Guest guest Posted September 28, 2003 Report Share Posted September 28, 2003 Hi, Your story sounds exactly like ours. Our son, was diagnosed with a cholestetoma at age 14 and is now 16. We too, went from doctor to doctor for years. Thankfully, you are now on the road to getting proper medical help. If you would like more info on 's experiences, just let us know. Hang in there, things will be fine! -----Original Message-----From: kaylfu [mailto:kaylfu@...]Sent: Sunday, September 28, 2003 10:25 AMcholesteatoma Subject: New hereHello everyone, this is my first post here so I'd like to introduce myself. I am 16 years old and I was diagnosed with cholesteatoma in June, and my first sugery is booked for October 8th. I have had troubles with my ear for years, and it took many me many changes of doctors to find one that knew the problem. I even had minor sugeries in the past and nothing helped, nothing was found. It made me somewhat angry that my previous doctors would just give me antibiotics and send me on my way, without examining the problem. It took years to find a doctor that saw what was wrong. Hope it all goes well.thanks for listening Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2003 Report Share Posted September 28, 2003 Dear and , I just want to say I am glad things are going good for you. I hope you are done with surgeries, I know that those were the things that scared me the most out of life. I had a total of four surgeries so far and thank God my doctor thinks I won't need anymore. I just pray and hope that this is true. Love in Christ, Chirron Ennik" A. Behr" <behr@...> wrote: Hi, Your story sounds exactly like ours. Our son, was diagnosed with a cholestetoma at age 14 and is now 16. We too, went from doctor to doctor for years. Thankfully, you are now on the road to getting proper medical help. If you would like more info on 's experiences, just let us know. Hang in there, things will be fine! -----Original Message-----From: kaylfu [mailto:kaylfu@...]Sent: Sunday, September 28, 2003 10:25 AMcholesteatoma Subject: New hereHello everyone, this is my first post here so I'd like to introduce myself. I am 16 years old and I was diagnosed with cholesteatoma in June, and my first sugery is booked for October 8th. I have had troubles with my ear for years, and it took many me many changes of doctors to find one that knew the problem. I even had minor sugeries in the past and nothing helped, nothing was found. It made me somewhat angry that my previous doctors would just give me antibiotics and send me on my way, without examining the problem. It took years to find a doctor that saw what was wrong. Hope it all goes well.thanks for listening Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2003 Report Share Posted September 29, 2003 Hi, Just to say - welcome to the group. It's a great place for info. I'm 36 and have my first c-toma surgery on Oct 9th. Like you minor surgeries over the last few years and preceding that years of doctors fobbing me off before I found a doc that would listen to me and refer me to an ENT doc. Hope all goes well. If you have any queries, post them here - no matter how insignificant they may seem. I found this site last Easter when I found out I had c-toma and the people here are brilliant. Some one has always answered my questions. Good luck with the surgery. ann.kaylfu <kaylfu@...> wrote: Hello everyone, this is my first post here so I'd like to introduce myself. I am 16 years old and I was diagnosed with cholesteatoma in June, and my first sugery is booked for October 8th. I have had troubles with my ear for years, and it took many me many changes of doctors to find one that knew the problem. I even had minor sugeries in the past and nothing helped, nothing was found. It made me somewhat angry that my previous doctors would just give me antibiotics and send me on my way, without examining the problem. It took years to find a doctor that saw what was wrong. Hope it all goes well.thanks for listening Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2003 Report Share Posted October 10, 2003 When my dr diagnosed me with depression, I had originally just wanted to find out if I had a thyroid problem. My mom has a thyroid problem and I had started to feel tired and fatuged all day long. I never felt lilke getting up and doing anything. All I wanted to do was nap. I also have 2 kids and this didn't start coming about until my second one was about a year old. So when I went in to have the blood work done to see if I had a thyroid problem and the blood work came back okay, the dr came to the conclusion that it could be depression and she asked me a few questions and concluded that it was definately depression. I started out on Wellbutrin and that worked for a while but I think I got immune to it or something so then my dr decided to try the Lexapro and it seems to be working great. The only problem is I still have problems sleeping. I went back to the dr today for my follow up and she prescribed me something to help me sleep. Hopefully that will help me some > I have psoriasis and was reading a psoriasis support board and was > really relating with how another writer felt that was diagnosed with > depression. I decided to see a Family physician and after crying to > her and telling her how I felt, she perscribed Lexapro. I am 24 > years old have 2 young daughters and it wasn't until my 2nd daughter > (who is now 10 mths) that I experienced post partum. I cried all the > time and was scared to be alone. That all subsided, but then I > started feeling depressed, fatigued, didn't want to do anything, just > felt really blah! I guess I would say that I have mild case of > depression. The only side effects that I have noticed with > Lexapro/depression is that I yawn a lot and low sex drive. My dr > also wants me to get blood test done for my TSH level to see if my > thyroid is causing these problems. > Glad to find this Lexapro group! