surgery

[Guest guest]

What modified surgery? Is Dr. R up and running again(doing MGB's)?Thanks,

Kristi

>From: " Manda " <eskieluvr@...>

>Reply-

>

>Subject: hormones

>Date: Fri, 17 Aug 2001 03:25:58 -0000

>

>I thought this was interesting. Someone that I have become good

>friends with several months ago on the pre-op list. First, she was

>one of Dr R's patients, and then she switched to 's Dr, so she

>had to again switch to Dr O who does that modified thing that so

>many pre-ops are having. She was scheduled for next week, and Dr R

>has cancelled her surgery because her hormones are out of whack and

>she has PCOS, and has recently found out she has diabetes.

>

>Doesn't make a lot of sense to me... diabetes and PCOS are both

>indicitive of obesity.

>

>But, maybe there is something to say about it being important to

>start out with normal hormones before WLS. I dunno. I just know

>that my heart bleeds for her because she has only run into road

>blocks.

>

>manda

>

>

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

[Guest guest]

Jess,

I wish you the best and that the outcome of your surgery will be a big improvement. Let us know how you do.

Best regards

Ed Fitzgerald

Surgery

Hello All,I'm usually a bit of a silent person although I have been a group member for quite some time. Just thought i'd let everyone know that i'm going in for surgery next wednesday, all being well. I went for a pre op examination on Friday and i've got to telephone on wednesday morning to see if there's a bed available(the good old NHS)If there is them I shall be admitted wedensday and have the operation on the thursday.i'm having the cardio myotomy with an anti reflux procedure. Apparently i'm only having a partial wrap though. I've been waiting since March for this operation but i've got mixed emotions. I'm happy because my eating is really bad at the moment, its kind of liquids like slim fast and lovely custard and mashed potato type things. On the other hand i'm now really nrevous. I suppose its just not knowing what to expect. All that I ask is that my eating is made marginally better than it is now. I've just got to try and not catch a cold as well as everyone around me at the moment has got one.Well I shall leave you for now but i'll let you know how i get on hopefully sometime next weekTake care allJess

[Guest guest]

Thanks for sharing your thoughts with us. I wish you

the very best and needed peace.

Big hug for you

--- challajess@... wrote:

> Hello All,

> I'm usually a bit of a silent person although I have

> been a group

> member for quite some time. Just thought i'd let

> everyone know that

> i'm going in for surgery next wednesday, all being

> well. I went for a

> pre op examination on Friday and i've got to

> telephone on wednesday

> morning to see if there's a bed available(the good

> old NHS)If there

> is them I shall be admitted wedensday and have the

> operation on the

> thursday.

> i'm having the cardio myotomy with an anti reflux

> procedure.

> Apparently i'm only having a partial wrap though.

> I've been waiting

> since March for this operation but i've got mixed

> emotions. I'm happy

> because my eating is really bad at the moment, its

> kind of liquids

> like slim fast and lovely custard and mashed potato

> type things. On

> the other hand i'm now really nrevous. I suppose its

> just not knowing

> what to expect. All that I ask is that my eating is

> made marginally

> better than it is now. I've just got to try and not

> catch a cold as

> well as everyone around me at the moment has got

> one.

> Well I shall leave you for now but i'll let you know

> how

> i get on hopefully sometime next week

> Take care all

> Jess

>

>

>

__________________________________________________

[Guest guest]

jess wish you all the best in your surgery, yes i am

also going to have surgery just dont know when, have

had the pre-op so now just waiting to hear, take care

............sue

--- Mejia <mariposita_libre26@...>

wrote:

