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ine, please don't feel guilty about starting a dispute. You have been

through so much and I admire you tremendously. I just felt bad for you to

have your honest feelings used against you. From now on, I won't defend

anyone and will mind my own business. Arlene

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Well I feel that all these ill feelings have stemed from what I posted to

the

group about feelings 'from my heart'...

I did not take offense to what Micheal said, i did get up set with some of

the things he said, but he is still entitled to his opinion and I said that

in my last post to the group...

I am sorry for being the cause of this agruement and now the possible

slanging match that is brewing. Please everyone don't fight over other

peoples comments.....we are ALL entitle to have our say....

I will not from now on post anything that I am feeling to this group..... I

will use this group only for offering support to others ....

SORRY.

ine.

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ine...

I hope you don't mean this:

I will not from now on post anything that I am feeling to this

group.....

It will destroy the purpose of a group such as this if

this happens. You DID NOT CAUSE anything....

We are all (to varying degrees) affected mentally by the mere presence

of this disease, whether as the patient or the spouse. But we must all

learn to accept others opinions and perspectives, and to phrase OURS,

without trying to change the others. Each of us needs to know how

others feel and do things in order to decide how WE will do things...

Merril

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I understand this Merril,

and I didn't give anyone a hard time about their opinions, if I didn't want

to

hear everyones opinions I would not have posted to the group...

I am happy for everyone to have their say, but when it starts to become

an arguement of negative opinions and angriness well since I have been in

this group, this is the first time I have seen people get bitter with each

other about someone else opinion, I didn't post to this group for that to

happen.. I was very upset when I sent that post... I felt I had made bad

carma in this group :)) I will retract it... I like all of your opinions,

even if I don't agree with them all....it is like getting advice when you

become a new mum, your take some of it chewing it up, let it sink in if you

don't like it, spit it out.....and get some more.. :))))

now lets all get on with it...

ine.

======================================

> From: Merril <allennco@...>

>

> ine...

> I hope you don't mean this:

>

> I will not from now on post anything that I am feeling to this

> group.....

>

> It will destroy the purpose of a group such as this if

> this happens. You DID NOT CAUSE anything....

> We are all (to varying degrees) affected mentally by the mere presence

> of this disease, whether as the patient or the spouse. But we must all

> learn to accept others opinions and perspectives, and to phrase OURS,

> without trying to change the others. Each of us needs to know how

> others feel and do things in order to decide how WE will do things...

>

> Merril

>

>

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  • 9 months later...

In a message dated 8/15/00 8:46:31 PM Pacific Daylight Time, dragons@...

writes:

<< I am on my knees begging for forgiveness. LOL...

I totally forgot about not sending supplier names to the list. >>

Just because we all copied and pasted the info doesn't mean we aren't

offended!

:-)

Connie

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  • 1 month later...

Hi Everyone,

"you do/say something I don't agree w/ or like, you'll know about it."

If someone does something that you dont agree with or dont like please take it to the moderators and leave it OFF the list.

The last thing the other 80+ people on this list need is to feel heated emotions - too much stress in our lives as it is.

Krissy you didnt stir up shit! Just avoiding future shit from being stired tis all!

Moderators email:- -owneregroups

I'm about to lose my email! See you all later!!!

*hugs*

Love Aisha

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  • 2 months later...

Leigh,

I am so happy that your family is improving and you have a wonderful,

fantastic (on & on & on) husband. You are truly blessed. You are also a

very strong lady that a lot of people (not meaning any here) could take a

lesson from your strength.

I hope for you and your family, the most wonderful Christmas and the best New

Years ever.

Love and hugs to all

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> and I apoligize to all of you for not emailing. Once again,

things

> have gotten crazy over here. I'll fill you in later. Right now I

will

> update all of you on how my wonderful family is doing.

Hey Leigh, great to hear you are feeling stronger. Are you getting

help with your babies during the day or handling them all by

yourself?????

They sound wonderful, with strong little personalities already.

