Guest guest Posted February 21, 2010 Report Share Posted February 21, 2010 Hi Amy, it really wouldn't be too bad to have him repeat K. with all the illness, treatment he goes through, living is harder than the other kids have to deal with...he'd have a chance to have a less stressful year and shore up on those skills he may be lacking in....who cares if he's a year older? That's what we did with my son. But I'd like to make a suggestion....get a private psycheducational evaluation....it costs a few hundred dollars, but worth it...away from the school system....that evaluator will be able to look into his fine motor and perceptual difficulties deeper, and you'll have an independent opinion. Your son sounds like mine...my boy has Asperger's syndrome...real smart but fine motor and difficulties with visuo-perceptual skills. These things need to be evaluated more in-depth than the school will do. But again, don't worry about holding back another year in kindergarten....I know how you feel though, wondering if you're making the right decision........I did, and I'm glad he stayed back for the year, it was fun, less stress, he'll be learning, and you can get started with an OT at the local children's hospital, much more days and therapy than the school does... hugs...Sue From: w_a_k_shea@... <w_a_k_shea@...> Subject: Another Question Date: Sunday, February 21, 2010, 6:14 PM From reading some other posts on here today I see I'm not the only one currently having issues with our PID kids and their school system. My son Kelley, my 6 year old with CVID entered kindergarten this year and before entering we had him labeled Otherwise Health Impaired for special education purposes. We informed them that he would miss a LOT of school (as I'm sure most of our kids PID do) He has missed 43 of the last 104 days of school. During our first 2 child study meetings they told me despite his absences he was doing well so they would NOT change him 2 a 504. We had coferences a week or so ago and now they want to retain him for another year of kindergarten. I explained to them over and over at the start of the school year, I was concerned about his handwriting skills and about the amount of time he would miss. The occupational therapist came in and did an evaluation on him and told my husband and I that can do a more in depth screening, (he has some perceptual difficulties) but they can't help him since he's not having any difficulties keeping up with his class. I don't understand why they want to retain him since he's keeping up with his class in most areas, and why they won't 504 him since they are SO concerned about his perceptal issues. Thank you so much again for listening. Any advice you can give is greatly appreciated. Thanks, Amy Shea Sent on the Sprint® Now Network from my BlackBerry® ------------------------------------ This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. To unsubscribe -unsubscribegroups (DOT) To search group archives go to: /messages Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2010 Report Share Posted February 21, 2010 If you can get an advocate together then you can ask the school to provide an independent evaluation and they may have to pay for it. Do not do anything without putting it into writing to the school. Just make a strong paper trail as you go along. I know it seems overwhelming but in the end it will be worth it. BARBIE ________________________________ From: Sue Bordelon <sudubo@...> Sent: Sun, February 21, 2010 5:02:44 PM Subject: Re: Another Question Hi Amy, it really wouldn't be too bad to have him repeat K. with all the illness, treatment he goes through, living is harder than the other kids have to deal with...he'd have a chance to have a less stressful year and shore up on those skills he may be lacking in....who cares if he's a year older? That's what we did with my son. But I'd like to make a suggestion.. ..get a private psycheducational evaluation.. ..it costs a few hundred dollars, but worth it...away from the school system....that evaluator will be able to look into his fine motor and perceptual difficulties deeper, and you'll have an independent opinion. Your son sounds like mine...my boy has Asperger's syndrome...real smart but fine motor and difficulties with visuo-perceptual skills. These things need to be evaluated more in-depth than the school will do. But again, don't worry about holding back another year in kindergarten. ...I know how you feel though, wondering if you're making the right decision.... ....I did, and I'm glad he stayed back for the year, it was fun, less stress, he'll be learning, and you can get started with an OT at the local children's hospital, much more days and therapy than the school does... hugs...Sue From: w_a_k_shea (DOT) com <w_a_k_shea (DOT) com> Subject: Another Question groups (DOT) com Date: Sunday, February 21, 2010, 6:14 PM From reading some other posts on here today I see I'm not the only one currently having issues with our PID kids and their school system. My son Kelley, my 6 year old with CVID entered kindergarten this year and before entering we had him labeled Otherwise Health Impaired for special education purposes. We informed them that he would miss a LOT of school (as I'm sure most of our kids PID do) He has missed 43 of the last 104 days of school. During our first 2 child study meetings they told me despite his absences he was doing well so they would NOT change him 2 a 504. We had coferences a week or so ago and now they want to retain him for another year of kindergarten. I explained to them over and over at the start of the school