Guest guest Posted July 2, 2001 Report Share Posted July 2, 2001 Hi ! I just had a baby boy 7 weeks ago, but fortunately I had no complications from my thyroid problem. I've read that it can be difficult getting pregnant, but I lucked out! My son was born 2 weeks early, but that was okay. He was 7 lbs., 11 oz., and that was big enough for me. <br><br>Take care - Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2002 Report Share Posted November 3, 2002 Kim, Hi. I'm not an expert but I have had over 15 in-patient procedures on my ears along with my first cholesteatoma surgery in late August. Based on my experience, the research I have done, and the fact that I lived in Boston for several years, I would strongly recommend that you go meet with Doctors in Boston. You can still meet with the ENT in Brockton but I would not have anything done until you've met with some of the ENTs in Boston as well. Best, > Hello > I am newly diagnosed--live in Southeastern Massachusetts and wonder > if any of you have recommendations for doctors in the area who are > either very good or, alternately, those I should avoid! > I live in Plymouth and have an appt with an ent in Brockton next > Tuesday...should I go to boston instead? Thanks for any advice! > kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2003 Report Share Posted February 4, 2003 I know of two women who have had the gastric bypass and were hypo. They both lost weight but only about 100 lbs. Both are now in the 250 range. I know that one said that she stopped losing when she started drinking pop again...that might be something to stay away from. My guess is that you will lose weight but maybe not down quite as much as you would like. Synthroid sucks. If I were you I would look into Armour thyroid. It's been a much better option for me. A lot of my symptoms went away with it and my body temp finally is higher. Now I average 97.6-97.9 Before I was always below 97.2 and sometimes in the 96 range. The day of your surgery is my dad's 50th B-Day. I will be wishing you all the best and you will have to let us know how you are doing. Janine (oh and I'm 24 and 340ish pounds) > Hi guys > Im from Iowa. I have had hypothyroidism since Fall of 95 and > have had to have my synthroid upped almost yearly every since....my > most recent up was to .325 which Im told is very high. > I dont know why it goes into the normal range for a while and then it > gets off and I need it upped...its wierd. > I was wondering if any of you have had the DS/bpd weight loss > surgery...or any other wls for that matter and been successful in > losing weight even tho you are hypo? > Im 30 5'5 485# and having the DS/bpd (http://www.duodenalswitch.com) > on 2-20-03 (Please pray for me) and am all worried I will have the > surgery and not be able to lose weight due to being hypo! > Please email me at LJS@n... if you have had wls especially the > Ds/bpd and lost all your excess weight. > Thanks! > HUGS and HEALTH to all > > iowa_cuddles Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2003 Report Share Posted February 13, 2003 Hi Patty, welcome. I came from " Celexa " too I am very sensitive to these meds, so i had a period of adjustment for sure. I take it at night, 7-8 pm. I am still tired from it, same as C, but less dizzy, less headaches -but i still get them. 'Gained a good 25 lbs on C, it's still there with Lex! 10 is the basic dose, equivelent to 20 of C. You may feel after a couple weeks that Lex is a stronger drug. I take it for anxiety though, and everyone reacts differntly, no doubt! But, give it a good chance to work. As it seems to work on a deeper level than C, and is a cleaner SSRI. Nothing is perfect though... Faiv > Just a couple of questions from old Celexa user! > > What dosage do most people start at on Lexapro? I know 20mg was starting on > Celexa but I started at 10mg. > > How long before you notice a difference? > > Do you take it at night or in morning? I use to take Celexa at night, it made > me sleepy taking it in morning. > > Last but not least....weight gain or loss? > > Thanx so much for any suggestions or help. > > Patty > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2003 Report Share Posted February 13, 2003 > Just a couple of questions from old Celexa user! > > What dosage do most people start at on Lexapro? I know 20mg was starting on > Celexa but I started at 10mg. > > How long before you notice a difference? > > Do you take it at night or in morning? I use to take Celexa at night, it made > me sleepy taking it in morning. > > Last but not least....weight gain or loss? > > Thanx so much for any suggestions or help. > > Patty > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2003 Report Share Posted February 14, 2003 Patty : I started with 5Mg and was taking it at night. I had really bad night sweats and sleeplessness. Was zoned out all day and I thought was the lex but I think was really the lack of sleep. I switched to mornings and normally sleep like a rock now and the buzz from the lex wakes me up rather then keeps me up at night. I have always been pretty sensitive to med's so I was supposed to jump to 10Mg but seem to be doing good on just 5Mg so why push it? Church, friends, therapy and activities have helped. Don't think the med's do it on their