Hello Everyone

[Guest guest]

Hi everyone, My name is Jon and I'm 20. I stumbled upon this group in

my random wikipedia searching on the web, and I thought I'd type in

the name of my previous troubles: cholesteatoma. I've had 7 surgeries

on my ears, 3 of them being cholesteatoma surgeries and have to report

in to my ENT once every year. I've had tubes in my ears, then ear drum

repair surgeries, then cholesteatoma surgery a few more times, then a

few more ear drum repair attempts. My balance was pretty screwed up

for a while but I worked hard at it and now take martial arts. I have

for the last 3 years actually. I know its hard for the younger kids to

go through something like this, so I'd be delighted to help if anyone

has any questions or just needs someone to talk to. I saw a few

stories of folks who had children going through this, hang in there.

Its tough for the child, but as I've grown older I can see that it was

far harder for my parents to go through it