New to the group

[Guest guest]

Hi Sherri this is Tabitha. I'm not sure where you got the idea of me

living in Alanta because I don't. I live in North Carolina. Thanks

anyway..

Re: New to the group

cholesteatoma

<span><p><span><p>

Tabitha,<BR>

<BR>

I'm not sure where you are located, but I saw mention of Atlanta. & nbsp;

We <BR>

researched and communicated with a Dr. Solob (spelling?) at Emory's <BR>

Children's Hospital. & nbsp; He has an excellent reputation. & nbsp; We

used someone <BR>

a bit closer, but he was second on our list.<BR>

<BR>

Good Luck,<BR>

Sheri<BR>

<BR>

<BR>

<BR>

<!-- |**|begin egp html banner|**| -->

<br><br>

<tt>

[Guest guest]

Hi Lynn thanks for the advice but I don't live in Atlanta, I live in

North Carolina. My daugter is being seen by a ENT specialist at Wake

Forest Babtist Medical Center which happens to be one of the best

hospital in the United States. I trust him very much,but thanks anyway.

Re: New to the group

cholesteatoma

<span><p><span><p>

Tabitha,<BR>

Good luck with this. & nbsp; I would echo what Sheri said and not

hesitate<BR>

even a minute to get the very best otologist you can find. & nbsp; It

doesn't<BR>

sound like the ENT was too on top of things, and to have

cholesteatoma<BR>

in both ears is rare even with a relatively rare disease. & nbsp; Hearing

is<BR>

so crucial to academic success, and my daughter has had some trouble<BR>

with just a unilateral loss. & nbsp; Think of reconstruction now with

the<BR>

best person you can find as an investment (hearing aids cost $1600

or<BR>

so each).<BR>

<BR>

That sounds scary, but in fact there are some really great surgeons<BR>

out there with phenomenal success rates, and people can often end up<BR>

hearing almost as well as they did before. & nbsp; Just try to find one

of<BR>

those doctors. & nbsp; You can ask on the list for people near you--

often<BR>

there happens to be someone nearby, but I would also think a drive

to<BR>

Atlanta would be worth it if there's no one local.<BR>

<BR>

--Lynn<BR>

<BR>

PS- the surgery is not too bad for little ones, though they don't

like<BR>

the restrictions on activity afterwards.<BR>

<BR>

<BR>

<BR>

<BR>

<!-- |**|begin egp html banner|**| -->

<br><br>

<tt>

[Guest guest]

>

> Hi I am new to the group. I would like to know what it is about.

>

Welcome to the group!

What this group is about is EFT (Emotional Freedom Techniques). In a

nutshell, it like accupressure on steroids. I highly recommend

cruising over to Craig's website to get a better picture of just

how powerful this personal improvement tool is. It's here:

http://www.emofree.com/

If you like what you see, feel free to grab his free EFT manual,

that's here:

http://www.emofree.com/downloadeftmanual.asp

Anyway, I hope that helps to answer your question )

-Jef

[Guest guest]

My quick answer is that yes there is drowsiness. But it goes away

after a couple of weeks. Try taking it at 5:00 pm. That way it

makes you tired enough to go to bed, but not too drowsy to get up in

the morning.

Good luck.

>

>

> <http://ak.imgag.com/imgag/product/full/ap/3046639/smiley.gif>

>

> Wanted to check right away and see if any of you that take Lexapro

are

> having trouble with drowsiness?

>

> Also any of you that take Lexapro that are on Seroquel as well?

>

> Thanks

>

> -

> - -

> -

>

>

>

> <http://www.bringhomethepassion.com/>

>

>

> Independent Consultant and Executive Director Passion

Parties by

>

> sJollies@...

> -IM: bringhomethepassion@...

