New here

[Guest guest]

www.foodforyourblood.com ( Dekany's site)

Robin asked:

> Speaking of husbands, mine is interested in trying the diet but doesn't

know

> his blood type. Does anyone know if there is a place online where we can

> order one?

> Thanks,

> Robin

[Guest guest]

> Have you also done some anti-yeast treatment?

> Acidophilus?

> Trace Minerals?

> These should improve you benefits even more.

> KM

A couple of years ago when I was only on the Yeast Connection diet, I tried

supplementing with Acidophilus, but it gave me migraine headaches and

stomach cramps. I should give it a try again. I wonder if it was die off

symptoms or too strong a dose?

I'm not sure what Trace Minerals are.

I take: calcium, magnesium, Kelp, Co-Enzyme Q 10 (which has stopped my MVP

heart from palpitating!), Vit C, Vit B complex, and iron.

Robin

[Guest guest]

Thanks for the info. I will start the Acidophilus again and slowly. What do

the Ionic or Colloidal trace minerals do? I'm going to Wild Oats today and

will look for them.

Robin

> I would try the anti-yeast again but definately build

> up slowly. Show not have as much trouble after being

> on O type diet.

> Ionic or Colloidal trace minerals. Most health food

> stores have them. They come in liquid form.

> KM

>

[Guest guest]

Hi :

Get Greg to write you his experiences. He just got hooked up last week and

his age and situation sounds like your husband's.

Hal

[Guest guest]

Hi ,

We certainly welcome you and your husband to CI Hear.

Please feel free to ask all the questions that come to

mind and you will find that you have just become

aquainted with a wonderful group of individuals who

will provide you with all the support you are seeking.

Nice to have you here.

Alice

--- Blalock <catb84@...> wrote:

> Hello,

>

> My name is and my husband is looking into CI.

> He has had HA

> since he was 6 (26years) and has gradually lost most

> of his hearing.

> He still has about 10% in each ear, but his

> conversational clarity is

> really bad unless he can lip read. His ENT said he

> is a good

> candidate, but he wants to get as much information

> as possible before

> making a choice. He was told he'd be totally deaf if

> the surgery

> fails. I hope we can learn a lot from this group.

>

>

>

>

>

[Guest guest]

Hi Alice,

Thank you for the warm welcome. Can you recommend the best place to

start getting information? He looked at a few sites but they seemed

more geared towards children than adults.

Thanks,

[Guest guest]

,

There are a lot of good resources for researching

cochlear implants. We have an excellent section of

links here and I would suggest that he start there.

Then ask questions here on the list, directly to the

implant companies who will supply you with videos and

reading materials which will be very helpful in

learning about the implant. The links to the implant

companies are included here at CI Hear. Go to:

/links

If he has chosen an implant center, ask questions

there and also ask them to bring in people who have

been implanted and would be willing to talk to him.

There is an organization called CIAI with chapters in

several states. I don't know where you live but you

can find out if there's a chapter near you by going to

http://www.cici.org

Another organization to check out is

http://www.shhh.org

as there is useful information about cochlear implants

there as well and chapters everywhere. SHHH will be

holding their national convention in Atlanta in June

and the featured speaker is Whitestone who was

the only Miss America that was deaf and has had a

cochlear implant in the last year.

Don't be shy here. We are ready, willing and able to

help. Just let us know what you want to find out.

Alice

[Guest guest]

Hi ,

I wear the Nucleus 24 Contour and getting this implant was the best

decision I ever made. I could barely discriminate speech; I had lost my

high frequency hearing gradually from age 12 to 39. I never really knew

how much I depended on lip reading!

My hook-up was not fun because the sounds of the implant were

horrible and I couldn't understand speech at all. I have a journal to

share so let me know if you want to read it and I will send it

privately. I have been hooked up since October of 2000 and I hear a lot

of speech without lipreading, I go to movies, enjoy music, theater, and

can hear the birds in the tree every morning!!