<HR>

<html><body>

<tt>

Thanks for sharing your thoughts with us. & nbsp; I wish

you<BR>

the very best and needed peace.<BR>

<BR>

Big hug for you<BR>

<BR>

<BR>

<BR>

<BR>

--- challajess@... wrote:<BR>

& gt; Hello All,<BR>

& gt; I'm usually a bit of a silent person although I

have<BR>

& gt; been a group <BR>

& gt; member for quite some time. Just thought i'd

let<BR>

& gt; everyone know that <BR>

& gt; i'm going in for surgery next wednesday, all

being<BR>

& gt; well. I went for a <BR>

& gt; pre op examination on Friday and i've got to<BR>

& gt; telephone on wednesday <BR>

& gt; morning to see if there's a bed available(the

good<BR>

& gt; old NHS)If there <BR>

& gt; is them I shall be admitted wedensday and have

the<BR>

& gt; operation on the <BR>

& gt; thursday.<BR>

& gt; i'm having the cardio myotomy with an anti

reflux<BR>

& gt; procedure. <BR>

& gt; Apparently i'm only having a partial wrap

though.<BR>

& gt; I've been waiting <BR>

& gt; since March for this operation but i've got

mixed<BR>

& gt; emotions. I'm happy <BR>

& gt; because my eating is really bad at the moment,

its<BR>

& gt; kind of liquids <BR>

& gt; like slim fast and lovely custard and mashed

potato<BR>

& gt; type things. On <BR>

& gt; the other hand i'm now really nrevous. I suppose

its<BR>

& gt; just not knowing <BR>

& gt; what to expect. All that I ask is that my eating

is<BR>

& gt; made marginally <BR>

& gt; better than it is now. I've just got to try and

not<BR>

& gt; catch a cold as <BR>

& gt; well as everyone around me at the moment has

got<BR>

& gt; one.<BR>

& gt; Well I shall leave you for now but i'll let you

know<BR>

& gt; how <BR>

& gt; i get on hopefully sometime next week<BR>

& gt; Take care all<BR>

& gt; Jess<BR>

& gt; <BR>

& gt; <BR>

& gt; <BR>

<BR>

<BR>

__________________________________________________<BR>

[Guest guest]

Dear Jess,

Good luck with the procedure Wednesday. Hope you recover soon despite what the NHS will throw at you. Both my local hospitals (in Oxford and Aylesbury) received no stars [out of three] in the recent government assessment so that'a a real confidence booster! Fortunately for myself I'm stable and eating pretty normally, but I'm reading all the postings.

Has anyone else tried Arginine yet?

Regards

charles@...

[Guest guest]

Hi .. good to hear form you again , pleased also to hear you are Ok and stable. Not too sure what to make of the *** ratings as our hospital is at times pretty hopelss and yet did quite well ! I suppose we can just hope that when we have to go there it will be a good day !

I've not been too well and my 2nd Bot Tox doesn't seem to have helped .... On an even higher dose of Losec (80mg daily now !) and had 3 days of almost pain free bliss and then it all started again .

I missed some postings due to a fault in my connection to which took ages to sort out depsite me emailing them on numerous occasions . Not sure about the Arginine .. do you use it ?

I know this was a message for Jess but thought I'd just say hello and as I've not heard from anybody for a while thought it was good just to say hello .

Bye for now

RE: Surgery

Dear Jess,

Good luck with the procedure Wednesday. Hope you recover soon despite what the NHS will throw at you. Both my local hospitals (in Oxford and Aylesbury) received no stars [out of three] in the recent government assessment so that'a a real confidence booster! Fortunately for myself I'm stable and eating pretty normally, but I'm reading all the postings.

Has anyone else tried Arginine yet?

Regards

charles@...

[Guest guest]

a,

You have my prayers. Keep us informed on how you are doing.

Hugs, Prayers,

________________________________________________________________

GET INTERNET ACCESS FROM JUNO!

Juno offers FREE or PREMIUM Internet access for less!

Join Juno today! For your FREE software, visit:

http://dl.www.juno.com/get/web/.

[Guest guest]

In a message dated 10/26/2001 2:36:52 PM Pacific Daylight Time,

shoutjoy@... writes:

<< Please keep me in your prayers. Having a D & C on Monday afternoon.