Don't worry about the crap with the photo, and rumour. I have been

dealing with that sort of stuff for the past few months too, with

many family members wiping me. The important thing is you have ,

who knows you, and trusts you. Anyway, how the hell could you have

had time to have an affair while recovering and looking after your

babies? It is too silly for words. Just put it out of your mind, it

is not worth worrying over. loves you. You are both recovering,

your babies are healthy, life is looking up!

Look after yourself, so glad you are back!

Love :-)

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  • 2 months later...
Guest guest

This one's fine....we all get odd things every now and then...keeps us

humble and human.:-)

Poondfrog

sorry

I'm really sorry I inserted an entire digest in my reply yesterday. I swear

I just copied a few lines and pasted those into the response. I can't

imagine how all the rest got attached. (I sure hope it doesn't happen with

this message!)

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

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Guest guest

You sound pretty nice yourself Pondfrog and I love your name.barb from

Nebraska

> This one's fine....we all get odd things every now and then...keeps us

> humble and human.:-)

> Poondfrog

>

>

>

> I'm really sorry I inserted an entire digest in my reply yesterday. I

>

>

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  • 3 months later...
Guest guest

In a message dated 6/16/01 3:06:32 PM Eastern Daylight Time, iam743559@... writes:

i really hope i didnt offend anyone when i posted about dillon's appt last monday. i was really upset at what all happened that day. i hope you all do well over the next week or so. i will be going no mail now so we can start getting ready for our trip to the hospital.

have a great week everyone!!

I wasn't. We all need some place to vent. We'll be thinking about you and little Dillon. Good luck. Tree

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Guest guest

,

No I wasn't the least offended. I could sure tell you were more than

a little upset, and it sounds like you have every right to be. I

hope Dillon's surgery goes smoothly. God be with you both! :)

Jeanie

> i really hope i didnt offend anyone when i posted about dillon's

appt

> last monday. i was really upset at what all happened that day. i

> hope you all do well over the next week or so. i will be going no

> mail now so we can start getting ready for our trip to the

hospital.

> have a great week everyone!!

>

> shelly

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  • 5 months later...

Denisa and everyone:

I never said that a specific person was offended, but people have sent me email privately before, hoping to maintain Aisha's non-denomination group. I believe that it is a good idea, since we are all so diverse. We are all united in chronic illness, and I think that religion doesn't have to play into it. My example was that someone could say "so and so bless you" but that might offend someone else of a different religion. So....why not just avoid it all together? Am I the only one this makes sense to? Just because I send a reminder message, does not mean I am picking on you. I think celebrating holidays are fine, and well wishing is fine, but the line has to be drawn somewhere. My rule of thumb is to try to figure out if it may be offensive, if so, don't send it. Can't make everyone happy, but religion is a typical problem in the world that starts many fights and wars. Here, I see our religion as chronic illness or the care of ill people. Right?

~~To laugh often and much; to win the respect of intelligent people and the affection of children...to leave the world a better place...to know even one life has breathed easier because you have lived. This is to have succeeded.--- Ralph Waldo Emerson

Sorry

It appears I broke the rules and/or offended someone by a post. And I am sorry. I received a email from a friend that I thought was adorable It was called *Children's Letters to G**. I was unaware I was not allowed to post it. I thought it was cute and wanted to share.

I am sorry. Back to lurk mode for me

Denisa

---Outgoing mail is certified Virus Free.Checked by AVG anti-virus system (http://www.grisoft.com).Version: 6.0.303 / Virus Database: 164 - Release Date: 11/24/01~~~~ *** ~~~ *** ~~~ *** ~~~~ The Being Sick CommunityMemorial Pagehttp://www.dreamwater.net/lovingmemory/Message Archives and Digest Attachment Pictures:-/messagesChat:- Scheduled Daily Chats at # on IRC DALnet./files/chat.htmBookmarks:-Add a website URL you have found useful./linksPersonal Complaints or problems:-Please contact a moderator email: -owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email.To modify your subscription settings please visit:- /joinTo subscribe or unsubscribe please email:--subscribe -unsubscribe ~~~~ *** ~~~ *** ~~~ *** ~~~~“Hold on to what is good, even if it's a handful of earth. Hold on to what you believe, even if it's a tree that stands by itself. Hold on to what you must do even, if it's a long way from here. Hold on to your life, even if it's easier to let go." - Pueblo Prayer~~~~ *** ~~~ *** ~~~ *** ~~~~

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No Lurk Mode !!! Has been nice hearing from you !!! Keep it up !