> -http://www.bringhomethepassion.com

> <http://www.bringhomethepassion.com/>

> tel: -

> -tel2: 414-530-8398-

> -877-204-1822

>

>

> <https://www.plaxo.com/add_me?u=38654727874 & v0=44431 & k0=93980360>

Add

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[Guest guest]

Cold all the time is classic low thyroid - hypothyroid. I used to be

freezing all the time too. Once I got on thyroid medication I got

warm again. See a different doctor. Did he run thyroid level tests

on you? Get tested. Then tell us the results. Join the thyroid

group for more support and info:

thyroid/

On Jun 29, 2006, at 6:56 PM, tiacat604 wrote:

> I have trouble with breast lumps/cysts. Dr. said problems should

> disappear after menopause. My left side gets so big, that my regular

> bras don't fit. Lumps are so sore can't stand to even be touched or

> bumped up against. Now it feels like I have lumps under my armpit.

> Have had mammo & ultrasound & saw a surgeon. He says all problems are

> hormone related. I also have night sweats, tremors and just generally

> feel like crap. I get extremely cold all the time, walk around all

> year in wool socks & long sleeved clothes. Go to see the doctor & he

> says my hormone levels are fine. Now for the last 3 months my ears

> are ringing constantly-24 hours a day. I just don't know what to do

> anymore. I think my thyroid is out of whack, but Dr. disagrees. Any

> suggestions??

> Thanks,

> Darlene

[Guest guest]

My humble opinion is you are hypo and you need iodine. Probably more things as you are exhibiting some "nasty" symptoms. If you cannot find a Dr. to run your Free T3 & Free T4 you can run them yourself by ordering labs through www.healthcheckusa.com (thyroid panel II) or you can get all your hormones checked via saliva from www.canaryclub.org .

I think some Armour, Selenium, Iodine and probably some Bio-Identical hormones would go a long way toward helping you but you should try to find a doc to help you. You can start with the www.acam.org website as they are more "holistic" in nature.

B.My Ebay Auctions: http://tinyurl.com/o9nqvLIKE SOY CANDLES? ASK ME! http://www.marloquinn.net/index.asp?consultant=381

New to the group

I have trouble with breast lumps/cysts. Dr. said problems should disappear after menopause. My left side gets so big, that my regular bras don't fit. Lumps are so sore can't stand to even be touched or bumped up against. Now it feels like I have lumps under my armpit. Have had mammo & ultrasound & saw a surgeon. He says all problems are hormone related. I also have night sweats, tremors and just generally feel like crap. I get extremely cold all the time, walk around all year in wool socks & long sleeved clothes. Go to see the doctor & he says my hormone levels are fine. Now for the last 3 months my ears are ringing constantly-24 hours a day. I just don't know what to do anymore. I think my thyroid is out of whack, but Dr. disagrees. Any suggestions??Thanks,Darlene

[Guest guest]

Darlene, iodine is known to be quite effective with breast lumps/cysts. Check out whether you are eligible for participation in this clinical trial using iodine. It is well run, would provide thyroid tests, etc.

Phase III Study for Treatment of Moderate or Severe, Periodic, "Cyclic", Breast Pain This study is currently recruiting patients. http://www.clinicaltrials.gov/show/NCT00237523

Zoe

I have trouble with breast lumps/cysts. Dr. said problems should disappear after menopause. My left side gets so big, that my regular bras don't fit. Lumps are so sore can't stand to even be touched or bumped up against. Now it feels like I have lumps under my armpit. Have had mammo & ultrasound & saw a surgeon. He says all problems are hormone related. I also have night sweats, tremors and just generally feel like crap. I get extremely cold all the time, walk around all year in wool socks & long sleeved clothes. Go to see the doctor & he says my hormone levels are fine. Now for the last 3 months my ears are ringing constantly-24 hours a day. I just don't know what to do anymore. I think my thyroid is out of whack, but Dr. disagrees. Any suggestions??Thanks,Darlene