own.... :-) BoB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2003 Report Share Posted February 14, 2003 >I take my Pill in the morning and I only take .5 mg. It seems to work out for me that way so far. Hi ... I am glad you typed this. You're the first one doing the same as what I do. :-) >Taking Celexa,I noticed a slight weight gain..... I probably gained 10-15 lbs. Have not gained any more since starting Lexapro. I would like to lose the ten.....that is my goal. I have actually managed to loose 21 # on lex in 3 weeks, but it's not the med's as much as me controlling what I stuff in my face :-) BoB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2003 Report Share Posted February 15, 2003 welcome ! you should find this emailing information very helpful I have been on the diet for over a year now, and I feel great and have lost over 30 lbs. good luck to you! Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2003 Report Share Posted February 15, 2003 Thanks for the welcome, Deb. I have already found this to be useful. My partner, who is also O+, and I went out for dinner tonight for the first time since being on t he diet, or eating this way, and we had steak and lobster with vegies and it was quite filling. I have always been a big meat eater, even as a kid when my friends wanted candy, I wanted meat! lol.. guess my body knew then. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2003 Report Share Posted April 24, 2003 Pat C--welcome aboard!!! glad to see you here -- snoopy in RI -bilateral Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2003 Report Share Posted April 24, 2003 Hi Pat, It's so great to see you here. I hope you are healing well. I admire you so much for the courage to have the non functioning implant explanted and replaced with a new one. I can't imagine the emotions you dealt with when this happened to you and I'm glad that it all was taken care of very quickly so you didn't have to wait long. It's going to be great to read about your hook up. I've heard that there is an adjustment period again but not as long as the first one. I found that there was an adustment with the bilateral implant but it was only hours rather than weeks. By nighfall, I was able to hear without lipreading and use the phone. My guess is that I already knew what to expect from the sound so my brain said - yes - we know what to do with that. Keep us informed. Your experience is valuable to this group. Alice N24 11/99 N24C 04/03 Bilateral <Then in March, the CI failed & tests showed it was simply failure from unknown cause.It was removed & a new device implanted (same ear) at Ohio State Univ hospital,4/15/03.Surgery went fine & all electrodes were shown to be working in the new CI.I'm healing fast...no problems so far & will be hooked up 5-27th.Will let you know how it goes.PatC> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2003 Report Share Posted April 24, 2003 Hello Pat, Many congratulations to you for taking that step to get another implant after the first one failed. Although it's unfortunate that you had to be explanted, it's great that you are able to take advantage of the newer technology. I'll be looking forward to hearing all about your hook up and hope all heals well and quickly. Wishing you much success, Silly in MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2003 Report Share Posted April 24, 2003 Pat...Welcome to the group. Glad you are healing well and wish you the best on hookup... Sharon Myers Patti <myplace305@...> wrote:Hello,all.I see some familiar names from the other forum.Someone sent me the url for this group & have been reading the posts.I was born hearing, then nerve deafness was well started by my teen yrs & got worse as time went by.My Grfather was deaf, but I didn't know him or his history. I'm new here, not a new CI user.Had the CI 3/01 & was in no way a star user.Enviromental sounds were great & I learned to recognize them.It helped with lip reading, but wasn't able to use the phone, nor hear much in noisy situations.At age 62, I didn't expect perfection, but the CI was better than HAs for me. Then in March, the CI failed & tests showed it was simply failure from unknown cause.It was removed & a new device implanted (same ear) at Ohio State Univ hospital,4/15/03.Surgery went fine & all electrodes were shown to be working in the new CI.I'm healing fast...no problems so far & will be hooked up 5-27th.Will let you know how it goes.PatC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2003 Report Share Posted April 25, 2003 Thank you Alice & everyone for the warm welcome.I healed quickly after the 1st implant & doing the same now.I'm very lucky ,in not having any post op problems.Had a couple bouts of tinnitus...each different in sound. One was the roaring train(lasted 2 hrs) & the other was like cracking from a fire...that only lasted a couple minutes.I slept a lot,prob from the med.Surgery was on a Tuesday & I was able to discontinue med Saturday.Just had a few twinges in the surgical site,nothing to speak of.The turban was removed the following day & the incision is looking good.I also had the smaller cut...with less hair shaved.I have a wonderful surgeon & audie. They're also waiting for hook up & seeing the results.PatC > Hi Pat, > > It's so great to see you here. I hope you are healing > well. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2003 Report Share Posted April 25, 2003 Hi Patti Welcome to CIHEAR!It is nice to have someone near to my age to chat with..I am 64.I hope all goes well with your new implant..I have had problems too but not with failed devices..my problem is wih my electrodes that is caused by otosclerosis.I was able to keep my first impant and was sequentially implanted in my other ear.I wish you the best of continued hearing this time!! Love Dora Newbie Here Hello,all.I see some familiar names from the other forum.Someone sent me the url for this group & have been reading the posts.I was born hearing, then nerve deafness was well started by my teen yrs & got worse as time went by.My Grfather was deaf, but I didn't know him or his history. I'm new here, not a new CI user.Had the CI 3/01 & was in no way a star user.Enviromental sounds were great & I learned to recognize them.It helped with lip reading, but wasn't able to use the phone, nor hear much in noisy situations.At age 62, I didn't expect perfection, but the CI was better than HAs for me. Then in March, the CI failed & tests showed it was simply failure from unknown cause.It was removed & a new device implanted (same ear) at Ohio State Univ hospital,4/15/03.Surgery went fine & all electrodes were shown to be working in the new CI.I'm healing fast...no problems so far & will be hooked up 5-27th.Will let you know how it goes.PatC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2003 Report Share Posted August 2, 2003 , It sounds like a c-toma, drainage, smell, infection that won't go away. My son was diagnosed at 6 with the same. Don't worry, she will be alright now that it is being discovered. It sounds like your daughter has had it for awhile. Delay in diagnosis is a common problem for most of c-toma patients. My advice as a mom who's been through this is that she should see an Otologist which is an ENT who specializes in Ear Only. They are usually more qualified since they have more experience with diseases of the ear. Since she is uncomfortable, try to get the medical professionals to move as fast as you can with this. The longer c-toma is left untreated, the more extensive the damage. The c-toma could be effecting her balance so it needs to be taken care of as soon as possible. Lastly, make sure you know the extent of her hearing loss and make sure she can hear what she needs to hear in order to not delay her learning of reading. My son is virtually deaf in his left ear and has learned to compensate. I insure his seat is place appropriately in the classroom and that people like athletic coaches know that he needs to see their lips in noisy situations. We are hoping to get reconstructive surgery done in late fall where we hope some of his hearing will be restored. She will have to have surgery but it will be ok. This is a great forum for your questions and support. Those c-tomas are nasty things but you will all get through it. Welcome to the club, maybe you didn't volunteer to join but........Let us know how it goes. Dorothy Newbie here Hello, I just learned today about C-toma's and thought I would join this site as I am so in the dark and a bit frightened about what I have seen so far in my research. My name is and my husband Tim and I found today that our 4 year old daughter Lena may have a C-toma. It has not yet been confirmed by her Pediatric ENT but she shows all the signs. she had tubes at age two in both ears after continuous infections since birth. I informed her Ped about 1 1/2 years ago of her hearing loss in her right ear. He suggested we wait until her 4yr well check as they do hearing tests routine at that visit. She failed and was then seen by an ENT different than he who placed the tubes and suposedly passed. Each doc's told me the tube in that ear was displaced and seem to be stuck in a glob of wax and that I should flush out the ear. Thank God I never got the nerve to do this as about four weeks ago, she had puss and blood coming from that ear. The infection was so severe the Ped could not see anything. So for her follow up today, he suspects a C-toma and wants her to return to her Pediatric ENT immediately. She has not been sleeping well for sometime now, recurring headaches, I recently noticed an oder that seem to improve after infection was gone but now had been noticeable. She fell off a dining room chair four times in the last two days and the office chair today while playing on the computer. Any comments are welcome. I especially would like to know about the type of surgery likely for this age, if in deed it is a Cholesteatomaand what we should expect.Thanks, Columbus, Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2003 Report Share Posted August 3, 2003 G,day and Tim I hope all goes well for your daughter. It is frightening, but I think as parents we are more scared than the child. An operation is the only possible means of getting clear of the c-toma followed by reconstructive surgery (in Nick's case anyway). I like Dorethy also ensure that Nick sits in the front of the class and that his coaches know to look at him when talking. We also use a television with teletext and use the subtitles as Nick is behind in his reading, however this method seems to be helping him. Let us know