{{{ Many Hugs }}}

«::(¨`v´¨)::»

*..·°-:¦:*`v´*Helen

It appears I broke the rules and/or offended someone by a post. And I am sorry. I received a email from a friend that I thought was adorable It was called *Children's Letters to G**. I was unaware I was not allowed to post it. I thought it was cute and wanted to share.

I am sorry. Back to lurk mode for me

Denisa

"Always remember that you are not the only one who has ever felt rejected, unloved and lonely at sometime. Reach out and help someone else in trouble, and you could be amazed at the changes in yourself and your life."- Anonymous

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  • 3 months later...
Guest guest

Sorry for not answering emails sinse Saturday :o( The new med Plaquanil is making me very nauseated and light headed...

We have a snow storm here... Got 4 - 5 inches sinse last night... Second storm coming in, in the morning...(Tues.) Suppose to start out as freezing rain and sleet then over to all snow by afternoon, with another 3 - 6 inches of snow on top of what we already have... Haven't had but 8 inches of snow all winter, and here we are going to pass that in two days time... But MY calendar say's it is SPRING :o)

Hope all are well as can be... Will try and get to the mail here soon...

((( Many Special Hugs All )))

Helen

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  • 3 weeks later...
Guest guest

Hi,

I had to go back and re- read your the post in question, to find out what

might have been offensive. Personally I don't see anything that is

offensive. :-)

Have you had him tested for the more rare forms of DS? I think one form of

mosiac or something sometimes only shows up in skin tests? Boy it's been

along time since I read all those books on ds. (isn't 12 yrs a long time?)

Can't you tell. hehe.

I do hope that you find an answer to his problems tho.

Joy

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Guest guest

it didn't bother me, I knew what you meant.

good luck!

sorry

>

> THIS IS FOR MY EARLIER EMAIL. IT WAS BROUGHT TO MY ATTENTION THAT I WROTE

> SOMETHING THAT OFFENSIVE TO MOST. I JUST WANTED TO APOLOGIZE FOR IT. I

DID

> NOT MEAN FOR IT SOUND LIKE IT SOUNDED AND I'M VERY VERY SORRY FOR IT. IF

YOU

> WOULD LIKE TO TAKE ME OFF YOUR MAILING THEN PLEASE DO SO. BUT I WAS JUST

> WANTING ADVISE ON MY SON THAT HAS SOME OF THE SAME PROBLEMS AS SOME OF

YOUR

> CHILDREN DO. I AM VERY SORRY IF I OFFENDED ANYONE I WAS NOT TRYING TO DO

>

>

>

>

>

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Guest guest

I also know what you meant. We talked on AOL that night, so I have an

understanding of where you are coming from. I do hope the doctors can figure

out what is going on with your baby. Your welcome to stay here. Is he in early

intervention?

sorry

THIS IS FOR MY EARLIER EMAIL. IT WAS BROUGHT TO MY ATTENTION THAT I WROTE

SOMETHING THAT OFFENSIVE TO MOST. I JUST WANTED TO APOLOGIZE FOR IT. I DID

NOT MEAN FOR IT SOUND LIKE IT SOUNDED AND I'M VERY VERY SORRY FOR IT. IF YOU

WOULD LIKE TO TAKE ME OFF YOUR MAILING THEN PLEASE DO SO. BUT I WAS JUST

WANTING ADVISE ON MY SON THAT HAS SOME OF THE SAME PROBLEMS AS SOME OF YOUR

CHILDREN DO. I AM VERY SORRY IF I OFFENDED ANYONE I WAS NOT TRYING TO DO

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  • 9 months later...