[Guest guest]

darlene ... your thyroid is out of whack, change docs immediately, or try to see an alternative md. endocrinologists treat test results; they rarely HEAR the patient. get help soon. in the meantime, see how you feel with a good form of natural thyroid from the health food store, but find someone knowledgeable. you need to be on something in the meantime, while you figure out what to do. just start with small dose? get the iodine loading test, from dr. flechas, too. i think someone might have already mentioned that? however, that takes time, and my feeling is you need help sooner. i don't know where you are located, but see if you can actually get Iodoral and start with low dose. all of this is just to say, you need something now, to hold you over. lugol iodine drops, too. i'm not a health practitioner, but if it were my body, i wouldn't wait

around suffering ... in any case, i've always been my own guinea pig. start healing yourself right now by seeing a different doc for a second opinion, or completely changing, if you can, the doc you now see. devatiacat604 <tiacat604@...> wrote: I have trouble with breast lumps/cysts. Dr. said problems should disappear after menopause. My left side gets so big, that my regular bras don't fit. Lumps are so sore can't stand to even be touched or bumped

up against. Now it feels like I have lumps under my armpit. Have had mammo & ultrasound & saw a surgeon. He says all problems are hormone related. I also have night sweats, tremors and just generally feel like crap. I get extremely cold all the time, walk around all year in wool socks & long sleeved clothes. Go to see the doctor & he says my hormone levels are fine. Now for the last 3 months my ears are ringing constantly-24 hours a day. I just don't know what to do anymore. I think my thyroid is out of whack, but Dr. disagrees. Any suggestions??Thanks,Darlene

Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.

[Guest guest]

Ann and Davey --

Forgive me if these aren't your names, but you didn't sign off.

Congratulations on such a first step of your journey with your baby girl

(what's her name, too?)... I was born profoundly deaf 45 years ago, and

wasn't fitted with hearing aids till I was 3 years old. Back then, they

were clunky body aids, and made them only for ONE ear. Needless to say, the

ill fitting ear mold generated feedback and I hated the uncomfortable fit,

in fact, my mother told me later, that I threw it down the toilet. Poor

parents!

I got my cochlear implant surgery in October '04, got activated 6 weeks

later. I think I learned how to hear for the first time -- high

frequencies, heretofore unheard, were suddenly available to me. Creaking of

floorboards, cawing crows, meowing cats, squeaking of door hinges, the water

tank refilling in the bathroom, tick-tock-ticking of clocks, rustling of

dancing leaves in a wind, shaking leaves above me in a forest, soft sighs of

a close friend, the click of the cooling/heating system turning on in the

basement as I sit in the living room, the clanking of a manhole cover

outside as a car goes over it are the memorable CI moments that come to mind

right now. I think for your baby girl, it will be a quicker learning curve

as her neural pathways are more plastic and malleable than those of an older

person.

There's a parents' group in Portland. There's also an auditory verbal

school (Tucker Maxon Oral) where you could contact to be in touch with other

parents in your situation. I remember meeting a very nice group of (active,

motivated, involved!) parents with children with implants one evening when I

visited the school and spoke with the parents.

Welcome to .

Best,

Lehfeldt

prelingually profoundly deaf

HAs till 12/2004, R ear CI N24C since then

On 8/2/06, daveyann14 <daltree@...> wrote:

>

> Hello everyone!

> I am a new mother of an 8 month old beautiful baby girl. We found out

> she had a severe/profound hearing loss when she was a week old. I am

> still experiencing culture shock due to the fact that she is the only

> person that I know that has a hearing loss. Needless to say my husband

> and I have learned more than I ever thought we would in the past 8

> months.

> We have done all of the testing to see if she is eligible for an

> implant and she is good to go! We went in to OHSU (Portland, OR) this

> morning to check on her developmental status and she is doing great in

> all areas, except communication of course.

> We have another appointment next week to look at the different brands

> and to choose which one we want. I think that this will be a difficult

> dicision to make. We have received info on all the brands and I know

> doctors aren't able to give their personal opinions.

> We are scheduled to have the surgery in late November and we have a

> long, but excited journey ahead of us!

