip!!!

Deanna

Sent from my iPhone

On Aug 26, 2009, at 7:54 PM, " velria " <radiant.salubrity@...> wrote:

Hi Steve,

It wasn't until my 3rd fusion that I started to have hip pain. Ive had S1/L5,

L5/L4 and L4/L3 done. The biggest thing you have to remember is that every time

you have surgery, you have muscles that are cut and these take along time to

repair. Plus your discs in that area don't move anymore as well. You probably

haven't noticed it yourself, but you may also be walking differently now since

the last surgery. This will automatically put strain onto the hips, because they

are moving in a different way to what they used to do. Believe it or not. A trip

to the podiatrist might help with your hip pain. They can build things to wear

into your shoes to get your normal gait back into alignment.

I hope this helps. Also make sure that when you go walking for any distance,

make sure you have a really good pair of sandshoes, or walkers, or joggers.

Hydrotherapy also helps. This lets you excercise your hips whilst taking the

pressure of them as well.

Warm Cheers

[Guest guest]

hey deanna,

not trying to be rude, but you mentioned things you probably should NEVER do

with a bad back, like reaching and lifting over your head, squat and twist.   

might do some good, if you haven't done this, to take a " back " class.  i did,

three times after my first fusion and it really helped.  they show you how to

" properly " does a " few " of the things we used to.  personally, i limit myself to

the weight of a gallon of milk (about 8 lbs.) and NEVER twist or squat, i'd get

all freaked if i got stuck, lol  your life has changed, it's different now than 

it was, and only you can stop the slide.  like i said, i'm not trying to be

rude, just the little things can make such a difference.  i live in illinois,

i'm 47 and feel like 147.  i have a morphine pump (2nd) and SCS (6th), i have

finally gotten off of oral opiates.  i was bedridden and had lost over 70 lbs.

when a hospice nurse recommended that i try cannabis, if i wasn't so sick, it

would have

been funny, but honestly, its the only reason i'm alive. i have become an

advocate for legalization for medicinal use.  i can function again, this really

is a " quality of life issue " .  if i  can help, let me know, if you know anyone

in illinois, have them get in touch with me.  thanks and good luck~~~  mike

from  manteno illinois

Hi all,

I am sort of new to the group and have had two failed back surgeries with the

last being a fusion at the L5-S1. I am now waiting for insurance approval on a

neurostimulator and can't wait to see if this will work for me. I just wanted to

check with others on any limitations these may cause as far as daily activities

and so on. I would also like to hear from others who are having severe pain in

the hip now due to the fusion. I have heard that the fusion puts a lot of stress

on the joints in the hip. It has only been year and a half since the fusion and

now found out I have need disc replacement in my cervical neck area like the

C5-6. How long after surgery has others experienced this pain in the hip area?

Steve from Seattle.

[Guest guest]

Hi Steve,

Just a quick note about what you can and can't do. It largely depends on the

type of lead that you have fitted. If you have a basic lead, which is, to put it

simply, just a wire with electrodes in it, then my advice would be that you have

to take things very carefully. I had one of these fitted first time around in

December 2007 and it was great for about three weeks. I had started simming

again and unfortunately the lead became detached (it was only held in by a

couple of sutures).

I now have a paddle lead fitted and although the surgery is far more invaisive

(the surgeon has to remove some of the bone from the spine) its a far more

secure arrangement. But it also depends upon your surgeon's preferred method of

securing the lead. Some still suture them in however mine is held in by screws

so there is no chance of it coming away. I discussed with my surgeon what I

couldn't and couldn't do and he basically said that I had to take things easy

for the first 6 to 8 weeks, no excessive bending, stretching or lifting (limited

to 5lbs in weight) to allow the scar tissue to form and bed the lead in. From

then on I can do pretty much anything as I did before, he was that confident.

However when I was in hospital the guy in the bed opposite was having corrective

surgery because his lead had actually snapped!

