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- as part of my public health practice I am in the process of setting up an 'older people' group/s. In conjunction with the Pension Service (who offered a financial audit) I undertook a survey of the needs of older people (900 people, +/- 600 questionnaires; 100 responses). If we can help in any way by being evaluated we would be happy to work with you. Ruth

Inquiry

Dear Excellent Folks of the Forum

The mental health promotion charity mentality has been commissioned

by Age Concern and the Mental Health Foundation to complete a review into

mental health + well being in later life. The review is the first stage of a

three year joint inquiry which will consider promotion, prevention + provision

The promotion of mental health and well being among older people is an area

of concern which has, to date, largely been ignored. Responsibility for it

has tended to fall between mental health professionals and those working with

older people and therefore it has remained a low priority on most agendas.

It is often assumed that old age is linked inevitably with failing health,

poverty, dependency, isolation and depression and yet there is much that can be

done to promote the mental health of older people.

At the current time mentality are asking two questions:

1 - Are there any key background studies that people are aware of which would

provide information of relevance to mental health promotion or any

published evidence for effective approaches to promoting the mental health

and well being of older people? (they are not including pharmacological

interventions in the review)

2 - Are there any models of good practice that people are aware of in the UK

which support the promotion of mental health among older people?

Any help/assistance/expertise/evidence that any of you can provide via myself will

be passed on to mentality directly.

Very Best Wishes

Manning

www.primhe.org

www.depressionalliance.org

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Perhaps you could get Age Concern to supply details about the ACCESS projects which operate in Suffolk in respect to early stage dementia support for client & carer.

Also I used to work, in a Staff Nurse capacity, offering a Health Visiting service for clients over 65's. During my time the F/T designated HV was not replaced but owing to the client balance in NE Suffolk a number of the HV's are expected to cater as much for their older clients as for the under 5's. Much of this was discrete support through life, mobility, relationship, health involving supporting through access to equipment, benefits and general health info which of course included mental wellbeing. The 'named person' approach working within the 'health' as opposed to 'mental health' remit seemed to make the service accessible and acceptable to clients.

I wrote some of this work up when completing the research module of my diploma- might still be able to find a copy lurking on the hard drive or a hard copy that I can blow the dust off, but the references may be a little old now (completed 97/98), let me know

Hope this helps,

Judy

Inquiry

Dear Excellent Folks of the Forum

The mental health promotion charity mentality has been commissioned

by Age Concern and the Mental Health Foundation to complete a review into

mental health + well being in later life. The review is the first stage of a

three year joint inquiry which will consider promotion, prevention + provision

The promotion of mental health and well being among older people is an area

of concern which has, to date, largely been ignored. Responsibility for it

has tended to fall between mental health professionals and those working with

older people and therefore it has remained a low priority on most agendas.

It is often assumed that old age is linked inevitably with failing health,

poverty, dependency, isolation and depression and yet there is much that can be

done to promote the mental health of older people.

At the current time mentality are asking two questions:

1 - Are there any key background studies that people are aware of which would

provide information of relevance to mental health promotion or any

published evidence for effective approaches to promoting the mental health

and well being of older people? (they are not including pharmacological

interventions in the review)

2 - Are there any models of good practice that people are aware of in the UK

which support the promotion of mental health among older people?

Any help/assistance/expertise/evidence that any of you can provide via myself will

be passed on to mentality directly.

Very Best Wishes

Manning

www.primhe.org

www.depressionalliance.org

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  • 1 year later...

Welcome back and congratulations on your bilateral CI candidacy! <smile>

Could you clarify what kind of information you are referring to? Are you

talking about information concerning the ability for someone who is totally

blind to use the Freedom -- or are you talking about clinical studies which

examine CI use by the blind? If you are referring to the latter, as far as I

know, there are no existing studies. I asked this question on a listserv for

O & M specialists before I received my CI -- and the responses I received

indicated that CI use by the blind has not been studied

If you are talking about overall accessibility of the Freedom, I was told by

someone at Cochlear that all of the functions are accessible. (This was also

one of my concerns since I will be implanted with the Freedom if/when I go

bilateral.)

