Re: Re: titanium prosthesis

[Guest guest]

To All Members C-Toma removal and Improvement in Hearing

Out come of surgery in C-Toma cases is never correctly predictable.

From the point of view of surgeon the priorities ( aim of surgery) are in the following order

1- Removal of Disease & cholesteatoma

2- Restoration of hearing

3- Achieve Dry ear

An From the patients view the priorities are in reverse order

1- Achieve Dry ear ( As is fed up of repeated medicines)

2- Better hearing then before

3- Eradication of Cholesteatoma, some times the seriousness of disease in not properly explained to all cases.

And above that being a special organ of body, its anatomy has been made so complex by god, that it needed months of cadevaric practice to be confident to operate.

Many times removal of c-toma has to be compromised at cost of improvement in hearing too.

Arun

On 4/9/08, cazlaser <rusty@...> wrote:

Thanks for the feedback. I had one put in during Nov 07 and found out a week ago that my ent will have to go back in and reset it. Right now I have considerable hearing loss in my ear, but my doctor is quite

confident that this next procedure will restore most of it if the c-toma has not returned.

[Guest guest]

Hi

At the risk of sounding rude, I have to disagree with you.

I have been told by every doctor I've seen to do with this monster, that the surgeon's aim of the surgery is of course (as you say) the removal of the disease, but second to that is the aim of a clean, dry ear. This is as told to me by every medically trained person that I have seen since learning about the disease in 1999. Restoration of hearing, though welcome, is not an aim of the surgery and certainly would not come above achieving a dry ear in a list of priorities.

From my own point of view, too, I think I would rather have a disease-free, dry, healthy ear that I couldn't hear out of, than an unhealthy ear that I could hear out of.

Kazzy

Re: Re: titanium prosthesis

To All Members C-Toma removal and Improvement in Hearing

Out come of surgery in C-Toma cases is never correctly predictable.

From the point of view of surgeon the priorities ( aim of surgery) are in the following order

1- Removal of Disease & cholesteatoma

2- Restoration of hearing

3- Achieve Dry ear

An From the patients view the priorities are in reverse order

1- Achieve Dry ear ( As is fed up of repeated medicines)

2- Better hearing then before

3- Eradication of Cholesteatoma, some times the seriousness of disease in not properly explained to all cases.

And above that being a special organ of body, its anatomy has been made so complex by god, that it needed months of cadevaric practice to be confident to operate.

Many times removal of c-toma has to be compromised at cost of improvement in hearing too.

Arun

On 4/9/08, cazlaser <rustylaven (DOT) net> wrote:

Thanks for the feedback. I had one put in during Nov 07 and found out a week ago that my ent will have to go back in and reset it. Right now I have considerable hearing loss in my ear, but my doctor is quite confident that this next procedure will restore most of it if the c-toma has not returned.

No virus found in this incoming message.Checked by AVG. Version: 7.5.519 / Virus Database: 269.22.10/1366 - Release Date: 4/8/2008 5:03 PM

[Guest guest]

Thanks for CORRECTING KAZZY

arun

On 4/9/08, kazzy <kazzy@...> wrote:

Hi

At the risk of sounding rude, I have to disagree with you.

I have been told by every doctor I've seen to do with this monster, that the surgeon's aim of the surgery is of course (as you say) the removal of the disease, but second to that is the aim of a clean, dry ear. This is as told to me by every medically trained person that I have seen since learning about the disease in 1999. Restoration of hearing, though welcome, is not an aim of the surgery and certainly would not come above achieving a dry ear in a list of priorities.

From my own point of view, too, I think I would rather have a disease-free, dry, healthy ear that I couldn't hear out of, than an unhealthy ear that I could hear out of.

Kazzy

Re: Re: titanium prosthesis

To All Members C-Toma removal and Improvement in Hearing

Out come of surgery in C-Toma cases is never correctly predictable.

From the point of view of surgeon the priorities ( aim of surgery) are in the following order

1- Removal of Disease & cholesteatoma

2- Restoration of hearing

3- Achieve Dry ear

An From the patients view the priorities are in reverse order

1- Achieve Dry ear ( As is fed up of repeated medicines)

2- Better hearing then before

3- Eradication of Cholesteatoma, some times the seriousness of disease in not properly explained to all cases.

