Guest guest Posted August 12, 2006 Report Share Posted August 12, 2006 My daughter was around three when I had my operation. She was fine with the recovery. As a matter of fact, she walked around with a cotten ball in her ear off an on for about a month - it was hysterical! > > > > na, > > > > I love you bubbly humor. Reading your email was entertaining. > What is your major? > > You sound like a trooper, you'll do fine. Sounds like you have a > good husband too. I am your age so I know what you're feeling. My > ear problems started when I was younger. This last tumor taken out > was 2 1/2 inches. The reconstruction and hearing that I had gained was > ruined this time. Who knows I might have another surgery and he will > try again and maybe do something different. Welcome to the group. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2006 Report Share Posted August 21, 2006 Congratulations on a great activation. Isn't it amazing how fast our brains adjust to the sounds we are hearing. You are in the infant stages of an amazing journey and with each day things will get better. One thing that I always suggest to people who have just been activated that helped me so much was to listen to books on tape. What I did was go to the library and get a book and the corresponding tape. I would listen to the tape as I followed along in the book and it really seemed to help. You can use your audio cable that comes with your welcome kit to hook up a cd player or tape player to your processor. Keep us posted on your CI moments. Connie --- rayvan12000 <rayvan12000@...> wrote: > Well I've been lurking for quite some time, thought > I had better > formally introduce myself. I was first diagnosed > with a sensory > neural hearing loss in the second grade. I didn't > start wearing > hearing aids until I was in my 30s, although I > needed them much > earlier. I am curently 47. Hearing started taking a > turn for the > worst about 5 years ago, tried several types of > hearing aids etc > with some success but the last few years really > couldn't understand > speech, relied allot on my lipreading abilities, > started to get > really stressed at work. > > I decided to go with a ci and was implanted July 31, > 06 at Texas > Tech University Medical Center. Dr. Johassen Cordero > was the surgen. > Surgery went great. Recovery went smooth minimal > pain, had a hard > time getting comfortable going to sleep at night not > being able to > lay on my right side. > > I was activated Aug. 16th so its been 6 days since > activation. When > the ci was first turned on it was real loud and > sounded like very > high tones repeating themselves over and over for a > few minutes > until I realized what I was hearing were people in > the room talking. > The tones slowly started to sound like speach. I was > able to > understand what was being said as long as I was > looking (lipreading) > at the person talking to me. Well its been six days. > I had the > volume increased a few days ago, picking up allot of > environmental > sounds, voices sound real, still need to look at the > person talking > to me, but the sound is much cleaner than with the > hearing aids. > From what I understand my initial mapping is very > basic they just > wanted me to get used to the sound. Will go back in > few weeks for > more adjustments. > > Will keep you updated as to my progress. I have > really enjoyed > hearing about everyones experiences. > > > Freedom activated 08/16/06. > > > > > > > " The Miracle at Ohio State " aka Nucleus Freedom Implanted 10/04/2005 Activated 11/1/2005 Surgery: Ohio State University Surgeon: Dr. Bradley Welling http://internalmedicine.osu.edu/article.cfm?ID=2021 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2006 Report Share Posted August 21, 2006 Connie, go for the second CI without guilt! , you are off to a good start! Colleen, please hang in there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2006 Report Share Posted August 21, 2006 Welcome to the group, . That sounds like a very good activation for you. Things will change over the coming months and the mappings are important. I was surprised to see you write that you would go back " in a few weeks " for more adjustments. I would have thought it would be sooner than that. Please keep us informed of your progress. Ted F. > > Well I've been lurking for quite some time, thought I had better > formally introduce myself. I was first diagnosed with a sensory > neural hearing loss in the second grade. I didn't start wearing > hearing aids until I was in my 30s, although I needed them much > earlier. I am curently 47. Hearing started taking a turn for the > worst about 5 years ago, tried several types of hearing aids etc > with some success but the last few years really couldn't understand > speech, relied allot on my lipreading abilities, started to get > really stressed at work. > > I decided to go with a ci and was implanted July 31, 06 at Texas > Tech University Medical