Guest guest Posted August 18, 2005 Report Share Posted August 18, 2005 Hi Hal, After my audi and the people form Med-El did some testing (EABR, ESRT my doctors specific words were: It does appear that there is a 'nerve deficit' in the right ear. The same may be true in the left. There is no test, x-ray, etc. that can tell whether this is so. So, the only option is to implant the ear and see what the response is. The alternative is to not do anything.--- After activation they had to shut down two electrodes because they were touching facial nerve. I am seriously thinking about a second implant..just wondering is anyone else experienced my problems. In , halfencer@a... wrote: > Hi : > I'm not sure what you mean by nerve damage. Menieres killed my hearing in 02 > and the doc claims it did it by breaking the cilia in the cochlea; not by > doing anything to the nerve. As a result I've had very good resuts with my CI. > In your shoes I'd sure try the other ear. > > Hal > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2005 Report Share Posted September 16, 2005 Hi My name is Jody and I live in North Carolina. I am going to have a fill in Winston Salem, better than having to travel to Mexico. The fills are $250. without fluro...and the doc there doesn't think you need fluro but is set up at the hospital in case you insist. He charges an additional $75.00 for that plus there is the outpatient hospital charge. I too am relatively new, banded on the 17th of August and anxious to start solid food. If you don't think it is too far to come...let me know and I can give you his number. Good luck......hope you are feeling well. Jody Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2005 Report Share Posted September 16, 2005 Welcome to the board, Dianne, I live in Texas so I can't help you on a fill doctor but good luck and keep us up to date on your progress. Tracie B. 248/217 DOB 6/24/05 New Member Hi out there!! I was banded Sept.5th and Nina recommended I join the group. Maybe bugging her with too many questions!! :-) I live in the western part of Virginia and haven't yet found a Dr. to use for a fill when it is time. Does anyone know of someone good close by me?? How much can the price vary?? I'm looking forward to the group support. I only know of 1 other person in my area that has had the surgery (with another Dr. in Mex.), but she has said thru a friend of mine, that she doesn't like to talk about the surgery though she has had a good outcome because she doesn't want it to be common knowledge that she had the surgery!?? I'm going to tell everyone who notices my weight loss!! I have a long way to go but am glad to have taken the first big step. I do have a suggestion for Almater Hosp. It would have been a big help to have a support bar to grab while trying to stand from the toilet after surgery. The toilets are low and it was hard to get a grip on the wall to help. I tried to move the shower seat over but it would just be easier to have the handicap bar already there. Just a thought. Dianne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2005 Report Share Posted September 16, 2005 I was wondering if it is normal for a fill doctor to ask you to get and upper GI before getting a fill so they can locate to port? Would the x- ray from Mexico allow them to find the port. Thanks, Deborah F. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2005 Report Share Posted September 16, 2005 That doesn't sound right at all, sounds like they don't understand what a fill is or don't know how to give one. You can't locate the port from an upper GI anyway. M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2005 Report Share Posted November 27, 2005 , It's nice to see a new face on the list. Welcome! I'm one of those people you already know from another forum. <smile> I've been a member of for over a year and am now one of the moderators. I hope you enjoy the list and find it to be a valuable source of information and support! Again, welcome!! Implanted: 12/22/04 Activated: 1/18/05 Deafblind/Postlingual BTE hearing aid user 20 years Severe-profound hearing loss 10 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2006 Report Share Posted March 4, 2006 hello Louise in NJ, My name is Larry, and I am also late-deafened and totally blind due to Norries disease. I wear a 3G by Nucleus on my left ear, and a Nucleus Freedom on my right. My implants have rescued me from a world of silence and despair. I speak with strangers on a cell phone, cordless phone, and my straight line phone. I appreciate almost any music. (I don't consider rap a music type.) I also listen to the radio and American Justice is