I know several sighted people who report being able to use the Freedom

without looking at the LCD display. , another deafblind member of the

list, received a second CI and is now using the Freedom. Perhaps she can

share her experiences.

Implanted: 12/22/04 Activated: 1/18/05

Deafblind/Postlingual

BTE hearing aid user 20 years

Severe-profound hearing loss 10 years

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Hi

I am totally blind because of Norie disease. I am also deaf without my

Freedom processor and my 3G. I have had very good luck with my bilateral

implants. I would encourage you to go for it!! Larry

inquiry

> Hello Friends,

> I have not written for a long time on the list but, here I am with a

> very tough question. I have received news that I am accepted by tue

> Quebec Center for bilateral ci. My question is: knowing that I am

> totally blind, is there any information on the use of the Freedom by

> blind people with absolutely no light perception?

> Oh yes, I do not have a surgery date yet so for me, the waiting

> continues at this time.

> Thanks for any input on this,

> Jean

>

>

>

>

>

>

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Hi Lary,

The decision is made, I am going for it. I was asking the question

for I had been told the manipulation of the Freedom is very difficult

for a totally blind person and I am checking this information through

the list.

I have already been accepted for becoming bilateral at once and only

my surgery date is not set yet.

also with Norrie

At 17:57 2005-11-11, you wrote:

>Hi

> I am totally blind because of Norie disease. I am also deaf without my

>Freedom processor and my 3G. I have had very good luck with my bilateral

>implants. I would encourage you to go for it!! Larry

> inquiry

>

>

> > Hello Friends,

> > I have not written for a long time on the list but, here I am with a

> > very tough question. I have received news that I am accepted by tue

> > Quebec Center for bilateral ci. My question is: knowing that I am

> > totally blind, is there any information on the use of the Freedom by

> > blind people with absolutely no light perception?

> > Oh yes, I do not have a surgery date yet so for me, the waiting

> > continues at this time.

> > Thanks for any input on this,

> > Jean

> >

> >

> >

> >

> >

> >

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Hello

The freedom bte unit has a button on top that changes programs every

time you press it with your finger. below that button and toward the bottom

is a rocker switch turns it up and down. You must hold the rocker switch

down for the phone switch. Unlike the 3G, it is completely digital instead

of analog. Larry

inquiry

>>

>>

>> > Hello Friends,

>> > I have not written for a long time on the list but, here I am with a

>> > very tough question. I have received news that I am accepted by tue

>> > Quebec Center for bilateral ci. My question is: knowing that I am

>> > totally blind, is there any information on the use of the Freedom by

>> > blind people with absolutely no light perception?

>> > Oh yes, I do not have a surgery date yet so for me, the waiting

>> > continues at this time.

>> > Thanks for any input on this,

>> > Jean

>> >

>> >

>> >

>> >

>> >

>> >

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Good luck with your CI journey! <smile>

I've also decided to go bilateral, but am currently waiting for paperwork to

be submitted to insurance. My surgeon recommended I have my other ear

implanted because I'm doing well with my CI and have had problems localizing

sound and discriminating speech with my hearing aid.

Implanted: 12/22/04 Activated: 1/18/05

Deafblind/Postlingual

BTE hearing aid user 20 years

Severe-profound hearing loss 10 years

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,

If your surgeon is now recommending a second implant, I have no doubt

you will have success in getting your operation. Good luck! Larry

Re: inquiry

>

>

> Good luck with your CI journey! <smile>

>

> I've also decided to go bilateral, but am currently waiting for paperwork

> to

> be submitted to insurance. My surgeon recommended I have my other ear

> implanted because I'm doing well with my CI and have had problems

> localizing

> sound and discriminating speech with my hearing aid.

