Re: Re: New intro and help needed in cross-country move!

[Guest guest]

Hi Patty - can't dampen my spirits about Ohio. In fact, I am from Ohio originally and moved away - so, on a selfish note, I have been having a hard time getting my mind set on going back and leaving my beautiful California. However, I think in the area we are moving, the school programs seem really great - especially compared to what I am receiving which is pretty much zilch. I also think that if I can be a SAHM it will help immensely as I will have more time. Living in California I HAVE to work and that just adds more stress and takes more time (although working is the 'easy' part of my day now - I actually consider it my rest time if you know what I mean - haha!). I am lucky that is high-functioning and probably doesn't need as much intense therapy as some - but he does need help. Because he is hyperlexic teachers/therapist/aides seem to think he is social. When I get the good ones that listen, they understand he is acting out what he read. I have a great speech therapist who has really been working with the social issues with and using his hyperlexia to help (I LOVE HER!!!) but only has her 20 minutes group and 20 minutes indv a week! And they are cutting back more for next year and letting so many go because the schools are in bad shape financially - she's going to be the only one left. Gee! Thank you for your honesty and frankness and for your input on Hudson (I wasn't sure about special services there). I personally think all 50 states need to relook at their services for ASD because they are ALL lacking and autism is epidemic. I have been involved in CAN and did their WalkNow. I did an Autism Awareness display for April (national autism awareness month) and put up information daily. People couldn't believe it and I told them this is NOTHING - the tip of the iceburg. I also learned a lot more doing research for the month (I'm on our Diversity Council) and really found out that autism is increasing in some states over 1000% in five years. Scary! I didn't know anything about autism (I was informed as much as Rainman) but boy have I learned and learned and learned. Doing the display at work really brought up questions from people and people sharing "their stories." I learn something new every day and these newsgroups are a godsend. People with real experience are where I learn the most.

I must go but thanks again for your input!

Becky mom to (4.7 autism/hyperlexia & Harlee almost 3 NT)

----- Original Message -----

From: pcrawfo1

Sent: 6/4/2004 8:35:54 AM

Subject: [ ] Re: New intro and help needed in cross-country move!

Becky,Welcome to Ohio....however, to be the devils advocate, I am not sure where you received your info prior to moving. Hudson does have a decent program for children autism....my understanding is they have ABA consultants contracted with the school. However I am not quite sure what other great services Ohio has to offer unless you plan on financing it on your own. We have been battling with our MRDD and the best services they can offer us is $300. 1/2 year for family resource money and 20 minutes of speech a week with a speech therapist who knows a lot less about learning disabilities than I do. I have not met too many families (who were not receiving waiver services) who were happy with the services being provided to their children via the state. However a few school districts have been helpful..Hudson being one of them. There are families who are receiving waivers via the county/state who are able to fund very nice programs for their children...they are the few lucky ones. I am not sure if whomever explained to you that there is an extremely long wait to receive waiver services, many parents have already been waiting several years and of course with the explosion of children being diagnosed one could expect to be waiting even longer than just several years (so essentially especially at the age of three and up you are at your schools mercy in Ohio). Not trying to dampen your move...but also want you to move to the state with your eyes open. If you can afford to finance your own program DTT seems to be the popular form of ABA in NE Ohio and many of the consultants in the area charge outrageous prices....the reputable ones running approximately $150./hr for a BCABA (in some states your PHD's charge that much or less)...not sure where in CA you are from but if you will be attempting to find a consultant versed in VB/Sundberg/Partington good luck...it is not popular here..many families are not even aware of the true logistics of a VB approach. I truly wish you luck in your move and your acquisition of services...but also wanted to point out some of the many downsides to Ohio. So as you can see, many of the parents who are happy with the services are a select few...there are many who find Ohios system to be completely inadequate.Patty~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ - Parent to Parent for Autism Website: http://hometown.aol.com/parentschat/homepage.html~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~

[Guest guest]

I got it - thank you!

Becky

----- Original Message -----

From: norah_joseph

Sent: 6/4/2004 12:05:26 PM

Subject: [ ] Re: New intro and help needed in cross-country move!

