Pain

[Guest guest]

Hello ,

I had a lot of pain in my right hip when I was around 13. It got so bad that I

would almost be in tears every time I would go from a sitting to laying position

or visa versa. My orthopedic put a shot of cortozone right into the hip socket

itself and within 24 hours the pain was totally gone. I am blessed that it has

never returned. I do not know if this is something that is available to you but

you may want to ask about it. Also, I use a ROHO duel chamber cushion to help

relieve the pressure on my butt from sitting all of the time. It has air

chambers that adjust as you move or you can adjust it with valves you open and

close.

Take care!

Milinovich

Wife to , Mommy to - 12 Weeks Old!

pain

hello,

first sorry because my english is bad. My name is , lm from Spain, l m 35

years old and sma type 3. Since a months ago l have very pain in my right hip

and right buttock. My fisioterapist says that probably is due to my scoliosis...

..what can l do? Do you exist any special cushion ? Thank you very much.....

--

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[Guest guest]

Hi, My name is Terry I am 34 type III. I have the samepain on the

left side. mine is from L5 thebottom vertabra, L4 would be your right

side. Where is the curve in your back?

>

> hello,

>

> first sorry because my english is bad. My name is , lm from

Spain, l m 35 years old and sma type 3. Since a months ago l have

very pain in my right hip and right buttock. My fisioterapist says

that probably is due to my scoliosis....what can l do? Do you exist

any special cushion ? Thank you very much.....

>

>

>

> --

> Estoy usando la versión gratuita de SPAMfighter para usuarios

privados.

> Ha eliminado 11915 correos spam hasta la fecha.

> Los usuarios de pago no tienen este mensaje en sus correos.

> Obtenga SPAMfighter gratis aquí: http://www.spamfighter.com/les

>

>

>

[Guest guest]

Scoliosis causes me lots of pain in my right hip, also. It's made

worse because of osteoarthritis. I use a tempra foam cushion that's

higher in the from and on one side. For the arthritis I'm taking 100

mg of Celebrex, and take 25 mg of Ultram as needed (a much smaller dose

than my doctor prescribed because I don't want to be high).

[Guest guest]

,

I had very bad hip pain for a few months last summer. I went to a chiropractor

and he told me it was my hamstring. He then used an " activator " which

signifcantly lessened the pain. He also recommended I sit on an ice/gel pack for

20-30 minutes each hour. I went back for a follow-up appointment a week later

and he used the " activator " again and I have been pain-free ever since!

For more about the " activator " you can do a Google search. Here is one link I

found:

http://www.coccyx.org/treatmen/activ.htm

~a

atardecer <atardecer@...> wrote:

hello,

first sorry because my english is bad. My name is , lm from Spain, l m 35

years old and sma type 3. Since a months ago l have very pain in my right hip

and right buttock. My fisioterapist says that probably is due to my

scoliosis....what can l do? Do you exist any special cushion ? Thank you very

much.....

--

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Ha eliminado 11915 correos spam hasta la fecha.

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[Guest guest]

Hola José,

Soy Taya de Finlandia y tengo SMA tipo II. He visto su mensaje en la lista

. Ya has recibido algunas respuestas. Además, te puede decir que sí,

es seguro que existen cojines especiales para personas que están siempre

sentados. ?Utilizas una silla de ruedas? Para sillas de ruedas, hay muchas

cojines especiales de diferentes tipos. Algunos tienen gel adentro y otros

tienen aire. Si me cuentas un poco más sobre los problemas tuyos, puedo

contestar con más precision.

muchos saludos

Taya

pain

hello,

first sorry because my english is bad. My name is , lm from Spain, l m 35

years old and sma type 3. Since a months ago l have very pain in my right hip

and right buttock. My fisioterapist says that probably is due to my

scoliosis....what can l do? Do you exist any special cushion ? Thank you very

much.....

--

Estoy usando la versión gratuita de SPAMfighter para usuarios privados.

Ha eliminado 11915 correos spam hasta la fecha.

Los usuarios de pago no tienen este mensaje en sus correos.

Obtenga SPAMfighter gratis aquí: http://www.spamfighter.com/les

[Guest guest]

hi

i also have have right hip pain mines is dislocated the best cushion for me is

a J2 hope that hepls

laura

Taija Heinonen KOTI <taija.heinonen@...> wrote:

Hola José,

Soy Taya de Finlandia y tengo SMA tipo II. He visto su mensaje en la lista

. Ya has recibido algunas respuestas. Además, te puede decir que sí,

es seguro que existen cojines especiales para personas que están siempre

sentados. ?Utilizas una silla de ruedas? Para sillas de ruedas, hay muchas

cojines especiales de diferentes tipos. Algunos tienen gel adentro y otros

tienen aire. Si me cuentas un poco más sobre los problemas tuyos, puedo

contestar con más precision.

muchos saludos

Taya

pain

hello,

first sorry because my english is bad. My name is , lm from Spain, l m 35

years old and sma type 3. Since a months ago l have very pain in my right hip

and right buttock. My fisioterapist says that probably is due to my

scoliosis....what can l do? Do you exist any special cushion ? Thank you very

much.....

