New Member

[Guest guest]

Hi Jo,

> I have recently started to visit a hypnotherapist and EFT therapist

> to overcome panic attacks I have when thinking about and going into

> restaurants. It all started 7 years ago when I started to get

severe

> symptoms of Menieres disease. ... I got very disorientated due to

the

> dizziness the illness creates, I was very sick, hot and extremely

> uncomfortable.

I you were to turn up to see me I would take you through the memory

of that particular instance when your mind formed the association

between restaurants and those symptoms.

Not sure how much you know about EFT so forgive me if I am telling

you something you already know in what follows...

The trick with EFT is to get as SPECIFIC as possible about what is

being tapped on.

This means identifying Aspects within a problem and tapping on each

one separately until they are all gone or the problem " collapses " .

Tapping on a " global " issue may have limited or no effect.

I would guess that the instructions you are currently working with

(i.e. " this fear of restaurants " ) is at too global a level. (Although

you never know till you try so it is/was perfectly reasonable to

start there).

Try thinking about specific things about the restaurant you were in

that you can remember - e.g. the layout, the tablecloths, the

glasses, the decoration, any smells or music going on etc etc.

As you think of each one, notice whether that specific thing brings

up any fear or anxiety, even slightly.

If it does, the chances are this is an aspect to work on.

e.g.

" Even though remembering the tablecloths make me anxious,... "

I would also tap on the symptoms you felt then e.g.

" Even though i felt sick... "

" Even though i felt hot and uncomfortable,... "

" Even though I felt dizzy,... "

etc

> Has anyone heard of such a fear?

In my experience most people's fears are very individual to

themselves - even though we generalise and label types of fear such

as " phobia " or " panic attack " .

Although I haven't heard of a fear of restaurants specifically, the

way your fear was set up was exactly the same way that ALL fears are

set up:

A negative emotional experience occurs in a particular place or time

and with specific objects or people present.

The mind, not knowing any better, associates that place or objects or

people with " feeling bad " .

It then " does its job " and tries to make you avoid going near

anything that resembles that situation again - and it does this by

triggering an anxiety reaction if you do go near it or THINK about

going near it.

So with you it's restaurants.

With another person I am seeing for panic attacks, it's taxis and

traffic jams.

So in that sense you are completely normal!

I say that in order to let you know that your fear of restaurants

should not be any more " tricky " to deal with using EFT than any other

sort of fear. In fact you could be rather fortunate in being able to

trace the fear back to one single memory. I hope that's some

encouragement!

Best of luck with your endeavour.

Love

________________________________________________________________

L.R. BSc MSc

Personal Coach, EFT Advanced Practitioner and Trainer, NLP

Practitioner

+44 7803 616107

www.thefuturestartsnow.com

Author of " The EFT Coach " : www.eftcoach.com

[Guest guest]

,

Thank you so much for your advise, I did a seesion last night and

really tried to go back to the first time, though there have been

many times since then I am really trying to work through them all -

it is very tiring!

After reading your e-mail I am going to try and pinpoint the

specifics. I'm glad you think I am fairly normal - when you are

going through something like this it is hard sometimes to appreciate

that!!

Thanks again

Jo

>

> Hi Jo,

>

> > I have recently started to visit a hypnotherapist and EFT

therapist

> > to overcome panic attacks I have when thinking about and going

into

> > restaurants. It all started 7 years ago when I started to get

> severe

> > symptoms of Menieres disease. ... I got very disorientated due

to

> the

> > dizziness the illness creates, I was very sick, hot and

extremely

> > uncomfortable.

>

> I you were to turn up to see me I would take you through the

memory

> of that particular instance when your mind formed the association

> between restaurants and those symptoms.

>

> Not sure how much you know about EFT so forgive me if I am telling

> you something you already know in what follows...

>

> The trick with EFT is to get as SPECIFIC as possible about what is

> being tapped on.

> This means identifying Aspects within a problem and tapping on

each

> one separately until they are all gone or the problem " collapses " .

>

> Tapping on a " global " issue may have limited or no effect.

> I would guess that the instructions you are currently working with

> (i.e. " this fear of restaurants " ) is at too global a level.

(Although

> you never know till you try so it is/was perfectly reasonable to

> start there).