Hope this helps

________________________________

From: stephenkweisberg <stephenkweisberg@...>

Stimulator

Sent: Wednesday, 26 August, 2009 22:41:14

Subject: Hip pain

 

Hi all,

I am sort of new to the group and have had two failed back surgeries with the

last being a fusion at the L5-S1. I am now waiting for insurance approval on a

neurostimulator and can't wait to see if this will work for me. I just wanted to

check with others on any limitations these may cause as far as daily activities

and so on. I would also like to hear from others who are having severe pain in

the hip now due to the fusion. I have heard that the fusion puts a lot of stress

on the joints in the hip. It has only been year and a half since the fusion and

now found out I have need disc replacement in my cervical neck area like the

C5-6. How long after surgery has others experienced this pain in the hip area?

Steve from Seattle.

[Guest guest]

Mike

I think its a little presumptous when you are not a medical professional and you

do not know Deanna's situation to be telling her what she should and should not

be doing with her back problems. We all have different issues and have different

limitations. What is a limitation for one of us may not be the same for someone

else and to presume that what you cannot do or choose not to do and to try to

tell someone else that they should live that way is getting a bit over the line

IMHO.

We are here to support each other not take each other to task.

If classes are needed then it is up to our physicians or someone else to order

those! It is not up to someone who has little knowledge to be taking it upon

themselves to make diagnosis and then offer advice that they do not have enough

knowledge about to be stating that knowledge.

And that is my 2 cents for the day!

Kim

Re: Hip pain

hey deanna,

not trying to be rude, but you mentioned things you probably should NEVER do

with a bad back, like reaching and lifting over your head, squat and twist.

might do some good, if you haven't done this, to take a " back " class. i did,

three times after my first fusion and it really helped. they show you how to

" properly " does a " few " of the things we used to. personally, i limit myself to

the weight of a gallon of milk (about 8 lbs.) and NEVER twist or squat, i'd get

all freaked if i got stuck, lol your life has changed, it's different now than

it was, and only you can stop the slide. like i said, i'm not trying to be

rude, just the little things can make such a difference. i live in illinois,

i'm 47 and feel like 147. i have a morphine pump (2nd) and SCS (6th), i have

finally gotten off of oral opiates. i was bedridden and had lost over 70 lbs.

when a hospice nurse recommended that i try cannabis, if i wasn't so sick, it

would have

been funny, but honestly, its the only reason i'm alive. i have become an

advocate for legalization for medicinal use. i can function again, this really

is a " quality of life issue " . if i can help, let me know, if you know anyone

in illinois, have them get in touch with me. thanks and good luck~~~ mike from

manteno illinois

Hi all,

I am sort of new to the group and have had two failed back surgeries with the

last being a fusion at the L5-S1. I am now waiting for insurance approval on a

neurostimulator and can't wait to see if this will work for me. I just wanted to

check with others on any limitations these may cause as far as daily activities

and so on. I would also like to hear from others who are having severe pain in

the hip now due to the fusion. I have heard that the fusion puts a lot of stress

on the joints in the hip. It has only been year and a half since the fusion and

now found out I have need disc replacement in my cervical neck area like the

C5-6. How long after surgery has others experienced this pain in the hip area?

Steve from Seattle.

[Guest guest]

First of all Mike...I do not have a fusion but a stimulator, which are different

procedures. Secondly I have had more than my share of education on backs n back

health. I rarely lift anything more than a gallon of milk and my dr is fully

aware and supports me being able to bend over for the purpose of stretching,

which happens to also be the reason for my reaching and twisting as well. After

more than 7 years of being in pain I'm rather proud to say I'm quite flexible

and it's much better for my back than being a stiff board. It's not like I went

about any of these tasks until months n months of recovery after my stimulator

was placed. Which was over 2 years ago....

I'm not here to argue with anyone over symantics or statistics. If I went by ur

limitations I also wouldn't be 9 months pregnant due to go into labor anytime

and doing it without an epidural n minimal or no Meds. Each person and their

situation is different and I know I'm not doing anything wrong for my situation.

For example I would assume someone with a new stimulator or a fusion would have

a much stricter amount of limitations than I would.

Lastly...I'm glad cannibus works for u, but I have read every email sent thru

this group for several years now and again what works for one may or may not

work for another. I have felt from day one that u have been pushing ur method

and what works for you and I have sat here silently because maybe just maybe

there's someone who needed to hear your story...just like maybe there's someone

who needs to hear mine! I am virtually drug free thanks to my stimulator not

because of another or different drug.

So contrary to ur classes or ur experiences I have every right to share mine as

well, whether u agree or think it's right or wrong....

