Guest guest Posted April 3, 2000 Report Share Posted April 3, 2000 Hi Diane, and welcome to this great family. I'm 'the other ', 2. How confusing is that? My twins are boy/girl, Brett (ds) and ...just turned 3 March 13th. My is definitely the dominant one, a pint-sized little tyrant sometimes. Brett is sooo tolerant ...but he has learned to retaliate in the most creative ways. (Waiting for Em to lose interest in a toy she has taken away from him, then oh so carefully reclaiming the prize.) Brett falls into the finicky eater category...his diet is very close to several others I've seen posted. I hide his multivitamin in morning oatmeal/milk with banana and honey or a touch of brown sugar. Yogurt is his favorite (second only to ice cream). I'm trying to introduce more veggies, but weight is certainly not a problem. He's strong as an ox. His vocabulary is under 50 words(dad, nonny--for mom, juice, all done, yes, up, down, please, more, etc), yet I know his comprehension is pretty good. He uses several signs, but seems irritated that we try to encourage signs over words at times. He is an absolute love, but also willful and sometimes demanding. No where close to the intensity of , however. She is the master of manipulation. My two older children are my lifesavers. They are 13 and 11 and great sports about pitching in when they see a need (always!). Everyone's been match-making with their kids here...so I think we need to start thinking about my Brett and your 's future...now that could be confusing! So glad you're here to share. I couldn't believe my luck when I stumbled upon this egroup at onelist. I live in Oregon, so we're not too far apart. 2 Re: My Introduction > Hi Diane and welcome to your whole clan. I am 1 (theres two of us) > and I have twins Rudy (ds) & 13, & TJ 16 (soon to be 40!). There > are wonderful people here that will uplift and encourage you and have really > broad shoulders to cry on. Great sounding boards too!!!! lol > 1 > > > http://DSyndrome.com/Multiples > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2000 Report Share Posted April 4, 2000 Welcome Diane! This list is great place to find information,love and support. My name is and I have 22 month old {23 months in 2 days} boy/girl twins. (DS) and Sloan Isis. I also thought when I found out that Vinnie had DS that there was no one else like me out there.I had heard of a set of twins in our area,but I couldn't find them. I found too through a bulletin board and then the list started and then the club.I never imaged that there was SO many of us! Vinnie and Sloan were born a month early.Vinnie's only medical problem was duodenal astersia (narrowing of small intestines) he had surgery when he was less than 24 hours old.Sloan came home at 11 days and Vinnie at 3 weeks.They stay home with my husband ,during the day when I work and works at night. I look forward to hearing more about you and your family.I'm also in the club. ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2000 Report Share Posted April 4, 2000 Hi Gail, I am struggling with the room thing too. and are still in the same room, although their sleep patterns are different. sometimes screams in the middle of the night and I literally have to crawl into the room to get him out so won't wake up and see me. Oh the things we have to do. I want to put and Adam together, but my husband doesn't think that is a good idea quite yet. I might wait until turns four and then move the boys into the big room and into her own room. We'll see! and are just starting to play together more. basically tells everyone that he is a big boy and is a " baby " . When Adam is not in the picture the twins get along great. does however tease without mercy. Because is so highly sensitive she just has to barely touch his hair and he freaks out. is 's number one protector. He carries her backpack to school and the pre school teachers tell me that he also helps her off with her coat. I am trying to convince that needs to take care of herself, but he just reminds me that she is a " baby " , until she pulls his hair then she is " bad Emmi " . Diane mom to Adam 8 and (ds) 3 1/2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2000 Report Share Posted April 5, 2000 Welcome Diane, I am mom to 6 1/2(DS) and Dayton 22months (DS). Hope you enjoy the list as much as I do. ----------------------------------------------------- Click here for Free Video!! http://www.gohip.com/freevideo/ My Introduction >Hi my name is Diane and I have three wonderful children, Adam 8 and >boy/girl twins and (DS). The twins are 3 1/2. I am so >excited that I happened upon the Multiples with Down Syndrome Club on >. I have emailed H. several times and am finally getting >around to introducing myself to everyone. It is so wonderful to know >that there are so many sets of multiples out there where one or more >has Down Syndrome. When and were born I thought that no >one else could possibly be going through this. Now I know better. > > and are doing great. They were two months early and had >alot of health problems in the beginning. had open heart >surgery when she was only 3 months old and only a mere 6lbs. She has >done remarkable. She is still a little peanut at 3 1/2 she has just >hit 24lbs. Her twin is a wild man. He is your typical boy. The >twins are both enrolled in the development preschool in our school >district. is a little delayed on his speech, more than likely >due to his prematurity. He also is very sensitive to his environment. >I have to admit that my " typical " (not a word a particularly like) >twin is a little harder to handle than his sister! And now a word >about big brother Adam. He is the best. He loves his brother and >sister and is very patient with them, which is alot to ask of an 8 >year old. Oh and I forgot to mention I have a fantastic husband, >Fred ( a name you can't forget!). loves her daddy, I am >basically chopped liver to her. > >I look forward to meeting all of you. I have seen several pic's on >the site. All of the kids are so CUTE. I hope to have pic's of my >clan posted soon. > >Diane > >P.S. Kim, Mom to Abby and . I live in Snohomish, we talked >about 3 years ago right after your twins were born! > > > > > >http://DSyndrome.com/Multiples > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2000 Report Share Posted April 12, 2000 Diane-Welcome to the group. I have three children-- (7) and and Alyssa(DS) who are almost 14 months. I have just recently joined this site but have enjoyed reading the e-mails that have been sent and find the support and information irreplacable! Fran Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2000 Report Share Posted July 22, 2000 Can you explain a little more about the traction affect on the nerves as the neurosurgeon might have described? C.P. On Sat, 22 Jul 2000 16:29:42 -0300, Scoliosis Treatmentegroups wrote: > a neurosurgeon has indicated that I still have quite a bit of curvature left and this may be causing a traction effect on the > nerves. > > Leger > > _______________________________________________________ Say Bye to Slow Internet! http://www.home.com/xinbox/signup.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2000 Report Share Posted July 23, 2000 My neurosurgeon describe the effect like this. He said that due to the curvature, which he considered still very significant, the nerves on the opposite side of the curve are held stretched slightly and held tight like guitar strings rather that in a normal relax state. Any movement on that area will aggravate the nerves like the strumming on the strings. It seems to be a reasonable explaination as I have pain in this area which cannot be explained otherwise. My orthopaedic surgeon calls the pain bizarre. However nothing shows on x-rays for this area yet if I use my left arm too much or move it the wrong way I have severe pain there. However using my right arm does not seem to aggravate it at all. He wasn't certain about it but he did say that this was likely what was happening. He felt that due to the still large curvature that nothing could be done to stop the pain. > Can you explain a little more about the traction affect on the nerves as the > neurosurgeon might have described? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2000 Report Share Posted July 23, 2000 Hi Carol/, was also told her leg pain was caused by the tightening of the nerves over the apex of her lumbar curve. It's was about 56 deg. before surgery. The nerves are not made to stretch and in fact they don't. So when they get tight you get varied symptoms of pain, tingling, pressure, etc. After surgery, 's leg pain went away and she could walk normally. Too bad she got an infection in the lumbar incision and had to undergo another surgery to clean things out. Her upper hooks had also pulled loose from T3 so they were cut off during the infection surgery. Last April she had another surgery to add and extension to C6 and correct a high thoracic hump. She is now fused from S1 to C6. is now recovering slowly from the extension surgery and having difficulty with pain control. Her Trapezoids are in chronic spasm and are not responding to Neurontin, flexural, Norco, Dilaudid, vallium, or Zoloft. She finally had an appointment with a pain clinic at Stanford Hospital and will be switching to Oxycontin and Percoset. She's been on norco and dilaudid for over a year and we suspect she has grown tolerant of them. We