>

>

>

[Guest guest]

Welcome to , daveyann14.

Dr McMenomey at OHSU was the surgeon who did my implant last November. I

was activated in early December. My audi then was Plapinger, also

at OHSU. I was later passed on to another audi I like very much. I had no

problem with pain or healing after the implant and am very happy with the

people at OHSU.

Both the audi and the surgeon told me there was no notable difference

between the two ci's they offer as far as results were concerned. I had to

make a choice and made it then strictly on the battery offering and chose

Advanced Bionics. I understand that Cochlear is now offering rechargeable

batteries also. I was given a brochure on MedTel too but it wasn't offered

by the time I had to make the choice. I'm still happy with my choice but

many others are happy with theirs and that's as it should be.

I live in Oregon City and I'm an old coot of 78 who wore a hearing aid

since my late 30s.

Virg

From: daveyann14

<snip>

We have done all of the testing to see if she is eligible for an

implant and she is good to go! We went in to OHSU (Portland, OR) this

morning to check on her developmental status and she is doing great in

all areas, except communication of course.

[Guest guest]

Virg and others,

My daughter, whose name is Maya, will also be using Dr. McMenomey

and then Don Plapinger. I am glad that you have had positive

interactions with them. I have met each of them and we like them

both.

It brings me to tears each time I read about memorable CI moments! I

am so excited that my little girl will be able to experience those

things. Thank you for sharing them.

I look forward to sharing questions and reading all that you have to

share.

Thank you,

and Davey (yes, I'm female!!! My Mom just loved the boy names!)

>

> Welcome to , daveyann14.

>

> Dr McMenomey at OHSU was the surgeon who did my implant last

November. I

> was activated in early December. My audi then was

Plapinger, also

> at OHSU. I was later passed on to another audi I like very much.

I had no

> problem with pain or healing after the implant and am very happy

with the

> people at OHSU.

>

> Both the audi and the surgeon told me there was no notable

difference

> between the two ci's they offer as far as results were concerned.

I had to

> make a choice and made it then strictly on the battery offering

and chose

> Advanced Bionics. I understand that Cochlear is now offering

rechargeable

> batteries also. I was given a brochure on MedTel too but it

wasn't offered

> by the time I had to make the choice. I'm still happy with my

choice but

> many others are happy with theirs and that's as it should be.

>

> I live in Oregon City and I'm an old coot of 78 who wore a hearing

aid

> since my late 30s.

>

> Virg

>

> From: daveyann14

>

> <snip>

> We have done all of the testing to see if she is eligible for an

> implant and she is good to go! We went in to OHSU (Portland, OR)

this

> morning to check on her developmental status and she is doing

great in

> all areas, except communication of course.

>

[Guest guest]

Hello!

It's wonderful that yoru daughter's hearing loss was diagnosed so early! I

have long learnt about the importance of early diagnosis in the field I study. I

was born with the hearing loss and was diagnosed around the age of 6-7 months

which was VERY early back then in the '80s. As soon as my parents discovered my

hearing loss, they got a shock just like you are telling us about. It's a very

hard shock, also to overcome, but right now the most important thing is to help

your child get the tools that will help her integrate better in the hearing

world.

When my mom discovered my hearing loss, there were no cochlear implants yet (I

was only implanted nearly 4 months ago). She began working with me on speech

recognition, lipreading and hearing as soon as possible. She worked with me

every day for 6 hours (and that after work!) and repeated words, again and

again. That's how I learnt to hear and speak. Thank God she did it because I can

now integrate a lot better in the hearing society. I still rely extensively on

lipreading to understand what other people tell me, and it's usually good when I

speak to one person at a time only. It's better than nothing and it's the only

thing that helped me go to a normal school (I was the only deaf student) and to

the university. It's worth the hard work!

Also with the implant, don't expect that it'll make her hearing normally. A

chochlear implant does provide an excellent hearing quality. Yet, she will need

your support when she learns how to hear since it's different than a normal

hearing. You need to seek guidance from the implant staff on how to teach her to

hear and speak and make a good use of what the surgery will give her. Believe

me, she will blossom after that!

