Guest guest Posted January 17, 2007 Report Share Posted January 17, 2007 :0) I am so happy to have everyone here, too. Sharon hugging and ocd > > > > Hi - wondering if anyone out there has a child who has stopped all > > physical contact with you - mine has germ issues and basically treats > > me like a leper, if I get too close she backs off, we haven't hugged > > for months, it is tough for me but she started therapy yesterday and > > should be home from school any minute now and we are hoping she is > > feeling better - she was missing school or being very late, has been > > depressed and had a lot of anxiety. I just hope that soon she won't > > be so afraid of getting close - on a good note, she lets her friends > > hug her, but not me. And I promise her I am showered and clean, but > > no. It is really tough!!!! > > > > > > > > > > > > > > __________________________________________________________ > > Get your own web address. > > Have a HUGE year through Small Business. > > http://smallbusiness./domains/?p=BESTDEAL > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2007 Report Share Posted January 17, 2007 wrote: > > Ya know, I was thinking, it is so nice to have a place to vent and > talk about the crazy, bizarre & weird things our kids say and do. > Things that NO ONE else understands. Here it isn't weird to say that > your kid thinks about poop or wants to kiss cartoon characters (that > one is my kid!). > > " Hi, how are you fine?? Yes, us too, Ben just said he's thinking about > stabbing us with a knife. Yes, uh huh, Oh, your Suzy made honor roll, > great! " > > Oh, yes, I often think, " If they only knew! " Like when my daughter's > friend just said that she's going to take the Red Cross babysitting > course and my DD (11) piped up and said, " Oh, I already took that last > spring. It was great--they have you do actual CPR, change diapers, it > was really cool. " And here I was next to her thinking, " Right. That > was when her OCD was flaring extremely and it was probably one of the > worse days of her life. She spent the whole time thinking she was > going to vomit at any moment, running in and out of the class to " get > a drink " and thought she was going to die from anxiety exhaustion by > the time I went to pick her up at 3:00. Yep, great class! " > > Dina > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2007 Report Share Posted January 18, 2007 " I'm so thankful for this group. I've learned not to tell my friends or relatives things, if I need to talk, I come here instead. " Ditto to that..... I don't post that often but read every post, and is so nice to read about others going through what I am going through, I know I am not alone in this journey. Cheers Jaxx (New Zealand) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2007 Report Share Posted January 18, 2007 " I'm so thankful for this group. I've learned not to tell my friends or relatives things, if I need to talk, I come here instead. " Ditto to that..... I don't post that often but read every post, and is so nice to read about others going through what I am going through, I know I am not alone in this journey. Cheers Jaxx (New Zealand) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2007 Report Share Posted November 10, 2007 Thankyou, Silly Gillie!!!! In a message dated 11/10/2007 9:05:51 A.M. Pacific Standard Time, sillygillie2005@... writes: im glad I have 2 ears too! I wish there was a way I could get a refund on the defected one! Good luck in the future on your surgery..>> Hi Everyone, > > I joined this group about a month ago, and the wealth of support and > knowledge and tips I have received from reading people's posts has been wonderful. > > I had a c'toma removed 35 years ago, and other than a little hearing loss, a > few ear infections and cysts, I never had a problem with it. I feel very > grateful that my c'toma did not grow back like I have heard so many people here > tell of in their stories. I only posted here a few times, and I joined > because I was diagnosed with a brain herniation into my ear canal. This is an > unusual complication of c'toma operations. Apparently, the brain pulses with > every heartbeat and 35 years of these pulsations have worn thru my skull at > the site where my surgeon removed bone to reconstruct my hearing bones. > > I am having surgery on Tuesday to repair the base of my skull where the > brain is coming thru. The surgeon told me that there is a chance that he will > have to remove my inner and middle ear. If that happens, then I will count > myself lucky to have had 35 years of hearing and freedom from the c'toma. My > other ear is completely normal, so I am grateful that God gave me two ears, not > just one!> > This group has been a life saver to me here, there's nothing like talking to > others who share similar experiences to help me get thru tough times.> > God Bless everyone here and thank you all for sharing your experience, > strength and hope.> > Lori> > > > ************************************** See what's new at http://www.aol.com> See what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2007 Report Share Posted November 10, 2007 im glad I have 2 ears too! I wish there was a way I could get a refund on the defected one! Good luck in the future on your surgery.. > > Hi Everyone, > > I joined this group about a month ago, and the wealth of support and > knowledge and tips I have received from reading people's posts has been wonderful. > > I had a c'toma removed 35 years ago, and other than a little hearing loss, a > few ear infections and cysts, I never had a problem with it. I feel very > grateful that my c'toma did not grow back like I have heard so many people here > tell of in their stories. I only posted here a few times, and I joined > because I was diagnosed with a brain herniation into my ear canal. This is an > unusual complication of c'toma operations. Apparently, the brain pulses with > every heartbeat and 35 years of these pulsations have worn thru my skull at > the site where my surgeon removed bone to reconstruct my hearing bones. > > I am having surgery on Tuesday to repair the base of my skull where the > brain is coming thru. The surgeon told me that there is a chance that he will > have to remove my inner and middle ear. If that happens, then I will count > myself lucky to have had 35 years of hearing and freedom from the c'toma. My > other ear is completely normal, so I am grateful that God gave me two ears, not > just one! > > This group has been a life saver to me here, there's nothing like talking to > others who share similar experiences to help me get thru tough times. > > God Bless everyone here and thank you all for sharing your experience, > strength and hope. > > Lori > > > > ************************************** See what's new at http://www.aol.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2007 Report Share Posted November 10, 2007 Since I've had problems in both ears, I'm just glad I don't have 3 ears - even after all those years in the Navy's nuclear power program. :-) Crystal wrote: > > im glad I have 2 ears too! I wish there was a way I could get a > refund on the defected one! Good luck in the future on your surgery.. > > > > > > Hi Everyone, > > > > I joined this group about a month ago, and the wealth of support > and > > knowledge and tips I have received from reading people's posts has > been wonderful. > > > > I had a c'toma removed 35 years ago, and other than a little > hearing loss, a > > few ear infections and cysts, I never had a problem with it. I > feel very > > grateful that my c'toma did not grow back like I have heard so many > people here > > tell of in their stories. I only posted here a few times, and I > joined > > because I was diagnosed with a brain herniation into my ear > canal. This is an > > unusual complication of c'toma operations. Apparently, the brain > pulses with > > every heartbeat and 35 years of these pulsations have worn thru my > skull at > > the site where my surgeon removed bone to reconstruct my hearing > bones. > > > > I am having surgery on Tuesday to repair the base of my skull where > the > > brain is coming thru. The surgeon told me that there is a chance > that he will > > have to remove my inner and middle ear. If that happens, then I > will count > > myself lucky to have had 35 years of hearing and freedom from the > c'toma. My > > other ear is completely normal, so I am grateful that God gave me > two ears, not > > just one! > > > > This group has been a life saver to me here, there's nothing like > talking to > > others who share similar experiences to help me get thru tough > times. > > > > God Bless everyone here and thank you all for sharing your > experience, > > strength and hope. > > > > Lori > > > > > > > > ************************************** See what's new at > http://www.aol.com <http://www.aol.com> > > > > -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2011 Report Share Posted February 9, 2011 Great Info on this GROUP. Quote Link to comment Share on other sites More sharing options...
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