Re: Would anyone be interested?

[Guest guest]

,

My name is Rory McLean.  I am the president of the Autism Society of Greater

Cleveland.  I am a memeber of Autism NE too.  I did want to let you know that we

have monthly meetings in Brecksville.  The last meeting we had 35 parents.  One

of our new members comes from you neck of the woods in Olmsted Township with a

child near your age.  You might consider coming to our meetings.  We meet the

first Wednesday of each month at St. Basil church located at 8700 Brecksville

Road, Brecksville Ohio 44141 in the parish center.  We meet from 6:30 - 8:30 PM.

 Please feel free to call me on my cell phone @ 440-554-7372.  Also if you have

an opportunity to review our web-site at www.asgc.org for additional

information.

Sincerely,

Rory McLean

President

Autism Society of Greater Cleveland

" If you want to know.. Ask! " <mystique2574@...> wrote:

> Hi all.. I hope you are all keeping warm!nbsp;

>

>I was wondering if anyone would be interested in getting together to

>just get to know each other.. share stories, ideas and information.

>

>I have a 3 1/2 yr old who is diagnosed Autism Spectrum Disorder

>w/ADD..nbsp;nbsp;nbsp; and we are always learning of new things that are

>available to us that we were clueless about earlier.nbsp; We were

>clueless when it came to his first IEP meeting, and after having

>someone look over what we did come up with, they helped us see that

>we weren't getting everything that our son needed so we are just now

>(first IEP meeting was in April) getting a 2nd IEP meeting to update

>and revamp it..nbsp;nbsp; I was told of some support groups but most were

>either on the east side, or met during the day, which excluded my

>husband, or I could not bring my kids to it, and if any of you are

>like us, babysitting comes at a premium..nbsp;nbsp; We know our son needs

>more and that there should be more out there.. we want to be able to

>take advantage of all the programs that are available.. but where do

>we get the list of the programs?nbsp;nbsp;nbsp;nbsp;nbsp; We figure if we have

these

>questions we are probably not alone..nbsp; that there may be other

>parents who are either newly diagnosed, or have been going thru the

>motions just not sure what else to do.nbsp;nbsp;nbsp; We could learn from

>parents who have been there and may know what else we could be

>doing, who have tried different methods and know of what is out

>there..nbsp;nbsp; Also how do they handle siblings, and share the attention

>so that the other child(ren) don't feel left out or like they have

>to act out to get attention..nbsp; I have so many questions.. and

>doctors and professionals can help so much.. but I think that other

>parents who have been there... can give better advice than a doctor

>reading from a text book, any day!

>

>My church, which is located in Brook Park, is offering the use of

>their building.. a large fellowship hall with 2 classrooms and a

>nurserynbsp; so that some children can be brought as well..nbsp;nbsp; there is

>no charge...nbsp; I'll even provide the coffee and water...nbsp;nbsp; just

>looking to get together with other parents to talk and share things

>with..nbsp; moms, dads, grandparents, friends, just anyone who wants to

>share their experiences or to learn about what we can do to better

>serve our children's needs.

>

>So if this is something that may interest you, please contact me and

>if we get enough interest, we'll plan a get together.nbsp; We can plan

>something on an evening during the week or even on the weekend

>sometime.. it's all open for discussion..

>

>Thanks!

> amp; Tim Javorsky

>Parents of igh,5 and Kiernan,3 1/2

>Olmsted Falls

>

>

>

>  

>

>

[Guest guest]

Hi & Tim! Although I live in Portage County, my in-laws live in Brook Park. Perhaps Daddy could schedule a visit for the kids with grandma and grandpa while I go off to the meeting. This would only work on a weekend.

My son Bobby just turned 7 this week and is in 1st grade at the local school. Kindergarten couldn't have gone better. Bobby enjoys first grade, but I think the teacher could do more on diversity in the classroom - as in accepting people and their differences. My son is very different than his peers! Just writing this made me realize I was a bit disturbed by what the teacher said at the parent/teacher conference last night. She said the class was learning to appreciate his humor, and she went on to explain a few misunderstood idioms that made the class burst out in laughter (for example, "zip it" means be quiet, not zip up your zipper). But how is that example my son's humor? He didn't mean to be funny. - Not quite sure what to do about this.