my favorite tv program. ttys Larry new member > Hi, > > I seem to have had a problem posting to this list and hope this goes > through. > I'm Louise from NJ and have a necules 3G implant and looking to > talk to others with implants to see how they are progressing. > I am late deafened. > Thank you for your time. > Louise NJ > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2006 Report Share Posted March 4, 2006 Hi Louise. I'm Irv in Northern California wit a Nucleus Freedom implanted in my worse(right) ear. I was activated on October 7th of last year, and could hear speech clearly immediately....probably because I am late deafened( I am 70 years old) and have a good audio memory. Three days later, I could hear using the speakerphone. All is going well EXCEPT for music. It still sounds tinny and not as I remembered despite my Audie's attempt to improve it. I am VERY happy with my progress. By the way, I lived in Bloomingdale , N.J. for a few years, and moved out here in 1984. My older daughter still lives there. Remember, Louise, we are all different and progress at different rates. Our motto at is " low expectations and high hopes " . Most of our list members have worked very hard to be where they are today. My neighbor across the street has a 3G like you, and still has trouble on the phone after a few years. Like the man who arrived at Grand Central Station in New York and asked the policeman " How do you get to Carnegie Hall? " . The cop said Practice, practice, practice " . Same is true for CI's, If you haven't visited the website, you should. It has a lot of valuable info. Should you wish to read the play by play description of my CI journey, go to: http:// irvscijourney.blogspot.com . Welcome to the group!!! Louise <Lomart> wrote: Hi, I seem to have had a problem posting to this list and hope this goes through. I'm Louise from NJ and have a necules 3G implant and looking to talk to others with implants to see how they are progressing. I am late deafened. Thank you for your time. Louise NJ Irv in Ca. Implanted(Freedom) - Sept. 13, 2005 Activated - Oct. 7, 2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2006 Report Share Posted March 4, 2006 Hello Larry,Thank you for the welcome to this group. Since I have gotten my CI ( Left ear implanted and no hearing in the right ear ) I am able to use a cell phone and land line with no other assistance and can hear people talking in another room. Music did not come to me right away as the voices of singers did not sound right at the beginning but, now I'm able to listen to all types of music again. For me my favorite show is " Lost " and " Grays anatomy " Louise NJ -----Original Message----- From: [mailto: ]On Behalf Of larry wilson hello Louise in NJ, My name is Larry, and I am also late-deafened and totally blind due to Norries disease. I wear a 3G by Nucleus on my left ear, and a Nucleus Freedom on my right. My implants have rescued me from a world of silence and despair. I speak with strangers on a cell phone, cordless phone, and my straight line phone. I appreciate almost any music. (I don't consider rap a music type.) I also listen to the radio and American Justice is my favorite tv program. ttys Larry new member > Hi, > > I seem to have had a problem posting to this list and hope this goes > through. > I'm Louise from NJ and have a necules 3G implant and looking to > talk to others with implants to see how they are progressing. > I am late deafened. > Thank you for your time. > Louise NJ ---------------------------------------------------------------------------- -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2006 Report Share Posted March 4, 2006 Hi Irv, So you were a Jersey-itte once ? I was born and raised in Jersey,just a old country gal. By what you have told me your CI was a complete success. I never thought I would hear all the wonderful things I had missed for many years again. I do know one thing living here ,it did take me time to get use to all the noise birds can make early in the morning...Ha Ha I think the one thing that help me hear things so quickly was I never let my brain forget what things did sound like. I would always imagine I could hear birds sing and could hear music but, in reality I never could. Thank you again for the warm welcome and telling me a little about your self. Louise NJ -----Original Message----- From: [mailto: ]On Behalf Of Irwin Starr Hi Louise. I'm Irv in Northern California wit a Nucleus Freedom implanted in my worse(right) ear. I was activated on October 7th of last year, and could hear speech clearly immediately....probably because I am late deafened( I am 70 years old) and