>

> Try thinking about specific things about the restaurant you were

in

> that you can remember - e.g. the layout, the tablecloths, the

> glasses, the decoration, any smells or music going on etc etc.

> As you think of each one, notice whether that specific thing

brings

> up any fear or anxiety, even slightly.

> If it does, the chances are this is an aspect to work on.

> e.g.

> " Even though remembering the tablecloths make me anxious,... "

>

> I would also tap on the symptoms you felt then e.g.

> " Even though i felt sick... "

> " Even though i felt hot and uncomfortable,... "

> " Even though I felt dizzy,... "

> etc

>

> > Has anyone heard of such a fear?

>

> In my experience most people's fears are very individual to

> themselves - even though we generalise and label types of fear

such

> as " phobia " or " panic attack " .

>

> Although I haven't heard of a fear of restaurants specifically,

the

> way your fear was set up was exactly the same way that ALL fears

are

> set up:

> A negative emotional experience occurs in a particular place or

time

> and with specific objects or people present.

> The mind, not knowing any better, associates that place or objects

or

> people with " feeling bad " .

> It then " does its job " and tries to make you avoid going near

> anything that resembles that situation again - and it does this by

> triggering an anxiety reaction if you do go near it or THINK about

> going near it.

>

> So with you it's restaurants.

> With another person I am seeing for panic attacks, it's taxis and

> traffic jams.

> So in that sense you are completely normal!

> I say that in order to let you know that your fear of restaurants

> should not be any more " tricky " to deal with using EFT than any

other

> sort of fear. In fact you could be rather fortunate in being able

to

> trace the fear back to one single memory. I hope that's some

> encouragement!

>

> Best of luck with your endeavour.

> Love

>

>

> ________________________________________________________________

>

> L.R. BSc MSc

> Personal Coach, EFT Advanced Practitioner and Trainer, NLP

> Practitioner

> +44 7803 616107

> www.thefuturestartsnow.com

> Author of " The EFT Coach " : www.eftcoach.com

[Guest guest]

Carol,

Welcome to CI Hear. I'm glad to read that you have enjoyed the

website and hope you are using some of the Auditory Therapy there.

You might also go to the Children's Corner as there are some reading

exercises for children that have voice transmission and this may

help you learn to use your new hearing with a CI. Additionally -

write down all the toll free numbers you see on the television and

actually dial them (I know this sounds scary). Each one usually

gives a set of possible contacts to reach by hitting a number on

your dial pad. You can hang up as quickly as you wish (smile) but

it does offer something to listen to which is normally slowly and

clearly spoken.

The pace you use to gain hearing is an individual choice. There

really is no expected time frame but with practice and more

mappings, you will appreciate more hearing over time. Suddenly, you

will have a " CI Moment " which will probably surprise you but it will

also delight you as you realize that you have reached a turning

point.

Stay close to the list and let us be there for support and

assistance if we can do that. This is why we are here.

Congratulations on your implant. You have given yourself a

wonderful gift. BTW - Your hook up was very quick. I'm sure some

people's eyes opened wide when they saw that your activation was in

7 days but the activations are now becoming faster and faster due to

the improved surgical methods.

Alice

[Guest guest]

Carol,

Welcome to ! It's nice to see a new face on the list. <smile>

Your activation took place 7 days after surgery? How exciting!!

I had surgery back on December 22nd and am anxiously awaiting my activation

on the 18th. I can't wait and am doing my best to keep myself busy. LOL!

Again, welcome to the list! You'll find alot of great resources and helpful

information here.

Here's wishing you all the best with your CI!

Implanted: 12/22/04

Activation date: 1/18/05 (9 days and counting!)

Deafblind/Postlingual

BTE hearing aid user 19 years

Severe-profound hearing loss 9 1/2 years

[Guest guest]

Carol,

WELCOME to ! You've definitely come to the right place! I am

a soon to be CI user, and have found there are NO SILLY QUESTIONS

here. Ask away, and ask frequently! You will find many respond with

very helpful advice!

Frederick, MD

[Guest guest]

Welcome Barbara,

Our son has just seen his otologist on the 7th Jan, he has a C/toma in his left ear and my wife and I were horrified, its good to read all the success stories on here which gives us some comfort, we know he has got to have the operation and we are glad this group is here.