As you can see, I digress easily! Let me know when you schedule your get together!

----- Original Message -----

From: If you want to know.. Ask!

Sent: Friday, November 18, 2005 12:29 AM

Subject: [ ] Would anyone be interested?

Hi all.. I hope you are all keeping warm! I was wondering if anyone would be interested in getting together to just get to know each other.. share stories, ideas and information.I have a 3 1/2 yr old who is diagnosed Autism Spectrum Disorder w/ADD.. and we are always learning of new things that are available to us that we were clueless about earlier. We were clueless when it came to his first IEP meeting, and after having someone look over what we did come up with, they helped us see that we weren't getting everything that our son needed so we are just now (first IEP meeting was in April) getting a 2nd IEP meeting to update and revamp it.. I was told of some support groups but most were either on the east side, or met during the day, which excluded my husband, or I could not bring my kids to it, and if any of you are like us, babysitting comes at a premium.. We know our son needs more and that there should be more out there.. we want to be able to take advantage of all the programs that are available.. but where do we get the list of the programs? We figure if we have these questions we are probably not alone.. that there may be other parents who are either newly diagnosed, or have been going thru the motions just not sure what else to do. We could learn from parents who have been there and may know what else we could be doing, who have tried different methods and know of what is out there.. Also how do they handle siblings, and share the attention so that the other child(ren) don't feel left out or like they have to act out to get attention.. I have so many questions.. and doctors and professionals can help so much.. but I think that other parents who have been there... can give better advice than a doctor reading from a text book, any day!My church, which is located in Brook Park, is offering the use of their building.. a large fellowship hall with 2 classrooms and a nursery so that some children can be brought as well.. there is no charge... I'll even provide the coffee and water... just looking to get together with other parents to talk and share things with.. moms, dads, grandparents, friends, just anyone who wants to share their experiences or to learn about what we can do to better serve our children's needs. So if this is something that may interest you, please contact me and if we get enough interest, we'll plan a get together. We can plan something on an evening during the week or even on the weekend sometime.. it's all open for discussion.. Thanks! & Tim JavorskyParents of igh,5 and Kiernan,3 1/2 Olmsted Falls

[Guest guest]

In a message dated 11/18/2005 10:06:21 P.M. Eastern Standard Time, marottafamily@... writes:

that made the class burst out in laughter (for example, "zip it" means be quiet, not zip up your zipper). But how is that example my son's humor? He didn't mean to be funny. - Not quite sure what to do about this.

That sounds pretty mean. We do laugh at the idioms but not in his face. Seems like that will only make him feel stupid. I bought my ds an idiom dictionary. It has 600 idioms and explains what they really mean. He is really improving with idioms since he has the book, which he likes to read. But he is in 4th grade. So it took a lot of time to get to here. Maybe you can talk to the speech therapist and ask her to help you work with the teacher on these things - like learning appropriate ways to correct him. ??

Roxanna Autism Happens

[Guest guest]

Rory,

Thank you so much for the invite.. and I've been to your website

before, which is good, but my question is are children welcome to

these meetings if a sitter can't be found? More information about

things like this might be good in your FAQ section. The other thing

for us is scheduling time to attend something like this that is

right after work for my husband, who normally does not get home

until 6:30. Which is why I'd like to find others who might not mind

a saturday or sunday afternoon meeting or maybe one that doesn't

start until a little later in the evening during the week..

So if anyone else would be interested in this, let me know and I'll

plan an afternoon meeting (I just need to reserve the time slot at

my church) and we can plan it!

>

> > Hi all.. I hope you are all keeping warm!nbsp;

> >

> >I was wondering if anyone would be interested in getting together

to

> >just get to know each other.. share stories, ideas and

information.