have a good audio memory. Three days later, I could hear using the speakerphone. All is going well EXCEPT for music. It still sounds tinny and not as I remembered despite my Audie's attempt to improve it. I am VERY happy with my progress. By the way, I lived in Bloomingdale , N.J. for a few years, and moved out here in 1984. My older daughter still lives there. Remember, Louise, we are all different and progress at different rates. Our motto at is " low expectations and high hopes " . Most of our list members have worked very hard to be where they are today. My neighbor across the street has a 3G like you, and still has trouble on the phone after a few years. Like the man who arrived at Grand Central Station in New York and asked the policeman " How do you get to Carnegie Hall? " . The cop said Practice, practice, practice " . Same is true for CI's, If you haven't visited the website, you should. It has a lot of valuable info. Should you wish to read the play by play description of my CI journey, go to: http:// irvscijourney.blogspot.com . Welcome to the group!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2006 Report Share Posted March 4, 2006 Hello Gayle, I'm so glad to be amongst you all. It took me seven years to get the courage up to get my CI. I did try one in 1997 but developed a severe infection and the implant had to be removed. Now that I have done it I wonder why I was so sacred all those years before.I could have been hearing years ago. I wish you luck and hope you will tell me all about your journey to your CI. Louise NJ -----Original Message----- From: [mailto: ]On Behalf Of Gayle Tiana Northcott FIRST: Welcome aboard to Louise. You will get many valuable information from all the great people here. I am on a long waiting list to get my tail into the front door for an evaluation. My name is Gayle Tiana Northcott aka Dolly Dolphin (you will noticed as time goes by my using fins, tail, etc.). I am from Winnipeg, Manitoba, Canada. Hard of Hearing (HOH) and legally blind with Retinitis Pigmentosa (RP). Age 62 but hopping into 63 this June. SECOND: Irv, I think your website is incomplete as I tried to get in but it said Page not Found. Please check it as there seem to be spaces between " // " and " irv " . go to: http:// irvscijourney.blogspot.com . Welcome to the group!!! Dolly Dolphin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2006 Report Share Posted March 4, 2006 FIRST: Welcome aboard to Louise. You will get many valuable information from all the great people here. I am on a long waiting list to get my tail into the front door for an evaluation. My name is Gayle Tiana Northcott aka Dolly Dolphin (you will noticed as time goes by my using fins, tail, etc.). I am from Winnipeg, Manitoba, Canada. Hard of Hearing (HOH) and legally blind with Retinitis Pigmentosa (RP). Age 62 but hopping into 63 this June. SECOND: Irv, I think your website is incomplete as I tried to get in but it said Page not Found. Please check it as there seem to be spaces between " // " and " irv " . go to: http:// irvscijourney.blogspot.com . Welcome to the group!!! Dolly Dolphin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2006 Report Share Posted March 4, 2006 LOL, no my fins and tail behave themselves. Here is what I got on at my end: http:// irvscijourney.blogspot.com As you can see only " http:// " was underline with couple blank spaces then the rest of your addy. So when I click onto the underline that is when I got the Page not Found type message. I was not sure if there should have been something else before your " irv.... " . Both my fins and tail had a race to click onto the one you just sent and yes I got in this time, lol. Enjoyed the update (I had read all your information before your latest update). Thanks for sending the full addy to me. Dolly Dolphin Re: new member Hi Louise. I'm Irv in Northern California wit a Nucleus Freedom implanted in my worse(right) ear. I was activated on October 7th of last year, and could hear speech clearly immediately....probably because I am late deafened( I am 70 years old) and have a good audio memory. Three days later, I could hear using the speakerphone. All is going well EXCEPT for music. It still sounds tinny and not as I remembered despite my Audie's attempt to improve it. I am VERY happy with my progress. By the way, I lived in Bloomingdale , N.J. for a few years, and moved out here in 1984. My older daughter still lives there. Remember, Louise, we are all different and progress at different rates. Our motto at is " low expectations and high hopes " . Most of our list members have worked very hard to be where they are today. My