Mom,

Don't worry....I do it all the time...don't I guys?

Hugs,

-----Original Message-----From: AngelBear1129@... [mailto:AngelBear1129@...] Sent: Tuesday, January 21, 2003 11:02 PM-owner Subject: sorrysorry guys, just realized that all my links iZ sent out went to the owner... I sent them onto the list... My computer decided to put owner in on its own, apparently that is where a lot of my sent mail has gone lately :o) sorry!!!Helenangelbear

{0} {0} {0} {0} {0} {0} {0} {0} {0} ^\|/ ^ \|/ ^ \|/ ^ \|/ ^ \|/ ^ \|/ ^ \|/ ^ \|/ ^ \|/^ **** **** **** **** **** **** **** **** ****~~~THINK SPRING ~~~angelbear1129@...:o)

---Incoming mail is certified Virus Free.Checked by AVG anti-virus system (http://www.grisoft.com).Version: 6.0.443 / Virus Database: 248 - Release Date: 1/10/2003

---

Outgoing mail is certified Virus Free.

Checked by AVG anti-virus system (http://www.grisoft.com).

Version: 6.0.443 / Virus Database: 248 - Release Date: 1/10/2003

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  • 9 months later...
  • 6 months later...
Guest guest

:o) Welcome aboard :o) We all get this way at times, no harm was done... You had your opinion and others did too... :o) Myself, I have always had a dog in my life and always will... They help me get through the tough days when humans just don't seem to understand...

((( Animal Hugs )))

Helen

Hello all,

I apologize for taking things the wrong way, It seems I was feeling sorry for myself and

taking myself a little too seriously.

Sam

"A very important part of the joy of living is the joy of giving." - Buck Surnames I am following:Mc Intosh/Mac Intosh/MackIntosh -- Lambert -- Sweeny --Osterhout -- Spring -- Fauver -- Tilden -- Handy -- Haller -- Leininger -- Beckham -- Godden -- Brown -- -- Barbara -- Losure -- Spade -- Ferris -- -- Chroninger/Croninger -- Myles -- Weirich -- Shonk -- Inches -- Burditt -- 's -- Frosch/Frozeck -- Turrittin -- Proudfoot/Stoltzfuss -- Mattocks -- Oliver -- Pethangelbear1129@..

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  • 7 months later...

The eye twitching is caused one or more of the electrodes being over driven.

I got the same thing at my last mapping. The audi refined the settings and

it went away.

It happens when electrical current " leaks " from the electrode to the facial

nerve which is very close.

I noticed it a bit yesterday when on the phone - the ring tone made my eye

go twitch-twitch---twitch twitch.

I can live with it until the next mapping but it's not something that should

be accepted as unavoidable.

New Zealand

Implanted 16/11/04

Activated 13/12/04

> Hi Everybody

>

>

> to a mother who wrote about her child that was implanted a few days

> ago and that her child does something with her eye while wearing an

> implant i did the same thing it was so overwhelming at the begning

> bec i ccouldnt hear anything but at the same time all the high

> frequencies were soo loud like plastic bags rustling, water running,

> etc... and also when i put the implant it was painful at first but

> now when i put the implant its not painful so i guess the child would

> have to get used to it..

>

> I hope i mmade any sense .........

>

>

>

>

>

>

>

>

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Yes, and (? LesDeb?)...

My right eye twitched just a little bit with a specific frequency in

the time period between my first and second MAPpings, I had meant to

tell my audiologist at the second MAPping, but it went away over a few

days, and it never returned, even with increased dynamic range (lower

T and higher C levels)... so I never brought it up at the second

MAPping. So I think this is just a temporary stimulation of the

facial nerve which is very close to the auditory nerve where these two

(and the vestibular nerve) lie together as they exit from the floor of

the brain. How long has this been happening for you?

activated 12/8, dying for his fourth MAPping next week

On Fri, 21 Jan 2005 15:54:17 +1300, <J@...> wrote:

>

> The eye twitching is caused one or more of the electrodes being over driven.