I was first hooked up with the body worn processor (bwp). It hold

4 programs and you can try all the different speech strtegies that

Cochlear has to offer. I use ACE but there is also CIS and Speak. It

doesn't really matter which one you end up choosing, and you never know

which one your brain will like. It is not a large processor and I wore

mine in my bra (after I knew that I wouldn't have to push the buttons

anymore.) The bwp has extra software to use in noise such as

autosensitivity and ADRO. Autosens dampens all the background noise and

lets speech come through while ADRO dampens the lower pitches and raises

the higher pitches of speech all at the same time. Each works well in

different situations.

I now use the ear level processor called the 3G. It is barely

visible and you can use #675 hearing aid batteries. I can't even feel

it anymore! No wires, no worries. I get about 2 1/2 days with 3

batteries but many people get a lot longer battery life. I live in NYC

and work as a teacher so my days are so very noisy.

I hope this will help you and your husband with a beginning to this

fantastic journey!

Nuked 9/28/00

Hooked 10/26/00

[Guest guest]

I was born with hearing loss- profound and severe. I can hear low frequency,

but high frequency is on bottom of downslope of hearing chart. When I got

hook-up last Monday, the sounds are totally different. I was

easily startled by high frequency which I've never heard before and all the

sounds are monotone. Sounds are like " shock " from electrical pulses.

6 days later, I can tell some difference with frequencies. It is much harder

than I thought to hear the new sounds. My low frequency is still too soft and

high frequency are getting tolerable. I'm having speech therapy

tomorrow and hopefully it will help me a lot to understand the sounds.

With those new sounds, you may get some frustrated days and some " Hallmark "

moments, like I do.

It doesn't happens overnight, but it takes time. So you'll need a lot of

patience!

-gs

Greg Swager

Surgery 02/05/03

Entered noisy world 03/03/03

[Guest guest]

Hi ,

Welcome to ciHear. This is a great place to find a variety of answers

to all your questions.

My hearing loss was at 95% overall when I had my ci.. 2% left in one

ear and 3% left in the other. I gradually lost my hearing over a

course of about 25 years beginning when I was in my early 20's.

With a 90% hearing loss such as your husband has.. I don't personally

think he'd have a lot to lose.. I'd strongly bet that he reads more

lips than he realizes.. I know I did. to make a long story short, I

was implanted in October of 2001 along with my sister. Our activation

took place in November of 2001. My hearing is now just the opposite

that it was prior to getting my ci.. I now hear at 96% in quiet

settings and a bit lower in noise. To say this is the best decision I

ever made is an understatement. My sister also hears just as well as

I do. We both talk on the telephone again and in general have a whole

new life.

There's more to this story.. My mother was implanted 11 years ago and

she does quite well with her implant even with it being an older

model.

Last but not least, We have not 3 family members implanted, but 4. I

have an older sister who was implanted about 9 months ago.. she had

been profoundly deaf for 30 some years.. She now hears quite well,

and though not as well as I do, she is able to talk on the phone and

improves more and more as time goes on.

Your first step should be to make sure your husband qualifies for an

implant.. which by the sounds of things, he's had an evaluation. Is

this correct? This should be done by a certified audiologist who has

experience with cochlear implants.

I'm sure you'll have many questions, such as how does the implant

work for starters.

There is a wonderful animation and explanation on the website at

www.cochlear.com then click new to cochlear start here and go to

the links How does hearing work and what is a cochlear implant.

There are also two other websites with information about other

implants www.medel.com and www.bionicear.com

If that isn't the right address, I hope someone will correct it.

If you have any other questions, feel free to email me.. on the forum

or privately.

Wishing you and your husband much success as you investigate cochlear

implants and should he make the choice to be implanted that you'll

continue to share the journey with us here on ciHear.