& (UK)

New Member

Hi, my name is Barbara. I'm new to this whole group/chat thing and I'm not real computer savvy, so please be patient, I'll get it figured out!My 4 year old son just had his first surgery to remove a large ctoma so I'm trying to get info any way that I can. This looked like a good way to start. I am amazed at how many people have ctoma's. I had never heard of it before, I was freaked out at first, I thought my son had some rare disease that no one knew about. I am glad to see support for this condition.

[Guest guest]

Hi Barbara

Most people haven't heard of ctoma. It isn't exactly rare but not common either - roughly 1 in 20,000 people get it. This support group represents the whole world (well, the computer using English speaking world at least).

I hope your son's surgery went well. It depends what the surgery was but there's a strong chance that the surgeon will need to do a "second look" operation in 6 months or a years time, to see that there is no recurrence and to reconstruct the hearing if that needs fixing. It's much less severe than ctoma surgery.

Best wishes

Phil

Hi, my name is Barbara. I'm new to this whole group/chat thing and I'm not real computer savvy, so please be patient, I'll get it figured out!My 4 year old son just had his first surgery to remove a large ctoma so I'm trying to get info any way that I can. This looked like a good way to start. I am amazed at how many people have ctoma's. I had never heard of it before, I was freaked out at first, I thought my son had some rare disease that no one knew about. I am glad to see support for this condition.

[Guest guest]

Hi Barbara. You're right about kids bouncing back! I was amazed

also. My son, who was 5 at the time, had a c'toma removed last

year. His incus was eroded as well. His surgeon tried

reconstruction at that time but the bone slipped. He is due for his

second look and reconstructive surgery on March 9th. I too wasn't

sure if reconstructive surgery was a good idea but as one of the

members pointed out to me, children have so much to learn that they

don't need a hearing problem to hold them back. If it can be fixed,

fix it. They bounce back a heck of a lot better when young. And,

if the surgeon is going in for a second look anyway, might as well

fix what's broken. But on the other hand I can't help but think,

what if the bone slips again and his hearing doesn't improve. I

guess it is a chance that I'm have to take, I think. - Dee

>

> Hi, my name is Barbara. I'm new to this whole group/chat thing and

I'm not

> real computer savvy, so please be patient, I'll get it figured out!

> My 4 year old son just had his first surgery to remove a large

ctoma so I'm

> trying to get info any way that I can. This looked like a good way

to start.

> I am amazed at how many people have ctoma's. I had never heard of

it before,

> I was freaked out at first, I thought my son had some rare disease

that no

> one knew about. I am glad to see support for this condition.

[Guest guest]

>

> Is this the group for PARENTS of children with a cochlear implant?

> If not, does anyone have any information on that group?

Hi Daisy. Welcome to the group. I am the parent of a 2 1/2(actually

she will be 3 the end of this month) little girl who has bilateral

CI. I do belong to this group and also belong to the Listen up and

CIcircle. I enjoy the parents aspect of the other groups but also I

enjoy and find lots of information from the adults with CIs on this

group. Once again welcome to the group and hope you stay with us too.

Mom of 4

marcus 14

12

Jon 11

annika 2.5

bilaterally implanted 3/1/04

hookup 3/25/04

spastic diaplegic CP

[Guest guest]

I too belong to all the mentioned groups. I have a 6 year old son

recently implanted. I found that this group has an excellent mix of

parents, children, and adult CI users. It has almost become my

lifeline. Please check out the Ci Hear website too. It has a lot of

information and I think you will find it very helpful.

Good Luck and welcome to CI hear.

[Guest guest]

Welcome to the group, I have a seven yr old who has had 2 surgeries earlier and will be going for another one in July for acquire ctoma. There are quite a few active members in this group with little children with this condition.

dej8mtj8 <dej8mtj8@...> wrote:

My son is 6 years old, last month he had surgery to remove a massive cholesteatoma in his left ear. He lost all of his hearing bones,most of his ear canal, and I believe his mastoid bone was also removed. He is doing ok all things considered. He will undergo a second surgery in August.

[Guest guest]

Hi,

My son also had a very large c-toma

removed and lost all three of his hearing bones. What kind of prognosis did

they give you for future reconstruction/hearing and the recurrence of c-toma.

With summer coming up did your doc say anything about swimming? My son had a

CWU, what about yours?