> I got the same thing at my last mapping. The audi refined the settings and

> it went away.

> It happens when electrical current " leaks " from the electrode to the facial

> nerve which is very close.

>

> I noticed it a bit yesterday when on the phone - the ring tone made my eye

> go twitch-twitch---twitch twitch.

> I can live with it until the next mapping but it's not something that should

> be accepted as unavoidable.

>

>

> New Zealand

> Implanted 16/11/04

> Activated 13/12/04

>

> > Hi Everybody

> >

> >

> > to a mother who wrote about her child that was implanted a few days

> > ago and that her child does something with her eye while wearing an

> > implant i did the same thing it was so overwhelming at the begning

> > bec i ccouldnt hear anything but at the same time all the high

> > frequencies were soo loud like plastic bags rustling, water running,

> > etc... and also when i put the implant it was painful at first but

> > now when i put the implant its not painful so i guess the child would

> > have to get used to it..

> >

> > I hope i mmade any sense .........

> >

> >

> >

> >

> >

> >

> >

> >

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LesDeb,

Yes, I understand what you are saying. I find that I can't hear

myself talking in noisy situations. I think you have your ADRO turned

off (A on your BWP screen) and the sound bubble is too large. Try

this -- the button with the dot inside the circle is the ADRO button,

toggle it on. (I'm assuming that you have the N24C processor + Esprit

BWP?) Then toggle the microphone ON (the M symbol will appear on the

screen) and then press on the - key so that the sound bubble gets

smaller and you can hear yourself speak and the BWP will block out the

background and noisy noises and allow you to hear yourself speak. I

hope this is easy to follow... anyone else is welcome to jump into

here and explain this better than I could. :)

who is always on A and M +/- depending on situations

On Fri, 21 Jan 2005 02:44:24 -0000, lesdeb18 <debmitnick@...> wrote:

>

>

> Hi Everybody

> So sorry that i havent had any chance to say hello to u guys for a

> while. congratulations on your hookup and with your positive

> attiude You will do great with the cochlear implant. as you know that

> I had few mappings and yes i am hearing all these new noises that i

> never heard with hearing aid which is great and interesting But the

> problem is when my kids are in the house, ( five of them ) and the

> oldest one is away at college, its a very noisy enviornment i barely

> hear myself at all so without knowing i speak very loud and the kids

> ask me Mommy what happended to you ?? why are u talking soo loud ??

> etc.. in the mall i barely hear myself but when i walk into the store

> i hear the beats from music. does this make any sense?? i am in the

> mall or any public place i cant tell when i am talking too loud or

> not.. while driving the car kids put on music i hear it but i cant

> hear myself so again i am talking too loud ?? i am extrmely

> uncomfortable in public and noisy enviorments but in quiet

> background i can hear my kids phone vibrating , in airport i heard

> buzzy noise i asked my kids what was that they were shocked that i

> was able to hear that buzzing sounds so far and i cant even hear

> myself or other people talking . everyday theres a new noise that i

> discover which is fantastic but i dont like that i cant hear myself.

> I called audiolgoist and complained to him> he tried to convince that

> its normal but i convinced him to see me tom morning for another

> mapping or maybe he wants to explain to me that this is normal who

> knows?????

>

> to a mother who wrote about her child that was implanted a few days

> ago and that her child does something with her eye while wearing an

> implant i did the same thing it was so overwhelming at the begning

> bec i ccouldnt hear anything but at the same time all the high

> frequencies were soo loud like plastic bags rustling, water running,

> etc... and also when i put the implant it was painful at first but

> now when i put the implant its not painful so i guess the child would

> have to get used to it..

>

> I hope i mmade any sense .........

>

>

>

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