Hi Becky (and everyone else)In addition to all the wonderful information and suggestions you've heard from the others, I wanted to let you know about one other resource you might find helpful. There is an Autism Task Force in Ohio that has recently published a comprehensive book on autism (the disorder itself and best practice treatments). It also has a nice glossary and resource listing toward the back. The book is available online at http://psychmed.osu.edu/AutismBook_1.pdf. You can also request a hard copy (free to parents) by sending an e-mail to badgerl@.... I've heard there is a six-to-eight week delay in getting a hard copy so you might want to have it sent to a relative here in Ohio. Hope this helps!Norah> Hi Patty - can't dampen my spirits about Ohio. In fact, I am from Ohio originally and moved away - so, on a selfish note, I have been having a hard time getting my mind set on going back and leaving my beautiful California. However, I think in the area we are moving, the school programs seem really great - especially compared to what I am receiving which is pretty much zilch. I also think that if I can be a SAHM it will help immensely as I will have more time. Living in California I HAVE to work and that just adds more stress and takes more time (although working is the 'easy' part of my day now - I actually consider it my rest time if you know what I mean - haha!). I am lucky that is high-functioning and probably doesn't need as much intense therapy as some - but he does need help. Because he is hyperlexic teachers/therapist/aides seem to think he is social. When I get the good ones that listen, they understand he is acting out what he read. I have a great speech therapist who has really been working with the social issues with and using his hyperlexia to help (I LOVE HER!!!) but only has her 20 minutes group and 20 minutes indv a week! And they are cutting back more for next year and letting so many go because the schools are in bad shape financially - she's going to be the only one left. Gee! Thank you for your honesty and frankness and for your input on Hudson (I wasn't sure about special services there). I personally think all 50 states need to relook at their services for ASD because they are ALL lacking and autism is epidemic. I have been involved in CAN and did their WalkNow. I did an Autism Awareness display for April (national autism awareness month) and put up information daily. People couldn't believe it and I told them this is NOTHING - the tip of the iceburg. I also learned a lot more doing research for the month (I'm on our Diversity Council) and really found out that autism is increasing in some states over 1000% in five years. Scary! I didn't know anything about autism (I was informed as much as Rainman) but boy have I learned and learned and learned. Doing the display at work really brought up questions from people and people sharing "their stories." I learn something new every day and these newsgroups are a godsend. People with real experience are where I learn the most.> I must go but thanks again for your input! > Becky mom to (4.7 autism/hyperlexia & Harlee almost 3 NT)> > ----- Original Message ----- > From: pcrawfo1 > > Sent: 6/4/2004 8:35:54 AM > Subject: [ ] Re: New intro and help needed in cross-country move!> > > Becky,> Welcome to Ohio....however, to be the devils advocate, I am not sure > where you received your info prior to moving. Hudson does have a > decent program for children autism....my understanding is they have > ABA consultants contracted with the school. However I am not quite > sure what other great services Ohio has to offer unless you plan on > financing it on your own. We have been battling with our MRDD and > the best services they can offer us is $300. 1/2 year for family > resource money and 20 minutes of speech a week with a speech > therapist who knows a lot less about learning disabilities than I > do. I have not met too many families (who were not receiving waiver > services) who were happy with the services being provided to their > children via the state. However a few school districts have been > helpful..Hudson being one of them. There are families who are > receiving waivers via the county/state who are able to fund very > nice programs for their children...they are the few lucky ones. I > am not sure if whomever explained to you that there is an extremely > long wait to receive waiver services, many parents have already been > waiting several years and of course with the explosion of children > being diagnosed one could expect to be waiting even longer than just > several years (so essentially especially at the age of three and up > you are at your schools mercy in Ohio). Not trying to dampen your > move...but also want you to move to the state with your eyes open. > If you can afford to finance your own program DTT seems to be the > popular form of ABA in NE Ohio and many of the consultants in the > area charge outrageous prices....the reputable ones running > approximately $150./hr for a BCABA (in some states your PHD's charge > that much or less)...not sure where in CA you are from but if you > will be attempting to find a consultant versed in > VB/Sundberg/Partington good luck...it is not popular here..many > families are not even aware of the true logistics of a VB approach. > I truly wish you luck in your move and your acquisition of > services...but also wanted to point out some of the many downsides > to Ohio. So as you can see, many of the parents who are happy with > the services are a select few...there are many who find Ohios system > to be completely inadequate.> Patty> > > > ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~> - Parent to Parent for Autism Website: http://hometown.aol.com/parentschat/homepage.html> ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~> > > >

[Guest guest]

Hi Becky! I know what you mean when you say that some professionals think that the hyperlexic child is functioning at a higher level than what he really is, esp at our sons' young age. They see a child that is reading at a very young age and think, what a genius!! which is some cases may be true. But what they don't immediately see is the pragmatic language and social deficits that kids with hyperlexia almost invariably have. My son is having great difficulty making friends and playing with peers due to his hyperlexia. I have found a good group of SLPs and OTs that are able to use his hyperlexia to help my son as well. Once you are settled in after your move, I'll be happy to give you their names. Welcome to the list and welcome back to Ohio!