Center. Dr. Johassen Cordero was the surgen. > Surgery went great. Recovery went smooth minimal pain, had a hard > time getting comfortable going to sleep at night not being able to > lay on my right side. > > I was activated Aug. 16th so its been 6 days since activation. When > the ci was first turned on it was real loud and sounded like very > high tones repeating themselves over and over for a few minutes > until I realized what I was hearing were people in the room talking. > The tones slowly started to sound like speach. I was able to > understand what was being said as long as I was looking (lipreading) > at the person talking to me. Well its been six days. I had the > volume increased a few days ago, picking up allot of environmental > sounds, voices sound real, still need to look at the person talking > to me, but the sound is much cleaner than with the hearing aids. > From what I understand my initial mapping is very basic they just > wanted me to get used to the sound. Will go back in few weeks for > more adjustments. > > Will keep you updated as to my progress. I have really enjoyed > hearing about everyones experiences. > > > Freedom activated 08/16/06. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2006 Report Share Posted August 22, 2006 Hi Connie Will try to get by the library some time today and see what I can find. I'm still having trouble with the high tones, Womens voices are harder to understand. But picking up new sounds all the time. --- C J <cjcj05@...> wrote: > > > Congratulations on a great activation. Isn't it > amazing how fast our brains adjust to the sounds we > are hearing. > You are in the infant stages of an amazing journey > and > with each day things will get better. > > One thing that I always suggest to people who have > just been activated that helped me so much was to > listen to books on tape. What I did was go to the > library and get a book and the corresponding tape. > I > would listen to the tape as I followed along in the > book and it really seemed to help. You can use your > audio cable that comes with your welcome kit to hook > up a cd player or tape player to your processor. > > Keep us posted on your CI moments. > > Connie > > > --- rayvan12000 <rayvan12000@...> wrote: > > > Well I've been lurking for quite some time, > thought > > I had better > > formally introduce myself. I was first diagnosed > > with a sensory > > neural hearing loss in the second grade. I didn't > > start wearing > > hearing aids until I was in my 30s, although I > > needed them much > > earlier. I am curently 47. Hearing started taking > a > > turn for the > > worst about 5 years ago, tried several types of > > hearing aids etc > > with some success but the last few years really > > couldn't understand > > speech, relied allot on my lipreading abilities, > > started to get > > really stressed at work. > > > > I decided to go with a ci and was implanted July > 31, > > 06 at Texas > > Tech University Medical Center. Dr. Johassen > Cordero > > was the surgen. > > Surgery went great. Recovery went smooth minimal > > pain, had a hard > > time getting comfortable going to sleep at night > not > > being able to > > lay on my right side. > > > > I was activated Aug. 16th so its been 6 days since > > activation. When > > the ci was first turned on it was real loud and > > sounded like very > > high tones repeating themselves over and over for > a > > few minutes > > until I realized what I was hearing were people in > > the room talking. > > The tones slowly started to sound like speach. I > was > > able to > > understand what was being said as long as I was > > looking (lipreading) > > at the person talking to me. Well its been six > days. > > I had the > > volume increased a few days ago, picking up allot > of > > environmental > > sounds, voices sound real, still need to look at > the > > person talking > > to me, but the sound is much cleaner than with the > > hearing aids. > > From what I understand my initial mapping is very > > basic they just > > wanted me to get used to the sound. Will go back > in > > few weeks for > > more adjustments. > > > > Will keep you updated as to my progress. I have > > really enjoyed > > hearing about everyones experiences. > > > > > > Freedom activated 08/16/06. > > > > > > > > > > > > > > > > > " The Miracle at Ohio State " > aka Nucleus Freedom > Implanted 10/04/2005 > Activated 11/1/2005 > Surgery: Ohio State University > Surgeon: Dr. Bradley Welling > http://internalmedicine.osu.edu/article.cfm?ID=2021 > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2006 Report Share Posted August 22, 2006 Thanks for the support! --- <wdywms@...> wrote: > Connie, go for the second CI without guilt! > > , you are off to a good start! > > Colleen, please hang in there! > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2006 Report Share Posted August 22, 2006 Hi Ted They had a cochlear rep (Jenifer) there for my initial mapping, it might be they are working around her schedule. I thought the same thing that it would be sooner. But seem to be doing pretty well right now, trying to take note of what I do and do not hear well so I can let the let them know when I go back in. --- " Ted F. " <ted.fletcher@...