Annie

From:

cholesteatoma [mailto:cholesteatoma ] On Behalf Of dej8mtj8

Sent: Wednesday, May 18, 2005

10:44 PM

cholesteatoma

Subject: New

Member

My son is 6 years old, last month he had surgery to remove a massive

cholesteatoma in his left ear. He lost all

of his hearing bones,

most of his ear canal, and I believe his mastoid

bone was also

removed. He is doing ok all things

considered. He will undergo a

second surgery in August.

This

Cholesteatoma support group offers and provides information of a general nature

about cholesteatoma as well as members personal experiences with this disease.

The information provided is not intended to replace surgical or medical advice

or recommendations. Any information in the messages, postings or articles on

the web site should not be considered a substitute for consultation with a

medical professional to address individual medical needs. Individuals'

particular facts and circumstances will determine the treatment which is most

appropriate.

[Guest guest]

My son, who is now 17, had a horrible

c-toma discovered at age 13, that destroyed all 3 hearing bones also. He has

had 4 surgeries, and as the doctor put it, “for now, we are done with

surgery”.

He now has titanium prosthesis, permanent

ear tubes and a fantastic digital hearing aid. The entire process took about 4 years

but he is doing so well. His hearing isn’t perfect but with some training

from a great audiologist, he has learned how to hear effectively. He is

finishing up his junior year of high school, is back on the honor roll, holds a

job where he is has to hear and communicate to customers, and is trying to

figure out where to go to college. Oh, how far we have come!! It takes both

medical treatment AND counseling from an audiologist for behavior modification

to help your child reach their full potential again. Once again, I need to add

that it takes time and patience.

All the best,

A. Behr, Realtor, ABR

ERA OakCrest Realty, Inc.

2045 Valley Avenue

Winchester, VA 22601

540-450-1268 Voice Mail

540-533-3853 Cell

540-662-7111 Home

540-662-0986 Fax

From: cholesteatoma [mailto:cholesteatoma ] On Behalf Of Annie Brickner

Sent: Friday, May 20, 2005 8:33 AM

cholesteatoma

Subject: RE: New

Member

Hi,

My son also had a very large c-toma

removed and lost all three of his hearing bones. What kind of prognosis did

they give you for future reconstruction/hearing and the recurrence of c-toma. With

summer coming up did your doc say anything about swimming? My son had a CWU,

what about yours?

Annie

From: cholesteatoma [mailto:cholesteatoma ] On Behalf Of dej8mtj8

Sent: Wednesday, May 18, 2005

10:44 PM

cholesteatoma

Subject: New

Member

My son is 6 years old, last

month he had surgery to remove a massive

cholesteatoma in his left ear. He lost all

of his hearing bones,

most of his ear canal, and I believe his mastoid

bone was also

removed. He is doing ok all things

considered. He will undergo a

second surgery in August.

This

Cholesteatoma support group offers and provides information of a general nature

about cholesteatoma as well as members personal experiences with this disease.

The information provided is not intended to replace surgical or medical advice

or recommendations. Any information in the messages, postings or articles on

the web site should not be considered a substitute for consultation with a

medical professional to address individual medical needs. Individuals'

particular facts and circumstances will determine the treatment which is most

appropriate.

This

Cholesteatoma support group offers and provides information of a general

nature about cholesteatoma as well as members personal experiences with this

disease. The information provided is not intended to replace surgical or

medical advice or recommendations. Any information in the messages, postings or

articles on the web site should not be considered a substitute for consultation

with a medical professional to address individual medical needs. Individuals'

particular facts and circumstances will determine the treatment which is most

appropriate.

[Guest guest]

Hi :

My personal experience is that music is very distorted with my CI compared

to what I used to get when I heard well enough for HA's to help. I get the bass

but melody is usually irritating unless I remember the song really, really

well. I think I can hear myself in the shower tho.

Supposedly the companies are working on this. Maybe the Freedom works

better?

Hal

[Guest guest]

Hi, ! Music sometimes sounds strange with a CI, but many of us find it

improves very much with practice and a few CI users start right off hearing

music that sounds normal to them.

Right now as I type this I am listening to a CD of Judy music. One

song I knew from way back and it sounded like I remember it right away. I

have the disk on a loop and as it repeats, I am hearing more and more of the

songs I don't know.