Regards,

Silly in MI

N24C and 3G activated

Hereditary bilateral progressive nerve deafness

Volunteer Advocate

[Guest guest]

Thanks to all of you for your replies and warm welcome. I have

passed your messages on to to see where he wants to go from

here.

[Guest guest]

Hello ,

Welcome to the list! I'm sure you'll find lots of information here.

There are a lot of information to be digested, especially when there are

three devices to choose from. I highly recommend you and your husband

research all three. They are Advanced Bionics, Cochlear Americas, and

MED-EL Corporation. Their websites are www.bionicear.com

<http://www.bionicear.com/> , www.cochlear.com

<http://www.cochlear.com/> , and www.medel.com <http://www.medel.com/> ,

respectively. In addition to those three websites, talk with your

implant team and talk to as many people as you can with each device.

ASK, ASK, ASK questions like crazy.

I've been implanted with the MED-EL device since early 2000, and just

absolutely love it. If you and your husband have any questions with

regard to the MED-EL device, please do not hesitate to ask. I would be

more than happy to assist you guys.

Looking forward to hearing from you!

Best,

Andy

Andy

Organizational Coordinator,

MED-EL Corporation

New here

Hello,

My name is and my husband is looking into CI. He has had HA

since he was 6 (26years) and has gradually lost most of his hearing.

He still has about 10% in each ear, but his conversational clarity is

really bad unless he can lip read. His ENT said he is a good

candidate, but he wants to get as much information as possible before

making a choice. He was told he'd be totally deaf if the surgery

fails. I hope we can learn a lot from this group.

[Guest guest]

Hi, I don't know if you've tried to talk to the Dr. again and make sure that

you understood exactly what he was saying. If not, I would do that first and

make sure and question him about the 60 degree curve " in the report " . What

report are you talking about? If you are not 100% satiisfied with his

answers I would get a second, as a matter of fact I would get a second

opinion anyway because it sounds like you're not very comfortable with him

and that if SO important. Also make sure that whatever Dr. you go to

specializes in scoliosis, not just an ortho. surgeon.

Good luck and I hope whatever you find out eases your mind.

Debbie

>From: " BIGG_BUTT_ACHO " <trapper1128@...>

>Reply-Scoliosis Treatment

>Scoliosis Treatment

>Subject: new here

>Date: Sat, 28 Jun 2003 23:28:45 -0000

>

>Hello, I am 35 and had a anterior and posterior fussion in 1989 for

>thorasic scoliosis. They said the curve was about 48 degrees and

>only minimally corrected. I have been concerned that this is

>changing. The doctor said no but in the report stated that I have

>about a 60 degree scoliosis. These numbers confuse me, If it hasnt

>changed then how come the numbers differ? I am so stressed that I

>can die form this, can anyone offer me any suggestions?

>

>

_________________________________________________________________

MSN 8 with e-mail virus protection service: 2 months FREE*

http://join.msn.com/?page=features/virus

[Guest guest]

Hi Bigg Butt...

If you don't trust your surgeon, I think it would be a good idea to be

seen by another scoliosis specialist. You can find a list of them at:

http://www.srs.org/htm/mbrlst/mbrlst.htm

Regards,

[Guest guest]

> Hi Bigg Butt...

>

> If you don't trust your surgeon, I think it would be a good idea

to be

> seen by another scoliosis specialist. You can find a list of them

at:

>

> http://www.srs.org/htm/mbrlst/mbrlst.htm

>

> Regards,

>

>>Thanks, I am in the process of doing that right now, for my own

sanity!

Dianne

[Guest guest]

> Hi, I don't know if you've tried to talk to the Dr. again and make

sure that

> you understood exactly what he was saying. If not, I would do that

first and

> make sure and question him about the 60 degree curve " in the

report " . What

> report are you talking about? If you are not 100% satiisfied with

his

> answers I would get a second, as a matter of fact I would get a

second

> opinion anyway because it sounds like you're not very comfortable

with him

> and that if SO important. Also make sure that whatever Dr. you go

to

> specializes in scoliosis, not just an ortho. surgeon.