I wish you a lot of good luck and many blessings with your daughter! Please,

feel free to contact me if you have any more questions (you can also e-mail me

privately).

Yours, Gilad

---------------------------------

See the all-new, redesigned .com. Check it out.

[Guest guest]

Hi Davey Ann,

How good of you to follow up on the newborn infant hearing screening.

So many parents are in denial, and never follow up and get any kind of

help for their child. Has your daughter been wearing hearing aids?

Getting speech help? Yes, even at her young age there are things you can

do to help her get ready for speech.

Meanwhile, the size of the cochlea is the same in a newborn as it is

in a fully grown adult. So the reason to wait on implanting is not so

she will have a larger cochlea with growth, but so she can take the

anesthesia.

Cochlear did the first implant on an infant of age 12 months. In

Canada, they regularly do implants on children age 9 months. So the

Cochlear brand has been implanted in more infants than any other. The

cochlear brand has also been implanted in more adults for that matter.

70% of all implants in the world are Cochlear brand. Their reliability

is unsurpassed. You might log onto the website: www.cochlear.com and

read the reliability statistics.

The new sound processors that are out can be used on infants very

easily. All things to consider.

The website: www..com has a list of frequently asked

questions, and you can get a wealth of information from them. Also what

to do to prepare for an implant.

I think there is a website for parents of children with implants.

You're doing the right thing starting your daughter with hearing as

soon as possible.

If you have any questions, let us know. I've had my implant for 9

years.

The Original

Posted by: " daveyann14 " daltree@... daveyann14

Wed Aug 2, 2006 6:28 pm (PST)

Hello everyone!

I am a new mother of an 8 month old beautiful baby girl. We found out

she had a severe/profound hearing loss when she was a week old. I am

still experiencing culture shock due to the fact that she is the only

person that I know that has a hearing loss. Needless to say my husband

and I have learned more than I ever thought we would in the past 8

months.

We have done all of the testing to see if she is eligible for an

implant and she is good to go! We went in to OHSU (Portland, OR) this

morning to check on her developmental status and she is doing great in

all areas, except communication of course.

We have another appointment next week to look at the different brands

and to choose which one we want. I think that this will be a difficult

dicision to make. We have received info on all the brands and I know

doctors aren't able to give their personal opinions.

We are scheduled to have the surgery in late November and we have a

long, but excited journey ahead of us!

[Guest guest]

Hey Sandy:

Welcome to the group! I've just been lurking here, but I thank you for the

question that I could respond to. I'm Mike from the Illinois Life Span project.

We are aware of a few schools that try to accommodate young adults with

disabilities in their college programs. One that I know of is ELSA (Elmhurst

Life Skills Academy). They offer life skills training but I do not believe they

award college credits for that program.

Another program is offerred through and Community College near Alton

in Godfrey, Illinois. They have a division to address accomodations for students

with disabilities. SIU has such an office at the Carbondale office, I believe.

I want to say that there are provisions in the ADA or IDEA for communty

colleges, Universities, and other institiutions of higher learning, to

accommodate students with disabilities, but I will have review it again. This

issue seems akin to accomodations in the workplace. We have some articles that

might be handy on this topic. Perhaps we can post them next week here. Or you

might try our website, listed below. Try the link to documents and resources and

look under education. Feel free to call us at the number below.

It seems that some community colleges are making accomodations. Others still

need to make a greater effort.

Mike Kaminsky, Director

www.Illinoislifespan.org

800-588-7002

new to the group

My name is Sandy and I live in central Illinois. One of my children

who has Down syndrome is in her early 20's. We has just gotten into

Jr. college after a year of expensive private reading classes. She

is now taking a jr. college remedial reading class and if passes will

take a number of more remedial classes before she can take classes

for college credit. Last week the instructor, my daughter and I

discussed future credit classes. I was told the regular curriculum

credit classes can not be modified.... accommodations (note-

taking,etc) could be provided however. Since, I'm just beginning my

own education on college and disabilities, I would appreciate any

experiences and knowledge others in this group have on this. Can a

community college refuse to modify curriculum?