This is what has worked for me and I highly recommend others look into and even

go thru a trial of the stimulator, it will work for some and others it won't.

That's all any of us came to this group for is support, experiences, and

possibly some helpful information.

That's ALL I'm going to say on the matter!

Deanna

Sent from my iPhone

On Aug 27, 2009, at 8:33 AM, mike graham <oldstylemike1@...> wrote:

hey deanna,

not trying to be rude, but you mentioned things you probably should NEVER do

with a bad back, like reaching and lifting over your head, squat and twist.

might do some good, if you haven't done this, to take a " back " class. i did,

three times after my first fusion and it really helped. they show you how to

" properly " does a " few " of the things we used to. personally, i limit myself to

the weight of a gallon of milk (about 8 lbs.) and NEVER twist or squat, i'd get

all freaked if i got stuck, lol your life has changed, it's different now than

it was, and only you can stop the slide. like i said, i'm not trying to be

rude, just the little things can make such a difference. i live in illinois,

i'm 47 and feel like 147. i have a morphine pump (2nd) and SCS (6th), i have

finally gotten off of oral opiates. i was bedridden and had lost over 70 lbs.

when a hospice nurse recommended that i try cannabis, if i wasn't so sick, it

would have

been funny, but honestly, its the only reason i'm alive. i have become an

advocate for legalization for medicinal use. i can function again, this really

is a " quality of life issue " . if i can help, let me know, if you know anyone

in illinois, have them get in touch with me. thanks and good luck~~~ mike from

manteno illinois

Hi all,

I am sort of new to the group and have had two failed back surgeries with the

last being a fusion at the L5-S1. I am now waiting for insurance approval on a

neurostimulator and can't wait to see if this will work for me. I just wanted to

check with others on any limitations these may cause as far as daily activities

and so on. I would also like to hear from others who are having severe pain in

the hip now due to the fusion. I have heard that the fusion puts a lot of stress

on the joints in the hip. It has only been year and a half since the fusion and

now found out I have need disc replacement in my cervical neck area like the

C5-6. How long after surgery has others experienced this pain in the hip area?

Steve from Seattle.

[Guest guest]

Thank you for your support Kim...

Deanna

Sent from my iPhone

On Aug 27, 2009, at 11:16 AM, " Kim Leach " <kimleach@...> wrote:

Mike

I think its a little presumptous when you are not a medical professional and you

do not know Deanna's situation to be telling her what she should and should not

be doing with her back problems. We all have different issues and have different

limitations. What is a limitation for one of us may not be the same for someone

else and to presume that what you cannot do or choose not to do and to try to

tell someone else that they should live that way is getting a bit over the line

IMHO.

We are here to support each other not take each other to task.

If classes are needed then it is up to our physicians or someone else to order

those! It is not up to someone who has little knowledge to be taking it upon

themselves to make diagnosis and then offer advice that they do not have enough

knowledge about to be stating that knowledge.

And that is my 2 cents for the day!

Kim

Re: Hip pain

hey deanna,

not trying to be rude, but you mentioned things you probably should NEVER do

with a bad back, like reaching and lifting over your head, squat and twist.

might do some good, if you haven't done this, to take a " back " class. i did,

three times after my first fusion and it really helped. they show you how to

" properly " does a " few " of the things we used to. personally, i limit myself to

the weight of a gallon of milk (about 8 lbs.) and NEVER twist or squat, i'd get

all freaked if i got stuck, lol your life has changed, it's different now than

it was, and only you can stop the slide. like i said, i'm not trying to be rude,

just the little things can make such a difference. i live in illinois, i'm 47

and feel like 147. i have a morphine pump (2nd) and SCS (6th), i have finally

gotten off of oral opiates. i was bedridden and had lost over 70 lbs. when a

hospice nurse recommended that i try cannabis, if i wasn't so sick, it would

have

been funny, but honestly, its the only reason i'm alive. i have become an

advocate for legalization for medicinal use. i can function again, this really

is a " quality of life issue " . if i can help, let me know, if you know anyone in

illinois, have them get in touch with me. thanks and good luck~~~ mike from

manteno illinois

Hi all,

I am sort of new to the group and have had two failed back surgeries with the

last being a fusion at the L5-S1. I am now waiting for insurance approval on a

neurostimulator and can't wait to see if this will work for me. I just wanted to

check with others on any limitations these may cause as far as daily activities

and so on. I would also like to hear from others who are having severe pain in

the hip now due to the fusion. I have heard that the fusion puts a lot of stress

on the joints in the hip. It has only been year and a half since the fusion and

now found out I have need disc replacement in my cervical neck area like the

C5-6. How long after surgery has others experienced this pain in the hip area?