how you all get on mate. Debbie Newbie here Hello, I just learned today about C-toma's and thought I would join this site as I am so in the dark and a bit frightened about what I have seen so far in my research. My name is and my husband Tim and I found today that our 4 year old daughter Lena may have a C-toma. It has not yet been confirmed by her Pediatric ENT but she shows all the signs. she had tubes at age two in both ears after continuous infections since birth. I informed her Ped about 1 1/2 years ago of her hearing loss in her right ear. He suggested we wait until her 4yr well check as they do hearing tests routine at that visit. She failed and was then seen by an ENT different than he who placed the tubes and suposedly passed. Each doc's told me the tube in that ear was displaced and seem to be stuck in a glob of wax and that I should flush out the ear. Thank God I never got the nerve to do this as about four weeks ago, she had puss and blood coming from that ear. The infection was so severe the Ped could not see anything. So for her follow up today, he suspects a C-toma and wants her to return to her Pediatric ENT immediately. She has not been sleeping well for sometime now, recurring headaches, I recently noticed an oder that seem to improve after infection was gone but now had been noticeable. She fell off a dining room chair four times in the last two days and the office chair today while playing on the computer. Any comments are welcome. I especially would like to know about the type of surgery likely for this age, if in deed it is a Cholesteatomaand what we should expect.Thanks, Columbus, Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2003 Report Share Posted August 3, 2003 Hello and thank you Dorothy and Debbie for writing. Did either of your children suffer headaches? How did they determine the extent of hearing loss? Dorothy, does your son where a hearing devise? The machine used in her Pediatricians office is sketchy at best. She failed one then passed another. The Dr said she isn't hearing anything out of that ear now. Her hearing loss in that ear, I brought to her Pediatricians attention over 1 1/2 years ago now. I don't understand if it is so common, that they could not have realized before now. Thanks again, your help is very comforting. Newbie here Hello, I just learned today about C-toma's and thought I would join this site as I am so in the dark and a bit frightened about what I have seen so far in my research. My name is and my husband Tim and I found today that our 4 year old daughter Lena may have a C-toma. It has not yet been confirmed by her Pediatric ENT but she shows all the signs. she had tubes at age two in both ears after continuous infections since birth. I informed her Ped about 1 1/2 years ago of her hearing loss in her right ear. He suggested we wait until her 4yr well check as they do hearing tests routine at that visit. She failed and was then seen by an ENT different than he who placed the tubes and suposedly passed. Each doc's told me the tube in that ear was displaced and seem to be stuck in a glob of wax and that I should flush out the ear. Thank God I never got the nerve to do this as about four weeks ago, she had puss and blood coming from that ear. The infection was so severe the Ped could not see anything. So for her follow up today, he suspects a C-toma and wants her to return to her Pediatric ENT immediately. She has not been sleeping well for sometime now, recurring headaches, I recently noticed an oder that seem to improve after infection was gone but now had been noticeable. She fell off a dining room chair four times in the last two days and the office chair today while playing on the computer. Any comments are welcome. I especially would like to know about the type of surgery likely for this age, if in deed it is a Cholesteatomaand what we should expect.Thanks, Columbus, Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2003 Report Share Posted August 3, 2003 , My son never suffered from headaches but it is common. I don't know that it is real common but it cerainly is not rare. We have all agreed on this forum that GP's and pediatricians need to be more aware of c-tomas. Most ENT's/Otologists have audiologists and high tech equipment in their offices in order to do hearing tests. She is probably not hearing out of that ear and surgery could make it better. Basically, there is a mass in her ear and when removed, might improve hearing. However, the c-toma does some damage most of the time. (My son lost his ear drum and the three bones in his middle ear.) Now, the hearing in her bad ear will be changing over the next few months since she will undergo surgery but you should know what it is. It is probably more important to insure that her good ear is indeed, GOOD. If the doctor saids she can't hear out of the bad ear, he is probably right. Ask for her to be evaluated by the audiologist. My son does not wear a hearing aid, yet. Unfortunately he has undergone 3 surgeries since the c-toma reoccured after the first surgery. He had surgery to remove the first time, then he had reconstructive surgery but the c-toma grew back and destroyed the prosthesis and his third surgery was this Feb to remove the c-toma again. At that time he had a Canal Wall Down (CWD) surgery