year, I was concerned about his handwriting skills and about the amount of time he would miss. The occupational therapist came in and did an evaluation on him and told my husband and I that can do a more in depth screening, (he has some perceptual difficulties) but they can't help him since he's not having any difficulties keeping up with his class. I don't understand why they want to retain him since he's keeping up with his class in most areas, and why they won't 504 him since they are SO concerned about his perceptal issues. Thank you so much again for listening. Any advice you can give is greatly appreciated. Thanks, Amy Shea Sent on the Sprint® Now Network from my BlackBerry® ------------ --------- --------- ------ This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. To unsubscribe -unsubscribe@ groups. To search group archives go to: http://groups. / group// messages Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2010 Report Share Posted April 27, 2010 Not that I know of, look at vitamin D and K2 Bruce Another question I have another question someone may have an answer to. Can iodine (either directly or indirectly) influence calcium absorption or cartridge growth? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2010 Report Share Posted April 27, 2010 I have wondered about this also. I have read that fluorine is particularly damaging to connective tissue like collagen, cartilage, and tendons. I gather that fluorine attaches to cells thus changing their shape, and that the immune system then recognizes your own cells as foreign bodies and attacks them. The thought crosses my mind that if iodine helps rid one's body of fluorine then this immune response might cease. Whether cartilage will regenerate thereafter is a question. I am just speculating and have no direct knowledge. I have been interested in this because my wife was considering knee replacement surgery, when we came across information about adult stem cell treatment for deteriorated cartilage. Bone marrow is extracted from one's hip, cultured and then injected a month later into the knee hopefully resulting in regrowth of cartilage. She is taking lugols now as a lead up to this treatment later this year in the hopes that it will increase her chance of success. The idea of taking lugols is ours, not her doctors. Here is information about the treatment: http://www.bcbr.com/article.asp?id=103673 > > I have another question someone may have an answer to. Can iodine (either directly or indirectly) influence calcium absorption or cartridge growth? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2011 Report Share Posted May 5, 2011 Does anyone know of a group that is pretty much totally dedicated to knee resurfacing? I know there's one for hip resurfacing - just curious. Thanks again! ville, TN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2011 Report Share Posted May 8, 2011 Go to and enter knee resurfacing. M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2011 Report Share Posted May 8, 2011 I did that, and only three groups came up - this one and two that primarily deal with hip resurfacing. Has anyone here had their knee resurfaced? I know that a hip resurfacing is supposed to last a lifetime. Do they say the same thing about knee resurfacing, or does that only last about 10 years (like knee replacement)? My husband is 63, and his doctor really doesn't want to do TKR because it probably won't last the rest of his life. I'd appreciate any input from anyone who has had knee resurfacing. ville, TN > > Go to and enter knee resurfacing. > > M > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2011 Report Share Posted May 9, 2011 Hi , I think you are in the right place here. It seems about 50/50 with TKR/THR people. I have never heard of knee resurfacing, only partial and total replacement. I was 64 when I had my knee replaced, and many here are younger. I think the 10 years your OS said is a bit pessimistic. With a proper job, it should last him for his forever. Perhaps you should get a second opinion. ville is close enough to Knoxville so there should be other options. All the best, Joan in NYC ________________________________ From: bjsstepmom <bjsstepmom@...> Joint Replacement Sent: Sun, May 8, 2011 10:07:38 PM Subject: Re: Another Question I did that, and only three groups came up - this one and two that primarily deal with hip resurfacing. Has anyone here had their knee resurfaced? I know that a hip resurfacing is supposed to last a lifetime. Do they say the same thing about knee resurfacing, or does that only last about 10 years (like knee replacement)? My husband is 63, and his doctor really doesn't want to do TKR because it probably won't last the rest of his life. I'd appreciate any input from anyone who has had knee resurfacing. ville, TN > > Go to and enter knee resurfacing. > > M > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2011 Report Share Posted May 9, 2011 Thanks for your answer, Joan! That 10-year time period is something both he and I have heard numerous times pertaining to both knee *and* hip replacement (vs. resurfacing), but it's good to hear someone say otherwise. He's especially concerned about the timeframe since longevity runs in his family (mother was 96 when she passed; aunts lived to at least that age and up to 100+)! The orthopedic group he goes to *is* in Knoxville and is touted as the best in the area. They do all the sports injuries for the University of Tennessee teams. However, I've used them a couple of times myself and haven't been very impressed - seems too much like an assembly line with not a lot of personal interaction. A second opinion is probably (and I think *usually*) a good idea. I'll suggest that to him. Thanks again! ville, TN > > > > Go to and enter knee resurfacing. > > > > M > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2011 Report Share Posted May 9, 2011 Actually there is a procedure for knee resurfacing called Makoplasty. My surgeon does it. Here's a website about it: http://www.makosurgical.com/site/index.php/patients/ Lynn RTKR Mar 11 LTHR Oct 09 Life itself is the proper binge. - Child Visit my art blog: http://adreamseyeview.blogspot.com/ From: bjsstepmom <bjsstepmom@...