are happy to answer questions and tell you more of our story. Warm regards, n Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2000 Report Share Posted July 23, 2000 I was told that narcotics used in chronic pain management do not cause toleration or addiction in most people. I am not sure if this is true or not however I think that in my case I have not built up a tolerance yet to MS Contin. In fact I think it provides the same level of pain management as it did about the same as a year and a half ago. Since I forget to take it once in a while I do notice that I have slight withdrawal from it but nothing really severe. Mind you I have never just quit it for a few days though. One interesting problem is that I take a higher dose at night than in the morning. I find that I have a lot of sweating and shaking about 2 hour before my next evening dose. A few people have commented that I look pale and not well. However it passes quickly and I am back to normal when I take the evening dose so perhaps I do have a slight physical addiction to it. I guess it depends on the person. While MS Contin helps a lot I do get break through pain. I also notice that if I forget to take it I more readily cause an inflamation problem more easily. I think that the MS Contin probably relaxes the muscles. Without it I get plenty of physical reminders that I have forgotten it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2000 Report Share Posted July 24, 2000 HI, I was on MS Contin for six months and while I certainly was not addicted to it, there as a tolerance so that when I came off of it, I had to do it slowly, which was no big deal. At the end, when I gave up the lowest dose, I then had mild flu-like symptoms for about four days. That was a mild price to pay for months of adequate pain relief. Also, when I went from 4 Neurontin doses per day to 3, I got dizzy every time I arose from a lying down position, for about a week. Again, no big deal. Bonnie Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2000 Report Share Posted July 26, 2000 Has your hip been hurting since the original surgery? I had no pain in mine (they took bone from one of them, I think, my parents don't remember) until this last year (30-some years later) but I assumed it was from the pressure and strain of the inflexible spine. (My muscles on both sides of my lower back frequently go into spasms, and hurt a lot.) NB Scoliosis Treatmentegroups wrote: > Hello everyone. First of all let me say I have renewed faith in the progress of scoliosis treatment since finding this board. Everyones support here has been an undescribeable blessing. I had my first surgery in 1977 at the age of 13 for an S curve. The surgery was posterior and they installed a Harrington Rod. 6 months after the final cast came off, the rod broke due to a psuedoarthrosis in the lower fusion. 6 years later I had the rod replaced and the psuedoarthrosis fixed. As most of you who had the surgery know, the pain from the bone graft taken from the hip is more painful than the scoliosis every was...now you would have hoped that during the second surgery they would use the same hip...no such luck...the went ahead and ruined the other one. My hips are generally the major source of my ongoing pain right now. Additionally, I have extreme pain in my lower back right along my spine which I'm finding out has to do with the one last good, unfused, disc I have. I am seeing a revision surgeon, Dr. Akbarnia, in San Diego in a few weeks and I look forward to sharing my findings with people I know understand! --------------------------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2000 Report Share Posted July 26, 2000 First of, let me say that since I haven't had an official diagnosis on what is causing the pain, I can only speculate. Much of what I have read on this board has helped me at least narrow it down. The sources of my pain are narrowed to the following (based on opinions from various doctors): 1. The bone grafts weakened the area that is expanded during child birth. Although I had absolutely no pain during pregnancy, the birthing process caused irreparable damage to that area which could be the cause of some pain. In hind site, I should have had cesarean births. 2. I was not properly educated on the fact that since I only had one, un-fused, lumbar disc remaining, I should be " kind " to it. After much coaxing, I finally got a doctor to okay an MRI, but the rod made it impossible to get any significant readings. 