----- Original Message -----

From: Wulfeck

Sent: Friday, June 04, 2004 1:23 PM

Subject: RE: [ ] Re: New intro and help needed in cross-country move!

Hi Patty - can't dampen my spirits about Ohio. In fact, I am from Ohio originally and moved away - so, on a selfish note, I have been having a hard time getting my mind set on going back and leaving my beautiful California. However, I think in the area we are moving, the school programs seem really great - especially compared to what I am receiving which is pretty much zilch. I also think that if I can be a SAHM it will help immensely as I will have more time. Living in California I HAVE to work and that just adds more stress and takes more time (although working is the 'easy' part of my day now - I actually consider it my rest time if you know what I mean - haha!). I am lucky that is high-functioning and probably doesn't need as much intense therapy as some - but he does need help. Because he is hyperlexic teachers/therapist/aides seem to think he is social. When I get the good ones that listen, they understand he is acting out what he read. I have a great speech therapist who has really been working with the social issues with and using his hyperlexia to help (I LOVE HER!!!) but only has her 20 minutes group and 20 minutes indv a week! And they are cutting back more for next year and letting so many go because the schools are in bad shape financially - she's going to be the only one left. Gee! Thank you for your honesty and frankness and for your input on Hudson (I wasn't sure about special services there). I personally think all 50 states need to relook at their services for ASD because they are ALL lacking and autism is epidemic. I have been involved in CAN and did their WalkNow. I did an Autism Awareness display for April (national autism awareness month) and put up information daily. People couldn't believe it and I told them this is NOTHING - the tip of the iceburg. I also learned a lot more doing research for the month (I'm on our Diversity Council) and really found out that autism is increasing in some states over 1000% in five years. Scary! I didn't know anything about autism (I was informed as much as Rainman) but boy have I learned and learned and learned. Doing the display at work really brought up questions from people and people sharing "their stories." I learn something new every day and these newsgroups are a godsend. People with real experience are where I learn the most.

I must go but thanks again for your input!

Becky mom to (4.7 autism/hyperlexia & Harlee almost 3 NT)

----- Original Message -----

From: pcrawfo1

Sent: 6/4/2004 8:35:54 AM

Subject: [ ] Re: New intro and help needed in cross-country move!

Becky,Welcome to Ohio....however, to be the devils advocate, I am not sure where you received your info prior to moving. Hudson does have a decent program for children autism....my understanding is they have ABA consultants contracted with the school. However I am not quite sure what other great services Ohio has to offer unless you plan on financing it on your own. We have been battling with our MRDD and the best services they can offer us is $300. 1/2 year for family resource money and 20 minutes of speech a week with a speech therapist who knows a lot less about learning disabilities than I do. I have not met too many families (who were not receiving waiver services) who were happy with the services being provided to their children via the state. However a few school districts have been helpful..Hudson being one of them. There are families who are receiving waivers via the county/state who are able to fund very nice programs for their children...they are the few lucky ones. I am not sure if whomever explained to you that there is an extremely long wait to receive waiver services, many parents have already been waiting several years and of course with the explosion of children being diagnosed one could expect to be waiting even longer than just several years (so essentially especially at the age of three and up you are at your schools mercy in Ohio). Not trying to dampen your move...but also want you to move to the state with your eyes open. If you can afford to finance your own program DTT seems to be the popular form of ABA in NE Ohio and many of the consultants in the area charge outrageous prices....the reputable ones running approximately $150./hr for a BCABA (in some states your PHD's charge that much or less)...not sure where in CA you are from but if you will be attempting to find a consultant versed in VB/Sundberg/Partington good luck...it is not popular here..many families are not even aware of the true logistics of a VB approach. I truly wish you luck in your move and your acquisition of services...but also wanted to point out some of the many downsides to Ohio. So as you can see, many of the parents who are happy with the services are a select few...there are many who find Ohios system to be completely inadequate.Patty~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ - Parent to Parent for Autism Website: http://hometown.aol.com/parentschat/homepage.html~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ - Parent to Parent for Autism Website: http://hometown.aol.com/parentschat/homepage.html~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~

[Guest guest]

Thanks - I'll be in touch!

Becky

----- Original Message -----

From: The Marotta Family

Sent: 6/4/2004 7:31:36 PM

Subject: Re: [ ] Re: New intro and help needed in cross-country move!