> wrote: > Welcome to the group, . > That sounds like a very good activation for you. > Things will change > over the coming months and the mappings are > important. I was > surprised to see you write that you would go back > " in a few weeks " > for more adjustments. I would have thought it would > be sooner than > that. Please keep us informed of your progress. > > Ted F. > > > > > > > Well I've been lurking for quite some time, > thought I had better > > formally introduce myself. I was first diagnosed > with a sensory > > neural hearing loss in the second grade. I didn't > start wearing > > hearing aids until I was in my 30s, although I > needed them much > > earlier. I am curently 47. Hearing started taking > a turn for the > > worst about 5 years ago, tried several types of > hearing aids etc > > with some success but the last few years really > couldn't understand > > speech, relied allot on my lipreading abilities, > started to get > > really stressed at work. > > > > I decided to go with a ci and was implanted July > 31, 06 at Texas > > Tech University Medical Center. Dr. Johassen > Cordero was the > surgen. > > Surgery went great. Recovery went smooth minimal > pain, had a hard > > time getting comfortable going to sleep at night > not being able to > > lay on my right side. > > > > I was activated Aug. 16th so its been 6 days since > activation. When > > the ci was first turned on it was real loud and > sounded like very > > high tones repeating themselves over and over for > a few minutes > > until I realized what I was hearing were people in > the room > talking. > > The tones slowly started to sound like speach. I > was able to > > understand what was being said as long as I was > looking > (lipreading) > > at the person talking to me. Well its been six > days. I had the > > volume increased a few days ago, picking up allot > of environmental > > sounds, voices sound real, still need to look at > the person talking > > to me, but the sound is much cleaner than with the > hearing aids. > > From what I understand my initial mapping is very > basic they just > > wanted me to get used to the sound. Will go back > in few weeks for > > more adjustments. > > > > Will keep you updated as to my progress. I have > really enjoyed > > hearing about everyones experiences. > > > > > > Freedom activated 08/16/06. > > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2006 Report Share Posted August 22, 2006 Hello I see you have the Freedom, I have the Freedom too. The Freedom has 4 programme slots. At my activation, my audiologist put what I call my normal 2400 speed programme on Slot 1, then she put the same programme on Slot 2, but with the Autosensitivity feature. I find autosensitivity invaluable inside the car, it takes away the road noise and enables me to hear what anyone is saying in the car. From memory, I think I had the Beam feature put in Slot 3, this is a programme that is supposed to be useful in noise. And in Slot 4 I had an 1800 speed programme. I never took to the 1800 programme and since I was activated about 4 months ago, I have always used the 2400 speed. However, now that my brain has become more accustomed to different sounds, at my next mapping I want to try an 1800 speed programme again. I currently am using ADRO at 2400 on (1) Autosensitivity at 2400 on (2) Whisper at 2400 on (3) and Beam at 2400 on (4) As its my least used programme, I will drop Beam for the time being and try an 1800 with ADRO in that slot. Then, if I take to the slower speed, I will have the programmes I currently use, put back to 1,2,3 and 4 but at 1800 speed. Your maps will change quite a bit over the initial few months and sometimes after a new mapping, they take a few days to get used to. At some stage you might think that you are actually worse off, but it will all sort itself out. Continued good progress for you. Ted F. > > Hi Ted > > They had a cochlear rep (Jenifer) there for my initial > mapping, it might be they are working around her > schedule. I thought the same thing that it would be > sooner. > But seem to be doing pretty well right now, trying to > take note of what I do and do not hear well so I can > let the let them know when I go back in. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2006 Report Share Posted October 12, 2006 Welcome Skydrum, I'm scheduled for my first surgery a week from today and still learning from people who've experienced the whole gamut already. I'm from Chicago so not familiar with the Dr. you speak of. skydrum1 <skydrum1@...> wrote: Hello Everyone!I will have my first visit to discuss my ctoma on the 25th of Oct.Has anyone have experience with a, Dr. Isaacson of Hershey Medical Center?Thanks, skydrum1"Wherever you go, there you are!" Wagemanngeowags@... All-new - Fire up a more powerful email and get things done faster. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2006 Report Share Posted October 13, 2006 That's okay, I am also, learning.... steve > Welcome Skydrum, > > I'm scheduled for my first surgery a week from today and still learning from people who've experienced the whole gamut already. > > I'm from Chicago so not familiar with the Dr. you speak of. > > > > skydrum1 <skydrum1@...> wrote: > Hello Everyone! > > I will have my first visit to discuss my ctoma on the 25th of Oct. > > Has anyone have experience with a, Dr. Isaacson of Hershey Medical > Center? > > Thanks, skydrum1 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2006 Report Share Posted October 25, 2006 I've had absolutely no side effects what so ever. Lex. has been the best AD I've ever been onWelcome to the groupsue CFrom: Lifer [mailto: lifer.lifer@...]To: Lexapro@...: Wed, 25 Oct 2006 12:16:53 -0400Subject: New Member *Hello,****I have just joined the Lexapro group and would like to learn more about theside effects of this drug since I've been on it for the last couple ofyears.****Thanks,**Lifer* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2006 Report Share Posted October 25, 2006 Hi Bob, I'm glad it's working for you. Do you notice any side effects? I'm hoping to start next week. I wonder if the female thing (if that is the case in this group) may be that many men are less willing to seek group support? I know my brother is on something for depression, won't tell me what and won't tell anyone else in the family. I am just glad he got help because it definitely runs in our family! Anyway, that's just my take on it. Carolyn Bob Lifer wrote: > > Hello Everyone, > > I just happened to find this group even tho I've been taking Lex for a > couple of years now. I am on 20mg currently and my panic attacks have > pretty much stopped. > I also have a question... by reading previous posts it appears the > membership here is primarily female? Because I am a 56 yr old divorced > male. > Well here's hoping everyone gets better and that all our troubles > just seem to vanish. > > Lifer/Bob > > > ------------------------------------------------------------------------ > > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.1.408 / Virus Database: 268.13.11/493 - Release Date: 23/10/2006 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2006 Report Share Posted October 25, 2006 > > Hi Bob, > I'm glad it's working for you. Do you notice any side effects? I'm > hoping to start next week. > > I wonder if the female thing (if that is the case in this group) may be > that many men are less willing to seek group support? I know my brother > is on something for depression, won't tell me what and won't tell anyone > else in the family. I am just glad he got help because it definitely > runs in our family! Anyway, that's just my take on it. > Carolyn > Hi Carolyn, Well yes I do notice some side effects. But my problem is that I'm taking so many different meds at this time that I'm not sure what causes what anymore. I have some serious sleep issues, I usually can't get myself to bed before 7am daily. Then I may sleep for 4 or 5 hrs and I'm back up. I am disabled so thank goodness I do not have to work any longer or I'd never make it. Well by the time 4pm or so rolls around my computer finds me dozing off again, at my desk. The other day it was if someone threw my on/off switch. One minute I'm wide awake and typing, the next I was sound asleep and falling out of my chair. That was no fun at all to wake up on the way down to the floor just before the crash. So I would have to answer your question with a resounding YES I do have some side effects. Take Care, Bob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2006 Report Share Posted October 25, 2006 Hi Bob, I'm fairly new to the group too and have only been on Lexapro for three weeks now. My doc told me that some men won't even seek help for their depression/panic attacks/other for fear of being " labeled " . I would have to agree. My husband would definitely benefit from an SSRI but refuses to seek help. ( So, I agree with Carolyn in that many men must not seek group support either. Anyway, welcome to the group! Do you have many side effects? How long did it take for you to start working? (I'm still not doing well and it's been 3 weeks.....I know it can take 6 though.) Cyndi On 10/25/06, Bob Lifer <lifer.lifer@...