If you know music and get a CI, you can usually put what you hear together

with your memory of music. Hearing with a CI can be like that with a lot of

things.

Go for it!

Implanted December 1988, Activated January 1989

Legally blind most of my life

Totally deaf for part of my life

Nan Rosen

_www.rosetwig.com_ (http://www.rosetwig.com/)

[Guest guest]

...

Just so you know (maybe you already do) you can choose to be implanted

in one ear and continue to wear your aid in the other.

I'm new too, but set up for a CI evaluation July 28, and I'm sooo excited!

If you haven't already done so, check out the website, click on

the implant manufacturers and have them send you their literature.

There are no strings attached!!! Also, check to see if there are any

workshops coming up in your area.

Enjoy learning.....I sure am

> Hi:

>

> My name is Tucker. I'm 30 years old and I live in North

> Carolina. I have been hearing impaired since the First Grade (1981)

> and have experienced wearing hearing aids my entire life. I attended

> hearing impaired class rooms at Welcome Elementary and learned Sign

> Language in 2nd through 4th Grades. I was later mainstreamed back

> into traditional classroom settings with the usage of Phonak FM

> systems in High School. I graduated from East son High School

> in 1993. Back in 2003, I totally lost my hearing in my left ear and

> only retained little residual hearing my left ear. I currently wear

> a Phonak Supero 411 Digital hearing aid. Even that thing is starting

> to loose it's power to help me hear in difficult situations.

>

> Since 2003, I've been seriously researching cochlear implants and

> their benefits. Since I've enjoyed performing in band/wind ensemble

> in High School, I have offten wondered if Music would sound totally

> different and unnatural with the Cochlear implant. I'm hoping to

> learn alot from others, including cochlear implant recepients. I'm

> hoping that in the near future, I could be implanted in my left or

> right ear. I am looking forward to reading the posts and

> contributing to the list.

>

> Have a great day!

> A. Tucker

> North Carolina

>

> Website (Http://visions.comet-empire.com/jamiesintro.htm

[Guest guest]

:

Thanks for welcoming me to the group. I had one CI evaluation when I

was 11 years old and that was with Dr. Kraus in Greensboro, NC.

Because my hearing loss at the time was way uneven, Dr. Kraus said

he would wait until my hearing got totally worse in both ears. Now

since most of my hearing is gone, I'm virtually deaf and in a silent

world with out my hearing aid in my left ear. I was supposed to head

to Baptist Hospital in Winston Salem, NC last November but that got

screwed up when I got laid off from my job and effectively caused me

to loose some great insurance that had a great chance of covering a

CI. I was bummed out for quiet a while after that so it's back to

square one again.

A while back, I did get some great and intresting Information from

Cochlear and Med-El on their implants. I like the Cochlear's better

since there seems to be more to work with and the mapping strategy

would probably not be that tough. My biggest concern is how will my

hearing sound once I'm activated. I've got good memory of sound.

Since I enjoy performing in the local Community Symphonic Band,

music is a big part of my life. I wouldn't want to hear Holst, Sousa

and Vaughn sound robotic. Since my hearing has

deteroriated, it's been very extremely hard for me to even hear the

woodwinds (especially if they're playing in the low ranges). The

Brass section always sounds great as usual though. But how will

these sounds be when I first hear through a CI when I get one?

That's my biggest concern about getting one right now. Other than

that, I would definately like to get implanted one of these days.

I'm looking forward to contributing and being apart of the group in

the coming days...

Take Care,

A. Tucker

North Carolia

> > Hi:

> >

> > My name is Tucker. I'm 30 years old and I live in North

> > Carolina. I have been hearing impaired since the First Grade

(1981)

> > and have experienced wearing hearing aids my entire life. I

attended

> > hearing impaired class rooms at Welcome Elementary and learned

Sign

> > Language in 2nd through 4th Grades. I was later mainstreamed

back

> > into traditional classroom settings with the usage of Phonak FM

> > systems in High School. I graduated from East son High

School

> > in 1993. Back in 2003, I totally lost my hearing in my left ear

and

> > only retained little residual hearing my left ear. I currently

wear

> > a Phonak Supero 411 Digital hearing aid. Even that thing is

starting

> > to loose it's power to help me hear in difficult situations.