Steve from Seattle.

[Guest guest]

Amen and Amen again!!!

And I for one am a bit tired of hearing all the crap about how wonderful

cannibus is for you Mike. Like Deanna said it works for you BUT IT IS ILLEGAL IN

MOST AREAS!

I do not agree that it should be but it is and that opens a HUGE can of worms by

people being cheerleaders for things that are not legal and not prescribed for

the most part.

I have kept my mouth shut up until now and will go back to my corner after this

but I have had problems with this and I cannot keep quiet any longer as I feel

that this is not good for the list to keep this going on.

Let's support each other but let's not try to push our own agendas and our own

politics. That is not what this list is for.

Kim

Re: Hip pain

First of all Mike...I do not have a fusion but a stimulator, which are

different procedures. Secondly I have had more than my share of education on

backs n back health. I rarely lift anything more than a gallon of milk and my dr

is fully aware and supports me being able to bend over for the purpose of

stretching, which happens to also be the reason for my reaching and twisting as

well. After more than 7 years of being in pain I'm rather proud to say I'm quite

flexible and it's much better for my back than being a stiff board. It's not

like I went about any of these tasks until months n months of recovery after my

stimulator was placed. Which was over 2 years ago....

I'm not here to argue with anyone over symantics or statistics. If I went by

ur limitations I also wouldn't be 9 months pregnant due to go into labor anytime

and doing it without an epidural n minimal or no Meds. Each person and their

situation is different and I know I'm not doing anything wrong for my situation.

For example I would assume someone with a new stimulator or a fusion would have

a much stricter amount of limitations than I would.

Lastly...I'm glad cannibus works for u, but I have read every email sent thru

this group for several years now and again what works for one may or may not

work for another. I have felt from day one that u have been pushing ur method

and what works for you and I have sat here silently because maybe just maybe

there's someone who needed to hear your story...just like maybe there's someone

who needs to hear mine! I am virtually drug free thanks to my stimulator not

because of another or different drug.

So contrary to ur classes or ur experiences I have every right to share mine

as well, whether u agree or think it's right or wrong....

This is what has worked for me and I highly recommend others look into and

even go thru a trial of the stimulator, it will work for some and others it

won't.

That's all any of us came to this group for is support, experiences, and

possibly some helpful information.

That's ALL I'm going to say on the matter!

Deanna

Sent from my iPhone

On Aug 27, 2009, at 8:33 AM, mike graham <oldstylemike1@...> wrote:

hey deanna,

not trying to be rude, but you mentioned things you probably should NEVER do

with a bad back, like reaching and lifting over your head, squat and twist.

might do some good, if you haven't done this, to take a " back " class. i did,

three times after my first fusion and it really helped. they show you how to

" properly " does a " few " of the things we used to. personally, i limit myself to

the weight of a gallon of milk (about 8 lbs.) and NEVER twist or squat, i'd get

all freaked if i got stuck, lol your life has changed, it's different now than

it was, and only you can stop the slide. like i said, i'm not trying to be rude,

just the little things can make such a difference. i live in illinois, i'm 47

and feel like 147. i have a morphine pump (2nd) and SCS (6th), i have finally

gotten off of oral opiates. i was bedridden and had lost over 70 lbs. when a

hospice nurse recommended that i try cannabis, if i wasn't so sick, it would

have

been funny, but honestly, its the only reason i'm alive. i have become an

advocate for legalization for medicinal use. i can function again, this really

is a " quality of life issue " . if i can help, let me know, if you know anyone in

illinois, have them get in touch with me. thanks and good luck~~~ mike from

manteno illinois

Hi all,

I am sort of new to the group and have had two failed back surgeries with the

last being a fusion at the L5-S1. I am now waiting for insurance approval on a

neurostimulator and can't wait to see if this will work for me. I just wanted to

check with others on any limitations these may cause as far as daily activities

and so on. I would also like to hear from others who are having severe pain in

the hip now due to the fusion. I have heard that the fusion puts a lot of stress

on the joints in the hip. It has only been year and a half since the fusion and

now found out I have need disc replacement in my cervical neck area like the

C5-6. How long after surgery has others experienced this pain in the hip area?