> wrote: > > Hello Everyone, > > I just happened to find this group even tho I've been taking Lex for a > couple of years now. I am on 20mg currently and my panic attacks have > pretty much stopped. > I also have a question... by reading previous posts it appears the > membership here is primarily female? Because I am a 56 yr old divorced > male. > Well here's hoping everyone gets better and that all our troubles > just seem to vanish. > > Lifer/Bob > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2006 Report Share Posted October 25, 2006 Anyway, welcome to the group! Do you have many side effects? How long did it take for you to start working? (I'm still not doing well and it's been 3 weeks.....I know it can take 6 though.) Cyndi How are you doing on the meds Cyndi? Did you have any side effects and do you feel any effects from them yet? Terry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2006 Report Share Posted October 25, 2006 There are men that belong to this group as well Sue CFrom: Bob Lifer [mailto: lifer.lifer@...]Lexapro@...: Wed, 25 Oct 2006 16:50:52 -0000Subject: New Member Hello Everyone,I just happened to find this group even tho I've been taking Lex for a couple of years now. I am on 20mg currently and my panic attacks have pretty much stopped.I also have a question... by reading previous posts it appears the membership here is primarily female? Because I am a 56 yr old divorced male. Well here's hoping everyone gets better and that all our troubles just seem to vanish. :)Lifer/Bob _______________________________________________ No banners. No pop-ups. No kidding. Make My Way your home on the Web - http://dell.myway.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2006 Report Share Posted October 25, 2006 May I ask whats your disability Bob? Re: New Member > > Hi Bob, > I'm glad it's working for you. Do you notice any side effects? I'm > hoping to start next week. > > I wonder if the female thing (if that is the case in this group) may be > that many men are less willing to seek group support? I know my brother > is on something for depression, won't tell me what and won't tell anyone > else in the family. I am just glad he got help because it definitely > runs in our family! Anyway, that's just my take on it. > Carolyn > Hi Carolyn, Well yes I do notice some side effects. But my problem is that I'm taking so many different meds at this time that I'm not sure what causes what anymore. I have some serious sleep issues, I usually can't get myself to bed before 7am daily. Then I may sleep for 4 or 5 hrs and I'm back up. I am disabled so thank goodness I do not have to work any longer or I'd never make it. Well by the time 4pm or so rolls around my computer finds me dozing off again, at my desk. The other day it was if someone threw my on/off switch. One minute I'm wide awake and typing, the next I was sound asleep and falling out of my chair. That was no fun at all to wake up on the way down to the floor just before the crash. So I would have to answer your question with a resounding YES I do have some side effects. Take Care, Bob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2006 Report Share Posted October 26, 2006 Hi Terry, The only thing I've felt from the Lexapro so far is nausea in the beginning, loss of appetite and headaches. These things are slowly disappearing and I've had a few night sweats and vivid dreams too. Nothing too major. I don't feel any better yet and usually do by now when taking ssri's. The doc finds this interesting because Celexa worked well for me and worked right away. Lexapro is like Celexa's sister....... I guess I'll have to wait and see what else happens. ) Cyndi On 10/25/06, TERRY <terry120953@...> wrote: > > Anyway, welcome to the group! Do you have many side effects? How long > did it > take for you to start working? (I'm still not doing well and it's been 3 > weeks.....I know it can take 6 though.) > Cyndi > How are you doing on the meds Cyndi? Did you have any side effects and do > you feel any effects from them yet? Terry > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2006 Report Share Posted October 26, 2006 Cyndi -- I had quesiness the first week or so, and solved the problem by carrying salt crackers (actually salty rice crackers) with me. Figured if it worked for pregnant women it would work me me, and it did. Best, njg ====================================== --- Cyndi Bohan <cynboh@...> wrote: > Hi Terry, > The only thing I've felt from the Lexapro so far is > nausea in the beginning, > loss of appetite and headaches. These things are > slowly disappearing and > I've had a few night sweats and vivid dreams too. > Nothing too major. I > don't feel any better yet and usually do by now when > taking ssri's. The doc > finds this interesting because Celexa worked well > for me and worked right > away. Lexapro is like Celexa's sister....... > I guess I'll have to wait and see what else happens. > ) > Cyndi > " I don't trust anyone over ten who listens to the Sound of Music. " -- Goodbye Lover (1999) __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2006 Report Share Posted October 26, 2006 Thanks! I've been munching here and there when it gets bad......it's just starting to even out though. ) Cyndi On 10/26/06, n Paroo <marianpone@...