Evidently my sonogram and bleeding during hormone replacement therapy

triggered some concern so I'm getting " cleaned out " . Hopefully it will

correct the problem. My hubby's insurance runs out the end of the month so

gotta get this stuff done quick. Cobra I think is beyond our budget right

now. Thanks all

aW

>>

a,

I'll be thinking of you. Has your husband had any nibbles on a new job? I

pray something turns up for him soon. I know how stressful that can be.... I

know all too well.

You're in my thoughts.

in OK

[Guest guest]

Nope, no jobs yet.

aW

Re: Surgery

In a message dated 10/26/2001 2:36:52 PM Pacific Daylight Time,

I'll be thinking of you. Has your husband had any nibbles on a new job? I

pray something turns up for him soon. I know how stressful that can be.... I

know all too well.

You're in my thoughts.

in OK

[Guest guest]

a, I know all will go well, a birdie told me. I will be waiting to hear

confirmation. How did the makeover go? I am so behind.... Overman

[Guest guest]

Well... got my hair cut. I still need a perm but with my colored hair, I have

to be careful with that. I am waiting on a contact name for the makeover. I

know alot of folks who do Merle Norman. I used to do that. Now I do Kay

which is awesome, but I'm going to try some other stuff until I find a

combination right for me. Anyway, that's it for now.

aW

Re: Surgery

a, I know all will go well, a birdie told me. I will be waiting to hear

confirmation. How did the makeover go? I am so behind.... Overman

[Guest guest]

Dear Gill I had a Hellers done on the N.H.S. and unfortunately the surgeon I

had,Had not done a Hellers before and It was a +.I posted my experiences on

this site(look up past postings)and I had a response from someone in the

U.K. who had a good doctor that did her Hellers with great effect, He was

based at Bath Hospital,Believe me you MUST look into this very,very

thoroughly and only let an experienced doctor do your surgery.Please learn

from my mistakes,I was so desperate to have the operation done (having " A "

For nearly 13 years I was prepared to try anything)But looking back I would

have much preferred to have waited and RESEARCHED a better surgeon,I hope

you find a good one,Best of luck. ,South Wales.

Surgery

> I am now desperate!

>

> 6 years ago my Achalasia was mis-diagnosed so I carried on in awful

> pain. The pain slowly ceased but the eating and vomiting became

> appalling so I went back and early last year Achalasia was

> diagnosed. I have now waited 6 months for an operation and am told

> the wait will probably be another year.

>

> I am worried about the hospital where I would eventually go because

> it does not have a good reputation. Is there any hospital in the UK

> which can do an alparoscopic myotomy (heler) either on the NHS or

> private? And is there any surgeon who anyone could recommend?

>

> If anyone has been through this process and can tell me more please,

> please let me know.

>

> Thanks,

> Gill

>

>

>

>

>

>

>

[Guest guest]

Thank you and for your replies,

- I would love to know how Jess got on with her surgery so it

would be great if you could ask her to make contact either through

this board or she can email me. I'm in Devon too by the way!

- I am still looking at previous postings so hopefully I shall

find the one about the surgeon in Bath soon....maybe it was Jess

anyway? Your experience is exactly the one I am dreading and I hope

that your situation now is better.

I also wonder whether anyone has gone abroad to have the sugery? Or

do you know of anyone? Because this is an option I am willing to

consider too as they seem to be more equipped to deal with

Achalasia. Or does anyone know of any surgeons who will do this

operation privately here in UK?

Thanks for your help,

Gill

> Dear Gill I had a Hellers done on the N.H.S. and unfortunately the

surgeon I

> had,Had not done a Hellers before and It was a +.I posted my

experiences on

> this site(look up past postings)and I had a response from someone

in the

> U.K. who had a good doctor that did her Hellers with great effect,

He was

> based at Bath Hospital,Believe me you MUST look into this very,very

> thoroughly and only let an experienced doctor do your

surgery.Please learn

> from my mistakes,I was so desperate to have the operation done

(having " A "

> For nearly 13 years I was prepared to try anything)But looking back

I would

> have much preferred to have waited and RESEARCHED a better

surgeon,I hope

> you find a good one,Best of luck. ,South Wales.

