Guest guest Posted December 18, 2003 Report Share Posted December 18, 2003 we have been (my son that is) gf/cf for about two yrs now. although my son's autistic characteristics were not the result of a severe allergic food reaction in which the diet would be immensley helpful, however, some positive changes have been the result of the diet. his labs are getting better and better. i'm a little shy about adding white bread (no lactose or casein in it and processed to the inth degree). every child is different. i do know that you have to give the diet ample of time to show benefits (at least in my case). i remember reading somewhere that the kidneys can store gluten in them for quite a while. vicki in los angeles Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2003 Report Share Posted December 18, 2003 Hi Jess, My son was gfcf before starting the protocol, but since starting, he has been only on the " do's and don't's " diet, i.e, gluten foods are allowed, but eliminating whole grains and other allergens, and he's doing wonderfully...in fact, he's doing even better because of the removal of the allergens and limiting sugar. I was terrified to reintroduce it, but when I found that he was improving in spite of having gluten in his diet, it was a huge relief. I still try to limit the starches he gets in general (because of yeast issues). My personal opinion is, if you don't HAVE to do something so hard on the family and that even further isolates your child from peers, why do it? As my grandfather used to say, " Why buy a problem when they're giving them away? " ;-) If her stools have become darker (as opposed to pale yellow), I would think that's a good thing, especially if they're formed. My son developed a sensitivity to soy over time. He started having huge, loose, foul-smelling stools about an hour after eating/drinking it, and he'd become stimmy and hyper -- I mean out of CONTROL. Rice Dream or Vance's Darifree (from potatoes) are nutritious alternatives to soy milk. I have heard (but have no idea if it's true) that too much soy in the diet, because of the natural estrogen it contains, can stimulate early puberty in girls. If it's true, that's a good reason to be very careful with it. HTH, Donna Diet question Hi! Since we are starting the protocol in January I recently tried GF/CF diet with my daughter. She has been GF for approximately 2 mos with no apparent difference. I know that Dr. G feels that Gluten is not a major problem with most kids and since the past few days I've let her have some gluten foods (pasta last night) with no visible change, do you think that means she can go back to eating them (just not whole grains)? What have you all done? She has been casien free for about 2 weeks now. Only apparent change is that her stools (usually pale yellow) have become darker. I am giving her alternatives containing soy. I believe I read in some posts that soy is only a problem if a sensitivity becomes evident, Is this true? Or is soy a problem for other reasons? And what I really would like to know is...is there anyone who saw no change with diet, but yet saw definite results on the protocol? Jess Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2003 Report Share Posted December 18, 2003 > I have heard (but have no idea if it's true) that too much soy in the diet, > because of the natural estrogen it contains, can stimulate early puberty in > girls. If it's true, that's a good reason to be very careful with it. > We experienced several negatives with soy. Especially our 3 yr old daughter. She started to develop breasts. If you look at her compared to other girls her age, she is more developed than they are. She was also a lot more aggressive when on soy. a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2003 Report Share Posted December 19, 2003 While many use soy as an alternative to wheat and milk products, the irony is that many people also have an immune reaction to soy. I've recently examined lab results from 25 autistic children age 3 - 11, and found that 69% were reactive to milk, 75% reactive to wheat and 31% reactive to soy. R Re: Diet question My son has a great deal of aggression & anxiety after eating soy. --- a Gipson <plgipson@...> wrote: > > > I have heard (but have no idea if it's true) that > too much soy in the diet, > > because of the natural estrogen it contains, can > stimulate early puberty in > > girls. If it's true, that's a good reason to be > very careful with it. > > > We experienced several negatives with soy. > Especially our 3 yr old > daughter. She started to develop breasts. If you > look at her compared to > other girls her age, she is more developed than they > are. She was also a > lot more aggressive when on soy. > > a ______________________________________________ Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. To visit your group on the web, go to: / ``````````````````````````````````` Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2004 Report Share Posted June 4, 2004 Hi ! I don't know if you are near 77 in Akron, but Dr. Waickman on White Pond Dr. helped our family with an elimination diet. Here's what we did: For 2 weeks we eliminated the most common problem foods: milk, gluten (both of which my son was not eating), soy, corn, citrus, eggs, sugar, preservatives, food colorings, etc. We had a list of foods he could eat and a list of foods he couldn't eat. We observed our son to see if there was an improvement in his behavior/communication. Then we added one food at a time and observed our son to see if he had an adverse reaction. It was at this time that we discovered he had an intolerance/allergy to corn. I feel that it was very important for us to eliminate all the possible probem foods because then if there were multiple allergies, then we wouldn't have to worry about one allergan masking an improvement when we removed another allergan. >From: <laurabphillips@...