And above that being a special organ of body, its anatomy has been made so complex by god, that it needed months of cadevaric practice to be confident to operate.

Many times removal of c-toma has to be compromised at cost of improvement in hearing too.

Arun

On 4/9/08, cazlaser <rusty@...> wrote:

Thanks for the feedback. I had one put in during Nov 07 and found out a week ago that my ent will have to go back in and reset it. Right now I have considerable hearing loss in my ear, but my doctor is quite

confident that this next procedure will restore most of it if the c-toma has not returned.

No virus found in this incoming message.Checked by AVG. Version: 7.5.519 / Virus Database: 269.22.10/1366 - Release Date: 4/8/2008 5:03 PM

[Guest guest]

"Restoration of hearing, though welcome, is not an aim of the surgery" I've heard this from several doctors, and I have to say that I always perceived it as a very insensitive kop out. The ability to hear effectively is very important in the modern workplace (at least that has been my experience). So much so, that if a doctor is so flippant about the significance of it, I'd probably prefer to look to someone else to perform my surgery. Of course, safety first, but if I'm going to let someone operate on my ear, I want someone in there who thinks my hearing is a VERY high priority. I've had two of these surgeries, and feel truly blessed to be able to hear at a reasonable level. I think the reality is that the surgeon needs to listen to the patient and their priorities. Potential loss of hearing may be a crushing blow for some people, and as such, should definitely be taken into consideration before a

course of action is recommended by a surgeon. Just my 2 cents...kazzy <kazzy@...> wrote: Hi At the risk of sounding rude, I have to disagree with you. I have been told by every doctor I've seen to do with this monster, that the surgeon's aim of the surgery is of course

(as you say) the removal of the disease, but second to that is the aim of a clean, dry ear. This is as told to me by every medically trained person that I have seen since learning about the disease in 1999. Restoration of hearing, though welcome, is not an aim of the surgery and certainly would not come above achieving a dry ear in a list of priorities. From my own point of view, too, I think I would rather have a disease-free, dry, healthy ear that I couldn't hear out of, than an unhealthy ear that I could hear out of. Kazzy Re: Re: titanium prosthesis To All Members C-Toma removal and Improvement in Hearing Out come of surgery in C-Toma cases is never correctly predictable. From the point of view of surgeon the priorities ( aim of surgery) are in the following order 1- Removal of Disease

& cholesteatoma 2- Restoration of hearing 3- Achieve Dry ear An From the patients view the priorities are in reverse order 1- Achieve Dry ear ( As is fed up of repeated medicines) 2- Better hearing then before 3- Eradication of Cholesteatoma, some times the seriousness of disease in not properly explained to all cases. And above that being a special organ of body, its anatomy has been made so complex by god, that it needed months of cadevaric practice to be confident to operate. Many times removal of c-toma has to be compromised at cost of improvement in hearing too. Arun On 4/9/08, cazlaser <rustylaven (DOT) net> wrote: Thanks for the feedback. I had one put in during Nov 07 and found out a week ago that my ent will have to go back in and reset it. Right now I have considerable hearing loss in my ear, but my doctor is quite confident that this next procedure will restore most of it if the c-toma has not returned. No virus found in this incoming message.Checked by AVG. Version: 7.5.519 / Virus Database: 269.22.10/1366 - Release Date: 4/8/2008 5:03 PM

[Guest guest]

For All

Ideally c-toma surgery should take place in tow stages

1- Eradication of c-toma for the main disease & inflammation to subside

Observe for at least 6 months that no active disease is there

2- Reconstructive surgery as there are more chances of prosthesis rejection if inflammation persists. Specially if costly prosthesis is to be used

The priorities of both surgeon and patients are different in developed and developing countries.

It may come as a surprise to western people that over 30 to 40% have ear disease in India due to bathe in polluted ponds & getting treatment late. It used to be a mis concept here that any child who is breast feel will have discharge from ears.

In developing countries people report very late to specialist and C-Toma are fairly advanced. There are NO health counsellors here

to explain the nature of disease, complication of avoiding surgery, advantages and disadvantages of surgery, with proliferation of very economical mobile phones in the last 16 years, here the main concern is improvement in hearing asked by patient, with out listening to what the disease and its complications.