3. There has been some speculation that nerve endings are being aggravated in the build up of scar tissue (this being the reason it took so many years for the pain to develop). Either way, exploratory surgery may be the logical next step since no one is comfortable enough to give a definitive diagnosis. Re: My introduction Has your hip been hurting since the original surgery? I had no pain in mine (they took bone from one of them, I think, my parents don't remember) until this last year (30-some years later) but I assumed it was from the pressure and strain of the inflexible spine. (My muscles on both sides of my lower back frequently go into spasms, and hurt a lot.) NB Scoliosis Treatmentegroups wrote: > Hello everyone. First of all let me say I have renewed faith in the progress of scoliosis treatment since finding this board. Everyones support here has been an undescribeable blessing. I had my first surgery in 1977 at the age of 13 for an S curve. The surgery was posterior and they installed a Harrington Rod. 6 months after the final cast came off, the rod broke due to a psuedoarthrosis in the lower fusion. 6 years later I had the rod replaced and the psuedoarthrosis fixed. As most of you who had the surgery know, the pain from the bone graft taken from the hip is more painful than the scoliosis every was...now you would have hoped that during the second surgery they would use the same hip...no such luck...the went ahead and ruined the other one. My hips are generally the major source of my ongoing pain right now. Additionally, I have extreme pain in my lower back right along my spine which I'm finding out has to do with the one last good, unfused, disc I have. I am seeing a revision surgeon, Dr. Akbarnia, in San Diego in a few weeks and I look forward to sharing my findings with people I know understand! --------------------------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2000 Report Share Posted July 26, 2000 Interesting. I had terrible back labor pains when I lost a baby at 6 mos. With my son, I had to stay in bed for 6 months (cervix problems), then had a cesarean (which was wonderful--no pain, they put me out, you wake up and there's the baby, safe and sound! So much for " natural childbirth " !) One of my doctors felt the time in bed weakened things. Probably they will not no until they do an MRI or surgery. NB Scoliosis Treatmentegroups wrote: > 1. The bone grafts weakened the area that is expanded during child birth. Although I had absolutely no pain during pregnancy, the birthing process caused irreparable damage to that area which could be the cause of some pain. In hind site, I should have had cesarean births. 2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2000 Report Share Posted August 5, 2000 ----- Original Message ----- From: <babydue99@...> I still have to reasearch the actual measles and mumps > diseases before I make up my mind. I would appreciate any links on these > diseases. http://www.whaleto.freeserve.co.uk/vaccines/measles.html http://www.whaleto.freeserve.co.uk/vaccines/mumps.html > I have decided he is not getting that last HIB because all I have > heard about the majority of kids that get it, get it before age one. Does > anyone have any links about the above statement? I would like to show them to > dh. I look forward to getting to know you all! http://www.whaleto.freeserve.co.uk/vaccines/hib.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2000 Report Share Posted August 17, 2000 Hi, My name is Sandi Ranallo. I have been a lurker for quite a while on the scoliosis group. When I joined egroups, I decided to tell my story. I was diagnosed with scoliosis in my early twenties. I am now 56 years old. I had my first surgery in Jul 1998. I was fused from S1-T3 with (I am not sure what kind of rods). After about 7 months, my top hooks pulled loose and I had to have surgery again in Feb 99. I was then fused to C-6. Like , my trapezoids are in spasm alot. I don't have alot of pain, but my back feels very heavy. Dr. is Shelokov in Plano, TX, performed my surgery. I know I should exercise more than I do, but it is so hard after working all day as a Medical Records Technician. I am thinking of investing in a spa. Does anyone have one, and does it help? Thanks, Sandi R. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2000 Report Share Posted August 18, 2000 Sandi, I've used one a health clubs for years, and I'm having one put in my backyard the end of this month. It helps a lot! Has anyone bought one, and tried to take it off on taxes? I've heard you used to be able to take it off as a medical expense, but that the IRS is stricter now. My house already had one of those Sauna units in one of my bathrooms, and I bought one of those whirlpool units for my bathtub, but neither one helped as much as the jacuzzi at my health club. NB Scoliosis Treatmentegroups wrote: > I am thinking of investing in a spa. Does anyone have one, and does it help? Thanks, Sandi R. --------------------------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2000 Report Share Posted August 19, 2000 I know a friend that put in a pool and took it off their taxes. My daughter-in-law is an accountant, and she says you can. > > I am thinking of investing in > a > spa. Does anyone have one, and does it help? > > Thanks, > > Sandi R. > > > > > > --------------------------------------------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2000 Report Share Posted August 22, 2000 Hi, I had a jacuzzi spa put right outside my family room about 7 years ago. It really helps. I use it every night to help loosen my muscles and help me sleep. It is worth every penny as I find " heat " the best for me. I only use one side--and I start with neck jets and move over the the lounge and back to get as much of my body as possible. I do not stay in very long since I prefer to keep it very hot--about 107 degreees. diane popiuk lazyr@... wrote: > > Hi, > > My name is Sandi Ranallo. I have been a lurker for quite a while on > the scoliosis group. When I joined egroups, I decided to tell my > story. I was diagnosed with scoliosis in my early twenties. I am > now 56 years old. I had my first surgery in Jul 1998. I was fused > from S1-T3 with (I am not sure what kind of rods). After about 7 > months, my top hooks pulled loose and I had to have surgery again in > Feb 99. I was then fused to C-6. Like , my trapezoids are in > spasm alot. I don't have alot of pain, but my back feels very heavy. > Dr. is Shelokov in Plano, TX, performed my surgery. I know I > should exercise more than I do, but it is so hard after working all > day as a Medical Records Technician. I am thinking of investing in > a > spa. Does anyone have one, and does it help? > > Thanks, > > Sandi R. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2000 Report Share Posted August 22, 2000 Hi, I just replied to Sandy but to add to your comment... In Canada, I was able to write approximately 15% off with a doctor's note--not much, but at least something. Also, I originally put in a regular size jacuzzi bathtub--but it just didn't work--the jets are not in the right positions. The one I have now probably sits 4-5, but it's mine--not a toy and I keep it hotter than anyone else cares for--as I said I just use one side so that the lid does not have to be lifted on and off. diane p wrdtech@... wrote: > > Sandi, I've used one a health clubs for years, and I'm having > one put in my backyard the end of this month. It helps a lot! > > Has anyone bought one, and tried to take it off on taxes? > > I've heard you used to be able to take it off as a medical > expense, but that the IRS is stricter now. > > My house already had one of those Sauna units in one of my > bathrooms, and I bought one of those whirlpool units for my > bathtub, but neither one helped as much as the jacuzzi at > my health club. > > NB > Scoliosis Treatmentegroups wrote: > > I am thinking of investing in > a > spa. Does anyone have one, and does it help? > > Thanks, > > Sandi R. > > --------------------------------------------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2000 Report Share Posted September 5, 2000 Hi Kristy Welcome to the list! I don't want to questioning the fact that the dr suggested surgery, but have you tried a second/third opinion? There are different approaches to scoliosis surgery and one of the latest trends is that they fuse only the major curve, and leave the compensating curve to correct itself over time. This is a major breakthrough, as it eliminates a long fusion in a lot of cases. The younger you are when you have this surgery, the better chance you have of a good outcome (of the compensating curve correcting itself). You are fortunate to have the major curve in the thoracic area, because virtually no movement (twisting/bending) takes place in this area. As soon as they fuse thoracic to lumbar (when the fusion extends over T12-L1), you will not be allowed to twist or bend for some time after surgery (this is regardless of how many vertebrae they fuse). The more lumbar vertebrae they fuse, the more of our bending and twisting function we loose. If only part of the lumbar spine is fused, you will get some back. But if I were you, I would definitely try to find someone who are willing to evaluate me and see if it isn't possible to fuse only part of the scoliosis (thoracic). I know it is a big surgery and we sometimes feel we just want to get it over and done with. But I truly believe it's worth trying half a fusion and adding later, than having a long fusion and wondering if the " partly fused scoliosis " might have worked. Being young you should try and " save " those lumbar disks and vertebrae as long as possible, as they are the main weight carriers and shock absorbers of your body. Once they are fused, the impact moves from there to the Sacro Iliac joints, hips, knees and feet. I don't mean to scare you, just trying to encourage you to seek a second opinion and to look into the latest methods. You can look for a Scoliosis Research Society dr in Australia here: http://www.srs.org/htm/mbrlst/intnlmbrlst.htm These are drs with a special interest in scoliosis. I am not a member and am not paid to " advertise " them. It's just one place to start when you are looking for someone with a special interest in Scoliosis, and the experience and expertise in Scoliosis surgery that you would want for your surgeon. What I have done in the past, is I have sent my x-rays by mail and got a second opinion that way. Just a thought...Good luck with your upcoming surgery- Take care Sanette ______________________________________________ FREE Personalized Email at Mail.com Sign up at http://www.mail.com/?sr=signup Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2000 Report Share Posted September 5, 2000 Hi Sanette... Actually, the technique of fusing only the major curve has been around for quite a while. Unfortunately, at least until now, I believe there is no way of predicting which of the patients will have their compensatory curve(s) self correct. And, if the compensatory curve does not self correct, the patient is usually left with an unbalanced spine. My surgeon offered the option of fusing only the major curve, and risking an unbalanced spine and additional surgery, or fusing both curves in the initial surgery. Since I didn't want to take the risk of having additional surgery at that time, I chose to have him fuse both curves. I believe you're absolutely correct in that longer fusions are much tougher on the patient than shorter ones. You have a good argument for opting for fusion of only the major curve. If I were to do it over again, I MIGHT rethink my decision. As we've all said so many times, we're all very different, and can only know what's right for each of us. Regards, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 , Thank you for writing your scoliosis story - I was wondering what your 'gray area' curve was when you all decided to wait on having surgery - my son has a 40 degree thoracolumbar curve - he is 15 and in the bracing stage of treatment - he just couldn't wear a TLSO to school and is now in a Providence nighttinme bending brace - I just wonder what the inevitibility of surgery is for him which is why I wondered what your curves were when you made the not-now surgery decision. thank you for your response, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2000 Report Share Posted October 5, 2000 Hi! Well, I've been living in Alaska for 3 years. I'm right near Anchorage, so it's not COMPLETELY barbaric. It's better to just visit, though. Dee >From: TABco <tabco@...> >Reply-egroups >egroups >Subject: Re: My introduction >Date: Thu, 05 Oct 2000 18:15:42 -0400 > >At 12:33 PM 10/5/2000 +0000, you wrote: > >First let me say that I'm new to this egroup thing, so I hope I'm not > >breaking any rules or traditions, I just wanted to introduce myself. My > >name is Dee, I currently live in Alaska, but am from New England. I'm >26, > >and Married, no kids. > >Hi Dee, > Welcome to the list. We're glad to have you join. I've always >dreamed of going to Alaska. Someday, I hope to get there, even if it's >just for a vacation. Such a beautiful place. > > > I read the description and some of the archives for > >this group, and it looks like a great bunch of people, dealing with >really > >hard issues but supporting each other. Just what I have been looking >for. > > This group is great. Sure we have our ups and downs, but we're all >here to help each other. > > > Worse that that, though, is the loneliness of living > >way up here with very few friends, and certainly no one who understands >my > >health issues. > > How long have you been in Alaska? > > >Thank the powers above for the Internet, even up here in the > >Boonies! Okay, that's enough about me, just wanted to say hi, and I'm >glad > >I found you all. > > We're glad you found us. > >Take Care, (and warm) > >E-Mail: mailto:tabco@... >Web Page: http://www.bee.net/tabco/ >Net Pager: http://wwp.mirabilis.com/3106983 >ICQ # 3106983 > > >The Being Sick Community > >Visual problems with colors? >Click the link below and select the modify link to your right. Then select >the **Send Plain Text Email** option. This will stop you receiving emails >with colored or enlarged fonts. > > >Members Lounge:- >Photo Album, memorial page, members