> Subject: Re: Another Question Joint Replacement Date: Monday, May 9, 2011, 9:20 AM Thanks for your answer, Joan! That 10-year time period is something both he and I have heard numerous times pertaining to both knee *and* hip replacement (vs. resurfacing), but it's good to hear someone say otherwise. He's especially concerned about the timeframe since longevity runs in his family (mother was 96 when she passed; aunts lived to at least that age and up to 100+)! The orthopedic group he goes to *is* in Knoxville and is touted as the best in the area. They do all the sports injuries for the University of Tennessee teams. However, I've used them a couple of times myself and haven't been very impressed - seems too much like an assembly line with not a lot of personal interaction. A second opinion is probably (and I think *usually*) a good idea. I'll suggest that to him. Thanks again! ville, TN > > > > Go to and enter knee resurfacing. > > > > M > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2011 Report Share Posted May 9, 2011 Hi , My OS doesn't agree with yours...I was told with good, solid placement (which is why he uses the computer to aid placement), and good follow up with PT, the knee should last a good long time...like forever. I have great hopes he's right, I'm only 62! I agree with Joan, maybe a second opinion wouldn't be a bad thing. Lynn RTKR Mar 11 LTHR Oct 09 Life itself is the proper binge. - Child Visit my art blog: http://adreamseyeview.blogspot.com/ From: Joan Kell <kell_joan@...> Subject: Re: Re: Another Question Joint Replacement Date: Monday, May 9, 2011, 7:36 AM Hi , I think you are in the right place here. It seems about 50/50 with TKR/THR people. I have never heard of knee resurfacing, only partial and total replacement. I was 64 when I had my knee replaced, and many here are younger. I think the 10 years your OS said is a bit pessimistic. With a proper job, it should last him for his forever. Perhaps you should get a second opinion. ville is close enough to Knoxville so there should be other options. All the best, Joan in NYC ________________________________ From: bjsstepmom <bjsstepmom@...> Joint Replacement Sent: Sun, May 8, 2011 10:07:38 PM Subject: Re: Another Question I did that, and only three groups came up - this one and two that primarily deal with hip resurfacing. Has anyone here had their knee resurfaced? I know that a hip resurfacing is supposed to last a lifetime. Do they say the same thing about knee resurfacing, or does that only last about 10 years (like knee replacement)? My husband is 63, and his doctor really doesn't want to do TKR because it probably won't last the rest of his life. I'd appreciate any input from anyone who has had knee resurfacing. ville, TN > > Go to and enter knee resurfacing. > > M > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2011 Report Share Posted May 9, 2011 Drat! No doctors listed in Tennessee! Where is your surgeon, Lynn? ville, TN > > > > > > Go to and enter knee resurfacing. > > > > > > M > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2011 Report Share Posted May 9, 2011 He's in Northern Virginia at Fair Oaks Hospital. Dr. Tony Aram. Lynn LTHR Oct 09 RTKR Mar 11 Life itself is the proper binge. - Child Visit my art blog: http://adreamseyeview.blogspot.com/ From: bjsstepmom <bjsstepmom@...> Subject: Re: Another Question Joint Replacement Date: Monday, May 9, 2011, 10:10 AM Drat! No doctors listed in Tennessee! Where is your surgeon, Lynn? ville, TN > > > > > > Go to and enter knee resurfacing. > > > > > > M > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2011 Report Share Posted May 10, 2011 Hi , Not that you need further reinforcement from what you've been told already but if your husbands os said replacement would only last 10 years I would run, not walk, to another surgeon. The new knees should last over 25 years. Good luck, Jeff From: bjsstepmom <bjsstepmom@...> Joint Replacement Sent: Monday, May 9, 2011 9:20 AM Subject: Re: Another Question Thanks for your answer, Joan! That 10-year time period is something both he and I have heard numerous times pertaining to both knee *and* hip replacement (vs. resurfacing), but it's good to hear someone say otherwise. He's especially concerned about the timeframe since longevity runs in his family (mother was 96 when she passed; aunts lived to at least that age and up to 100+)! The orthopedic group he goes to *is* in Knoxville and is touted as the best in the area. They do all the sports injuries for the University of Tennessee teams. However, I've used them a couple of times myself and haven't been very impressed - seems too much like an assembly line with not a lot of personal interaction. A second opinion is probably (and I think *usually*) a good idea. I'll suggest that to him. Thanks again! ville, TN > > > > Go to and enter knee resurfacing. > > > > M > > > > Quote Link to comment Share on other sites More sharing options...
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