>

>

> Implanted: 12/22/04 Activated: 1/18/05

> Deafblind/Postlingual

> BTE hearing aid user 20 years

> Severe-profound hearing loss 10 years

>

>

>

>

>

>

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Welcome back, Jean! here. This summer I had second, bilateral CI in

July with Nucleus Freedom. My first CI is 3G. At first I had problems with

the controls of the Freedom, but this does not mean you or others, like

, will too. Hopefully you can learn from my experience. There is an

upper button for turning the Freedom on and off and changing between

programs. The difference in accessing these two features on one button is

that you press button quicker for the programs than for turning it on and

off. Then there is another lower button which really is two halves, one half

to increase sensitivity or volume and the other half to decrease sensitivity

or volume. The key here is to always remember the first click of either half

activates it first, then you press a second time to either increase or

decrease sensitivity or volume. If you briefly press the second click, it

is in sensitivity mode; if you press the second click longer, it is in

volume mode. I have made a request to my audie to have the internal beeps

for sensitivity and volume different, but don't know if this will happen. At

first I inconsistently heard the internal beeps and I was not always sure if

I heard them. Once my audie increased the volume of the beeps, my hearing of

the beeps was better. There are internal beeps to signal when the Freedom is

turned on or off, to tell you you have moved on to the next program and the

number of beeps associated with each program to indicate the program number,

to let you know each time you pushed the increase/decrease buttons, and by

pressing both half buttons together there were beeps signalling when the

tele-coil was turned on or off. Much of all this will make more sense when

you actually get the Freedom.

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,

You did a fantastic job of describing the Freedom to Jean. Larry

Re: inquiry

> Welcome back, Jean! here. This summer I had second, bilateral CI in

> July with Nucleus Freedom. My first CI is 3G. At first I had problems with

> the controls of the Freedom, but this does not mean you or others, like

> , will too. Hopefully you can learn from my experience. There is an

> upper button for turning the Freedom on and off and changing between

> programs. The difference in accessing these two features on one button is

> that you press button quicker for the programs than for turning it on and

> off. Then there is another lower button which really is two halves, one

> half

> to increase sensitivity or volume and the other half to decrease

> sensitivity

> or volume. The key here is to always remember the first click of either

> half

> activates it first, then you press a second time to either increase or

> decrease sensitivity or volume. If you briefly press the second click, it

> is in sensitivity mode; if you press the second click longer, it is in

> volume mode. I have made a request to my audie to have the internal beeps

> for sensitivity and volume different, but don't know if this will happen.

> At

> first I inconsistently heard the internal beeps and I was not always sure

> if

> I heard them. Once my audie increased the volume of the beeps, my hearing

> of

> the beeps was better. There are internal beeps to signal when the Freedom

> is

> turned on or off, to tell you you have moved on to the next program and

> the

> number of beeps associated with each program to indicate the program

> number,

> to let you know each time you pushed the increase/decrease buttons, and by

> pressing both half buttons together there were beeps signalling when the

> tele-coil was turned on or off. Much of all this will make more sense when

> you actually get the Freedom.

>

>

>

>

>

>

>

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,

Thank you, this is exactly what I was looking for; a kind of personal

manual and that is what you message is to me.

Jean

At 20:27 2005-11-11, you wrote:

>Welcome back, Jean! here. This summer I had second, bilateral CI in

>July with Nucleus Freedom. My first CI is 3G. At first I had problems with

>the controls of the Freedom, but this does not mean you or others, like

>, will too. Hopefully you can learn from my experience. There is an

>upper button for turning the Freedom on and off and changing between

>programs. The difference in accessing these two features on one button is

>that you press button quicker for the programs than for turning it on and

>off. Then there is another lower button which really is two halves, one half

>to increase sensitivity or volume and the other half to decrease sensitivity

>or volume. The key here is to always remember the first click of either half

>activates it first, then you press a second time to either increase or

>decrease sensitivity or volume. If you briefly press the second click, it

>is in sensitivity mode; if you press the second click longer, it is in

>volume mode. I have made a request to my audie to have the internal beeps

>for sensitivity and volume different, but don't know if this will happen. At

>first I inconsistently heard the internal beeps and I was not always sure if

>I heard them. Once my audie increased the volume of the beeps, my hearing of

>the beeps was better. There are internal beeps to signal when the Freedom is

>turned on or off, to tell you you have moved on to the next program and the

>number of beeps associated with each program to indicate the program number,

>to let you know each time you pushed the increase/decrease buttons, and by

>pressing both half buttons together there were beeps signalling when the

>tele-coil was turned on or off. Much of all this will make more sense when

>you actually get the Freedom.