profiles, birthdays, locations, medical >resources, counselling via email, and a whole bunch of free things. >http://www.elderwyn.com/members > >Message Archives and Digest Attachment Pictures:- >messages/ > >Chat:- >Scheduled Daily Chats at # on IRC DALnet. >chat.html > >Sharing our resources:- >Add a website URL you have found useful. > > >Personal Complaints or problems:- >Please contact a moderator should you require assistance with anything >technical or if you are upset by another. The email address for the >moderators is <-owneregroups> > >Subscription Details:- >1) Individual email - means that every email sent to the list you receive. >2) Daily Digest - sends you 25 messages in one single email for you to >browse. This is an excellent option if you receive alot of email. >3) Web only/No mail - means that you can pop into eGroups at your >convenience and receive no email. >To modify your subscription settings please visit >mygroups > >To subscribe or unsubscribe >subscribe/ > >~~~~~~~~~~~~~~~ > >“Hold on to what is good, even if it's a handful of earth. Hold on to what >you believe, even if it's a tree that stands by itself. Hold on to what you >must do even, if it's a long way from here. Hold on to your life, even if >it's easier to let go. " - Pueblo Prayer > _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2000 Report Share Posted October 5, 2000 HA! Don't move here, it's all a big snowy trap, that you can never escape from! But seriously, it's nice here, just lonely. Better to visit than live here. But I'm close to a " major " city, so it's not too bad. Glad to find other people my age here, though. I see there's lots of lively discussions going on. And how come you smiled after saying no kids? Afraid of them? hehe Dee >From: " Sprague " <mydragon@...> >Reply-egroups ><egroups> >Subject: Re: My introduction >Date: Thu, 5 Oct 2000 17:15:18 -0400 > >HEHE Welcome Dee! >Its funny that you should arrive on the list at exactally the same time my >hubby and i had been talking about moving to alaska. ( we decided no cause >of family) we also live in New England. >I am 25 married and no kids. >SO welcome! >Melinda > My introduction > > >Hello all, >First let me say that I'm new to this egroup thing, so I hope I'm not >breaking any rules or traditions, I just wanted to introduce myself. My >name is Dee, I currently live in Alaska, but am from New England. I'm 26, >and Married, no kids. I read the description and some of the archives for >this group, and it looks like a great bunch of people, dealing with really >hard issues but supporting each other. Just what I have been looking for. > >I have been a victim of depression ( my shrink calls it Subversive >Depression) and CFS, as well as some back troubles ever since I was a >teenager. (I'm not a VICTIM of them any longer, but I still have them, >there's a differance). Worse that that, though, is the loneliness of >living >way up here with very few friends, and certainly no one who understands my >health issues. Thank the powers above for the Internet, even up here in >the >Boonies! Okay, that's enough about me, just wanted to say hi, and I'm >glad >I found you all. > >Dee >_________________________________________________________________________ >Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. > >Share information about yourself, create your own public profile at >http://profiles.msn.com. > > >The Being Sick Community > >Visual problems with colors? >Click the link below and select the modify link to your right. Then select >the **Send Plain Text Email** option. This will stop you receiving emails >with colored or enlarged fonts. > > >Members Lounge:- >Photo Album, memorial page, members profiles, birthdays, locations, medical >resources, counselling via email, and a whole bunch of free things. >http://www.elderwyn.com/members > >Message Archives and Digest Attachment Pictures:- >messages/ > >Chat:- >Scheduled Daily Chats at # on IRC DALnet. >chat.html > >Sharing our resources:- >Add a website URL you have found useful. > > >Personal Complaints or problems:- >Please contact a moderator should you require assistance with anything >technical or if you are upset by another. The email address for the >moderators is <-owneregroups> > >Subscription Details:- >1) Individual email - means that every email sent to the list you receive. >2) Daily Digest - sends you 25 messages in one single email for you to >browse. This is an excellent option if you receive alot of email. >3) Web only/No mail - means that you can pop into eGroups at your >convenience and receive no email. >To modify your subscription settings please visit >mygroups > >To subscribe or unsubscribe >subscribe/ > >~~~~~~~~~~~~~~~ > >“Hold on