> wrote: > > Cyndi -- > > I had quesiness the first week or so, and solved the > problem by carrying salt crackers (actually salty rice > crackers) with me. > > Figured if it worked for pregnant women it would work > me me, and it did. > > Best, > njg > > ====================================== > > --- Cyndi Bohan <cynboh@... <cynboh%40gmail.com>> wrote: > > > Hi Terry, > > The only thing I've felt from the Lexapro so far is > > nausea in the beginning, > > loss of appetite and headaches. These things are > > slowly disappearing and > > I've had a few night sweats and vivid dreams too. > > Nothing too major. I > > don't feel any better yet and usually do by now when > > taking ssri's. The doc > > finds this interesting because Celexa worked well > > for me and worked right > > away. Lexapro is like Celexa's sister....... > > I guess I'll have to wait and see what else happens. > > ) > > Cyndi > > > > " I don't trust anyone over ten who listens to the Sound of Music. " -- > Goodbye Lover (1999) > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2006 Report Share Posted October 26, 2006 don't worry Bob, it's open to all genders. We could probably use the experience from a male. ak --- Bob Lifer <lifer.lifer@...> wrote: > Hello Everyone, > > I just happened to find this group even tho I've > been taking Lex for a > couple of years now. I am on 20mg currently and my > panic attacks have > pretty much stopped. > I also have a question... by reading previous posts > it appears the > membership here is primarily female? Because I am a > 56 yr old divorced > male. > Well here's hoping everyone gets better and that > all our troubles > just seem to vanish. > > Lifer/Bob > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2006 Report Share Posted October 28, 2006 Hi As far as I know I'm the only other person on this list who has had to deal with " canal ctoma " . I've also had middle ear ctoma so I'm aware that there are a few differences between the two. As with any ctoma the surgeon has to do what is necessary to eliminate the disease otherwise it will keep on coming back. Since canal ctoma actively eats away the ear canal walls then a CWD would seem fairly inevitable. If the disease is caught early enough and still localized then treating it is less of problem. You should be OK if the only issue you have so far is mastoid invasion. Once it spreads, canal ctoma has a serious tendency to attack the facial nerve. There are a couple of things about this disease. One is that it is rare and therefore even the most experienced otologists don't know a great deal about it - and you can bet that there are no two cases which are identical. The other is that canal ctoma not only eats away ear canal but tends to embed itself inside the bone and from there it can spread throughout the temporal bone and resurface here and there even after the visible portions of it have been removed through surgery. At least that was my experience. I think you can also expect to have ear suctioning on regular basis to begin with. Not only to clean out debris from the mastoid and ear canal but also to watch for and combat any reappearance of the disease. One thing I should stress is that my experience with canal ctoma may not remotely resemble yours. I have the disease bilaterally. On one side it was pretty mild and unthreatening and on the other it was very advanced. So far I've a long struggle and several surgeries but I am winning. Good Luck Phil The ear specialist looked at my ear and said I have a very unusual type of cholesteatoma. My eardrum is not punctured, instead the cholesteatoma is growing into the mastoid from the outer ear canal. He thinks that it may be a byproduct of ear surgery I had about 20 years ago to repair a perforated eardrum that I had at the time. I guess I'm lucky, because it was caught and I haven't experienced any hearing loss or other problems. If it weren't for the infection, it may not have been discovered for a long time. The ENT is recommending surgery and says it will likely be the " canal wall down " type of surgery. Can you share with me what to expect from this surgery, recovery time, etc.? I have to admit the " canal wall down " option scares me a little. Is there any change in the appearance of the ear? Do you have to go to the ENT frequently for cleaning after the surgery? Any info you can share would be greatly appreciated. I'm sure others have asked these questions before so I apologize in advance. -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.408 / Virus Database: 268.13.17/505 - Release Date: 27/10/06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 Hi Dean and welcome to the forum. You will find a wealth of information on this forum. Your hearing journey sounds very intresting and I have to tell you that I visited your city for the first time last month and boy is it beautiful I now have pictures of the Seattle area as my screen saver here at work. You also have a wonderful hearing research team there at the University of Washington. Look forward to hearing more from you. Conie --- seattleforest01 <seattleforest01@...