neighbor across the street has a 3G like you, and still has trouble on the phone after a few years. Like the man who arrived at Grand Central Station in New York and asked the policeman " How do you get to Carnegie Hall? " . The cop said Practice, practice, practice " . Same is true for CI's, If you haven't visited the website, you should. It has a lot of valuable info. Should you wish to read the play by play description of my CI journey, go to: http:// irvscijourney.blogspot.com . Welcome to the group!!! Louise <Lomart> wrote: Hi, I seem to have had a problem posting to this list and hope this goes through. I'm Louise from NJ and have a necules 3G implant and looking to talk to others with implants to see how they are progressing. I am late deafened. Thank you for your time. Louise NJ Irv in Ca. Implanted(Freedom) - Sept. 13, 2005 Activated - Oct. 7, 2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 My son wears a 3G in his right ear. And I been considering bilaterel implants and I would love to get the freedom in his left ear. Do u like the freedom? Which one do u prefer? Do u use a haitis with ur cell phone to talk? Thanks!! larry wilson <lwilson005@...> wrote: hello Louise in NJ, My name is Larry, and I am also late-deafened and totally blind due to Norries disease. I wear a 3G by Nucleus on my left ear, and a Nucleus Freedom on my right. My implants have rescued me from a world of silence and despair. I speak with strangers on a cell phone, cordless phone, and my straight line phone. I appreciate almost any music. (I don't consider rap a music type.) I also listen to the radio and American Justice is my favorite tv program. ttys Larry new member > Hi, > > I seem to have had a problem posting to this list and hope this goes > through. > I'm Louise from NJ and have a necules 3G implant and looking to > talk to others with implants to see how they are progressing. > I am late deafened. > Thank you for your time. > Louise NJ > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2006 Report Share Posted March 13, 2006 you have found the right place... i have the same variation of color as well , my left eye is half brown/half blue, but the brown is slowly fading over the blue, eventually i wonder if it will be all brown over my once blue eye... --- lisasidee <lisasidee@...> wrote: > Hi everyone, > I'm very new at this whole thing. I have one > brown eye, one > half blue/brown. Was working the other night and > had a few people > notice my eyes and yes, got the amazed stares that > these eyes can > often evoke. Decided to surf the web and found this > condition > actually has a name. Very new to all this... > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2006 Report Share Posted March 13, 2006 I wonder if my brown is slowly creeping over as well. It's very strange, my eye color has seemed more vivid and noticeable lately. Very strange indeed. Growing up I used to wish I was similar to everyone else because I did get teases from other children about my eyes but now that I'm an adult I wouldn't trade them for anything...Toby Teuscher <freetheweasel@...> wrote: you have found the right place... i have the samevariation of color as well , my left eye is halfbrown/half blue, but the brown is slowly fading overthe blue, eventually i wonder if it will be all brownover my once blue eye...--- lisasidee <lisasidee@...> wrote:> Hi everyone,> I'm very new at this whole thing. I have one> brown eye, one > half blue/brown. Was working the other night and> had a few people > notice my eyes and yes, got the amazed stares that> these eyes can > often evoke. Decided to surf the web and found this> condition > actually has a name. Very new to all this...> > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2006 Report Share Posted March 13, 2006 My 2 year old daughter has one blue and one brown, however, we have noticed that the top portion of her brown is now appearing green. And her blue eye seems to have a.........starbust.......not really sure how to describe it. Beautiful though. It seems that when she is dressed in medium shades of blue, the heterochromia is much more prominent. Do you guys and gals find that certain colors realy make your eyes sparkle? " St.Pierre" <lisasidee@...> wrote: I wonder if my brown is slowly creeping over as well. It's very strange, my eye color has seemed more vivid and noticeable lately. Very strange indeed. Growing up I used to wish I was similar to everyone else because I did get teases from other children about my eyes but now that I'm an adult I wouldn't trade them for anything...Toby Teuscher <freetheweasel@...