Steve from Seattle.

[Guest guest]

I have to agree with kim mike group owner

>

> Hi all,

>

> I am sort of new to the group and have had two failed back surgeries with

the last being a fusion at the L5-S1. I am now waiting for insurance approval on

a neurostimulator and can't wait to see if this will work for me. I just wanted

to check with others on any limitations these may cause as far as daily

activities and so on. I would also like to hear from others who are having

severe pain in the hip now due to the fusion. I have heard that the fusion puts

a lot of stress on the joints in the hip. It has only been year and a half since

the fusion and now found out I have need disc replacement in my cervical neck

area like the C5-6. How long after surgery has others experienced this pain in

the hip area?

>

> Steve from Seattle.

>

>

[Guest guest]

hey all, i wasn't trying to offend anyone, i was REQUIRED by my state to attend

" back class " and i was just explaining what they pounded into my head.  i was

just trying to tell her to be careful in what she was doing, if that came off

wrong, i apologize.  and as far as experience, i have been dealing with this

since my first surgery in 1980, that almost thirty years of seeing more doctors,

nuero's ortho-spine specialist and pain management people so i have seen a lot

and have the feeling that if anyone can benefit from the crap i have been

through and it saves them some misery, GREAT!!!  i didn't DIAGNOSE anything, i

just offered her some insight to a successful recovery.~~~~~oldstylemike

f.y.i.  cannabis IS legal for medicinal use in 14 states and 14 more have

pending legislation and considering the chinese have used cannabis medicinally

for over 5000 years without one documented overdose death, i think it might be

to our advantage to support further research.

From: mike2boys <mike2boys@...>

Subject: Re: Hip pain

Stimulator

Date: Thursday, August 27, 2009, 7:24 PM

 

I have to agree with kim mike group owner

>

> Hi all,

>

> I am sort of new to the group and have had two failed back surgeries with

the last being a fusion at the L5-S1. I am now waiting for insurance approval on

a neurostimulator and can't wait to see if this will work for me. I just wanted

to check with others on any limitations these may cause as far as daily

activities and so on. I would also like to hear from others who are having

severe pain in the hip now due to the fusion. I have heard that the fusion puts

a lot of stress on the joints in the hip. It has only been year and a half since

the fusion and now found out I have need disc replacement in my cervical neck

area like the C5-6. How long after surgery has others experienced this pain in

the hip area?

>

> Steve from Seattle.

>

>

[Guest guest]

Glad your recovery is going well. Even after your recovery is complete. you

still have to do things in moderation. If you overdo, you will know it and pay

for it. This is the biggest mistake people make. They feel better, so they do

more than they should and they set themselves back. This is very normal and

something we have all done.

Sue C

________________________________

From: Woolrich <john.woolrich@...>

Stimulator

Sent: Thursday, August 27, 2009 1:58:24 PM

Subject: Re: Hip pain

 

Hi Steve,

Just a quick note about what you can and can't do. It largely depends on the

type of lead that you have fitted. If you have a basic lead, which is, to put it

simply, just a wire with electrodes in it, then my advice would be that you have

to take things very carefully. I had one of these fitted first time around in

December 2007 and it was great for about three weeks. I had started simming

again and unfortunately the lead became detached (it was only held in by a

couple of sutures).

I now have a paddle lead fitted and although the surgery is far more invaisive

(the surgeon has to remove some of the bone from the spine) its a far more

secure arrangement. But it also depends upon your surgeon's preferred method of

securing the lead. Some still suture them in however mine is held in by screws

so there is no chance of it coming away. I discussed with my surgeon what I

couldn't and couldn't do and he basically said that I had to take things easy

for the first 6 to 8 weeks, no excessive bending, stretching or lifting (limited

to 5lbs in weight) to allow the scar tissue to form and bed the lead in. From

then on I can do pretty much anything as I did before, he was that confident.

However when I was in hospital the guy in the bed opposite was having corrective

surgery because his lead had actually snapped!

