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Re: cholesteatoma help

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hello dillip

yes i beleive it is possible for ctoma to grow quite quickly, though

according to items i have read it is not generally described as " fast " . it

seems to be generally stated that the ctoma grows much quicker in children,

than in adults. there is still much ongoing debate as to whether there are

any subtle differences between ctoma in kids and adults and opinion is

divided.

from what i have read, congential ctoma seems to grow fairly quickly, moreso

than acquired ctoma. there are two type of acquired ctoma, primary and

secondary. primary is generally due to a retraction pocket. this is where

unequal pressure between the middle ear and the environment cause the ear

drum to be sucked inwards. secondary is generally due to some kind of

injury, generally speaking chronic infection (although can be due to trauma).

when you ask can it be detected at it's initial stage....what do you mean?

it can be detected in relatively early stages, though not always. congenital

ctoma usually has an intact eardrum, so there is no history of discharge from

the ear.

x-ray and CT scan can show " white areas " but are unable to distinguish

between, ctoma, fluid and polyps. your answer to this question is dependent

on what type of ctoma it is. what your presenting symptoms are. what

diagnostic tests you have had etc...sorry it's not much help, but it has so

many variables.

in my opinion, financial status should make no difference as to how long you

wait for your treatment, but i understand that is not always the case. i

live in the uk, so by and large, everyone waits for treatnment. however,

what i must say is that ENT docs have dealt with my daughter quickly when it

was necessary. i can only say that docs should assess each patient's needs

indivdually. if you are unhappy with your doctor, then seek a second

opinion. as far as the UK goes, you are certainly entitled to seek one on

the NHS.

with regard to medical literature....well...where do you start???

there is a wealth of info out there. i started at alex's site

www.cholesteatoma.org

i believe that's the correct address. the people here are always willing to

share info and news, answer questions etc...

however i will email a list of sites that i have used. be warned, some of it

makes for some very heavy reading (smiles). the very best of luck to you.

julie

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