> wrote: you have found the right place... i have the samevariation of color as well , my left eye is halfbrown/half blue, but the brown is slowly fading overthe blue, eventually i wonder if it will be all brownover my once blue eye...--- lisasidee <lisasidee@...> wrote:> Hi everyone,> I'm very new at this whole thing. I have one> brown eye, one > half blue/brown. Was working the other night and> had a few people > notice my eyes and yes, got the amazed stares that> these eyes can > often evoke. Decided to surf the web and found this> condition > actually has a name. Very new to all this...> > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2006 Report Share Posted March 13, 2006 and you should'nt... though i never got teaesed for mine, it only started fading when i was a teen, before then it was a very dark brown slice, like a piece of pie in my left eye. dont know why it deccided to fade but it's about half way around and is lightening the blue it has covered. if you would like you can find a pic of it on my myspace account, under my pictures link: http://profile.myspace.com/index.cfm?fuseaction=user.viewprofile & friendid=530170\ 2 --- " St.Pierre " <lisasidee@...> wrote: > I wonder if my brown is slowly creeping over as > well. It's very strange, my eye color has seemed > more vivid and noticeable lately. Very strange > indeed. Growing up I used to wish I was similar to > everyone else because I did get teases from other > children about my eyes but now that I'm an adult I > wouldn't trade them for anything... > > Toby Teuscher <freetheweasel@...> wrote: you > have found the right place... i have the same > variation of color as well , my left eye is half > brown/half blue, but the brown is slowly fading over > the blue, eventually i wonder if it will be all > brown > over my once blue eye... > > --- lisasidee <lisasidee@...> wrote: > > > Hi everyone, > > I'm very new at this whole thing. I have > one > > brown eye, one > > half blue/brown. Was working the other night and > > had a few people > > notice my eyes and yes, got the amazed stares that > > these eyes can > > often evoke. Decided to surf the web and found > this > > condition > > actually has a name. Very new to all this... > > > > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2006 Report Share Posted March 13, 2006 Wow, her eyes sound just beautiful Sometimes they are more vivid for sure, blues tend to bring out the blue a little more for sure. I've never noticed any other colour though that seems to affect it.MELANIE McMILLAN <melmcmill@...> wrote: My 2 year old daughter has one blue and one brown, however, we have noticed that the top portion of her brown is now appearing green. And her blue eye seems to have a.........starbust.......not really sure how to describe it. Beautiful though. It seems that when she is dressed in medium shades of blue, the heterochromia is much more prominent. Do you guys and gals find that certain colors realy make your eyes sparkle? " St.Pierre" <lisasidee@...> wrote: I wonder if my brown is slowly creeping over as well. It's very strange, my eye color has seemed more vivid and noticeable lately. Very strange indeed. Growing up I used to wish I was similar to everyone else because I did get teases from other children about my eyes but now that I'm an adult I wouldn't trade them for anything...Toby Teuscher <freetheweasel@...> wrote: you have found the right place... i have the samevariation of color as well , my left eye is halfbrown/half blue, but the brown is slowly fading overthe blue, eventually i wonder if it will be all brownover my once blue eye...--- lisasidee <lisasidee@...> wrote:> Hi everyone,> I'm very new at this whole thing. I have one> brown eye, one > half blue/brown. Was working the other night and> had a few people > notice my eyes and yes, got the amazed stares that> these eyes can > often evoke. Decided to surf the web and found this> condition > actually has a name. Very new to all this...> > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2006 Report Share Posted March 13, 2006 Wow, its really interesting how eye color continues to change...Toby Teuscher <freetheweasel@...> wrote: and you should'nt... though i never got teaesed formine, it only started fading when i was a teen, beforethen it was a very dark brown slice, like a piece ofpie in my left eye. dont know why it deccided to fadebut it's about half way around and is lightening theblue it has covered. if you would like you can find apic of it on my myspace account, under my pictureslink:http://profile.myspace.com/index.cfm?fuseaction=user.viewprofile & friendid=5301702--- " St.Pierre" <lisasidee@...