> Surgery

>

>

> > I am now desperate!

> >

> > 6 years ago my Achalasia was mis-diagnosed so I carried on in

awful

> > pain. The pain slowly ceased but the eating and vomiting became

> > appalling so I went back and early last year Achalasia was

> > diagnosed. I have now waited 6 months for an operation and am

told

> > the wait will probably be another year.

> >

> > I am worried about the hospital where I would eventually go

because

> > it does not have a good reputation. Is there any hospital in the

UK

> > which can do an alparoscopic myotomy (heler) either on the NHS or

> > private? And is there any surgeon who anyone could recommend?

> >

> > If anyone has been through this process and can tell me more

please,

> > please let me know.

> >

> > Thanks,

> > Gill

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Thanks and for replying,

Chris.....If you could ask Jess to make contact either here or

through my email I would be very grateful. I would love to contact

people in the UK that have had surgery. I am in Devon too btw!

....I am sorry you have had a bad experience and it is exactly

that that I am trying to avoid. I have tried looking back at past

posts but have not yet found the one about the surgeon in Bath. I

shall keep looking though as it sounds promising.

I would also like to know if anyone has gone abroad to have surgery

because that is an option I am willing to consider or has anyone had

surgery in UK privately?

Would really appreciate as much help as possible with this as the

thought of having an experience like s really scares me.

Thanks

Gill

> Dear Gill I had a Hellers done on the N.H.S. and unfortunately the

surgeon I

> had,Had not done a Hellers before and It was a +.I posted my

experiences on

> this site(look up past postings)and I had a response from someone

in the

> U.K. who had a good doctor that did her Hellers with great effect,

He was

> based at Bath Hospital,Believe me you MUST look into this very,very

> thoroughly and only let an experienced doctor do your

surgery.Please learn

> from my mistakes,I was so desperate to have the operation done

(having " A "

> For nearly 13 years I was prepared to try anything)But looking back

I would

> have much preferred to have waited and RESEARCHED a better

surgeon,I hope

> you find a good one,Best of luck. ,South Wales.

> Surgery

>

>

> > I am now desperate!

> >

> > 6 years ago my Achalasia was mis-diagnosed so I carried on in

awful

> > pain. The pain slowly ceased but the eating and vomiting became

> > appalling so I went back and early last year Achalasia was

> > diagnosed. I have now waited 6 months for an operation and am

told

> > the wait will probably be another year.

> >

> > I am worried about the hospital where I would eventually go

because

> > it does not have a good reputation. Is there any hospital in the

UK

> > which can do an alparoscopic myotomy (heler) either on the NHS or

> > private? And is there any surgeon who anyone could recommend?

> >

> > If anyone has been through this process and can tell me more

please,

> > please let me know.

> >

> > Thanks,

> > Gill

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

> Dear Gill I had a Hellers done on the N.H.S. and unfortunately the

surgeon I

> had,Had not done a Hellers before and It was a +.I posted my

experiences on

> this site(look up past postings)and I had a response from someone

in the

> U.K. who had a good doctor that did her Hellers with great effect,

He was

> based at Bath Hospital,Believe me you MUST look into this very,very

> thoroughly and only let an experienced doctor do your

surgery.Please learn

> from my mistakes,I was so desperate to have the operation done

(having " A "

> For nearly 13 years I was prepared to try anything)But looking back

I would

> have much preferred to have waited and RESEARCHED a better

surgeon,I hope

> you find a good one,Best of luck. ,South Wales.

> Surgery

>

>

> > I am now desperate!

> >

> > 6 years ago my Achalasia was mis-diagnosed so I carried on in

awful

> > pain. The pain slowly ceased but the eating and vomiting became

> > appalling so I went back and early last year Achalasia was

> > diagnosed. I have now waited 6 months for an operation and am

told

> > the wait will probably be another year.