which removed a large piece of the mastoid bone. We are more optimistic that it will not return again. He will undergo reconstructive surgery again in late fall of this year. If reconstruction is successful, a hearing aid may not be necessary. If I were you, I would find an Otologist. My son's pediatrician does not deal at all with my son's ears anymore. She looks in them once a year and saids, wow!! He needs a specialist and I'm sure there are a few very experienced Otologists in the Columbus area. Ask the doctor when you are selecting one, how many of these surgeries they do. My son's Otologist does about 10/month. I feel more comfortable with that level of experience. Good luck Dorothy Newbie here Hello, I just learned today about C-toma's and thought I would join this site as I am so in the dark and a bit frightened about what I have seen so far in my research. My name is and my husband Tim and I found today that our 4 year old daughter Lena may have a C-toma. It has not yet been confirmed by her Pediatric ENT but she shows all the signs. she had tubes at age two in both ears after continuous infections since birth. I informed her Ped about 1 1/2 years ago of her hearing loss in her right ear. He suggested we wait until her 4yr well check as they do hearing tests routine at that visit. She failed and was then seen by an ENT different than he who placed the tubes and suposedly passed. Each doc's told me the tube in that ear was displaced and seem to be stuck in a glob of wax and that I should flush out the ear. Thank God I never got the nerve to do this as about four weeks ago, she had puss and blood coming from that ear. The infection was so severe the Ped could not see anything. So for her follow up today, he suspects a C-toma and wants her to return to her Pediatric ENT immediately. She has not been sleeping well for sometime now, recurring headaches, I recently noticed an oder that seem to improve after infection was gone but now had been noticeable. She fell off a dining room chair four times in the last two days and the office chair today while playing on the computer. Any comments are welcome. I especially would like to know about the type of surgery likely for this age, if in deed it is a Cholesteatomaand what we should expect.Thanks, Columbus, Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2003 Report Share Posted August 3, 2003 , I live in Athens (I'm a student at OU), and I tried really hard to find a good otologist in Columbus. I was really surprised that I couldn't find one. I've ended up going to Dr. Megerian in Cleveland. It's a pain having to drive 4 hours just for a doctor's appointment, especially when I have to work it out between classes and work, but it's definitely worth it. I've been dealing with c-toma for about 19 years now and have been to half a dozen different doctors. Dr. Megerian is by far the best. He's very knowledgeable, answers questions clearly, makes sure I understand what's going on, has lots of experience with c-toma and all ear diseases, and has never made me feel like he's trying to sell me surgery. When I told him that I don't feel comfortable trying reconstructive surgery again, he was fine with that and discussed other options with me. He didn't try to push it. I did need surgery just to get a clean, dry ear, though, and he got me in right away for surgery. I went in for my first appointment with him, just to sort of interview him and find out his experience, and he told me I needed surgery. I was scheduled for surgery a week and a half later. He doesn't fool around. He did a tympanoplasty in July and re-built my eardrum and re-shaped my ear canal, and I've never responded this well to surgery (this is my 12th ear-related surgery). He has 3 different offices in Cleveland, but all scheduling is done through one phone number: 216-844-5500 He has an office in Westlake, and an office at University Hospital of Cleveland. I'm not sure where the other office is. He did my surgery at UHC, and I was very pleased with the rest of the staff there as well. I know it will probably still be about a 2-hour drive for you, but I really think he's worth it. I had so many failed surgeries when I was little and I think that I wouldn't have gone through so much if I'd been going to a better doctor. Good luck, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2003 Report Share Posted August 3, 2003 and Dorothy, I cannot express how much your emails have meant to us. I really feel that I am ready to begin this journey. We will most definitely consider Cleveland and Dr. Megerian. Dorothy, I am just in awe of this monster called C-toma and the laid back attitude of those whom we expect to be qualified to treat our babies for chronic ear infections and diseases. Thanks for being so serving. I look forward to getting to know all of you better. , Tim and Lena RE: Newbie here , I live in Athens (I'm a student at OU), and I tried really hard to find a good otologist in Columbus. I was really surprised that I couldn't find one. I've ended up going to Dr. Megerian in Cleveland. It's a pain having to drive 4 hours just for a doctor's appointment, especially when I have to work it out between classes and work, but it's definitely worth it. I've been dealing with c-toma for about 19 years now and have been