> wrote:> I wonder if my brown is slowly creeping over as> well. It's very strange, my eye color has seemed> more vivid and noticeable lately. Very strange> indeed. Growing up I used to wish I was similar to> everyone else because I did get teases from other> children about my eyes but now that I'm an adult I> wouldn't trade them for anything...> > Toby Teuscher <freetheweasel@...> wrote: you> have found the right place... i have the same> variation of color as well , my left eye is half> brown/half blue, but the brown is slowly fading over> the blue, eventually i wonder if it will be all> brown> over my once blue eye...> > --- lisasidee <lisasidee@...> wrote:> > > Hi everyone,> > I'm very new at this whole thing. I have> one> > brown eye, one > > half blue/brown. Was working the other night and> > had a few people > > notice my eyes and yes, got the amazed stares that> > these eyes can > > often evoke. Decided to surf the web and found> this> > condition > > actually has a name. Very new to all this...> > > > > > > > > > > __________________________________________________> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2006 Report Share Posted March 20, 2006 Well Happy Birthday Dave! As far as how often the surgeries are, well my doc told me after my surgery which only lasted 3 1/2 hrs. that he would have to go in after 6 months to make sure it has not grown back, if not then I am good to go, if it did then that means another 6 months down the road probably going back in again. I am not sure, but I am going to tell him if it is there, just do a cwd. I had the mastoidectomy, tympanoplastomy, cwu done sept. 30, 2005. Ear stuck out for only one day, I kept the cup with bandages on for about 3 days as it was bleeding still, mild dizziness and mild pain after three days, first two days were more painful. Wish ya luck and again happy birthday! (orlando, fl) --- Dave Kenyon <dkenyon57@...> wrote: > Hi, my name is Dave and I had a mastoidectomy last > Friday. I am recovering well from a 7-hour surgery > to remove a large c'toma. I had lots of problems > when I was a child and I think the c'toma has been > growing for a while. I am 49 (today!) and this is my > first surgery. > > One question - how often is additional surgery > required? I had a modified radical mastoidectomy. > > Thanks, DaveK. > > > --------------------------------- > > Bring photos to life! New PhotoMail makes sharing a > breeze. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2006 Report Share Posted March 21, 2006 Hi Dave, Happy birthday, I too am 49 and awaiting surgery sometime soon. I live in the UK. I hope you recover well and that you do not need more surgery. I am not looking forward to my surgery, but have to wait for a scan first to see how bad the c-toma is as the couldn't quite get to the end of it during a explority op in January, for cleaning. Keep your chin up, unless it hurts!!!! Best wishes Jan new member Hi, my name is Dave and I had a mastoidectomy last Friday. I am recovering well from a 7-hour surgery to remove a large c'toma. I had lots of problems when I was a child and I think the c'toma has been growing for a while. I am 49 (today!) and this is my first surgery. One question - how often is additional surgery required? I had a modified radical mastoidectomy. Thanks, DaveK. Bring photos to life! New PhotoMail makes sharing a breeze. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2006 Report Share Posted March 24, 2006 Jewell, Welcome to the list! You and I have communicated before...I don't know if you remember me, but I e-mailed you regarding my experiences with being evaluated for a CI. I wanted to answer your question about residual hearing. In most cases, all or most residual hearing is lost following CI surgery. This is why CI centers want to make sure that a person does not have any useable hearing to understand speech even with an FM system. You may remember in my e-mail to you that I was evaluated with my Comtek FM system with a Y-cord connected to my digital hearing aids. Since I was using the Comtek to help me pick up more environmental sounds, my audi decided to have me wear the FM system to find out if it helped me understand speech. My speech discrimination score was 22% in quiet and 0% in noise with hearing aids. The reason I mention this is because when you have CUI surgery, there is a good chance that you will lose what residual hearing you have in the implanted ear. You bring up a valid concern about Usher's. Was your audi at the Milwaukee CI center aware of this? (I assume she was?) Have you decided to be evaluated again at the same CI center? If you'd like to talk more privately, please feel free