> wrote: > hi there, > > Today, I signed up to be a new member. My name is > Dean Olson, and I'm in Seattle. Some folks might > remember me for being SHHH president in Albuquerque, > NM and for my time in Dallas, as well as Austin, TX. > I returned home to Seattle in 2004 and then had an > cochlear corp implant in 2-05. It was turned on > 3-05. It's been a significant, mostly positive > change. I think I'm hearing a lot more new sounds > and understanding a lot more speech; though music is > not very good (yet). > > Until I was five, I had normal hearing. Then it > dropped suddenly to a mild-moderate loss and > progressed through the next 40 years to a profound > level. My coping skills have made up for this loss > and now, when I can, I speak to groups about coping > skills. Additionally, I am now the facilitor of the > downtown Seattle HLA group, trying to keep it alive > and turn it over in May to new folks. Lastly, I have > been coaching some folks about CIs, the surgery, the > attachments, how devices work, the limitations and > the like. > > One last thing, last November, I lost my tv/audio > cord (left on plane), and had to get a new one. I > figured out how to go cochlear corp's HQ, outside of > Sydney, and it was an interesting ride on the bus > there. > > Anyway, I look forward to reading and helping share > stories from time to time. > > - Dean Olson > > " The Miracle at Ohio State " aka Nucleus Freedom Implanted 10/04/2005 Activated 11/1/2005 Surgery: Ohio State University Surgeon: Dr. Bradley Welling http://internalmedicine.osu.edu/article.cfm?ID=2021 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 Hi Dean, Welcome aboard! I'm new here too and on the other side of the Cascades from you. Well make that 300 miles east and just across the Idaho state line near Moscow. You have an interesting background and you certainly keep busy helping others. That's great! Hope you enjoy the forum. e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2006 Report Share Posted October 31, 2006 Hi . I am new to the group as well. I didn't know it existed when I had my c-toma's. I have had recurring c-toma's in both ears, but am currently free of them. The surgery is tough, but not the worst thing you could go through. Please make sure you have someone stay with you for a few days. I have had mastoidectomies, if that is what they are talking about by the " canal wall down. " You will need at least two weeks to recover, depending on how far they have to go to get the c-toma out. There is no change to the look of the ear. They usually cut from behind and stitch you back up from behind the ear. You will have some scarring back there, naturally. Since I have had both done, my ears aren't even anymore, but you shouldn't have that problem. It will take a bit of time for your hearing to be restored. Understand that hearing is secondary when it comes to c-tomas. The first goal is to have a clean, uninfected ear. I don't know where you are geographically, but do make sure you have confidence in your surgeon. I have been to specialists across my state and have had varying experiences by doctor. After years of dealing with this, I now see my ear doctor every 6 months for cleaning. You will go more often right after the surgery of course, but you do need checked regularly for their reoccurance. They can reoccur, and often do. Good luck to you! > > Hi everyone, > > I just learned a few days ago that I have a cholesteatoma in my right > ear. I had been having a stubborn external ear infection for several > months, and one day while cleaning my ear my ENT noticed a cyst. He > referred me to an ear specialist, but before I saw the ear > specialist, the cyst opened up due to the infection and the ENT > removed loads of keratin from my ear. > > The ear specialist looked at my ear and said I have a very unusual > type of cholesteatoma. My eardrum is not punctured, instead the > cholesteatoma is growing into the mastoid from the outer ear canal. > He thinks that it may be a byproduct of ear surgery I had about 20 > years ago to repair a perforated eardrum that I had at the time. > > I guess I'm lucky, because it was caught and I haven't experienced > any hearing loss or other problems. If it weren't for the infection, > it may not have been discovered for a long time. The ENT is > recommending surgery and says it will likely be the " canal wall down " > type of surgery. > > Can you share with me what to expect from this surgery, recovery > time, etc.? I have to admit the " canal wall down " option scares me a > little. Is there any change in the appearance of the ear? Do you have > to go to the ENT frequently for cleaning after the surgery? Any info > you can share would be greatly appreciated. I'm sure others have > asked these questions before so I apologize in advance. > > Thanks, > > Quote Link to comment Share on other sites More sharing options...
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