to half a dozen different doctors. Dr. Megerian is by far the best. He's very knowledgeable, answers questions clearly, makes sure I understand what's going on, has lots of experience with c-toma and all ear diseases, and has never made me feel like he's trying to sell me surgery. When I told him that I don't feel comfortable trying reconstructive surgery again, he was fine with that and discussed other options with me. He didn't try to push it. I did need surgery just to get a clean, dry ear, though, and he got me in right away for surgery. I went in for my first appointment with him, just to sort of interview him and find out his experience, and he told me I needed surgery. I was scheduled for surgery a week and a half later. He doesn't fool around. He did a tympanoplasty in July and re-built my eardrum and re-shaped my ear canal, and I've never responded this well to surgery (this is my 12th ear-related surgery). He has 3 different offices in Cleveland, but all scheduling is done through one phone number: 216-844-5500 He has an office in Westlake, and an office at University Hospital of Cleveland. I'm not sure where the other office is. He did my surgery at UHC, and I was very pleased with the rest of the staff there as well. I know it will probably still be about a 2-hour drive for you, but I really think he's worth it. I had so many failed surgeries when I was little and I think that I wouldn't have gone through so much if I'd been going to a better doctor. Good luck, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2003 Report Share Posted August 3, 2003 Dorothy, Otologists? I cannot find this type Dr. Only Otolaryngologists. Is this one in the same? We were planning on taking her to the same Dr who placed the tubes but now I am not sure. Think I probably need to get some rest and start fresh in the morning. Thank you for taking the time to share your story with me. Please let us know when your son's fall surgery is scheduled that we may lift you all up in our prayers. Take care, Newbie here Hello, I just learned today about C-toma's and thought I would join this site as I am so in the dark and a bit frightened about what I have seen so far in my research. My name is and my husband Tim and I found today that our 4 year old daughter Lena may have a C-toma. It has not yet been confirmed by her Pediatric ENT but she shows all the signs. she had tubes at age two in both ears after continuous infections since birth. I informed her Ped about 1 1/2 years ago of her hearing loss in her right ear. He suggested we wait until her 4yr well check as they do hearing tests routine at that visit. She failed and was then seen by an ENT different than he who placed the tubes and suposedly passed. Each doc's told me the tube in that ear was displaced and seem to be stuck in a glob of wax and that I should flush out the ear. Thank God I never got the nerve to do this as about four weeks ago, she had puss and blood coming from that ear. The infection was so severe the Ped could not see anything. So for her follow up today, he suspects a C-toma and wants her to return to her Pediatric ENT immediately. She has not been sleeping well for sometime now, recurring headaches, I recently noticed an oder that seem to improve after infection was gone but now had been noticeable. She fell off a dining room chair four times in the last two days and the office chair today while playing on the computer. Any comments are welcome. I especially would like to know about the type of surgery likely for this age, if in deed it is a Cholesteatomaand what we should expect.Thanks, Columbus, Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2003 Report Share Posted August 4, 2003 go to webmd.com and it will search for a Otoligist for you in your area. tom hansen --- <juliehgp4u@...> wrote: > Dorothy, Otologists? I cannot find this type Dr. > Only Otolaryngologists. Is this one in the same? > We were planning on taking her to the same Dr who > placed the tubes but now I am not sure. Think I > probably need to get some rest and start fresh in > the morning. Thank you for taking the time to share > your story with me. Please let us know when your > son's fall surgery is scheduled that we may lift you > all up in our prayers. > > Take care, > Newbie here > > > Hello, I just learned today about C-toma's > and thought I would join > this site as I am so in the dark and a bit > frightened about what I > have seen so far in my research. My name is > and my husband Tim > and I found today that our 4 year old > daughter Lena may have a > C-toma. It has not yet been confirmed by > her Pediatric ENT but she > shows all the signs. she had tubes at age > two in both ears after > continuous infections since birth. I > informed her Ped about 1 1/2 > years ago of her hearing loss in her right > ear. He suggested we wait > until her 4yr well check as they do hearing > tests routine at that > visit. She failed and was then seen by an > ENT different than he who > placed the tubes and suposedly passed. Each > doc's told me the tube > in that ear was displaced and seem to be > stuck in a glob of wax and > that I should flush out the ear. Thank God > I never got the nerve to > do this as about four weeks ago, she had > puss and blood coming from > that ear. The infection was