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2003 Report Share Posted October 11, 2003 Hope the sleeping gets better for you. I don't go back to see my dr until the end of the month and she will have the blood test back then. I had by thyroid checked once, but that dr said the levels were not high enough to be alarmed. That was about 2 years ago. It could be worse now. Just a little time and patience. Glad to meet you! > When my dr diagnosed me with depression, I had originally just > wanted to find out if I had a thyroid problem. My mom has a thyroid > problem and I had started to feel tired and fatuged all day long. I > never felt lilke getting up and doing anything. All I wanted to do > was nap. I also have 2 kids and this didn't start coming about > until my second one was about a year old. So when I went in to have > the blood work done to see if I had a thyroid problem and the blood > work came back okay, the dr came to the conclusion that it could be > depression and she asked me a few questions and concluded that it > was definately depression. I started out on Wellbutrin and that > worked for a while but I think I got immune to it or something so > then my dr decided to try the Lexapro and it seems to be working > great. The only problem is I still have problems sleeping. I went > back to the dr today for my follow up and she prescribed me > something to help me sleep. Hopefully that will help me some Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2003 Report Share Posted October 21, 2003 In a message dated 10/21/2003 12:50:21 PM Pacific Standard Time, windyhilltop687@... writes: I'm really scared because she does function rather well but I want it to be better. Am I being greedy? If I do this and it doesn't work for her then she has nothing in that ear. I am scared really scared because the decision I makes affects her for the rest of her life. Welcome a, Fear is natural. I remember a few months ago I was deathly afraid of losing what residual hearing I have now. I overcome it by educating myself about Cochlear Implant. The more I understand, the less fear I had. Check out the three makes that are currently approved for implant in USA....... http://www.cochlear.com/ (Nucleus) www.bionicear.com (Clairon) http://www.medel.com/ (MedEl) All three works equally well, but if you go to their sites, you can request they sent you information in the mail. All three sites above have links to find your nearby implant centers. Make appointment for implant evaluation. The CI Team can help you better to meet your daughter's needs. Wish you luck for you and your daughter, Lee CI Candidate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2003 Report Share Posted October 21, 2003 In a message dated 10/21/2003 7:47:28 PM Pacific Standard Time, windyhilltop687@... writes: If my health ins. doesn't cover the CI cost how does one afford to get the CI? it's probably is covered as most health plan have it. Your CI team can find out for you. Lee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2003 Report Share Posted October 21, 2003 Hi Lee Thanks so much for the websites. I will check them out. I have added them to my favorites. I just got home from my sign language class. I leave my computer on all the time and was just checking emails and IM. I am about 3 to 5 hours from DC. If my health ins. doesn't cover the CI cost how does one afford to get the CI? a > In a message dated 10/21/2003 12:50:21 PM Pacific Standard Time, > windyhilltop687@a... writes: > I'm really scared because she does function rather well but I want it > to be better. Am I being greedy? If I do this and it doesn't work > for her then she has nothing in that ear. I am scared really scared > because the decision I makes affects her for the rest of her life. > Welcome a, > Fear is natural. I remember a few months ago I was deathly afraid of losing > what residual hearing I have now. > > I overcome it by educating myself about Cochlear Implant. The more I > understand, the less fear I had. > > Check out the three makes that are currently approved for implant in > USA....... > http://www.cochlear.com/ (Nucleus) > www.bionicear.com (Clairon) > http://www.medel.com/ (MedEl) > > All three works equally well, but if you go to their sites, you can request > they sent you information in the mail. All three sites above have links to > find your nearby implant centers. Make appointment for implant evaluation. The > CI Team can help you better to meet your daughter's needs. > > Wish you luck for you and your daughter, > Lee > CI Candidate > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2003 Report Share Posted October 22, 2003 OOPS..wrong forum New here Hi a As I was reading your post i had to smile when I saw that you had taken your daughter to see Dora the Explorer live.I don't do the same exploring as this Dora but i certainly have explored the CI..I just underwent