Guest guest Posted May 22, 2002 Report Share Posted May 22, 2002 May "The Force" be with you!!!...sorry couldn't help myself...good luck to you both Lori & . You are in my prayers Audrey Surgery Day Hello all, and hello to Dianne. I'm sorry to hear about your daughter and glad you found this group. I'll let the others weigh in with the info you are looking for (and check all the Bookmarks on the group's page) as today is kind of busy for me.Just a quick post to remind y'all that Lori (jandlx3) and I both have our surgeries today. May our cholesteatomas be small and minimally invasive!I feel so much better now that the day is finally here, the waiting for surgery has been a strain. This is #3 for me which is a mixed blessing - I know what to expect but I also know I don't like it at all. Thanks for being here. Just keeping up with the posts, even when not posting myself, lets me know I'm not alone in a world of "cholest-a-what?", "is it serious?", and "whaddya mean they won't know until they get in there?". Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2002 Report Share Posted May 22, 2002 Good Luck Lorie and . I'll be thinking of you. Lynn Surgery Day > Hello all, and hello to Dianne. I'm sorry to hear about your daughter > and glad you found this group. I'll let the others weigh in with the > info you are looking for (and check all the Bookmarks on the group's > page) as today is kind of busy for me. > > Just a quick post to remind y'all that Lori (jandlx3) and I both have > our surgeries today. May our cholesteatomas be small and minimally > invasive! > > I feel so much better now that the day is finally here, the waiting > for surgery has been a strain. This is #3 for me which is a mixed > blessing - I know what to expect but I also know I don't like it at > all. > > Thanks for being here. Just keeping up with the posts, even when not > posting myself, lets me know I'm not alone in a world of " cholest-a- > what? " , " is it serious? " , and " whaddya mean they won't know until > they get in there? " . > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2002 Report Share Posted May 22, 2002 Good Luck Lori and . We are already waiting to hear from you!!!!! Michele --- rlialw <rlockw1092@...> wrote: > Hello all, and hello to Dianne. I'm sorry to hear > about your daughter > and glad you found this group. I'll let the others > weigh in with the > info you are looking for (and check all the > Bookmarks on the group's > page) as today is kind of busy for me. > > Just a quick post to remind y'all that Lori > (jandlx3) and I both have > our surgeries today. May our cholesteatomas be small > and minimally > invasive! > > I feel so much better now that the day is finally > here, the waiting > for surgery has been a strain. This is #3 for me > which is a mixed > blessing - I know what to expect but I also know I > don't like it at > all. > > Thanks for being here. Just keeping up with the > posts, even when not > posting myself, lets me know I'm not alone in a > world of " cholest-a- > what? " , " is it serious? " , and " whaddya mean they > won't know until > they get in there? " . > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2011 Report Share Posted June 15, 2011 Good luck! Hopefully the worst part for you will be the anticipation! I find that's the hardest part of surgery sometimes. Of course, the lack of food and coffee doesn't help the situation. I'll think happy, successful, c-toma free thoughts for you today! From: "sydwee915@..." <sydwee915@...>cholesteatoma Sent: Wed, June 15, 2011 6:47:54 AMSubject: Surgery Day Going in for my surgery in about 2 hours. It'll take us about an hour and a half to get there. I'm trying to stay calm but I have butterflies in my stomach. I can't eat or really drink anything but clear liquids then at 9 its nothing for me!!!wish me luck. If I'm up to it I'll post later on and let everyone know how it all went. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2011 Report Share Posted June 16, 2011 I also had my surgery yesterday (June 15th). Took about 3 hours. I was glad I was 1st surgery of the day so I could get it over with! Was happy none of the ear canal bones were involved, but I had extra scar tissue on eardrum that had to be removed...my body was trying to fight off the c-toma so it produced extra scar tissue. The hospital I was at is doing a study of c-tomas vs regular skin tissue so they may come up with a new way of treating c-tomas without doing surgery. They are trying to find a way to inject something in the ear that would dissolve the c-toma instead of cutting it out...wouldn't that be great! They were going to use some of my tissue for the study. So when I got home from hospital I didn't feel too bad, but as day went on I had to take pain medication because it really hurt and so did my throat from breathing tube. I was not expecting all that pain. Was very difficult to sleep too...had to sleep in recliner. Feel much better today, thank goodness...but will still take it easy today! How do you feel today sydwee915? Ready to workout yet?!!! Hope you're doing well! Same with anyone else out there who just had surgery! > > Going in for my surgery in about 2 hours. It'll take us about an hour and a half to get there. I'm trying to stay calm but I have butterflies in my stomach. I can't eat or really drink anything but clear liquids then at 9 its nothing for me!!! > > wish me luck. If I'm up to it I'll post later on and let everyone know how it all went. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2011 Report Share Posted June 16, 2011 Janet: It sounds like we are in the same boat. I am having some pain with my ear but surprisingly its more my throat and head that hurt . I had a breathing tube too. I didn't even know they were going to do that until after I got out of my surgery and my hubby told me they had put a breathing tube down my throat. I took the " jock strap like " covering off today. I get the packing out next week when I have to go back and see the dr. The dr. told my husband though that my bones were too far damaged and some had even been absorbed through the infections I had so there is nothing they can do as far as reconstruction and helping me get my hearing back some. That was VERY disappointing to me. I didn't sleep too great last night but did much better once I proped myself up some. Been a rather day today for me. Just been relaxing, movies, some crocheting. LOL Not up to the workouts yet but I'm hoping soon. > > > > Going in for my surgery in about 2 hours. It'll take us about an hour and a half to get there. I'm trying to stay calm but I have butterflies in my stomach. I can't eat or really drink anything but clear liquids then at 9 its nothing for me!!! > > > > wish me luck. If I'm up to it I'll post later on and let everyone know how it all went. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2011 Report Share Posted June 20, 2011 Sorry...haven't been on in a few days, and just saw your question. It is Froedert Hospital in Milwaukee, WI. They are a teaching hospital and affiliated with Medical College of WI. Don't know if you ever heard of, or not. I thought was pretty interesting too and was happy to participate. How nice it would be not to have surgery for this, especially those that have multiple times! I sure hope they come up with something...I sure don't want to do this again! > > > > > > Going in for my surgery in about 2 hours. It'll take us about an hour and a half to get there. I'm trying to stay calm but I have butterflies in my stomach. I can't eat or really drink anything but clear liquids then at 9 its nothing for me!!! > > > > > > wish me luck. If I'm up to it I'll post later on and let everyone know how it all went. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2011 Report Share Posted June 20, 2011 Hi everyone, Been 5 days since surgery and I had sponge packing taken out of my ear today. They said everything is looking good! I really didn't expect as much pain in my ear as I had the first few days...thank goodness for the Vicadin! Pain better now...kind of comes and goes. Did anyone have the salty taste in their mouth on the side that they had surgery? Doc says is normal cuz nerves for taste are right by ear. They say it will go away as nerves heal and are less inflamed. Food tastes a little funny...don't need to salt anything!!! Going to try and do a " mini " workout today...some walking/elliptical and some lifting exercises with no weight. See how long I last, because I have been so tired since surgery! Thought I would have trouble sleeping, but have been sleeping like a log. Sleeping in a recliner really helps! Hope everyone else doing well...hang in there! -Janet > > > > > > > > > > Going in for my surgery in about 2 hours. It'll take us about an hour and a half to get there. I'm trying to stay calm but I have butterflies in my stomach. I can't eat or really drink anything but clear liquids then at 9 its nothing for me!!! > > > > > > > > > > wish me luck. If I'm up to it I'll post later on and let everyone know how it all went. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2011 Report Share Posted June 20, 2011 Janet: I believe you and I had our surgeries the same day right?? I have not had my packing removed yet . I'll have it done on Wednesday. My pain is mostly my head these last few days . When I first had the surgery it was my throat because of the air tube. I do have pain in my ear too though. It comes and goes . The side of my tongue feels alittle numb but not salty taste like you said . I did a kenpo exercise today. No jumping just some boxing and kicking . Went pretty good. Slow start but I'll get back to it. I'm having trouble sleeping but its getting better . Sleeping sitting up though is definately better. glad to hear you are doing pretty good. > > > > > > > > > > > > > > Going in for my surgery in about 2 hours. It'll take us about an hour and a half to get there. I'm trying to stay calm but I have butterflies in my stomach. I can't eat or really drink anything but clear liquids then at 9 its nothing for me!!! > > > > > > > > > > > > > > wish me luck. If I'm up to it I'll post later on and let everyone know how it all went. > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2011 Report Share Posted June 23, 2011 Yes, sydwee915, we did have surgery on same day. You must have had some of your packing removed by now. Does it feel any different? My ear still feels clogged and hearing worse than b4 surgery. My understanding is that there is still some gel packing in there that will somewhat dissolve and then get cleaned out when I go see doc in 2 weeks. Hope that is case, cuz don't like clogged feeling! Salty taste is there all the time and driving me a little crazy...guess that resolves itself in a few weeks...at least, I hope so. Your tongue still numb? Great your working out! I am mostly doing cardio...elliptical, walking and even did 5 miles running! Felt good, but can't wait to be able to use weights again. Used some 5# weights, but have to do so many reps and make sure not pressure on ear! How is your head pain? Is it around area where they did surgery, or headaches? I take 2 tylenol b4 bed and seems to help with my head pain and headaches! That seems to be time when it gets bad, so it helps with pain so I fall asleep. I just want to feel " normal " again...sooner rather than later! Hope all good with you! -Janet > > > > > > > > > > > > > > > > > > Going in for my surgery in about 2 hours. It'll take us about an hour and a half to get there. I'm trying to stay calm but I have butterflies in my stomach. I can't eat or really drink anything but clear liquids then at 9 its nothing for me!!! > > > > > > > > > > > > > > > > > > wish me luck. If I'm up to it I'll post later on and let everyone know how it all went. > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2011 Report Share Posted June 23, 2011 Yes, I had the packing removed yesterday (Wednesday). it hurt alittle bit when he removed it. He also vacumed it too. Probably to get rid of excess blood and gunk. it does feel abit different but I don't really notice any major change. I didn't have great hearing b4 surgery so I don't really notice a big change there. My dr. didn't mention anything about a gel packing . I don't think I got that. Yes my tongue is still numb on my left side . Not the whole tongue . Just like the top left side. Yeah, I'm sticking with cardio too. Did some Kenpo and walking. Even tried abit of walking but he said not too much jarring so trying to keep it simple . He said no weight lifting for another two weeks. My head pain comes and goes. It is on the same side as the surgery. My teeth also bother me on that side from time to time . Probably all nerve based. My ear is also still very sensitive. did they do the glue thing on you to close up the incision. Well they did that for me and today a piece of it came off. It made me nervous but a fellow employee said they had glue too for their surgery and that was suppose to happen. LOL. I was afraid I was coming apart . LOL thanks for keeping in touch Janet. If you ever want to send me a personal email feel free. Sydwee915@... Theresa > > > > > > > > > > > > > > > > > > > > > > Going in for my surgery in about 2 hours. It'll take us about an hour and a half to get there. I'm trying to stay calm but I have butterflies in my stomach. I can't eat or really drink anything but clear liquids then at 9 its nothing for me!!! > > > > > > > > > > > > > > > > > > > > > > wish me luck. If I'm up to it I'll post later on and let everyone know how it all went. > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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