Hi Becky! I know what you mean when you say that some professionals think that the hyperlexic child is functioning at a higher level than what he really is, esp at our sons' young age. They see a child that is reading at a very young age and think, what a genius!! which is some cases may be true. But what they don't immediately see is the pragmatic language and social deficits that kids with hyperlexia almost invariably have. My son is having great difficulty making friends and playing with peers due to his hyperlexia. I have found a good group of SLPs and OTs that are able to use his hyperlexia to help my son as well. Once you are settled in after your move, I'll be happy to give you their names. Welcome to the list and welcome back to Ohio!

----- Original Message -----

From: Wulfeck

Sent: Friday, June 04, 2004 1:23 PM

Subject: RE: [ ] Re: New intro and help needed in cross-country move!

Hi Patty - can't dampen my spirits about Ohio. In fact, I am from Ohio originally and moved away - so, on a selfish note, I have been having a hard time getting my mind set on going back and leaving my beautiful California. However, I think in the area we are moving, the school programs seem really great - especially compared to what I am receiving which is pretty much zilch. I also think that if I can be a SAHM it will help immensely as I will have more time. Living in California I HAVE to work and that just adds more stress and takes more time (although working is the 'easy' part of my day now - I actually consider it my rest time if you know what I mean - haha!). I am lucky that is high-functioning and probably doesn't need as much intense therapy as some - but he does need help. Because he is hyperlexic teachers/therapist/aides seem to think he is social. When I get the good ones that listen, they understand he is acting out what he read. I have a great speech therapist who has really been working with the social issues with and using his hyperlexia to help (I LOVE HER!!!) but only has her 20 minutes group and 20 minutes indv a week! And they are cutting back more for next year and letting so many go because the schools are in bad shape financially - she's going to be the only one left. Gee! Thank you for your honesty and frankness and for your input on Hudson (I wasn't sure about special services there). I personally think all 50 states need to relook at their services for ASD because they are ALL lacking and autism is epidemic. I have been involved in CAN and did their WalkNow. I did an Autism Awareness display for April (national autism awareness month) and put up information daily. People couldn't believe it and I told them this is NOTHING - the tip of the iceburg. I also learned a lot more doing research for the month (I'm on our Diversity Council) and really found out that autism is increasing in some states over 1000% in five years. Scary! I didn't know anything about autism (I was informed as much as Rainman) but boy have I learned and learned and learned. Doing the display at work really brought up questions from people and people sharing "their stories." I learn something new every day and these newsgroups are a godsend. People with real experience are where I learn the most.

I must go but thanks again for your input!

Becky mom to (4.7 autism/hyperlexia & Harlee almost 3 NT)

----- Original Message -----

From: pcrawfo1

Sent: 6/4/2004 8:35:54 AM

Subject: [ ] Re: New intro and help needed in cross-country move!

Becky,Welcome to Ohio....however, to be the devils advocate, I am not sure where you received your info prior to moving. Hudson does have a decent program for children autism....my understanding is they have ABA consultants contracted with the school. However I am not quite sure what other great services Ohio has to offer unless you plan on financing it on your own. We have been battling with our MRDD and the best services they can offer us is $300. 1/2 year for family resource money and 20 minutes of speech a week with a speech therapist who knows a lot less about learning disabilities than I do. I have not met too many families (who were not receiving waiver services) who were happy with the services being provided to their children via the state. However a few school districts have been helpful..Hudson being one of them. There are families who are receiving waivers via the county/state who are able to fund very nice programs for their children...they are the few lucky ones. I am not sure if whomever explained to you that there is an extremely long wait to receive waiver services, many parents have already been waiting several years and of course with the explosion of children being diagnosed one could expect to be waiting even longer than just several years (so essentially especially at the age of three and up you are at your schools mercy in Ohio). Not trying to dampen your move...but also want you to move to the state with your eyes open. If you can afford to finance your own program DTT seems to be the popular form of ABA in NE Ohio and many of the consultants in the area charge outrageous prices....the reputable ones running approximately $150./hr for a BCABA (in some states your PHD's charge that much or less)...not sure where in CA you are from but if you will be attempting to find a consultant versed in VB/Sundberg/Partington good luck...it is not popular here..many families are not even aware of the true logistics of a VB approach. I truly wish you luck in your move and your acquisition of services...but also wanted to point out some of the many downsides to Ohio. So as you can see, many of the parents who are happy with the services are a select few...there are many who find Ohios system to be completely inadequate.Patty~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ - Parent to Parent for Autism Website: http://hometown.aol.com/parentschat/homepage.html~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ - Parent to Parent for Autism Website: http://hometown.aol.com/parentschat/homepage.html~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ - Parent to Parent for Autism Website: http://hometown.aol.com/parentschat/homepage.html~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~