so severe the > Ped could not see > anything. > > So for her follow up today, he suspects a > C-toma and wants her to > return to her Pediatric ENT immediately. > She has not been sleeping > well for sometime now, recurring headaches, > I recently noticed an > oder that seem to improve after infection > was gone but now had been > noticeable. She fell off a dining room > chair four times in the last > two days and the office chair today while > playing on the computer. > > Any comments are welcome. I especially > would like to know about the > type of surgery likely for this age, if in > deed it is a Cholesteatoma > and what we should expect. > > Thanks, > Columbus, Ohio > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2003 Report Share Posted August 4, 2003 Thanks Tom, God Bless. Newbie here> > > Hello, I just learned today about C-toma's> and thought I would join > this site as I am so in the dark and a bit> frightened about what I > have seen so far in my research. My name is> and my husband Tim > and I found today that our 4 year old> daughter Lena may have a > C-toma. It has not yet been confirmed by> her Pediatric ENT but she > shows all the signs. she had tubes at age> two in both ears after > continuous infections since birth. I> informed her Ped about 1 1/2 > years ago of her hearing loss in her right> ear. He suggested we wait > until her 4yr well check as they do hearing> tests routine at that > visit. She failed and was then seen by an> ENT different than he who > placed the tubes and suposedly passed. Each> doc's told me the tube > in that ear was displaced and seem to be> stuck in a glob of wax and > that I should flush out the ear. Thank God> I never got the nerve to > do this as about four weeks ago, she had> puss and blood coming from > that ear. The infection was so severe the> Ped could not see > anything. > > So for her follow up today, he suspects a> C-toma and wants her to > return to her Pediatric ENT immediately. > She has not been sleeping > well for sometime now, recurring headaches,> I recently noticed an > oder that seem to improve after infection> was gone but now had been > noticeable. She fell off a dining room> chair four times in the last > two days and the office chair today while> playing on the computer. > > Any comments are welcome. I especially> would like to know about the > type of surgery likely for this age, if in> deed it is a Cholesteatoma> and what we should expect.> > Thanks,> Columbus, Ohio> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2003 Report Share Posted August 4, 2003 AN Otolaryngologist is the same as an ENT (ear, nose, throat). Continue to look for an Otologist, that is where she will get the best care. It sounds like you will have to travel a little but I think it will be worth it. Many people on this forum are forced to travel to find one. found a Otologist in the Columbus area. Perhaps you should try there for the surgery. I know, on top of everything else, you might have a drive ahead of you but we're talking about her ears and the future of her hearing. It's important. When Dan was getting ready for his third surgery, I was feeling overwhelmed and a little sorry for ourselves. We went to get his CAT scan at the hospital and we were in a waiting room with children who were obviously being treated for cancer. I realized that looking at the other moms in the waiting room that if they can get through what they were going through, I could handle this. In the end, I knew my child was going to be ok, no matter what. Keep plugging away mom. You're not alone. Dorothy Newbie here Hello, I just learned today about C-toma's and thought I would join this site as I am so in the dark and a bit frightened about what I have seen so far in my research. My name is and my husband Tim and I found today that our 4 year old daughter Lena may have a C-toma. It has not yet been confirmed by her Pediatric ENT but she shows all the signs. she had tubes at age two in both ears after continuous infections since birth. I informed her Ped about 1 1/2 years ago of her hearing loss in her right ear. He suggested we wait until her 4yr well check as they do hearing tests routine at that visit. She failed and was then seen by an ENT different than he who placed the tubes and suposedly passed. Each doc's told me the tube in that ear was displaced and seem to be stuck in a glob of wax and that I should flush out the ear. Thank God I never got the nerve to do this as about four weeks ago, she had puss and blood coming from that ear. The infection was so severe the Ped could not see anything. So for her follow up today, he suspects a C-toma and wants her to return to her Pediatric ENT immediately. She has not been sleeping well for sometime now, recurring headaches, I recently noticed an oder that seem to improve after infection was gone but now had been noticeable. She fell off a dining room chair four times in the last two days and the office chair today while playing on the computer. Any comments are welcome. I especially would like to know about the type of surgery likely for this age, if in deed it is a Cholesteatomaand what we should expect.Thanks, Columbus, Ohio Quote Link to comment Share on other sites More sharing options...
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