Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 Hello Liz and welcome to the group. Your wonderful attitude will go a long way towards helping yourself with your recovery. I had the open Heller in 1991 when laps were still experimental. Was there a health reason that you had the open Heller, since you mentioned at the end of your post that you were sick going into the surgery (but apparently not too sick so as not to have the Heller surgery). Energy and stamina as well as your ability to eat will improve; it does take time since you've been thru more than most of us. Weight will come back on and before you know it, you will get " crap " again that you weigh too much! Please keep us posted as to how you're doing and if our collective knowledge can be of any help to you. > > Hello all, I am 5 weeks post op with an open thoracic heller and pyloroplasty complicated by aspiration pneumonia and a mycobaterium lung infection. Eating is going very well. Have not met anything yet I can't eat some of with comfort. I am still not eating as much as I should and that is a bit of a struggle. The dietician came to see me this morning and is not happy I have lost 10 lbs. My whole life I get crap for needing to lose weight and now I am given grief for being too thin. I know this will pass as time goes on. My biggest problem is still regaining energy and stamina. It is improving soooo slowly. Everyone tells me that is the remnants of the lung infections and I was very sick going into surgery. > Overall, no regrets, the outcome is well worth the few weeks of discomfort just now and I expect things to just continue to improve. Good luck to all struggling with this at whatever stage you are at. > Liz > Southern Ontario > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 Hi Liz, You definitely need to give yourself some more time for the energy and stamina to return. As you know, I've had two open myotomies. It takes more than five weeks to feel energetic. I had to actually have a "babysitter" stay with me while my husband was at work. I was fainting at the weirdest moments throughout the day. My daughter was 2 months old when I had my first myotomy, so everyone was concerned about us both for a few months. Your energy will come back soon. I think of you often, and I'm glad you are finally getting over your lung infection. P.S. Our thoracic surgeons trained together. Dr. Darling and Dr. Gehman. 5 weeks post op Hello all,I am 5 weeks post op with an open thoracic heller and pyloroplasty complicated by aspiration pneumonia and a mycobaterium lung infection. Eating is going very well. Have not met anything yet I can't eat some of with comfort. I am still not eating as much as I should and that is a bit of a struggle. The dietician came to see me this morning and is not happy I have lost 10 lbs. My whole life I get crap for needing to lose weight and now I am given grief for being too thin. I know this will pass as time goes on. My biggest problem is still regaining energy and stamina. It is improving soooo slowly. Everyone tells me that is the remnants of the lung infections and I was very sick going into surgery.Overall, no regrets, the outcome is well worth the few weeks of discomfort just now and I expect things to just continue to improve. Good luck to all struggling with this at whatever stage you are at.LizSouthern Ontario Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 Glad you are feeling and eating better!Hope things continue to go well for ya. > > Hello all, > I am 5 weeks post op with an open thoracic heller and pyloroplasty > complicated by aspiration pneumonia and a mycobaterium lung infection. > Eating is going very well. Have not met anything yet I can't eat some > of with comfort. I am still not eating as much as I should and that is > a bit of a struggle. The dietician came to see me this morning and is > not happy I have lost 10 lbs. My whole life I get crap for needing to > lose weight and now I am given grief for being too thin. I know this > will pass as time goes on. My biggest problem is still regaining > energy and stamina. It is improving soooo slowly. Everyone tells me > that is the remnants of the lung infections and I was very sick going > into surgery. > > Overall, no regrets, the outcome is well worth the few weeks of > discomfort just now and I expect things to just continue to improve. > Good luck to all struggling with this at whatever stage you are at. > Liz > Southern Ontario > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2008 Report Share Posted February 9, 2008 Hi Hannah, My surgery was also 5 weeks ago. I'm not having the problems that you have with the leg lenghth but something doesn't sound right there. You might want to have someone else take a look at it. As far as the muscles go, I found that mine were useless after the surgery. Until a few days ago I couldn't lift my leg straight up off the PT table, but I can finally do it but it isn't easy. I didn't have any swelling to speak of. I remember feeling like a fish on ice when I was in the hospital so I guess it worked. Good luck to you. Eleanor > > Hi > > I am 28 and had a THR to my left hip 5 weeks ago., this was caused by > a congenital dislocation at birth that was missed. I have a number > of questions.... > > I have a burning type pain when lying flat just above the knee. This > only happens in bed at night and is so intense that the only way I > can stop it happening is to sleep sitting upright and to have a > pillow underneath my operated knee. This is quite annoying more than > anything and the burning feeling is quite painful. Has anyone else > experienced this? It is also still numb there, I cannot feel this > area when I place my hand on the leg. > > Leg length... has anyone had an obvious leg length discrpeancy of 1- > 1/5 inches that over time did resolve. It is actual not apparent and > it is concerning me that it may affect my good hip as I cannot > straigthen my operated leg unless I have my good leg raised in a shoe > and my bad leg shoeless, I would like to know other peoples > expereince. > > How long did it take for the swelling to go down and were people left > with muscle wasteage on their bottom? Did it come back with physio > and the building of