I work in the area of professional development and support to

families of young children. I have found our family's way through

several milestones with Abbey that were not expected by others to be

accomplished... inclusive educational opportunities, driver's

license, public speaking, day care work, and now Community College.

Looking forward to joining you.

[Guest guest]

Hi Mike:

Thank you so much for responding to Sandy's question. Please feel free to post articles on this subject next week. I think this information is important to many other families.

To you and our other Jewish members, L'Shana .

Ellen

Ellen Garber Bronfeldegskb@...

new to the groupMy name is Sandy and I live in central Illinois. One of my children who has Down syndrome is in her early 20's. We has just gotten into Jr. college after a year of expensive private reading classes. She is now taking a jr. college remedial reading class and if passes will take a number of more remedial classes before she can take classes for college credit. Last week the instructor, my daughter and I discussed future credit classes. I was told the regular curriculum credit classes can not be modified.... accommodations (note- taking,etc) could be provided however. Since, I'm just beginning my own education on college and disabilities, I would appreciate any experiences and knowledge others in this group have on this. Can a community college refuse to modify curriculum?I work in the area of professional development and support to families of young children. I have found our family's way through several milestones with Abbey that were not expected by others to be accomplished... inclusive educational opportunities, driver's license, public speaking, day care work, and now Community College.Looking forward to joining you.

[Guest guest]

WOW! Sandy, it looks like you have blazed the trail for many others. What a wonderful advocate you have been for your daughter.

It will be terrific to have you in the group!

My son, Noah, is still in the educational system at NSSED but he has been auditing classes at Trinity University in Riverwoods. We have had the same professor for both of the classes and she has been absolutely and totally flexible in regard to modifications and accomodations. Of course, he is auditing the class, which is certainly quite different than taking it for credit. I am sure Mike Kaminsky's ARC site should have some information for you. In addition, 's Law may have the information you seek. There is another group located in Palatine called Special Education Advocacy Center. Jill Dressner is the Exec. Director. The website is www.specialadvocacycenter.org, the phone number is 847/736-8286 and the email address is seac@...

SEAC is specific to education to age 21, but they should be able to tell you how to access the information you are seeking.

Good luck!

Ellen

Ellen Garber Bronfeldegskb@...

new to the group

My name is Sandy and I live in central Illinois. One of my children who has Down syndrome is in her early 20's. We has just gotten into Jr. college after a year of expensive private reading classes. She is now taking a jr. college remedial reading class and if passes will take a number of more remedial classes before she can take classes for college credit. Last week the instructor, my daughter and I discussed future credit classes. I was told the regular curriculum credit classes can not be modified.... accommodations (note-taking,etc) could be provided however. Since, I'm just beginning my own education on college and disabilities, I would appreciate any experiences and knowledge others in this group have on this. Can a community college refuse to modify curriculum?

I work in the area of professional development and support to families of young children. I have found our family's way through several milestones with Abbey that were not expected by others to be accomplished... inclusive educational opportunities, driver's license, public speaking, day care work, and now Community College.

Looking forward to joining you.

[Guest guest]

SAndy, Welcome! I work with Mike at the Il. Lifespan Project. and

I understand was talking with the jur. state board of governors to

create a a jr. college degree, ie, associate degree tailored for studnts

with dis. The thinking was this was going to be a template for the jr.

colleges throughout the state. I don't kmow where that went. My own

son,19 , is going to Technology Center of DuPage, and arm of the junior

college here, and a consortium of high schools support it. Elsa is

commuter, so you can check with Cheeseman, the director and replicate

her model at a private school near you. she has had much success. this is

a $20,000 a year school.