> >

> > I am worried about the hospital where I would eventually go

because

> > it does not have a good reputation. Is there any hospital in the

UK

> > which can do an alparoscopic myotomy (heler) either on the NHS or

> > private? And is there any surgeon who anyone could recommend?

> >

> > If anyone has been through this process and can tell me more

please,

> > please let me know.

> >

> > Thanks,

> > Gill

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

For some reason I am not able to reply to threads by clicking on

reply so I have had to post a new message....anyway......

Thank you so much and for replying,

Chris...It would be great if you could get in touch with Jess (UK).

I would love to hear her story about surgery and she could contact me

via email if she likes at witchwickedy@... (my daughters

address)or here on the board. I am in Devon too btw!

...I am so sorry to hear about your bad experience and it is

exactly this that I am trying to avoid. It was interesting to hear

that there may be a surgeon in Bath that has successfully carried out

this operation and I am still trawling through past messages here to

find the right one!

I wonder also whether anyone knows of anyone who has been abroad to

have this operation or whether it is possible to have it done

privately in the UK?

I would appreciate any help or advice from anyone as I am really

worried now.

Thanks,

Gill

[Guest guest]

Hi Gill, I was going through the e-mails that I don't always get too on the

days they are posted (mainly because my kids live on the computer).I'm the

person who had the good surgeon in Bath., so in case you haven't come up

with my last e-mail I'll give you the info I have. On July 10th last year I

had my op.which I feel has been fairly successful. I eat fairly well but of

course like most folks here meals also mean large glasses of water. I was

very happy with my surgeon, my operation went very smoothly and I recovered

from it with no major trauma. I had the op on a Wed, and was released on the

Fri morning. I did not have a wrap done as the surgeon felt that sometimes

it can be hard to tell if there are any future problems if it is the wrap or

that the surgery hasn't worked. He said that if I had a lot of reflux that

could not be controlled by antacids then we could look at doing a wrap,

fingers crossed I,ve had no problem with acid reflux at all.

My surgeons name is Tate, he is at Royal United Hospital (RUH) in

Bath, Tel number 01225 428331.

Good luck,

Surgery

>

>

> > I am now desperate!

> >

> > 6 years ago my Achalasia was mis-diagnosed so I carried on in

awful

> > pain. The pain slowly ceased but the eating and vomiting became

> > appalling so I went back and early last year Achalasia was

> > diagnosed. I have now waited 6 months for an operation and am

told

> > the wait will probably be another year.

> >

> > I am worried about the hospital where I would eventually go

because

> > it does not have a good reputation. Is there any hospital in the

UK

> > which can do an alparoscopic myotomy (heler) either on the NHS or

> > private? And is there any surgeon who anyone could recommend?

> >

> > If anyone has been through this process and can tell me more

please,

> > please let me know.

> >

> > Thanks,

> > Gill

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Thanks so much for replying with this information .

At the moment I am looking at several options, one of which is going

abroad to have the Laparoscopic Myotomy. I shall certainly get in

touch with the Surgeon in Bath too. I'll let you know how I get on.

Many thanks,

Gill

> > Dear Gill I had a Hellers done on the N.H.S. and unfortunately the

> surgeon I

> > had,Had not done a Hellers before and It was a +.I posted my

> experiences on

> > this site(look up past postings)and I had a response from someone

> in the

> > U.K. who had a good doctor that did her Hellers with great effect,

> He was

> > based at Bath Hospital,Believe me you MUST look into this

very,very

> > thoroughly and only let an experienced doctor do your

> surgery.Please learn

> > from my mistakes,I was so desperate to have the operation done

> (having " A "

> > For nearly 13 years I was prepared to try anything)But looking

back

> I would

> > have much preferred to have waited and RESEARCHED a better

> surgeon,I hope

> > you find a good one,Best of luck. ,South Wales.

> > Surgery

> >

> >

> > > I am now desperate!

> > >

> > > 6 years ago my Achalasia was mis-diagnosed so I carried on in

> awful

> > > pain. The pain slowly ceased but the eating and vomiting became

> > > appalling so I went back and early last year Achalasia was

> > > diagnosed. I have now waited 6 months for an operation and am

> told

> > > the wait will probably be another year.