my 3rd surgery on Oct 9th. I feel very strongly that you are doing the right thing by exploring the Cochlear Implant.The more you learn the less fearfull it will be. My 3 surgeries were done due to my personal hearing condition ..not the fault of the devises.I am hearing marvelously well . Welcome to the forum!!!! Dora Weber Nucleus Volunteer Advocate dora_weber@... Bilateral N22-96 N24C-01 Cochlear Otosclerosis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2004 Report Share Posted February 22, 2004 Hi Sharon ~ ~ Welcome !!! I am 53 and have been on Lex now since July 2003. Currently I am at 5 mg, was on 10 and then 15 but the higher doses brought out the sides. I am augmenting with Pamelor to help deal with the anxiety and panic. I have gained 30+ pounds while on Lex, but not sure if I want to blame it all on Lex as I am post menopausal. I have noticed that my reaction times are delayed somewhat while driving. I have daytime sleepiness that comes and goes and fatigue. Since I suffer from depression/mood disorder, my cycles make it difficult for me to guage if the Lex is doing it's job. Still hanging in there. Glad you are with us Dana Rose > I'm Sharon, 30 years old, and trying Lexapro after 1 year of Prozac. > The prozac was making me very tired and not doing much for > depression. > > I was wondering how others experience with Lexapro has been as far as > weight gain or loss, time before effects were felts, and any side > effects. > > I've only taken 4 days of Lexapro and was started on 10mg. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 Welcome to the road to recovery! Just keep taking your meds every day! My name is . I'm 30, diagnosed for about 2 years. I take 1.0 of Synthroid daily. Welcome! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 HI ! and in the words of my opthamologist, "sorry about your crappy diagnosis!" (he's a crack up!! too bad he isnt my GP!) I'm Pam, 38, and was diagnosed almost a year ago with hypothyroidism. They found mine in the ER, after I went in having heart palpitations. I will say, because my dr didnt tell me, but it took a good 6 months on the meds for me to feel more or less normal again! dr told me it'd take a month or so for them to get through out my body, but never indicated it'd take so long to start to feel good again! just so you dont worry if you dont feel better right away. There's a great group of ladies here who know there stuff! My MIL gave me a book by Shomon that is very helpful hope you're feeling better soon!! pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2004 Report Share Posted April 27, 2004 Hi Jen, We live in Toronto as well and our son is also Dr. Blake Papsin's patient. Just a quick note that Dr. Papsin is known to be one of the best surgeons in this field. So believe in him and know that your baby is in good hands. Bahareh (Mom to Salar, bilateral LVAS, CI candidate) fenneri <mrsjenirwin@...> wrote: hi my son was born 11 weeks early and has profound hearing loss. He is one year old today! He probably has hearing loss due to the medications he was given when he was very ill at about 10 days old. He has also been diagnosed with cerebral palsy. We have tried hearing aids for the last few months without any success. We met with the cochlear implant team at the hospital for sick children in Toronto a few weeks ago and they feel he is a good candidate for the CI. We have to go back for further testing but we hope he will have the implant around the end of the summer. Just wondering if anyone else has experience with a child this young. I just want to know what to expect. Thanks Jen Mommy to one year old today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2004 Report Share Posted May 17, 2004 Hi Marsha... You should definitely be concerned, but if 's curve was only 3 degrees, it's probably nothing about which you should be overly concerned. You are correct that scoliosis curves often increase during periods of fast growth. You might find these curve progression charts helpful: http://www.vh.org/pediatric/provider/orthopaedics/AIS/06Probabilities.html Regards, > Hi everyone. I am Marsha, Mom to who has Scoliosis. Last > year she was examined and was at 3%. She is 12 now, almost 13. It > is time for her next examination. I feel it has gotten a bit worse > so I am a afraid for her. Am I worrying too much at this point or > should I be? > > Fortunately, I just took her to another doctor for a totally > separate problem, he said she has just about stopped growing, he > looked at the growth plate in her wrist exray. From what I > understand she has scoliosis because of her growing fast. Is this > off base or possible? > > As you can see, I don't know a lot about it. What I have heard and > read doesn't make me happy, mostly worried. > > Thanks for listening. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2004 Report Share Posted May 19, 2004 Hey there As a mother, it is totally normal to worry about your kids. You are doing all the right things. Take her back to the doctor for checkups every 6-9mo untill she's 18. Depending on how severe her scoliosis is, it might progress in her adult years, so she might have to keep on having checkups, but not that often. Of course, you don't treat an x-ray but a patient. Let us know what the dr says at the checkup. At this point the medical community are in the dark as to what causes idiopathic (without cause) scoliosis. There are some genetic studies done at the moment and there could also be something structurally that is causing her scoliosis. It is important that you have a dr who specializes in scoliosis. Check www.srs.org for someone in your area. Make sure he is a pediatric scoliosis specialist. Good luck! Sanette ----- Original Message ----- From: " M Oliver " Am I worrying too much at this point or should I be? -- ___________________________________________________________ Sign-up for Ads Free at Mail.com http://promo.mail.com/adsfreejump.htm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2004 Report Share Posted September 8, 2004 Hi ! Welcome Aboard! You're going to meet so many people here and all of us either have a CI or are getting one. Good luck with your new ears and this is definitely the place for support and knowledge. Congratulations on your hookup! --Gayle > Hello all! I am new here and would like to introduce myself. My name is and I live in > Georgia. Gayle invited me to join. Hi Gayle! > > My hearing loss was first diagnosed about 11 years ago when I was 18. I had been > compensating for a while by subconsiously learning to lip read. At the time it was > diagnosed the loss was already moderate. Over the last 11 years my high frequency loss > has become profound. My audiogram looks muck like what Jan described. It starts at > 50db and goes to 105db in the left and to 95 db in the right. > > ! You are my CI twin! I just got my Auria hooked up yesterday too and your > experince sounds just like mine! My surgery was on August 11th. When was yours? > > When it was first turned on all I could hear was some ringing. It quickly progressed to > where the ringing got louder if my audiologist was talking to me, but it was still just > ringing. Then he made a louder program and I could hear garbled speech instead of > ringing. So that became program #1 and he added another louder program for program > #2. By the time I left the office things were sounding like a cross between Charlie Brown's > teacher and Daffy Duck. > > Within an hour I had outgrown program #1 and moved on to the louder program #2 and > now I am above halfway on the volume for that one. My next mapping is scheduled for > September 21st. But, I bet I will be back in there on Friday! > > My audiologist also told me to keep my hearing aid in my other ear unless we feel like I am > depending on it too much. He said I made so much progress in just the first hour with the > ci that he was not going to worry about the hearing aid. Actually I think it is helping me > figure out what I am hearing through the ci. Without the hearing aid I would be clueless > about all these sounds. > > I think the ringing is from picking up too much background noise. This is why...I was at > the library last night in a small meeting room waiting for the other members of my SHHH > chapter to arrive and as soon as the air conditioner clicked off the ringing stopped. I > heard silence, absolutely nothing. The the a/c kicked back in the ringing started again. > The computer is also causing a constant ringing. Actually more like a saw blade being > waved in the air. Kind of a twang rather than a ring. The wind noise in my car sounds like > someone blowing bubbles through a straw. > > I agree with Alice that you should schedule another appointment in the next few days. I > am going to! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2004 Report Share Posted September 8, 2004 , This sounds to me as if the sensitivity needs to be adjusted. Since it's fixed on the Auria, only the audiologist can do this but I know that I prefer to use sensitivity and move the dial on the 3G to adjust to my surroundings. It really improves the sound. Congrats on your hook up. I'm so glad you introduced yourself. BTW - I lived just west of Atlanta for several years but also lived on St Simons, Waycross and Tifton so I know GA really well. I hope you didn't have much problem with the remnants of Frances. Alice > Hello all! I am new here and would like to introduce myself. My name is and I live in > Georgia. Gayle invited me to join. Hi Gayle! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2004 Report Share Posted September 8, 2004 Oh WOW, im so happy to have someone I can finally relate to!!! My sugery was July 29th. My next mapping is next tuesday the 14th. I have no idea how to tell them to adjust it. I think I should mention to him that I have a harder time hearing females. The beeping goes away when my hearing aid is ON. When it's off... the sounds sound distored and alot quieter but the ringing/beeping sound is so much more obvious. I can hear those new sounds though. I just am wondering why am i bothering to wear my hearing aide, isnt the whole purpose of getting a CI is not to have to wear a hearing aid, isnt the CI supposed to be better? Maybe I should have my audie check into the background noises as well. I've been writing a list of things that seems to bother me. It seems that the CI is missing some sounds as well. I can't say that my sounds sounds like daffy duck, its quite annoying to me and I can only hope the sounds will improve with the next mapping. I've been listening to my favorite songs without my hearing aid, and just the CI and since i know the words by heart I can follow along about the same as i did with the hearing aid. I arranged for a hearing therphy this friday. Are you getting any hearing therphy? cuddlymommy219 <scrapbookcathy@...