to contact me off-list. I apologize if this e-mail seems disorganized. I've been off-line for awhile and am slowly catching up with e-mail. Again, welcome!! <smile> Hopefully some of the other deafblind members of the list will have comments to share. Left ear - Nucleus 24 Contour Advance with 3G Implanted: 12/22/04 Activated: 1/18/05 Right ear - Nucleus Freedom Implanted: 2/1/06 Activated: 3/1/06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2006 Report Share Posted April 9, 2006 > > My name is . I live in Phoenix AZ. I stay at home and take > care of my children while my husband works. Hi . > I use EFT everyday but still pretty new at it. I have the hardest > time with reversals. I am always ready to learn new things. I use > EFT to help my children as well. Trust me, you'll be a seasoned pro in no time ) So, on the reversal thing, what is the problem that you are having with it? Whenever you tap on an issue do you treat for reversal each and every time? Is the reversal problem related to you or the kids? Or both. > My son Jordan has had very much difficulties learning. Jordan is 9 > years old and if he is asked how old he is, he will say he is 5 or > he just doesn't remember. He can never remember peoples names. He > can say the ABC's but can not identify his numbers or letters making > it extremely difficult for him to read or do math. He is very well > behaved. And he loves people. He will talk or play with anyone. So > EFT has helped me be patient with him when doing homework. I don't > know why Jordan is this way but we have just excepted that Jordan my > never learn to read or write. Do you recall anything that happened around the time he was 5 y.o.? Has Jordan been diagnosed with autism? Just curious, although I suspect that he's not autistic because of his outgoing personality. > We have done lots of alternative health for him and he has made > tremendous progress. Brain Gym was the first thing we got into and > its been a miracle that Jordan has come as far as he has, but with > still some difficulty and with some setbacks. Plus none of the Docs > knew what was wrong with him, and our medical ins. will not pay for > alternative health care, when that is all that is working. Sadly, the medical establishment (allopathic) appears to be rather clueless when having to deal with situations such as Jordans. It's a sad state of affairs when an insurance company refuses to pay for something that has proven to help you son in my opinion. Hopefully, someone will give them a quarter so they can buy a clue and realize that alternative medicine, in a lot of cases, works better and is cheaper than conventional medicine. [Jef climbs off his soapbox] Now, I'm not sure what the Brain Gym is or how it works, but do you think it's possible to structure EFT around the way Brain Gym works? If Jordan has made progress using Brain Gym, perhaps including EFT along with it could further his development. Just a thought. > I also have a little girl that is 5 years old and she shows no signs > of a sever learning disability. That's a good thing ) > Needless to say I am a mother exploring all my options into what can > help my family deal with the day by day stresses we come across. I think you've come to the right place. EFT has helped me tremendously on a daily basis. I've found that I just don't react to things the way I used to. It's brought a lot of peace and tranquility into my life -- much to my wife's dismay ;O) I know that children, in and of themselves, can be a daily challenge (I survived three of them myself) but when you throw in special needs then the challenge grows exponentially. But there is hope so hang in there. We're here to help you any way we can. -Jef Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2006 Report Share Posted April 11, 2006 > > Hello Everyone, my name is Carole and i live in southern Wisconsin and > am very new to EFT. I saw a EFT therapist for a short time and loved > the results. I really want to learn EFT for myself at home, since at > this time I am living in a very small city and have to travel to see > and learn EFT. So seeing this group on is very exciting. So > since I am newbie and would like very much to learn for my own > healing, any suggestions on matierials such as books, tapes and dvd's? > Bless all of you,, Sincerely Carole > Hi Carole, Welcome to the group! You'll find that we're a lovable and helpful bunch around here. Feel free to jump in anytime with any questions that you may have. That's what we're here for ) -Jef Quote Link to comment Share on other sites More sharing options...
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