> > >

> > > I am worried about the hospital where I would eventually go

> because

> > > it does not have a good reputation. Is there any hospital in

the

> UK

> > > which can do an alparoscopic myotomy (heler) either on the NHS

or

> > > private? And is there any surgeon who anyone could recommend?

> > >

> > > If anyone has been through this process and can tell me more

> please,

> > > please let me know.

> > >

> > > Thanks,

> > > Gill

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Hi Jacqui & Phil,

Welcome to our group. From reading your post, you do

have a good understanding of what will happen. The

doctor won't truly know how extensive the

cholesteatoma is until he goes in for surgery. You

are also correct when you say a whisper of

microsurgery. I would not count on this.

Also, be prepared for the surgery to take longer than

the doctor says and for the c-toma to be bigger than

orginally thought. After reading the posts on this

site and my own personal experience with my husband,

it seems to be the case, especially for a first

surgery.

I hope I was of some help and didn't scare you.

Please keep of informed of what happens and when

Jacqui will have surgery.

Take care, Michele

PS - Check out the bookmarks section for some links to

websites with info on cholesteatoma.

--- roscotribeau <roscotribe@...> wrote:

>

>

> Hello to all Members,

> A great web site for those who are suddenly

> confronted with the word

> cholesteatoma.

> This site with its description and treatment of this

> problem is a

> wonderful discovery.

>

> Jacqui who is 50 yrs old will be undergoing surgery

> in a fortnight

> for the removal of what appears on the CT to be

> small C-toma (5mm

> dia), here in Brisbane- Queensland, Australia.

>

> Our understanding so far of the surgery, is that

> wall down is the

> last resort, reserved for intrusive C-toma , our

> surgeon has at this

> monent chosen a middle of the road operation, that

> which we are

> going to discuss further at our next appointment,

> Some where betweem CWD and CWU with a slightly

> enlarged canal, going

> to access through the front ( forward ) of the ear

> ( not the rear

> which is we understand is normal ), and leaving a

> flap of skin for

> the ear drum, so future inspection is simple.

> That may not be exactly as he said it , but it was

> our immediate

> impression.

>

> Our appointment is in a weeks time, and any

> information regarding

> this procedure that will contribute to a successful

> result will be

> appreciated.

>

> We hear whisper of microsurgery through the ear

> canal, however this

> does not seem practical, still, we do not know and

> are asking the

> question.

>

> A huge thank you to all who respond

>

> Jacqui & phil

>

>

>

>

>

>

>

__________________________________________________

[Guest guest]

Hi Michele, Thanks, Jacqui is undergoing surgery as i write, the operation was going to be in a forthnight, I will post soon regards Phil

Re: Surgery

Hi Jacqui & Phil,Welcome to our group. From reading your post, you dohave a good understanding of what will happen. Thedoctor won't truly know how extensive thecholesteatoma is until he goes in for surgery. Youare also correct when you say a whisper ofmicrosurgery. I would not count on this.Also, be prepared for the surgery to take longer thanthe doctor says and for the c-toma to be bigger thanorginally thought. After reading the posts on thissite and my own personal experience with my husband,it seems to be the case, especially for a firstsurgery.I hope I was of some help and didn't scare you. Please keep of informed of what happens and whenJacqui will have surgery.Take care, MichelePS - Check out the bookmarks section for some links towebsites with info on cholesteatoma.--- roscotribeau <roscotribe@...> wrote:> > > Hello to all Members, > A great web site for those who are suddenly> confronted with the word > cholesteatoma.> This site with its description and treatment of this> problem is a > wonderful discovery.> > Jacqui who is 50 yrs old will be undergoing surgery> in a fortnight > for the removal of what appears on the CT to be> small C-toma (5mm > dia), here in Brisbane- Queensland, Australia.> > Our understanding so far of the surgery, is that> wall down is the > last resort, reserved for intrusive C-toma , our> surgeon has at this > monent chosen a middle of the road operation, that> which we are > going to discuss further at our next appointment,> Some where betweem CWD and CWU with a slightly> enlarged canal, going > to access through the front ( forward ) of the ear> ( not the rear > which is we understand is normal ), and leaving a> flap of skin for > the ear drum, so future inspection is simple.> That may not be exactly as he said it , but it was> our immediate > impression.> > Our appointment is in a weeks time, and any> information regarding > this procedure that will contribute to a successful> result will be > appreciated.> > We hear whisper of microsurgery through the ear> canal, however this > does not seem practical, still, we do not know and> are asking the > question.> > A huge thank you to all who respond> > Jacqui & phil> > > > > > > __________________________________________________

