HIP PAIN

August 20, 2010

Our thoughts are with you and Liv . It is hard to express thoughts on

how incredible you are at taking care of your daughter and so many children in

North America. I hope to hear that this soon passes and you and Liv are onto

new things. Writing on the internet is all words, but I find sometimes there

aren't words and all I can say is that you and Liv are in our thoughts, and I

know you will do the best with the information you have at hand as you navigate

this and I wish I had some suggestions myself to help. Thank you so much for

sharing and for helping. I hope we'll have an opportunity to talk again soon

and I hope to hear how it goes. Best of luck, and a world of understanding to

you and Liv.

Shauna

Vancouver Canada

mother of Kieran, Kelsey and

>

> Well, here we go again....Liv has been complaining of hip pain on both

> sides for the last few weeks. To recap, my daughter had the dual Veptr

> hybrid 1 & 2 attached at the iliac crests for approx. 4 yrs...After a

> continual assortment of complications, we opted to remove at age 12.

> Unfortunately, during the removal procedure I was informed that the metal

> hooks/attachment anchors had eroded significantly through her ilium and I

> had a pretty big decision to make.....Crack her pelvis to remove metal or

> leave in....I was told that it shouldnt cause pain or problems so I

> decided to leave in as she was already undergoing a fairly large

> procedure.....Well, she has been complaining of hip pain for a few weeks.

> I ask where and she says its where the metal is....Im sick to my

> stomach...How much more can my child take? How much more can I take? NOT

> MUCH!!!!! PIS that has not been treated early is a devistating

> condition...Theres no two ways about it. I'll let you all know what I

> find out and if you dont see me on CAST for a bit, please just call as its

> hard to keep up effectively with this awesome group anymore.

> Love,

> HRH

>

August 20, 2010

Thanks Shauna, Heidi and everyone. She will be examined by a doc here in

Denver to make sure her hip joints are still ok (i know they are) and

then we will proceed. She is used to pain, so she never complains...I

have to drag it out of her. She is now acting like its all better,

because she does NOT want to go back to SLC. Fun with my teenager! I

wish we could continue acting like its all ok, but its not. Level 5 pain

by days end is not good...Maybe the metal is hurting more because her

pelvis is growing fast due to her adol. growth spurt and it will

subside....(?) We're going day by day at this point. She's on her way to

school, so thats positive!

Thanks gals,

HRH

> Our thoughts are with you and Liv . It is hard to express thoughts

> on how incredible you are at taking care of your daughter and so many

> children in North America. I hope to hear that this soon passes and you

> and Liv are onto new things. Writing on the internet is all words, but I

> find sometimes there aren't words and all I can say is that you and Liv

> are in our thoughts, and I know you will do the best with the information

> you have at hand as you navigate this and I wish I had some suggestions

> myself to help. Thank you so much for sharing and for helping. I hope

> we'll have an opportunity to talk again soon and I hope to hear how it

> goes. Best of luck, and a world of understanding to you and Liv.

>

> Shauna

> Vancouver Canada

> mother of Kieran, Kelsey and

>

>>

>> Well, here we go again....Liv has been complaining of hip pain on both

>> sides for the last few weeks. To recap, my daughter had the dual Veptr

>> hybrid 1 & 2 attached at the iliac crests for approx. 4 yrs...After a

>> continual assortment of complications, we opted to remove at age 12.

>> Unfortunately, during the removal procedure I was informed that the

>> metal

>> hooks/attachment anchors had eroded significantly through her ilium and

>> I

>> had a pretty big decision to make.....Crack her pelvis to remove metal

>> or

>> leave in....I was told that it shouldnt cause pain or problems so I

>> decided to leave in as she was already undergoing a fairly large

>> procedure.....Well, she has been complaining of hip pain for a few

>> weeks.

>> I ask where and she says its where the metal is....Im sick to my

>> stomach...How much more can my child take? How much more can I take?

>> NOT

>> MUCH!!!!! PIS that has not been treated early is a devistating

>> condition...Theres no two ways about it. I'll let you all know what I

>> find out and if you dont see me on CAST for a bit, please just call as

>> its

>> hard to keep up effectively with this awesome group anymore.

>> Love,

>> HRH

>>

>

August 20, 2010

Oh your right, you and Liv have been through way too much. God needs to have mercy on you both now. I am praying for you both.

Lynn

From: heather@... <heather@...>Subject: hip paininfantile scoliosis treatment Received: Monday, August 16, 2010, 7:12 AM

Well, here we go again....Liv has been complaining of hip pain on bothsides for the last few weeks. To recap, my daughter had the dual Veptrhybrid 1 & 2 attached at the iliac crests for approx. 4 yrs...After acontinual assortment of complications, we opted to remove at age 12. Unfortunately, during the removal procedure I was informed that the metalhooks/attachment anchors had eroded significantly through her ilium and Ihad a pretty big decision to make.....Crack her pelvis to remove metal orleave in....I was told that it shouldnt cause pain or problems so Idecided to leave in as she was already undergoing a fairly largeprocedure.....Well, she has been complaining of hip pain for a few weeks. I ask where and she says its where the metal is....Im sick to mystomach...How much more can my child take? How much more can I take? NOTMUCH!!!!! PIS that has not been treated early is a

devistatingcondition...Theres no two ways about it. I'll let you all know what Ifind out and if you dont see me on CAST for a bit, please just call as itshard to keep up effectively with this awesome group anymore.Love,HRH

May 28, 2011

You'll wonder why you waited so long after surgery. Most of us go through a

period of healing and return to normal activity very soon. You will no longer

have this pain and be able to walk normally. The longer you wait though the more

you are risking because the bone is becoming more and more decayed by waiting.