--

Estoy usando la versión gratuita de SPAMfighter para usuarios privados.

Ha eliminado 11915 correos spam hasta la fecha.

Los usuarios de pago no tienen este mensaje en sus correos.

Obtenga SPAMfighter gratis aquí: http://www.spamfighter.com/les

[Guest guest]

I think we all wish there was a miracle cure. I know I do! Marty

************************************** See what's new at http://www.aol.com

[Guest guest]

Hey Dawn,

There may be a cure for your Reiter's. If it was triggered by another

health issue, then you need to get that resolved and often the Reiter's goes

away.

One problem is that another health issue, in the future, may trigger

Reiter's again and you think you still have Reiter's. I believe, in many

people,

Reiter's comes almost every time you get an infection - either bacterial or

fungal. The key is to get healthy and stay healthy.

I sure hope you can resolve your health issues, it sounds pretty awful.

Good Luck,

Greg

************************************** See what's new at http://www.aol.com

[Guest guest]

Dawn:

I feel for you. It took me almost 4 years to realize the disease I

(we) have is very misunderstood (sometimes unrecognized / nor

ackowledged by well know / highly regarded physicians). Many of my

medical exams were embarrassing and full of frustration. Time and

time again I heard the pain was all in my head. My labs were " normal "

so there's nothing wrong.

Little by little.. I've come to accept this condition and adjust my

life around it. I sometimes take Ultram for pain. It sometimes helps.

Take care.

[Guest guest]

To give you some hope, the pain will get better. Remissions will come, and you

may even feel " normal " at times and for varying periods. Your whole life won't

be like it is now. Have faith.

__________________________________________________

[Guest guest]

--I was so excited last Monday when I woke up with no pain, and none

all day. I thought a miracle had happened, until the next morning,it's

baback and still at it. But that one day was a blessing. All my

remissions have been used up over the 40 years of having this stuff, but

ut I do know what a longterm remission feels like. Enjoy it while you

are having one.And faith is the only thing that has gotten me thru.

Sometimes I feel like throwing in the towel,but then what would I miss

just around the corner? I try to sleep thru the bad pain days,and maybe

I will have another great Monday. Hang in there. D.

- In , Spencer <myroro44@...> wrote:

>

>

>

> To give you some hope, the pain will get better. Remissions will

come, and you may even feel " normal " at times and for varying periods.

Your whole life won't be like it is now. Have faith.

>

> __________________________________________________

>

[Guest guest]

Oh, hon...I'm so sorry you're having a rough time. Just hang in there

and know that other people care and are praying you through this.

I hope things start getting better for you soon.

-

>

> i am so tired of the pain it feels like my entire body is being torn

> apart my shoulders my ankles my hips my wrists i wish there was

> amiracle cure

>

[Guest guest]

Hi, Marla. Please don't be alarmed by what I'm going to tell you.

Charcot-Marie-Tooth Disease and scoliosis often go hand in hand. Ask your GP to

refer you to the closest MDA clinic in your area (a specific doctor) for an EMG

and nerve conduction volicity testing. Can't hurt to rule it out, anyway. I

had severe scoli and learned I have CMT2, diagnosed last month.

Lj

marla peugh <marlapeugh@...> wrote:

Hey, I have major pain with my scoliosis, my legs go numb too. I

really love the idea of being able to talk to people who can relate. I'm going

to the doctor today. I have no insurance, so affording the pain meds are

expensive. I don't mind though cause something has to give.

[Guest guest]

sometimes the Shriners can help with the expenses. If CMT is involved, the MDA

will help with costs.

lj

marla peugh <marlapeugh@...> wrote:

Hey, I have major pain with my scoliosis, my legs go numb too. I

really love the idea of being able to talk to people who can relate. I'm going

to the doctor today. I have no insurance, so affording the pain meds are

expensive. I don't mind though cause something has to give.

[Guest guest]

Thanks Melt, actually I did call my docs answering service, and they

said nicely,we only contact the doc if it's an emergency and I said

well I am in extreme pain (yelling involentarily when I move a certain

way)and thought he would call in a muscle relaxer for me.She said oh we

don't do prescriptions by phone any more either! What? This is a

rheumatologist,what would be considered an emergency?Ok a high fever,a

rash a flare?My problem is after today I have to wait until Friday to

get a prescription when Bill comes back up!With luck a neighbor will be

around and I will be able to get in a car.Right now I can't get from a

sitting position or into one without bad spasms,sowish me luck.

love Elly

[Guest guest]

awwww elly i hope you feel better did you get hit with the storm that went

through at like around 3ish we just got a hit a lil nothing bad well hope you

feel better soon

tiffany

[Guest guest]

awwww elly i hope you feel better did you get hit with the storm that went

through at like around 3ish we just got a hit a lil nothing bad well hope you

feel better soon

tiffany

[Guest guest]

Hi ,yep we got alot of thunder lightening , heavy rain,(we needed that)

but no damage that I can see!We desparatley need a new roof so we always hope

this big old tree right behind our house will fall on the roof and insurance

will pay for a new one,but alas no luck.We have a crew coming tomorrow to take

off the old roof and put on the new one.Anyone want to take bets on that tree?