[Guest guest]

Hi Phil,

Boy, your email sure grabbed my attention because I

didn't think Jacqui's surgery for about a week.

I won't burden you with any questions. Just know that

you are being thought of and we are most interested to

know how things go. I do think it's better to get

this taken care of sooner rather than later.

Post when you can and take care. Tell Jacqui hi when

the time is right.

Michele

--- Philip Ross <roscotribe@...> wrote:

> Hi Michele, Thanks, Jacqui is undergoing surgery as

> i write, the operation was going to be in a

> forthnight, I will post soon regards Phil

> Re: Surgery

>

>

> Hi Jacqui & Phil,

>

> Welcome to our group. From reading your post, you

> do

> have a good understanding of what will happen.

> The

> doctor won't truly know how extensive the

> cholesteatoma is until he goes in for surgery.

> You

> are also correct when you say a whisper of

> microsurgery. I would not count on this.

>

> Also, be prepared for the surgery to take longer

> than

> the doctor says and for the c-toma to be bigger

> than

> orginally thought. After reading the posts on

> this

> site and my own personal experience with my

> husband,

> it seems to be the case, especially for a first

> surgery.

>

> I hope I was of some help and didn't scare you.

> Please keep of informed of what happens and when

> Jacqui will have surgery.

>

> Take care, Michele

>

> PS - Check out the bookmarks section for some

> links to

> websites with info on cholesteatoma.

>

> --- roscotribeau <roscotribe@...>

> wrote:

> >

> >

> > Hello to all Members,

> > A great web site for those who are suddenly

> > confronted with the word

> > cholesteatoma.

> > This site with its description and treatment of

> this

> > problem is a

> > wonderful discovery.

> >

> > Jacqui who is 50 yrs old will be undergoing

> surgery

> > in a fortnight

> > for the removal of what appears on the CT to be

> > small C-toma (5mm

> > dia), here in Brisbane- Queensland, Australia.

> >

> > Our understanding so far of the surgery, is that

> > wall down is the

> > last resort, reserved for intrusive C-toma , our

> > surgeon has at this

> > monent chosen a middle of the road operation,

> that

> > which we are

> > going to discuss further at our next

> appointment,

> > Some where betweem CWD and CWU with a slightly

> > enlarged canal, going

> > to access through the front ( forward ) of the

> ear

> > ( not the rear

> > which is we understand is normal ), and leaving

> a

> > flap of skin for

> > the ear drum, so future inspection is simple.

> > That may not be exactly as he said it , but it

> was

> > our immediate

> > impression.

> >

> > Our appointment is in a weeks time, and any

> > information regarding

> > this procedure that will contribute to a

> successful

> > result will be

> > appreciated.

> >

> > We hear whisper of microsurgery through the ear

> > canal, however this

> > does not seem practical, still, we do not know

> and

> > are asking the

> > question.

> >

> > A huge thank you to all who respond

> >

> > Jacqui & phil

> >

> >

> >

> >

> >

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

Dear Carole I had a laproscopic hellers myotomy after two

dilations,unfortunately my operation was unsuccessful but the one thing I

have learnt from all of this(thirteen years of 'A')is to ask questions and

if your not happy with the answers ask another doctor.I can not stress

enough how important it is to get a second opinion(I wish to god I

did)please learn from my mistakes and get a second opinion.take care

(south wales u.k.)

surgery

> Hi, my name is Carole I am 49 and I live in South East England.