> wrote: Hello all! I am new here and would like to introduce myself. My name is and I live in Georgia. Gayle invited me to join. Hi Gayle! My hearing loss was first diagnosed about 11 years ago when I was 18. I had been compensating for a while by subconsiously learning to lip read. At the time it was diagnosed the loss was already moderate. Over the last 11 years my high frequency loss has become profound. My audiogram looks muck like what Jan described. It starts at 50db and goes to 105db in the left and to 95 db in the right. ! You are my CI twin! I just got my Auria hooked up yesterday too and your experince sounds just like mine! My surgery was on August 11th. When was yours? When it was first turned on all I could hear was some ringing. It quickly progressed to where the ringing got louder if my audiologist was talking to me, but it was still just ringing. Then he made a louder program and I could hear garbled speech instead of ringing. So that became program #1 and he added another louder program for program #2. By the time I left the office things were sounding like a cross between Charlie Brown's teacher and Daffy Duck. Within an hour I had outgrown program #1 and moved on to the louder program #2 and now I am above halfway on the volume for that one. My next mapping is scheduled for September 21st. But, I bet I will be back in there on Friday! My audiologist also told me to keep my hearing aid in my other ear unless we feel like I am depending on it too much. He said I made so much progress in just the first hour with the ci that he was not going to worry about the hearing aid. Actually I think it is helping me figure out what I am hearing through the ci. Without the hearing aid I would be clueless about all these sounds. I think the ringing is from picking up too much background noise. This is why...I was at the library last night in a small meeting room waiting for the other members of my SHHH chapter to arrive and as soon as the air conditioner clicked off the ringing stopped. I heard silence, absolutely nothing. The the a/c kicked back in the ringing started again. The computer is also causing a constant ringing. Actually more like a saw blade being waved in the air. Kind of a twang rather than a ring. The wind noise in my car sounds like someone blowing bubbles through a straw. I agree with Alice that you should schedule another appointment in the next few days. I am going to! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2004 Report Share Posted September 8, 2004 , The ci is supposed to be better than the hearing aid, however I am wearing my other hearing aid for 2 reasons. First and most important, to preserve the residual hearing I have in that ear. If the hearing nerve is not stimulated the hearing loss is more rapid. I still have only moderate loss in the lower frequencies and I would like to attempt to preserve that as long as possible. Second is to be able to localize sound. Without the hearing aid in my right ear everything will sound like it is coming from the left. When I am feeling more comfortable with the sound coming into the ci I am going to ask my audiologist to turn my hearing aid down a bit. Right now I am finding it helpful in figuring out what the ci is hearing. My next mapping was scheduled for the 21st, but I called my audiologist this afternoon and made an appointment for tomorrow afternoon. I am picking up way too much background noise and I am no longer hearing much at the highest volume available. Today everything sounds like a martain saying 'take me to your leader'. You are doing better than me with the music. I can kind of follow the words, but the instrumentation sounds like raindrops in a metal bucket. Ugh! I have not scheduled hearing therapy. I have 2 preschoolers and am already feeling guilty asking people to watch them when I get my mapping done. I can't imagine trying to find sitters while I go to hearing therapy too. You will have to share your experience with me. maybe it is something I can adapt to my home environment. > Oh WOW, im so happy to have someone I can finally relate to!!! My sugery was July 29th. My next mapping is next tuesday the 14th. I have no idea how to tell them to adjust it. I think I should mention to him that I have a harder time hearing females. > The beeping goes away when my hearing aid is ON. When it's off... the sounds sound distored and alot quieter but the ringing/beeping sound is so much more obvious. I can hear those new sounds though. > I just am wondering why am i bothering to wear my hearing aide, isnt the whole purpose of getting a CI is not to have to wear a hearing aid, isnt the CI supposed to be better? > Maybe I should have my audie check into the background noises as well. I've been writing a list of things that seems to bother me. > It seems that the CI is missing some sounds as well. > I can't say that my sounds sounds like daffy duck, its quite annoying to me and I can only hope the sounds will improve with the next mapping. > I've been listening to my favorite songs without my hearing aid, and just the CI and since i know the words by heart I can follow along about the same as i did with the hearing aid. I arranged for a hearing therphy this friday. Are you getting any hearing therphy? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2004 Report Share Posted September 9, 2004 I feel like the hearing aid is drowing the CI's job. this morning, so far I haven't put the hearing aid on, and for two mintues my alarm was going off and I didn't realize it until 2 min later where the sound was coming from. I was like, whaoo!! I figured it out. I wonder if I'm having background issue or not. I've noticed that the " ssssssss " sounds more natural than the " lalalalalala " I was working last night (i'm a college student and i work in a sport zone cafe) and I heard this bingggggggg and I actually made it again just to experiment. I felt silly but i liked it. Have you felt anything weird in the middle of your chest? For a bit there, while I was working, I actually had a slight pain in my chest. I heard from another friend of mine who has a CI, that the sounds started in her chest and then eventually it started in her head. I'm guessing maybe thats where the sound is right now, in my chest. I'm able to follow the words with the music but that's how i'd describe it - sounding like raindrops in a metal bucket. I'm terrible at describing the sounds. cuddlymommy219 <scrapbookcathy@...> wrote: , The ci is supposed to be better than the hearing aid, however I am wearing my other hearing aid for 2 reasons. First and most important, to preserve the residual hearing I have in that ear. If the hearing nerve is not stimulated the hearing loss is more rapid. I still have only moderate loss in the lower frequencies and I would like to attempt to preserve that as long as possible. Second is to be able to localize sound. Without the hearing aid in my right ear everything will sound like it is coming from the left. When I am feeling more comfortable with the sound coming into the ci I am going to ask my audiologist to turn my hearing aid down a bit. Right now I am finding it helpful in figuring out what the ci is hearing. My next mapping was scheduled for the 21st, but I called my audiologist this afternoon and made an appointment for tomorrow afternoon. I am picking up way too much background noise and I am no longer hearing much at the highest volume available. Today everything sounds like a martain saying 'take me to your leader'. You are doing better than me with the music. I can kind of follow the words, but the instrumentation sounds like raindrops in a metal bucket. Ugh! I have not scheduled hearing therapy. I have 2 preschoolers and am already feeling guilty asking people to watch them when I get my mapping done. I can't imagine trying to find sitters while I go to hearing therapy too. You will have to share your experience with me. maybe it is something I can adapt to my home environment. > Oh WOW, im so happy to have someone I can finally relate to!!! My sugery was July 29th. My next mapping is next tuesday the 14th. I have no idea how to tell them to adjust it. I think I should mention to him that I have a harder time hearing females. > The beeping goes away when my hearing aid is ON. When it's off... the sounds sound distored and alot quieter but the ringing/beeping sound is so much more obvious. I can hear those new sounds though. > I just am wondering why am i bothering to wear my hearing aide, isnt the whole purpose of getting a CI is not to have to wear a hearing aid, isnt the CI supposed to be better? > Maybe I should have my audie check into the background noises as well. I've been writing a list of things that seems to bother me. > It seems that the CI is missing some sounds as well. > I can't say that my sounds sounds like daffy duck, its quite annoying to me and I can only hope the sounds will improve with the next mapping. > I've been listening to my favorite songs without my hearing aid, and just the CI and since i know the words by heart I can follow along about the same as i did with the hearing aid. I arranged for a hearing therphy this friday. Are you getting any hearing therphy? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2005 Report Share Posted January 7, 2005 Hello Ivonne: Are you having the gastric bypass or the banding? Milie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2005 Report Share Posted January 8, 2005 I'm considering the RNY--- anyone RNY people on this site? Millie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2005 Report Share Posted January 8, 2005 I am having the lap band, what surgery did you have? or are you having? Ivonne > Hello Ivonne: > Are you having the gastric bypass or the banding? > > Milie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2005 Report Share Posted January 10, 2005 Hi, Ivonne - My good friend and I are being banded by Dr Aceves on Jan. 19 - what's your date? Perhaps we'll run into each other We are from Portland, Oregon. Where do you live? We're excited and, of course, a bit nervous - but so anxious to start the lapband journey and be on the losing side. Best of luck Jackie S > > Hi, > I am new here, I am having surgery next week. I am very happy and > excited to be able to join this group. I have read so many of your > posts, thanks they have been really helpful. Very inspiring! > > Ivonne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2005 Report Share Posted January 11, 2005 I will be having the RNY with Dr. Aceves on February 5. I can't wait! I'm new to this group too. This is my first message. B > I'm considering the RNY--- anyone RNY people on this site? > > Millie Quote Link to comment Share on other sites More sharing options...
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