> >

> >I have a 3 1/2 yr old who is diagnosed Autism Spectrum Disorder

> >w/ADD..nbsp;nbsp;nbsp; and we are always learning of new things

that are

> >available to us that we were clueless about earlier.nbsp; We were

> >clueless when it came to his first IEP meeting, and after having

> >someone look over what we did come up with, they helped us see

that

> >we weren't getting everything that our son needed so we are just

now

> >(first IEP meeting was in April) getting a 2nd IEP meeting to

update

> >and revamp it..nbsp;nbsp; I was told of some support groups but

most were

> >either on the east side, or met during the day, which excluded my

> >husband, or I could not bring my kids to it, and if any of you

are

> >like us, babysitting comes at a premium..nbsp;nbsp; We know our

son needs

> >more and that there should be more out there.. we want to be able

to

> >take advantage of all the programs that are available.. but where

do

> >we get the list of the programs?nbsp;nbsp;nbsp;nbsp;nbsp; We

figure if we have these

> >questions we are probably not alone..nbsp; that there may be

other

> >parents who are either newly diagnosed, or have been going thru

the

> >motions just not sure what else to do.nbsp;nbsp;nbsp; We could

learn from

> >parents who have been there and may know what else we could be

> >doing, who have tried different methods and know of what is out

> >there..nbsp;nbsp; Also how do they handle siblings, and share the

attention

> >so that the other child(ren) don't feel left out or like they

have

> >to act out to get attention..nbsp; I have so many questions.. and

> >doctors and professionals can help so much.. but I think that

other

> >parents who have been there... can give better advice than a

doctor

> >reading from a text book, any day!

> >

> >My church, which is located in Brook Park, is offering the use of

> >their building.. a large fellowship hall with 2 classrooms and a

> >nurserynbsp; so that some children can be brought as

well..nbsp;nbsp; there is

> >no charge...nbsp; I'll even provide the coffee and

water...nbsp;nbsp; just

> >looking to get together with other parents to talk and share

things

> >with..nbsp; moms, dads, grandparents, friends, just anyone who

wants to

> >share their experiences or to learn about what we can do to

better

> >serve our children's needs.

> >

> >So if this is something that may interest you, please contact me

and

> >if we get enough interest, we'll plan a get together.nbsp; We can

plan

> >something on an evening during the week or even on the weekend

> >sometime.. it's all open for discussion..

> >

> >Thanks!

> > amp; Tim Javorsky

> >Parents of igh,5 and Kiernan,3 1/2

> >Olmsted Falls

> >

> >

> >

> >  

> >

> >

[Guest guest]

,

I'll definately let you know when, work best for us as well..

It sounds like the teacher needs to take a class herself in learning

to deal with differences in children in the classroom and not

turning one persons misunderstanding into a classroom joke.. not

only could this hurt your sons feelings, but what is this teaching

the other kids, other than to laugh at those who don't understand

things as they do.

I hope that things work out well for you!

>

> Hi & Tim! Although I live in Portage County, my in-laws

live in Brook Park. Perhaps Daddy could schedule a visit for the

kids with grandma and grandpa while I go off to the meeting. This

would only work on a weekend.

>

> My son Bobby just turned 7 this week and is in 1st grade at the

local school. Kindergarten couldn't have gone better. Bobby enjoys

first grade, but I think the teacher could do more on diversity in

the classroom - as in accepting people and their differences. My

son is very different than his peers! Just writing this made me

realize I was a bit disturbed by what the teacher said at the

parent/teacher conference last night. She said the class was

learning to appreciate his humor, and she went on to explain a few

misunderstood idioms that made the class burst out in laughter (for

example, " zip it " means be quiet, not zip up your zipper). But how

is that example my son's humor? He didn't mean to be funny. - Not

quite sure what to do about this.

>

> As you can see, I digress easily! Let me know when you schedule

your get together!

> ----- Original Message -----

> From: If you want to know.. Ask!<mailto:mystique2574@y...>

> <mailto: >

> Sent: Friday, November 18, 2005 12:29 AM

> Subject: [ ] Would anyone be interested?