Hope this helps

____________ _________ _________ __

From: stephenkweisberg <stephenkweisberg>

Stimulator@gro ups.com

Sent: Wednesday, 26 August, 2009 22:41:14

Subject: Hip pain

 

Hi all,

I am sort of new to the group and have had two failed back surgeries with the

last being a fusion at the L5-S1. I am now waiting for insurance approval on a

neurostimulator and can't wait to see if this will work for me. I just wanted to

check with others on any limitations these may cause as far as daily activities

and so on. I would also like to hear from others who are having severe pain in

the hip now due to the fusion. I have heard that the fusion puts a lot of stress

on the joints in the hip. It has only been year and a half since the fusion and

now found out I have need disc replacement in my cervical neck area like the

C5-6. How long after surgery has others experienced this pain in the hip area?

Steve from Seattle.

[Guest guest]

Hi Alana,

Mine felt like muscles or tendons tearing and burning, I couldn't move without

pain I saw an Orthopedist that works with MD patients 8 months ago, when I

showed him where the pain was, he knew exactly what was wrong. I had Bursitis

in my hip, he was the second Ortho I saw. The first one, 6 years before refused

to look at me, suggested fusing my hip and sent me home. I only saw the new one

because I got hooked on Vicodin and it wasn't helping anymore. The treatment

was a Cortizone shot directly into the Bursa sac, mine was so inflamed from

years of pain, he felt the needle go in. He'd said it might come back, but so

far so good....I think I covered everything...I've never had a fracture so I

can't answer that one.

Hope that helps and you get relief soon.

Simone

Website: http://simoneegerter.org

Blog: http://simsthoughts.blogspot.com

________________________________

From: althegrrl <alanarutht@...>

Sent: Sat, August 14, 2010 8:13:49 PM

Subject: Hip Pain

Hi Folks,

I'm having debilitating hip pain and am mostly having to stay in bed. Some

people here have been through this so I have a few questions:

- Was your pain in the nerves, muscules, tendons, and/or bone?

- Were you diagnosed? If so, how?

- What treatments have worked for you?

- How long did it take a fracture to heal?

Thank you for information you can offer.

Alana

[Guest guest]

I have severe hip pains every now and then, due to my hip bone popping out of

place. the pain only lasts for almost a week then every thing's fine. I just

take Tylenol to help with the pain.

»-(¯`v´¯)-»†åMmÌå ÄlÈxÄñÃêR»-(¯`v´¯)-»

________________________________

From: althegrrl <alanarutht@...>

Sent: Sat, August 14, 2010 7:13:49 PM

Subject: Hip Pain

Hi Folks,

I'm having debilitating hip pain and am mostly having to stay in bed. Some

people here have been through this so I have a few questions:

- Was your pain in the nerves, muscules, tendons, and/or bone?

- Were you diagnosed? If so, how?

- What treatments have worked for you?

- How long did it take a fracture to heal?

Thank you for information you can offer.

Alana

[Guest guest]

- Was your pain in the nerves, muscules, tendons, and/or bone? Bone, I think my

hip fxs due to sex but I'm not giving that up.

- Were you diagnosed? If so, how? Yes, x-ray.

- What treatments have worked for you? Pain control, liquid Children's Tylenol

or Vicodin (which I dislike)

- How long did it take a fracture to heal? A few weeks

I hope you feel much better soon! Do you know what is causing your pain?

Lori xox

________________________________

From: Tammia <caramelkiss11984@...>

Sent: Sat, August 14, 2010 7:48:54 PM

Subject: Re: Hip Pain

I have severe hip pains every now and then, due to my hip bone popping out of

place. the pain only lasts for almost a week then every thing's fine. I just

take Tylenol to help with the pain.

»-(¯`v´¯)-»†åMmÌå ÄlÈxÄñÃêR»-(¯`v´¯)-»

________________________________

From: althegrrl <alanarutht@...>

Sent: Sat, August 14, 2010 7:13:49 PM

Subject: Hip Pain

Hi Folks,

I'm having debilitating hip pain and am mostly having to stay in bed. Some

people here have been through this so I have a few questions:

- Was your pain in the nerves, muscules, tendons, and/or bone?

- Were you diagnosed? If so, how?

- What treatments have worked for you?

- How long did it take a fracture to heal?

Thank you for information you can offer.

Alana