>

> I have recently been dianosed with A. I luckily have private health

> care with my job, I have had 2 baloon dilolations which both failed

> so I am now going in for surgery on 26th March. They cannot do the

> lap. because of scar tissue due to the balloon dilations so I have

> got to have the myotomy/fundoplication, with a half wrap. I am

> really scared but feel I should go ahead, my surgeon seems very nice

> and explains everything and he is not too technical or too flowery

> and I trust him.

>

> I had a manometry and they told me that I have had this condition for

> 7 years, which has gradually got worse, but I kept being told it was

> indigestion and then stress. It was only when I kept saying please

> do more tests that they did a bariam swollow and discovered A.

>

> I would like to hear from anyone who has had this surgery to give me

> some support.

>

>

>

>

>

>

>

[Guest guest]

Good luck with your surgery on March 26. Keep us posted. -Nell

>From: "carole1952uk"

>Reply-achalasia >achalasia >Subject: surgery >Date: Tue, 12 Mar 2002 21:23:20 -0000 > >Hi, my name is Carole I am 49 and I live in South East England. > >I have recently been dianosed with A. I luckily have private health >care with my job, I have had 2 baloon dilolations which both failed >so I am now going in for surgery on 26th March. They cannot do the >lap. because of scar tissue due to the balloon dilations so I have >got to have the myotomy/fundoplication, with a half wrap. I am >really scared but feel I should go ahead, my surgeon seems very nice >and explains everything and he is not too technical or too flowery >and I trust him. > >I had a manometry and they told me that I have had this condition for >7 years, which has gradually got worse, but I kept being told it was >indigestion and then stress. It was only when I kept saying please >do more tests that they did a bariam swollow and discovered A. > >I would like to hear from anyone who has had this surgery to give me >some support. > > > >

[Guest guest]

Carol,

I am glad you have joined us. When I was first diagnosed with " A " 23 years

ago there was no Lap surgery. Although the idea of doing the chest surgery

is not a fun idea I have survived twice actually. I am glad that I did not

have the dilations. If we use the people here as examples, most who have

had dilations have had complications with surgery later. That's just my

uneducated observation. Anyway, if you have a good surgeon you should have

no problems. The recover is long, but prepare yourself ahead of time. Go

find some books you have been wanting to read. Stock up on your favorite

hobby. Do some of the things you have not been able to do for some time!

One of the people here made this suggestion. Don't spend your time thinking

of all the things that could go wrong. Think of the things that will be

better after, like eating a meal without problems. Enjoying a steak or

whatever other positives you can think of.

You are in my prayers!

J.C.

surgery

> Hi, my name is Carole I am 49 and I live in South East England.

>

> I have recently been dianosed with A. I luckily have private health

> care with my job, I have had 2 baloon dilolations which both failed

> so I am now going in for surgery on 26th March. They cannot do the

> lap. because of scar tissue due to the balloon dilations so I have

> got to have the myotomy/fundoplication, with a half wrap. I am

> really scared but feel I should go ahead, my surgeon seems very nice

> and explains everything and he is not too technical or too flowery

> and I trust him.

>

> I had a manometry and they told me that I have had this condition for

> 7 years, which has gradually got worse, but I kept being told it was

> indigestion and then stress. It was only when I kept saying please

> do more tests that they did a bariam swollow and discovered A.

>

> I would like to hear from anyone who has had this surgery to give me

> some support.

>

>

>

>

>

>

>

[Guest guest]

Hi,

I am Kees from Holland,

I am glad I found this site.

They did two time a balloon dilitation..but it doesn't

work out. Completely nothing.

Now I ve to go to an academical hospital, maybe a

surgery...I hope not..

Does anyone has experience with 3 balloon dilitations

in one week?

or with the different forms of surgery?

Kees

__________________________________________________