to what is good, even if it's a handful of earth. Hold on to what >you believe, even if it's a tree that stands by itself. Hold on to what you >must do even, if it's a long way from here. Hold on to your life, even if >it's easier to let go. " - Pueblo Prayer > > > > >The Being Sick Community > >Visual problems with colors? >Click the link below and select the modify link to your right. Then select >the **Send Plain Text Email** option. This will stop you receiving emails >with colored or enlarged fonts. > > >Members Lounge:- >Photo Album, memorial page, members profiles, birthdays, locations, medical >resources, counselling via email, and a whole bunch of free things. >http://www.elderwyn.com/members > >Message Archives and Digest Attachment Pictures:- >messages/ > >Chat:- >Scheduled Daily Chats at # on IRC DALnet. >chat.html > >Sharing our resources:- >Add a website URL you have found useful. > > >Personal Complaints or problems:- >Please contact a moderator should you require assistance with anything >technical or if you are upset by another. The email address for the >moderators is <-owneregroups> > >Subscription Details:- >1) Individual email - means that every email sent to the list you receive. >2) Daily Digest - sends you 25 messages in one single email for you to >browse. This is an excellent option if you receive alot of email. >3) Web only/No mail - means that you can pop into eGroups at your >convenience and receive no email. >To modify your subscription settings please visit >mygroups > >To subscribe or unsubscribe >subscribe/ > >~~~~~~~~~~~~~~~ > >“Hold on to what is good, even if it's a handful of earth. Hold on to what >you believe, even if it's a tree that stands by itself. Hold on to what you >must do even, if it's a long way from here. Hold on to your life, even if >it's easier to let go. " - Pueblo Prayer > _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2000 Report Share Posted October 5, 2000 HEHE Welcome Dee! Its funny that you should arrive on the list at exactally the same time my hubby and i had been talking about moving to alaska. ( we decided no cause of family) we also live in New England. I am 25 married and no kids. SO welcome! Melinda My introduction Hello all, First let me say that I'm new to this egroup thing, so I hope I'm not breaking any rules or traditions, I just wanted to introduce myself. My name is Dee, I currently live in Alaska, but am from New England. I'm 26, and Married, no kids. I read the description and some of the archives for this group, and it looks like a great bunch of people, dealing with really hard issues but supporting each other. Just what I have been looking for. I have been a victim of depression ( my shrink calls it Subversive Depression) and CFS, as well as some back troubles ever since I was a teenager. (I'm not a VICTIM of them any longer, but I still have them, there's a differance). Worse that that, though, is the loneliness of living way up here with very few friends, and certainly no one who understands my health issues. Thank the powers above for the Internet, even up here in the Boonies! Okay, that's enough about me, just wanted to say hi, and I'm glad I found you all. Dee _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. The Being Sick Community Visual problems with colors? Click the link below and select the modify link to your right. Then select the **Send Plain Text Email** option. This will stop you receiving emails with colored or enlarged fonts. Members Lounge:- Photo Album, memorial page, members profiles, birthdays, locations, medical resources, counselling via email, and a whole bunch of free things. http://www.elderwyn.com/members Message Archives and Digest Attachment Pictures:- messages/ Chat:- Scheduled Daily Chats at # on IRC DALnet. chat.html Sharing our resources:- Add a website URL you have found useful. Personal Complaints or problems:- Please contact a moderator should you require assistance with anything technical or if you are upset by another. The email address for the moderators is <-owneregroups> Subscription Details:- 1) Individual email - means that every email sent to the list you receive. 2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email. 3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email. To modify your subscription settings please visit mygroups To subscribe or unsubscribe subscribe/ ~~~~~~~~~~~~~~~ “Hold on to what is good, even if it's a handful of earth. Hold on to what you believe, even if it's a tree that stands by itself. Hold on to what you must do even, if it's a long way from here. Hold on to your life, even if it's easier to let go. " - Pueblo Prayer Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.