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Re: Digest Number 393

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  • 4 months later...

Hello all,

Here is the reference for the OCD Storybook that was mentioned recently:

Blink, Blink, Clop, Clop: Why do we do things we can't stop? by E. Katia

Moritz,

Ph.D. and Jablonsky. Available from Childswork Childsplay

1-800-962-1141. It may also be on the OCF website www.ocfoundation.org. It is

a

bit long for really young children, but for 5-7 year olds it's a good length for

parents to read in a sitting or so, and there are illustrations that potentially

a

child could color to get more involved with the story.

Best,

Tamar Chansky, Ph.D.

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  • 4 months later...
Guest guest

Hi Kati Jay,

My nams is Ann and I am so new to the list that you are the first leter

I've seen yet.

A very brief on me My battle to put an end to candida is really an

amazing story and I hope to one day share it with all of you.

understanding candida and how it goes on in each individual and assisting

them in there struggle has been my lifes commitment for the last 8 years.

In learning all that I could, and continuing to further my education, I

became a colonic therapist and work in the phx. area. One of my main focus

is candida.

My time, unfortunatly, is very limited so I must get out what I would like

to say in regards to advertising.

although I have not seen the adds that your are refering to, I feel that if

it is someone who has tried the product and it has worked for them and they

are willing to share their story in detail and answere any questions others

may have then I am interested. But if you are talking about commercial

advertising then I agree with you 100%! I do not know if the list is

moderated and I would like to see what comes of this.

I feel so lucky to have access to something like this. we could all learn so

much from each other and suport and encourage one another and I would hate

for us to be disbanded because of advertisers, BUT if that is what happens

so be it! I joined to hear peoples story's and methods of living under thier

own personal conditions NOT to see adds for products.

Ann

>From: " Jay " <kj-mj@...>

>Reply-candidiasisegroups

><candidiasisegroups>

>Subject: Re: Digest Number 393

>Date: Sun, 25 Jun 2000 11:11:40 -0700

>

>I don't think this list should be used for advertising. Is this list

>moderated? I'm not going to stay if this issue is not addressed.

>

>

>

>

> Digest Number 393

>

>

>------------------------------------------------------------------------

>Turn your EGROUP into a GROUP BUYING GROUP! Join beMANY! today.

>1/4124/12/_/469673/_/961922273/

>------------------------------------------------------------------------

>

>Send blank message to candidiasis-unsubscribeonelist if you want to

>UNSUBSCRIBE !

>

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Dear Ann

If you have your personal candida experinces on computer I for one would

be very interested to read it. Email it to me direct not to the list.

I was diagnosed June 6th when I had never heard of candida, but having

learnt all about it since then, I realise I have suffered (and I mean

*suffered*) from it for 20 years. (I am a 42 yr old woman).

I intend to type up my own story one day. Right now I am so busy

enjoying life to the full, after years of being half-dead, that I don't

have time!

Lee

Hastings

England

UK

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Guest guest

I don't think this list should be used for advertising. Is this list

moderated? I'm not going to stay if this issue is not addressed.

Digest Number 393

------------------------------------------------------------------------

Turn your EGROUP into a GROUP BUYING GROUP! Join beMANY! today.

1/4124/12/_/469673/_/961922273/

------------------------------------------------------------------------

Send blank message to candidiasis-unsubscribeonelist if you want to

UNSUBSCRIBE !

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  • 2 months later...

In a message dated 9/13/00 11:33:00 PM Central Daylight Time,

egroups writes:

<< Karyn:

has ADHD big time, and we have tried that combo recently....at first,

the Clonidine made him very sleepy, then he became " used " to it and we went

up to a full 1 mg, 3 x's a day, in addition to about 7.5mg of Adderral a

day.......worked for about 2-3 mos. then wasn't effective at all.

But every kid is different.....

>>

,

Thanks for the info. My foster son has been on clonidine for almost a year

now and it still makes him drowsy. At least I think it is the clonidine. He

gets drowsy mid-morning and then recovers. I'm thinking that we may need a

dose of clonidine after school to get through to bed time.

Oh well, we'll try the adderal first and see if it works.

Karyn

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  • 8 months later...
Guest guest

This concerns me. My daughter is 15 months old. I have been using a

flouridated nursery water (bottled water) product for her. She does not

drink tap water. Because I am using this, the pediatrician did say he would

not prescribe any flouride drops or anything like that. I used this water

also to mix her powdered formula when she was an infant. I do know that

this nursery water has far less flouride that other flouridated bottled

water products on the market. Since she is not getting the flouride from

the tap water, then is this the same as drinking tap water and not excess

flouride? Hmmmmmmm.....

Jeanne

[ ] Digest Number 393

>_

>

>

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  • 1 year later...