>

>

> Hi all.. I hope you are all keeping warm!

>

> I was wondering if anyone would be interested in getting

together to

> just get to know each other.. share stories, ideas and

information.

>

> I have a 3 1/2 yr old who is diagnosed Autism Spectrum Disorder

> w/ADD.. and we are always learning of new things that are

> available to us that we were clueless about earlier. We were

> clueless when it came to his first IEP meeting, and after having

> someone look over what we did come up with, they helped us see

that

> we weren't getting everything that our son needed so we are just

now

> (first IEP meeting was in April) getting a 2nd IEP meeting to

update

> and revamp it.. I was told of some support groups but most

were

> either on the east side, or met during the day, which excluded

my

> husband, or I could not bring my kids to it, and if any of you

are

> like us, babysitting comes at a premium.. We know our son

needs

> more and that there should be more out there.. we want to be

able to

> take advantage of all the programs that are available.. but

where do

> we get the list of the programs? We figure if we have these

> questions we are probably not alone.. that there may be other

> parents who are either newly diagnosed, or have been going thru

the

> motions just not sure what else to do. We could learn from

> parents who have been there and may know what else we could be

> doing, who have tried different methods and know of what is out

> there.. Also how do they handle siblings, and share the

attention

> so that the other child(ren) don't feel left out or like they

have

> to act out to get attention.. I have so many questions.. and

> doctors and professionals can help so much.. but I think that

other

> parents who have been there... can give better advice than a

doctor

> reading from a text book, any day!

>

> My church, which is located in Brook Park, is offering the use

of

> their building.. a large fellowship hall with 2 classrooms and a

> nursery so that some children can be brought as well.. there

is

> no charge... I'll even provide the coffee and water... just

> looking to get together with other parents to talk and share

things

> with.. moms, dads, grandparents, friends, just anyone who wants

to

> share their experiences or to learn about what we can do to

better

> serve our children's needs.

>

> So if this is something that may interest you, please contact me

and

> if we get enough interest, we'll plan a get together. We can

plan

> something on an evening during the week or even on the weekend

> sometime.. it's all open for discussion..

>

> Thanks!

> & Tim Javorsky

> Parents of igh,5 and Kiernan,3 1/2

> Olmsted Falls

>

[Guest guest]

Roxanne - Apparently, his teacher did tell the SLP about the misunderstanding. One of Bobby's IEP goals is to learn idioms. In fact, his ESY included idioms. This summer, the SLP and I went over which idioms we as a family use so they could work on those first during the school year. What a hard assignment! We use idioms with almost no thought. They just pop out!

Since I wrote the original email, I asked him what zip it means while looking for signs of distress. He nonchalantly asked me what it meant. After I explained, he replied, "oh, yeah." <giggle> He didn't seem the least bit upset and he seemed to think it was a great joke. Well, if he didn't mean to be funny, at least he was able to laugh along.

And I think he perfectly remembered what his teacher and SLP told him. I think he was checking what they said against what I said. Does zip it really mean be quiet? Chris

----- Original Message -----

From: kneeleee@...

Sent: Saturday, November 19, 2005 9:43 AM

Subject: Re: [ ] Would anyone be interested?

In a message dated 11/18/2005 10:06:21 P.M. Eastern Standard Time, marottafamily@... writes:

that made the class burst out in laughter (for example, "zip it" means be quiet, not zip up your zipper). But how is that example my son's humor? He didn't mean to be funny. - Not quite sure what to do about this.

That sounds pretty mean. We do laugh at the idioms but not in his face. Seems like that will only make him feel stupid. I bought my ds an idiom dictionary. It has 600 idioms and explains what they really mean. He is really improving with idioms since he has the book, which he likes to read. But he is in 4th grade. So it took a lot of time to get to here. Maybe you can talk to the speech therapist and ask her to help you work with the teacher on these things - like learning appropriate ways to correct him. ??