> Good luck and I hope whatever you find out eases your mind.

> Debbie

>>I have questioned him, and have not gotten any satified answer.

Ithe reports are his writen reports, I have gotten smarter and try

to make sure I get a copy of all my medical records. Thanks for your

help!!

>

>

> >From: " BIGG_BUTT_ACHO " <trapper1128@y...>

> >Reply-Scoliosis Treatment

> >Scoliosis Treatment

> >Subject: new here

> >Date: Sat, 28 Jun 2003 23:28:45 -0000

> >

> >Hello, I am 35 and had a anterior and posterior fussion in 1989

for

> >thorasic scoliosis. They said the curve was about 48 degrees and

> >only minimally corrected. I have been concerned that this is

> >changing. The doctor said no but in the report stated that I have

> >about a 60 degree scoliosis. These numbers confuse me, If it hasnt

> >changed then how come the numbers differ? I am so stressed that I

> >can die form this, can anyone offer me any suggestions?

> >

> >

>

> _________________________________________________________________

> MSN 8 with e-mail virus protection service: 2 months FREE*

> http://join.msn.com/?page=features/virus

[Guest guest]

Welcome to the group Kate.....

Sincerely,

Renonda

[Guest guest]

Steph,

Keep it up and you will never look back. This is a great group to learn from,

I learn every day. is a great inspiration. Your lucky that you are all

O's, makes it easier. I have been on it for 3 years and am 95% compliant and

have never felt better in my life. I have lots of energy and am on no

medication.

Regards,\

New Here

Hello all,

I am new to the group and also new to ER4YT. I am married to a

wonderful soldier who is currently deployed to Iraq and we have three

children. All of us are type O which is going to make this diet even

easier to follow. Currently, I am the only one following it. I want

to slowly transition my children since we used to rely heavily on

breads/grains/wheat in our diet. I don't want to " shock " them. LOL

I have read only the original book by D'adamo. It makes sense to me,

plus dh and I and our children are big meat eaters. LOL I have only

been on the diet for two days and already have more energy. I have

always felt " heavy " and tired, and since removing the wheat/breads

from my diet, I feel great. I can't wait to see what the results

will be like in the long haul. Well, I've babbled enough. I look

forward to learning from this group.

Steph

[Guest guest]

Hi, Steph!

Welcome to our group. Lucky you to have all Os to cook for! I have type O

and my husband has type A. I think you are wise to go slowly with your

children on a change of diet. They don't want to be too far ahead of their

dad when he gets home, anyway. ; )))))

I suggest you read " Live Right 4 Your Type " and the " ER4YT Complete Blood

Type Encyclopedia. " There have been some changes in the food lists since

ER4YT. You can keep up with those changes at Dr. D'Adamo's web site:

http://www.dadamo.com/

Feel free to ask your questions and share your answers and recipes with us.

Jane

Tucson, AZ USA

[Guest guest]

Thank you Jane, I didn't know there were changes. I'll have to go

get those books and read up.

Steph

There have been some changes in the food lists since

> ER4YT. You can keep up with those changes at Dr. D'Adamo's web

site:

>

> http://www.dadamo.com/

>

> Feel free to ask your questions and share your answers and recipes

with us.

>

> Jane

> Tucson, AZ USA

[Guest guest]

Hi Steph - just remember that I sell the books too.

http://foodforyourbloodn.goemerchant7.com

<http://foodforyourbloodn.goemerchant7.com/>

Re: New Here

Thank you Jane, I didn't know there were changes. I'll have to go

get those books and read up.

Steph

There have been some changes in the food lists since

> ER4YT. You can keep up with those changes at Dr. D'Adamo's web

site:

>

> http://www.dadamo.com/

>

> Feel free to ask your questions and share your answers and recipes

with us.