when lewis and clerk was talking about this , hte peple were also talking

about grants, loans, scholarships. It was derermined that if this comes to

pass, students would have to have a diploma. Many spec ed students get a

ceet. of completion or some other derivative. I urge my young families to

write on ieps, a high school goal is a diploma. Good luck, call mike or me

at 630-357-0344

Cindi

[Guest guest]

In a message dated 10/3/2006 4:34:19 P.M. Eastern Daylight Time, anna.zawislanski@... writes:

I enjoy is the moment when I can tell that someone hasnoticed that my eyes are different color. Their expression takes on aslightly puzzled look and they look more intensely at my eyes thanbefore. And then they start asking those silly questions, like... Didyou know that you have 2 different colored eyes???

I always enjoy that moment too - we should have a special name for it.....

[Guest guest]

In a message dated 10/3/2006 3:36:59 PM Pacific Standard Time, aplarsen@... writes:

I always thought of it as a moment of real-eyes-ation.Yuk, yuk, yuk.Adam

LOL thats cute ill second that yukkity yuk yuk

[Guest guest]

I always thought of it as a moment of real-eyes-ation.Yuk, yuk, yuk.AdamOn 10/3/06, bobfv@... <

bobfv@...> wrote:

In a message dated 10/3/2006 4:34:19 P.M. Eastern Daylight Time, anna.zawislanski@... writes:

I enjoy is the moment when I can tell that someone hasnoticed that my eyes are different color. Their expression takes on aslightly puzzled look and they look more intensely at my eyes thanbefore. And then they start asking those silly questions, like... Didyou know that you have 2 different colored eyes???

I always enjoy that moment too - we should have a special name for it.....

[Guest guest]

Hi Chasity, Welcome to the group. I feel for you and can't imagine that the state would be putting you through this mess but I know it happens. Unfortunately I'm from Illinois and don't know of any programs in Indiana. Have you tried contacting your congressman? I wouldn't know where to start in asking for help in a situation like yours. I wish you the best in trying to find someone to help you. Perhaps someone else who's been in this group longer could give you some pointers. passionluver2000 <MommasBack3@...> wrote: My name is Chasity, I'm a 25 yr old mother of 3 who has had reaccuring Cholesteatoma since a very young age..I've had countless operations and feel like they have gotten me nowhere. The last operation I had was about 5 yrs ago and I'm sure it's about time for another one if it isn't past due. My problem is I can't afford to have one done ( if it's needed )..I can't even afford to go to the doctor to get checked. I do not qualify for medicade in my state because I'm a waitress so they say they " can not determain how much money I actualy make".. I don't know if anyone else is from the state of Indiana, but I could use a little help in finding someone or a group that might be able to help me. I've reached my limit with all the places I know about here. Always seeming to

get the same answer " Sorry we can't pay for that", " Sorry we don't so those kind of operations", and so on.. I know this is something I have to get taken care of, but I don't know where to turn.. CAN SOMEONE HELP ME PLEASE???Chasity"Wherever you go, there you are!" Wagemanngeowags@...

Get your own web address for just $1.99/1st yr. We'll help. Small Business.

[Guest guest]

What if you were to visit a teaching hospital? My doctor is a

professor with the University of Miami (in Florida) and my

understanding is that they will perform surgeries pro bono or at a

reduced rate or something if the patient cannot afford it. The

caveat is that the resident, and not the supervising physician,

performs the surgery under the supervision of the physician. I have

no idea if this is even an option, but it can't hurt to ask.

> My name is Chasity, I'm a 25 yr old mother of 3 who has

had reaccuring

> Cholesteatoma since a very young age..I've had countless

operations

> and feel like they have gotten me nowhere. The last operation I

had

> was about 5 yrs ago and I'm sure it's about time for another one

if it

> isn't past due. My problem is I can't afford to have one done ( if

> it's needed )..I can't even afford to go to the doctor to get

checked.

> I do not qualify for medicade in my state because I'm a waitress

so

> they say they " can not determain how much money I actualy make " ..