>

>

>

>

>

>

>

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Larry, concerning a CI being analog, do they continue to manufacture

them with that technology? I just assumed everything was digital

these days. My hearing aids are analog (they are a year-and-a-half

old) and I hunted high and low on the internet to purchase an

analog telephone with which I'm very happy. If I am approved for a

CI, I will be so happy. I know I can and will adjust to digital but

this is the first time I've seen that it could be (or was) analog.

Any information anyone? Thanks.

Judy

On Nov 12, 2005, at 8:45 AM, wrote:

> From: " Larry " <lwilson005@...>

> Subject: Re: inquiry

>

> Hello

> The freedom bte unit has a button on top that changes programs

> every

> time you press it with your finger. below that button and toward

> the bottom

> is a rocker switch turns it up and down. You must hold the rocker

> switch

> down for the phone switch. Unlike the 3G, it is completely digital

> instead

> of analog. Larry

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Hi,

I have asked questions about the Freedom because of comments I had

heard but still do not know officially if it is the ci I will get,

althought since I am participating in the research project, there

seem to be a fair chance for me to be fitted with Freedom but I am

not the one making the decision.

By the way, is it difficult to change batteries in the Freedom without sight?

Jean

At 11:00 2005-11-12, you wrote:

> the best to you in your bilateral CIs. Please let us know how things

>go. Am anxious to hear of your experience with the Freedom.

>

>

>

>

>

>

>

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Hi

I am totally blind and change the batteries in the Freedom all the time.

It was different than the 3G, but I now change the batteries in a snap.

Larry

Re: inquiry

> Hi,

> I have asked questions about the Freedom because of comments I had

> heard but still do not know officially if it is the ci I will get,

> althought since I am participating in the research project, there

> seem to be a fair chance for me to be fitted with Freedom but I am

> not the one making the decision.

> By the way, is it difficult to change batteries in the Freedom without

> sight?

> Jean

> At 11:00 2005-11-12, you wrote:

>> the best to you in your bilateral CIs. Please let us know how things

>>go. Am anxious to hear of your experience with the Freedom.

>>

>>

>>

>>

>>

>>

>>

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Hi Judy,

My Nucleus 3G CI is analog, but my Freedom on the right side is digital.

Larry

Re: inquiry

>>

>> Hello

>> The freedom bte unit has a button on top that changes programs

>> every

>> time you press it with your finger. below that button and toward

>> the bottom

>> is a rocker switch turns it up and down. You must hold the rocker

>> switch

>> down for the phone switch. Unlike the 3G, it is completely digital

>> instead

>> of analog. Larry

>

>

>

>

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The booklet to the Freedom is now available in braille. I will gladly

send it to you or any other blind person who might find it useful. Please

send name and address to: lwilson005@... First come, first

serve. Larry

Re: inquiry

> ,

> Thank you, this is exactly what I was looking for; a kind of personal

> manual and that is what you message is to me.

> Jean

> At 20:27 2005-11-11, you wrote:

>>Welcome back, Jean! here. This summer I had second, bilateral CI in

>>July with Nucleus Freedom. My first CI is 3G. At first I had problems with

>>the controls of the Freedom, but this does not mean you or others, like

>>, will too. Hopefully you can learn from my experience. There is an

>>upper button for turning the Freedom on and off and changing between

>>programs. The difference in accessing these two features on one button is

>>that you press button quicker for the programs than for turning it on and

>>off. Then there is another lower button which really is two halves, one

>>half

>>to increase sensitivity or volume and the other half to decrease

>>sensitivity

>>or volume. The key here is to always remember the first click of either

>>half

>>activates it first, then you press a second time to either increase or

>>decrease sensitivity or volume. If you briefly press the second click, it

>>is in sensitivity mode; if you press the second click longer, it is in

>>volume mode. I have made a request to my audie to have the internal beeps

>>for sensitivity and volume different, but don't know if this will happen.