Moreover, there is always a scope for hearing to improve in such surgeries, except when the disease extends to oval window.

I tell my cases, there will be improvement in hearing, but how much i can not tell. I always use homo graft as they are free to use and available in plenty at site.

Arun

On 4/9/08, daniel skempton <dskempton@...> wrote:

" Restoration of hearing, though welcome, is not an aim of the surgery "

I've heard this from several doctors, and I have to say that I always perceived it as a very insensitive kop out. The ability to hear effectively is very important in the modern workplace (at least that has been my experience). So much so, that if a doctor is so flippant about the significance of it, I'd probably prefer to look to someone else to perform my surgery. Of course, safety first, but if I'm going to let someone operate on my ear, I want someone in there who thinks my hearing is a VERY high priority.

I've had two of these surgeries, and feel truly blessed to be able to hear at a reasonable level. I think the reality is that the surgeon needs to listen to the patient and their priorities. Potential loss of hearing may be a crushing blow for some people, and as such, should definitely be taken into consideration before a course of action is recommended by a surgeon.

Just my 2 cents...kazzy <kazzy@...> wrote:

Hi

At the risk of sounding rude, I have to disagree with you.

I have been told by every doctor I've seen to do with this monster, that the surgeon's aim of the surgery is of course (as you say) the removal of the disease, but second to that is the aim of a clean, dry ear. This is as told to me by every medically trained person that I have seen since learning about the disease in 1999. Restoration of hearing, though welcome, is not an aim of the surgery and certainly would not come above achieving a dry ear in a list of priorities.

From my own point of view, too, I think I would rather have a disease-free, dry, healthy ear that I couldn't hear out of, than an unhealthy ear that I could hear out of.

Kazzy

Re: Re: titanium prosthesis

To All Members C-Toma removal and Improvement in Hearing

Out come of surgery in C-Toma cases is never correctly predictable.

From the point of view of surgeon the priorities ( aim of surgery) are in the following order

1- Removal of Disease & cholesteatoma

2- Restoration of hearing

3- Achieve Dry ear

An From the patients view the priorities are in reverse order

1- Achieve Dry ear ( As is fed up of repeated medicines)

2- Better hearing then before

3- Eradication of Cholesteatoma, some times the seriousness of disease in not properly explained to all cases.

And above that being a special organ of body, its anatomy has been made so complex by god, that it needed months of cadevaric practice to be confident to operate.

Many times removal of c-toma has to be compromised at cost of improvement in hearing too.

Arun

On 4/9/08, cazlaser <rusty@...> wrote:

Thanks for the feedback. I had one put in during Nov 07 and found out a week ago that my ent will have to go back in and reset it. Right now I have considerable hearing loss in my ear, but my doctor is quite

confident that this next procedure will restore most of it if the c-toma has not returned.

No virus found in this incoming message.Checked by AVG. Version: 7.5.519 / Virus Database: 269.22.10/1366 - Release Date: 4/8/2008 5:03 PM

[Guest guest]

That's certainly a different look at the how the disease affect a

different nation.

In places like the U.S., I think we have the medical/insurance

bureaucracies to contend with. Most of our general practitioners seem

to be amazingly ignorant about the disease and its treatment. Referrals

can be difficult to obtain with certain insurance companies. I think

HMO's and other similar insurance companies are getting a bit better at

allowing referrals, but ... we still have the incredible ignorance about

the disease to contend with.

I think a lot of us are diagnosed only when our hearing is severely

impaired. In my case it was when yet another regimen of antibiotics to

ward off infection didn't restore my hearing. My case seems to be a

broken record that plays over and over again by folks with the disease

in the U.S.

Matt

Arun Gupta wrote:

> For All

> *_Ideally_* c-toma surgery should take place in tow stages

> 1- Eradication of c-toma for the main disease & inflammation to subside

> Observe for at least 6 months that no active disease is there

> 2- Reconstructive surgery as there are more chances of prosthesis

> rejection if inflammation persists. Specially if costly prosthesis is

> to be used

>

> _*The priorities of both surgeon and patients are different in

> developed and developing countries.*_

>

> It may come as a surprise to western people that over 30 to 40% have

> ear disease in India due to bathe in polluted ponds & getting

> treatment late. It used to be a mis concept here that any child who is

> breast feel will have discharge from ears.