Hi there , sorry it has been so tough for your son .I think people who arent doctors need to be careful when talking about normal.My daughter was in hospital for 5 days after her last mastoidectomy ,so that she could have IV antibiotics , because infection had ruined previous grafts. That was April and now she is fine.When you talk about bandaging ,maybe you mean packing ,and 6 to 8 weeks is normal.Maybe your child had a complication.Ears are peculiar objects ,and your doctor will know your sons ear well. But maybe you need to ask more questions.

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  • 5 months later...
Guest guest

Marina,

I'm sorry to read about your trouble. My daughter (7) has similar

behaviors(hand biting, throwing herself to the floor) but not to such an

extent. We have been able to curb them and relieve some of her frustration

through a sensory approach. Deep pressure, joint compressions and having a

trampoline available.

If you haven't tried this already if may be an idea. If you'd like more

info, feel free to contact me privately. It seems my daughter needs a lot

of sensory input in order to compose herself.

Good luck,

Ann

>

> Message: 1

> Date: Thu, 6 Mar 2003 22:04:59 -0800

> From: " Marina Siddoway " <tsidd@...>

> Subject: SIBs

>

> Hello!

> I just joined this list because we have a 12 yr. old daughter with

> autism who has terrible self-injurious behaviors. She hits herself in

> her face; has blackened her eye and cheek recently, and also head-bangs

> against walls, the floor, windows. It is very terrifying at times when

> she gets very bad. She bites her hands, but not hard enough to draw

> blood. She also leaps into the air and then propels herself to the

> floor very hard, so her knees, elbows and tops of her feet are all

> bruised, too.

>

> We are at our wits end lately. I have read and read about meds for

> this, and all seem to have terrible side effects and it appears it's a

> total crap-shoot to find " the right one " , so have been trying

> nutritionally to find some answers, but just when I think I have her

> supplements figured out, the behaviors escalate again. I am also

> reluctant to use medication because of poor liver function, but at this

> point, we may have no other choice.

>

> I would appreciate any experiences, thoughts, ideas on this, Rx or

> supplements anyone has used with success.

>

> Thanks.

>

> Marina, mom to

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Guest guest

Marina,

I'm sorry to read about your trouble. My daughter (7) has similar

behaviors(hand biting, throwing herself to the floor) but not to such an

extent. We have been able to curb them and relieve some of her frustration

through a sensory approach. Deep pressure, joint compressions and having a

trampoline available.

If you haven't tried this already if may be an idea. If you'd like more

info, feel free to contact me privately. It seems my daughter needs a lot

of sensory input in order to compose herself.

Good luck,

Ann

>

> Message: 1

> Date: Thu, 6 Mar 2003 22:04:59 -0800

> From: " Marina Siddoway " <tsidd@...>

> Subject: SIBs

>

> Hello!

> I just joined this list because we have a 12 yr. old daughter with

> autism who has terrible self-injurious behaviors. She hits herself in

> her face; has blackened her eye and cheek recently, and also head-bangs

> against walls, the floor, windows. It is very terrifying at times when

> she gets very bad. She bites her hands, but not hard enough to draw

> blood. She also leaps into the air and then propels herself to the

> floor very hard, so her knees, elbows and tops of her feet are all

> bruised, too.

>

> We are at our wits end lately. I have read and read about meds for

> this, and all seem to have terrible side effects and it appears it's a

> total crap-shoot to find " the right one " , so have been trying

> nutritionally to find some answers, but just when I think I have her

> supplements figured out, the behaviors escalate again. I am also

> reluctant to use medication because of poor liver function, but at this

> point, we may have no other choice.

>

> I would appreciate any experiences, thoughts, ideas on this, Rx or

> supplements anyone has used with success.

>

> Thanks.

>

> Marina, mom to

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  • 2 years later...
Guest guest

Hi,

Does anybody have experience with making high-speed interenet connections

friendly to people with EHS. We got a DSL connection not to long ago, and I've

had no end of trouble with it. Even though I sleep 40 ft from the phone line it

still causes trouble sleeping. I've wrapped the phone line in aluminum foil

which partially helps. Was thinking of trying cable modem, though I've heard

ground currents can be a problem with cable, as well as the high frequency

stuff.

-

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  • 1 month later...
Guest guest

I am an avid tea drinker. I discovered KT and began making my own when GT

Dave ran out at my Co-op. Thus far I have experimented with all different

types of tea. White Peony, Qunicsenchia, Phoenix Dragon (Hand-rolled

Jasmine), Wenshan Baozhong Formosa Oolong, Black Dragon China Oolong and

Copenhagen Earl Grey.

I have mixed some using two teaspoons of Oolong and White Peony, the others

I haven't mixed half black & half green. White Peony by itself was

fantastic, as is the Jasmine. I'm looking forward to trying the Earl Grey

(my favorite tea).

I would like to try making this with a Dammann Framboise which is a rich

black tea flavored with a high quality raspberry oil. If my Earl Grey turns

out I will try the Dammann.

I also make a sourdough starter for bread from teh Oolong & Peony mix. The

bread is also fantastic.

Catharren

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