>>At

>>first I inconsistently heard the internal beeps and I was not always sure

>>if

>>I heard them. Once my audie increased the volume of the beeps, my hearing

>>of

>>the beeps was better. There are internal beeps to signal when the Freedom

>>is

>>turned on or off, to tell you you have moved on to the next program and

>>the

>>number of beeps associated with each program to indicate the program

>>number,

>>to let you know each time you pushed the increase/decrease buttons, and by

>>pressing both half buttons together there were beeps signalling when the

>>tele-coil was turned on or off. Much of all this will make more sense when

>>you actually get the Freedom.

>>

>>

>>

>>

>>

>>

>>

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  • 2 weeks later...

Larry,

My surgeon recommended bilaterals at my 9 month post op. Imagine my surprise

when I heard him say, " , since you're doing so well with your first CI,

we need to think about the possibility of giving you bilaterals. What do you

think? " Well, it didn't take me long to answer that question. LOL! (I said

" Sure! Can we do it now? <grin>) As I mentioned in a previous message, the

paperwork has been submitted to insurance. My case is currently being

reviewed, so hopefully it won't be long before we hear something either way.

Implanted: 12/22/04 Activated: 1/18/05

Deafblind/Postlingual

BTE hearing aid user 20 years

Severe-profound hearing loss 10 years

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Congratulations, . Your doctor will now help you with your approval.

You will be pleasantly surprised at the difference bilateral Ci's can make;

no more distortion or sore ears from improperly fitting earmolds or

sqealing, squawking, whistling, shrieking. thumbs up! Larry

Fw: Re: inquiry

> Larry,

>

> My surgeon recommended bilaterals at my 9 month post op. Imagine my

> surprise

> when I heard him say, " , since you're doing so well with your first

> CI,

> we need to think about the possibility of giving you bilaterals. What do

> you

> think? " Well, it didn't take me long to answer that question. LOL! (I said

> " Sure! Can we do it now? <grin>) As I mentioned in a previous message, the

> paperwork has been submitted to insurance. My case is currently being

> reviewed, so hopefully it won't be long before we hear something either

> way.

>

>

> Implanted: 12/22/04 Activated: 1/18/05

> Deafblind/Postlingual

> BTE hearing aid user 20 years

> Severe-profound hearing loss 10 years

>

>

>

>

>

>

>

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  • 1 year later...

Anything that helps pain of anykind is snake oil.

May your pressure be low!

Clarence E. Grim, BS, MS, MD

Senior Consultant to Shared Care Research and Consulting, Inc.

(sharedcareinc.com)

Clinical Professor of Internal Medicine and Epidemiology Med. Col. WI

Clinical Professor of Nursing, Univ. of WI, Milwaukee

Specializing in Difficult to Control High Blood Pressure

and the Physiology and History of Survival During

Hard Times and Heart Disease today.

**************************************

See what's new at http://www.aol.com

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  • 4 months later...
Guest guest

Nope.saclorie@... wrote: The KMOV story features a CA nurse named Rona Cristiano. It states the following: "Cristiano is now leading the fight to eliminate the use of the EtG test by the California Board of Nursing, or at least change the way test results are viewed. She says she is joining with other licensed professionals including doctors, pharmacists and lawyers to officially petition the board." Does anybody know this person? From: mslizrn@...To: Ethylglucuronide Subject: Re: false positivesDate: Mon, 17 Mar 2008 19:20:11 +0000From: saclorie@...To:

Ethylglucuronide Subject: Re: false positivesDate: Mon, 17 Mar 2008 05:28:59 +0000 Personally, I get tired of all the reference to hand sanitizers, perfumes, etc. In my own case, I keep a food log and read all labels. I know that my latest positive EtG was not from incidental alcohol exposure. It must be endogenous alcohol production. -------------- Original message -------------- From: "danramo" <danramoaol> I was upset that E. coli was not mentioned. Even Lorie's last positive had E.coli in the mix. Six percent of women have E.coli living in there bladder without causing symptoms. My theory is that E. coli can pick up an ethyl group from some other organic molecule besides alcohol(i.e.mucuos)to form etg.At least KMOV has

brought etg to national attention. I thought my picture turned out ok. Remember I have predicted by the end of the year etg will bee gone. I want credit as a visionary. Dr. Skipper is a peach! Dr. Dan __________________________________________________

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Guest guest

I have never heard of her, but more power to her if she is in fact fighting

EtG!!