> >Reply- > >Subject: [ ] diet question >Date: Thu, 3 Jun 2004 19:12:01 -0700 (PDT) > >Hi everyone, > >Sam has been on the GFCF diet since February and we have seen some nice >improvement since we started it. I was reading somewhere, maybe here, that >a mom saw major improvement in her son when they removed soy and soy >lecithin from his diet. > >I was wondering, if I want to try removing other foods from Sam's diet, >such as soy or corn, how long do I need to do it in order to give it a fair >trial? Any advice would be greatly appreciated! Thanks! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2005 Report Share Posted April 28, 2005 Doris We just repeated these tests for our son. Dr G told me to do them after a period of time he had been well....not ill for prior 3-4 weeks. When I talk with DR G today I am going to be sure to tell him we probably should not have run them, because my son was showing allergy symtoms last week, but now the rest of the house has a head cold. So I am guessing it was more that than allergies, which would throw off the tests. Thought I would mention this in case it was illness instead of allergies for you as well. --- In , steve and doris smith <sjsmith3@c...> wrote: > At our last telephone consult, Dr G was concerned about a few CD4/8/16/56 > values that were 'elevated'. Mentioned something about 'a food allergy' > He requested we send him 's 'menu' for a week. > We did and were told the following: > - remove tapioca flour > - no organics > > ok - I've been doing this diet for 7 yrs. First I've heard that organics > and tapioca > flour are no-nos. > We did tell Dr G that pollen is as thick as pea soup in this area > (land - we get the northern AND southern pollen.Everything has > this lovely yellow haze) > I even faxed the office a copy of the 'pollen and neurobehavior issue' > article. > > any comments on the flour and organics? why are these verboten? > > Thanks! > Doris > land Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2005 Report Share Posted April 28, 2005 Our kids have a tendency to develop allergies to whatever they are exposed to. For example, I never gave my son cow's milk. I gave him rice milk. (Didn't know he was PDD; he was just too gassy to handle it.) So, low and behold, my son develops an allergy (pretty strong one too) to brown rice! If your son has had tapioca for a while, he could have developed an allergy to it as other kids do to wheat. But why organics? Was Dr. G referring to organic products or organic produce? I don't see what harm there could be in organic produce; it's simply pesticide-free. Organic products however tend to be " healthy " in other respects too, containing whole grains and possibly other forbidden things, which would make them off-limits. I struggle with this too! It's hard to feel like you're giving your child a healthy diet on highly processed foods and white bread. April Diet question > > At our last telephone consult, Dr G was concerned about a few CD4/8/16/56 > values that were 'elevated'. Mentioned something about 'a food allergy' > He requested we send him 's 'menu' for a week. > We did and were told the following: > - remove tapioca flour > - no organics > > ok - I've been doing this diet for 7 yrs. First I've heard that organics > and tapioca > flour are no-nos. > We did tell Dr G that pollen is as thick as pea soup in this area > (land - we get the northern AND southern pollen.Everything has > this lovely yellow haze) > I even faxed the office a copy of the 'pollen and neurobehavior issue' > article. > > any comments on the flour and organics? why are these verboten? > > Thanks! > Doris > land > > > > > > > Responsibility for the content of this message lies strictly with > the original author(s), and is not necessarily endorsed by or the > opinion of the Research Institute. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2005 Report Share Posted April 28, 2005 Doris, forgot to ask where you found that pollen article....? Becky Diet question > > At our last telephone consult, Dr G was concerned about a few CD4/8/16/56 > values that were 'elevated'. Mentioned something about 'a food allergy' > He requested we send him 's 'menu' for a week. > We did and were told the following: > - remove tapioca flour > - no organics > > ok - I've been doing this diet for 7 yrs. First I've heard that organics > and tapioca > flour are no-nos. > We did tell Dr G that pollen is as thick as pea soup in this area > (land - we get the northern AND southern pollen.Everything has > this lovely yellow haze) > I even faxed the office a copy of the 'pollen and neurobehavior issue' > article. > > any comments on the flour and organics? why are these verboten? > > Thanks! > Doris > land > > > > > > > Responsibility for the content of this message lies strictly with > the original author(s), and is not necessarily endorsed by or the > opinion of the Research Institute. > > Quote Link to comment Share on other sites More sharing options...
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