> >

> > Since 2003, I've been seriously researching cochlear implants

and

> > their benefits. Since I've enjoyed performing in band/wind

ensemble

> > in High School, I have offten wondered if Music would sound

totally

> > different and unnatural with the Cochlear implant. I'm hoping to

> > learn alot from others, including cochlear implant recepients.

I'm

> > hoping that in the near future, I could be implanted in my left

or

> > right ear. I am looking forward to reading the posts and

> > contributing to the list.

> >

> > Have a great day!

> > A. Tucker

> > North Carolina

> >

> > Website (Http://visions.comet-empire.com/jamiesintro.htm

[Guest guest]

Hi

Ah finally someone else from NC

I have a meeting woth someone from Voc Rehab on July 20th to discuss

serveral things; one is the possibility of meeting up with CI users in my area

as

i've only been here for 2 years and don't know any CI users.

Ok here's my 2 cents worth on music. I had my second re-implantation (long

story) in February and was activated in March. I find music is great now,

but I started off by listening to familiar music via my personal stereo, that

way the music is fed diectly to the implant with no background noise. Once I

got used to that, I 'progressed' to listening on my computer, in my friends

truck and other places.

Take care

Vickie

[Guest guest]

Hi Hal:

Yeah, I just heard about the Freedom speech processor. I went to the cochlear

site tonight and see if it had been updated and saw that the Freedom processor

makes music sound so much clearer...I wanted originally the Nucleus 24 but

now..I'm going hmmm....maybe I ought to see about getting the freedom

instead....But anyway, how do all the other sounds sound to you? Do they sound

natural or electronic?

Take Care,

halfencer@... wrote:

Hi :

My personal experience is that music is very distorted with my CI compared

to what I used to get when I heard well enough for HA's to help. I get the bass

but melody is usually irritating unless I remember the song really, really

well. I think I can hear myself in the shower tho.

Supposedly the companies are working on this. Maybe the Freedom works

better?

Hal

[Guest guest]

Hey !

It's great to be apart of the group. I very much agree with your insight. Alot

of music I enjoy listening too includes, country, southern gospel, contemporary

Christain, 80's, 60's and 50's music. But my favorite music is instrumental

music (especially Wind Band music). Here lately, I'm having to turn up my

computer speakers away to loud just to hear the melody and some parts I can't

hear because of the soft sounds. But overall, like a CI user I'm having to rely

on memory for most parts I can't here to fill in blanks . I've never heard of

Judy . Is she any relation to Phil . Phill was one of my

favorite 80's artists.

Take care,

A. Tucker

North Carolina

NanRosen@... wrote:

Hi, ! Music sometimes sounds strange with a CI, but many of us find it

improves very much with practice and a few CI users start right off hearing

music that sounds normal to them.

Right now as I type this I am listening to a CD of Judy music. One

song I knew from way back and it sounded like I remember it right away. I

have the disk on a loop and as it repeats, I am hearing more and more of the

songs I don't know.

If you know music and get a CI, you can usually put what you hear together

with your memory of music. Hearing with a CI can be like that with a lot of

things.

Go for it!

Implanted December 1988, Activated January 1989

Legally blind most of my life

Totally deaf for part of my life

Nan Rosen

_www.rosetwig.com_ (http://www.rosetwig.com/)

[Guest guest]

Hi ,

welcome aboard. Either your comment was a " tongue-in-cheek " reply or you've

been living under a rock for the past 40 years.

Judy has one of the purest voices I've ever heard, whether while the

ears still worked, later when hearing aid assisted or finally CI bypassed.

You've really never heard her? " Both Sides Now " ? " Send In The Clowns? "

" Amazing Grace " ?

have a look here http://www.judycollins.com/index1.php3

So go get the CI and start to hear real music.

NZ

> Re: New Member

>

>

> Hey !

>

> It's great to be apart of the group.. ...I've never heard of

> Judy . Is she any relation to Phil .

>

> Take care,

> A. Tucker

> North Carolina

>

>

>

[Guest guest]

Hi ,

Welcome to the list! <smile>

Everyone's experience with music is different. For some people music sounds

mechanical or distorted. For others it sounds very close to what they

remember with or without hearing aids.