My pain is awful,I'm not sure if I will call the doc or not,I have to take

inventory on what neighbors are home if I need a prescription.At least Bill took

our dog bear down state with him,so thats less bending.How are you doing?I

haven't seen much from you which gives me hope that you aren't too bad.Let me

know and thanks for your post.

love Elly

shortiepie710@... wrote:

awwww elly i hope you feel better did you get hit with the storm that

went through at like around 3ish we just got a hit a lil nothing bad well hope

you feel better soon

tiffany

[Guest guest]

hi elly im doing ok right now in a lil pain and trying not to get stress out we

have a lot going on right now and i think it is getting to be more than i can

handle we also have to get a new roof and our bathroom has to be redone new

evrything including the floor and also eric got news that there may be cut backs

at work (Freeland Schools)?in about a lil over a year and his area will get cut

first before any other ones will so that is also geting to me but im trying to

let it all go and be happy i dont want to go into a flare i got a letter from

the attorney saying he is waiting for a date so that is good news im just not

looking forward to having to go to court with him i was hopeing he would go and

just call me after it was done but i guess it dont work that way because i dont

even know what i would do or say im sure he would tell me did you have to go? if

i lived close to ya i would help ya out but i really dont know how far i am from

ya well i hope to talk to ya later bye

tiffany

[Guest guest]

hi elly im doing ok right now in a lil pain and trying not to get stress out we

have a lot going on right now and i think it is getting to be more than i can

handle we also have to get a new roof and our bathroom has to be redone new

evrything including the floor and also eric got news that there may be cut backs

at work (Freeland Schools)?in about a lil over a year and his area will get cut

first before any other ones will so that is also geting to me but im trying to

let it all go and be happy i dont want to go into a flare i got a letter from

the attorney saying he is waiting for a date so that is good news im just not

looking forward to having to go to court with him i was hopeing he would go and

just call me after it was done but i guess it dont work that way because i dont

even know what i would do or say im sure he would tell me did you have to go? if

i lived close to ya i would help ya out but i really dont know how far i am from

ya well i hope to talk to ya later bye

tiffany

[Guest guest]

Elly, this person who told you they only contact the doctor in emergency's

is simply out of line Obviosly she does not know pain is an emergency. What if

you said my head rolled down the street, she would probably tell you to go

get it.. Call again, maybe a different person will answer the phone. I would

also put in writing this story to the doctor and mail it.

Does a warm bath or shower help? Call again, or...go to an ER. That person

needs to apologize and profoundly so.

Hugs

Liz

**************Vote for your city's best dining and nightlife. City's Best

2008. (http://citysbest.aol.com?ncid=aolacg00050000000102)

[Guest guest]

Elly, this person who told you they only contact the doctor in emergency's

is simply out of line Obviosly she does not know pain is an emergency. What if

you said my head rolled down the street, she would probably tell you to go

get it.. Call again, maybe a different person will answer the phone. I would

also put in writing this story to the doctor and mail it.

Does a warm bath or shower help? Call again, or...go to an ER. That person

needs to apologize and profoundly so.

Hugs

Liz

**************Vote for your city's best dining and nightlife. City's Best

2008. (http://citysbest.aol.com?ncid=aolacg00050000000102)

[Guest guest]

,

 I was worried sick over mine part of that is I lived in one state but had filed

in another because i had lived there . it went great for me I was asked very

little fact is the SSI doctors report and voc rehabs  really said it all . In

fact they came out stronger for me then my own doctors who were 100% for me

going for SSI and were the ones that talked to me about doing it as it never was

my idea heck i was going to get better if it killed me and get back to work.

that was back in 2002. it was 3 years getting to the hearing as it is not really

a court date but more of a formal hearing kind of like a meeting more or less .

any hoot it was about 3 months later before the judge ruled and I heard . I

believe the waiting is one of the hardest parts the other at lest for me was

wondering would i get it after all they keep turning me down but i have heard it

is only about 15 to some 20 percent that get it the first time the rest go down

the road you are

and I did. in the end it was a great big relief for me when i got it but part

of that is I was homeless and broke living off what money I could barrow or beg

for .  so again do not stress it is a big deal yes but by the time you get to

this point nothing to worry about . i know i  know ya essayer said then done you

got yours i am still waiting . well the time will be here before ya know it and

it Will all be behind ya then

 

the  rednecks

Marty & G.