>

> Jane

> Tucson, AZ USA

[Guest guest]

Hi Jane and Steph,

I just wanted to welcome you to the group Steph and Jane I just want to add

that the individual foods are listed on TYPEbase3. Be sure to use your mouse

on the search key. Your enter key will not work there. There are some

interesting articles there also, by Heidi and Dr. Bron. Dr D'Adamo's older

ones are given along with an occasional newer on.

Re: New Here

> Hi, Steph!

>

> Welcome to our group. Lucky you to have all Os to cook for! I have type

O

> and my husband has type A. I think you are wise to go slowly with your

> children on a change of diet. They don't want to be too far ahead of

their

> dad when he gets home, anyway. ; )))))

>

> I suggest you read " Live Right 4 Your Type " and the " ER4YT Complete Blood

> Type Encyclopedia. " There have been some changes in the food lists since

> ER4YT. You can keep up with those changes at Dr. D'Adamo's web site:

>

> http://www.dadamo.com/

>

> Feel free to ask your questions and share your answers and recipes with

us.

>

> Jane

> Tucson, AZ USA

>

>

>

>

[Guest guest]

Donna

I would like to join you in welcoming Steph to the group. When a new

person joins we get the wonderful benefit of a reminder/review as

they ask questions. How lucky we are!! and they add new life to all

of us.

Would you be willing to share, either on the board if that is

acceptable, or by e-mail privately the ingredients you use for your

marinades and rubs, and how you use them. Sounds yummy!

Thanks

Toni

> Hi Steph, and welcome to our group. I have been on this list for

about 4

> years and it has been a lifesaver. Anytime I ask a question, I

receive a variety

> of helpful suggestions.

> I always look at the food lists closely when making a

> shopping list, to pick Beneficials and Neutrals that he likes, and

make

> extra-tasty foods and salads. Luckily, he likes barbecue and

salad, so I work a lot

> with that. I make my own dry rubs and marinades, as well as salad

dressings.

> Good luck, and let us know how your kids respond to your dietary

adjustments.

>

>

>

[Guest guest]

My son is 17 and was diagnosed with c-toma at 15 after many years of ear problems. I know how difficult this is for you in your high school years. I hope you have found an otologist for the surgery. I would be happy to answer any questions for you.

Wishing you the best of outcomes.

Audrey

[Guest guest]

Hello there " Kaylfu " ,

I am a parent to a 5 year old, who has just undergone his first

operation. No doubt you have been made aware of the 2 possible

procedures that can be performed; namely open or closed

mastoidectomy. It was a bit daunting not knowing until the surgeon

briefed us after the operation which method had been adopted.

As it turned out an open procedure was performed once the surgeon

realised that my son had " a nasty old C-toma " .

Like yourself, my son's C-toma was not picked up initially, but

thanks to the persistance and motherly insticts shown by my wife, we

persisted. Lo and behold our current surgeon picked it up and now a

few months later he has had the worst removed. It is hard not to

feel some frustration and even anger that this wasn't detected from

the start. However, this Yahpp group sure makes it clear that we are

not the only ones!!

I really trust that all will go well for you on the 8th. One

consolation is that the post-op discomfort doesn't seem too bad. My

son has come through his first week extremely well. As the surgeon

explained, there are no moving parts within the ear so the pain is

not over the top.

Good luck - I will try and remember to send up a small prayer for you

on the day!!

Catchya'

> Hello everyone, this is my first post here so I'd like to introduce

> myself. I am 16 years old and I was diagnosed with cholesteatoma in

> June, and my first sugery is booked for October 8th. I have had

> troubles with my ear for years, and it took many me many changes of

> doctors to find one that knew the problem. I even had minor

sugeries

> in the past and nothing helped, nothing was found. It made me

> somewhat angry that my previous doctors would just give me

> antibiotics and send me on my way, without examining the problem.

It

> took years to find a doctor that saw what was wrong. Hope it all

goes

> well.

> thanks for listening