When you have your CI and start to enjoy music, the best advice I can give

you is to experiment with listening to various genres to find out what

sounds best to you. I particularly enjoy listening to instrumental solo

music (such as piano or harp) as well as jazz. I also enjoy listening to

music I grew up with during the 70's and 80's. When I listen to the music I

remember before I lost my hearing, some of it sounds better than it ever did

with hearing aids while some of it sounds completely different from what I

remember. Thanks to my CI, I can hear the different layers within a song --

vocals, instrumentals, harmony and melody. With hearing aids, music was

limited to drum beats and low bass notes.

Once you find a genre or songs you enjoy, listen to them again and again.

Repetition is key so that your brain learns how to interpret what it hears.

The more often you hear a song, the better it will sound and the easier it

will be for you to recognize.

You may also want to print out song lyrics so you and a hearing friend or

family member can follow along.

I hope these suggestions were helpful! My CI has been activated for 6 months

and music sounds better than it ever did with hearing aids. It will for you

too!

Implanted: 12/22/04 Activated: 1/18/05

Nucleus 24 Contour Advance with 3G

Deafblind/Postlingual

BTE hearing aid user 20 years

Severe-profound hearing loss 10 years

[Guest guest]

I find music is different, but not necessarily worse. Because I had a bit of

hearing left in the lower frequencies, bass was what I used to hear. Now,

because the electrode cant get right into the small end of the cochlear

where the bass notes are detected, I don't hear the bass but the mid & upper

frequencies are great. Something that really annoys is that I can now hear,

and understand rap, which I loathe with a passion. Previosly it was just

thud-thud-thud and while irritating, I could ignore it.

I will admit that soon after activation music was really bad, but in the six

months since its got much better and I expect it to go on getting better as

time goes on.

As always, your mileage may vary..

NZ

> Re: New Member

>

>

> Hi :

> My personal experience is that music is very distorted with

> my CI compared

> to what I used to get when I heard well enough for HA's to

> help. I get the bass

> but melody is usually irritating unless I remember the song

> really, really

> well. I think I can hear myself in the shower tho.

> Supposedly the companies are working on this. Maybe the

> Freedom works

> better?

>

> Hal

>

>

>

[Guest guest]

,

Thanks for sharing your story. I just wanted to say that I admire you

for having gone through getting an implant, even if things aren't as

good as you'd hoped for....things might still improve though. As far

as going for a second (bilateral) if I were in your shoes (and I

haven't yet had one implant, LOL) I would definitely go for it. I have

talked to many bilateral folks and even met some at a workshop

recently...and I was very impressed with their testimonies. Life is

now, is what I always say...if you have a chance to better it, go for

it!

> Hello everyone

>

> My name is and I lost my hearing in a span of two years (I'm

> 53)becoming totally deaf in Sept. 04. I had a CI in October 04 but

> because of nerve damage I'm only able to hear environmental sounds.

> I can hear the phone ring.. if I'm close to it-(even though I can't

> answer it), my dog barking, someone knocking and it helps me to lip

> read..I can feel the vibrations of the voices.. sometimes I'm not

> sure what the sounds are I'm hearing. Needless to say I was

> disappointed but I still wear my CI everyday and thankful for the

> sounds that I do hear. It has been suggested that I try an implant

> in the other ear but they can't tell me if I have nerve damage in

> that ear beforehand. I am seriously thinking about it because I do

> miss so much not being able to hear after so many years of hearing.

>

> My first CI sent smoothly I had no pain and had the surgery as an

> outpatient. I have the Med-el Comb 40 implant.

>

> It's been almost a year for me so being deaf is still very new. I'm

> yet to get the assistive devices I need..ie- TTY or Captel, door

> alarms, etc..I'm working on it trying to get as much information as

> I can and trying to see if there is place here in Philly that help

> with these things

>

> I see my audi and doctor Sept. 6 and hopefully I would have made up

> my mind about having another implant.

>

>

>

> (F.Y.I.- My hearing loss was due to Menieres, AIED, and I also have

> Rheumatoid Arthritis)

[Guest guest]

Hi :

I'm not sure what you mean by nerve damage. Menieres killed my hearing in 02

and the doc claims it did it by breaking the cilia in the cochlea; not by

doing anything to the nerve. As a result I've had very good resuts with my CI.

In your shoes I'd sure try the other ear.

Hal