On May 28, 2011, at 4:15 PM, Goldie wrote:

> Hello all I am new here and I was hoping I could make friends I really need to

talk to friend about my hip I have a lot of pain, the Dr says I need a hip

replacement, I have been hurting a good part of the winter, now it is starting

to hurt a good bit I can hardly walk with a cane and a walker, but I am afraid

to get it done, I really need to talk to people who are going though this and

people who already go it done, I just dont know what to do I trust in the Lord

to heal me and I know He works though Dr's also. I could use your prayers and I

thank you all for taking the time to read this post.

>

May 28, 2011

Hi Goldie,

No one could be any more scared than I was to get my TWO knees fixed. I hadn't

been near a hospital since I had my children. And most of the time I didn't go

near MDs either.

I couldn't walk across the street because I was afraid I couldn't get back. I

could only go to stores that had motorized cars.

I spent 6 months getting ready. I quit smoking. I got my house on the main

level so I could get around in it. I read the " Book " about knee surgery and I

got on here and read anything I could. I found the " right " Hospital for me.

And a Surgeon I could work with. And then I closed my eyes and went into

surgery, one knee at a time.

It has been so worth it. And believe me when I say I was so scared. I was 69

at the time and I just turned 71. I have mostly healed. It does appear I will

need a hip replacement in the near future. But I will do that without all the

fear I had with the first knee. Do what ever you need to make yourself

comfortable. And then do it. It is so worth it.

Donna R

HIP PAIN

Hello all I am new here and I was hoping I could make friends I really need to

talk to friend about my hip I have a lot of pain, the Dr says I need a hip

replacement, I have been hurting a good part of the winter, now it is starting

to hurt a good bit I can hardly walk with a cane and a walker, but I am afraid

to get it done, I really need to talk to people who are going though this and

people who already go it done, I just dont know what to do I trust in the Lord

to heal me and I know He works though Dr's also. I could use your prayers and I

thank you all for taking the time to read this post.

May 28, 2011

Goldie, you will see messages posted here about people who have problems

with their

replacements. Don't let this scare you off. Just realize that there are

hundreds even thousands

of people who have replacements and never have a bit of trouble. This group

is a source

of help and companionship. I have been lucky and had quite a classic

textbook replacement.

I did not push my rehab. We each handle things differently. BARB in

Florida

HIP PAIN

I want to thank you all for replying to my post, I have been reading the

posts over and over, thank you so much for replying it helps me when I can

read about others that have had a replacement

------------------------------------

May 28, 2011

Thank you Barb

________________________________

From: BARB <barbmch@...>

Joint Replacement

Sent: Sat, May 28, 2011 8:12:47 PM

Subject: Re: HIP PAIN

Goldie, you will see messages posted here about people who have problems

with their

replacements. Don't let this scare you off. Just realize that there are

hundreds even thousands

of people who have replacements and never have a bit of trouble. This group

is a source

of help and companionship. I have been lucky and had quite a classic

textbook replacement.

I did not push my rehab. We each handle things differently. BARB in

Florida

HIP PAIN

I want to thank you all for replying to my post, I have been reading the

posts over and over, thank you so much for replying it helps me when I can

read about others that have had a replacement

------------------------------------

May 28, 2011

Sent from my iPhone

On 28 May 2011, at 23:21, Weal <goddessrenee@...> wrote:

> You'll wonder why you waited so long after surgery. Most of us go through a

period of healing and return to normal activity very soon. You will no longer

have this pain and be able to walk normally. The longer you wait though the more

you are risking because the bone is becoming more and more decayed by waiting.

>

> On May 28, 2011, at 4:15 PM, Goldie wrote:

>

>> Hello all I am new here and I was hoping I could make friends I really need

to talk to friend about my hip I have a lot of pain, the Dr says I need a hip

replacement, I have been hurting a good part of the winter, now it is starting

to hurt a good bit I can hardly walk with a cane and a walker, but I am afraid

to get it done, I really need to talk to people who are going though this and

people who already go it done, I just dont know what to do I trust in the Lord

to heal me and I know He works though Dr's also. I could use your prayers and I

thank you all for taking the time to read this post.

>>

>

May 31, 2011

Hello everyone, I am so thankful to all my friends who replied to my post about

my hip pain, I took all the advice you all gave me and I finally called the Dr

and got an appointment for this coming Thur, I cant believe all the advice I got

from so many and it all helped ease my mind about hip surgery, I am trying to

look on line about the different types of hip surgery but I guess I will have to

wait till I see the Dr. and see what he says, I just want to check some things

out before I talk to him about the different options if there are any. Again I

am so thankful for all of you , you dont know how much I appreciate it. Have a

Blessed Day.

May 31, 2011

Good for you! You may want to visit (and I recommend this) more than one

surgeon. I interviewed three before I decided on the direct anterior approach.

This is an important decision and you really want to be prepared and trust who

you have chosen. Making that first step is huge Congratulations!

You're only given a little spark of madness. You mustn't lose it.

Joint Replacement

From: starwatch1900@...

Date: Tue, 31 May 2011 18:33:52 +0000

Subject: HIP PAIN