 Stills ; An illness I know to well!

To learn about Stills  http://www.stillsdisease.org/stills_info

  and Hancock:

We Recognize No Sovereign but God, and no King but Jesus! [April 18, 1775]

:

" The general principles upon which the Fathers achieved independence were the

general principals of Christianity... I will avow that I believed and now

believe that those general principles of Christianity are as eternal and

immutable as the existence and attributes of God. "

• " [July 4th] ought to be commemorated as the day of deliverance by solemn acts

of devotion to God Almighty. "

– in a letter written to Abigail on the day the Declaration was

approved by Congress

Jefferson

God who gave us life gave us liberty. And can the liberties of a nation be

thought secure when we have removed their only firm basis, a conviction in the

minds of the people that these liberties are a gift from God? That they are not

to be violated but with His wrath? Indeed I tremble for my country when I

reflect that God is just, and that His justice cannot sleep forever. " (excerpts

are inscribed on the walls of the Jefferson Memorial in the nations capital)

 

Re: RE: pain

 i got a letter from the attorney saying he is waiting for a date so that is

good news im just not looking forward to having to go to court with him i was

hopeing he would go and just call me after it was done but i guess it dont work

that way because i dont even know what i would do or say im sure he would tell

me did you have to go? if i lived close to ya i would help ya out but i really

dont know how far i am from ya well i hope to talk to ya later bye

tiffany

[Guest guest]

,

 I was worried sick over mine part of that is I lived in one state but had filed

in another because i had lived there . it went great for me I was asked very

little fact is the SSI doctors report and voc rehabs  really said it all . In

fact they came out stronger for me then my own doctors who were 100% for me

going for SSI and were the ones that talked to me about doing it as it never was

my idea heck i was going to get better if it killed me and get back to work.

that was back in 2002. it was 3 years getting to the hearing as it is not really

a court date but more of a formal hearing kind of like a meeting more or less .

any hoot it was about 3 months later before the judge ruled and I heard . I

believe the waiting is one of the hardest parts the other at lest for me was

wondering would i get it after all they keep turning me down but i have heard it

is only about 15 to some 20 percent that get it the first time the rest go down

the road you are

and I did. in the end it was a great big relief for me when i got it but part

of that is I was homeless and broke living off what money I could barrow or beg

for .  so again do not stress it is a big deal yes but by the time you get to

this point nothing to worry about . i know i  know ya essayer said then done you

got yours i am still waiting . well the time will be here before ya know it and

it Will all be behind ya then

 

the  rednecks

Marty & G.

 Stills ; An illness I know to well!

To learn about Stills  http://www.stillsdisease.org/stills_info

  and Hancock:

We Recognize No Sovereign but God, and no King but Jesus! [April 18, 1775]

:

" The general principles upon which the Fathers achieved independence were the

general principals of Christianity... I will avow that I believed and now

believe that those general principles of Christianity are as eternal and

immutable as the existence and attributes of God. "

• " [July 4th] ought to be commemorated as the day of deliverance by solemn acts

of devotion to God Almighty. "

– in a letter written to Abigail on the day the Declaration was

approved by Congress

Jefferson

God who gave us life gave us liberty. And can the liberties of a nation be

thought secure when we have removed their only firm basis, a conviction in the

minds of the people that these liberties are a gift from God? That they are not

to be violated but with His wrath? Indeed I tremble for my country when I

reflect that God is just, and that His justice cannot sleep forever. " (excerpts

are inscribed on the walls of the Jefferson Memorial in the nations capital)

 

Re: RE: pain

 i got a letter from the attorney saying he is waiting for a date so that is

good news im just not looking forward to having to go to court with him i was

hopeing he would go and just call me after it was done but i guess it dont work

that way because i dont even know what i would do or say im sure he would tell

me did you have to go? if i lived close to ya i would help ya out but i really

dont know how far i am from ya well i hope to talk to ya later bye

tiffany

[Guest guest]

Elly Feel better !!!!!! Love Sharon and xxxooo

> Thanks Melt, actually I did call my docs answering service, and they

> said nicely,we only contact the doc if it's an emergency and I said

> well I am in extreme pain (yelling involentarily when I move a certain

> way)and thought he would call in a muscle relaxer for me.She said oh

> we

> don't do prescriptions by phone any more either! What? This is a

> rheumatologist,what would be considered an emergency?Ok a high fever,a

> rash a flare?My problem is after today I have to wait until Friday to

> get a prescription when Bill comes back up!With luck a neighbor will

> be

> around and I will be able to get in a car.Right now I can't get from a

> sitting position or into one without bad spasms,sowish me luck.

> love Elly

>

>