I

> don't know if anyone else is from the state of Indiana, but I

could

> use a little help in finding someone or a group that might be able

to

> help me. I've reached my limit with all the places I know about

here.

> Always seeming to get the same answer " Sorry we can't pay for

> that " , " Sorry we don't so those kind of operations " , and so on..

I

> know this is something I have to get taken care of, but I don't

know

> where to turn.. CAN SOMEONE HELP ME PLEASE???

>

> Chasity

>

>

>

>

>

>

> " Wherever you go, there you are! "

>

> Wagemann

> geowags@...

>

> ---------------------------------

> Get your own web address for just $1.99/1st yr. We'll help.

Small Business.

>

[Guest guest]

Dear Chasity,

This is an extreme solution, BUT something to consider. Quit your

job for medical reasons. Go on welfare, get food stamps and

Medicaid, and apply for Social Security Disability. Sorry to say

that's about how the system works. If you don't work, you can get

help. If you do work and try to help yourself, then it's just tough

on you. It is absolutely outrageous that you are denied medicaid

because they " can't determine how much money " you make. They should

go by what you claim for taxes. You might be surprised; in some

cases you are better off on welfare than working. It depends on

which state you live in and what kind of benefits are available.

HUD for example, can be a great boon. You can rent a house and HUD

subsidizes your rent, so you pay maybe $120 a month, and the

government pays the other $900 (that's an example from Hawaii.)If

you can get disability the government will pay for you to go to

school, and pay for your child care and even buy you a computer if

you need one for your studies. (Vo-Rehab) Also you will get Pell

Grants, which pay for your tuition and books, and generally there is

money left over which goes into your pocket.

Good luck to you.

cheralin

>

> My name is Chasity, I'm a 25 yr old mother of 3 who has had

reaccuring

> Cholesteatoma since a very young age..I've had countless

operations

> and feel like they have gotten me nowhere. The last operation I

had

> was about 5 yrs ago and I'm sure it's about time for another one

if it

> isn't past due. My problem is I can't afford to have one done ( if

> it's needed )..I can't even afford to go to the doctor to get

checked.

> I do not qualify for medicade in my state because I'm a waitress

so

> they say they " can not determain how much money I actualy make " ..

I

> don't know if anyone else is from the state of Indiana, but I

could

> use a little help in finding someone or a group that might be able

to

> help me. I've reached my limit with all the places I know about

here.

> Always seeming to get the same answer " Sorry we can't pay for

> that " , " Sorry we don't so those kind of operations " , and so on..

I

> know this is something I have to get taken care of, but I don't

know

> where to turn.. CAN SOMEONE HELP ME PLEASE???

>

> Chasity

>

[Guest guest]

Lorie why do you think that changes are not occurring ???as you can see from a post I did recently with levels and creatine 100 ng is the standard ..I am soo very frustrated and moving on is so hard..when something is used against you how does one let go and let God..this is not fair...where is god anyway ,he let his son be crucified ..very dysfunctional family..and the resentment page in the big book...pray for them eeshhh..I'm not doing well at all...no where to run

[Guest guest]

Hi ,

What state are you in? If all they used to keep you in a monitoring

program for an additional year and a half was a couple of positive EtG

levels, I should think the SAMHSA advisory should help you get that

reversed. Please keep us posted. In theory, the SAMHSA advisory should

have helped us all, but so far, we're not seeing any changes.

Lorie

>

> Hello to everyone in EtG land....I knew from the beginning this test

> would be causing huge problems! I have been researching this since my

> admission into a monitoring program (January 2005). Had two low-

> positives in May of this year (360ng/mL & 480ng/mL)so they extended my

> time in the program by a 1 1/2 yrs. Wonder who's going to make money

> there? In any case, i'm appealing and using the SAMSHA advisory as

> well as Helliker's articles (he interviewed me as well)and any

> other research I have found. If anyone knows of anything else I can

> use, please let me know! I'm glad to know that you are all here.

>