Guest guest Posted July 17, 2010 Report Share Posted July 17, 2010 When I was first diagnosed in 2006, I talked with a nutritionist who put me on a regimen of vitamins and minerals. One of the vitamins was D, 8000 IU per day. Most doctors don't understand the impact of vitamins. Since I couldn't maintain the diet, I have since placed myself on 5000 IU per day. Just had my levels checked and I was at 70 (normal is somewhere between 50 and 100). Not sure where my levels would be if I weren't taking this many units. On Sat, Jul 17, 2010 at 6:59 PM, Alice Sperling <alices@...> wrote: Just ask your doc/onc to check your Vitamin D levels the next time you have blood drawn -- my husband was taking 2000 IU's a day (recommended dosage is 400) and his blood level was still low. It was recommended he up it to 3000 IUs a day, which he did. It may have helped during FCR, which he completed a little over a year ago with with good results, and no infections. AliceOn Jul 17, 2010, at 3:44 PM, rrfman wrote: This is very important. Additionally, so is checking vitamin D levels. Most people underestimate the importance of vitamin D. There are many physicians who believe our current " normal range " is inadequate and the recommended daily allowances need to be increased. Rick Furman, MD--> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2010 Report Share Posted July 21, 2010 Hi everyone, Does someone know what levels of vit-D3 are safe to take on a daily basis? Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2010 Report Share Posted July 21, 2010 2000 IU are fine. One drop of oily solution is 500 UI (here where I live) so 5-6 drops/day or the equivalent of 2000 IU/day.From: Ansara, (Norbord) <anthony.ansara@...>Subject: Re:vitamin Dsamters Date: Wednesday, July 21, 2010, 4:25 PM Hi everyone, Does someone know what levels of vit-D3 are safe to take on a daily basis? Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2010 Report Share Posted July 21, 2010 , The following is an excellent link that asfy sent us a week or so ago. http://www.vitamindcouncil.org/--- On Wed, 7/21/10, Ansara, (Norbord) <anthony.ansara@...> wrote: From: Ansara, (Norbord) <anthony.ansara@...>Subject: Re:vitamin Dsamters Date: Wednesday, July 21, 2010, 7:25 AM Hi everyone, Does someone know what levels of vit-D3 are safe to take on a daily basis? Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2010 Report Share Posted July 22, 2010 Thank you everyone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2011 Report Share Posted March 26, 2011 My doctor has me on over 8000 units of Vitamin D as a daily average PLUS whatever I get from being out in the sun in Florida. I take 1200 units a day plus one 50,000 unit pill once a week. I also take 1000 mcg of B-12 every other day. We also travel quite a bit around the country in our motor home. I have not had so much as a cold in three years. No sinus infections, and no asthma attacks(these seem only to be caused by aspirin anyway), and I have not been desensitized from aspirin. As I have said before, just because this seems to work with me, I would not recommend doing this without a doctor monitoring you closely. We are all different. > > > Vitam Horm. <http://www.ncbi.nlm.nih.gov/pubmed/21419273> > 2011;86:217-37. > Vitamin d effects on lung immunity and respiratory diseases. > Hansdottir S > <http://www.ncbi.nlm.nih.gov/pubmed?term=%22Hansdottir%20S%22%5BAuthor%5\ > D> , Monick MM > <http://www.ncbi.nlm.nih.gov/pubmed?term=%22Monick%20MM%22%5BAuthor%5D> > . > Abstract > Our understanding of vitamin D metabolism and biological effects has > grown exponentially in recent years and it has become clear that vitamin > D has extensive immunomodulatory effects. The active vitamin D > generating enzyme, 1α-hydroxylase, is expressed by the airway > epithelium, alveolar macrophages, dendritic cells, and lymphocytes > indicating that active vitamin D can be produced locally within the > lungs. Vitamin D generated in tissues is responsible for many of the > immunomodulatory actions of vitamin D. The effects of vitamin D within > the lungs include increased secretion of the antimicrobial peptide > cathelicidin, decreased chemokine production, inhibition of dendritic > cell activation, and alteration of T-cell activation. These cellular > effects are important for host responses against infection and the > development of allergic lung diseases like asthma. Epidemiological > studies do suggest that vitamin D deficiency predisposes to viral > respiratory tract infections and mycobacterial infections and that > vitamin D may play a role in the development and treatment of asthma. > Randomized, placebo-controlled trials are lacking but ongoing. > Copyright © 2011 Elsevier Inc. All rights reserved. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2011 Report Share Posted May 16, 2011 I take between 50,000 IU and 70,000IU a week. My 25 hydroxyvitamin D Level hasn't gone over 100 and I now only get mild colds and flu. Most of the time I would get lung infections and or the flu since I have COPD, but not since I started taking D supplements. Should I live long enough for the CLL to progress, I will probably just die of pneumonia as my immune system wanes. However, assuming the Pathologist was correct with his dx, my CLL is still in the bone marrow. Maybe with the Vitamin D, it will stay there. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 - I assume, since you know where your level is that it is being monitored. I took 50,000 and then 100,000 units of Vitamin D to get my level up and we are now trying 5,000 units to see if it is enough to maintain a healthy level. For anyone deciding to take or up your vitamin D it is important to get an initial test and then to be monitored! I have found that it helps with bone pain, but too much of a good thing can be dangerous. Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 Yes, my D level is tested on a regular basis. Each person is individual so some may need less and others more. I tried 5k a day for maintainence and just didn't feel right. I recently heard that they are claiming a level of 30 is sufficient, but my younger sister's level [age 53] was 32 and she had osteomalacia. Where someone younger may get by with such a low level, it will take its toll and we will start feeling the lack as we get older. I am guessing that once the medical powers that be figure that out, they will raise recommended levels to avoid all the health problems that come with long term deficencies. And from everything I have read, if you have chronic illnesses, you need even higher levels and as there are Vitamin D receptors just about everywhere in our bodies, it is not just for bones. It is really a hormone, and may be the Master Hormone, and seems to be needed for just about every chemical reaction that happens in our bodies. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 , I have read 50 - 80 for CLL patients, but the various things I've read are all over the place as far as appropriate counts and dosing right now. My hematologist when she reported on the results of the ASH Meeting said that she would not try to report on Vitamin D because the jury is still out. There is also the question of Vitamin D and CLL vs Vitamin D and bone health. I hope doctors can get together and come to some agreement on all of this. I take it primarily for bone health for now and my primary agrees that over 50 is a reasonable number for me given my latest bone scan. Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 Hi Guys - Interesting info on Vitamin D-3 and CLL (2010 Mayo Clinic Study): http://www.physorg.com/news/2010-11-insufficient-vitamin-d-cll-patients.html or http://tinyurl.com/4ytplsq Cll topics also has an informative 12/12/09 article about vitamin D-3 and CLL. It contains an extensive outline about D-3 & CLL along with dosing guidelines and periodic blood tests you need if you are taking daily supplemental doses of D-3. Here's the link for this - http://updates.clltopics.org/1704-vitamin-d3-make-sure-you-are-not-deficient Patti Kruse Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2011 Report Share Posted July 25, 2011 In the extensive bloodwork the hospital did prior to my 9/16/10 knee replacement, they found that I was very low in Vitamin D. My doctor has put me on a supplement. My dad has severe osteo in his back. It was also discovered that he was very low in Vitamin D. I am wondering if this is why so many folks are experiencing bone deterioration issues these days. Our food just isn't as vitamin rich as it used to be. Thoughts? in TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2011 Report Share Posted July 25, 2011 I just ordered it. Thanks! in TX ________________________________ From: Donna Machniak <Rich_DonnaM@...> Joint Replacement Surgery <Joint Replacement Surgery > Sent: Monday, July 25, 2011 8:36 AM Subject: RE: Vitamin D  http://www.thevitamindcure.com/ you can check it out here... Donna > > Do you know the name of the book? > > in TX > before I went for the TKRs, I went to an arthritic Dr.. the first thing he tested for was Vitamin D.. mine was extremely low, so much so that I was put on mega doses of perscription Vitamin D which did bring it up to a normal level. he said that it is very important for bones. He also said that most people in Michigan have LOW vitamin D since we are known for not a lot of sunshine here :-( .. Dr Dowd has written a book on the importance of vitamin D. . I am sure to much bone damage was done before I ever started going to him.. I continue to take vitamin D for the rest of my good bones.. LOL > Donna M > Michigan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2011 Report Share Posted July 25, 2011 My OS wanted mine monitored by my primary care doctor, but he wouldn't do it! He said they only monitor Vitamin D after an osteoporosis diagnosis. Insane! At least my OS said he would do it then. in TX ________________________________ From: Willey <hillhoney@...> Joint Replacement Sent: Monday, July 25, 2011 9:41 AM Subject: Re: Vitamin D  I was placed on the prescription Calcitriol years ago because of low Vitamin D by a rheumatologist. I am allergic to the sun (get awful rashes) and have been lactose intolerant since I was an infant, so I had been taking Vitamin D and calcium supplements for a long time, but apparently it wasn't enough.  I had to go back for testing and to have my dosage tweaked a couple of times before we got my levels up where they were supposed to be. But after that, I noticed I felt much better physically than I had in a long time. That was six years ago, and I continue to take the prescription in addition to over the counter supplements, monitored by my physician. I urge everyone to get their levels checked out. Low Vitamin D is not only responsible for bone pain and bone loss, it is linked to several forms of cancer, and even linked to heart disease. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2011 Report Share Posted October 24, 2011 , An article just was posted on Dr. Mercola's website about Vit D curing different types of cancers. Did you take Vit D during your active cancer stage? Thanks, Kathy T. From: ladybugsandbees <ladybugsandbees@...>iodine Sent: Sun, October 23, 2011 9:29:18 PMSubject: Re: Vitamin D My family and I use Biotics Research Bio-D-Mulsion Forte My 9 & 12 yr old take 1 drop (2,000 iU) per day I take 5 drops (10,000 iU / day) Buist, ND HC Vitamin D Im not sure if this is the right place to post this, if not kindly move it to where it should be.My latest test result said I am deficient in Vitamin D, can someone please share what type of vit,D are you taking. I am researching online and there seems to be so many kinds and sources of vit.dAny help is appreciated.Best; Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2011 Report Share Posted October 24, 2011  I did and continue to take it. I take 10,000 iU/ day - Biotics Research Bio-D-Mulsion Forte Buist, ND HC Vitamin D Im not sure if this is the right place to post this, if not kindly move it to where it should be.My latest test result said I am deficient in Vitamin D, can someone please share what type of vit,D are you taking. I am researching online and there seems to be so many kinds and sources of vit.dAny help is appreciated.Best; Quote Link to comment Share on other sites More sharing options...
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