those muscles? > > Thank you all > Hannah > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2008 Report Share Posted February 11, 2008 I am also 5 vweeks post op on a tkr. I get a throbbing pain where my menicus ...wakes me up and I ache down my shin bone. my range of motion is good...i have about a 125 degree bend. what the therapist is working on now is getting my right knee as straight as my left. The way she is doing this (and I hate) I lay on my stomach on the table with my knees hanging over the edge and a weight put on my right ankle for 3 minutes. IT Hurts,,,and my whole leg just shakes. guess she knows what she is doing gayle dayton, oh Re: 5 weeks post op Hi Hannah, My surgery was also 5 weeks ago. I'm not having the problems that you have with the leg lenghth but something doesn't sound right there. You might want to have someone else take a look at it. As far as the muscles go, I found that mine were useless after the surgery. Until a few days ago I couldn't lift my leg straight up off the PT table, but I can finally do it but it isn't easy. I didn't have any swelling to speak of. I remember feeling like a fish on ice when I was in the hospital so I guess it worked. Good luck to you. Eleanor > > Hi > > I am 28 and had a THR to my left hip 5 weeks ago., this was caused by > a congenital dislocation at birth that was missed. I have a number > of questions.... > > I have a burning type pain when lying flat just above the knee. This > only happens in bed at night and is so intense that the only way I > can stop it happening is to sleep sitting upright and to have a > pillow underneath my operated knee. This is quite annoying more than > anything and the burning feeling is quite painful. Has anyone else > experienced this? It is also still numb there, I cannot feel this > area when I place my hand on the leg. > > Leg length... has anyone had an obvious leg length discrpeancy of 1- > 1/5 inches that over time did resolve. It is actual not apparent and > it is concerning me that it may affect my good hip as I cannot > straigthen my operated leg unless I have my good leg raised in a shoe > and my bad leg shoeless, I would like to know other peoples > expereince. > > How long did it take for the swelling to go down and were people left > with muscle wasteage on their bottom? Did it come back with physio > and the building of those muscles? > > Thank you all > Hannah > More new features than ever. Check out the new AOL Mail! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2008 Report Share Posted February 21, 2008 Hi Hannah I am 28 also and had my hip replacement two years ago as of March 22. I also had cogential dislocation that wasn't noticed until I was almost 3. My replaced hip is also my left hip but I was also a bit of a lab rat since I had a few opertations done including a hip fusion just before my 15 birthday. I admit to having a burning pain as wll just above the knee mine went away within time. I think (I am not a doctor just an opinion - since my surgeon checked it out and all was fine). That I had not worked or used any muscles in that range for a long time and they were kind of waking up and/or the fact that the stem of the replacement went deep into the femur and stopped abit above the knee. I would love to day that the pain went away after a month or so but it lasted almost if not a full two months. About the numbness I think it might have to do with the nerves in the area getting used to all the estra work. If in doubt call the surgeonat first I was afraid to bug mine but he was perfectly with it. Leg length - you can get a lift added to any shoe of any sizeI have a 1 inch (I think I suck at math numbers etc.) and when the shoes are off it is quite noticeable. My leg difference I had since I was a small child though - was yours from the surgery or before? Ad I am not sure if you are saying the operated side is longer or shorter. My operated side is longer and I have a very noticeable limp without my shoes on. After time this can cause problems I don't want to frighten you or anything but due to the leg difference/ good hip taking slack over the years my so called good hip now has arthisis (sp?). It isn't too bad as of yet but eventually it will need to be replaced as well. Talk to your physio she/he might know of some techniques or shoes or whatnot to help with the length difference. About the bottom issue- the proper shape does eventually come back. It just needs some time (I hated the feeling of a cement block in the one buttuck). About the muscles it is once again a matter of time I remeber thinking I was so behind in progress nine months after the surgery and just so frustrated. As long as the muscles were working before the surgery it shouldn't take as long as me. But even though physio is painful and so forth it really does help in the end. If you have any more questions or whatnot you can email me at cntessica@... if you like. ~Contessica > > Hi > > I am 28 and had a THR to my left hip 5 weeks ago., this was caused by > a congenital dislocation at birth that was missed. I have a number > of questions.... > > I have a burning type pain when lying flat just above the knee. This > only happens in bed at night and is so intense that the only way I > can stop it happening is to sleep sitting upright and to have a > pillow underneath my operated knee. This is quite annoying more than > anything and the burning feeling is quite painful. Has anyone else > experienced this? It is also still numb there, I cannot feel this > area when I place my hand on the leg. > > Leg length... has anyone had an obvious leg length discrpeancy of 1- > 1/5 inches that over time did resolve. It is actual not apparent and > it is concerning me that it may affect my good hip as I cannot > straigthen my operated leg unless I have my good leg raised in a shoe > and my bad leg shoeless, I would like to know other peoples > expereince. > > How long did it take for the swelling to go down and were people left > with muscle wasteage on their bottom? Did it come back with physio > and the building of those muscles? > > Thank you all > Hannah > Quote Link to comment Share on other sites More sharing options...
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