> In developing countries people report very late to specialist and

> C-Toma are fairly advanced. There are NO health counsellors here

> to explain the nature of disease, complication of avoiding surgery,

> advantages and disadvantages of surgery, with proliferation of very

> economical mobile phones in the last 16 years, here the main concern

> is improvement in hearing asked by patient, with out listening to what

> the disease and its complications.

>

> Moreover, there is always a scope for hearing to improve in such

> surgeries, except when the disease extends to oval window.

> I tell my cases, there will be improvement in hearing, but how much i

> can not tell. I always use homo graft as they are free to use and

> available in plenty at site.

> Arun

>

>

>

>

>

> On 4/9/08, *daniel skempton* <dskempton@...

> <mailto:dskempton@...>> wrote:

>

> " Restoration of hearing, though welcome, is not an aim of the surgery "

>

>

> I've heard this from several doctors, and I have to say that I

> always perceived it as a very insensitive kop out. The ability to

> hear effectively is very important in the modern workplace (at

> least that has been my experience). So much so, that if a doctor

> is so flippant about the significance of it, I'd probably prefer

> to look to someone else to perform my surgery. Of course, safety

> first, but if I'm going to let someone operate on my ear, I want

> someone in there who thinks my hearing is a VERY high priority.

>

> I've had two of these surgeries, and feel truly blessed to be able

> to hear at a reasonable level. I think the reality is that the

> surgeon needs to listen to the patient and their priorities.

> Potential loss of hearing may be a crushing blow for some people,

> and as such, should definitely be taken into consideration before

> a course of action is recommended by a surgeon.

>

> Just my 2 cents...

>

> */kazzy <kazzy@... <mailto:kazzy@...>>/*

> wrote:

>

> Hi

>

> At the risk of sounding rude, I have to disagree with you.

>

> I have been told by every doctor I've seen to do with this

> monster, that the surgeon's aim of the surgery is of course

> (as you say) the removal of the disease, but second to that is

> the aim of a clean, dry ear. This is as told to me by every

> medically trained person that I have seen since learning about

> the disease in 1999. Restoration of hearing, though welcome,

> is not an aim of the surgery and certainly would not come

> above achieving a dry ear in a list of priorities.

>

> From my own point of view, too, I think I would rather have a

> disease-free, dry, healthy ear that I couldn't hear out of,

> than an unhealthy ear that I could hear out of.

>

> Kazzy

>

>

>

>

>

> * Re: Re: titanium prosthesis

>

>

> _*To All Members C-Toma removal and Improvement in Hearing*_

>

> Out come of surgery in C-Toma cases is never correctly

> predictable.

> From the point of view of surgeon the priorities ( aim of

> surgery) are in the following order

> 1- Removal of Disease & cholesteatoma

> 2- Restoration of hearing

> 3- Achieve Dry ear

>

> An From the patients view the priorities are in reverse order

>

> 1- Achieve Dry ear ( As is fed up of repeated medicines)

> 2- Better hearing then before

> 3- Eradication of Cholesteatoma, some times the

> seriousness of disease in not properly explained to all cases.

>

> And above that being a special organ of body, its anatomy

> has been made so complex by god, that it needed months of

> cadevaric practice to be confident to operate.

>

> Many times removal of c-toma has to be compromised at cost

> of improvement in hearing too.

> Arun

>

> On 4/9/08, *cazlaser* <rusty@...

> <mailto:rusty@...>> wrote:

>

> Thanks for the feedback. I had one put in during Nov

> 07 and found out

> a week ago that my ent will have to go back in and

> reset it. Right now

> I have considerable hearing loss in my ear, but my

> doctor is quite

> confident that this next procedure will restore most

> of it if the c-

> toma has not returned.

>

>

>

>

>

------------------------------------------------------------------------

> No virus found in this incoming message.

> Checked by AVG.

> Version: 7.5.519 / Virus Database: 269.22.10/1366 -

> Release Date: 4/8/2008 5:03 PM

>

>

>

>

>

--