Roxanna Autism Happens

[Guest guest]

- The teacher is quite young. I think she means well, but needs a little more experience. Then again, my son doesn't seem traumatized by the incident, so perhaps I'm the one who's a little sensitive. It seems she has quite a few children on IEPs (not that she told me, but I gathered that from observing the classroom), and as she explained how she runs her classroom, she seems quite capable. Chris.

----- Original Message -----

From: If you want to know.. Ask!

Sent: Tuesday, November 22, 2005 8:57 AM

Subject: [ ] Re: Would anyone be interested?

,I'll definately let you know when, work best for us as well.. It sounds like the teacher needs to take a class herself in learning to deal with differences in children in the classroom and not turning one persons misunderstanding into a classroom joke.. not only could this hurt your sons feelings, but what is this teaching the other kids, other than to laugh at those who don't understand things as they do.I hope that things work out well for you!>> Hi & Tim! Although I live in Portage County, my in-laws live in Brook Park. Perhaps Daddy could schedule a visit for the kids with grandma and grandpa while I go off to the meeting. This would only work on a weekend.> > My son Bobby just turned 7 this week and is in 1st grade at the local school. Kindergarten couldn't have gone better. Bobby enjoys first grade, but I think the teacher could do more on diversity in the classroom - as in accepting people and their differences. My son is very different than his peers! Just writing this made me realize I was a bit disturbed by what the teacher said at the parent/teacher conference last night. She said the class was learning to appreciate his humor, and she went on to explain a few misunderstood idioms that made the class burst out in laughter (for example, "zip it" means be quiet, not zip up your zipper). But how is that example my son's humor? He didn't mean to be funny. - Not quite sure what to do about this.> > As you can see, I digress easily! Let me know when you schedule your get together! > ----- Original Message ----- > From: If you want to know.. Ask!<mailto:mystique2574@y...> > <mailto: > > Sent: Friday, November 18, 2005 12:29 AM> Subject: [ ] Would anyone be interested?> > > Hi all.. I hope you are all keeping warm! > > I was wondering if anyone would be interested in getting together to > just get to know each other.. share stories, ideas and information.> > I have a 3 1/2 yr old who is diagnosed Autism Spectrum Disorder > w/ADD.. and we are always learning of new things that are > available to us that we were clueless about earlier. We were > clueless when it came to his first IEP meeting, and after having > someone look over what we did come up with, they helped us see that > we weren't getting everything that our son needed so we are just now > (first IEP meeting was in April) getting a 2nd IEP meeting to update > and revamp it.. I was told of some support groups but most were > either on the east side, or met during the day, which excluded my > husband, or I could not bring my kids to it, and if any of you are > like us, babysitting comes at a premium.. We know our son needs > more and that there should be more out there.. we want to be able to > take advantage of all the programs that are available.. but where do > we get the list of the programs? We figure if we have these > questions we are probably not alone.. that there may be other > parents who are either newly diagnosed, or have been going thru the > motions just not sure what else to do. We could learn from > parents who have been there and may know what else we could be > doing, who have tried different methods and know of what is out > there.. Also how do they handle siblings, and share the attention > so that the other child(ren) don't feel left out or like they have > to act out to get attention.. I have so many questions.. and > doctors and professionals can help so much.. but I think that other > parents who have been there... can give better advice than a doctor > reading from a text book, any day!> > My church, which is located in Brook Park, is offering the use of > their building.. a large fellowship hall with 2 classrooms and a > nursery so that some children can be brought as well.. there is > no charge... I'll even provide the coffee and water... just > looking to get together with other parents to talk and share things > with.. moms, dads, grandparents, friends, just anyone who wants to > share their experiences or to learn about what we can do to better > serve our children's needs. > > So if this is something that may interest you, please contact me and > if we get enough interest, we'll plan a get together. We can plan > something on an evening during the week or even on the weekend > sometime.. it's all open for discussion.. > > Thanks!> & Tim Javorsky> Parents of igh,5 and Kiernan,3 1/2 > Olmsted Falls>