--------- Re: false positives

> Date: Mon, 17 Mar 2008 05:28:59 +0000

>

> Personally, I get tired of all the reference to hand sanitizers,

perfumes,

> etc. In my own case, I keep a food log and read all labels. I know that my

> latest positive EtG was not from incidental alcohol exposure. It must be

> endogenous alcohol production.

>

> -------------- Original message --------------

> From: " danramo " <danramo@...>

> I was upset that E. coli was not mentioned. Even Lorie's last positive

> had E.coli in the mix. Six percent of women have E.coli living in there

> bladder without causing symptoms. My theory is that E. coli can pick up

> an ethyl group from some other organic molecule besides alcohol

> (i.e.mucuos)to form etg.At least KMOV has brought etg to national

> attention. I thought my picture turned out ok. Remember I have

> predicted by the end of the year etg will bee gone. I want credit as a

> visionary. Dr. Skipper is a peach! Dr. Dan

>

>

>

>

>

>

>

> __________________________________________________

>

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Guest guest

why don't you just ask the reporter for contact info ?? or go to the story and blog ! has anyone followed this up with any calls to helleker from the wall street journal ?? I googled her and just got this story , lets not get all paranoid here if that is where its leading , if not excuse my mistake . she may not have given her real name is a possibility too , the reporter is quite accessible at Kmov, how about asking skipper ?? I do not find it in any way hard to believe that this is going on all over the place it has taken me 3 years to find 5 people that have been subjected to this test thru CPS and I belong to 12 child protection reform activism org's that have thousands of members on them . many folks don't even know what ETG on the slip means in many court cases . remember none of us are unique .It's Tax Time! Get tips, forms and advice on AOL Money Finance.

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Guest guest

never heard of her??? that is odd, you would think that as long as

this site has been active that surely she would have found us, and her

name would have been familiar????hmmmmmmmmmmm

The KMOV story features a CA nurse

named

> > Rona Cristiano. It states the following:

> > " Cristiano is now leading the fight to eliminate the use of the

EtG test by

> > the California Board of Nursing, or at least change the way test

results are

> > viewed. She says she is joining with other licensed professionals

including

> > doctors, pharmacists and lawyers to officially petition the board. "

> > Does anybody know this person?

> >

> >

> > From: mslizrn@...

> > Ethylglucuronide

> > Subject: Re: false positives

> > Date: Mon, 17 Mar 2008 19:20:11 +0000

> >

> > From: saclorie@...

> > Ethylglucuronide

> > Subject: Re: false positives

> > Date: Mon, 17 Mar 2008 05:28:59 +0000

> >

> > Personally, I get tired of all the reference to hand

sanitizers, perfumes,

> > etc. In my own case, I keep a food log and read all labels. I know

that my

> > latest positive EtG was not from incidental alcohol exposure. It

must be

> > endogenous alcohol production.

> >

> > -------------- Original message --------------

> > From: " danramo " <danramo@...>

> > I was upset that E. coli was not mentioned. Even Lorie's last

positive

> > had E.coli in the mix. Six percent of women have E.coli living in

there

> > bladder without causing symptoms. My theory is that E. coli can

pick up

> > an ethyl group from some other organic molecule besides alcohol

> > (i.e.mucuos)to form etg.At least KMOV has brought etg to national

> > attention. I thought my picture turned out ok. Remember I have

> > predicted by the end of the year etg will bee gone. I want credit

as a

> > visionary. Dr. Skipper is a peach! Dr. Dan

> >

> >

> >

> >

> >

> >

> >

> > __________________________________________________

> >

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